MEpedia - User contributions [en]

User talk:Robin Brown

2021-03-04T08:07:19Z

Robin Brown:/* Re: Book translations -- Robin Brown (talk) 07:54, March 4, 2021 (UTC) */

{{Template:Welcome|realName=Dr. K.N. Hng|name=Robin Brown}}

-- [[User:New user message|New user message]] ([[User talk:New user message|talk]]) 14:19, January 29, 2021 (UTC)

== -- ~[[User:Notjusttired|Njt]] ([[User talk:Notjusttired|talk]]) 06:04, March 1, 2021 (UTC) ==

==Book translations ==
Hi. I edited your [[Robin Brown]] page, but I think it could cover more about the advocacy side including the stop GET campaigning. I think I remember that you co-wrote a CPD course with Nina Muirhead but I don't have the link to add it. I also wasn't sure whether to describe you as having severe ME given your new book cover, or whether your ME has improved since then. Open letters, editorials or blogs can also be added to pages of advocates. Perhaps you could add to the content here?

Most of the links from the Robin Brown would be better added to individual pages about the topics, especially in the "Learn more" sections, but there is also an editor page you can create at [[User:Robin Brown]] for adding your list of links and resources. E.g., [[Illness beliefs]], [[graded exercise therapy]].

For your book page, but I was only able to find translations in French and Czech. If there are translations for the other languages could you link to them from [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]]?

Lastly, when you are editing any multiple spaces or tabs are ignored unless you either edit in the [[Help:visual editor|visual editor]] or you add the Wikipedia text code. Usually we just bullet points (*) to list items and the standard headings from [[MEpedia:Article outlines]]. Columns often don't work well in different sizes such as mobiles. There's some info on the help pages about the wikitext code. ~[[User:Notjusttired|Njt]] ([[User talk:Notjusttired|talk]]) 06:04, March 1, 2021 (UTC)

===Re: Book translations -- [[User:Robin Brown|Robin Brown]] ([[User talk:Robin Brown|talk]]) 07:54, March 4, 2021 (UTC)===

: Replace this text with your reply

Hi there, thanks! What do I call you, if I may ask?
I'm struggling to understand all these instructions right now. As you have seen, I had a go at updating my page lol, and just about figured out how to add links. I like your revision - just one spelling error which I will correct. The book isn't available in Spanish or German yet, I will correct that too.

====Re: Re: Book translations -- [[User:Robin Brown|Robin Brown]] ([[User talk:Robin Brown|talk]]) 08:07, March 4, 2021 (UTC)====

:: Replace this text with your reply
Also forgot to say - I don't know how to do cross links, where you take the reader to a different page in mepedia. I have made the corrections above. Thank you for your help.

Robin Brown

2021-03-04T08:05:06Z

Robin Brown:Added external link to book.

[[File:Robin Brown.jpg|200px|thumb|right|]]
'''Dr. K.N. Hng''', also known as '''Robin Brown''', is a [[United Kingdom|British]] physician with [[ME/CFS]]. Dr. Hng authored the book, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]], which chronicles her experience as a Gastroenterology trainee who developed [[ME/CFS]]. The book is also published under the name '''Doctor with M.E.: My journey with "Chronic Fatigue Syndrome"'''.<ref name="doctorwithmeuk" />

In addition to the book, Dr. Hng has produced many patient resources which she regularly posts on social media. These resources are continually updated, and many are also available in multiple languages.

==Advocacy ==
===NICE ME/CFS guideline submission===
Dr Hng wrote a group submission to the UK's [[National Institute for Health and Care Excellence]] ME/CFS guideline consultation on December 2020.
Signatories included Dr. [[Nina Muirhead]], Dr. [[Nigel Speight]], Dr. [[Jonathan Kerr]], Prof. [[Malcolm Hooper]], Dr. [[Sarah Myhill]], Dr. [[Karl Morten]], Natalie Boulton, and the [[MillionsMissing France]] patient group.<ref name="NICE2020">{{Cite web|url=https://drive.google.com/file/d/1dfgfkZLBgWwwYWk2nxtaOqCSMnSHviXW/view|date =Dec 2020|title = Dr. Hng Group Submission ME/CFS guideline|last=Brown |first =Robin}}</ref>

===Petition to NICE===
*[http://chng.it/rY7BJX7c Stop harming ME/CFS patients - take CBT/GET out of NICE guidelines NOW]
[https://drive.google.com/file/d/1FVcJTsE6oi-n7SYk-Eh2ZGPhnApqlNjb/view Petition progress] is chronicled online.

