MEpedia:Suggested tasks

2018-05-04T10:42:31Z

SiangotME:Moved completed task

This page lists suggestions for improvements or additions to MEpedia.

PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''.

Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).

If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].

==Priority pages for expansion==
'''Science:''' [[Citric acid cycle]], [[Mitochondria]], [[Exercise]], [[Natural killer cell]], [[Central nervous system]], [[Nitric oxide hypothesis]], [[Brain]], [[Brain imaging]], [[Microbiome hypothesis]], [[Primer_for_journalists#Prognosis|Primer for journalists (''Prognosis'' section)]], [[PACE trial]]

=Suggestions - High Priority=
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''

*Add photos of ALL the May (and Belfast in June) Millions Missing protests to the MM page http://me-pedia.org/wiki/Millions_Missing_protests
*Create a page for Lyrica/Pregabalin and add this talk by Alan Light https://www.youtube.com/watch?v=S3CmUJyVBbQ&feature=youtu.be&t=3m1s
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :
**Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)
*Categorize all uncategorized pages (list of uncategorized pages here: http://me-pedia.org/wiki/Special:UncategorizedPages)
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here

=Suggestions - Five Minute Tasks=
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''

*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/
*Add https://twitter.com/Firestormmer/status/734650703847784449
*Add http://www.freezepage.com/1374761286EFCHIYENBE
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859
*Add http://phoenixrising.me/archives/28077
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm
*Add https://selfhacked.com/2016/05/03/mmp9/
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z
*Add http://www.mdpi.com/2075-4418/6/2/16
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641
*Add to MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/
*Add https://pubpeer.com/publications/22870204
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1
*Add https://twitter.com/bengoldacre/status/679228319234195456
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome
*Add https://twitter.com/TomKindlon/status/677173627532402688
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.

*Add to NIH page http://www.healthrising.org/blog/2016/05/26/proposal-vastly-increase-funding-mecfs-nih-passes-first-test/
*Make sure this crucial chart of ME quality of life and related study are included and study referenced http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421

*Add to NAC page https://selfhacked.com/2016/05/27/top-25-science-based-health-benefits-n-acetyl-cysteine-nac/
*Add to mitochondria and Eric Gordon pages http://www.gordonmedical.com/unravelling-complex-chronic-illness/gordon-medical-research-center-now-funding-replication-study-on-cfidsme-findings/
*Add to fatigue page http://www.healthrising.org/blog/2016/05/31/fatigue-japanese-way/
*Make sure we have a page on the GETSET trial http://forums.phoenixrising.me/index.php?threads/getset-graded-exercise-therapy-guided-self-help-treatment-getset.44749/
*Make sure the ME Association page link to purple book gets to the latest one http://www.meassociation.org.uk/2016/06/the-eight-edition-of-our-clinical-and-research-masterwork-is-published-today-1-june-2016/
*Add to NK cell and b cell pages and key author pages http://forums.phoenixrising.me/index.php?threads/novel-identification-and-characterisation-of-transient-receptor-potential-melastatin-3-ion-channels.44932/
*Add to Davis page and severely ill study page http://www.meaction.net/2016/06/04/davis-at-invest-in-me-new-severe-patients-data/
*Add to page on Fisetin https://selfhacked.com/2016/06/04/15-science-based-health-benefits-fisetin-1-favorite/
*Add to Davis and mitochondria and severely ill study pages http://www.meaction.net/2016/06/04/ron-davis-errors-metabolism/
*Add to Weardon page, maybe others http://bmcfampract.biomedcentral.com/articles/10.1186/s12875-016-0453-8
*Add to Davis page and list of news articles https://www.thejournal.ie/readme/me-invisible-illness-2792636-Jun2016/
*Add to microbiome page and Simon Carding page https://www.ncbi.nlm.nih.gov/pubmed/27275835
*Add to cognitive dynsfunction page http://www.healthrising.org/blog/2016/06/12/cognition-chronic-fatigue-syndrome-key-findings/
*Add White study http://www.jpsychores.com/article/S0022-3999(16)30327-0/abstract
*Add to vision page http://www.meresearch.org.uk/news/vision-thesis/
*Add to NIH page http://www.occupycfs.com/2016/06/14/responding-to-the-nih-rfi/
*Add to chronic fatigue page, maybe also primer(s)? http://www.self.com/wellness/2016/06/the-difference-between-chronic-fatigue-syndrome-and-extreme-tiredness/
*Add to OMF and/or severely ill study page http://www.openmedicinefoundation.org/expanded-mecfs-metabolomics-study/
*Add to mtDNA page http://www.nytimes.com/2016/06/24/science/mitochondrial-dna-mothers.html
*This appears to be Kew UK Gov archive, add to relevant page for easy access https://valerieeliotsmith.files.wordpress.com/2015/01/natarchbn141dss.pdf

