Shropshire ME Group
Aims[edit | edit source]
The Shropshire ME Group is a self-help support group which intends to provide advocacy, advice, and information for people in and around Shropshire suffering from ME/CFS/PVFS and their carers, in particular by the provision of a network of contacts for such persons in order to provide mutual support and information exchange.
Services[edit | edit source]
- Distribution of a bi-monthly newsletter offering the latest news, events and developments
- Volunteer-run local support groups
- Free library of books, articles and media recordings on M.E.
- Yearly conferences featuring leading M.E. specialists
- Occasional volunteer-run fund-raising events to support SMEG and M.E. research
- Occasional social events such as picnics and visits to accessible local attractions
- Production and distribution of an information leaflet intended to increase greater awareness of the illness
- Maintenance of the Shropshire ME Group website, which has offered information and support since 2001
History[edit | edit source]
Notable people[edit | edit source]
Funding[edit | edit source]
Shropshire ME Group has been a registered charity since 1999. Its charity number is 1072171. The charity is self-funding and relies on individual donations to raise funds, as well as occasional fund-raising events held by volunteers to support SMEG and M.E. research. They charge an annual membership fee of £5.
Online presence[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
- Charity Commission - Shropshire ME Group
- Givey - Shropshire ME Group
- Shropshire ME Group - About Us
- ME Association - Shropshire M.E. Group to honour its founders at ‘M.E. Question Time’ | Shrewbury, October 6
- Shropshire Council - Shropshire ME Group Information
- Shropshire ME Group - How You Can Help Us
- Shropshire ME Group - Homepage
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.