== Resources ==
*[http://bit.ly/DrHngLetter-w-Book Accompanying letter for patients who wish to give the book to their doctor (English)]
[http://bit.ly/HngLetter-w-book-French French]
[http://bit.ly/HngLetter-w-book-Pol Letter in Polish]
[http://bit.ly/HngLetter-w-book-Italian Italian]

===Free handout ===
*[http://bit.ly/Intro2MEbyDrHng An Introduction to Myalgic Encephalomyelitis] (English)
[http://bit.ly/DrHngIntro2ME-French French] [http://bit.ly/DrHngIntro2ME-Pol Polish] [http://bit.ly/Intro2MEdrHng-Italian Italian]
[http://bit.ly/DrHngIntro2ME-Rus Russian]
*[http://bit.ly/ProtectYrself-1 Protect yourself from forced treatments] - for patients being forced to undergo Graded Exercise Therapy, or CBT to correct your "erroneous illness beliefs"

===Ill Health Retirement Case Example===
*[http://bit.ly/IHRpackage Case Example]
*[http://bit.ly/ExampleMEsymptoms Example symptoms list for ill health retirement, insurance or social security applications]

==Books==
*2019, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]]<ref name="doctorwithmeuk">{{Cite book|date=2019|title =M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome|url=https://smile.amazon.co.uk/M-Me-Doctors-Struggle-Syndrome-ebook/dp/B07QZ7P34C|last=Hng|first=KN|isbn= 1094624691|edition=4}}</ref>
Available on [https://www.amazon.com/dp/1094624691 Amazon]. Translations are available in [https://www.amazon.fr/dp/1073403629 French], [https://www.amazon.co.uk/dp/B08CBP87ZW Polish] and [https://www.amazon.co.uk/J%C3%A1-m%C3%A9-ME-chronickym-syndromem/dp/1983448427 Czech]
[[File:M.E. and Me .jpg|thumb|718x718px|M.E. and Me book cover]]
* [https://www.amazon.co.uk/dp/1796715468 Doctor with ME: My journey with "Chronic Fatigue Syndrome"]
Dr. Hng's book is written with both the busy clinician and the [[cognitive dysfunction |brain fogged]] patient in mind. Her personal story is followed up with many educational resources. The book aims to serve as a starting point for clinicians learning about ME, and to provide a helpful way for patients to easily explain the problems caused by [[chronic fatigue syndrome]] to friends and family who do not understand.

==Research studies ==
* 2018, Audit study: Doctors’ knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom<ref>{{citation|url =https://drive.google.com/file/d/1R6MgsNuEjdj1fsfJds5bJ2MAACSogOXn/view|title=Doctors' knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom|date=Nov 2018|last=Hng|first=K.N.|access-date=2021-03-01}} </ref>

== Online presence==
*[https://www.facebook.com/RobinBrown76 Facebook profile] (Robin Brown)
*[https://www.facebook.com/groups/drhngsfriends/ Facebook group]
*[http://bit.ly/drHngPage Dr. Hng's Facebook Page]
*[http://www.twitter.com/DoctorwithME Twitter]

==See also==
* [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]]
* [[National Health Service]]
* [[National Institute for Health and Care Excellence]]
* [[NICE guidelines]]
* [[Graded exercise therapy]]
* [[Cognitive behavioral therapy]]
* [[Severe and very severe ME]]

==References ==
{{Reflist}}

[[Category:People with ME, CFS, and/or FMS]]
[[Category:Advocates or allies]]
[[Category:Psychological paradigm critics]]

Robin Brown

2021-03-04T08:02:18Z

Robin Brown:Added link to the other book

[[File:Robin Brown.jpg|200px|thumb|right|]]
'''Dr. K.N. Hng''', also known as '''Robin Brown''', is a [[United Kingdom|British]] physician with [[ME/CFS]]. Dr. Hng authored the book, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]], which chronicles her experience as a Gastroenterology trainee who developed [[ME/CFS]]. The book is also published under the name '''Doctor with M.E.: My journey with "Chronic Fatigue Syndrome"'''.<ref name="doctorwithmeuk" />

In addition to the book, Dr. Hng has produced many patient resources which she regularly posts on social media. These resources are continually updated, and many are also available in multiple languages.

==Advocacy ==
===NICE ME/CFS guideline submission===
Dr Hng wrote a group submission to the UK's [[National Institute for Health and Care Excellence]] ME/CFS guideline consultation on December 2020.
Signatories included Dr. [[Nina Muirhead]], Dr. [[Nigel Speight]], Dr. [[Jonathan Kerr]], Prof. [[Malcolm Hooper]], Dr. [[Sarah Myhill]], Dr. [[Karl Morten]], Natalie Boulton, and the [[MillionsMissing France]] patient group.<ref name="NICE2020">{{Cite web|url=https://drive.google.com/file/d/1dfgfkZLBgWwwYWk2nxtaOqCSMnSHviXW/view|date =Dec 2020|title = Dr. Hng Group Submission ME/CFS guideline|last=Brown |first =Robin}}</ref>

===Petition to NICE===
*[http://chng.it/rY7BJX7c Stop harming ME/CFS patients - take CBT/GET out of NICE guidelines NOW]
[https://drive.google.com/file/d/1FVcJTsE6oi-n7SYk-Eh2ZGPhnApqlNjb/view Petition progress] is chronicled online.

