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DecodeME
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==Timeline== *Jan 2022, phase 1 due to begin on Jan 31st with 50 [[severe and very severe ME]] patients plus 500 randomly selected from online participants<ref name="BlogJan2022">{{Cite web | url = https://www.decodeme.org.uk/great-news-decodeme-opens-for-first-participants-this-month/ | title = Great news! DecodeME opens for first participants this month | date = Jan 2022 | website = DecodeME|language=en-GB|access-date=2022-03-26}}</ref> * Jun 14, 2021, Ethics approval granted. REC reference 21/NW/0169.<ref name="EthicsREC">{{Cite web | date = Jun 14, 2021 | title = DecodeME | url = https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/decodeme/|website=[[Health Research Authority]]|access-date=2022-03-26}}</ref> *2021, Beyond the scenes update states that data will be analyzed by Thermo Fisher, first set due back by end of 2022. Data will takes months to analyze, possibly some by "halfway through 2023". Funding has been increased to add an extra 5000 people to the study who got ME/CFS following [[COVID-19|Covid]].<ref name="bindthescenes">{{Cite web | url = https://www.decodeme.org.uk/webinar-recording-transcript-why-patient-involvement-is-crucial/ | title = Why patient involvement is crucial | date = 2021 | last = |website=DecodeME|language=en-GB|access-date=2022-03-26}}</ref> *Nov 2020, DecodeME announces that [[London School of Hygiene and Tropical Medicine]] will no longer be involved. Co-Principle Investigator Dr [[Luis Nacul]] of LSHTM will no longer be an investigator, and Dr [[Eliana Lacerda]] wil no longer be on the Trial Management Group.<ref name="LSHTM">{{Cite web | url = https://www.decodeme.org.uk/partnership-update/ | title = Partnership update | date = 2020-11-30 | last = DecodeME|website=DecodeME|language=en-GB|access-date=2021-11-13}}</ref><ref name="about-2020">{{Cite web | url = https://www.decodeme.org.uk/about-us/ | title = About the ME/CFS Biomedical Partnership | last = DecodeME|first = | authorlink = |website=DecodeME|archive-url=http://web.archive.org/web/20200716192716/https://www.decodeme.org.uk/about-us/|archive-date=2020-07-16|url-status=dead|access-date=2021-11-13}}</ref> *Nov 2021, Announcement that recruitment has been delayed until 2022, and will start with a small invited group first<ref name="jan2022launch">{{Cite web | url = https://www.decodeme.org.uk/update-decodeme-to-launch-in-january-2022/ | title = Update: DecodeME to launch in January 2022 | date =2021-11-11 | last = DecodeME|website=DecodeME|language=en-GB|access-date=2021-11-13}}</ref> *Aug 26, 2020, Official start expected in "very early 2021".<ref name="early2021">{{Cite web | title = About the ME/CFS Biomedical Partnership | last = DecodeME|first = | authorlink = | date = 2020-07-16 | website = DecodeME | url=https://www.decodeme.org.uk/faqs/ |archive-url=https://web.archive.org/web/20200716170315/https://www.decodeme.org.uk/faqs/|url-status=dead|archive-date=2020-07-16|quote=This is a fantastic start but we have a huge amount to do before we open recruitment. Weβre aiming for 40,000 sign-ups by the time recruitment begins in March 2021 to give us the best chance of having at least 20,000 people taking part in the study.<br>Over the last few months, we have been working hard in preparation for the project officially starting next month.}}</ref> *Jul 2020, DecodeME website launched, patients able to sign-up for news and give contact details, study recruitment planned to start on Mar 2021<ref name="Webinar2020">{{Cite web | url = https://www.decodeme.org.uk/join-our-webinar/ | title = Join our webinar Q&A | date = 2020-07-02 | last = |website=DecodeME|language=en-GB|access-date=2021-11-13}}</ref>
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