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2017 ME/CFS Advocacy Week
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The '''2017 ME/CFS Advocacy Week''' was a large-scale advocacy project coordinated by [[Solve ME/CFS Initiative]] and #[[MEAction]] in May 2017. The main mission aimed to inform US Congressional members about [[ME/CFS]] and the need to fund research. Following online and in-person advocacy training, it culminated in a May 17th "Capitol Hill Storm," where advocates met with 71 Washington DC congressional offices and over 3,327 online messages were sent to Congress about ME/CFS. Local politicians, also, were contacted.<ref>http://solvecfs.org/reporting-back-mecfs-advocacy-week-may-2017/</ref> On May 18, a congressional briefing in the Capitol occurred to educate legislators on the urgent need to fund ME/CFS research. Speakers were Senator Ed Markey (MA), #[[MEAction]] co-founder [[Jennifer Brea]], [[Solve ME/CFS Initiative]] Chief Scientific Officer Dr. [[Zaher Nahle]], and President of [[Solve ME/CFS Initiative]] [[Carol Head]].<ref>http://solvecfs.org/wp-content/uploads/2017/05/MECFS-Briefing-Flyer_Invitation_042517.pdf</ref><ref>https://www.youtube.com/watch?v=Najd5O7usnQ</ref> ==Talks and interviews== *[https://www.youtube.com/watch?v=rXnyKFayPLU ME/CFS Advocacy Week Was Phenomenal!] :Emily Taylor of [[Solve ME/CFS Initiative]], Melanie Duff, Senator Ed Markey, Tess Balzer, and Laura Bucholtz *[https://www.youtube.com/watch?v=Najd5O7usnQ Recording of Congressional Briefing on ME/CFS] | last4 ([http://solvecfs.org/wp-content/uploads/2017/05/InvisibleCrisis_wide_051817-print.pdf Slides of briefing]) :Senator Ed Markey, [[Jennifer Brea]], [[Zaher Nahle]], and [[Carol Head]] *[https://www.youtube.com/watch?v=sqkCZrNMfQY 2017 ME/CFS Advocacy Week, Florence Nightingale |] [[ME/CFS Alert]] Episode 89 ==Washington, DC face-to-face meetings== The following Senators and Congresspersons were visited by [[ME/CFS]] advocates in 2017:<ref>{{Cite news |url =https://solvecfs.org/mecfs-advocacy-week-may-2017-72-meetings-in-washington-d-c/ | title = ME/CFS Advocacy Week May 2017: 71 Meetings in WashingtonD.C. - Solve ME/CFS Initiative|work=Solve ME/CFS Initiative | access-date = 2018-08-13|language=en-US}}</ref> <div style="column-count:2;"> *Congressman Charles Dent (R-PA-15) *Congressman David Price (D-NC-04) *Congressman Jim McGovern (D-MA-02) *Congressman Joe Courtney (D-CT-02) *Congressman Ryan Costello (R-PA-06) *Congressman Walter Jones (R-NC-03) *Senator Cory Booker (D-NJ) *Senator Dean Heller (R-NV) *Senator Elizabeth Warren (D-MA) *Office of Democratic Leader Nancy Pelosi (D-CA-12) *Office of Congressman Adam Schiff (D-CA-28) *Office of Congressman Adam Smith (D-WA-09) *Office of Congressman Anthony Brown (D-MD-04) *Office of Congressman Barry Loudermilk (R-GA-11) *Office of Congressman Brian Higgins (D-NY-26) *Office of Congressman Don Beyer (D-VA-08) *Office of Congressman Dwight Evans (D-PA-02) *Office of Congressman Elijah Cummings (D-MD-07) *Office of Congressman Jamie Raskin (R-MD-08) *Office of Congressman John Delaney (D-MD-06) *Office of Congressman John Sarbanes (D-MD-03) *Office of Congressman Luis Gutierrez (D-IL-04) *Office of Congressman Mark Amodei (R-NV-02) *Office of Congressman Mark Pocan (D-WI-02) *Office of Congressman Mike Quigley (D-IL-05) *Office of Congressman Patrick Meehan (R-PA-07) *Office of Congressman Robert Pittenger (R-NC-09) *Office of Congressman Steve Scalise (R-LA-01) *Office of Congressman Ted Lieu (D-CA-33) *Office of Congressman Vern Buchanan (R-FL-16) *Office of Congresswoman Barbara Comstock (R-VA-10) *Office of Congresswoman Bonnie Watson Coleman (D-NJ-12) *Office of Congresswoman Eleanor Holmes Norton (D-DC-At Large) *Office of Congresswoman Jenniffer González-Colón (R-PR-At Large) *Office of Congresswoman Karen Bass (D-CA-37) *Office of Congresswoman Katherine Clark (D-MA-05) *Office of Congresswoman Lisa Blunt Rochester (D-DE-At Large) *Office of Congresswoman Lois Frankel (D-FL-21) *Office of Senator Ben Cardin (D-MD) *Office of Senator Bill Cassidy (R-LA) *Office of Senator Bob Casey (D-PA) *Office of Senator Brian Schatz (D-HI) *Office of Senator Catherine Cortez Masto (D-NV) *Office of Senator Chris Van Hollen (D-MD) *Office of Senator Christopher Coons (D-DE) *Office of Senator Christopher Murphy (D-CT) *Office of Senator Chuck Schumer (D-NY) *Office of Senator David Perdue (R-GA) *Office of Senator Dianne Feinstein (D-CA) *Office of Senator Edward Markey (D-MA) *Office of Senator John Cornyn (R-TX) *Office of Senator John Kennedy (R-LA) *Office of Senator Johnny Isakson (R-GA) *Office of Senator Kirsten Gillibrand (D-NY) *Office of Senator Lindsay Graham (R-SC) *Office of Senator Maria Cantwell (D-WA) *Office of Senator Mazie Hirono (D-HI) *Office of Senator Pat Toomey (R-PA) *Office of Senator Patty Murray (D-WA) *Office of Senator Richard Blumenthal (D-CT) *Office of Senator Richard Burr (R-NC) *Office of Senator Richard Durbin (D-IL) *Office of Senator Ron Johnson (R-WI) *Office of Senator Tammy Baldwin (D-WI) *Office of Senator Tammy Duckworth (D-IL) *Office of Senator Ted Cruz (R-TX) *Office of Senator Thom Tillis (R-NC) *Office of Senator Thomas Carper (D-DE) *Office of Senator Tim Kaine (D-VA) *Office of Senator Tim Scott (R-SC) </div> == See also == * [[2018 ME/CFS Advocacy Week]] * [[Solve ME/CFS Initiative]] * #[[MEAction]] ==Learn more== *[http://solvecfs.org/mecfs-advocacy-week-may-2017-72-meetings-in-washington-d-c/ "ME/CFS Advocacy Week May 2017: 71 Meetings in WashingtonD.C"] by [[Solve ME/CFS Initiative]] ==References== {{Reflist}} [[Category:Advocacy and fundraising initiatives]]
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