MEpedia - User contributions [en]

Andrew Bretherton

2021-10-17T02:15:39Z

Simone:Emerge Australia has never had a Community Engagement Officer, and Andrew has never been employed by Emerge Australia

[[File:ME Action Promo.jpg|thumb|324x324px|
ME Action promotion [[File:Insight Panel.png|thumb|
Andrew (second from left) on SBS Insight program
]]]]
'''Andrew Bretherton''' is a passionate human rights advocate and unionist. Andrew became an advocate for people with ME when he himself was diagnosed in 2015. Andrew is actively campaigning for better conditions and to stop the abuse of people living with ME. He has spoken for various ME organisations in Australia and in the UK.

Andrew has worked with a number of organisations including [[Millions Missing]], [[Emerge Australia]], [[ME Australia]], [[Victorian Greens]], 88 Days And Counting, Tom & Mia’s legacy, Migrant Workers Hub and the Migrant Workers Centre actively fighting against modern slavery, for the improvement of migrant workers rights in Australia, and for the rights of people with M.E.

He has also given evidence to the [https://www.aph.gov.au/modernslavery Australian modern slavery inquiry 2016]<ref>https://www.aph.gov.au/modernslavery</ref> and cross examined for the [https://www.fwc.gov.au/awards-and-agreements/awards/award-modernisation/variation-applications/AM2020/104 Inquiry into the horticulture award]<ref>https://www.fwc.gov.au/awards-and-agreements/awards/award-modernisation/variation-applications/AM2020/104</ref>

Andrew is currently leading a [https://chng.it/mNbnkz9ZSN Call For Change Australia petition]<ref>https://chng.it/mNbnkz9ZSN</ref> (an Australian Version of '''Dr. K.N. Hng''', a.k.a '''[[Robin Brown|Robin Brown's]]''' [https://www.change.org/p/uk-parliament-after-the-debate-call-for-change-for-me-patients Petition] to the UK parliament) to submit to the Australian Disability Royal Commission and Australian Parliament to investigate the violence, neglect, abuse and exploitation currently occurring in the ME and CFS community due to outdated guidelines, policies and research.

== '''Illness''' ==
Andrew was studying a B.A. of Psychology and Sport Science, working professionally and heavily involved in his local community when he caught [[glandular fever]] ([[Epstein-Barr virus|EBV]]) and [[shingles]] and was struck down with M.E. He attended a well known hospital fatigue clinic and an exercise health clinic in Melbourne where he was recommended the therapies [[Graded exercise therapy|GET]]/[[Cognitive behavioral therapy|CBT]] and high doses of [[Ritalin|dexamphetamines]]. Andrew found this treatment exploitative, abusive and said it reduced his functionality to the point where he was housebound and could no longer work or study. He later attended Dr [[Donald Lewis]] clinic CFS discovery where he received proper medical care before it closed in 2019.

Andrew experienced many cases of diagnosis discrimination and found the process of applying for social supports (housing, national disability insurance scheme, disability support pension) in Australia discriminatory simply because services excluded him from support because he had the “ME or CFS” label.

In 2019 his apartment complex flooded and through no fault of his own Andrew found himself homeless and was admitted to hospital where he experienced further medical abuse where the hospital tried to “cure” his M.E. with psychiatric treatments (e.g. more GET/CBT and [[antidepressants]])

It took Andrew 3 years to access the DSP and NDIS. Andrew believes had he had early access to appropriate services then he would be much less impaired then he is now and could have possibly avoided what happened to him.

== '''Advocacy''' ==
Andrew has publicly called for more biomedical funding and [https://www.abc.net.au/triplej/programs/hack/what-its-like-living-with-chronic-fatigue/9046886 said that having ME was like "A Slow Death” - Triple J hack - 2017] he said that recommending graded exercise therapy and cognitive behaviour therapy for the condition is “just garbage” - Insight - 2018 on his experience with the insight program he said “It’s not often you get a chance to confront your abuser, so it was therapeutic for me in that sense. I only regret that they focused more on outdated modes of practice, but we do need people to stand up and put forward the message of real science and show that these dinosaur practices of treatment (graded exercise therapy and cognitive behavioural therapy) are harmful to patients.” ME Australia - 2018

In 2018 Andrew gave evidence to the Inquiry into establishing a [https://www.legislation.gov.au/Details/C2018A00153 Modern Slavery Act] in Australia on behalf of Tom & Mia’s legacy and his partner at the time.
[[File:Migrant workers rally.jpg|thumb|
Andrew (right) at a union rally for migrant worker rights in Melbourne
]]
'''''Andrew’s statement:'''''

“My partner is currently working on a farm for her second year visa. She's Chinese. When we were discussing her coming here, I told her that Australia has workplace and safety laws that can protect her. Even utilising and knowing these services and procedures myself, it has been extremely hard to get her fair pay and conditions, and my partner is currently still being exploited. I would love to tell you more, but my partner and her workmates are petrified that if I speak to you today not only will they lose their opportunity to stay in Australia but they'll also be at risk of physical harm. (For context her room was knocked on late at night and they were demanding which “backpackers boyfriend” called the farm and company and got the union involved) What was said earlier about Asian workers versus European workers being harder or better is (just an example of) cultural exploitation. Farmers, hostels and contractors are (actively) taking advantage of backpackers of Asian backgrounds. There's a saying in China that “the nail that sticks out gets hammered down”, so traditionally it is not part of their culture to speak out against their employer. When I spoke to my partner about coming to Australia, she was surprised by all our working and safety rights that we have here, as they do not exist in her country, (China) unlike in Australia and Europe.

I'd also like to address some other issues with you today, the first being piece rates. Piece rates are being used as a legal loophole to exploit women and backpackers out of decent pay conditions. At the moment, backpackers' employers decide what the average competent worker is and then off this decide what the rate of pay will be. I would call for this to be abolished or at the very least government regulated rather than farm regulated, as it is currently in other working sectors. In Australia we regard ourselves as giving equal pay to women, but with piece rates, women are consistently earning less than men. I understand that this is because of the physical nature of the work, but keep in mind these women are working the same hours and same conditions as the men on the farms.
[[File:Far from home.jpg|thumb|
https://www.penguin.com.au/books/far-from-home-9780143796398
]]
The other issue I'd like to bring up is the myth Australians don't want to work on farms or are too lazy for farm work. When looking for work for my partner's second year visa, which took almost six months, I also believed this myth that farmers are desperate for Australian workers, so I would call these farms myself as an Australian looking for work, and then the farmer or contractor would say that there is no work available. My partner would then call the same place after me this time as a backpacker asking for the same work, and automatically she was offered the job! But well under the award wages. At the community meeting yesterday I also spoke to a local resident who also had trouble obtaining work here in the area (Mildura) . He believes he was turned down for the same reason, and I believe he's still looking for work.

There are two avenues to find farm work in Australia. One is legitimate sources like the government harvest trail website, Seek and the other job networks online. These seem to have very few regional farming jobs available, but then there are the unregulated social media or apps, in which there are literally hundreds of farming jobs available (for backpackers). Australia regards itself as the land of the fair go, but, having personally experienced what my partner is going through, and through working with Rosie, I can honestly say I no longer believe this to be true.”

In 2021 Andrew was acknowledged for his work on migrant worker rights in the book “[https://www.penguin.com.au/books/far-from-home-9780143796398 Far From Home]” - by Rosie Ayliffe.<ref>https://www.penguin.com.au/books/far-from-home-9780143796398</ref>

Andrew also actively participated on behalf of 88 days and counting into [https://www.fwc.gov.au/awards-and-agreements/awards/award-modernisation/variation-applications/AM2020/104 variation of the Horticultural Award 2020] <ref>https://www.fwc.gov.au/awards-and-agreements/awards/award-modernisation/variation-applications/AM2020/104</ref> cross examining witnesses and providing statements for temporary migrant workers in Australia.

== '''Positions held:''' ==
[[File:Millions missing.png|thumb|
Andrew speaking at a Millions Missing rally outside Melbourne state library
]]
Emerge Australia - Video media and live streaming - 2018

ME Australia - Social Media Engagement officer - 2018 - onwards

Millions Missing - Guest speaker 2019

ME action network promo - 2018

Call for Change UK - Voice Over/ Narrator

Call for Change Australia - Organiser - 2021

Victorian greens people with disabilities working group Co- Convenor 2018 - Current

88 days and counting - Organiser 2016 - present

Tom and Mia’s Legacy - Organiser and Spokesperson 2016 - present

Migrant workers centre - Volunteer

== '''Media Coverage:''' ==

*[https://www.facebook.com/EmergeAustraliaInc/videos/311107219797157 Andrew speech for Missing Millions at Melbourne Rally]

*[https://www.sbs.com.au/ondemand/watch/1334946883764 SBS - Insight - Chronic Fatigue Syndrome (2018)]

*[https://meaustralia.net/2018/10/15/insight-on-chronic-fatigue-syndrome-andrews-experience/ ME News Australia - ‘Insight’ on chronic fatigue syndrome: Andrew’s experience (2018)]

*[https://www.abc.net.au/triplej/programs/hack/what-its-like-living-with-chronic-fatigue/9046886 'A slow death': what it’s like living with Chronic Fatigue Syndrome]
*[https://www.abc.net.au/triplej/programs/hack/hack/9045020 Living with Chronic Fatigue]
*[https://abcmedia.akamaized.net/radio/local_sydney/audio/201909/nlf-2019-09-02-living-with-chronic-fatigue-syndrome.mp3 Nightlife - ABC Radio] (at 37:20)

*ME action network promo

== '''Other Advocacy work:''' ==

*[https://www.facebook.com/samira.karimi569/videos/503867967667605 Andrew’s speech on Slavery outside Parliament House Melbourne]. February 2021

==References==

[[Category:People with ME, CFS, and/or FMS]]
[[Category:Advocates or allies]]
[[Category:Australian advocates or allies]]
<references />

Category:Patient groups

2018-08-06T05:51:01Z

Simone:Removed duplications. Corrected inaccurate names of a couple of organisations.

This category is for patient groups.

==Please create pages for==
<div style="column-count:3;-moz-column-count:3;-webkit-column-count:3">
*[[Asociación Fibroamérica]] (Argentina)

*[[ME/CFS Australia (SA)]] Inc (Australia)
*[[ME/CFS & Lyme Association of Western Australia]] (Australia)
*[[Far North Coast ME/CFS Association]] (Australia)
*[[Bridges & Pathways Institute]] (Australia)
*[[ME/CFS/FM Support Association of Queensland]] (Australia)
*[[The ME/CFS & FM Association of NSW]] (Australia)
*[[ACT ME/Chronic Fatigue Syndrome Society]] (Australia)
*[[ME/CFS Australia]] Ltd (Australia)

*[[Foreningen for Myalgisk Encefalomyelitis]] (Denmark)

*[[Association Française du Syndrome de Fatigue Chronique]] (France)

*[[Fatigatio e.V.]] (Germany)
*[[ME/CFS Aktuell]] (Germany)
* Lost Voices Stiftung (Germany)

*[[CFS Support Network]] (Japan)
*[[Japan ME/CFS Association]] (Japan)

*[[Steungroep ME en Arbeidsongeschiktheid]] (Netherlands)
*[[ME/cvs Vereniging]] (Netherlands)
*[[ME/CVS Stichting Nederland]] (Netherlands)

*[[Društvo za fibromialgijo]] (Slovenia)

*[[Myalgic Encephalomyelitis Association of South Africa]] (MEASA) (South Africa)

*[[Liga SFC]] (Spain)
*[[Fundación para la Fibromialgia y el Síndrome de Fatiga Crónica]] (Spain)
*[[Associació Catalana D'Afectats Per La Síndrome De Fatiga Crónica/Encefalomielitis Miálgica]] (ACSFCEM) (Spain)

*[[ME-föreningen]] (Sweden)

*[[Verein ME/CFS Schweiz]] (Switzerland)

*[[MEadvocacy]] (USA)
*[[Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy]] (PANDORA) (USA)
*[[RESCIND]] (defunct) (USA)
*[[Chronic Fatigue Syndrome, Fibromyalgia, & Chemical Sensitivity Coalition of Chicago]] (USA)
*[[The Northern Virginia Chronic Fatigue Syndrome/ME & Fibromyalgia & Orthostatic Intolerance Support Group]] (NOVA) (USA)
*[[Chronic Fatigue Syndrome/Fibromyalgia Organization of Georgia]] (USA)
*[[The Rocky Mountain CFS/ME & FM Association]] (USA)
*[[California Capital CFIDS Association]] (CCCA) (USA)
</div>

(remove any blue links from this section)

==Please expand these stub pages==
{{StubPagesInCategory|Patient groups|mode=inline}}

Emerge Australia

2018-08-06T05:48:06Z

Simone:

[http://emerge.org.au/ '''Emerge Australia'''] efforts include peer support groups, Health Promotion activities, awareness and fundraising activities, advocacy, seminars and a dedicated Member information service. They produce a quarterly ''Emerge Journal''.

"We are determined to strengthen the national response to [[ME/CFS]] and welcome and encourage all State and Territory organisations, communities and individuals to join with us as we move forward with hope, vigour and a commitment to lead."<ref>[http://emerge.org.au/about-us/ Emerge Australia - About Us]</ref>

The current CEO of Emerge Australia is Dr Heidi Nicholl, who has a PhD and background in medical ethics.

==Aims==
From [https://emerge.org.au/mission-vision/#.WEb9xIXwMmQ Emerge Australian website]:
:"Mission - To support, provide information and advocacy for people associated with Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS).
:Vision - Universal awareness and acknowledgement of ME/CFS as a medical condition.
:Values - To serve the best interests of people affected by ME/CFS with integrity, compassion and empathy."

==Funding==
In July 2018, Emerge Australia received $370,000 in Federal Department of Health funding to support its work.<ref>{{Cite news|url=https://www.miragenews.com/emerge-australia-welcomes-370-000-in-federal-funding/|title=Emerge Australia welcomes $370,000 in Federal funding|date=2018-07-17|work=Mirage News|access-date=2018-08-03|language=en-US}}</ref>

==History==
The 'ME Society' was formed in 1980 in Victoria, and included patients from Tasmania, South Australia and Western Australia. The New South Wales and ACT societies formed independently, at the same time. The society's quarterly information brochure, 'Emerge', began in 1980.<ref>[http://emerge.org.au/mission-vision/history/#.Vtp8nJx97tQ Emerge Australia - History]</ref> In 2014, the society was renamed from 'ME/CFS Australia (Victoria)' to 'Emerge Australia'.

==Advocacy actions==
*2016: An open letter is sent to Queen Mary University London, and the Information Commissioner's Office in the UK, asking for the release of the PACE Trial data.<ref name="openletrEmergeAust" />

==Talks and interviews==
*23 Feb 2016, [http://thewire.org.au/story/chronic-fatigue-syndrome-chronically-underfunded/ ''The Wire Radio'' in Australia covers the dismal research spending into] [[ME]] and interviews patient Sasha, Senator [[Scott Ludlam]] and Sally Missings of Emerge Australia]
*27 May 2014, [https://soundcloud.com/emergeaustralia/me-part-1-byron-bay-lighthouse-fm-may-2014 "ME Part 1 Byron Bay Lighthouse FM MAY 2014"]
*27 May 2014, [https://soundcloud.com/emergeaustralia/me-part-2-byron-bay-lighthouse-fm-may-2014 "ME Part 2 Byron Bay Lighthouse FM MAY 2014"]
*20 May 2014, [https://soundcloud.com/emergeaustralia/chronic-fatigue-syndrome-774 "ME/CFS 774 ABC Radio 2014 Richard Stubbs and Nicole Phillips"]
*24 Sept 2013 [https://soundcloud.com/emergeaustralia/me-phillips-radio-interview "ME Phillips Radio Interview 2013"]
* [https://vimeo.com/emergeaustralia Vimeo channel - Emerge seminars]

==Online presence==
* [http://emerge.org.au Website]
* [https://www.facebook.com/EmergeAustraliaInc FaceBook]
* [https://twitter.com/EmergeAus Twitter]
* [https://www.linkedin.com/company/emerge-australia-inc Linked In]
* [https://www.givenow.com.au/cause267 Give Now (donations)]

==Learn more==

==See also==

==References==
<references>
<ref name="openletrEmergeAust">{{citation
| author = Emerge Australia | authorlink1 = Emerge Australia
| title = Open Letter to QMUL - Request for the release of PACE trial data
| date = 20 Mar 2016
| url = http://emerge.org.au/pace-trial-letter/?ct=t(April_newsletter07_04_2016)#.VxCS5KR97tS
}}</ref>
</references>

[[Category:Patient groups]]
[[Category:Australian patient groups]]

Exercise

2016-04-07T22:27:29Z

Simone:/* Workwell Foundation */ .

== Evidence for graded exercise ==

{{main|Graded exercise therapy}}

==Exercise and the immune system==

In healthy people, exercise induces a variety of temporary changes to immune markers. Immediately after exercise, [[natural killer cell]] activity is decreased and [[Leukotriene]] B4 (LTB4) increase, along with the LTB4/PGE2 ratio. Exercise elevates levels of [[prostaglandin]] E2 (PGE2) for up to five days.<ref name="GrayJB1994"/>

== Effects of exercise in Chronic Fatigue Syndrome ==

===Post Exertional Malaise===
ME/CFS patients who exercise are likely to experience [[Post-exertional malaise]].

===Microbiome===

A small study of ten CFS patients found significant changes in the composition of the [[microbiome]] and increased bacterial translocation (movement from the [[intestine]] into the [[blood|bloodstream]] following exercise. In the blood, the study found increased ''[[Clostridium]]'' fifteen minutes after exercise and increased ''[[Bacilli]]'' 48 hours later.<ref name="ShuklaS2015"/>

=== Musculature ===

Exercise has also been found to induce both early and excessive lactic acid formation in the [[muscle fatigability|muscles]]<ref name="Plioplys1995"/> with reduced intracellular concentrations of [[ATP]] and acceleration of [[glycolysis]].<ref name="McCully1996"/> Several studies have found abnormal increases in plasma lactate following short period of moderate exercise that cannot be explained by [[deconditioning]].<ref name="LaneRJ1998"/>

There is evidence of loss of capacity to recover from acidosis on repeat exercise.<ref name="JonesDE2012"/>

There is evidence of abnormalities of [[AMPK]] activation and glucose uptake in cultured skeletal muscle cells in ME/CFS patients.<ref name="BrownAE2015"/><ref name="Wellness20150420"/>

There is evidence of Abnormalities in pH handling by peripheral muscle.<ref name="JonesDE2010"/>

Possible evidence of an increased acidosis and lactate accumulation.<ref name="LengertN2015"/>

=== Gene expression ===

[[File:Light2011-geneexpression-figure3.jpg|right|Gene expression changes following moderate exercise (Light et al, 2011)]]

There is evidence of increased [[gene expression]] following muscular exertion.<ref name="LightAR2009"/><ref name="LightAR2011"/><ref name="WhiteAT2012"/>

A 2011 study found that moderate exercise in CFS increased the expression of 13 genes (sensory, adrenergic and 1 cytokine) for 48 hours, and the increases correlated with fatigue and pain levels.<ref name="LightAR2011"/> (see graph at right)

=== Second day exercise test ===
The seminal study on the response by CFS patients to a 2-day cardiopulmonary exercise test was published by J. Mark Van Ness, Christopher R. Snell & Staci R. Stevens in 2007: "Diminished Cardiopulmonary Capacity During Post-Exertional Malaise"<ref name="VanNess2007"/> A repeat study in 2013 confirmed these results.<ref name="SnellCR2013"/>

In a confirmation study, Doctor [[Betsy Keller]] found that patients could not repeat their performance on a second cardiopulmonary exercise test performed a day after the first.<ref name="KellerBA2014"/>

== Examples of clinical recommendations ==

While there has been no research on physical therapy alternatives to graded exercise, and many patients find it harmful, many clinicians recommend some exercise or strength training for patients who are able.

===Dr [[Sarah Myhill]]===
Dr Myhill recommends patients who are well enough engage in strength training, specifically [[Body by Science]] created by Dr Doug McGuff and John Little. "If muscle strength is correctly developed, this automatically translates into cardiovascular fitness and increased numbers of mitochondria". Dr Myhill has a page on her web site [http://www.drmyhill.co.uk/wiki/Exercise_-_the_right_sort detailing her recommendations]<ref name="MyhillExercise"/>.

