Talk:Mold avoidance

References

Information needs to be properly cited as there is wording that references do not support. An example is small, poorly ventilated which does not appear in the study citation nor does "The one unaffected teacher spent less time than the others in the conference room, often doing his work outdoors." This may be true but we need the citation.

One potential candidate for the chronic illness apparently recovered by spending time out in his camper, rather than the teacher's lounge. *This needs a citation.

This notable "exception" (9 of 10 teachers) was included in the 1994 Chester-Levine abstract, below.

The source of the toxic sensation remained unknown but persisted at this location for years after the outbreak until discovery of the toxic mold Stachybotrys Chartarum in 1998, at which time the school was remediated.

Concurrent sick building syndrome and chronic fatigue syndrome: epidemic neuromyasthenia revisited

Truckee, California. Coincident with, and reported as part of an outbreak of CFS in northern Nevada and California [13, 17, 24], nine of 10 high school teachers who used a single, small, poorly ventilated conference room became ill sequentially. All nine teachers required a leave of absence, and two retired. Eight teachers remain ill 5 years after the onset of the outbreak. The one unaffected teacher spent less time than the others in the conference room, often doing his work outdoors.

Georgetown University Medical Center, Washington, D.C. Sick building syndrome (SBS) is usually characterized by upper respiratory complaints, headache, and mild fatigue. Chronic fatigue syndrome (CFS) is an illness with defined criteria including extreme fatigue, sore throat, headache, and neurological symptoms. We investigated three apparent outbreaks of SBS and observed another more serious illness (or illnesses), characterized predominantly by severe fatigue, that was noted by 9 (90%) of the 10 teachers who frequently used a single conference room at a high school in Truckee, California; 5 (23%) of the 22 responding teachers in the J wing of a high school in Elk Grove, California; and 9 (10%) of the 93 responding workers from an office building in Washington, D.C. In those individuals with severe fatigue, symptoms of mucous membrane irritation that are characteristic of SBS were noted but also noted were neurological complaints not typical of SBS but quite characteristic of CFS. We conclude that CFS is often associated with SBS. PMID: 8148452 [PubMed - indexed for MEDLINE]

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While there have been no clinical trials conducted on mold avoidance in chronic fatigue syndrome patients, many have reported significant improvements and in some cases remission of symptoms.

I don't believe Cheney and Peterson had anything to do with the Truckee outbreak (more than the patients going to see them which is notable, yet I don't think the patients of the school were part of CFS research) but if they did we would need a citations for it, news articles or video, transcripts or research. I think it is Shoemaker alone that correlated the SBS (Truckee) with CFS (Tahoe) and in my opinion, this is incorrect. I believe it is Shoemmaker (his book), Chester and Levine (their hypothesis, not studied as far as I can see) that have come up with this hypothesis and merged two differing outbreaks of completely differing causation.

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This information that Cheney and Peterson contacting the CDC over a CLUSTER with Tahoe and Truckee isn't exactly correct if I am reading and hearing everything correctly. Tahoe was the reason they contacted CDC but I think Truckee patients began seeing Cheney because he would see them as patients and listen to what happened while their doctors would not.

Utilization of a sensation of the presence of toxins was reported in the 1985 Tahoe/Truckee "cluster" responsible for Drs. Cheney and Peterson decision to call the CDC for assistance, eventually culminating the creation of the CDC's research tool Chronic Fatigue Syndrome.

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Newspapter article

http://www.survivingmold.com/community/erik-johnson *At Least Six Were Affected* Truckee Teachers Recount "Malady"

This is a good article but it is a patient from Trukee being interviewed on her illness (which is fine) but the article quotes Cheney and does not say when or if the writer spoke directly to him or found these quotes in his research or another source. Mono reactivated by Toner is "noted" but when did Cheney say this? Was this stated directly to the writer of this article or in some sort of research paper. Again, I don't see where the author spoke to him or got these quotes from Cheney. It says "(See other story for a description of the controversial Epstein-Barr test)" in this article but I don't know where the other article is to be found.

The article is reporting all types of "facts" but not making conclusions yet is tying all this information together and not in a good way. I personally don't believe the two outbreaks have the same causation and they just occurred around the same time period. It is an important notable and historic article but all over the place which in fact was part of the confusion back then and of course, still today.

Book should have citation, not the link used

The relationship of toxic mold to the creation of "Chronic Fatigue Syndrome" remained unrecognized and almost virtually unknown until the publication of Dr. Shoemakers book "Mold Warriors" in 2005.

I think uploading a page of the book would be a good idea.

Mold Warriors by Dr. Ritchie Shoemaker Gateway Press 2005

Chapter 23 Mold at Ground Zero for CFS

"The history of Chronic Fatigue Syndrome (CFS) begins in Incline village, Nevada in 1985. In the medical history of CFS, each of the concepts applies--failed theories and failed criticism. One victim, Erik Johnson, told everyone who would listen that mold was a cause of CFS. He came up with his theory at the wrong time in the politics of medical opinion, as a unknown viral cause was blamed instead. Johnson tried repeatedly to get the attention of leading CFS researchers then and now to look at what he knew about mold sensitivity. None of the heralded CFS researchers would listen."