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==What do we know?== ME is a debilitating illness that has been recognized as a neurological disease by the [[World Health Organization]] (WHO) since 1969.<ref name="icd10">{{Cite book | url = https://apps.who.int/iris/bitstream/handle/10665/70934/ICD_10_1969_eng_v2a.pdf?sequence=3&isAllowed=y | title = International Classification of Diseases | last = World Health Organization | first = |publisher=WHO| year = 1969|isbn=|editor-link=|edition=Eighth revision|volume=2|location=Geneva|pages=173|chapter=|quote=Encephalomyelitis (chronic),<br>(myalgic, benign) 323|editor-last2=|editor-link2=}}</ref> It is a systemic [[Neuro-immune disease|neuroimmune]] disease characterized by [[post-exertional malaise]] (PEM) (a severe worsening of symptoms after even minimal [[exertion]]). It causes dysregulation of both the [[immune system]] and the [[nervous system]]. The effects of ME are devastating enough to leave [[Severe and very severe ME|25% of patients housebound or bedbound]]. For moderate to severe patients, the disability of living with ME is like living with late-stage cancer, advanced stage AIDS, or congestive heart failure for decades. In many parts of the world, it is commonly called chronic fatigue syndrome. [[ME/CFS]] costs the US economy up to $24 billion per year in direct medical costs, and lost production.<ref name="IOM2015MECFS" /> Despite this, funding for research is not commensurate with the level of disease burden. In the 2015 financial year, the [[National Institutes of Health]] (NIH) provided only $5 million in research funding for ME/CFS, which is less funding than hayfever. This is in stark contrast to funding levels for other similarly disabling illnesses, like [[multiple sclerosis]] ($105 million) and HIV/AIDS ($3 billion).{{Citation needed|reason=Reference needed for NIH funding levels | date = 4 November 2019}} The [[Institute of Medicine]], a special advisory committee of the [[U.S. Department of Health and Human Services]] (HHS) (ref: [[Chronic Fatigue Syndrome Advisory Committee|CFSAC]] recommendations) and [[NIH]] expert advisory panel agree that it is imperative to increase research funding into ME/CFS.<ref name="NIHP2PFIN" />
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