MEpedia - User contributions [en]

Open Medicine Foundation

2019-12-27T21:22:57Z

Marilyn SG:added new video links

[[File:OMF.png|right]]
The '''Open Medicine Foundation''' (OMF) is an American non-profit 501(c)(3) organization established in 2012 for the purpose of funding and initiating groundbreaking research into complex chronic diseases. It supports chronic complex disease research with a focus on [[chronic fatigue syndrome]] ([[CFS]]), [[myalgic encephalomyelitis]] ([[ME]]), [[fibromyalgia]] (FMS), and [[chronic lyme disease|Chronic Lyme Disease]].

The OMF's current project is the [[End ME/CFS Project]].

Many of those involved in OMF, including Founder/CEO/President [[Linda Tannenbaum]], either have a [[neuro-immune disease]] or have a family member who has a neuro-immune disease.

OMF's strategy is to include highly recognized and accomplished scientists with expertise in body systems linked to chronic complex diseases. The organization also has an extensive [https://www.omf.ngo/community/ patient network] as developed through email [https://www.omf.ngo/newsletter-sign-up/ newsletter subscriptions].

[[Stuart Murdoch]] is Ambassador promoting the OMF's work "through videos and messaging on their social media and websites, personal appearances, and face-to-face interactions with their communities and fans."<ref>{{Cite news|url=https://www.omf.ngo/omf-ambassador-stuart-murdoch-2/|title=OMF Ambassador - Stuart Murdoch {{!}} Open Medicine Foundation|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}}</ref> [https://www.omf.ngo/people/amy-carlson/ Amy Carlson] is an OMF Ambassador also raising awareness and fundraising. As is celebrated international author [https://www.omf.ngo/people/karin-alvtegen/ Karin Alvtegen] and opera star [https://www.omf.ngo/people/jacqueline-ko/ Jacqueline Ko].

== ME/CFS Scientific Advisory Board ==
The advisory board is made up of world-renowned researchers:<ref>{{Cite news|url=https://www.omf.ngo/scientific-advisory-board/|title=Scientific Advisory Board {{!}} Open Medicine Foundation|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}}</ref>

*Dr. [[Ronald Davis]] (Scientific Advisory Board Director, and father of [[Whitney Dafoe]])
*[[Paul Berg]] (cellular metabolism, Nobel laureate)
*[[Mario Capecchi]] (genetics, Nobel laureate)
*[[Mark Davis]] (immunology)
*[[Craig Heller]] (exercise physiology)
*[[Robert Naviaux]] (virology & cell biology, mitochondrial specialist)
*[[Baldomero Olivera]] (neurobiology & pain)
*[[Ronald Tompkins]] (trauma & metabolism)
*[[Wenzhong Xiao]] (computational genomics)
*[[David Bell]] (ME/CFS clinician. See [[1985 Lyndonville outbreak|Lyndonville outbreak]])
*[[Maureen Hanson]] (cell and molecular biology)
*[[Øystein Fluge]] (oncology)
*[[Olav Mella]] (oncology)
*Jonas Bergquist
*Jennifer Frankovich
*Daniel Peterson
*Mike Snyder

==Board==
The OMF board comprises:<ref>{{Cite news|url=https://www.omf.ngo/about-us/omf-board/|title=Foundation Board {{!}} Open Medicine Foundation|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}}</ref>

*[[Linda Tannenbaum]] (Founder/CEO/President)
*[[Kimberley Hicks]] (Treasurer)
*[[Patti Linsley]] (Secretary)
*[[R.P. Channing]], MD, Emeritus
*[https://www.omf.ngo/people/kathryn-bach/ Kathryn Bach]
*[https://www.omf.ngo/people/carol-e-jensen/ Carol E. Jensen]
*[[Deborah Rose]], MD
*[https://www.omf.ngo/people/joseph-morin/ Joseph Morin]
*[https://www.omf.ngo/people/hany-zayed-phd/ Hany Zayed,] PhD

== Research Projects ==
The [[ME/CFS Severely Ill, Big Data Study]] was announced in May, 2015. The most severely ill [[ME/CFS]] patients are being studied to find a diagnostic bio-marker.

In 2016, [http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/ "Mitochondria Man Gets Money UK Goes Mega Chronic Fatigue Syndrome Research Moves Forward"]

== Notable research ==
* 2016, [[Metabolic features of chronic fatigue syndrome]]

== Funding ==
OMF have fund-raised primarily from ME sufferers and community for the research. The [[National Institutes of Health]] have not provided funding.

