Malcolm Hooper

2019-06-04T08:11:03Z

Sparrowgrass:Centre for Reviews and Dissemination

[[File:Malcolm Hooper.png|thumb|Source: www.name-us.org]]
[https://en.wikipedia.org/wiki/Malcolm_Hooper Malcolm Hooper] is Professor Emeritus of Medicine Chemistry at the University of Sunderland in the [[United Kingdom|UK]] and an advocate for people living with [[ME/CFS|myalgic encephalomyelitis/chronic fatigue syndrome]] (ME/CFS). He chaired the [[Invest in ME International ME Conference]] in London in 2008, 2010 and 2011.<ref>{{Cite web|url=http://www.investinme.eu/index.shtml|title=Invest in ME Research - UK Charity for Myalgic Encephalomyelitis Homepage|website=www.investinme.eu|access-date=2019-02-12}}</ref>

His numerous articles on [[ME]], many of which were in collaboration with [[Margaret Williams]], were mostly published on [[MEActionUK]] but can now be found [http://www.margaretwilliams.me here]. A passionate critic of psychological theories and treatments for ME, his articles illustrate how the "[[Wessely school|Wessely School]]" have ignored the biomedical science on [[ME/CFS]] for almost 30 years.

Professor Hooper is also the President and Chief Scientific Adviser to the UK National Gulf Veterans and Families Association.

==PACE trial criticism==
Professor Hooper was the principal author of the 442 page report: [http://www.margaretwilliams.me/#a20101 Magical Medicine: How to Make a Disease Disappear], a scathing criticism of the [[PACE trial]] released a year before the first results of the trial were published in the Lancet in 2011. This was followed up by numerous other articles listed below, including a formal Complaint to [[The Lancet]], letters to the [[Medical Research Council]], politicians, etc.

[http://margaretwilliams.me/2015/pace-trial-complaint-chronology.pdf PACE Trial Key Dates and Chronology of Complaint]

[http://www.margaretwilliams.me/2016/hooper-to-horton_15april2016.pdf Open Letter to Richard Horton, Lancet, 4/15/16] Dr. Hooper wrote an open letter on April 15, 2016 to Dr. [[Richard Horton]], editor of The Lancet regarding [[PACE trial]] and stating "Although not within your personal remit, subsequent papers flowing from it and purporting to validate the initial findings of the PACE study also need to be retracted..."

Prof Hooper gave a talk to the Academy of Nutritional Medicine (AONM) on 19 November 2017 called 'Off the PACE' about the PACE trial.<ref>{{Cite web|url=https://aonm.org/wp-content/uploads/2017/11/Prof.-Hooper-Off-the-PACE-CMIs-BPS-PACE-Guidelines-and-Consequences.pdf|title=OFF THE PACE CMIs, BPS, PACE, GUIDELINES and CONSEQUENCES (PowerPoint)|last=Hooper|first=Malcolm|date=Nov 19, 2017|website=aonm.org|archive-url=|archive-date=|dead-url=|access-date=}}</ref><ref>{{Cite web|url=https://aonm.org/wp-content/uploads/2017/11/OFF-THE-PACE-etc-FNL.pdf|title=OFF THE PACE: CMIs, BPS, PACE, GUIDELINES and CONSEQUENCES (Notes)|last=Hooper|first=Malcolm|date=Nov 2017|website=aonm.org|archive-url=|archive-date=|dead-url=|access-date=}}</ref>

== NICE guidelines criticism ==
Professor Hooper has written a number of articles critical of the [[NICE guidelines|NICE guideline]] review process which resulted in the controversial 2007 NICE guidelines used by the [[National Health Service|NHS]]. Hooper and Reid (2006) documented the issues with the expert evidence used in the NICE guidelines, which was produced by the University of York [[Centre for Reviews and Dissemination|Centre for Reviews and Dissemination]] (CRD).<ref>{{Cite web|url=http://www.angliameaction.org.uk/docs/Inadequacy-of-2005-York-Evidence-Review-for-NICE.pdf|title=Inadequacy of the York (2005) Systematic Review of the CFS/ME Medical Evidence Base.|last=Hooper|first=Malcolm|authorlink=Malcolm Hooper|last2=Reid|first2=Horace|authorlink2=Horace Reid|date=Jan 2006|website=|archive-url=|archive-date=|dead-url=|access-date=2019-02-14}}</ref>

==Major articles==
*2001, [http://www.margaretwilliams.me/#a200119 What is ME? What is CFS? Information for Clinicians and Lawyers]
*2001, [http://www.margaretwilliams.me/#a200117 Composite Response on the Final Version of the CMO’s Report of 31st August 2001 on CFS/ME]
*2001, [http://www.margaretwilliams.me/#a200116 Concepts of Accountability?]
*2001, [http://www.margaretwilliams.me/#a20013 Submission to Chief Medical Officer’s Working Group on CFS/ME]

*2003, [[The Mental Health Movement: Persecution of Patients?]]
*2003, [http://www.margaretwilliams.me/#a200315 Ignoring the Evidence? A response to the final version of the MRCCFS/ME Research Advisory Group Strategy of 1st May 2003]

