Sally Burch

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

Sally Burch is an advocate for people with Myalgic Encephalomyelitis, and a member of the NICE guidelines review panel in the UK, which is due to complete its work in 2020.[1][2]

Sally has been living with Myalgic Encephalomyelitis since 2012, and is opposed to the biopsychosocial model of the illness which currently dominates NHS policy and recommends graded exercise therapy (GET) and cognitive behavioral therapy (CBT) as primary treatments.[2]

Talks and interviews[edit | edit source]

Online presence[edit | edit source]

  • Twitter
  • Facebook
  • Blog
  • YouTube

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. ↑ NICE (October 28, 2018). "Committee member list | NICE CG53 CFS/ME guidance update". nice.org.uk. Retrieved October 20, 2018.
  2. ↑ 2.0 2.1 Burch, Sally (May 11, 2018). "Just ME: Trust, in the context of ME". Just ME. Retrieved October 28, 2018.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

See Graded exercise therapy.

cognitive behavioral therapy (CBT) - A type of psychotherapy geared toward modifying alleged unhealthy thinking, behaviors or illness beliefs. One of the treatment arms used in the controversial PACE trial.

See cognitive behavioral therapy.

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