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Margaret of Mar, 31st Countess of Mar
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==Open letters== *Jun, 2015, The Countess of Mar contacted Dr [[Suzanne O'Sullivan]] about her book "It's all in your head - True Stories of Imaginary illness" in June 2015. She expressed dissatisfaction of the description of ME/CFS as a psychosomatic or conversion disorder in the book and promotional media interviews about it.<ref>{{Cite web|url=https://www.healthrising.org/forums/threads/th-countess-of-mars-letter-to-dr-suzanne-osullivan.2655/ | website = Health Rising|access-date=2019-08-19 | title = The Countess of Mar's letter to Dr Suzanne O'Sullivan | date = |last = | first = | authorlink = |archive-url=|archive-date=|url-status=}}</ref> *Nov 3, 2016, the Countess wrote to the BBC to complain about the coverage of the FITNET ME/CFS paediatric trial run by [[Esther Crawley]].<ref>{{Cite web|url=http://www.margaretwilliams.me/2016/bbc-complaint-mar-nov16.pdf | title=Open Letter to BBC over FITNET coverage - Nov 3, 2016|last = | first = | authorlink = | date = | website = margaretwilliams.me|archive-url=|archive-date=|url-status=|access-date=2019-08-19}}</ref> She said the reporting was "was neither accurate nor impartial" and that information on the BBC website, news bulletins & news channel were misleading. *Nov 21, 2016, The [http://www.margaretwilliams.me/2016/bbc-reply-mar-nov21.pdf BBC replied] to the Countess's letter stating that "We are aware that research about CFS has been controversial and we try to ensure that this is reflected in our coverage....I accept that the original headline for the article by James Gallagher which referred to people being βcuredβ was incorrect. In fact it was published in error and was corrected very shortly after the original version was first posted....we decided to make reference to [the controversy] by including a clip of [[Jane Colby]] from the [[Tymes Trust]]."<ref>{{Cite web|url=http://www.margaretwilliams.me/2016/bbc-reply-mar-nov21.pdf | title=Response from BBC to Countess of Mar - Nov 21, 2016|last = | first = | authorlink = | date = | website = |archive-url=|archive-date=|url-status=|access-date=2019-08-19}}</ref> *Dec 8, 2016, [https://m.facebook.com/story.php?story_fbid=1871874666431000&id=1482582732026864 the Countess wrote again to the BBC] about the [[FITNET]] coverage where she states "I regret that I find your response far from satisfactory." She references [[David Tuller]]'s ''Trial By Error'' articles on FITNET, FITNET and the [[NHS]], and flawed Dutch studies of GET/CBT and Esther Crawley.<ref>{{Cite web|url=https://www.facebook.com/story.php?story_fbid=1871874666431000&id=1482582732026864 | title = Tymes Trust | website = facebook.com|access-date=2019-08-13}}</ref> *Feb 1, 2017, the [http://www.margaretwilliams.me/2017/public-accounts-committee.pdf Committee of Public Accounts answered a letter] the Countess wrote regarding her concerns about public funding for the [[PACE trial]]. The Committee stated that it "is not well placed to comment" on specific clinical trials, that the National Institute for Health and Care Excellence (NICE) "recommends that [[CBT]] and [[GET]] should only be offered to those who agree with this approach" and since NICE is conducting their own review of the [[PACE trial]], the Committee of Public Accounts is awaiting their review.
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