*2004, [http://www.margaretwilliams.me/#a20048 Some Questions about ME to which Answers are Urgently Required]

*2005, [http://www.margaretwilliams.me/#a200543 Gibson Inquiry: Illustrations of Clinical Observations and International Research Findings from 1955 to 2005 that demonstrate the organic aetiology of ME/CFS]
*2005, [http://www.margaretwilliams.me/#a200542 Gibson Inquiry: Concerns about Conflict of Interest]
*2005, [http://www.margaretwilliams.me/#a200533 ME - Why no Accountability? A synopsis for the Gibson Inquiry]

*2006, [http://www.angliameaction.org.uk/docs/Inadequacy-of-2005-York-Evidence-Review-for-NICE.pdf Inadequacy of the 2005 York Evidence Review for NICE] - with [[Horace Reid]]
*2006, [http://www.margaretwilliams.me/#a200639 A Response and Appreciation of the Gibson Inquiry Report]

*2007, [http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1994528/ ME: a Review with Emphasis on Key Findings in Biomedical Research. J Clin Pathol 2007]

*2007, [http://www.margaretwilliams.me/#a200721 Failure of Nice to Address its Remit]
*2007, [http://www.margaretwilliams.me/#a200714 Corporate Collusion? An overview of the misinformation about ME/CFS arising from vested interests that pervades some UK Departments of State and other Agencies]
*2007, [http://www.margaretwilliams.me/#a200710 Defiance of Science]
*2007, [http://www.margaretwilliams.me/#a20073 Memorandum to Health Select Committee re NICE]

*2008, [http://www.margaretwilliams.me/#a20086 Wessely's Way: Rhetoric or Reason?]

*2010, [http://www.margaretwilliams.me/#a20106 Submission re: DSM-V and ME/CFS]
*2010, [http://www.margaretwilliams.me/#a20101 Magical Medicine: How to Make a Disease Disappear]

*2011, [http://www.margaretwilliams.me/#a201125 Statistics and ME]
*2011, [http://www.margaretwilliams.me/#a201120 Further Concerns about the PACE Trial]
*2011, [http://www.margaretwilliams.me/#a201116 Detailed Response to Prof Peter White’s letter to The Lancet]
*2011, [http://www.margaretwilliams.me/#a20115 Complaint to The Lancet re PACE Trial]

*2012, [http://www.margaretwilliams.me/#a201213 Prof Wessely's Award of the Inaugural John Maddox Prize for his Courage in the Field of ME and Gulf War Syndrome]
*2013, [http://www.margaretwilliams.me/#a20137 Key concerns about the PACE Trial - for Lawyers]
*2013, [http://www.margaretwilliams.me/#a20136 The Role of the Science Media Centre and the Insurance Industry in ME/CFS]

*2015, [http://www.margaretwilliams.me/#a20153 PACE Trial Key Dates and Chronology of Complaint]

==Journal articles==
*2007, Myalgic encephalomyelitis: a review with emphasis on key findings in biomedical research<ref name="Hooper, 2007" />

==Talks & interviews==
*2006, Speaker at the 1st [[Invest in ME International ME Conference]] - ''Summary of “Key Findings” of past bio‑medical research''<ref>http://www.investinme.eu/IIMEC1.shtml</ref> - [http://www.investinme.eu/IIMEC1.shtml#dvd DVD available]
*2008, Speaker at the 3rd [[Invest in ME International ME Conference]] - Opening Remarks as the Chair<ref>http://www.investinme.eu/IIMEC3.shtml</ref> - [http://www.investinme.eu/IIMEC3.shtml#dvd DVD available]
*2010, Speaker at the 5th [[Invest in ME International ME Conference]] - Opening Remarks as the Chair<ref>http://www.investinme.eu/IIMEC5.shtml</ref> - [http://www.investinme.eu/IIMEC5.shtml#dvd DVD available]
*2011, Speaker at the 6th [[Invest in ME International ME Conference]] - Opening Remarks as the Chair<ref>http://www.investinme.eu/IIMEC6.shtml#agenda</ref>- [http://www.investinme.eu/IIMEC6.shtml#dvd DVD available]

==Online presence==
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Hooper%20M%5BAuthor%5D&cauthor=true&cauthor_uid=23316152 PubMed]
*[http://www.meactionuk.org.uk/ Website]

==See also==
*[[Margaret Williams]]
*[[MEActionUK]]
*[[Invest in ME]]

==References==
<references>
<ref name="Hooper, 2007">{{Citation
| last1 = Hooper | first1 = Malcolm | authorlink1 = Malcolm Hooper
| title = Myalgic encephalomyelitis: a review with emphasis on key findings in biomedical research
| journal = Journal of Clinical Pathology | volume = 60 | issue = 5 | page = 466–471
| date = May 2007
| doi = 10.1136/jcp.2006.042408
}}
</ref>
</references>
[[Category:Advocates or allies]]
[[Category:British advocates or allies]]
[[Category:PACE trial critics]]
[[Category:Psychological paradigm critics]]

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Malcolm Hooper