=Suggestions=
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''

*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/

==Implement acronyms as a category==
http://me-pedia.org/wiki/List_of_acronyms
:I don't think this is necessary? The current abbreviations page serves its function perfectly, as it is alphabetized, linked and has explanatory notes. A category seems like an unnecessary duplication. --[[User:Samsara|Samsara]] ([[User talk:Samsara|talk]]) 02:18, 3 November 2016 (PDT)

==Historical articles==
Add these articles:

*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf
*http://jama.jamanetwork.com/article.aspx?articleid=311962
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false

There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/

==Stem cell treatments==

Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)

==Treatments==

A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)

==Basic biochemistry==

* Cross reference with CFS research to all [[Vitamin]] and [[Mineral]] pages Also [[choline]] and [[essential fatty acid]] --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)

==Infectious disease==

New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)

=Completed=
'''When a task is complete move it HERE'''

*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448 [Note: no digital record of 1997 Guardian article; original journal article cited in Guardian and pdf included under authors and journal pages]
* Create a page for "Cell danger response", link to Wikipedia, link to our mitochondria page (both ways) and add this https://www.ncbi.nlm.nih.gov/pubmed/23981537 [Note: there is no Wikipedia page for cell danger response]
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350
*Add recent White paper on attitudes to treatment http://www.ncbi.nlm.nih.gov/pubmed/27521650
*Fix VanElzakker quote references: http://twitter.com/MBVanElzakker/status/770364493415219200 and http://twitter.com/MBVanElzakker/status/772885740669767680 and http://twitter.com/MBVanElzakker/status/765686260195332096 [Note: These quotes were opted not to be included because better quotes were found.] -- [[User:Kmdenmark|Kmdenmark]]
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612
*Add to ME/CFS page, and also consider adding to one or more primers http://www.openmedicinefoundation.org/what-is-mecfs/
*Add to author pages, and a topic page for drugs https://www.ncbi.nlm.nih.gov/pubmed/27229907
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/ (broken link)
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311
*Add to page on cell danger response https://www.ncbi.nlm.nih.gov/pubmed/23981537
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract (link broken)
*Ensure all the studies from this excellent document are in the relevant pages (topics, authors) in MEpedia https://drive.google.com/file/d/0B_Dn3IXWlI9fTGdpSjkzcmtWRUU/view
*Add Tuller/Racaniello pieces to Tuller & PACE pages http://www.virology.ws/2016/09/01/trial-by-error-continued-my-questions-for-lancet-editor-richard-horton/ http://www.virology.ws/2016/08/29/once-again-lancet-stumbles-on-pace/ http://www.virology.ws/2016/09/06/open-letter-to-queen-mary-university-london-about-pace/ http://www.virology.ws/2016/09/22/trial-by-error-continued-the-real-data/ http://www.virology.ws/2016/09/21/no-recovery-in-pace-trial-new-analysis-finds/
*Add the infamous house of lords discussion from 2013 to PACE and countess of mar pages https://youtu.be/Fo5hdL7zXxQ?t=1 and the transcript http://www.meassociation.org.uk/2013/02/house-of-lords-debates-the-pace-trial-verbatim-report-and-youtube-6-february-2013/
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/
*Add article by QMUL student http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/
*Add blog post data release http://www.thefacultylounge.org/2016/09/the-pace-study-results-exposed-as-meaningless-and-harmful.html
*Add Rehmeyer Statnews piece https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/
*Add news coverage of data release http://www.appliedclinicaltrialsonline.com/tribunal-orders-release-withheld-data-london-trial and http://www.sbs.com.au/news/thefeed/article/2016/08/29/do-you-suffer-chronic-fatigue-syndrome-theres-some-good-news-you and http://www.wsj.com/articles/patients-scientists-fight-over-research-data-access-1457394712 http://www.meaction.net/2016/09/09/qmul-releases-pace-data/ https://www.wddty.com/news/2016/09/chronic-fatigue-sufferers-getting-the-wrong-treatment-thanks-to-a-falsified-study.html http://nymag.com/scienceofus/2016/09/a-big-chronic-fatigue-syndrome-study-has-been-discredited.html?mid=twitter-share-scienceofus http://occupyme.net/2016/09/21/pace-grossly-exaggerated/ http://uk.businessinsider.com/flawed-lancet-study-me-cfs-chronic-fatigue-2016-9
