Nasim Marie Jafry

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Nasim Marie Jafry is a Scottish writer living with myalgic encephalomyelitis (ME). She was diagnosed with ME in 1984, by consultant neurologist Peter Behan, according to Melvin Ramsay's definition, having first become ill in autumn 1982 with Coxsackie B4 virus. There was an outbreak of Coxsackie B4 in the west of Scotland at this time.

In her 2008 debut novel, The State of Me, the main character, Helen Fleet, who has ME, chronicles "her unusual experiences as a twenty-something woman living in 80s Scotland with a mystery illness."[1]

She appeared in the early 2012 BBC Alba documentary Toxic Tiredness. Professor Peter Behan, one of the few ME specialists in UK in 1980s, also appeared, as did Dr Charles Shepherd.

She contributed to the Guardian newspaper's Comment is Free on living with chronic illness in 2011. The Well Made Project, an online art exhibition as part of London Creativity and Wellbeing Week 2015, included an excerpt from The State of Me.

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myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.