Talk:Fukuda criteria

criticisms -- ~Njt (talk) 15:14, February 26, 2020 (EST)

• Hooper, Malcolm, Paul Shattock, Mr Kevin Carr, Mrs Lynda Todd, and Paul Whiteley. Request for Information: Soliciting Input for New Research Strategies for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Notice number: NOTNS16024. Sent from: ESPA Research 2A Hylton Park Road, Sunderland SR5 3HD, UK (Full text)

"Although the Fukuda 1994 criteria has been the most widely used criteria in the last 3 decades, many in the ME/CFS community are concerned that it may be overly broad and select for subjects who are quite different from another and/or are actually affected by another medical condition. Therefore, a number of case definitions have been with the most recent one being the Institute of Medicine's Systemic Exertion Intolerance Disease (SEID). To clarify this situation, studies validating existing definitions, comparing how they perform head-to-head, relating them to one another (e.g. are definitions recruiting subjects with entirely different conditions or variations of the same condition?), and linking them with objective findings would be invaluable."

• Phoenix Rising, Lori Chapo-Kroger, Mike Munoz, Lori Clovis, Matina Nicolson, Mary Dimmock, Donna Pearson et al. A Position Paper in Support of the CFSAC Recommendations on the Toolkit and Primer (2012).(Full text)

"However, Fukuda CFS is such a broad umbrella of fatiguing illnesses that it is not reasonable to expect a single clinical guidance document to provide meaningful, effective diagnostic and treatment guidance."

• Contrasting case definitions: the ME International Consensus Criteria vs. the Fukuda et al. CFS criteria (Full text)

"Thus while the ME-ICC criteria are an improvement over the vague and minimal guidelines of Fukuda and colleagues (1994), it is possible that the ME-ICC criteria select for individuals with increased psychiatric symptoms and functional impairment."

• Chu, Lily, Ian J. Valencia, Donn W. Garvert, and Jose G. Montoya. "Deconstructing post-exertional malaise in myalgic encephalomyelitis/chronic fatigue syndrome: A patient-centered, cross-sectional survey." PloS one 13, no. 6 (2018). (Full text)

"In contrast to the CDC, many researchers and clinicians specializing in ME/CFS, as well as patients, have long championed post-exertional symptom exacerbation to not just be one but the hallmark characteristic of ME/CFS. As early as the 1950s, Dr. Melvin Ramsey, the infectious disease physician who created the term “myalgic encephalomyelitis” after seeing multiple patients with the same unusual presentation, considered “as the sheet anchor of diagnosis”, “muscle fatigability, whereby, even after a minor degree of physical effort, three, four or five days, or longer, elapse before full muscle power is restored” [18]. These parties believe the Fukuda definition’s emphasis on the ubiquitous symptom of fatigue as the principal and only mandatory symptom (none of the other eight auxiliary symptoms are required as long as any four symptoms are present) to be fallacious, resulting in both lack of and erroneous diagnoses by clinicians and inclusion of patients into studies who were not truly affected by ME/CFS. Subsequently, they developed three other clinical case definitions: the Canadian Consensus Criteria (CCC, 2003 and 2010 versions), the Myalgic Encephalomyelitis–International Consensus Criteria (ME-ICC, 2011), and Systemic Exertion Intolerance Disease (SEID, 2015) [19–22]."

~Njt (talk) 15:19, February 26, 2020 (EST)

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

See myalgic encephalomyelitis.

See chronic fatigue syndrome.

National Academy of Medicine (NAM) - An American non-profit, non-governmental organization which provides expert advice to governmental agencies on issues relating to biomedical science, medicine and health. Formerly known as the Institute of Medicine (IOM).

systemic exertion intolerance disease (SEID) - A term for ME/CFS that aims to avoid the stigma associated with the term "chronic fatigue syndrome", while emphasizing the defining characteristic of post-exertional malaise (PEM). SEID was defined as part of the diagnostic criteria put together by the Institute of Medicine (IOM) report of 10 February 2015.

systemic exertion intolerance disease (SEID) - A term for ME/CFS that aims to avoid the stigma associated with the term "chronic fatigue syndrome", while emphasizing the defining characteristic of post-exertional malaise (PEM). SEID was defined as part of the diagnostic criteria put together by the Institute of Medicine (IOM) report of 10 February 2015.

See systemic exertion intolerance disease.

Chronic Fatigue Syndrome Advisory Committee (CFSAC) - (sometimes pronounced SIF-SACK) A US government advisory council that met twice per year, covering current topics related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Meetings usually lasted for two days and the results were presented to the Secretary of Health and Human Services (HHS). After 15 years, on September 5, 2018, CFSAC's charter was not renewed by the Department of HHS, effectively dissolving the committee without notice or warning.

See Chronic fatigue syndrome advisory committee.

International Consensus Criteria (ICC) - A set of diagnostic criteria, based on the Canadian Consensus Criteria, that argued for the abandonment of the term "chronic fatigue syndrome" and encouraged the sole use of the term "myalgic encephalomyelitis".

See International Consensus Criteria.

post-exertional malaise (PEM) - A notable exacerbation of symptoms brought on by small physical or cognitive exertions. PEM may be referred to as a "crash" or "collapse" and can last for days or weeks. Symptoms can include cognitive impairments, muscle pain, trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, and others.

Centers for Disease Control and Prevention (CDC) - The Centers for Disease Control and Prevention is a U.S. government agency dedicated to epidemiology and public health. It operates under the auspices of the Department of Health and Human Services.

See Centers for Disease Control and Prevention.

Canadian Consensus Criteria (CCC) - A set of diagnostic criteria used to diagnose ME/CFS, developed by a group of practicing ME/CFS clinicians in 2003. The CCC is often considered to be the most complex criteria, but possibly the most accurate, with the lowest number of patients meeting the criteria. Led to the development of the International Consensus Criteria (ICC) in 2011.

See Canadian consensus criteria.

Canadian Consensus Criteria (CCC) - A set of diagnostic criteria used to diagnose ME/CFS, developed by a group of practicing ME/CFS clinicians in 2003. The CCC is often considered to be the most complex criteria, but possibly the most accurate, with the lowest number of patients meeting the criteria. Led to the development of the International Consensus Criteria (ICC) in 2011.