Edmesh

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edmesh

edmesh (Edinburgh ME self-help group) is a British patient group which works to support people with ME/CFS in Edinburgh and the Lothians.[1] It currently has over 150 members.[2]

Aims[edit | edit source]

edmesh aims to "advance the health and wellbeing of individual sufferers of ME by providing health promoting activities and support, to advance education of the public and health and social care professionals on the issues relating to ME, and to provide grants for the relief of those in need by reason of ill health as a result of their ME."[3]

Services[edit | edit source]

Services offered by edmesh include:

  • Social meetings
  • Yoga classes
  • Postal library of books about M.E.
  • Quarterly newsletter
  • Financial assistance (financial hardship grants of up to £50)[4]

Advocacy[edit | edit source]

edmesh holds open meetings which feature speakers from the medical profession and M.E. community. The quarterly newsletter is sent to MSPs and healthcare representatives across Scotland. They are also members of a number of charitable organisations.[1]

Affiliations[edit | edit source]

edmesh is affiliated with or holds memberships with the following groups:

History[edit | edit source]

edmesh was established in 1987. It became a registered charity in 1991.[1]

Notable people[edit | edit source]

Funding[edit | edit source]

edmesh has been a registered charity in Scotland since 1991. Its charity number is SC001024. Funding is primarily sourced through member subscriptions, as well as occasional donations from grant-making trusts. It has been supported by Foundation Scotland and Scotmid Co-operative.[1]

Online presence[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.