2017 ME/CFS Advocacy Week

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The 2017 ME/CFS Advocacy Week was a large-scale advocacy project coordinated by Solve ME/CFS Initiative and #MEAction in May 2017. The main mission aimed to inform US Congressional members about ME/CFS and the need to fund research. Following online and in-person advocacy training, it culminated in a May 17th "Capitol Hill Storm," where advocates met with 71 Washington DC congressional offices and over 3,327 online messages were sent to Congress about ME/CFS. Local politicians, also, were contacted.[1]

On May 18, a congressional briefing in the Capitol occurred to educate legislators on the urgent need to fund ME/CFS research. Speakers were Senator Ed Markey (MA), #MEAction co-founder Jennifer Brea, Solve ME/CFS Initiative Chief Scientific Officer Dr. Zaher Nahle, and President of Solve ME/CFS Initiative Carol Head.[2][3]

Talks and interviews[edit | edit source]

Emily Taylor of Solve ME/CFS Initiative, Melanie Duff, Senator Ed Markey, Tess Balzer, and Laura Bucholtz
Senator Ed Markey, Jennifer Brea, Zaher Nahle, and Carol Head

Washington, DC face-to-face meetings[edit | edit source]

The following Senators and Congresspersons were visited by ME/CFS advocates in 2017:[4]

  • Congressman Charles Dent (R-PA-15)
  • Congressman David Price (D-NC-04)
  • Congressman Jim McGovern (D-MA-02)
  • Congressman Joe Courtney (D-CT-02)
  • Congressman Ryan Costello (R-PA-06)
  • Congressman Walter Jones (R-NC-03)
  • Senator Cory Booker (D-NJ)
  • Senator Dean Heller (R-NV)
  • Senator Elizabeth Warren (D-MA)
  • Office of Democratic Leader Nancy Pelosi (D-CA-12)
  • Office of Congressman Adam Schiff (D-CA-28)
  • Office of Congressman Adam Smith (D-WA-09)
  • Office of Congressman Anthony Brown (D-MD-04)
  • Office of Congressman Barry Loudermilk (R-GA-11)
  • Office of Congressman Brian Higgins (D-NY-26)
  • Office of Congressman Don Beyer (D-VA-08)
  • Office of Congressman Dwight Evans (D-PA-02)
  • Office of Congressman Elijah Cummings (D-MD-07)
  • Office of Congressman Jamie Raskin (R-MD-08)
  • Office of Congressman John Delaney (D-MD-06)
  • Office of Congressman John Sarbanes (D-MD-03)
  • Office of Congressman Luis Gutierrez (D-IL-04)
  • Office of Congressman Mark Amodei (R-NV-02)
  • Office of Congressman Mark Pocan (D-WI-02)
  • Office of Congressman Mike Quigley (D-IL-05)
  • Office of Congressman Patrick Meehan (R-PA-07)
  • Office of Congressman Robert Pittenger (R-NC-09)
  • Office of Congressman Steve Scalise (R-LA-01)
  • Office of Congressman Ted Lieu (D-CA-33)
  • Office of Congressman Vern Buchanan (R-FL-16)
  • Office of Congresswoman Barbara Comstock (R-VA-10)
  • Office of Congresswoman Bonnie Watson Coleman (D-NJ-12)
  • Office of Congresswoman Eleanor Holmes Norton (D-DC-At Large)
  • Office of Congresswoman Jenniffer González-Colón (R-PR-At Large)
  • Office of Congresswoman Karen Bass (D-CA-37)
  • Office of Congresswoman Katherine Clark (D-MA-05)
  • Office of Congresswoman Lisa Blunt Rochester (D-DE-At Large)
  • Office of Congresswoman Lois Frankel (D-FL-21)
  • Office of Senator Ben Cardin (D-MD)
  • Office of Senator Bill Cassidy (R-LA)
  • Office of Senator Bob Casey (D-PA)
  • Office of Senator Brian Schatz (D-HI)
  • Office of Senator Catherine Cortez Masto (D-NV)
  • Office of Senator Chris Van Hollen (D-MD)
  • Office of Senator Christopher Coons (D-DE)
  • Office of Senator Christopher Murphy (D-CT)
  • Office of Senator Chuck Schumer (D-NY)
  • Office of Senator David Perdue (R-GA)
  • Office of Senator Dianne Feinstein (D-CA)
  • Office of Senator Edward Markey (D-MA)
  • Office of Senator John Cornyn (R-TX)
  • Office of Senator John Kennedy (R-LA)
  • Office of Senator Johnny Isakson (R-GA)
  • Office of Senator Kirsten Gillibrand (D-NY)
  • Office of Senator Lindsay Graham (R-SC)
  • Office of Senator Maria Cantwell (D-WA)
  • Office of Senator Mazie Hirono (D-HI)
  • Office of Senator Pat Toomey (R-PA)
  • Office of Senator Patty Murray (D-WA)
  • Office of Senator Richard Blumenthal (D-CT)
  • Office of Senator Richard Burr (R-NC)
  • Office of Senator Richard Durbin (D-IL)
  • Office of Senator Ron Johnson (R-WI)
  • Office of Senator Tammy Baldwin (D-WI)
  • Office of Senator Tammy Duckworth (D-IL)
  • Office of Senator Ted Cruz (R-TX)
  • Office of Senator Thom Tillis (R-NC)
  • Office of Senator Thomas Carper (D-DE)
  • Office of Senator Tim Kaine (D-VA)
  • Office of Senator Tim Scott (R-SC)

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.