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==Small tasks== '''When a task is complete move it to the COMPLETED section at the bottom of the page''' *Add [[Talk:Individual quotes#Quotes to add Simon Wessely quotes|Talk:Individual_Quotes#Quotes_to_add Simon Wessely quotes]] and others eg Charles Shepherd to [[Individual quotes|Individual_Quotes]] *[[PACE trial]] **Add PACE letter from David Clark https://twitter.com/LouCorsius/status/719993266876391424/photo/1 **Add [[Trudie Chalder]][http://informationrights.decisions.tribunals.gov.uk//DBFiles/Decision/i1854/Queen%20Mary%20University%20of%20London%20EA-2015-0269%20(12-8-16).PDF ICO FOIA source] p36-37 "no direct threats", p30 "activists" as a disparaging term confirming no PACE researchers were threatened to [[Stigma]], [[Simon Wessely]], [[Trudie Chalder]], [[Esther Crawley]] and [[PACE trial]] pages **Add PACE didn't receive 150 FOI act requests https://twitter.com/TomKindlon/status/677173627532402688 **Add https://web.archive.org/web/20160508230150/http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm - Letter from [[Malcolm Hooper]] on PACE trial **Add [[PACE trial]] theft info https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf **Add [[Jonathan Edwards]] letter to a Prof. Gundersen on PACE trial http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234 **Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641 **Add to [[Peter White]] page Lewith 2016 Complementary and alternative healthcare use by participants in the PACE trial of treatments for chronic fatigue syndrome http://www.jpsychores.com/article/S0022-3999(16)30327-0/abstract *Add to [[Brain]] and [[Basal ganglia]] Acute Changes in Striatal Microstructure Predict the Development of Interferon-Alpha Induced Fatigue Dowell 2016 http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/ * [[Lactate]] add **Shungu 2012 Increased ventricular lactate in chronic fatigue syndrome. III. Relationships to cortical glutathione and clinical symptoms implicate oxidative stress in disorder pathophysiology **Effect of Milnacipran Treatment on Ventricular Lactate in Fibromyalgia: A Randomized, Double-Blind, Placebo-Controlled Trial Natelson 2015 https://pubmed.ncbi.nlm.nih.gov/26335989/ ** 2014 Chronic widespread pain: increased glutamate and lactate concentrations in the trapezius muscle and plasma Björn Gerdle https://pubmed.ncbi.nlm.nih.gov/23887335/ ** plus many others *http://www.freezepage.com/1374761286EFCHIYENBE - SwissRE insurer - Managing claims for chronic fatigue the active way *[[Amolak Bansal]]:<br /> **Add [https://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/ Bansal's presentation] - related research by Banash - Extended B cell phenotype in patients with myalgic encephalomyelitis/chronic fatigue syndrome: a cross‐sectional study source-Clin Exp Immunol. 2016 May; 184(2): 237–247. 2016 Feb 22. doi: 10.1111/cei.12749 PMCID: PMC4837232 PMID: 26646713 License: Fair Usage [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4837232/ PMC4837232] ***plus*** **Mensah, F.K.F., Bansal, A.S., Ford, B. and Cambridge, G., 2017. Chronic fatigue syndrome and the immune system: Where are we now?. Neurophysiologie Clinique/Clinical Neurophysiology, 47(2), pp.131-138. http://dx.doi.org/10.1016/j.neucli.2017.02.002 [https://www.researchgate.net/profile/Geraldine_Cambridge/publication/316080804_Chronic_fatigue_syndrome_and_the_immune_system_Where_are_we_now/links/5a1c26450f7e9be37f9cca8a/Chronic-fatigue-syndrome-and-the-immune-system-Where-are-we-now.pdf Immune system where are we now] **https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1440524/ *Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/ *Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/ *Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/ *Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/ *Add https://www.ncbi.nlm.nih.gov/pubmed/27165859 Reversal of Refractory Ulcerative Colitis and Severe Chronic Fatigue Syndrome Symptoms Arising from Immune Disturbance in an HLA-DR/DQ Genetically Susceptible Individual with Multiple Biotoxin Exposures Shelly R Gunn 2016 *Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/ *Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/ *Add sources only to [[Magnesium]] page https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/ *Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php 2016, Exploring the gut-brain connection for insights into multiple sclerosis, describes Rothhammer 2016, Type I interferons and microbial metabolites of tryptophan modulate astrocyte activity and central nervous system inflammation via the aryl hydrocarbon receptor Nature Medicine https://www.nature.com/articles/nm.4106 *Add Blackwood 1998 https://www.ncbi.nlm.nih.gov/pubmed/9771781 Effects of exercise on cognitive and motor function in chronic fatigue syndrome and depression *Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/ *Add Michiels 1998 Attention and verbal learning in patients with chronic fatigue syndrome https://www.ncbi.nlm.nih.gov/pubmed/9745235 *Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence *Add Wyller 2016 Altered neuroendocrine control and association to clinical symptoms in adolescent chronic fatigue syndrome: a cross-sectional study http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1 *Add Shan 2016 Progressive brain changes in patients with chronic fatigue syndrome: A longitudinal MRI study https://pubmed.ncbi.nlm.nih.gov/27123773/ *Add [[matrix metalloproteinase-9]] (MMP9) page - unreliable selfhacked source removed *Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html *Add 1997 Clinical Trial- Pathogenesis and management of delayed orthostatic hypotension in patients with chronic fatigue syndrome by Lorenzo https://www.ncbi.nlm.nih.gov/pubmed/9292244 *Add Wilson 2001 https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study *Add systematic review Cho 2005 The placebo response in the treatment of chronic fatigue syndrome: a systematic review and meta-analysis https://www.ncbi.nlm.nih.gov/pubmed/15784798 *Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/ *Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/ *Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/ *Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/ - comments on Hickie 2006 Post-infective and chronic fatigue syndromes precipitated by viral and non-viral pathogens: prospective cohort study *Add Galbraith 1997 Evidence for enteroviral persistence in humans https://www.ncbi.nlm.nih.gov/pubmed/9018051 *Add Leighton 2016 Autonomic correlations with MRI are abnormal in the brainstem vasomotor centre in Chronic Fatigue Syndrome https://www.ncbi.nlm.nih.gov/pubmed/27114901 *Add RCT 2016 Graded versus Intermittent Exercise Effects on Lymphocytes in Chronic Fatigue Syndrome Broadbent https://www.ncbi.nlm.nih.gov/pubmed/27116645 *Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/ - AYME no longer exists *[[RituxME]], [[Rituximab]] **Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati **Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305 - a commentary on Extended B cell phenotype in patients with myalgic encephalomyelitis/chronic fatigue syndrome: a cross‐sectional study (2015) https://doi.org/10.1111/cei.12749 **Add to Ritux page https://forums.phoenixrising.me/threads/update-from-haukeland-about-the-rituxme-study.44540/ - Update from Haukeland about the RituxME study *Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/ *Add Huth 2016 ERK1/2, MEK1/2 and p38 downstream signalling molecules impaired in CD56dimCD16+ and CD56brightCD16dim/− natural killer cells in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z *Add Kidd 2016 The Relationship between Age and Illness Duration in Chronic Fatigue Syndrome http://www.mdpi.com/2075-4418/6/2/16 *Add Band 2016 Assessing the reliability of the five minute speech sample against the Camberwell family interview in a chronic fatigue syndrome sample https://www.ncbi.nlm.nih.gov/pubmed/27095328 *Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html *Add Joyce 1996 Memory, attention, and executive function in chronic fatigue syndrome. