Leeds ME Network
The Leeds ME Network is a patient support group in Leeds, UK.
Aims[edit | edit source]
A patient self-help group sharing ME/CFS info.
Funding[edit | edit source]
The group does not receive funding.
Notable people[edit | edit source]
History & Services Offered[edit | edit source]
Leeds ME Network was established in 2011. The previous local group, Leeds & District ME Group (LDMEG), a registered charity, had recently folded because it involved too much work and expense for people with ME. The new group was deliberately set up to be low energy and low cost. We have a website (free of charge from Yola) and monthly meetings in the cafe of the West Yorkshire Playhouse. These are just an informal chat over tea or coffee so once again there is no cost involved, but people have a chance to trade information and chat about whatever they like. Additionally, there is a sub-group (which has survived from the days of LDMEG) which organizes trips to see plays at the Playhouse at discounted cost. If people contact us through our website we can add them to our email list to receive reminders of meetings and other information.
Online presence[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.