===Dr. [[Lucinda Bateman]]===
Dr Bateman encourages her patients to find a way to exercise: "we try to focus on maintaining or improving muscle strength, flexibility and also bit of cardiovascular exercise". She discusses exercise and gene expression in [https://www.youtube.com/watch?v=F1PP21TmUPs an interview]<ref name="Bateman20151103interview"/>.

===Dr. [[Nancy Klimas]]===
Dr Klimas recommends patients engage in exercise or movement without exceeding a certain heart rate, a proxy for an individual's [[anaerobic threshold]], as established by a [[Cardiopulmonary exercise test|VO2 max test]].<ref name="Klimas20110724phoenix"/>

===[[Workwell Foundation]]===
[[Workwell Foundation]], which specialises in [[two-day cardiopulmonary exercise testing]] ([[CPET]]), recommends short periods (eg: 30 seconds) of analeptic exercise, with periods of rest which are 3-6 times longer than the period of exercise. The amount of exercise that the individual undertakes should be guided by VO2 max testing (or a safe heart rate threshold (generally 60% of maximum heart rate)), and the use of a heart rate monitor (both during exercise and to help with [[pacing]]) is recommended to ensure that the individual doesn't exceed their capacity. The Foundation also advises against aerobic exercise for people with [[ME/CFS]].<ref name="Workwell201404rae"/><ref name="Workwell201404wwodwo"/><ref name="Workwell201512foar"/>

This approach to exercise differs from [[Graded Exercise Therapy]] ([[GET]]) in several important ways:
*There is no claim that the exercise program will cure the condition. The aim is to increase functional strength and flexibility, and to improve quality of life, whilst not exacerbating the condition<ref name="Workwell201404wwodwo"/>
*This program is based on a deep understanding of [[Post-exertional malaise]] ([[PEM]]), and the importance of staying within the [[energy envelope]] in order to not trigger [[PEM]]<ref name="Workwell201404rae"/>
*There is a recognition that any approach to exercise with people with [[ME/CFS]] must be carefully tailored to the individual. There is no one-size fits all<ref name="Workwell201404wwodwo"/>
*This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual<ref name="Workwell201512foar"/>

===UK NICE Guidelines===
British patient [[Sally Burch]] has written about the The UK [[National Institute for Health and Care Excellence]] (NICE) guidelines on maintaining a lower heart rate.<ref name="BurchS20151114slideshow"/>

==Talks & Interviews==
*2014, [https://www.youtube.com/watch?v=q_cnva7zyKM Mark VanNess 'Exercise and ME/CFS' at Bristol Watershed. Part One]<ref name="VanNess20140205video"/>

==Learn more==
*2016, [http://www.hindawi.com/journals/jar/2016/2497348/ Review Article: Understanding Muscle Dysfunction in Chronic Fatigue Syndrome]<ref name="RutherfordG2016"/>
*2016, [http://www.prohealth.com/library/showarticle.cfm?libid=25096 Lost in Translation - The ME-Polio Connection and the Dangers of Exercise]<ref name="ProHealth20160210"/>
*2015, [http://sallyjustme.blogspot.co.uk/2015/01/dr-vanness-on-recent-press-reports.html Dr VanNess on recent press reports] ([[Mark VanNess]], January)<ref name="BurchS20150117"/>
*2015, [http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf Deviant Cellular and Physiological Responses to Exercise in Myalgic Encephalomyelitis and Chronic Fatigue Syndrome] <ref name="TwiskF2015"/>
*2014, [http://www.deseretnews.com/article/865603384/Sufferers-of-chronic-fatigue-fibromyalgia-have-hope-in-new-diagnostic-tool.html Sufferers of chronic fatigue, fibromyalgia have hope in new diagnostic tool]<ref name="DeseretNews20140516"/>

== See also ==
*[[Cardiopulmonary exercise test]]
*[[Two day exercise test]]
*[[Graded exercise therapy]]
*[[Muscle fatigability]]
*[[Mitochondria]]
*[[Post-exertional malaise]]
*[[Cochrane]]
*[[PACE trial]]

==References==
<references>

<ref name="Bateman20151103interview">{{citation
| last1 = Bateman | first1 = Lucinda | authorlink1 = Lucinda Bateman
| display-authors = 1
| title = Video interview: Gene-expression and exercise
| journal = Wetenschap voor Patienten - ME/cvs Vereniging
| date = 3 Nov 2015
| url = https://www.youtube.com/watch?v=F1PP21TmUPs
}}</ref>

<ref name="BrownAE2015">{{citation
| last1 = Brown | first1 = Audrey E | authorlink1 = Audrey E Brown
| last2 = Jones | first2 = David E | authorlink2 = David E Jones
| last3 = Walker | first3 = Mark | authorlink3 = Mark Walker
| last4 = Newton | first4 = Julia L | authorlink4 = Julia L Newton
| display-authors = 4
| title = Abnormalities of AMPK activation and glucose uptake in cultured skeletal muscle cells
| journal = PLoS One | volume = 10 | issue = 4
| date = 2 Apr 2015
| pmid = 25836975 | doi = 10.1371/journal.pone.0122982
| url = http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0122982
}}</ref>

<ref name="BurchS20150117">{{citation
| last1 = Burch | first1 = Sally | authorlink1 = Sally Burch
| last2 = Van Ness | first2 = J Mark | authorlink2 = Mark Van Ness
| display-authors = 2
| title = Dr Van Ness on recent press reports
| date = 17 Jan 2015
| url = http://sallyjustme.blogspot.co.uk/2015/01/dr-vanness-on-recent-press-reports.html
}}</ref>

<ref name="BurchS20151114slideshow">{{citation
| last1 = Burch | first1 = Sally | authorlink1 = Sally Burch
| display-authors = 1
| title = Slideshow: Heart rate monitoring and NICE guideline for ME
| date = 14 Nov 2015
| url = http://www.slideshare.net/SallyBurch/heart-rate-monitoring-and-nice-guideline-for-me
}}</ref>

<ref name="DeseretNews20140516">{{citation
| author = Deseret News
| display-authors = 1
| title = Sufferers of chronic fatigue, fibromyalgia have hope in new diagnostic tool
| date = 16 May 2014
| url = http://www.deseretnews.com/article/865603384/Sufferers-of-chronic-fatigue-fibromyalgia-have-hope-in-new-diagnostic-tool.html
}}</ref>

<ref name="GrayJB1994">{{citation
| last1 = Gray | first1 = J B | authorlink1 = J B Gray
| last2 = Martinovic | first2 = A M | authorlink2 = A M Martinovic
| display-authors = 2
| title = Eicosanoids and essential fatty acid modulation in chronic disease and the chronic fatigue syndrome
| journal = Medical Hypotheses | volume = 43 | issue = 1 | page = 31–42
| date = Jul 1994
| pmid = 7968718 | doi = 10.1016/0306-9877(94)90046-9
| url = http://www.sciencedirect.com/science/article/pii/0306987794900469
}}</ref>

<ref name="JonesDE2010">{{citation
| last1 = Jones | first1 = David EJ | authorlink1 = David E Jones
| last2 = Hollingsworth | first2 = Kieren G | authorlink2 = Kieren G Hollingsworth
| last3 = Taylor | first3 = R | authorlink3 = R Taylor
| last4 = Blamire | first4 = Andrew M | authorlink4 = Andrew M Blamire
| last5 = Newton | first5 = Julia L | authorlink5 = Julia L Newton
| display-authors = 5
| title = Abnormalities in pH handling by peripheral muscle and potential regulation by the autonomic nervous system in chronic fatigue syndrome
| journal = J Intern Med | volume = 267 | issue = 4 | page = 394-401
| date = Apr 2010
| pmid = 20433583 | doi = 10.1111/j.1365-2796.2009.02160.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2009.02160.x/abstract
}}</ref>

<ref name="JonesDE2012">{{citation
| last1 = Jones | first1 = David EJ | authorlink1 = David E Jones
| last2 = Hollingsworth | first2 = Kieren G | authorlink2 = Kieren G Hollingsworth
| last3 = Jakovljevic | first3 = Djordje G | authorlink3 = Djordje G Jakovljevic
| last4 = Fattakhova | first4 = Gulnar | authorlink4 = Gulnar Fattakhova
| last5 = Pairman | first5 = Jessie | authorlink5 = Jessie Pairman
| last6 = Blamire | first6 = Andrew M | authorlink6 = Andrew M Blamire
| last7 = Trenell | first7 = Michael I | authorlink7 = Michael I Trenell
| last8 = Newton | first8 = Julia L | authorlink8 = Julia L Newton
| display-authors = 8
| title = Loss of capacity to recover from acidosis on repeat exercise in chronic fatigue syndrome
| journal = Eur J Clin Invest | volume = 2012 Feb;42 | issue = 2 | page = 186-94
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[[Category:Potential treatments]]
[[Category:Tests]]

Australia

2016-04-01T03:28:56Z

Simone:/* Medical guidelines */ expanded NHMRC name

[[File:Australia-flag.jpg|right|240px]]

There are an estimated 92,000 to 598,000 people in Australia with chronic fatigue syndrome, ME or CFS/ME or ME/CFS (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis.

Australian patients use the terms [[Chronic Fatigue Syndrome]], [[ME/CFS]], CFS/ME, [[Myalgic Encephalomyelitis]] or immune dysfunction illness.

==Medical guidelines==

The current Australian guidelines are used by National Health and Medical Research Council (NHRMC) fellowship recipient Prof Andrew Lloyd, who sits on the review committees for NHMRC grant applications.<ref name="#MEACTION20160120ahd"/>

[[Emerge Australia]] is in the process of recommending new clinical guidelines to replace the outdated Australian guidelines.<ref>reference needed</ref>

Some patients are lobbying for the [[International Consensus Criteria]] to be adopted. Some suggested letter templates have been offered for use [http://www.meaction.net/2016/03/10/australia-write-your-own-letter-to-a-politician/ here] and [http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/ here].

===Patient groups===

The [[International Consensus Primer]] is listed by all organisations, except Western Australia's ME/CFS/Lyme Association, which lists the [[Canadian Consensus Criteria]].

One of the NSW websites lists the [International Consensus Primer]] , [[IACFS/ME Clinical Primer]]<ref name="IACFSME2014primer"/>, the [[2006 Paediatric Criteria]]<ref name="JasonL2006paed"/>, and the [[South Australian ME/CFS Guidelines]]<ref name="SthAustGuidelines"/> but is not clear on which one it endorses.

Some state organisations, [[NCNED]] and some patients are lobbying<ref name="#MEACTION20160314amrc"/> for the 2002 RACP Australian guidelines<ref name="RACP2002"/> to be replaced with the [[International Consensus Criteria]].

===Australian medical associations===
*The Royal Australasian College of Physicians (RACP) published guidelines in 2002, in the Australian Medical Journal.<ref name="RACP2002"/>
*The Royal Australasian College of General Practitioners (RACGP) published a guideline in 2015 which recommends [[Graded Exercise Therapy]].<ref name="RACGP2015guide"/> Their magazine Australian Family Practitioner (AFP) has published articles about [[ME/CFS]],<ref name="AFPlist"/> including a 2013 article that recommends [[Graded Exercise Therapy]] and [[Cognitive Behavioural Therapy]].<ref name="AFP201304"/>
*The Australian Medical Association (AMA) website recommends [[Graded Exercise Therapy]].<ref name="AMA20040503"/>

===National health department===
* [http://health.gov.au Department of Health]
* [http://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs Direct information page on CFS from Department of Health]

===National Health and Medical Research Council===
The [http://nhmrc.gov.au NHMRC] funds health and medical research, and develops health advice & guidelines. It is part of the Australian Department of Health.

===State and territory health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] - information for the public
* ACT
* NSW
* South Australia
* Northern Territory
* Queensland
* Tasmania
* Western Australia

==Health insurance==

===Government health insurance===
The Australian government subsidises most medical appointments, some hospital services, and some medications.
*[https://www.humanservices.gov.au/customer/dhs/medicare Medicare]
*[https://www.humanservices.gov.au/customer/services/medicare/medicare-safety-net Medicare Safety Net]
*[http://www.pbs.gov.au/info/about-the-pbs Pharmaceutical Benefits Scheme]

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
((How many hospitals & doctors, which diagnose and treat ME (estimate):))
((Rehabilitation offers for ME sufferers: ))

==Patient groups==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==

===Notable studies===
*[https://www.dovepress.com/articles.php?article_id=26236 Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome (2016)]

===Research results===
*2016: [http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/ Australian Breakthrough on Diagnostic Blood Test]<ref name="#MEACTION20160303test"/>
*2015: [http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/ Australian Research into ME/CFS in Adolescents]<ref name="#MEACTION20150819arma"/>

===Research funding===
*2016: [http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Dept Pins its Hopes on NIH Research]<ref name="#MEACTION20160212ahd"/>
*2016: [http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/ The Australian Health Department Answers Questions on ME]<ref name="#MEACTION20160120ahd"/>
*2015: [http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/ Australian Senator Questions Government on Lack of Action on ME]<ref name="#MEACTION20151116asqg"/>

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

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| journal = #MEAction
| date = 12 Feb 2016
| url = http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/
}}</ref>

<ref name="#MEACTION20160303test">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Breakthrough on Diagnostic Blood Test
| journal = #MEAction
| date = 3 Mar 2016
| url = http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
}}</ref>

<ref name="#MEACTION20160314amrc">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australians: Ask the Medical Research Council to Fund Studies
| journal = #MEAction
| date = 14 Mar 2016
| url = http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/
}}</ref>

<ref name="SthAustGuidelines">{{citation
| last1 = South Australian Department of Human Services
| last2 = University of Adelaide
| last3 = ME/CFS Society of South Australia
| title = ME/CFS Guidelines: Management Guidelines for General Practitioners
| date = 2004
| ISBN = 0 7308 9334 0
| url = http://sacfs.asn.au/download/guidelines.pdf
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

<ref name="RACP2002">{{citation
| author1 = Victoria Toulkidis
| author2 = Produced by a Working Group convened under the auspices of the Royal Australasian College of Physicians
| display-authors = 1
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="RACGP2015guide">{{citation
| author = Royal Australasian College of General Practitioners (RACGP)
| title = Graded exercise therapy: chronic fatigue syndrome
| date = Mar 2015
| url = http://www.racgp.org.au/your-practice/guidelines/handi/interventions/other/graded-exercise-therapy-for-chronic-fatigue-syndrome/
}}</ref>
<ref name="AFPlist">{{citation
| journal = Australian Family Physician
| title = articles about Chronic Fatigue Syndrome
| url = http://www.racgp.org.au/search/
}}</ref>
<ref name="AFP201304">{{citation
| author = Megan Arroll, Bruce Arroll
| title = Chronic fatigue syndrome: A patient centred approach to management
| journal = Australian Family Practitioner
| date = Apr 2013
| url = http://www.racgp.org.au/afp/2013/april/chronic-fatigue-syndrome/
}}</ref>
<ref name="AMA20040503">{{citation
| author = Australian Medical Association
| title = Chronic fatigue sufferers beat blues with exercise
| date = 3 May 2004
| url = https://ama.com.au/media/chronic-fatigue-sufferers-beat-blues-exercise
}}</ref>

Australia

2016-04-01T03:22:53Z

Simone:/* Research */ added recent NCNED study

[[File:Australia-flag.jpg|right|240px]]

There are an estimated 92,000 to 598,000 people in Australia with chronic fatigue syndrome, ME or CFS/ME or ME/CFS (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis.

Australian patients use the terms [[Chronic Fatigue Syndrome]], [[ME/CFS]], CFS/ME, [[Myalgic Encephalomyelitis]] or immune dysfunction illness.

==Medical guidelines==

The current Australian guidelines are used by NHMRC fellowship recipient Prof Andrew Lloyd, who sits on the review committees for NHMRC grant applications.<ref name="#MEACTION20160120ahd"/>

[[Emerge Australia]] is in the process of recommending new clinical guidelines to replace the outdated Australian guidelines.<ref>reference needed</ref>

Patients are lobbying for use the [[International Consensus Criteria]] here [http://www.meaction.net/2016/03/10/australia-write-your-own-letter-to-a-politician/ Write your own letter to a political] and here [http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/ Ask the NHMRC to fund studies]

===Patient groups===

The [[International Consensus Primer]] is listed by all organisations, except Western Australia's ME/CFS/Lyme Association, which lists the [[Canadian Consensus Criteria]].

One of the NSW websites lists the [International Consensus Primer]] , [[IACFS/ME Clinical Primer]]<ref name="IACFSME2014primer"/>, the [[2006 Paediatric Criteria]]<ref name="JasonL2006paed"/>, and the [[South Australian ME/CFS Guidelines]]<ref name="SthAustGuidelines"/> but is not clear on which one it endorses.

Some state organisations, [[NCNED]] and some patients are lobbying<ref name="#MEACTION20160314amrc"/> for the 2002 RACP Australian guidelines<ref name="RACP2002"/> to be replaced with the [[International Consensus Criteria]].

===Australian medical associations===
*The Royal Australasian College of Physicians (RACP) published guidelines in 2002, in the Australian Medical Journal.<ref name="RACP2002"/>
*The Royal Australasian College of General Practitioners (RACGP) published a guideline in 2015 which recommends [[Graded Exercise Therapy]].<ref name="RACGP2015guide"/> Their magazine Australian Family Practitioner (AFP) has published articles about [[ME/CFS]],<ref name="AFPlist"/> including a 2013 article that recommends [[Graded Exercise Therapy]] and [[Cognitive Behavioural Therapy]].<ref name="AFP201304"/>
*The Australian Medical Association (AMA) website recommends [[Graded Exercise Therapy]].<ref name="AMA20040503"/>

===National health department===
* [http://health.gov.au Department of Health]
* [http://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs Direct information page on CFS from Department of Health]

===National Health and Medical Research Council===
The [http://nhmrc.gov.au NHMRC] funds health and medical research, and develops health advice & guidelines. It is part of the Australian Department of Health.