== Resources ==
*[http://bit.ly/DrHngLetter-w-Book Accompanying letter for patients who wish to give the book to their doctor (English)]
[http://bit.ly/HngLetter-w-book-French French]
[http://bit.ly/HngLetter-w-book-Pol Letter in Polish]
[http://bit.ly/HngLetter-w-book-Italian Italian]

===Free handout ===
*[http://bit.ly/Intro2MEbyDrHng An Introduction to Myalgic Encephalomyelitis] (English)
[http://bit.ly/DrHngIntro2ME-French French] [http://bit.ly/DrHngIntro2ME-Pol Polish] [http://bit.ly/Intro2MEdrHng-Italian Italian]
[http://bit.ly/DrHngIntro2ME-Rus Russian]
*[http://bit.ly/ProtectYrself-1 Protect yourself from forced treatments] - for patients being forced to undergo Graded Exercise Therapy, or CBT to correct your "erroneous illness beliefs"

===Ill Health Retirement Case Example===
*[http://bit.ly/IHRpackage Case Example]
*[http://bit.ly/ExampleMEsymptoms Example symptoms list for ill health retirement, insurance or social security applications]

==Books==
*2019, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]]<ref name="doctorwithmeuk">{{Cite book|date=2019|title =M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome|url=https://smile.amazon.co.uk/M-Me-Doctors-Struggle-Syndrome-ebook/dp/B07QZ7P34C|last=Hng|first=KN|isbn= 1094624691|edition=4}}</ref>
Translations are available in [https://www.amazon.fr/dp/1073403629 French], [https://www.amazon.co.uk/dp/B08CBP87ZW Polish] and [https://www.amazon.co.uk/J%C3%A1-m%C3%A9-ME-chronickym-syndromem/dp/1983448427 Czech]
[[File:M.E. and Me .jpg|thumb|718x718px|M.E. and Me book cover]]
* [https://www.amazon.co.uk/dp/1796715468 Doctor with ME: My journey with "Chronic Fatigue Syndrome"]
Dr. Hng's book is written with both the busy clinician and the [[cognitive dysfunction |brain fogged]] patient in mind. Her personal story is followed up with many educational resources. The book aims to serve as a starting point for clinicians learning about ME, and to provide a helpful way for patients to easily explain the problems caused by [[chronic fatigue syndrome]] to friends and family who do not understand.

==Research studies ==
* 2018, Audit study: Doctors’ knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom<ref>{{citation|url =https://drive.google.com/file/d/1R6MgsNuEjdj1fsfJds5bJ2MAACSogOXn/view|title=Doctors' knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom|date=Nov 2018|last=Hng|first=K.N.|access-date=2021-03-01}} </ref>

== Online presence==
*[https://www.facebook.com/RobinBrown76 Facebook profile] (Robin Brown)
*[https://www.facebook.com/groups/drhngsfriends/ Facebook group]
*[http://bit.ly/drHngPage Dr. Hng's Facebook Page]
*[http://www.twitter.com/DoctorwithME Twitter]

==See also==
* [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]]
* [[National Health Service]]
* [[National Institute for Health and Care Excellence]]
* [[NICE guidelines]]
* [[Graded exercise therapy]]
* [[Cognitive behavioral therapy]]
* [[Severe and very severe ME]]

==References ==
{{Reflist}}

[[Category:People with ME, CFS, and/or FMS]]
[[Category:Advocates or allies]]
[[Category:Psychological paradigm critics]]

Robin Brown

2021-03-04T07:58:44Z

Robin Brown:minor edits

[[File:Robin Brown.jpg|200px|thumb|right|]]
'''Dr. K.N. Hng''', also known as '''Robin Brown''', is a [[United Kingdom|British]] physician with [[ME/CFS]]. Dr. Hng authored the book, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]], which chronicles her experience as a Gastroenterology trainee who developed [[ME/CFS]]. The book is also published under the name '''Doctor with M.E.: My journey with "Chronic Fatigue Syndrome"'''.<ref name="doctorwithmeuk" />

In addition to the book, Dr. Hng has produced many patient resources which she regularly posts on social media. These resources are continually updated, and many are also available in multiple languages.

==Advocacy ==
===NICE ME/CFS guideline submission===
Dr Hng wrote a group submission to the UK's [[National Institute for Health and Care Excellence]] ME/CFS guideline consultation on December 2020.
Signatories included Dr. [[Nina Muirhead]], Dr. [[Nigel Speight]], Dr. [[Jonathan Kerr]], Prof. [[Malcolm Hooper]], Dr. [[Sarah Myhill]], Dr. [[Karl Morten]], Natalie Boulton, and the [[MillionsMissing France]] patient group.<ref name="NICE2020">{{Cite web|url=https://drive.google.com/file/d/1dfgfkZLBgWwwYWk2nxtaOqCSMnSHviXW/view|date =Dec 2020|title = Dr. Hng Group Submission ME/CFS guideline|last=Brown |first =Robin}}</ref>

===Petition to NICE===
*[http://chng.it/rY7BJX7c Stop harming ME/CFS patients - take CBT/GET out of NICE guidelines NOW]
[https://drive.google.com/file/d/1FVcJTsE6oi-n7SYk-Eh2ZGPhnApqlNjb/view Petition progress] is chronicled online.

