Welsh Association of ME & CFS Support
The Welsh Association of ME & CFS Support (WAMES) is a British patient charity providing support to adults and children with ME/CFS and their carers and families in Wales.
Aims[edit | edit source]
WAMES aims to improve services, access to services, awareness and support in Wales, in particular:
- campaigning for recognition of ME as a neurological illness in line with the WHO classification and the results of biomedical research
- campaigning for appropriate health, education, social care services, benefits and research
- raising awareness of ME
- offering support to young people with ME
- providing information in Welsh and English for people with ME, their families & professionals
- aiding local support groups
Funding[edit | edit source]
WAMES became a registered charity in November 2011. Funding has been sourced from individual donations, ME support groups and professional organisations. Additionally, a £5,000 Award for all Wales grant from the Big Lottery Fund was awarded in September 2010 for an awareness campaign.
History[edit | edit source]
WAMES was founded in 2001 by local support groups to address issues specific to Wales due to devolution and bilingualism.
Online presence[edit | edit source]
References[edit | edit source]
World Health Organization (WHO) - "A specialized agency of the United Nations that is concerned with public health. It was established on 7 April 1948, and is headquartered in Geneva, Switzerland. The WHO is a member of the United Nations Development Group. Its predecessor, the Health Organization, was an agency of the League of Nations." The International Statistical Classification of Diseases and Related Health Problems (ICD) is maintained by WHO. (Learn more: en.wikipedia.org)
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.