===State and territory health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] - information for the public
* ACT
* NSW
* South Australia
* Northern Territory
* Queensland
* Tasmania
* Western Australia

==Health insurance==

===Government health insurance===
The Australian government subsidises most medical appointments, some hospital services, and some medications.
*[https://www.humanservices.gov.au/customer/dhs/medicare Medicare]
*[https://www.humanservices.gov.au/customer/services/medicare/medicare-safety-net Medicare Safety Net]
*[http://www.pbs.gov.au/info/about-the-pbs Pharmaceutical Benefits Scheme]

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
((How many hospitals & doctors, which diagnose and treat ME (estimate):))
((Rehabilitation offers for ME sufferers: ))

==Patient groups==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==

===Notable studies===
*[https://www.dovepress.com/articles.php?article_id=26236 Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome (2016)]

===Research results===
*2016: [http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/ Australian Breakthrough on Diagnostic Blood Test]<ref name="#MEACTION20160303test"/>
*2015: [http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/ Australian Research into ME/CFS in Adolescents]<ref name="#MEACTION20150819arma"/>

===Research funding===
*2016: [http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Dept Pins its Hopes on NIH Research]<ref name="#MEACTION20160212ahd"/>
*2016: [http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/ The Australian Health Department Answers Questions on ME]<ref name="#MEACTION20160120ahd"/>
*2015: [http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/ Australian Senator Questions Government on Lack of Action on ME]<ref name="#MEACTION20151116asqg"/>

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="IACFSME2014primer">{{citation
| last1 = International Association for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (IACFS/ME)
| last2 = Friedberg | first2 = Fred | authorlink2 = Fred Friedberg
| last3 = Bateman | first3 = Lucinda | authorlink3 = Lucinda Bateman
| last4 = Bested | first4 = Alison C | authorlink4 = Alison C Bested
| last5 = Davenport | first5 = Todd | authorlink5 = Todd Davenport
| last6 = Friedman | first6 = Kenneth J | authorlink6 = Kenneth J Friedman
| last7 = Gurwitt | first7 = Alan Gurwitt | authorlink7 = Alan Gurwitt
| last8 = Jason | first8 = Leonard A | authorlink8 = Leonard A Jason
| last9 = Lapp | first9 = Charles W | authorlink9 = Charles W Lapp
| last10 = Stevens | first10= Staci R | authorlink10= Staci R Stevens
| last11 = Underhill | first11= Rosemary A | authorlink11= Rosemary A Underhill
| last12 = Vallings | first12= Rosamund | authorlink12= Rosamund Vallings
| title = 2014 Primer for Clinical Practitioners (CFS/ME)
| journal = IACFS/ME
| date = Jul 2014
| url = http://iacfsme.org/portals/0/pdf/Primer_Post_2014_conference.pdf
}}</ref>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= B Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David S Bell
| last14 = Carlo-Stella | first14= N | authorlink14= N Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= A Darragh
| last17 = Jo | first17= D | authorlink17= D Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald P Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan R Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= I Mena
| last22 = Mikovits | first22= I | authorlink22= I Mikovits
| last23 = Miwa | first23= K | authorlink23= K Miwa
| last24 = Murovska | first24= M | authorlink24= M Murovska
| last25 = Pall | first25= M L | authorlink25= M L Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci R Stevens
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = 270 | issue = 4 | page = 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

<ref name="JasonL2006paed">{{citation
| last1 = Jason | first1 = Leonard A | authorlink1 = Leonard A Jason
| last2 = Jordan | first2 = Karen | authorlink2 = Karen Jordan
| last3 = Miike | first3 = Teruhisa | authorlink3 = Teruhisa Miike
| last4 = Bell | first4 = David S | authorlink4 = David S Bell
| last5 = Lapp | first5 = Charles | authorlink5 = Charles Lapp
| last6 = Torres-Harding | first6 = Susan | authorlink6 = Susan Torres-Harding
| last7 = Rowe | first7 = Kathy | authorlink7 = Kathy Rowe
| last8 = Gurwitt | first8 = Alan | authorlink8 = Alan Gurwitt
| last9 = De Meirleir | first9 = Kenny | authorlink9 = Kenny De Meirleir
| last10 = Van Hoof | first10= Elke LS | authorlink10= Elke LS Van Hoof
| title = A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
| journal = Journal of Chronic Fatigue Syndrome | volume = 13 | issue = 2-3 | page = 1-44
| date = 2006
| doi = 10.1300/J092v13n02_01
| url = http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01
}}</ref>

<ref name="#MEACTION20150819arma">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Research into ME/CFS in Adolescents
| journal = #MEAction
| date = 19 Aug 2015
| url = http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
}}</ref>

<ref name="#MEACTION20151116asqg">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Senator Questions Government on Lack of Action on ME
| journal = #MEAction
| date = 16 Nov 2015
| url = http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
}}</ref>

<ref name="#MEACTION20160120ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Answers Questions on ME
| journal = #MEAction
| date = 20 Jan 2016
| url = http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
}}</ref>

<ref name="#MEACTION20160212ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Pins its Hopes on NIH Research
| journal = #MEAction
| date = 12 Feb 2016
| url = http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/
}}</ref>

<ref name="#MEACTION20160303test">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Breakthrough on Diagnostic Blood Test
| journal = #MEAction
| date = 3 Mar 2016
| url = http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
}}</ref>

<ref name="#MEACTION20160314amrc">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australians: Ask the Medical Research Council to Fund Studies
| journal = #MEAction
| date = 14 Mar 2016
| url = http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/
}}</ref>

<ref name="SthAustGuidelines">{{citation
| last1 = South Australian Department of Human Services
| last2 = University of Adelaide
| last3 = ME/CFS Society of South Australia
| title = ME/CFS Guidelines: Management Guidelines for General Practitioners
| date = 2004
| ISBN = 0 7308 9334 0
| url = http://sacfs.asn.au/download/guidelines.pdf
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

<ref name="RACP2002">{{citation
| author1 = Victoria Toulkidis
| author2 = Produced by a Working Group convened under the auspices of the Royal Australasian College of Physicians
| display-authors = 1
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="RACGP2015guide">{{citation
| author = Royal Australasian College of General Practitioners (RACGP)
| title = Graded exercise therapy: chronic fatigue syndrome
| date = Mar 2015
| url = http://www.racgp.org.au/your-practice/guidelines/handi/interventions/other/graded-exercise-therapy-for-chronic-fatigue-syndrome/
}}</ref>
<ref name="AFPlist">{{citation
| journal = Australian Family Physician
| title = articles about Chronic Fatigue Syndrome
| url = http://www.racgp.org.au/search/
}}</ref>
<ref name="AFP201304">{{citation
| author = Megan Arroll, Bruce Arroll
| title = Chronic fatigue syndrome: A patient centred approach to management
| journal = Australian Family Practitioner
| date = Apr 2013
| url = http://www.racgp.org.au/afp/2013/april/chronic-fatigue-syndrome/
}}</ref>
<ref name="AMA20040503">{{citation
| author = Australian Medical Association
| title = Chronic fatigue sufferers beat blues with exercise
| date = 3 May 2004
| url = https://ama.com.au/media/chronic-fatigue-sufferers-beat-blues-exercise
}}</ref>

Australia

2016-03-25T01:24:18Z

Simone:/* Medical guidelines */ fixed internal link

[[File:Australia-flag.jpg|250px|right]]

There are estimated to be between 92,000 and 598,000 people in Australia with [[ME and CFS]] (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis. Most Australian patients prefer to use the term [[ME/CFS]], and some patients feel strongly that the most recent [[International Consensus Criteria]] should be followed and the name [[Myalgic Encephalomyelitis]] should be used.

==Medical guidelines==
Patient organisations in South Australia, NSW, Victoria, ACT, Northern Territory and Tasmania endorse the [[International Consensus Criteria]] and [[Canadian Consensus Criteria]]. (see 'Patient Organisations' below for the list of websites).

State organisations, [[NCNED]] and patients are lobbying<ref>http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/</ref> for the 2002 Australian guidelines<ref name="MJA2002"/> to be replaced with the [http://iacfsme.org/portals/0/pdf/Primer_Post_2014_conference.pdf ICFSME Primer for Clinical Practitioners - 2014 edition], and for the adoption of either the [[Canadian Consensus Criteria]] or [[International Consensus Criteria]]. The current Australian guidelines are used by NHMRC fellowship recipient Prof Andrew Lloyd, who also judges NHMRC grant applications.<ref>http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/</ref> [[Emerge Australia]] is in the process of developing new clinical guidelines to replace the outdated Australian guidelines.

http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/

===Australian Medical Association (AMA) ===
The AMA's website includes the 2002 Australian guidelines<ref name="MJA2002"/>, which were produced by the RACGP.

===National health department===
* http://health.gov.au

===National Health and Medical Research Council===
* http://nhmrc.gov.au which is part of the Australian Department of Health.

===State health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] for the public

==Health insurance==
===Government health insurance===
Medicare https://www.humanservices.gov.au/customer/dhs/medicare

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
How many hospitals & doctors, which diagnose and treat ME (estimate):
Rehabilitation offers for ME sufferers:

==Patient organisations==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==
http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
===Research funding===
http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= B Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David S Bell
| last14 = Carlo-Stella | first14= N | authorlink14= N Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= A Darragh
| last17 = Jo | first17= D | authorlink17= D Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald P Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan R Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= I Mena
| last22 = Mikovits | first22= I | authorlink22= I Mikovits
| last23 = Miwa | first23= K | authorlink23= K Miwa
| last24 = Murovska | first24= M | authorlink24= M Murovska
| last25 = Pall | first25= M L | authorlink25= M L Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci R Stevens
| display-authors = 26
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = Volume 270, Issue 4 | page = pages 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

<ref name="MJA2002">{{citation
| author = Victoria Toulkidis, et al
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

Australia

2016-03-25T01:23:30Z

Simone:typo

[[File:Australia-flag.jpg|250px|right]]

There are estimated to be between 92,000 and 598,000 people in Australia with [[ME and CFS]] (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis. Most Australian patients prefer to use the term [[ME/CFS]], and some patients feel strongly that the most recent [[International Consensus Criteria]] should be followed and the name [[Myalgic Encephalomyelitis]] should be used.

==Medical guidelines==
Patient organisations in South Australia, NSW, Victoria, ACT, Northern Territory and Tasmania endorse the [[International Consensus Criteria]] and [[Canadian Consensus Criteria]]. (see 'Patient Organisations' below for the list of websites).

State organisations, [[NCNED]] and patients are lobbying<ref>http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/</ref> for the 2002 Australian guidelines<ref name="MJA2002"/> to be replaced with the [http://iacfsme.org/portals/0/pdf/Primer_Post_2014_conference.pdf ICFSME Primer for Clinical Practitioners - 2014 edition], and for the adoption of either the [[Canadian Consensus Criteria]] or [[International Consensus Criteria]]. The current Australian guidelines are used by NHMRC fellowship recipient Prof Andrew Lloyd, who also judges NHMRC grant applications.<ref>http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/</ref> [Emerge Australia] is in the process of developing new clinical guidelines to replace the outdated Australian guidelines.

http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/

===Australian Medical Association (AMA) ===
The AMA's website includes the 2002 Australian guidelines<ref name="MJA2002"/>, which were produced by the RACGP.

===National health department===
* http://health.gov.au

===National Health and Medical Research Council===
* http://nhmrc.gov.au which is part of the Australian Department of Health.

===State health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] for the public

==Health insurance==
===Government health insurance===
Medicare https://www.humanservices.gov.au/customer/dhs/medicare

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
How many hospitals & doctors, which diagnose and treat ME (estimate):
Rehabilitation offers for ME sufferers:

==Patient organisations==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==
http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
===Research funding===
http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= B Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David S Bell
| last14 = Carlo-Stella | first14= N | authorlink14= N Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= A Darragh
| last17 = Jo | first17= D | authorlink17= D Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald P Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan R Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= I Mena
| last22 = Mikovits | first22= I | authorlink22= I Mikovits
| last23 = Miwa | first23= K | authorlink23= K Miwa
| last24 = Murovska | first24= M | authorlink24= M Murovska
| last25 = Pall | first25= M L | authorlink25= M L Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci R Stevens
| display-authors = 26
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = Volume 270, Issue 4 | page = pages 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

<ref name="MJA2002">{{citation
| author = Victoria Toulkidis, et al
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

Australia

2016-03-25T00:23:39Z

Simone:Internal link

[[File:Australia-flag.jpg|250px|right]]

There are estimated to be between 92,000 and 598,000 people in Australia with [[ME and CFS]] (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis. Most Australian patients prefer to use the term [[ME/CFS]], but some patients feel strongly that the most recent [[International Consensus Criteria]] should be followed and the name [[Myalgic Encephalomyelitis]] should be used.

==Medical guidelines==
Patient organisations in South Australia, NSW, Victoria, ACT, Northern Territory and Tasmania endorse the [[International Consensus Criteria]] and [[Canadian Consensus Criteria]]. (see 'Patient Organisations' below for the list of websites).

State organisations, [[NCNED]] and patients are lobbying<ref>http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/</ref> for the 2002 Australian guidelines<ref name="MJA2002"/> to be replaced with the [http://iacfsme.org/portals/0/pdf/Primer_Post_2014_conference.pdf ICFSME Primer for Clinical Practitioners - 2014 edition], and for the adoption of either the [[Canadian Consensus Criteria]] or [[International Consensus Criteria]]. The current Australian guidelines are used by NHMRC fellowship recipient Prof Andrew Lloyd, who also judges NHMRC grant applications.<ref>http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/</ref> [Emerge Australia] is in the process of developing new clinical guidelines to replace the outdated Australian guidelines.

http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/

===Australian Medical Association (AMA) ===
The AMA's website includes the 2002 Australian guidelines<ref name="MJA2002"/>, which were produced by the RACGP.

===National health department===
* http://health.gov.au

===National Health and Medical Research Council===
* http://nhmrc.gov.au which is part of the Australian Department of Health.

===State health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] for the public

==Health insurance==
===Government health insurance===
Medicare https://www.humanservices.gov.au/customer/dhs/medicare

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
How many hospitals & doctors, which diagnose and treat ME (estimate):
Rehabilitation offers for ME sufferers:

==Patient organisations==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==
http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
===Research funding===
http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= B Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David S Bell
| last14 = Carlo-Stella | first14= N | authorlink14= N Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= A Darragh
| last17 = Jo | first17= D | authorlink17= D Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald P Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan R Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= I Mena
| last22 = Mikovits | first22= I | authorlink22= I Mikovits
| last23 = Miwa | first23= K | authorlink23= K Miwa
| last24 = Murovska | first24= M | authorlink24= M Murovska
| last25 = Pall | first25= M L | authorlink25= M L Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci R Stevens
| display-authors = 26
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = Volume 270, Issue 4 | page = pages 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

<ref name="MJA2002">{{citation
| author = Victoria Toulkidis, et al
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

Australia

2016-03-25T00:16:29Z

Simone:Fixed internal links

[[File:Australia-flag.jpg|250px|right]]

There are estimated to be between 92,000 and 598,000 people in Australia with [[ME and CFS]] (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis. Most Australian patients prefer to use the term [[ME/CFS]], but some patients feel strongly that the most recent [[International Consensus Criteria]] should be followed and the name [[Myalgic Encephalomyelitis]] should be used.

==Medical guidelines==
Patient organisations in South Australia, NSW, Victoria, ACT, Northern Territory and Tasmania endorse the [[International Consensus Criteria]] and [[Canadian Consensus Criteria]]. (see 'Patient Organisations' below for the list of websites).

State organisations, [[NCNED]] and patients are lobbying<ref>http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/</ref> for the 2002 Australian guidelines<ref name="MJA2002"/> to be replaced with the [http://iacfsme.org/portals/0/pdf/Primer_Post_2014_conference.pdf ICFSME Primer for Clinical Practitioners - 2014 edition], and for the adoption of either the [[Canadian Consensus Criteria]] or [[International Consensus Criteria]]. The current Australian guidelines are used by NHMRC fellowship recipient Prof Andrew Lloyd, who also judges NHMRC grant applications. (http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/)

http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/

===Australian Medical Association (AMA) ===
The AMA's website includes the 2002 Australian guidelines<ref name="MJA2002"/>, which were produced by the RACGP.

===National health department===
* http://health.gov.au

===National Health and Medical Research Council===
* http://nhmrc.gov.au which is part of the Australian Department of Health.

===State health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] for the public

==Health insurance==
===Government health insurance===
Medicare https://www.humanservices.gov.au/customer/dhs/medicare

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
How many hospitals & doctors, which diagnose and treat ME (estimate):
Rehabilitation offers for ME sufferers:

==Patient organisations==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==
http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
===Research funding===
http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= B Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David S Bell
| last14 = Carlo-Stella | first14= N | authorlink14= N Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= A Darragh
| last17 = Jo | first17= D | authorlink17= D Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald P Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan R Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= I Mena
| last22 = Mikovits | first22= I | authorlink22= I Mikovits
| last23 = Miwa | first23= K | authorlink23= K Miwa
| last24 = Murovska | first24= M | authorlink24= M Murovska
| last25 = Pall | first25= M L | authorlink25= M L Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci R Stevens
| display-authors = 26
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = Volume 270, Issue 4 | page = pages 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

<ref name="MJA2002">{{citation
| author = Victoria Toulkidis, et al
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

Australia

2016-03-25T00:11:48Z

Simone:Typo

[[File:Australia-flag.jpg|250px|right]]

There are estimated to be between 92,000 and 598,000 people in Australia with [[ME and CFS]] (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis. Most Australian patients prefer to use the term [[ME/CFS]], but some patients feel strongly that the most recent [[International Consensus Criteria]] should be followed and the name [[Myalgic Encephalomyelitis]] should be used.

==Medical guidelines==
Patient organisations in South Australia, NSW, Victoria, ACT, Northern Territory and Tasmania endorse the [[International Consensus Criteria]] and [[Canadian Consensus Criteria]]. (see 'Patient Organisations' below for the list of websites).

State organisations, [[NCNED]] and patients are lobbying<ref>http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/</ref> for the 2002 Australian guidelines<ref name="MJA2002"/> to be replaced with the [http://iacfsme.org/portals/0/pdf/Primer_Post_2014_conference.pdf ICFSME Primer for Clinical Practitioners - 2014 edition], and for the adoption of either the [Canadian Consensus Criteria] or [International Consensus Criteria]. The current Australian guidelines are used by NHMRC fellowship recipient Prof Andrew Lloyd, who also judges NHMRC grant applications. (http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/)

http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/

===Australian Medical Association (AMA) ===
The AMA's website includes the 2002 Australian guidelines<ref name="MJA2002"/>, which were produced by the RACGP.

===National health department===
* http://health.gov.au

===National Health and Medical Research Council===
* http://nhmrc.gov.au which is part of the Australian Department of Health.

===State health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] for the public

==Health insurance==
===Government health insurance===
Medicare https://www.humanservices.gov.au/customer/dhs/medicare

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
How many hospitals & doctors, which diagnose and treat ME (estimate):
Rehabilitation offers for ME sufferers:

==Patient organisations==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==
http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
===Research funding===
http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= B Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David S Bell
| last14 = Carlo-Stella | first14= N | authorlink14= N Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= A Darragh
| last17 = Jo | first17= D | authorlink17= D Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald P Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan R Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= I Mena
| last22 = Mikovits | first22= I | authorlink22= I Mikovits
| last23 = Miwa | first23= K | authorlink23= K Miwa
| last24 = Murovska | first24= M | authorlink24= M Murovska
| last25 = Pall | first25= M L | authorlink25= M L Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci R Stevens
| display-authors = 26
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = Volume 270, Issue 4 | page = pages 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

<ref name="MJA2002">{{citation
| author = Victoria Toulkidis, et al
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

Australia

2016-03-25T00:11:01Z

Simone:Added links

[[File:Australia-flag.jpg|250px|right]]

There are estimated to be between 92,000 and 598,000 people in Australia with [[ME and CFS]] (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis. Most Australian patients prefer to use the term [[ME/CFS]], but some patients feel strongly that the most recent [[International Consensus Criteria]] should be followed and the name [[Myalgic Encephalomyelitis]] should be used.

==Medical guidelines==
Patient organisations in South Australia, NSW, Victoria, ACT, Northern Territory and Tasmania endorse the [[International Consensus Criteria]] and [[Canadian Consensus Criteria]]. (see 'Patient Organisations' below for the list of websites).

State organisations, [[NCNED]] and patients are lobbying<ref>http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/</ref> for the 2002 Australian guidelines<ref name="MJA2002"/> to be replaced with the [http://iacfsme.org/portals/0/pdf/Primer_Post_2014_conference.pdf ICFSME Primer for Clinical Practitioners - 2014 edition], and adopt either the [Canadian Consensus Criteria] or [International Consensus Criteria]. The current Australian guidelines are used by NHMRC fellowship recipient Prof Andrew Lloyd, who also judges NHMRC grant applications. (http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/)

http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/

===Australian Medical Association (AMA) ===
The AMA's website includes the 2002 Australian guidelines<ref name="MJA2002"/>, which were produced by the RACGP.

===National health department===
* http://health.gov.au

===National Health and Medical Research Council===
* http://nhmrc.gov.au which is part of the Australian Department of Health.

===State health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] for the public

==Health insurance==
===Government health insurance===
Medicare https://www.humanservices.gov.au/customer/dhs/medicare

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
How many hospitals & doctors, which diagnose and treat ME (estimate):
Rehabilitation offers for ME sufferers:

==Patient organisations==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==
http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
===Research funding===
http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= B Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David S Bell
| last14 = Carlo-Stella | first14= N | authorlink14= N Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= A Darragh
| last17 = Jo | first17= D | authorlink17= D Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald P Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan R Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= I Mena
| last22 = Mikovits | first22= I | authorlink22= I Mikovits
| last23 = Miwa | first23= K | authorlink23= K Miwa
| last24 = Murovska | first24= M | authorlink24= M Murovska
| last25 = Pall | first25= M L | authorlink25= M L Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci R Stevens
| display-authors = 26
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = Volume 270, Issue 4 | page = pages 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

<ref name="MJA2002">{{citation
| author = Victoria Toulkidis, et al
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

Australia

2016-03-25T00:05:16Z

Simone:Internal link

[[File:Australia-flag.jpg|250px|right]]

There are estimated to be between 92,000 and 598,000 people in Australia with [[ME and CFS]] (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis. Most Australian patients prefer to use the term [[ME/CFS]], but some patients feel strongly that the most recent [[International Consensus Criteria]] should be followed and the name [[Myalgic Encephalomyelitis]] should be used.

