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List of scientific and media response to release of PACE trial data
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Follow the release of the [[PACE trial]] data and subsequent reanalysis, there was extensive coverage in the media, scientific journals, and other outlets. The following includes a list of coverage. == Coverage == === General media coverage === * August 17, 2016 - Retraction Watch [http://retractionwatch.com/2016/08/17/uk-tribunal-orders-release-of-data-from-controversial-chronic-fatigue-syndrome-study/ Tracking retractions as a window into the scientific process UK tribunal orders release of data from controversial chronic fatigue syndrome study] .<ref name="RetractWatch20160817" /> * August 18, 2016 - Dagens Medicine, Sweden [https://www.dagensmedicin.se/artiklar/2016/08/18/universitet-doms-att-lamna-ut-ramaterial/ Döms lämna ut råmaterial till Pace-studien] * August 22, 2016 - BMJ [http://www.bmj.com/content/354/bmj.i4614 Tribunal orders university to release data from PACE chronic fatigue study] <ref>http://sci-hub.cc/doi/10.1136/bmj.i4614 </ref> * August 19, 2016 - iNews UK [https://inews.co.uk/opinion/chronic-fatigue-syndrome-sufferers-just-small-victory/ Chronic Fatigue Syndrome sufferers have just had a small victory], iNews UK, <ref name="iNews20160819FM" /> * August 19, 2016 - iNews UK [https://inews.co.uk/essentials/news/health/tribunal-chronic-fatigue-syndrome-data-released/ Chronic Fatigue Syndrome: tribunal orders data from controversial trial to be released], iNews UK, <ref name="iNews20160819PG" /> * August 19, 2016 - Applied Clinical Trials - [http://www.appliedclinicaltrialsonline.com/tribunal-orders-release-withheld-data-london-trial Tribunal Orders Release of Withheld Data from London Trial] * 22 August 2016 - WDDTY [https://www.wddty.com/news/2016/08/researchers-who-claimed-chronic-fatigue-is-all-in-the-mind-forced-to-disclose-data.html Researchers who claimed chronic fatigue is “all in the mind” forced to disclose data]<ref name="WDDTY20160822" /> * August 27, 2016 - The Conversation [https://theconversation.com/tribunal-was-right-to-order-release-of-chronic-fatigue-trial-data-64255 Tribunal was right to order release of chronic fatigue trial data], [[Jonathan Edwards]], 27 Aug 2016.<ref name="EdwardsJC20160827" /> * August 30, 2016 - SBS.Com Australia [http://www.sbs.com.au/news/thefeed/article/2016/08/29/do-you-suffer-chronic-fatigue-syndrome-theres-some-good-news-you Do you suffer from Chronic Fatigue Syndrome? There's some good news for you] * September 6, 2016 - Huffington Post [http://www.huffingtonpost.de/melanie-schickedanz/teil-3-studie-zum-erschoe_b_11845638.html Studie zum Erschöpfungssyndrom: Wenn die Wissenschaft versagt/ Study on fatigue syndrome: When science fails] * September 12, 2016 - WDDTY [https://www.wddty.com/news/2016/09/chronic-fatigue-sufferers-getting-the-wrong-treatment-thanks-to-a-falsified-study.html Chronic fatigue sufferers getting the wrong treatment—thanks to a falsified study] * September 21, 2016 - STAT News by [[Julie Rehmeyer]] [https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/ Bad science misled millions with chronic fatigue syndrome. Here’s how we fought back] * September 21, 2016 - Business Insider UK [http://uk.businessinsider.com/flawed-lancet-study-me-cfs-chronic-fatigue-2016-9 How millions of patients with a crippling, misunderstood disease were misled by bad science]/ * September 21, 2016 - New York Mag, Science of US [http://nymag.com/scienceofus/2016/09/a-big-chronic-fatigue-syndrome-study-has-been-discredited.html?mid=full-rss-scienceofus&mid=full-rss-scienceofus The Implosion of a Breakthrough