Justin Noble

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Justin Arthur Noble was born September 24, 1985 to Stuart and Susan Noble. A resident of Richmond, British Columbia, he was an avid hockey player up until he contracted myalgic encephalomyelitis (ME).

In 2014, Justin contracted a severe case of ME preventing him from working or participating in any of the physical activities he enjoyed, such as hockey or fishing. His severe ME meant that he stayed at home in a darkened room with his mother and father as his primary caregivers.

Justin saw many physicians, but none were able to help. He struggled on a daily basis with the illness, often stating that he could not accept the fact that he was so ill.

Justin passed away on October 13, 2016 at the age of 31.

Justin Noble ME/CFS Research Internship[edit | edit source]

Justin's family, with the help of the Open Medicine Foundation, set up the Justin Noble ME/CFS Research Internship in order to advance lagging research into the debilitating illness that took Justin's life. The Justin Noble Research Internship is a three-month, paid internship for students with a STEM (science, technology, engineering, and mathematics) background to do labwork at the Stanford Genome Technology Center to help discover the cure for ME.

Donations to the Open Medicine Foundation can be made in Justin's name to go towards this internship.

Learn more[edit | edit source]

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References[edit | edit source]

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

genome an organism's complete set of DNA, including all of its genes

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From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.