Craig W. Maupin

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

Craig W. Maupin (Oct 21, 1969–Aug 7, 2019) was an American myalgic encephalomyelitis patient and a long-time advocate for people with ME. Maupin developed ME at the age of 17 and died on August 7, 2019, at the age of 49.[1]

Advocacy[edit | edit source]

In 2012, Craig Maupin completed a year-long investigation into Freedom of Information Act (FOIA) compliance with chronic fatigue syndrome programs within the National Institutes of Health. His FOIA requests were denied numerous times on the basis that records were "not found," but laid the groundwork for a successful challenge in 2014.[2][3]

Maupin was also instrumental in using a FOIA to a copy of a letter written by Stephen Straus (NIAID) to Keiji Fukuda (CDC) after he authored the 1994 Fukuda criteria, a letter in which Dr. Straus stated his belief that the "notion" of chronic fatigue syndrome as a discrete fatiguing illness would evaporate, and that he hoped this would happen.[4][5][6]

Articles[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. "Craig Maupin: Obituary". Dignity Memorial. August 2019.
  2. Verrillo, Erica (September 5, 2014). "Burmeister wins lawsuit: Court rules government must produce IOM documents". CFS treatment guide.
  3. Klein, Gabby (July 18, 2018). "Emperor CDC's New Clothes". Relating to ME.
  4. Maupin, Craig (March 2014). "CDC AND NIH Officials Discussed "Desirable Outcome" of Seeing A Distinct Illness "Evaporate". (CFS Report Op/Ed, March 2014)". CFS Report.
  5. "Public Comment CFSAC | December 2014 Jerrold Spinhirne, S.E." (PDF). Health and Human Services. December 2014. As a 1994 letter obtained through FOIA effort by advocate Craig Maupin from NIAID’s Dr. Straus to Dr. Fukuda states:
    "I’ve felt for some time, Kieji, that those that have CFS are at a certain point along a continuum of illness in which fatigue is either the most dominant symptom or the most clearly articulated by virtue of impression on the part of the patient or physician that such a complaint is important. I predict that fatigue itself will remain the subject of considerable interest but the notion of a discrete form of fatiguing illness will evaporate. We would then, be left with Chronic Fatigue that can be distinguished as Idiopathic or Secondary to an identifiable medical or psychiatric disorder. I consider this a desirable outcome."
  6. Klein, Gabby (March 22, 2018). "CDC the Puppeteer and the UK BPS Connection to Bury ME". Relating to ME.