Study on Chronic Fatigue Syndrome title]/ *22 September 2016 - Patient POV [http://www.patientpov.org/chronic-fatigue-syndromeme/moving-goal-posts-hazards-chronic-fatigue-syndrome-treatment-trial Moving the Goal Posts to Catch the Ball and Other Hazards of A Chronic Fatigue Syndrome Treatment Trial]/ * 22 September 2016 - MedPage Today [http://www.medpagetoday.com/primarycare/generalprimarycare/60396 PACE Takedown] * September 23, 2016 - Dagens Medicine, Sweden [https://www.dagensmedicin.se/artiklar/2016/09/23/pace-studie-kritiserad-pa-nytt-efter-slappt-radata/ Pace-studie kritiserad på nytt efter släppt rådata/ Pace study criticized again after released the raw data] * September 23, 2016 - Science Alert [http://www.sciencealert.com/bad-science-has-misled-millions-with-chronic-fatigue-court-order-reveals Bad science has misled millions with chronic fatigue, court order reveals] * September 24, 2016 - Retraction Watch [http://retractionwatch.com/2016/09/24/weekend-reads-worlds-most-prolific-peer-reviewer-replication-backlash-carries-on-controversial-pace-study-re-analyzed/ controversial PACE study re-analyzed] * September 26, 2016 - Health Insights UK [http://healthinsightuk.org/2016/09/26/independent-investigation-reveals-nice-approved-treatment-only-a-fraction-as-effective-as-experts-claim-it-is/ Independent investigation reveals NICE approved treatment only a fraction as effective as experts claim it is.] * September 28, 2016 - ''The Times'' [http://www.meassociation.org.uk/2016/09/exercise-and-therapy-cure-for-me-is-seriously-flawed-the-times-28-september-2016/ Exercise and therapy cure for ME is ‘seriously flawed’] *29 September 2016 - ''BMJ'' [http://www.bmj.com/content/354/bmj.i5230 Reanalysis of PACE trial reignites row over chronic fatigue treatment] * October 2, 2016 - ''The Canary'' [http://www.thecanary.co/2016/10/02/results-really-didnt-want-see-key-mecfs-trial-data-released/ The results they really didn’t want you to see: key ME/CFS trial data released] *6 October 2016 - Newswork Radio WHYY-FM Podcast with [[Julie Rehmeyer]] [http://www.newsworks.org/index.php/thepulse/item/97724-advice-for-chronic-fatigue-sufferers-may-have-been-all-wrong?l=dt Was advice for people with Chronic Fatigue Syndrome all wrong?] *6 October 2016 - The Limbic [http://thelimbic.com/rheumatology/pace-trial-labeled-a-sham/ PACE trial labeled a sham] *7 October 2016 - 6 Minutes, Australia [http://www.6minutes.com.au/rheumatologyupdate/latest-news/analysis-rekindles-chronic-fatigue-controversy Analysis rekindles chronic fatigue controversy] *9 October 2016 - Aftenposten, Norway [http://www.aftenposten.no/meninger/debatt/Kort-sagt-9-oktober-606321b.html Forskningsjuks eller rabiate pasienter?] *17 October 2016 - ''The Telegraph'' [http://www.telegraph.co.uk/wellbeing/doctors-diary/doctors-diary-gove-was-right-we-have-had-enough-of-experts/ Doctor's Diary: Gove was right, we have had enough of experts] *20 October 2016 - ''Hippocratic Post'' [http://www.hippocraticpost.com/heart-lung/statins-critics-shouldnt-silenced/ ME: The truth about exercise and CBT] *19 October 2016 - Deutschland Funk Radio (Germany) [http://www.deutschlandfunk.de/chronisches-erschoepfungssyndrom-patienten-fechten.676.de.html?dram:article_id=368979 Patienten fechten Studienergebnisse an/ Patients are challenging study results] * 27 October 2016 - Undark [https://undark.org/article/chronic-fatigue-graded-exercise-pace/ For Chronic Fatigue Syndrome, a Dubious Therapy / Worse Than the Disease] by Dr [[David Tuller]] * 31 October 2016 - Undark [https://undark.org/2016/10/31/undark-podcast-chronic-fatigue/ Undark Podcast #8: Worse Than the Disease] with NYT Science Times editor David Corcoran & David Tuller *2 November 2016 - ''The Times'' [http://www.meassociation.org.uk/2016/11/i-got-me-and-thought-this-is-the-end-the-times-2-november-2016/ I got ME and thought: ‘This is the end] * August 17, 2016 - [http://www.meaction.net/2016/08/17/qmul-studying-pace-data-release-ruling/ QMUL "studying" PACE data-release ruling], #MEAction, Aug 17, 2016.