Mary M. Schweitzer, PhD, is an advocate who has been living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since 1994. She stated in a written testimony to Chronic Fatigue Syndrome Advisory Committee (CFSAC): "I first collapsed with 'chronic fatigue syndrome' on October 24, 1994 (although I probably already had it when an outbreak of Epstein-Barr swept Villanova, where I was a professor, in the fall of 1990)".
She has been receiving Ampligen since 1999. After a period where she stopped Ampligen, she had a severe relapse, making her committed to never voluntarily going off Ampligen again. Currently she is in the Ampligen trial with Dr. Daniel Peterson in Incline Village. Mary blogs at Slightly Alive.
Open Letter[edit | edit source]
Talks and interviews[edit | edit source]
- 2011, ME/CFS Alert Episode 14 - Patient Perspectives: Mary Schweitzer
- 2014, Comments before the IOM committee
HHS/CFSAC Testimony[edit | edit source]
- May 2007, Written Testimony CFSAC meeting
- May 2009, Written Testimony CFSAC meeting
- Oct 2009, Written Testimony CFSAC meeting
- May, 2011, Written Testimony CFSAC meeting
- Nov, 2011, Public Testimony CFSAC meeting
- Jun, 2012, Public Testimony for Jun 2012 CFSAC meeting
- Jan, 2015, Public Testimony CFSAC meeting
Online presence[edit | edit source]
Learn more[edit | edit source]
References[edit | edit source]
chronic fatigue syndrome (CFS) - A fatigue-based illness. The term CFS was invented invented by the U.S. Centers for Disease Control as an replacement for myalgic encephalomyelitis (ME). Some view CFS as a neurological disease, others use the term for any unexplained long-term fatigue. Sometimes used as a the term as a synonym of myalgic encephalomyelitis, despite the different diagnostic criteria.
Chronic Fatigue Syndrome Advisory Committee (CFSAC) - (sometimes pronounced SIF-SACK) A US government advisory council that met twice per year, covering current topics related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Meetings usually lasted for two days and the results were presented to the Secretary of Health and Human Services (HHS). After 15 years, on September 5, 2018, CFSAC's charter was not renewed by the Department of HHS, effectively dissolving the committee without notice or warning.