Erik Johnson is an advocate for research into the biotoxin connection to the Holmes 1988 "Chronic Fatigue Syndrome. He is the subject of the book Back from the Edge by Lisa Petrison, has chapters in Dr. Ritchie Shoemakers books Mold Warriors & Surviving Mold, describing how he agreed to help start the new CFS syndrome as a prototype in order to draw the attention of researchers to the overlooked clues of biotoxins in the Tahoe Mystery Disease, and has published several books of his writings on extreme mold avoidance. He is also a regular contributor to the blog Paradigm Change.
Erik became ill in the 1970's due to toxic mold and had been a student at Truckee High School which had its own outbreak of Sick Building Syndrome during the same time period of the 1984 Incline Village chronic fatigue syndrome outbreak, but he recovered in the late 1990s as a result of extreme mold avoidance. He has since spent his time working with scientists on the role of mold toxins in chronic illnesses, as well as producing educational materials.
Incline Village: Cohort for examining the outbreak[edit | edit source]
Erik was the first EBV negative patient identified by Dr. Paul Cheney, who then demanded that Erik volunteer to be a "prototype for a new syndrome" as Dr. Cheney's goal was to disprove the CDC's "CEBV Syndrome" and necessitate the creation of a replacement in which EBV was neither inherent or necessary.
By the time of the April 1987 Holmes committee meeting which convened for this purpose, Dr. Cheney had located 19 total EBV negatives, but Erik was the only one from the original Tahoe outbreak. The "19 EBV negatives" were called "The Pristine Cases" and were the core basis for the rationale behind the new syndrome.
Talks and interviews[edit | edit source]
- 2016 - Erik Johnson is featured in the documentary "What About ME" produced by Susan Douglas
- Apr 1, 2019 - Episode 105 - Lake Tahoe Interview with Erik Johnson on MECFS Alert
Online presence[edit | edit source]
See also[edit | edit source]
- 1984 Incline Village chronic fatigue syndrome outbreak
- Lisa Petrison
- Mold hypothesis
- Mold illness
- Ritchie Shoemaker
Learn more[edit | edit source]
- How to Practice Mould Avoidance as Outlined by Erik Johnson
- Facebook Group - The Erik Johnson Effect
- The Role of Toxic Mold in Chronic Fatigue Syndrome by Erik Johnson (PDF)
- Publications by Erik Johnson
References[edit | edit source]
- Foundry, The Theme. "Erik Johnson". Paradigm Change. Retrieved Sep 10, 2019.
chronic fatigue syndrome (CFS) - A controversial term, invented by the U.S. Centers for Disease Control, that generally refers to a collection of symptoms as “fatigue”. There have been multiple attempts to come up with a set of diagnostic criteria to define this term, but few of those diagnostic criteria are currently in use. Previous attempts to define this term include the Fukuda criteria and the Oxford criteria. Some view the term as a useful diagnostic category for people with long-term fatigue of unexplained origin. Others view the term as a derogatory term borne out of animus towards patients. Some view the term as a synonym of myalgic encephalomyelitis, while others view myalgic encephalomyelitis as a distinct disease.
Centers for Disease Control and Prevention (CDC) - The Centers for Disease Control and Prevention is a U.S. government agency dedicated to epidemiology and public health. It operates under the auspices of the Department of Health and Human Services.