https://me-pedia.org/w/api.php?action=feedcontributions&feedformat=atom&user=Philm64MEpedia - User contributions [en]2026-04-21T09:12:39ZUser contributionsMediaWiki 1.43.8https://me-pedia.org/w/index.php?title=Phil_Murray&diff=81190Phil Murray2020-04-22T17:17:15Z<p>Philm64:/* The ME/CFS Biomedical Partnership */</p>
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<div>'''Phil Murray''' was diagnosed with ME/CFS in 1997, and has been mainly in remission since 2007. Phil has worked extensively with [[Westcare UK]], sat on the ME patient advisory group for the [[ME/CFS Epidemiology and Genomics Alliance]] (MEGA), sponsored by [[ME Research UK]],<ref>{{Cite web|url=https://www.linkedin.com/in/phil-murray-a825577/?originalSubdomain=uk|title=Phil Murray, Trustee, Action for ME at Action for M.E.|last=|first=|authorlink=|last2=|first2=|authorlink2=|date=2019-12-26|website=LinkedIn|archive-url=|archive-date=|dead-url=|access-date=}}</ref> attended the [[NICE guidelines]] scoping meeting in 2018, and is co-organiser for the Bristol [[Millions Missing protests]],<ref>{{Cite web|url=https://thebristolcable.org/2018/05/from-bed-and-the-streets-campaign-for-me-equality/|title=#MillionsMissing: the campaign for ME equality|date=2018-05-10|website=The Bristol Cable|language=en-GB|access-date=2019-12-26}}</ref> in 2018 & 2019. Phil has appeared in local radio & TV speaking for the need for more biomedical research into the illness, and remains on the Patient Advisory group to the [[UK CFS/ME Research Collaborative]] (CMRC).<ref>{{Cite web|url=https://www.actionforme.org.uk/news/improving-lives-inspiring-change-agm-and-annual-report/|title=Improving lives, inspiring change: AGM & annual report|last=ME|first=Action for|website=Action for ME|access-date=2019-12-26}}</ref> <br />
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In November 2018, Phil became a trustee of the UK patient group, [[Action for ME]].<ref>{{Cite web|url=https://www.actionforme.org.uk/about-us/board-of-trustees/|title=Board of Trustees|last=ME|first=Action for|website=Action for ME|access-date=2019-12-26}}</ref><br />
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An interview from Phil's 1998 appointment at Bristol's Royal Infirmary was featured in the medical training app Speaking Clinically,<ref>https://speakingclinically.co.uk/</ref> under "General Medicine, "Chronic Fatigue Syndrome," and "The Exhausted Athlete". It featured the clear reasons for [[post-exertional malaise]], and the delay before the effects are felt.<br />
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==Talks and interviews==<br />
*2018, [https://youtu.be/93CxntZBUGs Welcoming speech for Action for M.E.'s AGM and conference] <br />
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==Online presence==<br />
*[https://twitter.com/philm64?lang=en Twitter]<br />
*Facebook<br />
*Website/Blog<br />
*YouTube<br />
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==See also==<br />
*[[ME/CFS Epidemiology and Genomics Alliance]]<br />
*https://mebiomed.org.uk/<br />
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==Learn more==<br />
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==References==<br />
{{reflist}}<br />
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[[Category:People with ME, CFS, and/or FMS]] <br />
[[Category:Advocates or allies]] <br />
[[Category:British advocates or allies]]</div>Philm64https://me-pedia.org/w/index.php?title=Phil_Murray&diff=52455Phil Murray2019-03-20T11:05:15Z<p>Philm64:Making a link to myself from the trustees of AfME page - 1st attempt!</p>
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<div>Phil Murray was diagnosed with ME/CFS in 1997, and has been mainly in remission since 2007. Phil has worked extensively with [[Westcare UK], sat on the ME patient advisory group for [http://www.megaresearch.me.uk/ MEGA], attended the [https://me-pedia.org/wiki/NICE_guidelines NICE guidelines] scoping meeting in 2018, and is co-organiser, Bristol [[Millions_Missing_protests]] protests, in 2018 & 2019. Phil has appeared in local radio & TV speaking for the need for more biomedical research into the illness, and remains on the Patient Advisory group to the [https://www.actionforme.org.uk/research/uk-cfsme-collaborative/ CMRC]. <br />
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In November 2018, Phil became a trustee of [[Action_for_ME]] (welcoming speech here https://youtu.be/93CxntZBUGs)</div>Philm64