ME - Myalgische Enzephalomyelitis vs. Chronic Fatigue Syndrom - Fakten Hintergründe Forschung
 | |
| Author | Katharina Voss |
|---|---|
| Country | Germany |
| Language | German |
| Genre | Medical |
| Publisher | tredition |
Publication date | 2017 |
| Media type | |
| Pages | 572 |
| ISBN | 978-3743924949 |
ME - Myalgische Enzephalomyelitis vs. Chronic Fatigue Syndrom - Fakten Hintergründe Forschung (ME - Myalgic Encephalomyelitis vs. Chronic Fatigue Syndrome – Facts, Background, Research) is a German book by Katharina Voss.
Publisher's synopsis[edit | edit source]
(This synopsis was provided by the publisher for promotional purposes. For book reviews, please see Links section below.)
A book about myalgic encephalomyelitis, also erroneously referred to as "Chronic Fatigue Syndrome" or "ME/CFS", and more recently also as "Systemic Exertion Intolerance Disease" or "SEID".
A book about the most common and devastating disease your doctor has never heard of.
A book about a disease which in the opinion of a large part of the medical profession does not exist, and which, according to many physicians, psychiatrists and psychosomatics, exists only in the minds of patients - although it was already classified as a neurological disease by the WHO more than 40 years ago! Severe physical and mental constraints cause cruel suffering among those affected. For many years or decades patients have to endure a quality of life comparable to that of end-stage AIDS and cancer patients - without being adequately supplied with medication.
In the first part of the book comprehensive information about the historical and medical facts about myalgic encephalomyelitis and the sometimes serious grievances in the treatment of patients are given. In the second part, the background is explained on the basis of well-documented facts, which have led to this disease becoming the orphan of our health care system and today is trivialized, psychopathologized or even denied. In the third part, a selection of interesting results from recent biomedical ME/"CFS" research will be presented.
The book is not only for doctors and all those employed in medical care, but also for patients, their relatives and the many patients who have not been diagnosed so far. They are given the necessary tools in order to defend themselves against misdiagnosis and falsehoods. Likewise their attorneys and legal representatives, so that they can get a picture of the current state of research.
Links[edit | edit source]
Learn more[edit | edit source]
- A Rezension Katharina Voss: ME - Myalgische Enzephalomyelitis vs. Chronic Fatigue Syndrom Fakten Hintergründe Forschung of Regina Clos
- Katharina Voss' blog
References[edit | edit source]
myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.
systemic exertion intolerance disease (SEID) - A term for ME/CFS that aims to avoid the stigma associated with the term "chronic fatigue syndrome", while emphasizing the defining characteristic of post-exertional malaise (PEM). SEID was defined as part of the diagnostic criteria put together by the Institute of Medicine (IOM) report of 10 February 2015.
systemic exertion intolerance disease (SEID) - A term for ME/CFS that aims to avoid the stigma associated with the term "chronic fatigue syndrome", while emphasizing the defining characteristic of post-exertional malaise (PEM). SEID was defined as part of the diagnostic criteria put together by the Institute of Medicine (IOM) report of 10 February 2015.
World Health Organization (WHO) - "A specialized agency of the United Nations that is concerned with public health. It was established on 7 April 1948, and is headquartered in Geneva, Switzerland. The WHO is a member of the United Nations Development Group. Its predecessor, the Health Organization, was an agency of the League of Nations." The International Statistical Classification of Diseases and Related Health Problems (ICD) is maintained by WHO.
The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.
