Change for ME Australia
"Change For Me is an online collective dedicated to providing information, support and advocacy for Australians affected by neuro-immune and emerging diseases such as Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Lyme Disease, Multiple Chemical Sensitivity and Fibromyalgia.About Us:
These complex, multi-systemic illnesses cause intense suffering, and approximately one quarter of sufferers are house-bound or bed-ridden, cut off from the outside world, and dependent on others for help with basic tasks such as preparing meals, bathing, and mobility. Yet these very ill Australians currently have very little access to basic support services.
Our vision is to help sufferers of these conditions feel supported, visible, connected and informed.Please join us and help make a positive change for Australians affected by these illnesses."
"Change for Me is an online collective. Amara and Lee met on Facebook in 2010 and over time developed the idea of a small group that could assist fellow neuro-immune disease sufferers in practical ways. In 2012 Ann and Mel came on board to form the core of the Change for Me and with their help the collective was born. Since that time a small number of dedicated helpers have been slowing plugging away to bring our plans to life."
Online presence[edit | edit source]
Change4MEAustralia's channel on YouTube[edit | edit source]
Lee, co-founder of Change 4 ME Australia, a housebound ME/CFS patient, documents his visit to the hospital in a 10-part series:
See also[edit | edit source]
References[edit | edit source]
Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.