Change For M.E. Change For Us

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Change For M.E. Change For Us is a grassroots organisation that campaigns for improved treatment and perception of people newly diagnosed and living long term with the debilitating condition known as Myalgic Encephalomyelitis, or ME as well as establishing a foundation for consistent research into the condition. It is an independently run campaign that actively works towards an expansion of NHS involvement for healthcare to be provided to those newly diagnosed, and living long-term with the debilitating condition known as Myalgic Encephalomyelitis, or M.E.

Aims[edit | edit source]

Change For M.E. Change For Us, founded in May 2015, aims to establish a better understanding of the condition and a more educated, reliable, trustworthy medical community. How patients are perceived by the medical profession and general public is also a vital issue the campaign works to address, as well as what treatment pathways are offered to sufferers, and asserting their right to decline treatment without enduring questioning or intervention by social services. But perhaps most importantly, the campaign aims to fight for consistent, high-quality research into the cause(s), complex symptoms and possible cure(s) of the illness.

Change For M.E. Change For Us is headed by L.A. Cooper, patient-activist who has had the condition for well over a decade. The campaign works closely with those hit by the condition across the UK and worldwide, encouraging anyone to step forward in order to ensure that the needs, wishes and requirements of the whole M.E. community are met and fought for, and establishes one clear, unified voice.

Film[edit | edit source]

In early October 2015, L.A. Cooper traveled across the UK and interviewed six select M.E. sufferers. The interviews, detailing life with the condition, and the discrimination and neglect people with M.E. face every day, were compiled into a short film The Last Great Medical Cover Up. The film was released on 30th October 2015. It was followed by a petition calling for national reform in NICE Guidelines and funding for specialist care.

Funding[edit | edit source]

Notable people[edit | edit source]

Notable studies[edit | edit source]

History[edit | edit source]

It was founded in May 2015, aims to develop a basis for government funding towards specialist healthcare for the sole purpose of caring for and aiding in the recovery of individuals living with M.E. Change For M.E. Change For Us is headed by a first-hand sufferer of M.E., and works closely with those hit by the condition across the UK. This ensures the needs, wishes and requirements of the whole M.E. community are met and fought for, and establishes one clear, unified voice.

Online presence[edit | edit source]

Learn more[edit | edit source]

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References[edit | edit source]

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

NICE guidelines - Clinical guidelines used in the UK.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.