== Resources ==
*[http://bit.ly/DrHngLetter-w-Book Accompanying letter for patients who wish to give the book to their doctor (English)]
[http://bit.ly/HngLetter-w-book-French French]
[http://bit.ly/HngLetter-w-book-Pol Letter in Polish]
[http://bit.ly/HngLetter-w-book-Italian Italian]

===Free handout ===
*[http://bit.ly/Intro2MEbyDrHng An Introduction to Myalgic Encephalomyelitis] (English)
[http://bit.ly/DrHngIntro2ME-French French] [http://bit.ly/DrHngIntro2ME-Pol Polish] [http://bit.ly/Intro2MEdrHng-Italian Italian]
[http://bit.ly/DrHngIntro2ME-Rus Russian]
*[http://bit.ly/ProtectYrself-1 Protect yourself from forced treatments] - for patients being forced to undergo Graded Exercise Therapy, or CBT to correct your "erroneous illness beliefs"

===Ill Health Retirement Case Example===
*[http://bit.ly/IHRpackage Case Example]
*[http://bit.ly/ExampleMEsymptoms Example symptoms list for ill health retirement, insurance or social security applications]

==Books==
*2019, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]]<ref name="doctorwithmeuk">{{Cite book|date=2019|title =M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome|url=https://smile.amazon.co.uk/M-Me-Doctors-Struggle-Syndrome-ebook/dp/B07QZ7P34C|last=Hng|first=KN|isbn= 1094624691|edition=4}}</ref>
Translations are available in [https://www.amazon.fr/dp/1073403629 French], [https://www.amazon.co.uk/dp/B08CBP87ZW Polish] and [https://www.amazon.co.uk/J%C3%A1-m%C3%A9-ME-chronickym-syndromem/dp/1983448427 Czech]
[[File:M.E. and Me .jpg|thumb|718x718px|M.E. and Me book cover]]

Dr. Hng's book is written with both the busy clinician and the [[cognitive dysfunction |brain fogged]] patient in mind. Her personal story is followed up with many educational resources. The book aims to serve as a starting point for clinicians learning about ME, and to provide a helpful way for patients to easily explain the problems caused by [[chronic fatigue syndrome]] to friends and family who do not understand.

==Research studies ==
* 2018, Audit study: Doctors’ knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom<ref>{{citation|url =https://drive.google.com/file/d/1R6MgsNuEjdj1fsfJds5bJ2MAACSogOXn/view|title=Doctors' knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom|date=Nov 2018|last=Hng|first=K.N.|access-date=2021-03-01}} </ref>

== Online presence==
*[https://www.facebook.com/RobinBrown76 Facebook profile] (Robin Brown)
*[https://www.facebook.com/groups/drhngsfriends/ Facebook group]
*[http://bit.ly/drHngPage Dr. Hng's Facebook Page]
*[http://www.twitter.com/DoctorwithME Twitter]

==See also==
* [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]]
* [[National Health Service]]
* [[National Institute for Health and Care Excellence]]
* [[NICE guidelines]]
* [[Graded exercise therapy]]
* [[Cognitive behavioral therapy]]
* [[Severe and very severe ME]]

==References ==
{{Reflist}}

[[Category:People with ME, CFS, and/or FMS]]
[[Category:Advocates or allies]]
[[Category:Psychological paradigm critics]]

User talk:Robin Brown

2021-03-04T07:54:31Z

Robin Brown:/* Book translations */

Robin Brown

2021-02-25T10:35:29Z

Robin Brown:

{{stub}}
[[File:Robin Brown.jpg|200px|thumb|right|]]
'''Dr. K.N. Hng''', also known as '''Robin Brown''', is a [[United Kingdom|British]] physician with [[ME/CFS]]. Dr. Hng authored the book, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]], which chronicles her experience as a Gastroenterology trainee who developed [[ME/CFS]]. The book has a twin, Doctor with M.E.: My journey with "Chronic Fatigue Syndrome". Identical on the inside, the different name and cover may appeal to a different audience.

Dr. Hng's book is written with both the busy clinician and the brain fogged patient in mind. Pocket sized and double spaced, it is an easy read. Her compelling personal story is followed up with much useful information. In particular, educational resources are attractively presented and summarised. This book serves as the ideal starting point for clinicians learning about ME. It is also a useful way for patients to easily explain their problems to friends and family who do not understand.

In addition to the book, Dr. Hng has produced many other resources which she regularly posts on Facebook. These resources are continually updated, and many are also available in multiple languages. Translation work is ongoing so watch this space!

==Books, Research and NICE guideline==

'''M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome'''

[http://bit.ly/HngMEandMe_Ed4_UK Amazon UK] [http://bit.ly/HngMEandMe_Ed4_US Amazon US] [https://www.amazon.ca/dp/1094624691 Amazon Canada] [https://www.amazon.co.jp/dp/1094624691 Amazon Japan]

[https://www.amazon.de/dp/1094624691 Amazon Germany] [https://www.amazon.fr/dp/1073403629 Amazon France] [https://www.amazon.it/dp/1094624691 Amazon Italy] [https://www.amazon.es/dp/1094624691 Amazon Spain][[File:M.E. and Me .jpg|thumb|718x718px|M.E. and Me book cover]]

'''Doctor with M.E.: My journey with "Chronic Fatigue Syndrome"'''

[http://bit.ly/DoctorWithME_UK Amazon UK] [http://bit.ly/DoctorWithME_US Amazon US] [https://www.amazon.ca/dp/1796715468 Amazon Canada] [https://www.amazon.co.jp/dp/1796715468 Amazon Japan]

[https://www.amazon.de/dp/1796715468 Amazon Germany] [https://www.amazon.fr/dp/1796715468 Amazon France] [https://www.amazon.it/dp/1796715468 Amazon Italy] [https://www.amazon.es/dp/1796715468 Amazon Spain]

*

*

*

'''Audit study: Doctors’ knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom 2018'''

https://bit.ly/2yFAtY8 https://bit.ly/DocKnME2018-French

'''NICE ME/CFS guideline consultation, group submission.'''

