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Pathways to prevention report
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==Notable findings == ===Patients are treated poorly=== "Both society and the medical profession have contributed to the disrespect and rejection experienced by patients with ME/CFS. They are often treated with [[Stigma and discrimination|skepticism]], uncertainty, and apprehension and labeled as [[deconditioning|deconditioned]] or having a primary psychological disorder. Patients often make extraordinary efforts at extreme personal and physical costs to find a physician who will correctly diagnose and treat their symptoms; some are [[Ethical issues |treated inappropriately]], causing [[medical neglect and abuse |additional harm]]."<ref name=":2" /> ===ME/CFS is not a psychological disease=== *"Although psychological repercussions (such as depression) may accompany ME/CFS, it is not a primary psychological disease."<ref name=":2" /> ===Criticism of the Oxford criteria === *"The [[Oxford criteria |Oxford CFS case definition]] is the least restrictive, and its use as entry criteria could have resulted in selection of participants with other fatiguing illnesses or illnesses that resolve spontaneously with time (16, 71)."<ref name=":1" /> *"Consensus groups and researchers should consider retiring the Oxford case definition because it differs from the other case definitions and is the least restrictive, probably including individuals with other overlapping conditions"<ref name=":0" /> ===Diagnostic uncertainty === *"In conclusion, 9 sets of clinical criteria are used to define ME/CFS, yet none of the current diagnostic methods have been adequately tested to identify patients with ME/CFS when diagnostic uncertainty exists. More definitive studies in broader populations are needed to address these research gaps."<ref name=":1" />
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