<ref name="MEAction20160817qmul" /> * 7 December 2016 - Private Eye [https://www.facebook.com/photo.php?fbid=10154289534102144&set=gm.10154676517578257&type=3&theater Trial on Trial] and correspondence <ref>https://twitter.com/pathcath/status/812439470586953728?ref_src=twsrc%5Etfw </ref><ref>https://twitter.com/pathcath/status/819232955155488769 </ref> * 19 December 2016 - Undark [https://undark.org/2016/12/19/british-chronic-fatigue-syndrome-study-faces-yet-debunking/ A Study of Chronic Fatigue Syndrome Therapies Is Debunked (Again)] * 1 January 2017 - Suomen Kuvalehti [https://suomenkuvalehti.fi/jutut/tiede/miljoonia-maksanut-jattitutkimus-paljastui-roskaksi-yha-sairaammat-potilaat-julistettiin-parantuneiksi/?shared=943951-aff4729c-999 Miljoonia maksanut jättitutkimus paljastui roskaksi: Yhä sairaammat potilaat julistettiin parantuneiksi] * 17 January 2017 - News.com Australia [http://www.news.com.au/technology/science/human-body/how-alem-matthees-letter-helped-solve-chronic-fatigue-syndrome-mystery/news-story/eb566e1a0f6bcaadb362818a12c2e386 How Alem Matthees’ letter helped solve Chronic Fatigue Syndrome mystery] *19 January 2017 - Fysioterapeuten, Norway [http://fysioterapeuten.no/Aktuelt/Nyheter/Omstridt-CFS-ME-studie-var-manipulert Omstridt CFS/ME-studie var manipulert]/ Controversial CFS / ME study was manipulated * 8 February 2017 - ''New Scientist'' [https://www.newscientist.com/article/mg23331123-400-we-need-transparent-trials-to-keep-confidence-in-medicine/ We need transparent trials to keep confidence in medicine] and response by PACE author.<ref>https://www.newscientist.com/letter/mg23331141-000-6-we-can-share-data-only-when-rules-are-respected/ We can share data only when rules are respected </ref> * 20 February 2017 - Carte Blanche South Africa (Investigative Journalism TV) - [https://www.facebook.com/carteblanchetv/posts/1369608676415385 CFS: Millions Missing] * 8 March 2017 - Observant, Netherlands (Mythbusters) [http://www.observantonline.nl/Home/Artikelen/articleType/ArticleView/articleId/12027/Myth-ME-is-a-mental-illness Myth: ME is a mental illness] and response by PACE authors<ref>http://www.observantonline.nl/Home/Artikelen/articleType/ArticleView/articleId/12101/Myth-busting-a-myth-busting </ref> * 18 March 2017 - ''The New York Times'' (Sunday Review) by [[Julie Rehmeyer]] & [[David Tuller]] [https://www.nytimes.com/2017/03/18/opinion/sunday/getting-it-wrong-on-chronic-fatigue-syndrome.html?smid=tw-share Getting It Wrong on Chronic Fatigue Syndrome] * 21 March 2017 - ''The Guardian'' [https://www.theguardian.com/commentisfree/2017/mar/21/yet-more-research-shows-chronic-fatigue-syndrome-is-real-when-will-health-services-catch-up?CMP=share_btn_tw Yet more research shows chronic fatigue syndrome is real. When will health services catch up?] * 22 March 2017 - Observant, Netherlands, [http://www.observantonline.nl/Home/Artikelen/articleType/ArticleView/articleId/12100/Gedrags-en-bewegingstherapie-zijn-schadelijk Gedrags- en bewegingstherapie zijn schadelijk] / [https://translate.google.com/translate?sl=nl&tl=en&js=y&prev=_t&hl=en&ie=UTF-8&u=http%3A%2F%2Fwww.observantonline.nl%2FHome%2FArtikelen%2FarticleType%2FArticleView%2FarticleId%2F12100%2FGedrags-en-bewegingstherapie-zijn-schadelijk&edit-text=&act=url "Behavioral and movement therapy are harmful"] *23 March 