Jodi Bassett

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Jodi Bassett: Self portrait

Jodi Bassett was living with Myalgic Encephalomyelitis (ME) when she founded The Hummingbirds' Foundation for ME, an online educational and advocacy site. She was an Australian artist, graphic designer, writer and patient advocate.

Illness[edit | edit source]

According to her website: "In 1995, at the age of 19, Jodi went from being healthy and happy one day, to very ill and disabled with the neurological disease Myalgic Encephalomyelitis (M.E.) the next. When first ill, Jodi was reduced to only being able to be 40% as active as pre-illness. Due to inappropriate medical advice leading to sustained overexertion (which causes serious and permanent bodily damage in M.E.) Jodi’s illness quickly went from moderate to extremely severe. By 1999 she was capable of less than even 5% of her pre-illness activity level." She did her advocacy work in bed with a laptop.[1]

Jodi died in June 11, 2016 at home from secondary Breast Cancer. Her ME at the time was doing quite well and she was no longer housebound.[2]

Books[edit | edit source]

Bassett authored several books:

  • Caring For The M.E. Patient by Jodi Bassett, with a Foreword by Dr Byron Hyde. "This book provides essential information for anyone who knows, loves or provides care for someone with M.E. - sourced from the world's leading M.E. experts."[3]
  • What Is M.E.? (booklet) by Jodi Bassett, with a Foreword by Dr Byron Hyde "What is M.E.? contains essential information on the neurological disease M.E. sourced from the world’s leading M.E. experts - in the form of a concise 70 page booklet."[4]
  • Super Cute, Vicious, Dreamy Cats "This book contains a selection of oil paintings featuring cats by Australian artist and patient advocate Jodi Bassett. Several self portraits and hummingbird egg paintings are also included." [5]

Booklets[edit | edit source]

Jodi also wrote four booklets available for free download in Word or PDF formats:[6]

  • What is M.E.? by Jodi Bassett
  • Practical tips for living with M.E. by Jodi Bassett
  • The CBT and GET Database by Jodi Bassett
  • The Health, Healing & Hummingbirds ebook by Jodi Bassett.

Talks and interviews[edit | edit source]

Online presence[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. "About HFME". The Hummingbirds' Foundation for M.E. Retrieved Aug 30, 2018. 
  2. "ME/CFS Australia (SA) Inc: Jodi Bassett". www.sacfs.asn.au. Jun 14, 2016. Retrieved Aug 30, 2018. 
  3. "HFME books". The Hummingbirds' Foundation for M.E. Retrieved Aug 30, 2018. 
  4. "HFME books". The Hummingbirds' Foundation for M.E. Retrieved Aug 30, 2018. 
  5. "HFME books". The Hummingbirds' Foundation for M.E. Retrieved Aug 30, 2018. 
  6. "HFME books". The Hummingbirds' Foundation for M.E. Retrieved Aug 30, 2018. 
  7. Bassett, Jodi (May 22, 2007). "How does M.E. affect my life?". YouTube. 
  8. Bassett, Jodi (Dec 31, 2008). "What getting M.E. feels like (to me)". YouTube. 
  9. "The Hummingbirds' Foundation for M.E." hfme.org. 
  10. Bassett, Jodi. "A HummingbirdsGuide Videos". YouTube. 

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

cognitive behavioral therapy (CBT) - A type of psychotherapy geared toward modifying alleged unhealthy thinking, behaviors or illness beliefs. One of the treatment arms used in the controversial PACE trial.

graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.