25 Percent ME Group

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25 Percent ME Group logo.jpg

The 25% ME Group is a UK support group set up to care for the most severely affected ME patients.[1] They also founded the annual Severe ME Awareness Day on August 8th.[2]

Aims[edit | edit source]

The 25% M.E. Group exists to support all who have the severe form of M.E. and those who care for them. This includes people who are housebound, bedbound and wheelchair users.[3]

Funding[edit | edit source]

The group relies on funding through individual donations.[4] It is a registered charity (#SC034265) with the Scottish Charity Regulator.

Notable people[edit | edit source]

History[edit | edit source]

PACE Trial[edit | edit source]

On February 10, 2016 an open letter was submitted to Queen Mary University London requesting compliance with Freedom of Information request for release of PACE trial data.[6]

Notable articles[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

PACE trial - A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.