Signatories include Dr. Nina Muirhead, Dr. Nigel Speight, Dr. Jonathan Kerr, Prof. Malcolm Hooper, Dr. Sarah Myhill, Dr. Karl Morten, Natalie Boulton, Millions Missing France. Dec 2020. [http://bit.ly/HNG-group-submission-NICE Dr. Hng Group Submission ME/CFS guideline]

'''Petition to NICE:''' '''Stop harming ME/CFS patients - take CBT/GET out of NICE guidelines NOW.'''

Petition page at: http://chng.it/rY7BJX7c

Progress chronicled at: http://bit.ly/NICEstopCBTGETnow

== Other Resources ==

'''Accompanying letter.''' Give with the book to your doctor.

[http://bit.ly/DrHngLetter-w-Book Letter in English] [http://bit.ly/HngLetter-w-book-French Letter in French] [http://bit.ly/HngLetter-w-book-Pol Letter in Polish] [http://bit.ly/HngLetter-w-book-Italian Letter in Italian]

'''A free handout,''' '''"An Introduction to Myalgic Encephalomyelitis"'''

[http://bit.ly/Intro2MEbyDrHng Handout in English] [http://bit.ly/DrHngIntro2ME-French Handout in French] [http://bit.ly/DrHngIntro2ME-Pol Handout in Polish] [http://bit.ly/Intro2MEdrHng-Italian Handout in Italian] [http://bit.ly/DrHngIntro2ME-Rus Handout in Russian]

'''Photos''': A picture says a thousand words!

[http://bit.ly/DrHngPhotos2 Dr. Hng's Photos]
[[File:Doctor with M.E. book cover.jpg|thumb|718x718px|Doctor with M.E. book cover]]

'''Protect yourself''' if you are being forced to undergo Graded Exercise Therapy, or CBT to correct your "erroneous illness beliefs":

http://bit.ly/ProtectYrself-1

Additional (third party) links for Long Covid patients who suffer Post-Exertional Malaise:

https://longcovid.physio/exercise [https://www.nice.org.uk/guidance/gid-ng10091/documents/statement NICE statement on exercise for Covid-19]

'''Ill Health Retirement (IHR):'''

[http://bit.ly/IHRpackage Case Example]

[http://bit.ly/SicknessPensionRv Literature review on Work Rehabilitation and Medical Retirement by Mark Vink]

Example symptoms list for IHR, insurance or social welfare applications. Modify for your own use. http://bit.ly/ExampleMEsymptoms

== Find me at: ==
[https://www.facebook.com/RobinBrown76?hc_ref=ARS2IVPUHah35qebAfedrEIKFkyUieP_ggZcKzslkyAlyiOWpmx6MNRspA6DrB4A9H8&fref=nf&__tn__=CH-R Facebook] (Robin Brown)

[https://www.facebook.com/groups/drhngsfriends/ Facebook group]

[http://bit.ly/drHngPage Dr. Hng's Facebook Page]

[http://www.twitter.com/DoctorwithME Twitter] (group contribution by patient community)

==See also==

* [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]]
* [[NHS ]]
* [[NICE]]
* [[NICE guidelines]]

[[Category:People with ME, CFS, and/or FMS]]
[[Category:Advocates or allies]]

Robin Brown

2021-01-29T20:40:28Z

Robin Brown:Updates in progress

{{stub}}
[[File:Robin Brown.jpg|200px|thumb|right|]]
'''Dr. K.N. Hng''', also known as '''Robin Brown''', is a [[United Kingdom|British]] physician with [[ME/CFS]]. Dr. Hng authored the book, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]], which chronicles her experience as a Gastroenterology trainee who developed [[ME/CFS]]. The book has a twin, Doctor with M.E.: My journey with "Chronic Fatigue Syndrome". Identical on the inside, the different name and cover may appeal to a different audience.

Dr. Hng's book is written with both the busy clinician and the brain fogged patient in mind. Pocket sized and double spaced, it is an easy read. Her personal story is followed up with much useful information. In particular, educational resources are attractively presented and summarised. This book serves beautifully as a starting point for clinicians learning about ME. It is also a useful way for patients to easily explain their problems to friends and family who do not understand.

In addition to the book, Dr. Hng has produced many other resources which she regularly posts on Facebook. These resources are continually updated, and many are also available in multiple languages. Translation work is ongoing so watch this space!