In January 2018 Pineapple fund, a philanthropic project by an early bitcoin investor<ref>{{Cite web|url=https://pineapplefund.org/|title=Pineapple Fund|last=|first=|authorlink=|last2=|first2=|authorlink2=|date=|website=|archive-url=|archive-date=|dead-url=|access-date=June 23, 2019}}</ref>, donated $1 million to OMF.<ref name=":0" /> The anonymous donor was so touched by the outpouring of appreciation from the worldwide ME community that they increased the donation to $5 million.<ref name=":0">{{Cite news|url=https://www.omf.ngo/2018/02/02/pineapple-fund/|title=Pineapple Fund increases donation to $5 million {{!}} Open Medicine Foundation|date=2018-02-02|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}} </ref>

In May 2018, OMF received a new $1 million anonymous pledge to escalate Dr. [[Ronald Davis]]’s systems biology approach with [[Robert Phair]].<ref>{{Cite news|url=https://www.omf.ngo/2018/05/24/new-1-million-donation-for-me-cfs-research/|title=New $1 million donation for ME/CFS research! {{!}} Open Medicine Foundation|date=2018-05-24|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}} </ref>

== Advocacy ==
The OMF and the Davis-Dafoe Family held two screenings of [[Forgotten Plague|''Forgotten Plague'']]. Dr. Davis spoke about ME/CFS and research after the screening.<ref name="ForgottenPlague" /><ref name="MEACTION20151016fp" />

Dr. Davis, along with colleagues, have written and signed [[List of open letters from researchers|open letters]] in reference to research funds and the [[PACE trial]].

==Talks and interviews==

'''Community Symposium'''
* [https://www.youtube.com/playlist?list=PLl4AfLZNZEQPiRL9zpis8LtfaHBEMy4jS 3rd Annual Community Symposium on the Molecular Basis of ME/CFS] (Sept 2019)
* [https://www.youtube.com/playlist?list=PLl4AfLZNZEQPNU0GYk3crnEnbQu_cYvO5 Inaugural Harvard Community Symposium:Finding Clarity] (June 2019)
* [https://www.youtube.com/playlist?list=PLl4AfLZNZEQPxjqF4ojAO3wdCFMeriNBK 2nd Annual Community Symposium on the Molecular Basis of ME/CFS] (Sept 2018)
* [https://www.youtube.com/playlist?list=PLl4AfLZNZEQOQG8vr4Rn_YY1E1cbFIu45 1st Annual Community Symposium on the Molecular Basis of ME/CFS] (Aug 2017)
'''Ronald Davis'''

'''2019'''
* [https://youtu.be/vcYWdQbe1mY Bedside Chat with Ben] (Dec)
* [https://youtu.be/lHY1Q232HsM Lecture at Albert Einstein College of Medicine] (Nov 25)
* [https://youtu.be/BW4LIITEhIA ME/CFS Alert Episode #109] (Sept)
'''2018'''
* [https://youtu.be/WmI5Ri0V51U Presentation at IiMEC13] (May)
* [https://youtu.be/ZQTURNzSbVY Research Update] (May)
'''2017'''
*[https://www.youtube.com/watch?v=jXL2xzxCXBw Q&A on ME/CFS Research with Dr. Ron Davis] (Mar 7)
*[https://www.youtube.com/watch?v=sGBXXlQO49g An Update on ME/CFS Research with Dr. Ronald W. Davis] (Feb 21)
*[https://www.youtube.com/watch?v=-bs6_5Ldat4 Scientist Ron Davis Tells How We Are "Fast-Tracking" ME/CFS Research] (Feb 3)

'''2016'''
*[https://www.youtube.com/watch?v=wz5we-QZ2Q4 Getting Answers to ME/CFS Faster through Collaboration and Openness] (Dec 13)
*[https://www.youtube.com/watch?v=si_JJf-SVnQ Short Story of a Family's Struggle with ME/CFS] (May 21)

'''Ronald Tompkins'''

2019
* [https://youtu.be/He0WOVHVQCw ME/CFS Alert Episode #110] (Sept)
* [https://youtu.be/AAKKHRBL71k Patient Conversations: Interviews Dr. Alan Gurwitt] (June)
* [https://youtu.be/JW8YYJDSEdo Patient Conversations: Interviews Rivka Solomon] (April)
'''Linda Tannenbaum'''

