Naomi Whittingham: Difference between revisions

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[[File:Naomi Whittingham .png|thumb|Naomi is [[Severe and very severe M.E.|severely ill with ME]]]]
[[File:Naomi Whittingham .png|thumb|Naomi is [[Severe and very severe ME|severely ill with ME]]]]
'''Naomi Whittingham''' lives in the [[United Kingdom|UK]] with a [[Severe and very severe M.E.|severe case of myalgic encephalomyelitis]] ([[Myalgic encephalomyelitis|ME]]). She became ill [[Pediatric myalgic encephalomyelitis and chronic fatigue syndrome|at age 12]] with a routine virus and never recovered.   
'''Naomi Whittingham''' lives in the [[United Kingdom|UK]] with a [[Severe and very severe ME|severe]] case of [[myalgic encephalomyelitis]] (ME). She became ill [[Pediatric myalgic encephalomyelitis and chronic fatigue syndrome|at age 12]] with a routine [[Flu-like illness|flu-like virus]]<ref>{{Cite web|url=https://www.bbc.co.uk/radio/play/p02w3d9d | title = Naomi's story | last = Darvall | first = John | date = Jul 2, 2015 | website = bbc.co.uk|at=00:53|language=en-GB|archive-url=|archive-date=|url-status=|access-date=2018-10-15}}</ref> and never recovered.   


== Media coverage ==
== Media coverage ==
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''The Telegraph'' - By: Naomi Whittingham
''The Telegraph'' - By: Naomi Whittingham


"Her life was claimed by an illness that, at its most severe, has been compared to Aids and terminal cancer, yet which is trivialised far too often. Right to the end, Emily had to fight against the belief that she 'only' had ME."<ref>{{Cite news|url=https://www.telegraph.co.uk/news/health/10137694/Emily-didnt-only-have-ME.html|title=Emily didn’t 'only’ have ME|last=Whittingham|first=Naomi|date=2013-06-23|access-date=2018-10-15|language=en-GB|issn=0307-1235}}</ref>
"Her life was claimed by an illness that, at its most severe, has been compared to Aids and terminal cancer, yet which is trivialised far too often. Right to the end, Emily had to fight against the belief that she 'only' had ME."<ref>{{Cite news | url=https://www.telegraph.co.uk/news/health/10137694/Emily-didnt-only-have-ME.html | title = Emily didn’t 'only’ have ME | last = Whittingham | first = Naomi | date = 2013-06-23|access-date=2018-10-15|language=en-GB|issn=0307-1235}}</ref>




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''The Telegraph'' - By: Naomi Whittingham
''The Telegraph'' - By: Naomi Whittingham


"Ordinarily, illness is measured in days or weeks; and for the unfortunate months or even years. Then there are those of us for whom illness, pain and suffering is measured in decades. This is my twenty-fifth year of being ill: a quarter of a century spent mostly in housebound, bed-bound isolation."<ref>{{Cite news|url=https://www.telegraph.co.uk/women/womens-health/11018709/What-its-like-to-live-with-severe-ME.html|title=What it's like to live with severe ME|last=Whittingham|first=Naomi|date=2014-08-08|access-date=2018-10-15|language=en-GB|issn=0307-1235}}</ref>
"Ordinarily, illness is measured in days or weeks; and for the unfortunate months or even years. Then there are those of us for whom illness, pain and suffering is measured in decades. This is my twenty-fifth year of being ill: a quarter of a century spent mostly in housebound, bed-bound isolation."<ref>{{Cite news | url=https://www.telegraph.co.uk/women/womens-health/11018709/What-its-like-to-live-with-severe-ME.html | title = What it's like to live with severe ME | last = Whittingham | first = Naomi | date = 2014-08-08|access-date=2018-10-15|language=en-GB|issn=0307-1235}}</ref>




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''Open Democracy'' - By: Naomi Whittingham
''Open Democracy'' - By: Naomi Whittingham