==Books, Research and NICE guideline==

'''M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome'''

[http://bit.ly/HngMEandMe_Ed4_UK Amazon UK] [http://bit.ly/HngMEandMe_Ed4_US Amazon US] [https://www.amazon.ca/dp/1094624691 Amazon Canada] [https://www.amazon.co.jp/dp/1094624691 Amazon Japan]

[https://www.amazon.de/dp/1094624691 Amazon Germany] [https://www.amazon.fr/dp/1073403629 Amazon France] [https://www.amazon.it/dp/1094624691 Amazon Italy] [https://www.amazon.es/dp/1094624691 Amazon Spain][[File:M.E. and Me .jpg|thumb|718x718px|M.E. and Me book cover]]

'''Doctor with M.E.: My journey with "Chronic Fatigue Syndrome"'''

[http://bit.ly/DoctorWithME_UK Amazon UK] [http://bit.ly/DoctorWithME_US Amazon US] [https://www.amazon.ca/dp/1796715468 Amazon Canada] [https://www.amazon.co.jp/dp/1796715468 Amazon Japan]

[https://www.amazon.de/dp/1796715468 Amazon Germany] [https://www.amazon.fr/dp/1796715468 Amazon France] [https://www.amazon.it/dp/1796715468 Amazon Italy] [https://www.amazon.es/dp/1796715468 Amazon Spain]

*

*

*

'''Doctors’ knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom 2018'''

https://bit.ly/2yFAtY8 https://bit.ly/DocKnME2018-French

'''NICE ME/CFS guideline consultation, group submission.'''

Signatories include Dr. Nina Muirhead, Dr. Nigel Speight, Dr. Jonathan Kerr, Prof. Malcolm Hooper, Dr. Sarah Myhill, Dr. Karl Morten, Natalie Boulton, Millions Missing France. Dec 2020. [http://bit.ly/HNG-group-submission-NICE Dr. Hng Group Submission ME/CFS guideline]

'''Petition to NICE:''' '''Stop harming ME/CFS patients - take CBT/GET out of NICE guidelines NOW.'''

Petition page at: http://chng.it/rY7BJX7c

Progress chronicled at: http://bit.ly/NICEstopCBTGETnow

== Other Resources ==

'''Accompanying letter.''' Give with the book to your doctor.

[http://bit.ly/DrHngLetter-w-Book Letter in English] [http://bit.ly/HngLetter-w-book-French Letter in French] [http://bit.ly/HngLetter-w-book-Pol Letter in Polish] [http://bit.ly/HngLetter-w-book-Italian Letter in Italian]

'''A free handout,''' '''"An Introduction to Myalgic Encephalomyelitis"'''

[http://bit.ly/Intro2MEbyDrHng Handout in English] [http://bit.ly/DrHngIntro2ME-French Handout in French] [http://bit.ly/DrHngIntro2ME-Pol Handout in Polish] [http://bit.ly/Intro2MEdrHng-Italian Handout in Italian] [http://bit.ly/DrHngIntro2ME-Rus Handout in Russian]

'''Photos''': A picture says a thousand words!

[http://bit.ly/DrHngPhotos2 Dr. Hng's Photos]
[[File:Doctor with M.E. book cover.jpg|thumb|718x718px|Doctor with M.E. book cover]]

'''Protect yourself''' if you are being forced to undergo Graded Exercise Therapy, or CBT to correct your "erroneous illness beliefs":

http://bit.ly/ProtectYrself-1

Additional (third party) links for Long Covid patients who suffer Post-Exertional Malaise:

https://longcovid.physio/exercise [https://www.nice.org.uk/guidance/gid-ng10091/documents/statement NICE statement on exercise for Covid-19]

'''Ill Health Retirement (IHR):'''

[http://bit.ly/IHRpackage Case Example]

[http://bit.ly/SicknessPensionRv Literature review on Work Rehabilitation and Medical Retirement by Mark Vink]

Example symptoms list for IHR, insurance or social welfare applications. Modify for your own use. http://bit.ly/ExampleMEsymptoms

== Find me at: ==
[https://www.facebook.com/RobinBrown76?hc_ref=ARS2IVPUHah35qebAfedrEIKFkyUieP_ggZcKzslkyAlyiOWpmx6MNRspA6DrB4A9H8&fref=nf&__tn__=CH-R Facebook] (Robin Brown)

[https://www.facebook.com/groups/drhngsfriends/ Facebook group]

[http://bit.ly/drHngPage Dr. Hng's Facebook Page]

[http://www.twitter.com/DoctorwithME Twitter] (group contribution by patient community)

==See also==

* [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]]
* [[NHS ]]
* [[NICE]]
* [[NICE guidelines]]

[[Category:People with ME, CFS, and/or FMS]]
[[Category:Advocates or allies]]

Robin Brown

2021-01-29T17:45:27Z

Robin Brown:

{{stub}}
[[File:Robin Brown.jpg|200px|thumb|right|]]
'''Dr. K.N. Hng''', also known as '''Robin Brown''', is a [[United Kingdom|British]] physician with [[ME/CFS]]. Dr. Hng authored the book, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]], which chronicles her experience as a Gastroenterology trainee who developed [[ME/CFS]]. The book has a twin, Doctor with M.E.: My journey with "Chronic Fatigue Syndrome". Identical on the inside, the different name and cover may appeal to a different audience.