==Medical guidelines==
Patient organisations in South Australia, NSW, Victoria, ACT, Northern Territory and Tasmania endorse the [[International Consensus Criteria]] and [[Canadian Consensus Criteria]]. (see 'Patient Organisations' below for the list of websites).

Some state organisations, [[NCNED]] and patients are lobbying<ref>http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/</ref> for the 2012 International Consensus Criteria <ref name="ICC2011criteria"/> to replace the 2002 Australian guidelines<ref name="MJA2002"/>. These guidelines are used by NHMRC fellowship recipient Prof Andrew Lloyd, who also judges NHMRC grant applications (http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/)

http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/

===Australian Medical Association (AMA) ===
The AMA's website includes the 2002 Australian guidelines<ref name="MJA2002"/>, which were produced by the RACGP.

===National health department===
* http://health.gov.au

===National Health and Medical Research Council===
* http://nhmrc.gov.au which is part of the Australian Department of Health.

===State health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] for the public

==Health insurance==
===Government health insurance===
Medicare https://www.humanservices.gov.au/customer/dhs/medicare

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
How many hospitals & doctors, which diagnose and treat ME (estimate):
Rehabilitation offers for ME sufferers:

==Patient organisations==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==
http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
===Research funding===
http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= B Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David S Bell
| last14 = Carlo-Stella | first14= N | authorlink14= N Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= A Darragh
| last17 = Jo | first17= D | authorlink17= D Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald P Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan R Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= I Mena
| last22 = Mikovits | first22= I | authorlink22= I Mikovits
| last23 = Miwa | first23= K | authorlink23= K Miwa
| last24 = Murovska | first24= M | authorlink24= M Murovska
| last25 = Pall | first25= M L | authorlink25= M L Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci R Stevens
| display-authors = 26
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = Volume 270, Issue 4 | page = pages 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

<ref name="MJA2002">{{citation
| author = Victoria Toulkidis, et al
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

Australia

2016-03-25T00:04:40Z

Simone:typo

[[File:Australia-flag.jpg|250px|right]]

There are estimated to be between 92,000 and 598,000 people in Australia with [[ME and CFS]] (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis. Most Australian patients prefer to use the term [[ME/CFS]], but some patients feel strongly that the most recent [[International Consensus Criteria]] should be followed and the name 'Myalgic Encephalomyelitis' should be used.

==Medical guidelines==
Patient organisations in South Australia, NSW, Victoria, ACT, Northern Territory and Tasmania endorse the [[International Consensus Criteria]] and [[Canadian Consensus Criteria]]. (see 'Patient Organisations' below for the list of websites).

Some state organisations, [[NCNED]] and patients are lobbying<ref>http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/</ref> for the 2012 International Consensus Criteria <ref name="ICC2011criteria"/> to replace the 2002 Australian guidelines<ref name="MJA2002"/>. These guidelines are used by NHMRC fellowship recipient Prof Andrew Lloyd, who also judges NHMRC grant applications (http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/)

http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/

===Australian Medical Association (AMA) ===
The AMA's website includes the 2002 Australian guidelines<ref name="MJA2002"/>, which were produced by the RACGP.

===National health department===
* http://health.gov.au

===National Health and Medical Research Council===
* http://nhmrc.gov.au which is part of the Australian Department of Health.

===State health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] for the public

==Health insurance==
===Government health insurance===
Medicare https://www.humanservices.gov.au/customer/dhs/medicare

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
How many hospitals & doctors, which diagnose and treat ME (estimate):
Rehabilitation offers for ME sufferers:

==Patient organisations==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==
http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
===Research funding===
http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= B Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David S Bell
| last14 = Carlo-Stella | first14= N | authorlink14= N Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= A Darragh
| last17 = Jo | first17= D | authorlink17= D Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald P Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan R Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= I Mena
| last22 = Mikovits | first22= I | authorlink22= I Mikovits
| last23 = Miwa | first23= K | authorlink23= K Miwa
| last24 = Murovska | first24= M | authorlink24= M Murovska
| last25 = Pall | first25= M L | authorlink25= M L Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci R Stevens
| display-authors = 26
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = Volume 270, Issue 4 | page = pages 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

<ref name="MJA2002">{{citation
| author = Victoria Toulkidis, et al
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

Australia

2016-03-25T00:04:01Z

Simone:Internal links

[[File:Australia-flag.jpg|250px|right]]

There are estimated to be between 92,000 and 598,000 people in Australia with [[ME and CFS]] (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis. Most patients prefer to use the term [[ME/CFS]], but some patients feel strongly that the most recent [[International Consensus Criteria]] should be followed and the name 'Myalgic Encephalomyelitis' should be used.

==Medical guidelines==
Patient organisations in South Australia, NSW, Victoria, ACT, Northern Territory and Tasmania endorse the [[International Consensus Criteria]] and [[Canadian Consensus Criteria]]. (see 'Patient Organisations' below for the list of websites).

Some state organisations, [[NCNED]] and patients are lobbying<ref>http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/</ref> for the 2012 International Consensus Criteria <ref name="ICC2011criteria"/> to replace the 2002 Australian guidelines<ref name="MJA2002"/>. These guidelines are used by NHMRC fellowship recipient Prof Andrew Lloyd, who also judges NHMRC grant applications (http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/)

http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/

===Australian Medical Association (AMA) ===
The AMA's website includes the 2002 Australian guidelines<ref name="MJA2002"/>, which were produced by the RACGP.

===National health department===
* http://health.gov.au

===National Health and Medical Research Council===
* http://nhmrc.gov.au which is part of the Australian Department of Health.

===State health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] for the public

==Health insurance==
===Government health insurance===
Medicare https://www.humanservices.gov.au/customer/dhs/medicare

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
How many hospitals & doctors, which diagnose and treat ME (estimate):
Rehabilitation offers for ME sufferers:

==Patient organisations==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==
http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
===Research funding===
http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= B Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David S Bell
| last14 = Carlo-Stella | first14= N | authorlink14= N Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= A Darragh
| last17 = Jo | first17= D | authorlink17= D Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald P Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan R Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= I Mena
| last22 = Mikovits | first22= I | authorlink22= I Mikovits
| last23 = Miwa | first23= K | authorlink23= K Miwa
| last24 = Murovska | first24= M | authorlink24= M Murovska
| last25 = Pall | first25= M L | authorlink25= M L Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci R Stevens
| display-authors = 26
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = Volume 270, Issue 4 | page = pages 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

<ref name="MJA2002">{{citation
| author = Victoria Toulkidis, et al
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

Australia

2016-03-25T00:02:13Z

Simone:Internal links

[[File:Australia-flag.jpg|250px|right]]

There are estimated to be between 92,000 and 598,000 people in Australia with [[ME and CFS]] (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis. Most patients prefer to use the term [[ME/CFS]], but some patients feel strongly that the most recent International Consensus Criteria should be followed and the name 'Myalgic Encephalomyelitis' should be used.

==Medical guidelines==
Patient organisations in South Australia, NSW, Victoria, ACT, Northern Territory and Tasmania endorse the [[International Consensus Criteria]] and [[Canadian Consensus Criteria]]. (see 'Patient Organisations' below for the list of websites).

Some state organisations, [[NCNED]] and patients are lobbying<ref>http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/</ref> for the 2012 International Consensus Criteria <ref name="ICC2011criteria"/> to replace the 2002 Australian guidelines<ref name="MJA2002"/>. These guidelines are used by NHMRC fellowship recipient Prof Andrew Lloyd, who also judges NHMRC grant applications (http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/)

http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/

===Australian Medical Association (AMA) ===
The AMA's website includes the 2002 Australian guidelines<ref name="MJA2002"/>, which were produced by the RACGP.

===National health department===
* http://health.gov.au

===National Health and Medical Research Council===
* http://nhmrc.gov.au which is part of the Australian Department of Health.

===State health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] for the public

==Health insurance==
===Government health insurance===
Medicare https://www.humanservices.gov.au/customer/dhs/medicare

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
How many hospitals & doctors, which diagnose and treat ME (estimate):
Rehabilitation offers for ME sufferers:

==Patient organisations==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==
http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
===Research funding===
http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= B Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David S Bell
| last14 = Carlo-Stella | first14= N | authorlink14= N Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= A Darragh
| last17 = Jo | first17= D | authorlink17= D Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald P Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan R Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= I Mena
| last22 = Mikovits | first22= I | authorlink22= I Mikovits
| last23 = Miwa | first23= K | authorlink23= K Miwa
| last24 = Murovska | first24= M | authorlink24= M Murovska
| last25 = Pall | first25= M L | authorlink25= M L Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci R Stevens
| display-authors = 26
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = Volume 270, Issue 4 | page = pages 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

<ref name="MJA2002">{{citation
| author = Victoria Toulkidis, et al
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>

<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>

MEpedia:Suggested tasks

2016-03-24T12:31:21Z

Simone:Moved Fukuda criteria to Completed

This page lists suggestions for improvements or additions to MEpedia.

PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''.

Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).

If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].

=Suggestions - Five Minute Tasks=
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''

*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. *https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/
*Add http://www.statnews.com/2015/12/23/sharing-data-science/
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385
*Add http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf
*Add https://pubpeer.com/publications/22870204
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf
*Add Racianello http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/
*Add https://twitter.com/bengoldacre/status/679228319234195456
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1
*Add https://twitter.com/EUROMEALL
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf
*Add https://twitter.com/TomKindlon/status/677173627532402688
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html
*Add new James Coyne article criticising Cochrane to his page, PACE page & Cochrane page https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/
*Make sure James Coyne's Belfast talk video is included on his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract
*Add a link to this discussion between Elizabeth Dowsett & Peter White to their respective pages https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html
*Make sure the IOM report page incliudes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736%2811%2960696-X/fulltext
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.

=Suggestions - High Priority=
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''

* Add categories for all main page entries (in preparation for move to use category listing extension)
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)

* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here

=Suggestions=
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''

*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation
*Pick a member of the IOM report committee and ensure we have a page on who they are

==Implement acronyms as a category==
http://me-pedia.org/wiki/List_of_acronyms

==Stem cell treatments==

Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)

==Treatments==

A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)

==Basic biochemistry==

* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)

==Infectious disease==

New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Look over the original study and add new information to [[Epstein-Barr virus]] page. Consider also updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)

=Completed=
'''When a task is complete move it HERE'''

*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html

[[Category:User to-dos]]

Fukuda criteria

2016-03-24T12:30:02Z

Simone:/* Read more */ added link to criteria

The '''Fukuda criteria''' (or CDC critera) are a criteria for the diagnosis [[Chronic Fatigue Syndrome]] published in 1994. It has been widely used in research.

== Definition ==

The concurrent occurrence of four or more of the following symptoms:

* substantial impairment in short-term memory or concentration;
* sore throat;
* tender lymph nodes;
* muscle pain;
* multi-joint pain without swelling or redness;
* headaches of a new type, pattern, or severity;
* unrefreshing sleep; and
* post-exertional malaise lasting more than 24 hours.

These symptoms must have persisted or recurred during 6 or more consecutive months of illness and must not have predated the fatigue.

== Questionnaire ==

PDF By: IACFSME

Criteria, Exclusions and Severity.<ref>[http://www.iacfsme.org/Portals/0/pdf/kingquestionnaire.scoring.pdf PDF Questionaire - IACFSME.org]</ref>

==Criticisms==
*[[Post-exertional malaise]] is not mandatory.(Most US researchers do use PEM option.)
*Doctors and researchers not using PEM option have misdiagnosed Chronic Fatigue (CF) patients with Chronic Fatigue Syndrome ([[CFS]]).<ref>[https://voat.co/v/CFS/comments/254402 Chronic Fatigue is NOT Chronic Fatigue Syndrome - VOAT]</ref>
*In research, if PEM option is not used the study is not considered by patients and many researchers to be a true CFS study; it is considered to be a (CF) study. Or both CFS and CF patients are in a CFS study as some patients have PEM and other patients do not making the study severely flawed and useless to either CFS or CF research.
*It is not easy to use on a clinical level as it was created for research. It can take several specialists and years to diagnose a patient.
*Dual diagnosis is not always possible and this is not useful in a clinical setting. (i.e., AIDS + CFS or MS + CFS.)
*Leads to confusion over Chronic Fatigue (a symptom of many illness, depression, diseases, medications) and Chronic Fatigue Syndrome (a grossly misnamed disease.)<ref>[http://arthritis.about.com/od/fatigue/f/chronicfatigue.htm Chronic Fatigue Versus Chronic Fatigue Syndrome - About.com Health - By: Carol Eustice]</ref>

==Read more==

*[http://www.cfids-me.org/cdcdefine.html Fukuda criteria]
*[http://www.cdc.gov/cfs/diagnosis/index.html CDC criteria]

== References ==

<references>

[[Category:Definitions]]

Exercise

2016-03-23T13:27:51Z

Simone:X

== Evidence for graded exercise ==

{{main|Graded exercise therapy}}

==Exercise and the immune system==

In healthy people, exercise induces a variety of temporary changes to immune markers. Immediately after exercise, [[natural killer cell]] activity is decreased and [[Leukotriene]] B4 (LTB4) increase, along with the LTB4/PGE2 ratio. Exercise elevates levels of [[prostaglandin]] E2 (PGE2) for up to five days.<ref name="GrayJB1994"/>

== Effects of exercise in Chronic Fatigue Syndrome ==

===Post Exertional Malaise===
ME/CFS patients who exercise are likely to experience [[Post-exertional malaise]].

===Microbiome===

A small study of ten CFS patients found significant changes in the composition of the [[microbiome]] and increased bacterial translocation (movement from the [[intestine]] into the [[blood|bloodstream]] following exercise. In the blood, the study found increased ''[[Clostridium]]'' fifteen minutes after exercise and increased ''[[Bacilli]]'' 48 hours later.<ref name="ShuklaS2015"/>

=== Musculature ===

Exercise has also been found to induce both early and excessive lactic acid formation in the [[muscle fatigability|muscles]]<ref name="Plioplys1995"/> with reduced intracellular concentrations of [[ATP]] and acceleration of [[glycolysis]].<ref name="McCully1996"/> Several studies have found abnormal increases in plasma lactate following short period of moderate exercise that cannot be explained by [[deconditioning]].<ref name="LaneRJ1998"/>

There is evidence of loss of capacity to recover from acidosis on repeat exercise.<ref name="JonesDE2012"/>

There is evidence of abnormalities of [[AMPK]] activation and glucose uptake in cultured skeletal muscle cells in ME/CFS patients.<ref name="BrownAE2015"/><ref name="Wellness20150420"/>

There is evidence of Abnormalities in pH handling by peripheral muscle.<ref name="JonesDE2010"/>

Possible evidence of an increased acidosis and lactate accumulation.<ref name="LengertN2015"/>

=== Gene expression ===

There is evidence of increased [[gene expression]] following muscular exertion.<ref name="LightAR2009"/><ref name="WhiteAT2012"/>

=== Second day exercise test ===
The seminal study on the response by CFS patients to a 2-day cardiopulmonary exercise test was published by J. Mark Van Ness, Christopher R. Snell & Staci R. Stevens in 2007: "Diminished Cardiopulmonary Capacity During Post-Exertional Malaise"<ref name="VanNess2007"/> A repeat study in 2013 confirmed these results.<ref name="SnellCR2013"/>

In a confirmation study, Doctor [[Betsy Keller]] found that patients could not repeat their performance on a second cardiopulmonary exercise test performed a day after the first.<ref name="KellerBA2014"/>

== Examples of clinical recommendations ==

While there has been no research on physical therapy alternatives to graded exercise, and many patients find it harmful, many clinicians recommend some exercise or strength training for patients who are able.

===Dr [[Sarah Myhill]]===
Dr Myhill recommends patients who are well enough engage in strength training, specifically [[Body by Science]] created by Dr Doug McGuff and John Little. "If muscle strength is correctly developed, this automatically translates into cardiovascular fitness and increased numbers of mitochondria". Dr Myhill has a page on her web site [http://www.drmyhill.co.uk/wiki/Exercise_-_the_right_sort detailing her recommendations]<ref name="MyhillExercise"/>.

===Dr. [[Lucinda Bateman]]===
Dr Bateman encourages her patients to find a way to exercise: "we try to focus on maintaining or improving muscle strength, flexibility and also bit of cardiovascular exercise". She discusses exercise and gene expression in [https://www.youtube.com/watch?v=F1PP21TmUPs an interview]<ref name="Bateman20151103interview"/>.

===Dr. [[Nancy Klimas]]===
Dr Klimas recommends patients engage in exercise or movement without exceeding a certain heart rate, a proxy for an individual's [[anaerobic threshold]], as established by a [[Cardiopulmonary exercise test|VO2 max test]].<ref name="Klimas20110724phoenix"/>

===[[Workwell Foundation]]===
[[Workwell Foundation]], which specialises in [[two-day cardiopulmonary exercise testing]] ([[CPET]]), recommends short periods (eg: 30 seconds) of analeptic exercise, with periods of rest which are 3-6 times longer than the period of exercise. The amount of exercise that the individual undertakes should be guided by VO2 max testing (or a safe heart rate threshold (generally 60% of maximum heart rate)), and the use of a heart rate monitor (both during exercise and to help with [[pacing]]) is recommended to ensure that the individual doesn't exceed their capacity. The Foundation also advises against aerobic exercise for people with [[ME/CFS]].<ref name="Workwell201404rae"/><ref name="Workwell201404wwodwo"/><ref name="Workwell201512foar"/>

This approach to exercise differs from [[Graded Exercise Therapy]] ([[GET]]) in several important ways:
*There is no claim that the exercise program will cure the condition. The aim is to increase functional strength and flexibility, and to improve quality of life<ref name="Workwell201404wwodwo"/>
*This program is based on a deep understanding of [[Post-exertional malaise]] ([[PEM]]), and the importance of staying within the [[energy envelope]] in order to not trigger [[PEM]]<ref name="Workwell201404rae"/>
*There is a recognition that any approach to exercise with people with [[ME/CFS]] must be carefully tailored to the individual. There is no one-size fits all<ref name="Workwell201404wwodwo"/>
*This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual<ref name="Workwell201512foar"/>

===UK NICE Guidelines===
British patient [[Sally Burch]] has written about the The UK [[National Institute for Health and Care Excellence]] (NICE) guidelines on maintaining a lower heart rate.<ref name="BurchS20151114slideshow"/>

==Talks & Interviews==
*2014, [https://www.youtube.com/watch?v=q_cnva7zyKM Mark VanNess 'Exercise and ME/CFS' at Bristol Watershed. Part One]<ref name="VanNess20140205video"/>

==Learn more==
*2016, [http://www.hindawi.com/journals/jar/2016/2497348/ Review Article: Understanding Muscle Dysfunction in Chronic Fatigue Syndrome]<ref name="RutherfordG2016"/>
*2016, [http://www.prohealth.com/library/showarticle.cfm?libid=25096 Lost in Translation - The ME-Polio Connection and the Dangers of Exercise]<ref name="ProHealth20160210"/>
*2015, [http://sallyjustme.blogspot.co.uk/2015/01/dr-vanness-on-recent-press-reports.html Dr VanNess on recent press reports] ([[Mark VanNess]], January)<ref name="BurchS20150117"/>
*2015, [http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf Deviant Cellular and Physiological Responses to Exercise in Myalgic Encephalomyelitis and Chronic Fatigue Syndrome] <ref name="TwiskF2015"/>
*2014, [http://www.deseretnews.com/article/865603384/Sufferers-of-chronic-fatigue-fibromyalgia-have-hope-in-new-diagnostic-tool.html Sufferers of chronic fatigue, fibromyalgia have hope in new diagnostic tool]<ref name="DeseretNews20140516"/>

== See also ==
*[[Cardiopulmonary exercise test]]
*[[Two day exercise test]]
*[[Graded exercise therapy]]
*[[Muscle fatigability]]
*[[Mitochondria]]
*[[Post-exertional malaise]]
*[[Cochrane]]
*[[PACE trial]]

==References==
<references>

<ref name="Bateman20151103interview">{{citation
| last1 = Bateman | first1 = Lucinda | authorlink1 = Lucinda Bateman
| display-authors = 1
| title = Video interview: Gene-expression and exercise
| journal = Wetenschap voor Patienten - ME/cvs Vereniging
| date = 3 Nov 2015
| url = https://www.youtube.com/watch?v=F1PP21TmUPs
}}</ref>