"We need to draw attention not only to the illness itself, but the political neglect that allows it to continue destroying lives."<ref>{{Cite web|url=https://www.opendemocracy.net/naomi-whittingham/severe-me-left-me-in-world-of-pain-and-darkness-26-years-on-why-is-it-still-poorly-understood|title=Severe ME left me in a world of pain and darkness. 26 years on, why is it still so poorly understood?|last=Whittingham|first=Naomi|date=2016-12-19|website=openDemocracy|language=en|archive-url=|archive-date=|dead-url=|access-date=2018-10-15}}</ref>
"We need to draw attention not only to the illness itself, but the political neglect that allows it to continue destroying lives."<ref>{{Cite web|url=https://www.opendemocracy.net/naomi-whittingham/severe-me-left-me-in-world-of-pain-and-darkness-26-years-on-why-is-it-still-poorly-understood | title = Severe ME left me in a world of pain and darkness. 26 years on, why is it still so poorly understood? | last = Whittingham | first = Naomi | date = 2016-12-19 | website = openDemocracy|language=en|archive-url=|archive-date=|url-status=|access-date=2018-10-15}}</ref>




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"Naomi from Hanham was diagnosed with ME when she was just 12, a condition that for Naomi has controlled her life for the last 25 years.
"Naomi from Hanham was diagnosed with ME when she was just 12, a condition that for Naomi has controlled her life for the last 25 years.


John Darvall has been to see Naomi and her family to find out the impact it's had."<ref>{{Cite web|url=https://www.bbc.co.uk/programmes/p02w3d9d|title=Naomi's story, Living with ME - Naomi's story, John Darvall - BBC Radio Bristol|last=Darvall|first=John|date=Jul 2, 2015|website=BBC|language=en-GB|archive-url=|archive-date=|dead-url=|access-date=2018-10-15}}</ref>
John Darvall has been to see Naomi and her family to find out the impact it's had."<ref>{{Cite web|url=https://www.bbc.co.uk/programmes/p02w3d9d | title = Naomi's story, Living with ME | last = Darvall | first = John | date = Jul 2, 2015 | website = BBC|language=en-GB|archive-url=|archive-date=|url-status=|access-date=2018-10-15|publisher=BBC Radio Bristol}}</ref>




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''John Darvall Blog''
''John Darvall Blog''


"When I knocked on the door to interview Naomi I knew little about [[ME]] other than its dodgy reputation and the questions about whether it was actually a real illness. When I left Naomi’s parents home where she lives, having spoken to her, her mother and brother for an hour I cried."<ref>{{Cite news|url=http://johndarvallblog.com/2015/07/11/what-m-e/|title=What M.E?|last=Darvall|first=John|date=2015-07-11|work=Not Mid Morning Matters|access-date=2018-10-15|archive-url=|archive-date=|dead-url=|language=en-US}}</ref>
"When I knocked on the door to interview Naomi I knew little about [[myalgic encephalomyelitis|ME]] other than its dodgy reputation and the questions about whether it was actually a real illness. When I left Naomi’s parents home where she lives, having spoken to her, her mother and brother for an hour I cried."<ref>{{Cite news | url=http://johndarvallblog.com/2015/07/11/what-m-e/ | title = What M.E? | last = Darvall | first = John | date = 2015-07-11|work=Not Mid Morning Matters|access-date=2018-10-15|archive-url=|archive-date=|url-status=|language=en-US}}</ref>


== Documentary appearance ==
== Documentary appearance ==
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== Advocacy ==
== Advocacy ==
Besides her own interviews and writing about her disease, Naomi supports her brother, [[Tom Whittingham]], with his Marathon fundraising for [[ME Research UK]].<ref>{{Cite news|url=http://www.meaction.net/2015/06/02/update-marathon-for-myalgic-encephalomyelitis/|title=Update: Marathon for Myalgic Encephalomyelitis - #MEAction|date=2015-06-02|work=#MEAction|access-date=2018-10-15|language=en-US}}</ref>
Besides her own interviews and writing about her disease, Naomi supports her brother, [[Tom Whittingham]], with his Marathon fundraising for [[ME Research UK]].<ref>{{Cite news | url=http://www.meaction.net/2015/06/02/update-marathon-for-myalgic-encephalomyelitis/ | title = Update: Marathon for Myalgic Encephalomyelitis - #MEAction | date = 2015-06-02|work=#MEAction|access-date=2018-10-15|language=en-US}}</ref>
 
She writes the blog [[A Life Hidden]] which is dedicated to those suffering from [[Severe and very severe ME|severe ME]].