2017 - ''The Conversation'' (Academic Rigour, journalistic flair) [http://theconversation.com/how-a-study-about-chronic-fatigue-syndrome-was-doctored-adding-to-pain-and-stigma-74890 How a study about Chronic Fatigue Syndrome was doctored, adding to pain and stigma] by Prof Steven Lubet and on MedicalXpress <ref>https://medicalxpress.com/news/2017-03-chronic-fatigue-syndrome-doctored-adding.html </ref> and Associated Press (AP) The Big Story <ref>http://bigstory.ap.org/article/2c3a7208dd8140e0ae725006377ef245/how-study-about-chronic-fatigue-syndrome-was-doctored</ref> *27 March 2017 - Observant, Netherlands, (Mythbusters) [http://www.observantonline.nl/Home/Artikelen/articleType/ArticleView/articleId/12115/PACE-trial-misrepresents-their-own-results-again PACE trial misrepresents their own results again] by Dr [[Mark Vink]] *29 March 2017 - Observant, Netherlands, [http://www.observantonline.nl/Home/Artikelen/articleType/ArticleView/articleId/12131/Stunned-by-the-absence-of-critical-thinking“ Stunned by the absence of critical thinking”] by Dr [[Carolyn Wilshire]] *26 March 2017 - ''Jerusalem Post'', Israel [http://www.pressreader.com/israel/jerusalem-post/20170326/282024737091232 Wrong of Chronic Fatigue Syndrome] *27 March 2017 - Observant, Netherlands, [http://www.observantonline.nl/Home/Artikelen/articleType/ArticleView/articleId/12119/No-scientific-ground-to-stand-on No scientific ground to stand on] by Dr [[David Tuller]] * Apr 4, 2017 - Science Based Medicine, [https://sciencebasedmedicine.org/treating-chronic-fatigue-syndrome-with-cognitive-behavioral-therapy-and-graded-exercise-therapy-how-the-pace-trial-got-it-wrong/ Treating Chronic Fatigue Syndrome with Cognitive Behavioral Therapy and Graded Exercise Therapy: How the PACE Trial Got It Wrong] by Dr Harriet Hall *30 May 2017 - Undiscovered - Science Friday (Podcast) - [http://www.undiscoveredpodcast.org/sick-and-tired.html Sick and Tired] [https://www.pri.org/programs/undiscovered/sick-and-tired Sick and Tired on PRI] (30.54) * 9 July 2017 - New Yorker by Andrew Gelman [http://www.newyorker.com/tech/elements/a-memoir-of-chronic-fatigue-illustrates-the-failures-of-medical-research A Memoir of Chronic Fatigue Illustrates the Failures of Medical Research]<ref name="GelmanA20170709" /> * 13 July 2017 - Medisch Contact, Netherlands [https://www.medischcontact.nl/opinie/blogs-columns/blog/ongemakkelijke-onwaarheden.htm Ongemakkelijke (on)waarheden]/ [https://corsius.wordpress.com/2017/08/03/incovenient-untruth/ 'Inconvenient (un)truth'] (English translation) *3 Aug 2017 - Mining Journal [http://www.miningjournal.net/life/2017/08/chronic-fatigue-syndrome-reality-conflicts-with-medical-study/ 'Chronic fatigue syndrome reality conflicts with medical study'] * 8 Sept 2017 - Medisch Contact, Netherlands [https://www.medischcontact.nl/opinie/blogs-columns/blog/-cvsme-nog-meer-ongemakkelijke-onwaarheden-.htm. CVS/ME – Nog meer ongemakkelijke (on)waarheden] / [https://translate.google.nl/translate?sl=nl&tl=en&js=y&prev=_t&hl=en&ie=UTF-8&u=https://www.medischcontact.nl/opinie/blogs-columns/blog/-cvsme-nog-meer-ongemakkelijke-onwaarheden-.htm CVS / ME - More uncomfortable (on) truths] * 22 Sept 2017 - Medisch Contact, Netherlands [https://www.medischcontact.nl/opinie/blogs-columns/blog/cvsme-de-non-dialoog.htm CVS/ME – de non-dialoog] / * 28 Sept 2017 - Läkartidningen, Sweden, by Sten Helmfrid and Johan Edsberg [http://lakartidningen.se/Opinion/Debatt/2017/09/Dags-att-forkasta-PACE-studien/? PACE-studien']/ [https://www.researchgate.net/publication/320101462_Time_to_Reject_the_PACE_Study/ Time to Reject the PACE Study] * 3 Oct 2017 - Volkskrant, Netherlands [https://www.volkskrant.nl/wetenschap/als-je-cvs-hebt-is-naar-de-wc-gaan-al-eenmarathon~a4519279/?hash=028240debc501ca3d04f32b616572aace48beca9 'Als je CVS hebt is naar de wc gaan al een marathon'] * 5 Oct 2017 - ''Metro'', Netherlands [https://www.metronieuws.nl/lezerscolumn/lou-corsius/maand-van-de-geschiedenis/2017/10/de-professor-gelooft-in-sprookjes De professor gelooft in sprookjes] / [https://corsius.wordpress.com/2017/10/05/the-professor-believes-in-fairy-tales/ The professor believes in fairy tales] by Lou Corsius in response to [https://www.rd.nl/opinie/bij-cvs-me-is-cgt-terecht-eerstekeusbehandeling-1.1433876 Bij CVS/ME is cgt terecht eerstekeusbehandeling] in Reformatorisch Dagblad by Gijs Bleijenberg. * 10 October 2017 - Reformatorisch Dagblad, Netherlands [https://www.rd.nl/gedrags-en-bewegingstherapie-helpen-cvs-me-patiënt-niet-1.1435838 Gedrags- en bewegingstherapie helpen CVS/ME-patiënt niet] *13 October 2017 - NPO1, [https://en.wikipedia.org/wiki/EenVandaag EenVandaag], Netherlands [https://eenvandaag.avrotros.nl/item/grote-controverse-over-behandeling-chronische-vermoeidheid/ Grote controverse over behandeling chronische vermoeidheid] <ref>https://www.youtube.com/watch?v=g8x-VBLcRuA</ref>. *23 October 2017 - ''Morning Star'' [http://www.morningstaronline.co.uk/a-bd8f-ME-sufferers-being-shamefully-let-down-by-professionals#.WfB9gVKZM_W ME Sufferers Being Shamefully Let Down By Professionals] *2 November 2017 - Huffington Post UK Edition [http://m.huffingtonpost.co.uk/dr-simon-duffy/uk-establishment-me_b_18375968.html Will The UK Establishment Finally Stop Denying The Reality Of ME?] by Dr [[Simon Duffy]] (featuring [[Unrest]] film) *10 November 2017 - Psychology Today [https://www.psychologytoday.com/blog/open-gently/201711/chronic-fatigue-patients-more-research-backing-you Chronic Fatigue Syndrome Patients: More Research Backing You Up] *3 January 2018 - Nature [https://www.nature.com/articles/d41586-017-08965-0 'A reboot for chronic fatigue syndrome research'] (covers the impact on research) and responses from PACE authors and others.<ref>https://www.nature.com/articles/d41586-018-01285-x</ref><ref>https://www.nature.com/articles/d41586-018-03055-1</ref> *7 January 2018 - Independent [http://www.independent.co.uk/news/long_reads/why-patients-me-demanding-justice-millions-missing-chronic-fatigue-illness-disease-a8133616.html 'Time for Unrest: Why patients with ME are demanding justice'] (featuring [[Unrest]] film) *8 February 2018 - The Herald [http://www.heraldscotland.com/news/15982563.Glasgow_MP_secures_parliamentary_examination_of_controversial_ME_trial/ Glasgow MP Carol Monaghan secures parliamentary examination of controversial ME trial] === Queen Mary University of London/Student Union - The Print Newspaper === *19th January 2016 - [http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/ Scientists Demand Transparency on PACE Trial] *3 October 2016 - [http://theprintnews.co.uk/2016/10/judge-dismisses-qmuls-appeal-university-must-release-pace-data/ Judge Dismisses QMUL’s Appeal, University Must Release PACE Data] *14 November 2016 - [http://theprintnews.co.uk/2016/11/pace-results-released/ PACE Trial Data Released]/ === Blogs === *Solve CFS - [http://solvecfs.org/preliminary-analysis-of-newly-released-pace-trial-data-confirms-initial-publication-results-were-unsound-september-21-2016/ Preliminary analysis of newly released PACE trial data confirms initial publication results were unsound] *OccupyME - [http://occupyme.net/2016/09/21/pace-grossly-exaggerated/ PACE: Grossly Exaggerated] *The Faculty Lounge by [[Steven Lubet]] - [http://www.thefacultylounge.org/2016/09/the-pace-study-results-exposed-as-meaningless-and-harmful.html The PACE Study Results