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Erik Johnson
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[[File:What About ME never again. .png|thumb|176x176px|Source:paradigmchange.me]] '''Erik Johnson''' is an advocate for research into the biotoxin connection to the Holmes 1988 "Chronic Fatigue Syndrome. He is the subject of the book ''[[Back from the Edge]]'' by [[Lisa Petrison]], has chapters in Dr. Ritchie Shoemakers books Mold Warriors & Surviving Mold, describing how he agreed to help start the new CFS syndrome as a prototype in order to draw the attention of researchers to the overlooked clues of biotoxins in the Tahoe Mystery Disease, and has published several books of his writings on extreme [[mold avoidance]]. He is also a regular contributor to the blog [http://paradigmchange.me/ Paradigm Change]. Erik became ill in the 1970's due to toxic mold and had been a student at Truckee High School which had its own outbreak of [[Sick building syndrome]] during the same time period of the [[1984 Incline Village chronic fatigue syndrome outbreak]], but he recovered in the late 1990s as a result of extreme mold avoidance. He has since spent his time working with scientists on the role of mold toxins in chronic illnesses, as well as producing educational materials.<ref>{{Cite web | url = https://paradigmchange.me/erik/ | title = Erik Johnson | last = | first = | website = Paradigm Change|language=en-US|access-date=2019-09-10}}</ref> == Incline Village: Cohort for examining the outbreak == Erik was the first [[Epstein-Barr virus]]-negative patient identified by Dr. [[Paul Cheney]], who then asked Erik to volunteer to be a "prototype for a new syndrome" as Dr. Cheney's goal was to disprove the CDC's "Chronic EBV Syndrome" and necessitate the creation of a replacement in which EBV was neither inherent or necessary.{{Citation needed | date = Mar 2021}} By the time of the April 1987 Holmes committee meeting which convened for this purpose, Dr. Cheney had located 19 total EBV negatives, but Erik was the only one from the original Tahoe outbreak. The "19 EBV negatives" were called "The Pristine Cases" and were the core basis for the rationale behind the new syndrome.{{Citation needed | date = Mar 2021}} ==Talks and interviews== *2016 - [https://www.amazon.com/What-About-ME-Susan-Douglas/dp/B072L2MCX5 Erik Johnson is featured in the documentary] "[[What About ME]]" produced by Susan Douglas *Apr 1, 2019 - [https://www.youtube.com/watch?v=J54iQfzqFOE Episode 105 - Lake Tahoe Interview with Erik Johnson] on [[MECFS Alert]] ==Online presence== *[https://twitter.com/erikmoldwarrior Twitter] ==See also== *[[1984 Incline Village chronic fatigue syndrome outbreak]] *[[Lisa Petrison]] *[[Mold hypothesis]] *[[Mold illness]] *[[Ritchie Shoemaker]] ==Learn more== *[http://www.mychemicalfreehouse.net/2013/01/practicing-mould-avoidance.html How to Practice Mould Avoidance as Outlined by Erik Johnson] *[https://www.facebook.com/groups/erikjohnsoneffect/ Facebook Group - The Erik Johnson Effect] *[http://paradigmchange.me/wp-content/uploads/2014/08/Role-of-Toxic-Mold-in-CFS-PDF.pdf The Role of Toxic Mold in Chronic Fatigue Syndrome by Erik Johnson] (PDF) *[http://paradigmchange.me/erik/ Publications by Erik Johnson] ==References== {{reflist}} [[Category:People with ME, CFS, and/or FMS]] [[Category:Advocates or allies]] [[Category:American advocates or allies]] [[Category:Authors]]
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