My A-Z of M.E. (Myalgic Encephalomyelitis)

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My A-Z of M.E. (Myalgic Encephalomyelitis): 50 poems about living with Myalgic Encephalomyelitis
My A-Z of ME.jpg
Author Ros Lemarchand
Illustrator Rob Wilson
Language English
Genre Poetry
Publisher Self-published
Publication date
2013
Media type print & digital
Pages 112
ISBN 978-1492735113

My A-Z of M.E. (Myalgic Encephalomyelitis): 50 poems about living with Myalgic Encephalomyelitis is a book of poetry about life with ME, written by Ros Lemarchand, illustrated by Rob Wilson, with the foreword by Jo Best. The poetry can be applied to other chronic or invisible illness. It was written to raise awareness of ME and funds for Invest in ME.

Excerpt[edit | edit source]

My A-Z of M.E.

ANGRY since I feel my life has all gone

BORED as endless days go on and on

CRYING when no one can understand me

DEPRESSED because of this illness M.E.

EXHAUSTED after every effort I make

FRUSTRATED by those who believe I'm a fake

GRIEVING for everything that I have lost

HAPPY to find new friendship at no cost

ISOLATED from a world that used to be mine

JEALOUS of those who can have a good time

KINDNESS from others who suffer the same

LOSS of so much and looking for blame

MISERABLE with no ending that is in sight

NIGHTMARES strange and real that give me a fright

OPTIMISTIC one day someone will find a cure

PAIN is strong and so hard to endure

QUESTIONS so many that have no answer

REST and rest hoping to feel better

SENSITIVE to so many things around me

TERRIFIED by symptoms that people can't see

UNDERSTANDING why it is so hard to explain?

VALUE my life though nothing is the same

WORRY because my body feels so weak

XRMV could this be the clue we seek?

YEARN to be healthy and have some fun

ZOMBIE instead this is what I've become

Links[edit | edit source]

References[edit | edit source]

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

invisible illness - A chronic condition or illness, such as ME/CFS, which may not be apparent to others. Sufferers may look healthy, yet be in poor health. Symptoms of the illness may not be visible and can be misunderstood or go unnoticed by others. Also, patients may wind up secluded or homebound due to the illness and become "invisible".

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.