Alexandra Heumber

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Alexandra Heumber is a patient advocate based in Geneva, Switzerland and a former Executive Director of the International Alliance for M.E (IAFME).

Heumber has long standing experience in public health issues including access to treatment, human rights, research and development, and pharmaceutical policy. She previously worked for Médecins Sans Frontières (known in English as Doctors Without Borders) and is a former Head of Policy for the Drugs for Neglected Diseases initiative.[1] Heumber played a leading role in advocacy for the adoption of a resolution on the neglected inflammatory disease Mycetoma by the World Health Assembly (WHA).[2]

As Executive Director of IAFME, Heumber hoped to raise awareness of ME at the highest political level, stating that "It is an ethical and public health scandal that M.E. has not been addressed more seriously at the highest level, and patients' voices are not being heard."[2]

On October 4th, 2019 Heumber announced on Facebook that she no longer worked for IAFME.[3][4]

Online presence[edit | edit source]

References[edit | edit source]

  1. Action for ME. "International M.E. advocacy: our latest project". Action for ME. Retrieved Dec 6, 2018. 
  2. 2.02.1 "Action for M.E. briefing, May 2018" (PDF). www.actionforme.org.uk. Retrieved Dec 6, 2018. 
  3. "IAFME - International Alliance for ME". www.facebook.com. Retrieved Oct 4, 2019. 
  4. "International Alliance for ME - Alexandra Heumber quits Oct 2019". Science for ME. Retrieved Oct 4, 2019. 

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Myalgic encephalomyelitis or M.E. has different diagnostic criteria to chronic fatigue syndrome; neurological symptoms are required but fatigue is an optional symptom.<ref name="ICP2011primer">{{Citation

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From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.