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf
*Add http://dspace.nwu.ac.za/handle/10394/17668
*Add to Maryann Spurgin page http://www.meadvocacy.org/circulatory_impairment
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5
*Add to CMRC page http://www.meresearch.org.uk/news/cmrc-agm-2016-conference-news/
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS
*Add to Unumatz page http://www.eurekalert.org/pub_releases/2016-06/jl-nft060716.php
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/
*Add to [[Enterovirus]] http://www.ncbi.nlm.nih.gov/pubmed/2161907
*Add to Neil McGregor page https://meaustralia.net/2016/08/08/meet-the-scientists-dr-neil-mcgregor/
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09
*Add the Morris/Maes papers to both their pages and relevant topic pages, a list is here http://forums.phoenixrising.me/index.php?threads/can-you-help-working-on-mitochondria-page.45729/page-2#post-744173
*Add to Q Fever page https://cfsremission.wordpress.com/2016/05/28/post-infection-fatigue/
*Add to NIH page http://forums.phoenixrising.me/index.php?threads/transcript-of-dr-vicky-whittemores-me-cfs-proposal-to-the-nih-council-26-may-2016.44845/
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html
*Add to IiME conference page http://www.healthrising.org/blog/2016/06/09/bacteria-brainstem-rituximab-progress-invest-me-chronic-fatigue-syndrome/
*Add to IiME conference page http://phoenixrising.me/archives/28153
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/
*Add these THREE segments of interview with Alan Light https://www.youtube.com/watch?v=ZZyXUL7CPks&feature=youtu.be
*Add book http://www.meaction.net/2016/06/16/new-mecfs-book-lighting-up-a-hidden-world/
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/ added to [[Spain]], [[Epidemiology]], [[Suicide]]
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487
*Add to melatonin page https://www.ncbi.nlm.nih.gov/pubmed/27226183
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be
*Add a photo of Ampligen to the page
*copy Tuller articles from PACE Trial to Tuller page (already done by someone)
*Make sure the Glenn Beck page links back to this post https://www.facebook.com/GlennBeck/posts/10153736242213188
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI
*Added the appropriate Linus Pauling Institute page to all vitamins and minerals pages
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html
*Add https://www.youtube.com/watch?v=bCUvygbYdXs
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be
https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843
*Add https://twitter.com/EUROMEALL
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743
*Add https://www.youtube.com/watch?v=87zAPTEtxas
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be
*Add Ron Davis MM interview to his page https://www.youtube.com/watch?v=fiSPS85sTkw&feature=youtu.be
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090
*Add a picture of Rituximab to the Rituximab page
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be
*Make sure this study is on author pages and maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799
*Make sure this study is on NK cell page https://www.ncbi.nlm.nih.gov/pubmed/2824604
*Add to POTS page http://forums.phoenixrising.me/index.php?threads/is-postural-orthostatic-tachycardia-a-useful-diagnostic-marker-in-chronic-fatigue-syndrome-patients.44915/
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093
*Add to microbiome page https://cfsremission.wordpress.com/2016/06/25/83-accuracy-in-mecfs-diagnosis-with-microbiome-analysis/
*Add https://www.ncbi.nlm.nih.gov/pubmed/27223465
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/
*Pick a member of the IOM report committee and ensure we have a page on who they are [[Institute_of_Medicine_report]] page
*Add this Q-fever article on persistence post-infection http://qjmed.oxfordjournals.org/content/95/12/832.long
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf
*Immunosuppression from Rituximab may cause reactivation of a persistent enteroviral infection with potentially dangerous neurological complications http://www.sciencedirect.com/science/article/pii/S0042682210007683
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html

[[Category:User to-dos]]
[[Category:MEpedia guidelines]]

MEpedia - User contributions [en]

MEpedia:Suggested tasks

Merryn Crofts

Merryn Crofts