Exposed as Meaningless and Harmful] *Academic Health Economist - [https://aheblog.com/2016/10/04/data-sharing-and-the-cost-of-error/ Data sharing and the cost of error] * BMJ - [[Simon McGrath]]: [http://blogs.bmj.com/bmj/2016/09/22/simon-mcgrath-pace-trial-shows-why-medicine-needs-patients-to-scrutinise-studies-about-their-health/ PACE trial shows why medicine needs patients to scrutinise studies about their health] *Intelligent Medicine (Podcast) - [http://drhoffman.com/podcast/part-1-a-flawed-study-on-chronic-fatigue-syndrome/ Part 1: A Flawed Study on Chronic Fatigue Syndrome; Patients Fight Back] (20.53) *Hannah Radenkova - [http://www.meaction.net/2016/09/22/the-pace-trial-fiasco/ The PACE trial Fiasco] === Media Response by PACE authors === *30 September 2016 - Guardian [https://www.theguardian.com/commentisfree/2016/sep/30/me-chronic-fatigue-syndrome-patients-suffer-put-off-treatments-our-research If my team’s research on ME is rejected, the patients will suffer] by [[Peter White]] * September 21, 2016 [http://www.bmj.com/content/354/bmj.i5053 Freedom of information: can researchers still promise control of participants’ data?] Note: This article was written by Nigel Hawkes of the BMJ who wrote the earlier article in the BMJ 'Dangers of Research into chronic fatigue syndrome' in 2011. The narrative of threatening activists was dismissed by the Tribunal. [[Alem Matthees]] submitted a rapid response to the BMJ but this was not published and he then published it on pubmed.<ref>https://www.ncbi.nlm.nih.gov/pubmed/27654128#cm27654128_30328</ref> *30 September 2016 - Discover Magazine [http://blogs.discovermagazine.com/neuroskeptic/2016/09/30/what-works-for-cfsme-the-pace-odyssey/#.Wnikd1KcY_U 'Open Data and CFS/ME – A PACE Odyssey Part 1'] (Part 2 was never published by Neuroskeptic) === Scientific Journals === * Oct 5, 2016 - International Journal of Care Coordination - editorial [http://m.icp.sagepub.com/content/19/1-2/3.full.pdf 'Can scientific evidence be valid if irrelevant to patients?'] * Sep 15, 2016 - Dr [[Keith Geraghty]] and [[Charlotte Blease]] in the Journal of Health Psychology [http://journals.sagepub.com/doi/full/10.1177/1359105316667798 'Cognitive behavioural therapy in the treatment of chronic fatigue syndrome: A narrative review on efficacy and informed consent'] * Nov 1, 2016 - Dr [[Keith Geraghty]] pubished in The Journal Of Health Psychology [http://m.hpq.sagepub.com/content/early/2016/10/27/1359105316675213.full.pdf ‘PACE-Gate’: When clinical trial evidence meets open data access] Some of the PACE authors had a [http://journals.sagepub.com/doi/full/10.1177/1359105316688953 'Response to the editorial'] in January 2017 which in turn led to over a dozen responses in the Journal of Health Psychology. * Jan 10, 2017 - Dr Mark Vink published in Journal of Neurology and Neurobiology [https://www.sciforschenonline.org/journals/neurology/article-data/JNNB-3-136/JNNB-3-136.pdf 'Assessment of Individual PACE Trial Data: in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Cognitive Behavioral and Graded Exercise Therapy are Ineffective, Do Not Lead to Actual Recovery and Negative Outcomes may be Higher than Reported'] * Mar 1, 2017 - [[Luis Nacul]], [[Eliana Lacerda | Eliana M Lacerda]], [[Caroline Kingdon|Caroline C Kingdon]], [[Hayley Curran]], [[Erinna Bowman|Erinna W Bowman]] [http://journals.sagepub.com/doi/full/10.1177/1359105317695803 'How have selection bias and disease misclassification undermined the validity of myalgic encephalomyelitis/chronic fatigue syndrome studies?'] * Mar 7, 2017 - Prof [[Steven Lubet]], Law Professor at NorthWestern University published in the Journal of Health Psychology [http://journals.sagepub.com/doi/abs/10.1177/1359105317697324?journalCode=hpqa 'Investigator bias and the PACE trial'] * Mar 20, 2017 - [[Tom Kindlon]] [http://journals.sagepub.com/doi/abs/10.1177/1359105317697323?journalCode=hpqa 'Do graded activity therapies cause harm in chronic fatigue syndrome?'] * Mar 24, 2017 - Dr [[Carolyn Wilshire]] in the Journal of Health Psychology [https://www.researchgate.net/publication/315574048_The_problem_of_bias_in_behavioural_intervention_studies_Lessons_from_the_PACE_trial 'The problem of bias in behavioural intervention studies: Lessons from the PACE trial'] * Mar 24, 2017 - Prof [[Jonathan Edwards]] [http://journals.sagepub.com/doi/full/10.1177/1359105317700886 'PACE team response shows a disregard for the principles of science'] * Apr 9, 2017 - Dr [[Charles Shepherd]] [http://journals.sagepub.com/doi/full/10.1177/1359105317703786 ‘PACE trial claims for recovery in myalgic encephalomyelitis/chronic fatigue syndrome – true or false? It’s time for an independent review of the PACE Trial methods and results’] * Apr 10, 2017 - [[Keith Petrie]] and [[John Weinman]] [http://journals.sagepub.com/doi/full/10.1177/1359105317703789 'The PACE trial: It’s time to broaden perceptions and move on'] (see also response to this on 14 June by Lubet and 27 June by Agardy. * Apr 27, 2017 - Dr [[Mark Vink]] [http://journals.sagepub.com/doi/abs/10.1177/1359105317703785?journalCode=hpqa#.WQHuLNbj4f4.twitter 'PACE trial authors continue to ignore their own null effect'] * Apr 27, 2017 - Dr [[David Tuller]] [http://journals.sagepub.com/doi/abs/10.1177/1359105317703788?journalCode=hpqa#.WQHuZsKSA7Y.twitter 'Once again, the PACE authors respond to concerns with empty answers'] *May 12, 2017 - Karen Kirke [http://journals.sagepub.com/doi/pdf/10.1177/1359105317703787 'PACE investigators’ response is misleading regarding patient survey results'] *May 12, 2017 - Bart Stouten [http://journals.sagepub.com/doi/abs/10.1177/1359105317707531?journalCode=hpqa 'PACE-GATE: An alternative view on a study with a poor trial protocol\] *May 18, 2017 - Prof [[Keith Laws]] [http://journals.sagepub.com/doi/full/10.1177/1359105317710246 "Distress signals: Does cognitive behavioural therapy reduce or increase distress in chronic fatigue syndrome/myalgic encephalomyelitis?"] *May 29, 2017 - Dr [[Ellen Goudsmit]] and [[Sandra Howes]] [http://journals.sagepub.com/doi/10.1177/1359105317707216 'Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/chronic fatigue syndrome and its treatment'] * Jun 14, 2017 - Prof [[Steven Lubet]] [http://journals.sagepub.com/doi/full/10.1177/1359105317712523 'Defense of the PACE trial is based on argumentation fallacies'] * Jun 14, 2017 - Dr [[Keith Geraghty]] [http://journals.sagepub.com/eprint/iXpCNJk6zd34nFpSy4NK/full 'Further commentary on the PACE trial: Biased methods and unreliable outcomes'] * Jun 19, 2017 - [[Graham McPhee]] [http://journals.sagepub.com/doi/full/10.1177/1359105317707215 'Cognitive behaviour therapy and objective assessments in chronic fatigue syndrome'] with accompanying video [https://www.youtube.com/watch?v=bPxhzMtKDnQ 'Objective Evidence & CFS'] * Jun 27, 2017 - Dr Susanna Agardy [http://journals.sagepub.com/doi/full/10.1177/1359105317715476 'Chronic fatigue syndrome patients have no reason to accept the PACE trial results: Response to Keith J Petrie and John Weinman'] * Aug 10, 2017 - Meg Allen and Helen Spandler published [https://link.springer.com/article/10.1057/s41285-017-0047-0 'Contesting the psychiatric framing of ME/CFS'] in Social Theory and Health (examined the PACE Trial authors psychiatrisation of ME/CFS and responsibility for epistemic injustice and [[discrimination]] of sufferers). * Sep 8, 