<ref name="BrownAE2015">{{citation
| last1 = Brown | first1 = Audrey E | authorlink1 = Audrey E Brown
| last2 = Jones | first2 = David E | authorlink2 = David E Jones
| last3 = Walker | first3 = Mark | authorlink3 = Mark Walker
| last4 = Newton | first4 = Julia L | authorlink4 = Julia L Newton
| display-authors = 4
| title = Abnormalities of AMPK activation and glucose uptake in cultured skeletal muscle cells
| journal = PLoS One | volume = 10 | issue = 4
| date = 2 Apr 2015
| pmid = 25836975 | doi = 10.1371/journal.pone.0122982
| url = http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0122982
}}</ref>

<ref name="BurchS20150117">{{citation
| last1 = Burch | first1 = Sally | authorlink1 = Sally Burch
| last2 = Van Ness | first2 = J Mark | authorlink2 = Mark Van Ness
| display-authors = 2
| title = Dr Van Ness on recent press reports
| date = 17 Jan 2015
| url = http://sallyjustme.blogspot.co.uk/2015/01/dr-vanness-on-recent-press-reports.html
}}</ref>

<ref name="BurchS20151114slideshow">{{citation
| last1 = Burch | first1 = Sally | authorlink1 = Sally Burch
| display-authors = 1
| title = Slideshow: Heart rate monitoring and NICE guideline for ME
| date = 14 Nov 2015
| url = http://www.slideshare.net/SallyBurch/heart-rate-monitoring-and-nice-guideline-for-me
}}</ref>

<ref name="DeseretNews20140516">{{citation
| author = Deseret News
| display-authors = 1
| title = Sufferers of chronic fatigue, fibromyalgia have hope in new diagnostic tool
| date = 16 May 2014
| url = http://www.deseretnews.com/article/865603384/Sufferers-of-chronic-fatigue-fibromyalgia-have-hope-in-new-diagnostic-tool.html
}}</ref>

<ref name="GrayJB1994">{{citation
| last1 = Gray | first1 = J B | authorlink1 = J B Gray
| last2 = Martinovic | first2 = A M | authorlink2 = A M Martinovic
| display-authors = 2
| title = Eicosanoids and essential fatty acid modulation in chronic disease and the chronic fatigue syndrome
| journal = Medical Hypotheses | volume = 43 | issue = 1 | page = 31–42
| date = Jul 1994
| pmid = 7968718 | doi = 10.1016/0306-9877(94)90046-9
| url = http://www.sciencedirect.com/science/article/pii/0306987794900469
}}</ref>

<ref name="JonesDE2010">{{citation
| last1 = Jones | first1 = David EJ | authorlink1 = David E Jones
| last2 = Hollingsworth | first2 = Kieren G | authorlink2 = Kieren G Hollingsworth
| last3 = Taylor | first3 = R | authorlink3 = R Taylor
| last4 = Blamire | first4 = Andrew M | authorlink4 = Andrew M Blamire
| last5 = Newton | first5 = Julia L | authorlink5 = Julia L Newton
| display-authors = 5
| title = Abnormalities in pH handling by peripheral muscle and potential regulation by the autonomic nervous system in chronic fatigue syndrome
| journal = J Intern Med | volume = 267 | issue = 4 | page = 394-401
| date = Apr 2010
| pmid = 20433583 | doi = 10.1111/j.1365-2796.2009.02160.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2009.02160.x/abstract
}}</ref>

<ref name="JonesDE2012">{{citation
| last1 = Jones | first1 = David EJ | authorlink1 = David E Jones
| last2 = Hollingsworth | first2 = Kieren G | authorlink2 = Kieren G Hollingsworth
| last3 = Jakovljevic | first3 = Djordje G | authorlink3 = Djordje G Jakovljevic
| last4 = Fattakhova | first4 = Gulnar | authorlink4 = Gulnar Fattakhova
| last5 = Pairman | first5 = Jessie | authorlink5 = Jessie Pairman
| last6 = Blamire | first6 = Andrew M | authorlink6 = Andrew M Blamire
| last7 = Trenell | first7 = Michael I | authorlink7 = Michael I Trenell
| last8 = Newton | first8 = Julia L | authorlink8 = Julia L Newton
| display-authors = 8
| title = Loss of capacity to recover from acidosis on repeat exercise in chronic fatigue syndrome
| journal = Eur J Clin Invest | volume = 2012 Feb;42 | issue = 2 | page = 186-94
| date = 12 Jul 2011
| pmid = 21749371 | doi = 10.1111/j.1365-2362.2011.02567.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2362.2011.02567.x/abstract
}}</ref>

<ref name="KellerBA2014">{{citation
| last1 = Keller | first1 = Betsy A | authorlink1 = Betsy A Keller
| last2 = Pryor | first2 = John Luke | authorlink2 = John Luke Pryor
| last3 = Giloteaux | first3 = Ludovic | authorlink3 = Ludovic Giloteaux
| display-authors = 3
| title = Inability of myalgic encephalomyelitis/chronic fatigue syndrome patients to reproduce VO₂peak indicates functional impairment
| journal = J Transl Med | volume = 2014 Apr 23 | issue = 12 | page = 104
| date = 23 Apr 2014
| pmid = 24755065 | doi = 10.1186/1479-5876-12-104
| url = http://translational-medicine.biomedcentral.com/articles/10.1186/1479-5876-12-104
}}</ref>

<ref name="Klimas20110724phoenix">{{citation
| last1 = Klimas | first1 = Nancy | authorlink1 = Nancy Klimas
| last2 = Moricoli | first2 = Dan | authorlink2 = Dan Moricoli
| display-authors = 2
| title = Safe Exercise? The Heart Rate Based Exercise Video Series with Dr. Klimas on ME-CFS Community Center: Pt I
| journal = Phoenix Rising
| date = 24 Jul 2011
| url = http://phoenixrising.me/archives/5902
}}</ref>

<ref name="LaneRJ1998">{{citation
| last1 = Lane | first1 = R J | authorlink1 = RJ Lane
| last2 = Barrett | first2 = M C | authorlink2 = MC Barrett
| last3 = Taylor | first3 = D J | authorlink3 = DJ Taylor
| last4 = Kemp | first4 = G J | authorlink4 = GJ Kemp
| last5 = Lodi | first5 = R | authorlink5 = R Lodi
| display-authors = 5
| title = Heterogeneity in chronic fatigue syndrome: evidence from magnetic resonance spectroscopy of muscle
| journal = Neuromuscul Disord | volume = 1998 May;8 | issue = 3-4 | page = 204-9
| date = May 1998
| pmid = 9631403
| url = http://www.ncbi.nlm.nih.gov/pubmed/9631403
}}</ref>

<ref name="LengertN2015">{{citation
| last1 = Lengert | first1 = Nicor | authorlink1 = Nicor Lengert
| last2 = Drossel | first2 = Barbara | authorlink2 = Barbara Drossel
| display-authors = 2
| title = In silico analysis of exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome
| journal = Biophysical Chemistry | volume = 202 | page = 21–31
| date = Jul 2015
| pmid = 25899994 | doi = 10.1016/j.bpc.2015.03.009
| url = http://www.sciencedirect.com/science/article/pii/S0301462215000630
}}</ref>

<ref name="LightAR2009">{{citation
| last1 = Light | first1 = Alan R | authorlink1 = Alan R Light
| last2 = White | first2 = Andrea T | authorlink2 = Andrea T White
| last3 = Hughen | first3 = Ronald W | authorlink3 = Ronald W Hughen
| last4 = Light | first4 = Kathleen C | authorlink4 = Kathleen C Light
| display-authors = 4
| title = Moderate exercise increases expression for sensory, adrenergic, and immune genes in chronic fatigue syndrome patients but not in normal subjects
| journal = J Pain | volume = 2009 Oct;10 | issue = 10 | page = 1099-112
| date = 31 Jul 2009
| pmid = 19647494 | doi = 10.1016/j.jpain.2009.06.003
| url = http://www.jpain.org/article/S1526-5900(09)00574-4/abstract
}}</ref>

<ref name="McCully1996">{{citation
| author = McCully KK, Natelson BH, Iotti S, Sisto S, Leigh JS Jr.
| display-authors = 1
| title = Reduced oxidative muscle metabolism in chronic fatigue syndrome
| journal = Muscle Nerve | volume = 19 | issue = 5 | page = 621-5
| date = May 1996h
| pmid = 8618560 | doi =
| url = http://www.ncbi.nlm.nih.gov/pubmed/8618560
}}</ref>

<ref name="MyhillExercise">{{citation
| last1 = Myhill | first1 = Sarah | authorlink1 = Sarah Myhill
| display-authors = 1
| title = Exercise - the right sort
| access-date = Mar 2016
| url = http://www.drmyhill.co.uk/wiki/Exercise_-_the_right_sort
}}</ref>

<ref name="Plioplys1995">{{citation
| author = Plioplys AV, Plioplys S.
| display-authors = 1
| title = Serum levels of carnitine in chronic fatigue syndrome: clinical correlates
| journal = Neuropsychobiology | date = 1995 | volume = 32 | issue = 3 | page = 132-8
| pmid = 8544970
| url = http://www.ncbi.nlm.nih.gov/pubmed/8544970
}}</ref>

<ref name="ProHealth20160210">{{citation
| last1 = Blake | first1 = Nancy | authorlink1 = Nancy Blake
| display-authors = 1
| title = Lost in Translation - The ME-Polio Connection and the Dangers of Exercise
| journal = ProHealth website
| date = 10 Feb 2016
| url = http://www.prohealth.com/library/showarticle.cfm?libid=25096
}}</ref>

<ref name="RutherfordG2016">{{citation
| last1 = Rutherford | first1 = Gina | authorlink1 = Gina Rutherford
| last2 = Manning | first2 = Philip | authorlink2 = Philip Manning
| last3 = Newton | first3 = Julia L | authorlink3 = Julia L Newton
| display-authors = 3
| title = Review Article: Understanding Muscle Dysfunction in Chronic Fatigue Syndrome
| journal = Journal of Aging Research | volume = 2016 (2016) | issue = Article ID 2497348, 13 pages
| date = 13 Jan 2016
| pmid = 26998359 | doi = 10.1155/2016/2497348
| url = http://www.hindawi.com/journals/jar/2016/2497348/
}}</ref>

<ref name="ShuklaS2015">{{citation
| last1 = Shukla | first1 = Sanjay K | authorlink1 = Sanjay K Shukla
| last2 = Cook | first2 = Dane | authorlink2 = Dane Cook
| last3 = Meyer | first3 = Jacob | authorlink3 = Jacob Meyer
| last4 = Vernon | first4 = Suzanne D | authorlink4 = Suzanne D Vernon
| last5 = Le | first5 = Thao | authorlink5 = Thao Le
| last6 = Clevidence | first6 = Derek | authorlink6 = Derek Clevidence
| last7 = Robertson | first7 = Charles E | authorlink7 = Charles E Robertson
| last8 = Schrodi | first8 = Steven J | authorlink8 = Steven J Schrodi
| last9 = Yale | first9 = Steven | authorlink9 = Steven Yale
| last10 = Frank | first10= Daniel N | authorlink10= Daniel N Frank
| display-authors = 10
| title = Changes in Gut and Plasma Microbiome following Exercise Challenge in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
| journal = PLoS ONE
| date = 18 Dec 2015
| pmid = 26683192 | doi = 10.1371/journal.pone.0145453
| url = http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0145453
}}</ref>

<ref name="SnellCR2013">{{citation
| last1 = Snell | first1 = Christopher R | authorlink1 = Christopher R Snell
| last2 = Stevens | first2 = Staci R | authorlink2 = Staci R Stevens
| last3 = Davenport | first3 = Todd E | authorlink3 = Todd E Davenport
| last4 = Van Ness | first4 = J Mark | authorlink4 = Mark Van Ness
| display-authors = 4
| title = Discriminative Validity of Metabolic and Workload Measurements for Identifying People With Chronic Fatigue Syndrome
| journal = Physical Therapy (APTA) | volume = 93 | issue = 11 | page = 1484-1492
| date = 31 Oct 2013
| pmid = 23813081 | doi = 10.2522/ptj.20110368
| url = http://ptjournal.apta.org/content/93/11/1484
}}</ref>

<ref name="TwiskF2015">{{citation
| last1 = Twisk | first1 = Frank NM | authorlink1 = Frank NM Twisk
| last2 = Geraghty | first2 = Keith J | authorlink2 = Keith J Geraghty
| display-authors = 2
| title = Deviant Cellular and Physiological Responses to Exercise in Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
| journal = Jacobs Journal of Physiology | volume = 2015, 1(2): 007
| date = 11 Jul 2015
| url = http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf
}}</ref>

<ref name="VanNess2007">{{citation
| last1 = Van Ness | first1 = J Mark | authorlink1 = Mark Van Ness
| last2 = Snell | first2 = Christopher R | authorlink2 = Christopher R Snell
| last3 = Stevens | first3 = Staci R | authorlink3 = Staci R Stevens
| display-authors = 3
| title = Diminished Cardiopulmonary Capacity During Post-Exertional Malaise
| journal = Journal of Chronic Fatigue Syndrome | volume = 14 | issue = 2 | page = 77-85
| date = 2007
| doi = 10.1300/J092v14n02_07
| url = http://www.tandfonline.com/doi/abs/10.1300/J092v14n02_07
}}</ref>

<ref name="VanNess20140205video">{{citation
| last1 = Van Ness | first1 = J Mark | authorlink1 = Mark Van Ness
| display-authors = 1
| title = Video: A Realistic Approach to Exercise and Rehabilitation in ME/CFS
| date = 5 Feb 2014 | location = Bristol Watershed
| url = https://www.youtube.com/watch?v=q_cnva7zyKM
}}</ref>

<ref name="Wellness20150420">{{citation
| author = Linda J. Dobberstein
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| title = Master Enzyme Switch Deactivated In Chronic Fatigue Syndrome and Fibromyalgia
| journal = Wellness Resources
| date = 20 Apr 2015
| url = http://www.wellnessresources.com/health/articles/master_enzyme_switch_deactivated_in_chronic_fatigue_syndrome_and_fibromyalg/
}}</ref>

<ref name="WhiteAT2012">{{citation
| last1 = White | first1 = Andrea T | authorlink1 = Andrea T White
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| last3 = Hughen | first3 = Ronald W | authorlink3 = Ronald W Hughen
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| title = Differences in metabolite-detecting, adrenergic, and immune gene expression after moderate exercise in patients with chronic fatigue syndrome, patients with multiple sclerosis, and healthy controls
| journal = Psychosom Med | volume = 2012 Jan;74 | issue = 1 | page = 46-54
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}}</ref>

<ref name="Workwell201404rae">{{citation
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| last3 = Stevens | first3 = Staci R | authorlink3 = Staci R Stevens
| display-authors = 3
| title = A Realistic Approach to Exercise for CFS Patients
| journal = The CFS Research Review
| date = Apr 2014
| url = http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf
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<ref name="Workwell201404wwodwo">{{citation
| last1 = Snell | first1 = Christopher R | authorlink1 = Christopher R Snell
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| last3 = Stevens | first3 = Staci R | authorlink3 = Staci R Stevens
| display-authors = 3
| title = When Working Out Doesn't Work Out
| journal = The CFIDS Chronicle
| date = 2004
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}}</ref>

<ref name="Workwell201512foar">{{citation
| last1 = Stevens | first1 = Staci R | authorlink1 = Staci R Stevens
| last2 = Davenport | first2 = Todd E | authorlink2 = Todd E Davenport
| display-authors = 2
| title = Functional Outcomes of Anaerobic Rehabilitation in a Patient with Chronic Fatigue Syndrome: case report with 1-year follow-up
| journal = Bulletin of the IACFS/ME | volume = 2010;18 | issue = 3 | page = 93-98
| date = 2010
| url = http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf
}}</ref>

[[Category:Potential treatments]]
[[Category:Tests]]

Exercise

2016-03-23T04:18:54Z

Simone:/* Workwell Foundation */ typo

Exercise

2016-03-23T04:18:06Z

Simone:/* Workwell Foundation */ pasted exercise recommendation from Workwell Foundation page

Workwell Foundation

2016-03-23T04:10:41Z

Simone:/* Exercise recommendations for ME/CFS */ fix typo

Workwell Foundation was founded by [[Staci Stevens]] and is based in Ripon, California. It specialises in [[two-day cardiopulmonary exercise testing]] ([[CPET]]) for people with [[ME/CFS]], [[Fibromyalgia]] and other fatiguing illnesses.

==Notable people==
*[[Staci Stevens]]: Founder
*[[Christopher Snell]]: Scientific Advisory Committee Chair
*[[Daniel Peterson]]: Medical Supervisor
*[[Mark VanNess]]: Scientific Advisory Committee member

==Notable studies==
*[http://ptjournal.apta.org/content/early/2013/06/26/ptj.20110368.short Discriminative validity of metabolic and workload measurements to identify individuals with Chronic Fatigue Syndrome]
*[http://www.ncbi.nlm.nih.gov/pubmed/21208154 Diagnostic accuracy of symptoms characterising chronic fatigue syndrome]
*[http://www.ncbi.nlm.nih.gov/pubmed/20095909 Post-exertional malaise in women with chronic fatigue syndrome]
*[http://ptjournal.apta.org/content/90/4/602.full Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]
*[http://iv.iiarjournals.org/content/19/2/387.full.pdf Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)]

==Exercise recommendations for [[ME/CFS]]==
Workwell Foundation recommends short periods (eg: 30 seconds) of analeptic exercise, with periods of rest which are 3-6 times longer than the period of exercise. The amount of exercise that the individual undertakes should be guided by VO2 max testing (or a safe heart rate threshold (generally 60% of maximum heart rate)), and the use of a heart rate monitor (both during exercise and to help with [[pacing]]) is recommended to ensure that the individual doesn't exceed their capacity. The Foundation also advises against aerobic exercise for people with [[ME/CFS]].<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf</ref><ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf</ref><ref>http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf</ref>

This approach to exercise differs from [[Graded Exercise Therapy]] ([[GET]]) in several important ways:
*There is no claim that the exercise program will cure the condition. The aim is to increase functional strength and flexibility, and to improve quality of life<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf</ref>
*This program is based on a deep understanding of [[Post-exertional malaise]] ([[PEM]]), and the importance of staying within the [[energy envelope]] in order to not trigger [[PEM]]<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf</ref>
*There is a recognition that any approach to exercise with people with [[ME/CFS]] must be carefully tailored to the individual. There is no one-size fits all<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf</ref>
*This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual<ref>http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf</ref>

==Funding==

==Talks and Interviews==
*[http://youtu.be/XFz4CK0Js1M Post-exertional malaise: How to do more with less (Staci Stevens at ME/FM society of British Columbia, May 2015)]
*[http://youtu.be/q_cnva7zyKM Exercise and ME/CFS (Mark VanNess at Bristol Watershed, Feb 2014)]
*[http://youtu.be/xIDFahiCySw An overview of 2 day CPET]

==Online presence==
*PubMed
*Twitter
*[https://www.facebook.com/workwellfoundation/?ref=ts&fref=ts Facebook]
*[http://www.workwellfoundation.org Website]
*YouTube

==Learn more==
*[http://www.cortjohnson.org/blog/2013/07/30/busted-exercise-study-finds-energy-production-system-is-broken-in-chronic-fatigue-syndrome/ Busted! Exercise study finds exercise production system is broken in Chronic Fatigue Syndrome]
*[http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf Functional outcomes of anaerobic rehabilitation in a patient with Chronic Fatigue Syndrome: Case report with 1-year follow up]
*[http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf When working out doesn't work out]
*[http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf A realistic approach to exercise for CFS patients]

==See also==

==References==
<references/>

[[Category:Research organizations]]

Workwell Foundation

2016-03-23T04:05:39Z

Simone:/* Exercise recommendations for ME/CFS */ .

Workwell Foundation was founded by [[Staci Stevens]] and is based in Ripon, California. It specialises in [[two-day cardiopulmonary exercise testing]] ([[CPET]]) for people with [[ME/CFS]], [[Fibromyalgia]] and other fatiguing illnesses.