== Online presence ==
== Online presence ==
*[https://www.facebook.com/naomi.whittingham?fref=ts Facebook]
*[https://twitter.com/NaomiWhitt Twitter]
*[https://twitter.com/NaomiWhitt Twitter]
*[https://www.facebook.com/naomi.whittingham?fref=ts Facebook]
*[https://alifehidden.com Website]


==Learn more==
==See also==
* [[A Life Hidden]] (Naomi's blog)


==See also==
* [[Myalgic encephalomyelitis]]
* [[Myalgic encephalomyelitis]]
* [[Pediatric myalgic encephalomyelitis and chronic fatigue syndrome]]


* [[Severe and very severe M.E.]]
* [[Severe and very severe ME]]


*[[Tom Whittingham]]
*[[Tom Whittingham]]
== References ==
== References ==
<references />
{{Reflist}}


[[Category:People with ME, CFS, and/or FMS]]
[[Category:People with ME, CFS, and/or FMS]]
[[Category:British famous people with ME, CFS, and/or FMS]]
[[Category:British famous people with ME, CFS, and/or FMS]]

Latest revision as of 09:50, November 30, 2022

Naomi Whittingham lives in the UK with a severe case of myalgic encephalomyelitis (ME). She became ill at age 12 with a routine flu-like virus[1] and never recovered.

Media coverage[edit | edit source]

Emily didn't 'only' have ME

The Telegraph - By: Naomi Whittingham

"Her life was claimed by an illness that, at its most severe, has been compared to Aids and terminal cancer, yet which is trivialised far too often. Right to the end, Emily had to fight against the belief that she 'only' had ME."[2]


What it's like to live with severe ME

The Telegraph - By: Naomi Whittingham

"Ordinarily, illness is measured in days or weeks; and for the unfortunate months or even years. Then there are those of us for whom illness, pain and suffering is measured in decades. This is my twenty-fifth year of being ill: a quarter of a century spent mostly in housebound, bed-bound isolation."[3]


Severe ME left me in a world of pain and darkness. 26 years on, why is it still so poorly understood?

Open Democracy - By: Naomi Whittingham

"We need to draw attention not only to the illness itself, but the political neglect that allows it to continue destroying lives."[4]


Naomi's story

BBC Radio Bristol - Interview By: John Darvall

"Naomi from Hanham was diagnosed with ME when she was just 12, a condition that for Naomi has controlled her life for the last 25 years.

John Darvall has been to see Naomi and her family to find out the impact it's had."[5]


What M.E?

John Darvall Blog

"When I knocked on the door to interview Naomi I knew little about ME other than its dodgy reputation and the questions about whether it was actually a real illness. When I left Naomi’s parents home where she lives, having spoken to her, her mother and brother for an hour I cried."[6]

Documentary appearance[edit | edit source]

Naomi appeared in the documentary Voices from the Shadows.

Advocacy[edit | edit source]

Besides her own interviews and writing about her disease, Naomi supports her brother, Tom Whittingham, with his Marathon fundraising for ME Research UK.[7]

She writes the blog A Life Hidden which is dedicated to those suffering from severe ME.

Online presence[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. Darvall, John (July 2, 2015). "Naomi's story". bbc.co.uk. 00:53. Retrieved October 15, 2018.
  2. Whittingham, Naomi (June 23, 2013). "Emily didn't 'only' have ME". ISSN 0307-1235. Retrieved October 15, 2018.
  3. Whittingham, Naomi (August 8, 2014). "What it's like to live with severe ME". ISSN 0307-1235. Retrieved October 15, 2018.
  4. Whittingham, Naomi (December 19, 2016). "Severe ME left me in a world of pain and darkness. 26 years on, why is it still so poorly understood?". openDemocracy. Retrieved October 15, 2018.
  5. Darvall, John (July 2, 2015). "Naomi's story, Living with ME". BBC. BBC Radio Bristol. Retrieved October 15, 2018.
  6. Darvall, John (July 11, 2015). "What M.E?". Not Mid Morning Matters. Retrieved October 15, 2018.
  7. "Update: Marathon for Myalgic Encephalomyelitis - #MEAction". #MEAction. June 2, 2015. Retrieved October 15, 2018.