2017 - [http://www.oatext.com/the-effects-of-therapies-for-myalgic-encephalomyelitis-and-chronic-fatigue-syndrome-should-be-assessed-using-objective-measures.php 'The effects of therapies for Myalgic Encephalomyelitis and chronic fatigue syndrome should be assessed using objective measures'] ==See also== *[[PACE trial]] *[[PACE trial documents]] *[[Intimidation and bullying of PACE trial critics]] *[[Open letter to the Lancet]] *[[An open letter to Psychological Medicine about “recovery” and the PACE trial]] *[[Action for ME]] *[[Cochrane]] *[[Cognitive behavioral therapy]] *[[Graded exercise therapy]] *[[FINE trial]] *[[Journal of Health Psychology, Special Issue: The PACE Trial]] *[[NICE guidelines]] *[[PACE Trial Management Group]] *[[PACE Trial Steering Committee]] *[[:Category:PACE trial critics|PACE trial critics]] *[[:Category:Psychological paradigm proponents|Proponents of the psychological theory of ME/CFS]] *[[:Category:Psychological paradigm critics|Psychological paradigm critics]] *[[The Lancet]] *[[The Lancet Psychiatry]] ==References== <references> <ref name="RetractWatch20160817">{{citation | last1 = Retraction Watch | title = UK tribunal orders release of data from controversial chronic fatigue syndrome study | date = Aug 17, 2016 | url = http://retractionwatch.com/2016/08/17/uk-tribunal-orders-release-of-data-from-controversial-chronic-fatigue-syndrome-study/ }}</ref> <ref name="iNews20160819FM">{{citation | last1 = iNews UK | last2 = Felicity Morse | title = Chronic Fatigue Syndrome sufferers have just had a small victory | date = Aug 19, 2016 | url = https://inews.co.uk/opinion/chronic-fatigue-syndrome-sufferers-just-small-victory/ | archive-url = https://web.archive.org/web/20190815121216/https://inews.co.uk/opinion/chronic-fatigue-syndrome-sufferers-just-small-victory/ | archive-date = August 15, 2019 }}</ref> <ref name="iNews20160819PG">{{citation | last1 = iNews UK | last2 = Paul Gallagher | title = Chronic Fatigue Syndrome: tribunal orders data from controversial trial to be released | date = 19 Aug 2016 | url = https://inews.co.uk/news/health/tribunal-chronic-fatigue-syndrome-data-released-18748 }}</ref> <ref name="WDDTY20160822">{{citation | author = What Doctors Don't Tell You (website) | title = Researchers who claimed chronic fatigue is "all in the mind" forced to disclose data | date = 22 Aug 2016 | url = https://www.wddty.com/news/2016/08/researchers-who-claimed-chronic-fatigue-is-all-in-the-mind-forced-to-disclose-data.html }}</ref> <ref name="EdwardsJC20160827">{{citation | last1 = Edwards | first1 = Jonathan CW | authorlink1 = Jonathan Edwards | title = Tribunal was right to order release of chronic fatigue trial data | website = The Conversation (UK) | date = Aug 27, 2016 | url = https://theconversation.com/tribunal-was-right-to-order-release-of-chronic-fatigue-trial-data-64255 }}</ref> <ref name="MEAction20160817qmul">{{citation | last1 = Anderssen | first1 = Alex| authorlink1 = Alex Anderssen | title = QMUL "studying" PACE data-release ruling | website = #MEAction | date = Aug 17, 2016 | url = http://www.meaction.net/2016/08/17/qmul-studying-pace-data-release-ruling/ }}</ref> <ref name="GelmanA20170709">{{citation | last1 = Gelman | first1 = Andrew | authorlink1 = Andrew Gelman | title = A Memoir of Chronic Fatigue Illustrates the Failures of Medical Research | website = New Yorker | date = Jul 9, 2017 | url = http://www.newyorker.com/tech/elements/a-memoir-of-chronic-fatigue-illustrates-the-failures-of-medical-research }}</ref> </references> [[Category:Notable studies]] [[Category:Psychological paradigm]] [[Category:History]] [[Category:Seminal works]]
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