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25 Percent ME Group
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[[File:25 Percent ME Group logo.jpg|right|thumb]] The [https://25megroup.org 25% ME Group] is a UK support group set up to care for the most severely affected ME patients.<ref>{{Cite web | url = https://25megroup.org/ | title = 25% M.E. Group - Supporting Those With Severe M.E. | website = 25% M.E. Group|language=en-US | access-date = 2019-07-16}}</ref> They also founded the annual [[Severe ME Awareness Day]] on August 8th.<ref>{{Cite web | url = https://25megroup.org/download/1798/?v=2880 | title = Severe Myalgic Encephalomyelitis Day of Understanding and Rememberance Day (8th August) | last = | first = | author-link = | date = | website = 25% ME Group| archive-url = | archive-date = |url-status = | access-date=}}</ref> == Aims == The 25% M.E. Group exists to support all who have the severe form of M.E. and those who care for them. This includes people who are housebound, bedbound and wheelchair users.<ref>{{Cite web | url = https://25megroup.org/about-us | title = About Us | website = 25% M.E. Group|language=en-US | access-date = 2020-10-31}}</ref> == Funding == The group relies on funding through individual donations.<ref>{{Cite web | url = https://25megroup.org/fundraising | title = Fundraising | website = 25% M.E. Group|language=en-US | access-date = 2021-03-01}}</ref> It is a registered charity (#SC034265) with the Scottish Charity Regulator. == Notable people == *Dr [[Byron Hyde]] is patron *Dr [[Nigel Speight]] is medical advisor *Dr [[Vance Spence]] is scientific advisor *Prof [[Malcolm Hooper]] is MCS scientific advisor *Dr [[Betty Dowsett]] was formerly medical advisor<ref>{{Cite web | url = https://25megroup.org/patrons-trustees-advisers | title = Patrons, Trustees, Advisers | website = 25% M.E. Group|language=en-US | access-date = 2021-03-01}}</ref> == History == == PACE Trial == On February 10, 2016 an open letter was submitted to [https://en.wikipedia.org/wiki/Queen_Mary_University_of_London Queen Mary University London] requesting compliance with Freedom of Information request for release of [[PACE trial]] data.<ref>[https://t.co/3TAh9bYIDe Open Letter - TO: QMUL RE: PACE Trial DATE: February 10, 2016]</ref> ==Notable articles == * [https://25megroup.org/download/2527/ KNOWLEDGE IN THE HOPE OF PROTECTING M.E. SUFFERERS FROM UNNECESSARY SECTIONING]<ref name="PreventUnnecessarySectioning">{{Cite web | url = https://25megroup.org/download/2527/ | title = KNOWLEDGE IN THE HOPE OF PROTECTING M.E. SUFFERERS FROM UNNECESSARY SECTIONING | last2 = 25% ME Group | first2 = | author-link2 = 25 Percent ME Group | last = The Grace Charity for M.E. | first = | author-link = The Grace Charity for M.E. | date = Jan 2019 | website = |archive-url=|archive-date=|url-status= | access-date = 2019-07-12}}</ref> - Preventing the unnecessary forced mental health sectioning of severely ill patients - [[The Grace Charity for M.E.]] with 25% ME Group * [https://25megroup.org/me/symptoms Severe ME symptoms]- The 25% ME Group == Online presence == *[https://25megroup.org Website] * Address: :PO Box 8620 :Troon :Ayrshire :KA10 9BL == See also == *[[Severe ME Awareness Day]] *[[Severe and very severe ME]] == References == {{Reflist}} [[Category:Patient groups]] [[Category:British patient groups]] [[Category:Scottish patient groups]]
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