Dr. Hng's book is written with both the busy clinician and the brain fogged patient in mind. Pocket sized and double spaced, it is an easy read. Her personal story is followed up with much useful information. In particular, educational resources are attractively presented and summarised. This book serves beautifully as a starting point for clinicians learning about ME. It is also a useful way for patients to easily explain their problems to friends and family who do not understand.

In addition to the book, Dr. Hng has produced many other resources which she regularly posts on Facebook. These resources are continually updated, and many are also available in multiple languages. Translation work is ongoing so watch this space!

==Books, Research and NICE guideline==

'''M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome'''

http://bit.ly/HngMEandMe_Ed4_UK http://bit.ly/HngMEandMe_Ed4_US[[File:M.E. and Me .jpg|thumb|718x718px|M.E. and Me book cover]]

'''Doctor with M.E.: My journey with "Chronic Fatigue Syndrome"'''

http://bit.ly/DoctorWithME_UK http://bit.ly/DoctorWithME_US
*

*

*

'''Doctors’ knowledge and understanding of Myalgic Encephalomyelitis, United Kingdom 2018'''

https://bit.ly/2yFAtY8 https://bit.ly/DocKnME2018-French

'''NICE ME/CFS guideline consultation, group submission.'''

Signatories include Dr. Nina Muirhead, Dr. Nigel Speight, Dr. Jonathan Kerr, Prof. Malcolm Hooper, Dr. Sarah Myhill, Dr. Karl Morten, Natalie Boulton, Millions Missing France. Dec 2020. http://bit.ly/HNG-group-submission-NICE

'''Petition to NICE:''' '''Stop harming ME/CFS patients - take CBT/GET out of NICE guidelines NOW.'''

Petition page at: http://chng.it/rY7BJX7c

Progress chronicled at: http://bit.ly/NICEstopCBTGETnow

== Other Resources ==

'''Accompanying letter.''' Give with the book to your doctor.

http://bit.ly/DrHngLetter-w-Book

http://bit.ly/HngLetter-w-book-French

http://bit.ly/HngLetter-w-book-Pol

http://bit.ly/HngLetter-w-book-Italian

'''A free handout,''' '''"An Introduction to Myalgic Encephalomyelitis"'''

http://bit.ly/Intro2MEbyDrHng

http://bit.ly/DrHngIntro2ME-French

http://bit.ly/DrHngIntro2ME-Pol

http://bit.ly/Intro2MEdrHng-Italian

http://bit.ly/DrHngIntro2ME-Rus

'''Photos''' (to be updated soon): http://bit.ly/DrHngPhotos
[[File:Doctor with M.E. book cover.jpg|thumb|718x718px|Doctor with M.E. book cover]]
'''Protect yourself''' if you are being forced to undergo Graded Exercise Therapy or CBT to correct your "erroneous illness beliefs":

http://bit.ly/ProtectYrself-1

Additional (third party) links for Long Covid patients who suffer Post-Exertional Malaise:

https://longcovid.physio/exercise https://www.nice.org.uk/guidance/gid-ng10091/documents/statement

'''Ill Health Retirement:'''

Case example: http://bit.ly/IHRpackage

Summary of recent literature review by Mark Vink: http://bit.ly/SicknessPensionRv

Example of symptoms list for IHR, insurance or social welfare applications. Modify for your own use. http://bit.ly/ExampleMEsymptoms

== Find me at: ==
[https://www.facebook.com/RobinBrown76?hc_ref=ARS2IVPUHah35qebAfedrEIKFkyUieP_ggZcKzslkyAlyiOWpmx6MNRspA6DrB4A9H8&fref=nf&__tn__=CH-R Facebook] (Robin Brown)

[https://www.facebook.com/groups/drhngsfriends/ Facebook group]

[http://bit.ly/drHngPage Dr. Hng's Facebook Page]

[http://www.twitter.com/DoctorwithME Twitter] (group contribution by patient community)

==See also==

* [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]]
* [[NHS ]]
* [[NICE]]
* [[NICE guidelines]]

[[Category:People with ME, CFS, and/or FMS]]
[[Category:Advocates or allies]]

File:Dr. Hng photos 1.jpg

2021-01-29T17:43:08Z

Robin Brown:

Paralysis and Photophobia

M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome

2021-01-29T17:34:58Z

Robin Brown:Information updated.

'''M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome''' by Dr. [[Robin Brown|K. N. Hng]], who was a gastroenterology trainee in the United Kingdom at the time of the book.

==Publisher's synopsis==
[[File:M.E. and Me .jpg|thumb|664x664px|M.E. and Me book cover. Available for purchase on Amazon.]]
What happens when a doctor gets Myalgic Encephalomyelitis / Chronic Fatigue Syndrome? Join this British doctor on her heart-wrenching and eye-opening journey. "One night shift, I just couldn't drag myself off the chair in the office. My whole body had turned to lead."

“HEARTBREAKING... VIVID IMAGERY... Your story will enlighten many who question the existence of ME.” Dr. Suresh Chauwan, Consultant Neurologist.

"For the first time I feel like this is a serious illness." Dr. Deepak Nama, Consultant Respiratory and Acute Medicine.