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8 *Add letter from 1995 addressing Sharpe's research - unsure which was intended - Cognitive behaviour therapy should be compared with placebo treatments OR Patients beliefs about their illness were probably not a major factor https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf *Add Sukocheva 2016 http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z 'Coxiella burnetii' dormancy in a fatal ten-year multisystem dysfunctional illness: case report *Make sure this article is linked to on the ME page, maybe elsewhere too - citation: Ed BMJ 1978;(3 June):1436-7 Epidemic Myalgic Encephalomyelitis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf *Add this study on cytokines to the cytokines page (and pages for the specific ones affected) Phillip Peterson 1994 Effects of Mild Exercise on Cytokines and Cerebral Blood Flow in Chronic Fatigue Syndrome Patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf *Add Chronic Fatigue Syndrome: Have Flawed Assumptions Been Derived from Treatment-Based Studies? Rickman 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf *Add to the ketogenic diet page Gano 2014 Ketogenic diets, mitochondria, and neurological diseases https://www.ncbi.nlm.nih.gov/pubmed/24847102 *Create a basic outline page about UK ME support http://www.mesupport.co.uk/index.php?page=anniversary-statement - dead link, [[ME Support]] page could be created - it's no longer a group though *Make sure this video about Klimas' gene study is included on her page, and [[ME/CFS Gene Study]] https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0 *Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study *Add to MRI pages Schwartz 1994 - Detection of intracranial abnormalities in patients with chronic fatigue syndrome: comparison of MR imaging and SPECT https://www.ncbi.nlm.nih.gov/pubmed/8141020 *Add Guardian article to [[list of news articles on ME and CFS]] http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock. *Add study Demitrack 1992 Plasma and cerebrospinal fluid monoamine metabolism in patients with chronic fatigue syndrome: preliminary findings https://www.ncbi.nlm.nih.gov/pubmed/1282370 *Add study Wong 1992 Skeletal muscle metabolism in the chronic fatigue syndrome. In vivo assessment by 31P nuclear magnetic resonance spectroscopy https://www.ncbi.nlm.nih.gov/pubmed/1446478 *Add review 1992 [Symptoms, signs and laboratory findings in patients with chronic fatigue syndrome] [in Japanese] Kuratsune 1992 https://www.ncbi.nlm.nih.gov/pubmed/1337562 *Add NK study - review Uchida 1992 [Chronic fatigue immune dysfunction syndrome] [in Japanese] https://www.ncbi.nlm.nih.gov/pubmed/1287238 *Add ProHealth Announces Its 2015 ME/CFS Advocate Of The Year – Cort Johnson to [[Cort Johnson]] page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684 *Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/ *Add McCrone 2012 Adaptive pacing, cognitive behaviour therapy, graded exercise, and specialist medical care for chronic fatigue syndrome: a cost-effectiveness analysis https://pubpeer.com/publications/22870204 *Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract *Add IiME funded B cell study by UCL published Mensah 2015 Extended B cell phenotype in patients with myalgic encephalomyelitis/chronic fatigue syndrome: a cross‐sectional study http://www.investinme.org/IIME%20Newsletter%20December%202015.htm *Add to [[Peter White]] or NICE guidelines 2007 page http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/ *Add ME and Vaccinations 1997 article or sources http://www.investinme.org/InfoCentre-vaccines-popup-1.htm *Add 160 Victims at Lake Tahoe : Chronic Flu-Like Illness a Medical Mystery Story ROBERT STEINBROOK JUNE 7, 1986 http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe *Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx *[[NIH Post-Infectious ME/CFS Study]] page: **Add to [[Brian Walitt]] and [[NIH_Post-Infectious ME/CFS Study]] pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/ *Article to add to Fibromyalgia, Younger and LDN pages https://web.archive.org/web/20190103130948/http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html - just discussion of future study *Add this article to [[Brian Walitt]] page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/ *Add a link to this discussion between [[Elizabeth Dowsett]] & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf - just a discussion piece *Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm *Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page. *Add to NIH page http://www.healthrising.org/blog/2016/05/26/proposal-vastly-increase-funding-mecfs-nih-passes-first-test/ *Make sure this crucial chart of ME quality of life and related study are included and study referenced Hvidberg 2015 The Health-Related Quality of Life for Patients with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421 *Add to NAC page *the sources only * from https://selfhacked.com/2016/05/27/top-25-science-based-health-benefits-n-acetyl-cysteine-nac/ *Add to mitochondria and [[Eric Gordon]] pages http://www.gordonmedical.com/unravelling-complex-chronic-illness/gordon-medical-research-center-now-funding-replication-study-on-cfidsme-findings/ *Add to fatigue page http://www.healthrising.org/blog/2016/05/31/fatigue-japanese-way/ *Add to NK cell and b cell pages and key author pages http://forums.phoenixrising.me/index.php?threads/novel-identification-and-characterisation-of-transient-receptor-potential-melastatin-3-ion-channels.44932/ *Add to Davis page and severely ill study page http://www.meaction.net/2016/06/04/davis-at-invest-in-me-new-severe-patients-data/ *Add to page on [[Fisetin]] https://selfhacked.com/2016/06/04/15-science-based-health-benefits-fisetin-1-favorite/ - does not meet science guidelines *Add to [[Alison Wearden]] page, maybe others Bayliss 2016 Implementing resources to support the diagnosis and management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in primary care: A qualitative study http://bmcfampract.biomedcentral.com/articles/10.1186/s12875-016-0453-8 *Add to [[Ronald Davis]] page and [[list of news articles on ME and CFS]] Living with 'one of the last major diseases we know nothing about' Sean O'Brian Dec 22nd 2016 https://www.thejournal.ie/readme/me-invisible-illness-2792636-Jun2016/ *Add Review to [[microbiome]] page and [[Simon Carding]] page Navaneetharaja 2016 A Role for the Intestinal Microbiota and Virome in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)? https://www.ncbi.nlm.nih.gov/pubmed/27275835 *Add to [[cognitive dysfunction]] page https://www.healthrising.org/forums/resources/cognition-and-chronic-fatigue-syndrome-me-cfs-key-findings-and-seminal-papers.348/ **Neuropsychological performance in persons with chronic fatigue syndrome: results from a population-based study. Majer 2008 https://journals.lww.com/psychosomaticmedicine/FullText/2008/09000/Neuropsychological_Performance_in_Persons_With.11.aspx **Cvejic 2016 Cognitive Dysfunction in Chronic Fatigue Syndrome: a Review of Recent Evidence. May;18(5):24 http://www.ncbi.nlm.nih.gov/pubmed/27032787 **Capuron 2006 Cognitive dysfunction relates to subjective report of mental fatigue in patients with chronic fatigue syndrome. https://pubmed.ncbi.nlm.nih.gov/16395303/ **Constant 2011 Cognitive deficits in patients with chronic fatigue syndrome compared to those with major depressive disorder and healthy controls https://pubmed.ncbi.nlm.nih.gov/21255911/ **Objective evidence of cognitive complaints in Chronic Fatigue Syndrome: a BOLD fMRI study of verbal working memory. Neuroimage Lange 2005 https://www.ncbi.nlm.nih.gov/pubmed/15907308 **Less efficient and costly processes of frontal cortex in childhood chronic fatigue syndrom Mikuno 2015 https://pubmed.ncbi.nlm.nih.gov/26594619/ **Functional neuroimaging correlates of mental fatigue induced by cognition among chronic fatigue syndrome patients and controls Cook 2007 http://www.ncbi.nlm.nih.gov/pubmed/17408973 **[[Vagus nerve]] Beaumont 2012 Reduced cardiac vagal modulation impacts on cognitive performance in chronic fatigue syndrome https://www.ncbi.nlm.nih.gov/pubmed/23166694 *[[National Institute of Health]] **Add to [[National Institute of Health]] page http://www.occupycfs.com/2016/06/14/responding-to-the-nih-rfi/ **Add to [[National Institute of Health]] page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/ *Add to [[chronic fatigue]] page, maybe also primer(s)? self.com/wellness/2016/06/the-difference-between-chronic-fatigue-syndrome-and-extreme-tiredness/ - better sources needed *Add to [[mtDNA]] page Why Do We Inherit Mitochondrial DNA Only From Our Mothers? - Steph Yin 2016 http://www.nytimes.com/2016/06/24/science/mitochondrial-dna-mothers.html comments on **Zhou 2016 Mitochondrial endonuclease G mediates breakdown of paternal mitochondria upon fertilization https://science.sciencemag.org/content/353/6297/394.full **Mitochondrial Adam and Eve suggested 2013 https://www.nytimes.com/2013/08/13/science/new-studies-suggest-an-adam-and-eve-link.html *This appears to be Kew UK Gov archive, add to relevant page for easy access https://valerieeliotsmith.files.wordpress.com/2015/01/natarchbn141dss.pdf
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