==Notable people==
*[[Staci Stevens]]: Founder
*[[Christopher Snell]]: Scientific Advisory Committee Chair
*[[Daniel Peterson]]: Medical Supervisor
*[[Mark VanNess]]: Scientific Advisory Committee member

==Notable studies==
*[http://ptjournal.apta.org/content/early/2013/06/26/ptj.20110368.short Discriminative validity of metabolic and workload measurements to identify individuals with Chronic Fatigue Syndrome]
*[http://www.ncbi.nlm.nih.gov/pubmed/21208154 Diagnostic accuracy of symptoms characterising chronic fatigue syndrome]
*[http://www.ncbi.nlm.nih.gov/pubmed/20095909 Post-exertional malaise in women with chronic fatigue syndrome]
*[http://ptjournal.apta.org/content/90/4/602.full Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]
*[http://iv.iiarjournals.org/content/19/2/387.full.pdf Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)]

==Exercise recommendations for [[ME/CFS]]==
Workwell Foundation recommends short periods (eg: 30 seconds) of analeptics exercise, with periods of rest which are 3-6 times longer than the period of exercise. The amount of exercise that the individual undertakes should be guided by VO2 max testing (or a safe heart rate threshold (generally 60% of maximum heart rate)), and the use of heart rate monitors (both during exercise and to help with [[pacing]]) is recommended to ensure that the individual doesn't exceed their capacity.<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf</ref><ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf</ref><ref>http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf</ref>

This approach to exercise differs from [[Graded Exercise Therapy]] ([[GET]]) in several important ways:
*There is no claim that the exercise program will cure the condition. The aim is to increase functional strength and flexibility, and to improve quality of life<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf</ref>
*This program is based on a deep understanding of [[Post-exertional malaise]] ([[PEM]]), and the importance of staying within the [[energy envelope]] in order to not trigger [[PEM]]<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf</ref>
*There is a recognition that any approach to exercise in [[ME/CFS]] must be carefully tailored to the individual. There is no one-size fits all<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf</ref>
*This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual<ref>http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf</ref>

==Funding==

==Talks and Interviews==
*[http://youtu.be/XFz4CK0Js1M Post-exertional malaise: How to do more with less (Staci Stevens at ME/FM society of British Columbia, May 2015)]
*[http://youtu.be/q_cnva7zyKM Exercise and ME/CFS (Mark VanNess at Bristol Watershed, Feb 2014)]
*[http://youtu.be/xIDFahiCySw An overview of 2 day CPET]

==Online presence==
*PubMed
*Twitter
*[https://www.facebook.com/workwellfoundation/?ref=ts&fref=ts Facebook]
*[http://www.workwellfoundation.org Website]
*YouTube

==Learn more==
*[http://www.cortjohnson.org/blog/2013/07/30/busted-exercise-study-finds-energy-production-system-is-broken-in-chronic-fatigue-syndrome/ Busted! Exercise study finds exercise production system is broken in Chronic Fatigue Syndrome]
*[http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf Functional outcomes of anaerobic rehabilitation in a patient with Chronic Fatigue Syndrome: Case report with 1-year follow up]
*[http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf When working out doesn't work out]
*[http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf A realistic approach to exercise for CFS patients]

==See also==

==References==
<references/>

[[Category:Research organizations]]

Workwell Foundation

2016-03-23T03:05:55Z

Simone:Added exercise recommendations. Citations need formatting

Workwell Foundation was founded by [[Staci Stevens]] and is based in Ripon, California. It specialises in [[two-day cardiopulmonary exercise testing]] ([[CPET]]) for people with [[ME/CFS]], [[Fibromyalgia]] and other fatiguing illnesses.

==Notable people==
*[[Staci Stevens]]: Founder
*[[Christopher Snell]]: Scientific Advisory Committee Chair
*[[Daniel Peterson]]: Medical Supervisor
*[[Mark VanNess]]: Scientific Advisory Committee member

==Notable studies==
*[http://ptjournal.apta.org/content/early/2013/06/26/ptj.20110368.short Discriminative validity of metabolic and workload measurements to identify individuals with Chronic Fatigue Syndrome]
*[http://www.ncbi.nlm.nih.gov/pubmed/21208154 Diagnostic accuracy of symptoms characterising chronic fatigue syndrome]
*[http://www.ncbi.nlm.nih.gov/pubmed/20095909 Post-exertional malaise in women with chronic fatigue syndrome]
*[http://ptjournal.apta.org/content/90/4/602.full Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]
*[http://iv.iiarjournals.org/content/19/2/387.full.pdf Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)]

==Exercise recommendations for [[ME/CFS]]==
Workwell Foundation recommends analeptic, short periods (eg: 30 seconds) of exercise, with periods of rest which are 3-6 times longer than the period of exercise. The amount of exercise that the individual undertakes should be guided by VO2 max testing (or a safe heart rate threshold (generally 60% of maximum heart rate)), and the use of heart rate monitors (both during exercise and to help with [[pacing]]) is recommended to ensure that the individual doesn't exceed their capacity.<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf</ref><ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf</ref><ref>http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf</ref>

This approach to exercise differs from [[Graded Exercise Therapy]] ([[GET]]) in several important ways:
*There is no claim that the exercise program will cure the condition. The aim is to increase functional strength and flexibility, and to improve quality of life<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf</ref>
*This program is based on a deep understanding of [[Post-exertional malaise]] ([[PEM]]), and the importance of staying within the [[energy envelope]] in order to not trigger [[PEM]]<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf</ref>
*There is a recognition that any approach to exercise in [[ME/CFS]] must be carefully tailored to the individual. There is no one-size fits all<ref>http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf</ref>
*This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual<ref>http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf</ref>

==Funding==

==Talks and Interviews==
*[http://youtu.be/XFz4CK0Js1M Post-exertional malaise: How to do more with less (Staci Stevens at ME/FM society of British Columbia, May 2015)]
*[http://youtu.be/q_cnva7zyKM Exercise and ME/CFS (Mark VanNess at Bristol Watershed, Feb 2014)]
*[http://youtu.be/xIDFahiCySw An overview of 2 day CPET]

==Online presence==
*PubMed
*Twitter
*[https://www.facebook.com/workwellfoundation/?ref=ts&fref=ts Facebook]
*[http://www.workwellfoundation.org Website]
*YouTube

==Learn more==
*[http://www.cortjohnson.org/blog/2013/07/30/busted-exercise-study-finds-energy-production-system-is-broken-in-chronic-fatigue-syndrome/ Busted! Exercise study finds exercise production system is broken in Chronic Fatigue Syndrome]
*[http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf Functional outcomes of anaerobic rehabilitation in a patient with Chronic Fatigue Syndrome: Case report with 1-year follow up]
*[http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf When working out doesn't work out]
*[http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf A realistic approach to exercise for CFS patients]

==See also==

==References==
<references/>

[[Category:Research organizations]]

Exercise

2016-03-23T02:34:04Z

Simone:/* Workwell Foundation */ .

Australia

2016-03-23T02:12:44Z

Simone:.

[[File:Australia-flag.jpg|250px|right]]

There are estimated to be between 92,000 and 598,000 people in Australia with [[ME/CFS]] (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria"/> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis. Most patients and patient organisations prefer to use the term [[ME/CFS]].

==Medical guidelines==

===Australian Medical Association (AMA) ===
State organisations, [[NCNED]] and patients are lobbying<ref>reference needed</ref> for the 2012 International Consensus Criteria <ref name="ICC2011criteria"/> to replace the Medical Journal of Australia's 2002 guidelines<ref name="MJA2002"/>.

===National health department===
* http://health.gov.au

===State health departments===
* Victora - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] for the public

==Health insurance==
===Government health insurance===
Medicare https://www.humanservices.gov.au/customer/dhs/medicare

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
How many hospitals & doctors, which diagnose and treat ME (estimate):
Rehabilitation offers for ME sufferers:

==Patient organisations==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==

===Research funding===

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[[Victoria University]]

===Researchers===
*[[Henry Butt]]
*[[Donald P Lewis]]
*[[Michael Maes]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
* Andrew Lloyd
* Brett Lidbury

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*Alison Hunter, died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite"/>

==Learn more==

==See also==
*[[Blood donation]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>

<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = B M Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = M I van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny L De Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy G Klimas
| last5 = Broderick | first5 = G | authorlink5 = G Broderick
| last6 = Mitchell | first6 = T | authorlink6 = T Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C P Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
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| journal = Journal of Internal Medicine | volume = Volume 270, Issue 4 | page = pages 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>

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Primer for journalists

2016-03-22T23:41:27Z

Simone:/* Exercise as treatment */ citation amended

[[Myalgic Encephalomyelitis]] (M.E.), [[Chronic Fatigue Syndrome]] (CFS) and [[chronic fatigue]] are widely misunderstood. In this primer we provide evidence-based statements (with links to further reading & sources) to support journalists writing about the disease.

==What do we know?==
ME is a debilitating illness that has been recognised as a neurological condition by the World Health Organisation (WHO) since 1969.<ref name="WHOclass">reference needed for WHO class since 1969</ref>

ME/CFS costs the US economy up to $24 billion per year in direct medical costs, and lost production.<ref name="IOM2015MECFS"/> Despite this, funding for research is not commensurate with the level of disease burden. In the 2015 financial year, the [[National Institutes of Health]] ([[NIH]]) provided only $5 million in research funding for ME/CFS, which is less funding than hayfever. This is in stark contrast to funding levels for other similarly disabling illnesses, like Multiple Sclerosis ($105 million) and HIV/AIDS ($3 billion).<ref>reference needed for NIH funding levels</ref> The [[Institute of Medicine]], a special advisory committee of the [[U.S. Department of Health and Human Services]] ([[HHS]]) (ref: CFSAC recommendations) and [[NIH]] expert advisory panel agree that it is imperative to increase research funding into ME/CFS.<ref name="NIHP2PFIN"/>

==ME vs CFS vs CF==

The name [[Myalgic Encephalomyelitis]] ([[ME]]) was coined following an outbreak of an illness at the Royal Free Hospital in the UK, in 1955. The name [[Chronic Fatigue Syndrome]] ([[CFS]]) was coined by the [[Centers for Disease Control]] ([[CDC]])l following an outbreak of a flu-like illness at Incline Village, at Lake Tahoe, in the 1980s. There is disagreement as to whether ([[ME]]) and ([[CFS]]) are the same condition, entirely separate conditions, or whether ME constitutes a more severe subset of CFS. Adding to the confusion, the diagnostic name given to patients is more often dependent on the country in which they live, than differing characteristics of their condition, as some countries use CFS (eg: US, Australia), and other countries (particularly in Europe) use ME. At this point in time, there is no clear biological evidence to resolve whether the conditions are the same or different, and there is unlikely to be a resolution until firm biomarkers have been identified. As such, many patients and researchers use the term [[ME/CFS]].<ref name="Klimas20140621video"/>

The name Chronic Fatigue Syndrome is itself controversial, as many consider it stigmatising. In February 2016, Dr [[Anthony Komaroff]], who was part of the [[Centers for Disease Control]] ([[CDC]]) group of clinicians who coined the name Chronic Fatigue Syndrome, said of it:

"I think that was a big mistake because the name, in my opinion, and the opinion of a lot of people, it both trivialises and stigmatises the illness. It makes it seem unimportant, maybe not even real"<ref name="Komaroff20160217video"/>

It is important to distinguish between ME/CFS and "[[chronic fatigue]]" (CF), which is a symptom of many different medical conditions (eg: anaemia, Hepatitis, Multiple Sclerosis, hypothyroidism, depression, ME/CFS). "Chronic fatigue" is not a condition in its own right and it is incorrect and misleading to refer to ME/CFS as "chronic fatigue". Whilst fatigue is a component of ME/CFS, many consider [[Post-exertional malaise]] ([[PEM]]) to be the cardinal feature of ME/CFS.<ref> reference needed CCC</ref><ref name="IOM2015MECFS"/>

==It is not tiredness==

=== Symptoms ===
Symptom presentation varies enormously between individuals. Symptom presentation also varies within individuals, as individuals often report that symptoms change over time (increasing or decreasing) and new symptoms may appear while others disappear. There are many symptoms which people with ME/CFS experience, though those listed below are arguably the most common:

*[[Post-exertional malaise]] (PEM) is the hallmark symptom of ME/CFS. After physical or mental exertion, (which may not look like exertion for healthy people. Ffor some patients can be a shower, others grocery shopping or socializing, while some just walking to the mailbox) there is a payback which can be delayed 24-48 hours. During PEM there is an exacerbation of symptoms, more than just an increase in fatigue. The manifestation of PEM varies with individuals, with differing degrees of delay, severity of exacerbation, and types of symptoms which are exacerbated.
*[[Chronic fatigue]]
*Chronic pain
*[[Cognitive dysfunction]]
*[[Unrefreshing sleep]], and sleep disturbance
*[[Orthostatic intolerance]], such as [[Postural orthostatic tachycardia syndrome]] ([[POTS]]) or [[Neurally mediated hypotension]] ([[NMH]])
*[[Neuroinflammation]]
*Neurological disturbances such as muscle spasms, numbness/tingling, sensory overload

===Biological abnormalities===
Because there is currently no biomedical test for ME/CFS, many have incorrectly assumed that there are no medical abnormalities found in people with the condition. As a result, ME/CFS symptoms are often considered to be medically unexplained, and therefore psychological in origin. Whilst it is true that the condition is poorly understood, many biological abnormalities have been found in a range of different body systems that have been found in ME/CFS, particularly in the Central Nervous System, Autonomic Nervous System, Immune system and energy metabolism.<ref name="IOM2015MECFS"/> Unfortunately, none have yet proved to be specific enough to ME/CFS as to be useful as a biomarker of the condition, and many were identified in small studies, which are in need of replication. Whilst there have been abnormalities which have been identified to be associated with the condition, it cannot yet be determined whether these are a cause or consequence of the condition.

*[[Neuroinflammation]] Japanese Neuroinflammation study<ref name="NakatomiY2014"/>, Younger's Leptin study <ref name="JohnsonC20150126younger"/>
*Reduced brain white matter study by [[Stanford ME/CFS Initiative]]<ref name="StanfordMed20141028"/> New York Times Article with brain images.<ref name="TullerD20141124brain"/>
*Immune findings: [[Mady Hornig]] & [[Ian Lipkin]]<ref name="Hornig20150201immune"/>
*Autonomic nervous system:
*[[Natural killer cell]] findings
*Gut dysbiosis
*[[Rituximab]]

===Epidemiology===

Prevalence estimates for ME/CFS range between 0.2-2.5%, depending on the definition of the condition used.<ref name="ICC2011criteria"/> In the US, estimates range between 836,000 and 2.5 million people with the condition, though true numbers are under reported. It is estimated that 84-91% of people with the condition remain undiagnosed.<ref name="IOM2015MECFS"/>

*Level of disability (Norwegian study HRQoL)<ref name="Hvidberg2015"/> (suggests quality of life is LOWER than for many cancers, heart diseases, brain stroke, diabetes I & II, rheumatoid arthiritis, chronic renal failure, sclerosis, schizophenia, COPH, etc)

===Causes & triggers===
*Outbreaks - see [[List of outbreaks]]
*Known infectious triggers: Epstein-Barr Virus<ref name="Hickie2006"/>, Q Fever<ref name="Hickie2006"/>, Ross River Virus<ref name="Hickie2006"/>, (Ebola?)<ref name="Hickie2006"/>
*Non-viral triggers - trauma, chemical

===Persistence hypotheses===
*Immune findings

===Prognosis===
In about 40% of people with ME/CFS the condition will improve over time, though recovery rates from the condition are generally quite low (less than 10%). The condition may also take a relapsing/remitting course, so individuals who appear to have recovered, may actually be in remission. For 5-20% of people, the condition is degenerative. Some studies suggest that prognosis is better for those with less severe symptoms, and who developed the condition at a younger age (childhood-young adulthood), though these findings are not consistent. It is clear that few people will return to their pre-illness state of health and functioning.<ref name="CairnsR2005prog"/><ref name="JoyceJ1997prog"/><ref name="Johnson20130706"/>

===Treatments===
There are currently no FDA approved treatments for ME/CFS. Treatments consist mostly of symptom management, rather than treatment of the underlying cause of the condition, which is not yet understood.<ref name="IACFSME2014primer"/> There are many [[potential treatments]], though their evidence-base is limited, as most research into treatments has gone into psychological approaches to treatment.

Two treatments that have garnered much attention are [[Ampligen]] and [[Rituximab]]. Many people have reported enormous benefit from Ampligen, some doctors have been prescribing it for ME/CFS for decades. Attempts to obtain FDA approval for Ampligen in the US have failed so, despite its usefulness, it is unavailable to many. Rituximab, a lymphoma drug, has shown promising results in initial trials in Norway, and there are groups crowdsourcing funding for further trials in other countries. [[Jarred Younger]] announced in March 2016 that he will be undertaking a trial of [[Low dose naltrexone]] ([[LDN]]) in ME/CFS.<ref> http://www.psy.uab.edu/younger/research.html</ref>

====Exercise as treatment====

Two common treatment recommendations for ME/CFS are [[Graded Exercise Therapy]] ([[GET]]) and [[Cognitive behavioral therapy]] ([[CBT]]). These treatments are based on the hypothesis that the condition might have begun with a viral infection, but has been perpetuated by deconditioning from lack of activity, and fear and avoidance of activity. GET & CBT are aimed at addressing these hypothesised causes by challenging the unhelpful thoughts that result in avoidance of activity, and reconditioning through a gradual increase in exercise. These treatments are controversial, and are at odds with much of the research literature, which suggests that exercise may actually be harmful for people with ME/CFS. A large patient survey of treatment responses found that 74% of people who had tried GET, reported that their symptoms subsequently worsened,<ref name="MEASSUK20150529survey"/> which is consistent with other patient surveys.<ref name="Phoenix20160222Norway2012"/>

The [[PACE trial]], published in 2011, is the largest GET trial ever conducted. It has received much publicity as a result of its claims of recovery rates, though it has come under strong criticism from within both the scientific and patient community, for significant flaws in its design, and for overstating (and in some cases misrepresenting) outcomes in both the initial trial, and follow up studies.<ref> http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00551-9/fulltext</ref> The study was the subject of a series of investigative pieces by journalist [[David Tuller]] in late 2015, that were highly critical of the trial.<ref name="viroblogMECFS"/> A petition signed by almost 12,000 ME/CFS patients and allies,<ref name="MEACTIONpacepetition"/> and an open letter signed by 42 ME/CFS experts from around the world,<ref name="openletrLANCET2"/> were sent to The Lancet, both calling for the data to be reanalysed. Twenty four ME/CFS organisations from 14 different countries have written to Queen Mary University London requesting that the trial data be released for reanalysis.<ref name="MEACTION20160313openletr"/> To date, the authors of the trial and editor of The Lancet have refused such requests. Despite such criticism, the [[PACE trial]] continues to influence both government and the medical profession's approach to the treatment of ME/CFS in many countries.

One of the reasons that exercise may be harmful to people with ME/CFS, is the presence of Post-Exertional Malaise (PEM), which is an exacerbation of symptoms following physical, mental or even emotional exertion. Studies have revealed immunological, muscular, neurological, autonomic and cardiovascular abnormalities in response to exercise in people with ME/CFS. As these results are not also found in healthy sedentary controls, the adverse effects of exercise cannot be said to be due to deconditioning<ref name="TwiskF2015"/><ref> reference needed - Workwell Foundation studies</ref><ref> reference needed - the Lights epigenetic changes post-exercise</ref>

People with ME/CFS should approach exercise with caution, as there is much potential for harm.

Anaerobic threshold, use of HR monitors for activity and pacing. Analeptic, not aerobic.
Energy envelope/pacing - people do better if stay within their envelope, than push to increase activity

===Severely ill patients===
Considerable variation exists in the severity of the condition. The [[International Consensus Criteria]] lists the following severity levels (it should be noted that even "mild" ME/CFS consists of significant debility):

*Mild = 50% reduction in pre-illness activity levels
*Moderate = mostly housebound
*Severe = mostly bedridden
*Very Severe = totally bedridden, and needing help with basic functions.

At least 25% of people with ME/CFS are bedbound or housebound, often for years or even decades, so are largely an invisible population.<ref name="IOM2015MECFS"/> So invisible in fact, that they have rarely been included as part of research, because their level of debility precludes them from travelling to laboratories for required testing. The [[Open Medicine Foundation]]'s [http://www.openmedicinefoundation.org/mecfs-severely-ill-big-data-study/ Severely Ill Big Data Study] will be the first in depth study into people with a severe form of ME/CFS.

