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List of scientific and media response to release of PACE trial data
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=== Scientific Journals === * Oct 5, 2016 - International Journal of Care Coordination - editorial [http://m.icp.sagepub.com/content/19/1-2/3.full.pdf 'Can scientific evidence be valid if irrelevant to patients?'] * Sep 15, 2016 - Dr [[Keith Geraghty]] and [[Charlotte Blease]] in the Journal of Health Psychology [http://journals.sagepub.com/doi/full/10.1177/1359105316667798 'Cognitive behavioural therapy in the treatment of chronic fatigue syndrome: A narrative review on efficacy and informed consent'] * Nov 1, 2016 - Dr [[Keith Geraghty]] pubished in The Journal Of Health Psychology [http://m.hpq.sagepub.com/content/early/2016/10/27/1359105316675213.full.pdf ‘PACE-Gate’: When clinical trial evidence meets open data access] Some of the PACE authors had a [http://journals.sagepub.com/doi/full/10.1177/1359105316688953 'Response to the editorial'] in January 2017 which in turn led to over a dozen responses in the Journal of Health Psychology. * Jan 10, 2017 - Dr Mark Vink published in Journal of Neurology and Neurobiology [https://www.sciforschenonline.org/journals/neurology/article-data/JNNB-3-136/JNNB-3-136.pdf 'Assessment of Individual PACE Trial Data: in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Cognitive Behavioral and Graded Exercise Therapy are Ineffective, Do Not Lead to Actual Recovery and Negative Outcomes may be Higher than Reported'] * Mar 1, 2017 - [[Luis Nacul]], [[Eliana Lacerda | Eliana M Lacerda]], [[Caroline Kingdon|Caroline C Kingdon]], [[Hayley Curran]], [[Erinna Bowman|Erinna W Bowman]] [http://journals.sagepub.com/doi/full/10.1177/1359105317695803 'How have selection bias and disease misclassification undermined the validity of myalgic encephalomyelitis/chronic fatigue syndrome studies?'] * Mar 7, 2017 - Prof [[Steven Lubet]], Law Professor at NorthWestern University published in the Journal of Health Psychology [http://journals.sagepub.com/doi/abs/10.1177/1359105317697324?journalCode=hpqa 'Investigator bias and the PACE trial'] * Mar 20, 2017 - [[Tom Kindlon]] [http://journals.sagepub.com/doi/abs/10.1177/1359105317697323?journalCode=hpqa 'Do graded activity therapies cause harm in chronic fatigue syndrome?'] * Mar 24, 2017 - Dr [[Carolyn Wilshire]] in the Journal of Health Psychology [https://www.researchgate.net/publication/315574048_The_problem_of_bias_in_behavioural_intervention_studies_Lessons_from_the_PACE_trial 'The problem of bias in behavioural intervention studies: Lessons from the PACE trial'] * Mar 24, 2017 - Prof [[Jonathan Edwards]] [http://journals.sagepub.com/doi/full/10.1177/1359105317700886 'PACE team response shows a disregard for the principles of science'] * Apr 9, 2017 - Dr [[Charles Shepherd]] [http://journals.sagepub.com/doi/full/10.1177/1359105317703786 ‘PACE trial claims for recovery in myalgic encephalomyelitis/chronic fatigue syndrome – true or false? It’s time for an independent review of the PACE Trial methods and results’] * Apr 10, 2017 - [[Keith Petrie]] and [[John Weinman]] [http://journals.sagepub.com/doi/full/10.1177/1359105317703789 'The PACE trial: It’s time to broaden perceptions and move on'] (see also response to this on 14 June by Lubet and 27 June by Agardy. * Apr 27, 2017 - Dr [[Mark Vink]] [http://journals.sagepub.com/doi/abs/10.1177/1359105317703785?journalCode=hpqa#.WQHuLNbj4f4.twitter 'PACE trial authors continue to ignore their own null effect'] * Apr 27, 2017 - Dr [[David Tuller]] [http://journals.sagepub.com/doi/abs/10.1177/1359105317703788?journalCode=hpqa#.WQHuZsKSA7Y.twitter 'Once again, the PACE authors respond to concerns with empty answers'] *May 12, 2017 - Karen Kirke [http://journals.sagepub.com/doi/pdf/10.1177/1359105317703787 'PACE investigators’ response is misleading regarding patient survey results'] *May 12, 2017 - Bart Stouten [http://journals.sagepub.com/doi/abs/10.1177/1359105317707531?journalCode=hpqa 'PACE-GATE: An alternative view on a study with a poor trial protocol\] *May 18, 2017 - Prof [[Keith Laws]] [http://journals.sagepub.com/doi/full/10.1177/1359105317710246 "Distress signals: Does cognitive behavioural therapy reduce or increase distress in chronic fatigue syndrome/myalgic encephalomyelitis?"] *May 29, 2017 - Dr [[Ellen Goudsmit]] and [[Sandra Howes]] [http://journals.sagepub.com/doi/10.1177/1359105317707216 'Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/chronic fatigue syndrome and its treatment'] * Jun 14, 2017 - Prof [[Steven Lubet]] [http://journals.sagepub.com/doi/full/10.1177/1359105317712523 'Defense of the PACE trial is based on argumentation fallacies'] * Jun 14, 2017 - Dr [[Keith Geraghty]] [http://journals.sagepub.com/eprint/iXpCNJk6zd34nFpSy4NK/full 'Further commentary on the PACE trial: Biased methods and unreliable outcomes'] * Jun 19, 2017 - [[Graham McPhee]] [http://journals.sagepub.com/doi/full/10.1177/1359105317707215 'Cognitive behaviour therapy and objective assessments in chronic fatigue syndrome'] with accompanying video [https://www.youtube.com/watch?v=bPxhzMtKDnQ 'Objective Evidence & CFS'] * Jun 27, 2017 - Dr Susanna Agardy [http://journals.sagepub.com/doi/full/10.1177/1359105317715476 'Chronic fatigue syndrome patients have no reason to accept the PACE trial results: Response to Keith J Petrie and John Weinman'] * Aug 10, 2017 - Meg Allen and Helen Spandler published [https://link.springer.com/article/10.1057/s41285-017-0047-0 'Contesting the psychiatric framing of ME/CFS'] in Social Theory and Health (examined the PACE Trial authors psychiatrisation of ME/CFS and responsibility for epistemic injustice and [[discrimination]] of sufferers). * Sep 8, 2017 - [http://www.oatext.com/the-effects-of-therapies-for-myalgic-encephalomyelitis-and-chronic-fatigue-syndrome-should-be-assessed-using-objective-measures.php 'The effects of therapies for Myalgic Encephalomyelitis and chronic fatigue syndrome should be assessed using objective measures']
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