Alexandra Heumber: Difference between revisions
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'''Alexandra Heumber''' is a patient advocate based in Geneva, [[Switzerland]] and | '''Alexandra Heumber''' is a patient advocate based in Geneva, [[Switzerland]] and a former Executive Director of the [[International Alliance for M.E.|International Alliance for M.E (IAFME)]]. | ||
Heumber has long standing experience in public health issues including access to treatment, human rights, research and development, and pharmaceutical policy. She previously worked for Médecins Sans Frontières (known in English as Doctors Without Borders) and is a former Head of Policy for the Drugs for Neglected Diseases initiative.<ref>{{Cite web|url=https://www.actionforme.org.uk/news/international-m.e.-advocacy-our-latest-project/|title=International M.E. advocacy: our latest project|last=Action for ME|first=|website=Action for ME|access-date=2018-12-06}}</ref> Heumber played a leading role in advocacy for the adoption of a resolution on the neglected inflammatory disease Mycetoma by the World Health Assembly (WHA).<ref name=":0">{{Cite web|url=https://www.actionforme.org.uk/uploads/images/2018/05/detailed-briefing-international-advocacy-040518.pdf|website=www.actionforme.org.uk|access-date=2018-12-06|title=Action for M.E. briefing, May 2018|date=|last=|first=|authorlink=|last2=|first2=|authorlink2=|archive-url=|archive-date=|dead-url=}}</ref> | Heumber has long standing experience in public health issues including access to treatment, human rights, research and development, and pharmaceutical policy. She previously worked for Médecins Sans Frontières (known in English as Doctors Without Borders) and is a former Head of Policy for the Drugs for Neglected Diseases initiative.<ref>{{Cite web|url=https://www.actionforme.org.uk/news/international-m.e.-advocacy-our-latest-project/|title=International M.E. advocacy: our latest project|last=Action for ME|first=|website=Action for ME|access-date=2018-12-06}}</ref> Heumber played a leading role in advocacy for the adoption of a resolution on the neglected inflammatory disease Mycetoma by the World Health Assembly (WHA).<ref name=":0">{{Cite web|url=https://www.actionforme.org.uk/uploads/images/2018/05/detailed-briefing-international-advocacy-040518.pdf|website=www.actionforme.org.uk|access-date=2018-12-06|title=Action for M.E. briefing, May 2018|date=|last=|first=|authorlink=|last2=|first2=|authorlink2=|archive-url=|archive-date=|dead-url=}}</ref> | ||
As Executive Director of [[International Alliance for M.E.|IAFME]], Heumber | As Executive Director of [[International Alliance for M.E.|IAFME]], Heumber hoped to raise awareness of ME at the highest political level, stating that "It is an ethical and public health scandal that M.E. has not been addressed more seriously at the highest level, and patients' voices are not being heard."<ref name=":0" /> | ||
On October 4th, 2019 Heumber announced on Facebook that she no longer worked for IAFME.<ref>{{Cite web|url=https://www.facebook.com/IAforME/|title=IAFME - International Alliance for ME|website=www.facebook.com|language=en|access-date=2019-10-04}}</ref><ref>{{Cite web|url=https://www.s4me.info/threads/international-alliance-for-me-alexandra-heumber-quits-oct-2019.11588/|title=International Alliance for ME - Alexandra Heumber quits Oct 2019|website=Science for ME|language=en-US|access-date=2019-10-04}}</ref> | |||
== Online presence == | == Online presence == | ||
Revision as of 09:44, October 4, 2019
Alexandra Heumber is a patient advocate based in Geneva, Switzerland and a former Executive Director of the International Alliance for M.E (IAFME).
Heumber has long standing experience in public health issues including access to treatment, human rights, research and development, and pharmaceutical policy. She previously worked for Médecins Sans Frontières (known in English as Doctors Without Borders) and is a former Head of Policy for the Drugs for Neglected Diseases initiative.[1] Heumber played a leading role in advocacy for the adoption of a resolution on the neglected inflammatory disease Mycetoma by the World Health Assembly (WHA).[2]
As Executive Director of IAFME, Heumber hoped to raise awareness of ME at the highest political level, stating that "It is an ethical and public health scandal that M.E. has not been addressed more seriously at the highest level, and patients' voices are not being heard."[2]
On October 4th, 2019 Heumber announced on Facebook that she no longer worked for IAFME.[3][4]
Online presence[edit | edit source]
References[edit | edit source]
- ↑ Action for ME. "International M.E. advocacy: our latest project". Action for ME. Retrieved December 6, 2018.
- ↑ 2.0 2.1 "Action for M.E. briefing, May 2018" (PDF). www.actionforme.org.uk. Retrieved December 6, 2018. Cite has empty unknown parameter:
|dead-url=(help) - ↑ "IAFME - International Alliance for ME". www.facebook.com. Retrieved October 4, 2019.
- ↑ "International Alliance for ME - Alexandra Heumber quits Oct 2019". Science for ME. Retrieved October 4, 2019.