Notable patients with severe ME/CFS include [[Whitney Dafoe]], [[Karina Hansen]], [[Lynn Gilderdale]], [[Laura Hillenbrand]], [[Tom Kindlon]], [[Vanessa Li]], [[Doctor Speedy]], [[Naomi Whittingham]].

Though uncommon, there have been instances of deaths which have been attributed to the condition (see [[Sophia Mirza]]).

===Patients & psychiatry/psychology===
*Objections & scope
*Mind-body dualism
*The [[PACE trial]]. See [http://www.meaction.net/wp-content/uploads/2015/05/MEAction%E2%80%93patient-view-of-the-PACE-Trial-Controversy.pdf Patient view of the PACE Trial controversy]
*[[Patient mental health]]

===Stigmatization===
*Pretty young women slumped on desk
*[[Yuppie Flu]]
*Accusations of laziness/lethargy
*Epidemiological evidence - age, gender, demographic, racial/cultural

===Accusations of harassment===
*Tiny %
*No arrests or convictions
*Poor treatment of patients not mentioned. [[Ean Proctor]] and "The Mental Health Movement: Persecution of Patients?"<ref>[http://www.theoneclickgroup.co.uk/documents/ME-CFS_docs/The%20Mental%20Health%20Movement%20-%20Persecution%20of%20Patients.pdf The Mental Health Movement: Persecution of Patients?]</ref>

==Expert opinions==

===Quotes from ME/CFS experts and patients===
[http://thoughtsaboutme.com/quotes/ Thoughts About ME - List of Quotes]

===Doctors for expert opinions===
<Add doctors in each country that are specialists, and willing to provide expert comment to the press>

===Researchers===
<Add researchers in each country, by speciality, that are willing to provide expert comment to the press>

===Patients===
====U.S.====
*[[Jennifer Brea]]
*[[Ryan Prior]]

====U.K.====

====Australia====

====Ireland====
*[[Tom Kindlon]]

===Patient groups & charities===
'''U.S.'''
*[[IACFS/ME]]
*[[MEAction]]
*[[Solve ME/CFS Initiative]] ([[SMCI]])

'''U.K.'''
*[[Invest in ME]]
*[[Action for ME]]
*[[MEAssociation]]

'''Australia'''
*[[Emerge Australia]]

==Other tips==
*Always interview a patient
*Interview more than one researcher (not just from the psychological aetiology view)
*Avoid using derogatory, outdated & incorrect term "[[Yuppie Flu]]"
*Never shorten the disease name [[Chronic Fatigue Syndrome]] (CFS) to the symptom [[chronic fatigue]] (CF). [[CFS]], [[ME]] or [[ME/CFS]] can be used to save print space.

==Learn more==
* [http://youtu.be/c2vIQ92wU9Y ME/CFS Diagnosis and Name with Dr Nancy Klimas (video)]
*[[Institute of Medicine report]]
*[[Canary in a Coal Mine]] (see [https://www.youtube.com/watch?v=IW11Je8pm20 trailer])
*[[Forgotten Plague]] (see [https://www.youtube.com/watch?v=VsQcmKT3zSo trailer])

==See also==

==References==
<references>



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<ref name="MEACTION20160313openletr">{{citation
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}}</ref>

<ref name="NakatomiY2014">{{citation
| last1 = Nakatomi | first1 = Yasuhito | authorlink1 = Yasuhito Nakatomi
| last2 = Mizuno | first2 = Kei | authorlink2 = Kei Mizuno
| last3 = Ishii | first3 = Ishii | authorlink3 = Akira Ishii
| last4 = Yasuhiro | first4 = Wada | authorlink4 = Yasuhiro Wada
| last5 = Masaaki | first5 = Tanaka | authorlink5 = Masaaki Tanaka
| last6 = Shusaku | first6 = Tazawa | authorlink6 = Shusaku Tazawa
| last7 = Kayo | first7 = Onoe | authorlink7 = Kayo Onoe
| last8 = Sanae | first8 = Fukuda | authorlink8 = Sanae Fukuda
| last9 = Joji | first9 = Kawabe | authorlink9 = Joji Kawabe
| last10 = Kazuhiro | first10= Takahashi | authorlink10= Kazuhiro Takahashi
| last11 = Yosky | first11= Kataoka | authorlink11= Yosky Kataoka
| last12 = Susumu | first12= Shiomi | authorlink12= Susumu Shiomi
| last13 = Kouzi | first13= Yamaguti | authorlink13= Kouzi Yamaguti
| last14 = Masaaki | first14= Inaba | authorlink14= Masaaki Inaba
| last15 = Hirohiko | first15= Kuratsune | authorlink15= Hirohiko Kuratsune
| last16 = Yasuyoshi | first16= Watanabe | authorlink16= Yasuyoshi Watanabe
| display-authors = 16
| title = Neuroinflammation in Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: An ¹¹C-(R)-PK11195 PET Study
| journal = Journal of Nuclear Medicine | volume = 2014 Jun;55(6) | page = 945-50
| date = 24 Mar 2014
| pmid = 24665088 | doi = 10.2967/jnumed.113.131045
| url = http://jnm.snmjournals.org/content/55/6/945.long
}}</ref>

<ref name="NIHP2PFIN">{{citation
| author = National Institutes of Health (USA)
| title = NIH Pathways to Prevention Workshop: Advancing the Research on Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome
| date = 9 Dec 2014
| url = https://prevention.nih.gov/docs/programs/mecfs/ODP-P2P-MECFS-FinalReport.pdf
}}</ref>

<ref name="openletrLANCET2">{{citation
| last1 = Davis | first1 = Ronald W | authorlink1 = Ronald W Davis
| last2 = Edwards | first2 = Jonathan C W | authorlink2 = Jonathan Edwards
| last3 = Jason | first3 = Leonard A | authorlink3 = Leonard Jason
| last4 = Levin | first4 = Bruce | authorlink4 = Bruce Levin
| last5 = Racaniello | first5 = Vincent R | authorlink5 = Vincent Racaniello
| last6 = Reingold | first6 = Arthur L | authorlink6 = Arthur Reingold
| last7 = Ablashi | first7 = Dharam V | authorlink7 = Dharam Ablashi
| last8 = Baraniuk | first8 = James N | authorlink8 = James Baraniuk
| last9 = Barcellos | first9 = Lisa F | authorlink9 = Lisa Barcellos
| last10 = Bateman | first10= Lucinda | authorlink10= Lucinda Bateman
| last11 = Bell | first11= David S | authorlink11= David Bell
| last12 = Bested | first12= Alison C | authorlink12= Alison Bested
| last13 = Broderick | first13= Gordon | authorlink13= Gordon Broderick
| last14 = Chia | first14= John | authorlink14= John Chia
| last15 = Chu | first15= Lily | authorlink15= Lily Chu
| last16 = Enlander | first16= Derek | authorlink16= Derek Enlander
| last17 = Fletcher | first17= Mary Ann | authorlink17= Mary Ann Fletcher
| last18 = Friedman | first18= Kenneth | authorlink18= Kenneth Friedman
| last19 = Kaufman | first19= David L | authorlink19= David Kaufman
| last20 = Klimas | first20= Nancy | authorlink20= Nancy Klimas
| last21 = Lapp | first21= Charles W | authorlink21= Charles Lapp
| last22 = Levine | first22= Susan | authorlink22= Susan Levine
| last23 = Light | first23= Alan R | authorlink23= Alan Light
| last24 = Marshall-Gradisnik | first24= Sonya | authorlink24= Sonya Marshall-Gradisnik
| last25 = Medveczky | first25= Peter G | authorlink25= Peter Medveczky
| last26 = Nahle | first26= Zaher | authorlink26= Zaher Nahle
| last27 = Oleske | first27= James M | authorlink27= James Oleske
| last28 = Podell | first28= Richard N | authorlink28= Richard Podell
| last29 = Shepherd | first29= Charles | authorlink29= Charles Shepherd
| last30 = Snell | first30= Christopher R | authorlink30= Christopher Snell
| last31 = Speight | first31= Nigel | authorlink31= Nigel Speight
| last32 = Staines | first32= Donald | authorlink32= Donald Staines
| last33 = Stark | first33= Philip B | authorlink33= Philip Stark
| last34 = Stein | first34= Eleanor | authorlink34= Eleanor Stein
| last35 = Swartzberg | first35= John | authorlink35= John Swartzberg
| last36 = Tompkins | first36= Ronald G | authorlink36= Ronald Tompkins
| last37 = Underhill | first37= Rosemary | authorlink37= Rosemary Underhill
| last38 = Vallings | first38= Rosamund | authorlink38= Rosamund Vallings
| last39 = Van ElZakker | first39= Michael | authorlink39= Michael Van ElZakker
| last40 = Weir | first40= William | authorlink40= William Weir
| last41 = Zinn | first41= Marcie | authorlink41= Marcie Zinn
| last42 = Zinn | first42= Mark | authorlink42= Mark Zinn
| display-authors = 42
| title = An open letter to the Lancet - again
| date = 10 Feb 2016
| website = Virology Blog
| url = http://www.virology.ws/2016/02/10/another-request-for-data-from-the-pace-trial/
}}</ref>

<ref name="StanfordMed20141028">{{citation
| last1 = Stanford Medicine - News Center
| title = Study finds brain abnormalities in chronic fatigue patients]
| date = 28 Oct 2014
| url = https://med.stanford.edu/news/all-news/2014/10/study-finds-brain-abnormalities-in-chronic-fatigue-patients.html
}}</ref>

<ref name="TullerD20141124brain">{{citation
| last1 = Tuller | first1 = David | authorlink1 = David Tuller
| display-authors = 1
| title = Brains of People With Chronic Fatigue Syndrome Offer Clues About Disorder
| journal = New York Times | volume = Well Blogs
| date = 24 Nov 2014
| url = http://well.blogs.nytimes.com/2014/11/24/brains-of-people-with-chronic-fatigue-syndrome-offer-clues-about-disorder/
}}</ref>

<ref name="TwiskF2015">{{citation
| last1 = Twisk | first1 = Frank NM | authorlink1 = Frank NM Twisk
| last2 = Geraghty | first2 = Keith J | authorlink2 = Keith J Geraghty
| display-authors = 2
| title = Deviant Cellular and Physiological Responses to Exercise in Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
| journal = Jacobs Journal of Physiology | volume = 2015, 1(2): 007
| date = 11 Jul 2015
| url = http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf
}}</ref>

<ref name="Phoenix20160222Norway2012">{{citation
| title = Norwegian patient survey: Experiences of therapeutic approaches (2012)
| journal = Phoenix Rising Forum
| date = 22 Feb 2016
| url = http://forums.phoenixrising.me/index.php?threads/norwegian-patient-survey-experiences-of-therapeutic-approaches-2012-update.43193/
}}</ref>

<ref name="viroblogMECFS">{{citation
| title = List of ME/CFS articles published at Virology Blog
| url = http://www.virology.ws/mecfs/
}}</ref>

Workwell Foundation

2016-03-22T23:07:31Z

Simone:/* Learn more */ .

Workwell Foundation

2016-03-22T23:04:07Z

Simone:Created page

MEpedia:Suggested tasks

2016-03-22T12:20:02Z

Simone:Moved Jen Brea's interview to Completed

This page lists suggestions for improvements or additions to MEpedia.

PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''.

Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).

If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].

=Suggestions - Five Minute Tasks=
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''

*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. *https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/
*Add http://www.statnews.com/2015/12/23/sharing-data-science/
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385
*Add http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf
*Add https://pubpeer.com/publications/22870204
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf
*Add Racianello http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/
*Add https://twitter.com/bengoldacre/status/679228319234195456
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1
*Add https://twitter.com/EUROMEALL
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf
*Add https://twitter.com/TomKindlon/status/677173627532402688
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html
*Add new James Coyne article criticising Cochrane to his page, PACE page & Cochrane page https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/
*Make sure James Coyne's Belfast talk video is included on his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract
*Add a link to this discussion between Elizabeth Dowsett & Peter White to their respective pages https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html
*Make sure the IOM report page incliudes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736%2811%2960696-X/fulltext
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.

=Suggestions - High Priority=
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''

* Add categories for all main page entries (in preparation for move to use category listing extension)
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)

* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here

=Suggestions=
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''

*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation
*Pick a member of the IOM report committee and ensure we have a page on who they are

==Implement acronyms as a category==
http://me-pedia.org/wiki/List_of_acronyms

==Stem cell treatments==

Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)

==Treatments==

A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)

==Basic biochemistry==

* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)

==Infectious disease==

New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Look over the original study and add new information to [[Epstein-Barr virus]] page. Consider also updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)

=Completed=
'''When a task is complete move it HERE'''

*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959

[[Category:User to-dos]]

Jennifer Brea

2016-03-22T12:18:43Z

Simone:Added interview

Founder of #[[MEAction]] (with [[Beth Mazur]]). Founder of [http://www.thriveshow.org/ Thrive Show]]. Director of [[Canary in a Coal Mine]] film.

==Talks and Interviews==
*[http://hwcdn.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?c_id=11198959&expiration=1458653445&hwt=a2af508e00d7e147da703b67289fe339 Women's Media Center with Robin Morgan (March 2016)]

==Online Presence==
*Jennifer is [http://www.twitter.com/jenbrea on Twitter]

Mark VanNess

2016-03-22T05:59:08Z

Simone:/* Online presence */ added weblink

{{Cleanup | reason=page content needs filling out | date=January 2016}}
[[File:MarkVanNess.jpeg|right]]

Dr '''Mark VanNess''' (PhD) is a member of the scientific advisory committee of the [[Workwell Foundation]] which specialises in [[two-day cardiopulmonary exercise testing]] ([[2 day CPET]]) for [[ME/CFS]], [[Fibromyalgia]] and other fatiguing conditions.

==Background==
Mark VanNess obtained a PhD in neuroscience in 1997, and has undertaken postdoctoral study in pharmacology. He has been working with [[ME/CFS]] since 1999, and is particularly interested in issues of autonomic dysfunction, and mechanisms that produce [[post-exertional malaise]].

==Notable studies==
*[https://www.researchgate.net/profile/Mark_Van_Ness/publication/41121299_Postexertional_Malaise_in_Women_with_Chronic_Fatigue_Syndrome/links/00b49521532730549e000000.pdf Post exertional malaise in women with Chronic Fatigue Syndrome]
*[http://iv.iiarjournals.org/content/19/2/387.full.pdf Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome]
*[https://www.researchgate.net/profile/Mark_Van_Ness/publication/10728803_Subclassifying_chronic_fatigue_syndrome_through_exercise_testing/links/0c96051793fc9a83e4000000.pdf Subclassifying Chronic Fatigue Syndrome through exercise testing (2003)]

==Clinic location==
The Workwell Foundation is based in Ripon, California.

==Talks & interviews==
*2014, [https://www.youtube.com/watch?v=q_cnva7zyKM Mark VanNess 'Exercise and ME/CFS' at Bristol Watershed. Part One]

==Online presence==
*PubMed
*Institution
*Twitter
*Facebook
*[http://www.workwellfoundation.org Website]
*YouTube

==Learn more==
*2016, [http://sallyjustme.blogspot.co.uk/2015/01/dr-vanness-on-recent-press-reports.html Dr VanNess on recent press reports] (January)

==See also==
*[[Exercise]]
*[[Workwell Foundation]]

==References==
<references/>

Mark VanNess

2016-03-22T05:54:02Z

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{{Cleanup | reason=page content needs filling out | date=January 2016}}
[[File:MarkVanNess.jpeg|right]]

Dr '''Mark VanNess''' (PhD) is a member of the scientific advisory committee of the [[Workwell Foundation]] which specialises in [[two-day cardiopulmonary exercise testing]] ([[2 day CPET]]) for [[ME/CFS]], [[Fibromyalgia]] and other fatiguing conditions.

==Background==
Mark VanNess obtained a PhD in neuroscience in 1997, and has undertaken postdoctoral study in pharmacology. He has been working with [[ME/CFS]] since 1999, and is particularly interested in issues of autonomic dysfunction, and mechanisms that produce [[post-exertional malaise]].

==Notable studies==
*[https://www.researchgate.net/profile/Mark_Van_Ness/publication/41121299_Postexertional_Malaise_in_Women_with_Chronic_Fatigue_Syndrome/links/00b49521532730549e000000.pdf Post exertional malaise in women with Chronic Fatigue Syndrome]
*[http://iv.iiarjournals.org/content/19/2/387.full.pdf Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome]
*[https://www.researchgate.net/profile/Mark_Van_Ness/publication/10728803_Subclassifying_chronic_fatigue_syndrome_through_exercise_testing/links/0c96051793fc9a83e4000000.pdf Subclassifying Chronic Fatigue Syndrome through exercise testing (2003)]

==Clinic location==
The Workwell Foundation is based in Ripon, California.

==Talks & interviews==
*2014, [https://www.youtube.com/watch?v=q_cnva7zyKM Mark VanNess 'Exercise and ME/CFS' at Bristol Watershed. Part One]

==Online presence==
*PubMed
*Institution
*Twitter
*Facebook
*Website
*YouTube

==Learn more==
*2016, [http://sallyjustme.blogspot.co.uk/2015/01/dr-vanness-on-recent-press-reports.html Dr VanNess on recent press reports] (January)

==See also==
*[[Exercise]]
*[[Workwell Foundation]]

==References==
<references/>

Mark VanNess

2016-03-22T05:52:10Z

Simone:Added photo, brief summary, clinic location and notable studies (probably cleaned up enough for now?)

{{Cleanup | reason=page content needs filling out | date=January 2016}}
[[File:MarkVanNess.jpeg|right]]

Dr '''Mark VanNess''' (PhD) is a member of the scientific advisory committee of the [[Workwell Foundation]] which specialises in cardiopulmonary exercise testing ([[CPET]]) for [[ME/CFS]], [[Fibromyalgia]] and other fatiguing conditions.

==Background==
Mark VanNess obtained a PhD in neuroscience in 1997, and has undertaken postdoctoral study in pharmacology. He has been working with [[ME/CFS]] since 1999, and is particularly interested in issues of autonomic dysfunction, and mechanisms that produce [[post exertional malaise]].

==Notable studies==
*[https://www.researchgate.net/profile/Mark_Van_Ness/publication/41121299_Postexertional_Malaise_in_Women_with_Chronic_Fatigue_Syndrome/links/00b49521532730549e000000.pdf Post exertional malaise in women with Chronic Fatigue Syndrome]
*[http://iv.iiarjournals.org/content/19/2/387.full.pdf Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome]
*[https://www.researchgate.net/profile/Mark_Van_Ness/publication/10728803_Subclassifying_chronic_fatigue_syndrome_through_exercise_testing/links/0c96051793fc9a83e4000000.pdf Subclassifying Chronic Fatigue Syndrome through exercise testing (2003)]

==Clinic location==
The Workwell Foundation is based in Ripon, California.

==Talks & interviews==
*2014, [https://www.youtube.com/watch?v=q_cnva7zyKM Mark VanNess 'Exercise and ME/CFS' at Bristol Watershed. Part One]

==Online presence==
*PubMed
*Institution
*Twitter
*Facebook
*Website
*YouTube

==Learn more==
*2016, [http://sallyjustme.blogspot.co.uk/2015/01/dr-vanness-on-recent-press-reports.html Dr VanNess on recent press reports] (January)

==See also==
*[[Exercise]]
*[[Workwell Foundation]]

==References==
<references/>

File:MarkVanNess.jpeg

2016-03-22T05:39:51Z

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Open Medicine Foundation

2016-03-22T05:37:14Z

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[[File:OMF.png|right]]
The '''Open Medicine Foundation''' (OMF) is a non-profit 501(c)(3) organization established in 2012. It funds and initiates groundbreaking research into complex chronic illnesses. It supports Neuro-Immune Disease research with a focus on [[Chronic Fatigue Syndrome]] ([[CFS]]), [[Myalgic Encephalomyelitis]] ([[ME]]), [[Fibromyalgia]] (FMS), and [[Chronic lyme disease]].

The OMF's current project is the [[End ME/CFS Project]].

