A Life Hidden

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A Life Hidden is a blog by Naomi Whittingham which is "dedicated to those shut away from the world through the intense suffering of ME; suffering that is compounded by the failure of governments, the medical profession and society to adequately support them."[1]

Mission statement[edit | edit source]

A Life Hidden is dedicated to those shut away from the world because of the intense suffering of ME (myalgic encephalomyelitis). This site is a collection of my advocacy work, and I hope that it will serve as a resource for anyone wishing to understand more about the illness.
In raising awareness of ME, my greatest inspiration comes from friends and loved ones whose every moment is consumed by the most extreme physical suffering.  They are alone and forgotten by the world, but every day demonstrate the most immense courage, simply by continuing their struggle to survive. 
Through my writing, I have become less hidden.  I want to use my voice to speak for those who cannot.[2]

See also[edit | edit source]

References[edit | edit source]

  1. "About A Life Hidden". A Life Hidden. October 12, 2018. Retrieved March 18, 2021.
  2. 2.02.1 "A Life Hidden". A Life Hidden. Retrieved March 18, 2021.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.