2019
* [https://youtu.be/Y6NdyrNqvF4 ME/CFS Alert Episode #112] (Sept)
* [https://youtu.be/C20MwiYfSGg Guest with Llewellyn King on The Joe Madison Show]
* [https://youtu.be/3vhtcbq_iX4 What is ME/CFS]
'''2018'''
* [https://youtu.be/BpuM75LHTYI The Story Behind OMF] (Nov)
* [https://youtu.be/VIuGeBqCFhM What is ME/CFS]
'''2017'''
* [https://youtu.be/Uul2HCWhIF4 Worldwide Tour Presentation (NY)] (June)
'''2016'''
*[https://www.youtube.com/watch?v=L_7XmWcI3fE Episode 79 - Linda Tannenbaum] (May 8)
'''Christopher Armstrong'''

2019
* [https://uninvisiblepod.com/2019/10/30/episode-46-chris-armstrong/ Uninivisible Podcast Episode #46] (Oct)
* [https://www.youtube.com/watch?v=loSrAyKXyuM&feature=youtu.be ME/CFS Alert Episode #111] (Sept)

== Online presence ==
*[https://www.omf.ngo Website]
*[https://www.facebook.com/OpenMedicineFoundation Facebook]
*[https://twitter.com/OpenMedF Twitter]
*[https://www.youtube.com/channel/UC0kN-Gt9WJp7pWZJn2oDUbA YouTube]

== Learn more ==
*[https://www.omf.ngo/what-is-mecfs/ What is ME/CFS?]

==See also==
*[[Ronald Davis]]
*[[Linda Tannenbaum]]
*[[Stuart Murdoch]]

== References ==
<references>
<ref name="ForgottenPlague">{{citation
| author1 = Ryan Prior (Director)
| author2 = Nicole Castillo (Director)
| author3 = Anthony Komaroff
| author4 = Hillary Johnson
| author5 = Ron Davis
| title = Forgotten Plague
| medium = documentary film
| date = 2015
| url = https://www.tugg.com/titles/forgotten-plague
}}</ref>
<ref name="MEACTION20151016fp">{{citation
| author = #ME Action
| title = Forgotten Plague Screening Announcement, Palo Alto, CA, US
| date = Dec 2015
| url = https://www.facebook.com/MEActNet/posts/1661003820848684
}}</ref>
</references>

[[Category:Research initiatives]]
[[Category:American research initiatives]]
[[Category:Organizations]]
[[Category:Non-profit organizations based in the United States]]

Open Medicine Foundation

2019-12-27T20:34:23Z

Marilyn SG:updated board

[[File:OMF.png|right]]
The '''Open Medicine Foundation''' (OMF) is an American non-profit 501(c)(3) organization established in 2012 for the purpose of funding and initiating groundbreaking research into complex chronic diseases. It supports chronic complex disease research with a focus on [[chronic fatigue syndrome]] ([[CFS]]), [[myalgic encephalomyelitis]] ([[ME]]), [[fibromyalgia]] (FMS), and [[chronic lyme disease|Chronic Lyme Disease]].

The OMF's current project is the [[End ME/CFS Project]].

Many of those involved in OMF, including Founder/CEO/President [[Linda Tannenbaum]], either have a [[neuro-immune disease]] or have a family member who has a neuro-immune disease.

OMF's strategy is to include highly recognized and accomplished scientists with expertise in body systems linked to chronic complex diseases. The organization also has an extensive [https://www.omf.ngo/community/ patient network] as developed through email [https://www.omf.ngo/newsletter-sign-up/ newsletter subscriptions].

[[Stuart Murdoch]] is Ambassador promoting the OMF's work "through videos and messaging on their social media and websites, personal appearances, and face-to-face interactions with their communities and fans."<ref>{{Cite news|url=https://www.omf.ngo/omf-ambassador-stuart-murdoch-2/|title=OMF Ambassador - Stuart Murdoch {{!}} Open Medicine Foundation|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}}</ref> [https://www.omf.ngo/people/amy-carlson/ Amy Carlson] is an OMF Ambassador also raising awareness and fundraising. As is celebrated international author [https://www.omf.ngo/people/karin-alvtegen/ Karin Alvtegen] and opera star [https://www.omf.ngo/people/jacqueline-ko/ Jacqueline Ko].