== ME/CFS Scientific Advisory Board ==
The advisory board is made up of world-renowned researchers:<ref>[http://www.openmedicinefoundation.org/scientific-advisory-board/ Scientific Advisory Board]</ref>

*Dr. [[Ronald Davis]] (Scientific Advisory Board Director and father of [[Whitney Dafoe]])
*[[Paul Berg]] (cellular metabolism, Nobel laureate)
*[[Mario Capecchi]] (genetics, Nobel laureate)
*[[Mark Davis]] (immunology)
*[[Craig Heller]] (exercise physiology)
*[[Andreas Kogelnik]] (OMI founder)
*[[Robert Naviaux]] (virology & cell biology)
*[[Baldomero Olivera]] (neurobiology & pain)
*[[Ronald Tompkins]] (trauma & metabolism)
*[[James Watson]] (genetics, Nobel laureate)
*[[Wenzhong Xiao]] (computational genomics)

== Research Projects ==
The [[ME/CFS Severely Ill, Big Data Study]] was announced in May, 2015. The most severely ill [[ME/CFS]] patients are being studied to find a diagnostic bio-marker.

== Advocacy ==
The OMF and the Davis-Dafoe Family held two screenings of [[Forgotten Plague]]. Dr. Davis spoke about ME/CFS and research after the screening.<ref>[https://www.tugg.com/titles/forgotten-plague Forgotten Plague, Palo Alto - TUGG]</ref><ref>[https://www.facebook.com/MEActNet/posts/1661003820848684 Forgotten Plague Screening Announcement, Palo Alto - #MEAction]</ref>

Dr. Davis, along with colleagues, have written [[Open Letters]] in reference to research funds and the [[PACE trial]].

== Online Presence ==
*[http://www.openmedicinefoundation.org/ Website]
*[https://www.facebook.com/OpenMedicineFoundation Facebook]
*[https://twitter.com/OpenMedF Twitter]
*[https://www.youtube.com/channel/UC0kN-Gt9WJp7pWZJn2oDUbA YouTube]

==See also==
*[[Ronald Davis]]
*[[Linda Tannenbaum]]

== References ==
<references/>

File:OMF.png

2016-03-22T05:36:25Z

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Suzanne Vernon

2016-03-22T05:34:37Z

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[[File:SuzanneVernon.jpeg|right]]
Suzanne Vernon was the Scientific Director of [[Solve ME/CFS Initiative]] until April 2015.<ref>[http://solvecfs.org/suzanne-d-vernon-steps-down-from-scientific-director-post/ "Suzanne D. Vernon Steps Down from Scientific Director Post"]</ref> She now co-leads the [[Bateman Horne Center]].

==Online Presence==
*[https://twitter.com/SuzanneDVernon Twitter].

==Notable Articles==
*[https://batemanhornecenter.org/get-to-know-bhc-suzanne-vernon-ph-d/ Profile]

==References==
<references/>

Lucinda Bateman

2016-03-22T05:33:54Z

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[[File:LucindaBateman.jpeg|right]]
Dr [https://batemanhornecenter.org/drlucindabateman/ Lucinda Bateman] is an [[ME/CFS]] doctor and researcher. She practices at the [[Bateman Horne Center]].

==References==
<references/>

File:SuzanneVernon.jpeg

2016-03-22T05:33:11Z

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File:LucindaBateman.jpeg

2016-03-22T05:32:42Z

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Ian Lipkin

2016-03-22T05:30:12Z

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[[File:IanLipkin.jpeg|right]]
'''Ian Lipkin''' is a [https://www.mailman.columbia.edu/people/our-faculty/wil2001 researcher at Columbia University Mailman School of Public Health].

== Interviews ==

'''Discover Interview: The World's Most Celebrated Virus Hunter, Ian Lipkin'''

''Discover - Health & Medicine'' By: Grant Delin

"When Ian Lipkin chose a career in infectious diseases, he envisioned hunting for pathogens in daring treks around the world. Though disappointed to learn that modern-day virus hunters work largely from the lab, he still wound up a pioneer."<ref>[http://discovermagazine.com/2012/apr/15-most-celebrated-virus-hunter-ian-lipkin Discover Interview: The World's Most Celebrated Virus Hunter, Ian Lipkin Discover Interview: The World's Most Celebrated Virus Hunter, Ian Lipkin - Discover - Health & Medicine By: Grant Delin]</ref>

== [[ME/CFS]] Research ==
'''Ian Lipkin: Three to Five Years* to Solve''' [[Chronic Fatigue Syndrome]] (ME/CFS)

[[Simmaron Research]] By: [[Cort Johnson]]

"Ian Lipkin flew to Lake Tahoe this December to fundraise for work he’s doing with the Simmaron Research Foundation. In a talk covering his virus hunting career, the threat of pathogens to humanity, and his work with chronic fatigue syndrome (ME/CFS), he dropped a bombshell: he stated that he believes it’s possible to solve ME/CFS in three to five years."
<ref>[http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/#sthash.MnUedapw.dpuf Ian Lipkin: Three to Five Years* to Solve Chronic Fatigue Syndrome (ME/CFS) Simmaron Research By: Cort Johnson]</ref>

'''Ian Lipkin Gets ME/CFS Grant – and So Do Others: the NIH Grants of 2015'''

''Pro-Health'' By: [[Cort Johnson]]

"Ian Lipkin gets a big grant and so did some others. (Could the IOM and P2P reports have prompted this little flurry of interest?)"<ref>[http://www.prohealth.com/library/showarticle.cfm?libid=21162 Ian Lipkin Gets ME/CFS Grant – and So Do Others: the NIH Grants of 2015 - Pro-Health By: Cort Johnson]</ref>

'''Drs Lipkin, [[Mady Hornig]] and colleagues discover robust evidence that chronic fatigue syndrome is a biological illness'''

The [[Microbe Discovery Project]]

"Researchers at the Center for Infection and Immunity at Columbia University’s Mailman School of Public Health identified distinct immune changes in patients diagnosed with chronic fatigue syndrome, known medically as myalgic encephalomyelitis (ME/CFS) or systemic exertion intolerance disease."<ref>[http://www.microbediscovery.org/blog/archives/1287.html Drs Lipkin, Hornig and colleagues discover robust evidence that chronic fatigue syndrome is a biological illness - The Microbe Discovery Project]</ref>

== [[XMRV]] ==
'''The scientist who put the nail in XMRV's coffin'''

''Nature'' By: Ewen Callaway

"A study published today has found no evidence to support research linking the retroviruses XMRV2 and pMLV3 to chronic fatigue syndrome (CFS). The US$2.3-million study, funded by the US National Institutes of Health (NIH), comes three years after a link between XMRV and CFS was first reported in Science (see timeline, below)"<ref>[http://www.nature.com/news/the-scientist-who-put-the-nail-in-xmrv-s-coffin-1.11444 The scientist who put the nail in XMRV's coffin - Nature By: Ewen Callaway]</ref>

== Online Presence ==

[http://www.microbediscovery.org/home.html The Microbe Discovery Project Crowdfunding]

[https://www.youtube.com/watch?v=jxwGSgXlJnE Ian Lipkin, Mady Hornig - Chilli M.E. Challenge - YouTube]

== References ==

File:IanLipkin.jpeg

2016-03-22T05:29:20Z

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Ronald Davis

2016-03-22T05:27:50Z

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[[File:RonaldDavis.jpeg|right]]
'''Ronald Davis''' is Professor of Biochemistry & Genetics, and Director of the Stanford Genome Technology Center at Stanford University. His son, [[Whitney Dafoe]], is severely ill with ME/CFS. Professor Davis leads the [[End ME/CFS Project]] with the [[Open Medicine Foundation]] whose first project is the [[ME/CFS Severely Ill, Big Data Study]].

==ME/CFS Research==
In March 2016, it was announced that the [[ME/CFS Severely Ill, Big Data Study]] had a significant result in the area of [[mitochondria]]. This resulted in the addition of [[Robert Naviaux]] (a mitochondrial expert) to the research team.<ref>http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/</ref>

==Online presence==
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Davis%20RW%5BAuthor%5D&cauthor=true&cauthor_uid=26417115 PubMed]

==Learn more==
*[https://en.wikipedia.org/wiki/Ronald_W._Davis Wikipedia - Ronald Davis]
*2016, [http://www.stanforddaily.com/2016/01/05/tackling-chronic-fatigue-syndrome/ Tackling chronic fatigue syndrome] (January 5)

==See also==
*[[Whitney Dafoe]]
*[[Janet Dafoe]]
*[[Open Medicine Foundation]]
*[[End ME/CFS Project]]

==References==
<references/>

File:RonaldDavis.jpeg

2016-03-22T05:27:01Z

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Rashmi Cabena

2016-03-22T05:26:07Z

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[[File:RashmiCabena.png|right]]

Dr '''Rashmi Cabena''' is a general practitioner who specialises in treating ME/CFS and Lyme disease in Melbourne, Australia.

==Clinic Location==

Dr Cabena works at the CFS Discovery Clinic in Donvale, Melbourne.

Donald Lewis

2016-03-22T05:25:12Z

Simone:Moved photo

[[File:DonaldLewis.png|right]]

Dr '''Donald Lewis''' is a general practitioner specialising in ME/CFS working in Melbourne, [[Australia]]. He has been treating patients with ME/CFS, and researching the condition, since 1985.

==International collaboration==
Dr Lewis was involved in the development of the [[International Consensus Criteria]] (ICC) for [[Myalgic Encephalomyelitis]] (ME).

==Notable Studies==
* 2009 - Increased d-lactic Acid intestinal bacteria in patients with chronic fatigue syndrome<ref name="Sheedy2009"/>
* 2013 - Comorbidity of postural orthostatic tachycardia syndrome and chronic fatigue syndrome in an Australian cohort<ref name="Reynolds2013"/>
* 2015 - Sleep quality and the treatment of intestinal microbiota imbalance in Chronic Fatigue Syndrome: A pilot study<ref name="Jackson2015"/>
* 2016 - Support for the Microgenderome: Associations in a Human Clinical Population<ref name="Wallis2016"/>

==Clinic location==
Dr Lewis founded the [http://www.cfsdiscovery.com.au CFS Discovery] clinic, which is in Donvale, Melbourne.

==Talks & interviews==
* 2011 - Dr Don Lewis: Latest Understanding of ME/CFS (video)<ref name="Lewis2011Emerge"/>

==Online presence==
*[http://www.cfsdiscovery.com.au Website]
*PubMed
*Twitter
*Facebook
*YouTube

==Learn more==
*Wikipedia
*Institution

==See also==

==References==
<references>



<ref name="Sheedy2009">{{citation
| last1 = Sheedy | first1 = John R | authorlink1 = John R Sheedy
| last2 = Wettenhall | first2 = Richard EH | authorlink2 = Richard EH Wettenhall
| last3 = Scanlon | first3 = Denis | authorlink3 = Denis Scanlon
| last4 = Gooley | first4 = Paul R | authorlink4 = Paul R Gooley
| last5 = Lewis | first5 = Donald P | authorlink5 = Donald P Lewis
| last6 = McGregor | first6 = Neil | authorlink6 = Neil McGregor
| last7 = Stapleton | first7 = David I | authorlink7 = David I Stapleton
| last8 = Butt | first8 = Henry L | authorlink8 = Henry L Butt
| last9 = De Meirleir | first9 = Kenny L | authorlink9 = Kenny L De Meirleir
| display-authors = 9
| title = Increased d-lactic Acid intestinal bacteria in patients with chronic fatigue syndrome
| journal = In Vivo | volume = 2009 Jul-Aug;23(4) | page = 621-8
| date = Jul 2009
| pmid = 19567398
| url = http://iv.iiarjournals.org/content/23/4/621.long
}}</ref>

<ref name="Lewis2011Emerge">{{citation
| last1 = Lewis | first1 = Donald P | authorlink1 = Donald P Lewis
| display-authors = 1
| title = Dr Don Lewis: Latest Understanding of ME/CFS (video)
| journal = Emerge Australia Seminar | location = Melbourne
| date = May 2011
| url = https://vimeo.com/107656181
}}</ref>

<ref name="Reynolds2013">{{citation
| last1 = Reynolds | first1 = GK | authorlink1 = GK Reynolds
| last2 = Lewis | first2 = Donald P | authorlink2 = Donald P Lewis
| last3 = Richardson | first3 = AM | authorlink3 = AM Richardson
| last4 = Lidbury | first4 = Brett A | authorlink4 = Brett A Lidbury
| display-authors = 4
| title = Comorbidity of postural orthostatic tachycardia syndrome and chronic fatigue syndrome in an Australian cohort
| journal = Journal of Internal Medicine | volume = Volume 275, Issue 4 | pages = 409–417
| date = April 2014
| pmid = 24206536 | doi = 10.1111/joim.12161
| url = http://onlinelibrary.wiley.com/doi/10.1111/joim.12161/abstract
}}</ref>

<ref name="Jackson2015">{{citation
| last1 = Jackson | first1 = Melinda L | authorlink1 = Melinda L Jackson
| last2 = Butt | first2 = Henry L | authorlink2 = Henry L Butt
| last3 = Ball | first3 = Michelle | authorlink3 = Michelle Ball
| last4 = Lewis | first4 = Donald P | authorlink4 = Donald P Lewis
| last5 = Bruck | first5 = Dorothy | authorlink5 = Dorothy Bruck
| display-authors = 5
| title = Sleep quality and the treatment of intestinal microbiota imbalance in Chronic Fatigue Syndrome: A pilot study
| journal = Sleep Science | volume = 2015 Nov;8(3) | page = 124-33
| date = 23 Oct 2015
| pmid = 26779319 | doi = 10.1016/j.slsci.2015.10.001
| url = http://www.sciencedirect.com/science/article/pii/S1984006315000632
}}</ref>

<ref name="Wallis2016">{{citation
| last1 = Wallis | first1 = Amy | authorlink1 = Amy Wallis
| last2 = Butt | first2 = Henry L | authorlink2 = Henry L Butt
| last3 = Ball | first3 = Michelle | authorlink3 = Michelle Ball
| last4 = Lewis | first4 = Donald P | authorlink4 = Donald P Lewis
| last5 = Bruck | first5 = Dorothy | authorlink5 = Dorothy Bruck
| display-authors = 5
| title = Support for the Microgenderome: Associations in a Human Clinical Population
| journal = Scientific Reports | volume = volume 6; article 19171
| date = 13 Jan 2016
| pmid = 26757840 | doi = 10.1038/srep19171
| url = http://www.nature.com/articles/srep19171
}}</ref>



[[Category:Researchers]]
[[Category:Clinicians]]

Donald Lewis

2016-03-22T05:24:35Z

Simone:Added photo

[[File:DonaldLewis.png]]

Dr '''Donald Lewis''' is a general practitioner specialising in ME/CFS working in Melbourne, [[Australia]]. He has been treating patients with ME/CFS, and researching the condition, since 1985.

==International collaboration==
Dr Lewis was involved in the development of the [[International Consensus Criteria]] (ICC) for [[Myalgic Encephalomyelitis]] (ME).

==Notable Studies==
* 2009 - Increased d-lactic Acid intestinal bacteria in patients with chronic fatigue syndrome<ref name="Sheedy2009"/>
* 2013 - Comorbidity of postural orthostatic tachycardia syndrome and chronic fatigue syndrome in an Australian cohort<ref name="Reynolds2013"/>
* 2015 - Sleep quality and the treatment of intestinal microbiota imbalance in Chronic Fatigue Syndrome: A pilot study<ref name="Jackson2015"/>
* 2016 - Support for the Microgenderome: Associations in a Human Clinical Population<ref name="Wallis2016"/>

==Clinic location==
Dr Lewis founded the [http://www.cfsdiscovery.com.au CFS Discovery] clinic, which is in Donvale, Melbourne.

==Talks & interviews==
* 2011 - Dr Don Lewis: Latest Understanding of ME/CFS (video)<ref name="Lewis2011Emerge"/>

==Online presence==
*[http://www.cfsdiscovery.com.au Website]
*PubMed
*Twitter
*Facebook
*YouTube

==Learn more==
*Wikipedia
*Institution

==See also==

==References==
<references>



<ref name="Sheedy2009">{{citation
| last1 = Sheedy | first1 = John R | authorlink1 = John R Sheedy
| last2 = Wettenhall | first2 = Richard EH | authorlink2 = Richard EH Wettenhall
| last3 = Scanlon | first3 = Denis | authorlink3 = Denis Scanlon
| last4 = Gooley | first4 = Paul R | authorlink4 = Paul R Gooley
| last5 = Lewis | first5 = Donald P | authorlink5 = Donald P Lewis
| last6 = McGregor | first6 = Neil | authorlink6 = Neil McGregor
| last7 = Stapleton | first7 = David I | authorlink7 = David I Stapleton
| last8 = Butt | first8 = Henry L | authorlink8 = Henry L Butt
| last9 = De Meirleir | first9 = Kenny L | authorlink9 = Kenny L De Meirleir
| display-authors = 9
| title = Increased d-lactic Acid intestinal bacteria in patients with chronic fatigue syndrome
| journal = In Vivo | volume = 2009 Jul-Aug;23(4) | page = 621-8
| date = Jul 2009
| pmid = 19567398
| url = http://iv.iiarjournals.org/content/23/4/621.long
}}</ref>

<ref name="Lewis2011Emerge">{{citation
| last1 = Lewis | first1 = Donald P | authorlink1 = Donald P Lewis
| display-authors = 1
| title = Dr Don Lewis: Latest Understanding of ME/CFS (video)
| journal = Emerge Australia Seminar | location = Melbourne
| date = May 2011
| url = https://vimeo.com/107656181
}}</ref>

<ref name="Reynolds2013">{{citation
| last1 = Reynolds | first1 = GK | authorlink1 = GK Reynolds
| last2 = Lewis | first2 = Donald P | authorlink2 = Donald P Lewis
| last3 = Richardson | first3 = AM | authorlink3 = AM Richardson
| last4 = Lidbury | first4 = Brett A | authorlink4 = Brett A Lidbury
| display-authors = 4
| title = Comorbidity of postural orthostatic tachycardia syndrome and chronic fatigue syndrome in an Australian cohort
| journal = Journal of Internal Medicine | volume = Volume 275, Issue 4 | pages = 409–417
| date = April 2014
| pmid = 24206536 | doi = 10.1111/joim.12161
| url = http://onlinelibrary.wiley.com/doi/10.1111/joim.12161/abstract
}}</ref>

<ref name="Jackson2015">{{citation
| last1 = Jackson | first1 = Melinda L | authorlink1 = Melinda L Jackson
| last2 = Butt | first2 = Henry L | authorlink2 = Henry L Butt
| last3 = Ball | first3 = Michelle | authorlink3 = Michelle Ball
| last4 = Lewis | first4 = Donald P | authorlink4 = Donald P Lewis
| last5 = Bruck | first5 = Dorothy | authorlink5 = Dorothy Bruck
| display-authors = 5
| title = Sleep quality and the treatment of intestinal microbiota imbalance in Chronic Fatigue Syndrome: A pilot study
| journal = Sleep Science | volume = 2015 Nov;8(3) | page = 124-33
| date = 23 Oct 2015
| pmid = 26779319 | doi = 10.1016/j.slsci.2015.10.001
| url = http://www.sciencedirect.com/science/article/pii/S1984006315000632
}}</ref>

<ref name="Wallis2016">{{citation
| last1 = Wallis | first1 = Amy | authorlink1 = Amy Wallis
| last2 = Butt | first2 = Henry L | authorlink2 = Henry L Butt
| last3 = Ball | first3 = Michelle | authorlink3 = Michelle Ball
| last4 = Lewis | first4 = Donald P | authorlink4 = Donald P Lewis
| last5 = Bruck | first5 = Dorothy | authorlink5 = Dorothy Bruck
| display-authors = 5
| title = Support for the Microgenderome: Associations in a Human Clinical Population
| journal = Scientific Reports | volume = volume 6; article 19171
| date = 13 Jan 2016
| pmid = 26757840 | doi = 10.1038/srep19171
| url = http://www.nature.com/articles/srep19171
}}</ref>



[[Category:Researchers]]
[[Category:Clinicians]]

File:RashmiCabena.png

2016-03-22T05:21:37Z

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File:DonaldLewis.png

2016-03-22T05:21:02Z

Simone: