Scott Simpson is a Canadian patient living well with HIV since 1998 but "suffering a lot with Myalgic encephalomyelitis (ME) since August 9, 2012." Scott is on the core team of Millions Missing Canada.
Scott is a medal-winning triathlete who is a three-time member of the national triathlon team in his age group. But now, on good days, he can walk for 10 minutes on flat ground. He says he can accept his ME diagnosis with its bleak prognosis, but not the harms the Canadian health care system perpetuates on its citizens suffering with ME. He has experienced the very best research and treatment of HIV to non-existent research funding and either no or harmful treatments with ME.
Media exposure[edit | edit source]
Online presence[edit | edit source]
- e-mail: firstname.lastname@example.org
See also[edit | edit source]
References[edit | edit source]
- "Core Team - Millions Missing". Millions Missing. Retrieved Aug 9, 2018.
- "Chronic fatigue syndrome in Canada 'even worse than we thought': survey". CTV News. Aug 9, 2017.
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.
Millions Missing - A global campaign, first led by #MEAction in May 2016, which aims to gain awareness, community, education, research, funding and treatment equality for Myalgic Encephalomyelitis. The campaign uses the hashtag #MillionsMissing on Twitter.