What Is Wrong with ME
|Subject||Illness, medical history|
|Publisher||The Grimsay Press|
What Is Wrong with ME: A Case of Childhood Myalgic Encephalomyelitis - The Illness and the Controversy is a book by Merryn Fergusson about her son's childhood struggle with ME.
Publisher's synopsis[edit | edit source]
(This synopsis was provided by the publisher for promotional purposes. For book reviews, please see Links section below.)
ME is the most common cause of long-term absence from school. A mild case causes regular absences from education, social life and sport, a severe case leaves a young person housebound or bedbound for years. So why is ME surrounded by a lack of understanding, even within the medical professions? During the three years when her teenage son Chris could not go to school, Merryn Fergusson kept a diary - which here becomes the remarkable and candid story of ME as seen through Chris's eyes and through the experiences of his mother, family and friends. The book also traces the history of ME from the 1930s and the emergence of the medical controversy over CFS/ME. It is a controversy which baffles sufferers and their carers, the tragic consequences of which can be the forcible removal of young people from their homes and families.
Reviews[edit | edit source]
- Nov 2012, The prodrome, the terrifying trigger and then this… | review of Merryn Fergusson’s book ‘What is wrong with ME’. The ME Association
Links[edit | edit source]
- What Is Wrong with ME - Amazon (US)
- What Is Wrong with ME - Amazon (UK)
- What Is Wrong with ME - Goodreads
References[edit | edit source]
myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.