Mary Schweitzer
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Mary M. Schweitzer, PhD, is an advocate who has been living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since 1994.[1] She stated in a written testimony to Chronic Fatigue Syndrome Advisory Committee (CFSAC): "I first collapsed with 'chronic fatigue syndrome' on October 24, 1994 (although I probably already had it when an outbreak of Epstein-Barr swept Villanova, where I was a professor, in the fall of 1990)".[2]
She has been receiving Ampligen since 1999. After a period where she stopped Ampligen, she had a severe relapse, making her committed to never voluntarily going off Ampligen again.[3][4] Currently she is in the Ampligen trial with Dr. Daniel Peterson in Incline Village. Mary blogs at Slightly Alive.
Open Letter[edit | edit source]
Talks and interviews[edit | edit source]
- 2011, ME/CFS Alert Episode 14 - Patient Perspectives: Mary Schweitzer
- 2014, Comments before the IOM committee
HHS/CFSAC Testimony[edit | edit source]
- May 2007, Written Testimony CFSAC meeting
- May 2009, Written Testimony CFSAC meeting
- Oct 2009, Written Testimony CFSAC meeting
- May, 2011, Written Testimony CFSAC meeting
- Nov, 2011, Public Testimony CFSAC meeting
- Jun, 2012, Public Testimony for Jun 2012 CFSAC meeting
- Jan, 2015, Public Testimony CFSAC meeting
