Workwell Foundation was founded by Staci Stevens and is based in Ripon, California, US. It specialises in two-day cardiopulmonary exercise testing (CPET) for people with ME/CFS, Fibromyalgia and other fatiguing illnesses.
Notable people[edit | edit source]
- Staci Stevens: Founder
- Christopher Snell: Scientific Advisory Committee Chair
- Daniel Peterson: Medical Supervisor
- Mark VanNess: Scientific Advisory Committee Member
- Todd Davenport: Scientific Advisory Committee Member
Notable studies[edit | edit source]
- 2013, Discriminative validity of metabolic and workload measurements to identify individuals with Chronic Fatigue Syndrome
- 2011, Diagnostic accuracy of symptoms characterising chronic fatigue syndrome
- 2010, Post-exertional malaise in women with chronic fatigue syndrome
- 2010, Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
- 2005,Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)
Exercise recommendations for ME/CFS[edit | edit source]
Workwell Foundation recommends short periods (eg: 30 seconds) of analeptic exercise, with periods of rest which are 3-6 times longer than the period of exercise. The amount of exercise that the individual undertakes should be guided by VO2 max testing (or a safe heart rate threshold (generally 60% of maximum heart rate)), and the use of a heart rate monitor (both during exercise and to help with pacing) is recommended to ensure that the individual doesn't exceed their capacity. The Foundation also advises against aerobic exercise for people with ME/CFS.
- There is no claim that the exercise program will cure the condition. The aim is to increase functional strength and flexibility, and to improve quality of life
- This program is based on a deep understanding of Post-exertional malaise (PEM), and the importance of staying within the energy envelope in order to not trigger PEM
- There is a recognition that any approach to exercise with people with ME/CFS must be carefully tailored to the individual. There is no one-size fits all
- This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual
COVID-19 rehabilitation information[edit | edit source]
Open letters[edit | edit source]
- 2018, The Workwell Foundation release an open letter to healthcare providers, detailing their concerns about GET.
- 2020, Opposition to Oxford Health NHS Foundation Trust: "Coping with Coronavirus: Fatigue" - joint letter with over 20 UK organisations, professionals and politicians
Funding[edit | edit source]
Talks and interviews[edit | edit source]
- Video: Post-exertional malaise: How to do more with less, Staci Stevens, Vancouver BC Canada, May 2015
- Video: A Realistic Approach to Exercise and Rehabilitation in ME/CFS, Mark VanNess, Bristol UK, Feb 2014
- Video: Cardio-Pulmonary Exercise Test (CPET), Workwell Foundation, Mar 2014
Online presence[edit | edit source]
Learn more[edit | edit source]
- Busted! Exercise study finds exercise production system is broken in Chronic Fatigue Syndrome, Cort Johnson, Jul 2013
- Functional outcomes of anaerobic rehabilitation in a patient with Chronic Fatigue Syndrome: Case report with 1-year follow up, Workwell Foundation, Dec 2015
- When working out doesn't work out, Workwell Foundation, Apr 2014
- A realistic approach to exercise for CFS patients, Workwell Foundation, Apr 2014
See also[edit | edit source]
References[edit | edit source]
- Snell, Christopher R; Stevens, Staci R; Davenport, Todd E; VanNess, J Mark (Oct 31, 2013), "Discriminative Validity of Metabolic and Workload Measurements for Identifying People With Chronic Fatigue Syndrome", Physical Therapy (APTA), 93 (11): 1484-1492, doi:10.2522/ptj.20110368, PMID 23813081
- Davenport, Todd E; Stevens, Staci R; Baroni, Katie; VanNess, J Mark; Snell, Christopher R (Jan 6, 2011), "Diagnostic accuracy of symptoms characterising chronic fatigue syndrome", Disabil Rehabil, 2011;33 (19-20): 1768-75, doi:10.3109/09638288.2010.546936, PMID 21208154
- VanNess, J Mark; Stevens, Staci R; Bateman, Lucinda; Stiles, Travis L; Snell, Christopher R (Jan 4, 2010), "Post-exertional malaise in women with chronic fatigue syndrome", J Womens Health (Larchmt), 2010 Feb;19 (2): 239-44, doi:10.1089/jwh.2009.1507, PMID 20095909
- Davenport, Todd E; Stevens, Staci R; VanNess, J Mark; Snell, Christopher R; Little, Tamara (Mar 31, 2010), "Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis", Physical Therapy (APTA), 90 (4): 602-614, doi:10.2522/ptj.20090047, PMID 20185614
- Snell, Christopher R; VanNess, J Mark; Strayer, David R; Stevens, Staci R (2005), "Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)" (PDF), In Vivo, 19: 387-390, PMID 15796202
- VanNess, J Mark; Snell, Christopher R; Stevens, Staci R (Apr 2014), "A Realistic Approach to Exercise for CFS Patients" (PDF), The CFS Research Review
- Snell, Christopher R; VanNess, J Mark; Stevens, Staci R (2004), "When Working Out Doesn't Work Out" (PDF), The CFIDS Chronicle
- Stevens, Staci R; Davenport, Todd E (2010), "Functional Outcomes of Anaerobic Rehabilitation in a Patient with Chronic Fatigue Syndrome: case report with 1-year follow-up" (PDF), Bulletin of the IACFS/ME, 2010;18 (3): 93-98
- Physio for ME; Workwell Foundation; ME Association (May 2020). "Post Covid-19 Rehabilitation". Physiosforme. Retrieved May 2, 2020.
- Stevens, Staci R; ME/FM Society of British Columbia (Canada) (May 24, 2015), Video: Post-exertional malaise: How to do more with less, Vancouver, BC, Canada
- VanNess, J Mark (Feb 5, 2014), Video: A Realistic Approach to Exercise and Rehabilitation in ME/CFS, Bristol Watershed, UK
- Workwell Foundation (Mar 17, 2014), Video: Cardio-Pulmonary Exercise Test (CPET)
- Johnson, Cort (Jul 30, 2013), Busted! Exercise Study Finds Energy Production System is Broken in Chronic Fatigue Syndrome
VO2max - the maximum amount of oxygen the body can utilize during a specified period of usually intense exercise
heart rate (HR) - the number of times the heart beats within a certain time period, usually a minute.
heart rate monitor - A device that measures your heart rate (pulse rate). Heart rate monitors may come as a chest strap, wrist strap, smartwatch, or even as a mobile phone app. Heart rate monitors are often used by ME/CFS patients to pace their exertion, in order to avoid post-exertional malaise (PEM). For more information, see pacing with a heart rate monitor.
Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) - Chronic Fatigue and Immune Dysfunction Syndrome is another term for Chronic Fatigue Syndrome, but one which emphasizes the immunological aspects of the disease. Popular in the 1990's, this term has apparently fallen into disuse.
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.