With humanity, wit, and links to a variety of resources, this little book is the ideal launch pad for health care professionals learning about ME.

VALUABLE INSIGHT. MISUNDERSTOOD ILLNESS.

==Online presence==
Amazon:

[http://bit.ly/HngMEandMe_Ed4_UK Amazon UK]

[http://bit.ly/HngMEandMe_Ed4_US Amazon US]

[https://www.amazon.ca/dp/1094624691 Amazon Canada]

[https://www.amazon.fr/dp/1094624691 French translation]

[https://www.amazon.de/dp/1094624691 Amazon Germany]

[https://www.amazon.it/dp/1094624691 Amazon Italy]

[https://www.amazon.es/dp/1094624691 Amazon Spain]

[https://www.amazon.co.jp/dp/1094624691 Amazon Japan]

== Reviews ==
Stonebird (3rd edition): http://carersfight.blogspot.com/2018/09/a-review-of-me-and-me-doctors-struggle.html

==See also==
* [[Robin Brown |Dr K. N. Hng]]
<references />

[[Category:Books]]
[[Category:English books]]
[[Category:Memoir books]]

Robin Brown

2021-01-29T15:38:40Z

Robin Brown:Updates in progress

{{stub}}
[[File:Robin Brown.jpg|200px|thumb|right|]]
'''Dr. K.N. Hng''', also known as '''Robin Brown''',<ref>{{Cite web|url=https://www.facebook.com/RobinBrown76?hc_ref=ARS2IVPUHah35qebAfedrEIKFkyUieP_ggZcKzslkyAlyiOWpmx6MNRspA6DrB4A9H8&fref=nf&__tn__=CH-R|title=Robin Brown|website=www.facebook.com|language=en|access-date=2018-11-30}}</ref> is a [[United Kingdom|British]] physician with [[ME/CFS]]. Dr. Hng authored the book, [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]], which chronicles her experience as a Gastroenterology trainee who developed [[ME/CFS]].<ref>{{Cite web|url=https://www.facebook.com/DrHng|title=Dr Hng Page|website=www.facebook.com|language=en|access-date=2018-11-13}}</ref> This book is now in its 4th edition, and in 2019 she released a twin with a different cover, Doctor with M.E.: My journey with "Chronic Fatigue Syndrome". The two books contain identical content, but the different names and covers might appeal to different audiences.

Dr. Hng's book is written with both the busy clinician and the brain fogged patient in mind. Pocket sized and double spaced, it is easy to read and her personal story is followed up with much useful information. In particular, educational resources are attractively presented and summarised. This book serves beautifully as a starting point for clinicians learning about ME. It also provides patients with a way to easily explain their problems to friends and family who do not understand.

In addition to the book, Dr. Hng has produced many other resources which she regularly posts on Facebook. Many of these are also available in French, Polish, Italian, and others. Translation work is ongoing so watch this space.

==Books==
* M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome http://bit.ly/HngMEandMe_Ed4_UK http://bit.ly/HngMEandMe_Ed4_US
[[File:M.E. and Me .jpg|thumb|718x718px|M.E. and Me book cover]]
* Doctor with M.E.: My journey with "Chronic Fatigue Syndrome" http://bit.ly/DoctorWithME_UK http://bit.ly/DoctorWithME_US

*

*

*
*A free handout called, "An Introduction to Myalgic Encephalomyelitis": http://bit.ly/Intro2MEbyDrHng This is also available in French, Polish, Italian and Russian.
*[https://www.facebook.com/DrHng Facebook] (Dr. Hng)
*[https://www.facebook.com/RobinBrown76?hc_ref=ARS2IVPUHah35qebAfedrEIKFkyUieP_ggZcKzslkyAlyiOWpmx6MNRspA6DrB4A9H8&fref=nf&__tn__=CH-R Facebook] (Robin Brown)
*[http://www.twitter.com/DoctorwithME Twitter] (Dr. Hng)

==See also==

* [[M.E. and Me: A Doctor's Struggle with Chronic Fatigue Syndrome]]
* [[NHS ]]
* [[NICE]]
* [[NICE guidelines]]

==Learn more==
* [https://www.change.org/p/nice-stop-harming-me-cfs-patients-take-cbt-get-out-of-me-cfs-guidelines-now NICE stop harming ME/CFS patients - Take CBT and GET out of the CFS guidelines NOW!]<ref>{{Cite web|url=https://www.change.org/p/nice-stop-harming-me-cfs-patients-take-cbt-get-out-of-me-cfs-guidelines-now|title=Sign the Petition|last=Hng|first=K.N.|authorlink=Robin Brown|last2=|first2=|authorlink2=|date=|website=Change.org|language=en-GB|archive-url=|archive-date=|dead-url=|access-date=2018-11-30}}</ref> (Petition by Dr. Hng)

==References==
<references />

[[Category:People with ME, CFS, and/or FMS]]
[[Category:Advocates or allies]]

File:Doctor with M.E. book cover.jpg

2021-01-29T15:23:29Z

Robin Brown:

Available for puchase on Amazon

File:M.E. and Me .jpg

2021-01-29T14:53:52Z

Robin Brown:

Picture of book cover. Available for purchase on Amazon.