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Legislation

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

Legislation and other state actions have been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.

United States

Federal

• Consolidated Appropriations Act, 2021 — included $1.15 billion in RECOVER funding (enacted 2020)[1]

• TREAT Long COVID Act (proposed 2022)[2]

• CARE for Long COVID Act (proposed 2023)[3]

• Long COVID RECOVERY NOW Act (proposed 2023)[4]

• Long COVID Support Act (proposed 2023)[5]

• Long COVID Research Moonshot Act (proposed 2024)[6]

State

Colorado

  • Statewide initiatives and advocacy efforts; House Bill 22-1401 authorized the Office of Saving People Money on Health Care (OSPMHC) at the Office of Lt. Governor to undertake the work on Long COVID (Nov 2022). [7]
  • 2/19/26, Colorado: 'Office of the Lieutenant Governor Releases 2026 Annual Report on Long COVID’[8]

Maine

Maryland

• Maryland TEDCO Long COVID Innovation Grant and Loan Program (proposed 2026)[9]

Minnesota

• HF 3206 - A bill for an act relating to health; requiring the commissioner of health to establish a program to monitor and assess the impact of long COVID; making appropriations for community health workers, pandemic delayed preventative care, and long COVID; proposing coding for new law in Minnesota Statutes, chapter 145. (proposed 2023)[10]

New York

  • NYC Health Department - Letter to Health Care Providers (Sep 2024)[11]

Virginia

  • **Senator Tim Kaine was major sponsor of the Federal Care Bill in 2023.
  • Richmond Long Covid Summit - Senator Tim Kane (Jan 2023)[12]

Utah

  • Utah Legislature Supports Dedicated Long COVID Care, Education, Research[13] (*cites bill)
  • Long Covid in Utah (Oct 2024) - Utah Department of Health & Human Services[14]

States with no Legislation Actions or Related Actions on LC

Intended as a point of reference to later allowing grouping by category. Ideally from an advocate who lives in or has high familiarity with a state.

Suggested format:

Recent actions (where applicable), wiki update date. Advocates may consider sharing contact info for networking purposes if appropriate.

Nevada
  • The Office of Senator Cortez Mastro communicated with one advocate in Nov 2025 - "What Happened When I Spoke with My Senator’s Office About Long COVID" by Lesa Schultz.[15]
  • State health agencies and political committees considered INACTIVE - Feb 2026.

References

  1. ↑ "H.R.133 - Consolidated Appropriations Act, 2021". Congress.gov. Retrieved February 24, 2026.
  2. ↑ "H.R.7482 - TREAT Long COVID Act". Congress.gov. Retrieved February 24, 2026.
  3. ↑ "H.R.1616 - CARE for Long COVID Act". Congress.gov. Retrieved February 24, 2026.
  4. ↑ "H.R.1114 - Long COVID RECOVERY NOW Act". Congress.gov. Retrieved February 24, 2026.
  5. ↑ "S.2560 - Long COVID Support Act". Congress.gov. Retrieved February 24, 2026.
  6. ↑ "S.4964 - Long COVID Research Moonshot Act". Congress.gov. Retrieved February 24, 2026.
  7. ↑ "Long COVID research and policy information".
  8. ↑ "Office of the Lieutenant Governor Releases 2026 Annual Report on Long COVID".
  9. ↑ "Legislation - HB0027". mgaleg.maryland.gov. Retrieved February 24, 2026.
  10. ↑ "HF 3206 Status in the House - 93rd Legislature (2023 - 2024)". www.revisor.mn.gov. Retrieved February 24, 2026.
  11. ↑ "NYC Health Department Promotes COVID Precautions".
  12. ↑ "Kaine, HHS Conclude Long COVID Summit in Richmond".
  13. ↑ "Utah Legislature Supports Dedicated Long COVID Care, Education, Research".
  14. ↑ "Long Covid in Utah" (PDF).
  15. ↑ "What Happened When I Spoke with My Senator's Office About Long COVID".
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