Action CIND

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Action CIND

Action CIND is a Canadian non-profit organization dedicated to supporting patients with Chronic Immunological and Neurological Diseases and in particular Myalgic Encephalomyelitis also known as Chronic Fatigue Syndrome.

Address[edit | edit source]

P.O. Box 99 Brechin, Ontario L0K 1B0 Canada

Notable people[edit | edit source]

PACE Trial[edit | edit source]

On February 13, 2016, Alison Rae on behalf on Action CIND wrote an open letter to Dr. Richard Horton of The Lancet asking for public acknowledgement of the requests for PACE trial data.[1]

CIHR letter[edit | edit source]

Aug. 30, 2016 - In an open letter, Action CIND critiqued the decision of the Canadian Institutes for Health Research's (CIHR) denial of a grant for ME research based on outdated and misinformed reasoning and offered to assist the CIHR to update their information.

Online presence[edit | edit source]

References[edit | edit source]

Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.