== ME/CFS Scientific Advisory Board ==
The advisory board is made up of world-renowned researchers:<ref>{{Cite news|url=https://www.omf.ngo/scientific-advisory-board/|title=Scientific Advisory Board {{!}} Open Medicine Foundation|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}}</ref>

*Dr. [[Ronald Davis]] (Scientific Advisory Board Director, and father of [[Whitney Dafoe]])
*[[Paul Berg]] (cellular metabolism, Nobel laureate)
*[[Mario Capecchi]] (genetics, Nobel laureate)
*[[Mark Davis]] (immunology)
*[[Craig Heller]] (exercise physiology)
*[[Robert Naviaux]] (virology & cell biology, mitochondrial specialist)
*[[Baldomero Olivera]] (neurobiology & pain)
*[[Ronald Tompkins]] (trauma & metabolism)
*[[Wenzhong Xiao]] (computational genomics)
*[[David Bell]] (ME/CFS clinician. See [[1985 Lyndonville outbreak|Lyndonville outbreak]])
*[[Maureen Hanson]] (cell and molecular biology)
*[[Øystein Fluge]] (oncology)
*[[Olav Mella]] (oncology)
*Jonas Bergquist
*Jennifer Frankovich
*Daniel Peterson
*Mike Snyder

==Board==
The OMF board comprises:<ref>{{Cite news|url=https://www.omf.ngo/about-us/omf-board/|title=Foundation Board {{!}} Open Medicine Foundation|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}}</ref>

*[[Linda Tannenbaum]] (Founder/CEO/President)
*[[Kimberley Hicks]] (Treasurer)
*[[Patti Linsley]] (Secretary)
*[[R.P. Channing]] (MD), Emeritus
*[https://www.omf.ngo/people/kathryn-bach/ Kathryn Bach]
*[https://www.omf.ngo/people/carol-e-jensen/ Carol E. Jensen]
*[[Deborah Rose]] (MD)
*[https://www.omf.ngo/people/joseph-morin/ Joseph Morin]
*[https://www.omf.ngo/people/hany-zayed-phd/ Hany Zayed] (PhD)

== Research Projects ==
The [[ME/CFS Severely Ill, Big Data Study]] was announced in May, 2015. The most severely ill [[ME/CFS]] patients are being studied to find a diagnostic bio-marker.

In 2016, [http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/ "Mitochondria Man Gets Money UK Goes Mega Chronic Fatigue Syndrome Research Moves Forward"]

== Notable research ==
* 2016, [[Metabolic features of chronic fatigue syndrome]]

== Funding ==
OMF have fund-raised primarily from ME sufferers and community for the research. The [[National Institutes of Health]] have not provided funding.

In January 2018 Pineapple fund, a philanthropic project by an early bitcoin investor<ref>{{Cite web|url=https://pineapplefund.org/|title=Pineapple Fund|last=|first=|authorlink=|last2=|first2=|authorlink2=|date=|website=|archive-url=|archive-date=|dead-url=|access-date=June 23, 2019}}</ref>, donated $1 million to OMF.<ref name=":0" /> The anonymous donor was so touched by the outpouring of appreciation from the worldwide ME community that they increased the donation to $5 million.<ref name=":0">{{Cite news|url=https://www.omf.ngo/2018/02/02/pineapple-fund/|title=Pineapple Fund increases donation to $5 million {{!}} Open Medicine Foundation|date=2018-02-02|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}} </ref>

In May 2018, OMF received a new $1 million anonymous pledge to escalate Dr. [[Ronald Davis]]’s systems biology approach with [[Robert Phair]].<ref>{{Cite news|url=https://www.omf.ngo/2018/05/24/new-1-million-donation-for-me-cfs-research/|title=New $1 million donation for ME/CFS research! {{!}} Open Medicine Foundation|date=2018-05-24|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}} </ref>

== Advocacy ==
The OMF and the Davis-Dafoe Family held two screenings of [[Forgotten Plague|''Forgotten Plague'']]. Dr. Davis spoke about ME/CFS and research after the screening.<ref name="ForgottenPlague" /><ref name="MEACTION20151016fp" />

Dr. Davis, along with colleagues, have written and signed [[List of open letters from researchers|open letters]] in reference to research funds and the [[PACE trial]].

==Talks and interviews==

'''Ronald Davis'''

'''2017'''
*[https://www.youtube.com/watch?v=jXL2xzxCXBw Q&A on ME/CFS Research with Dr. Ron Davis] (Mar 7)
*[https://www.youtube.com/watch?v=sGBXXlQO49g An Update on ME/CFS Research with Dr. Ronald W. Davis] (Feb 21)
*[https://www.youtube.com/watch?v=-bs6_5Ldat4 Scientist Ron Davis Tells How We Are "Fast-Tracking" ME/CFS Research] (Feb 3)

'''2016'''
*[https://www.youtube.com/watch?v=wz5we-QZ2Q4 Getting Answers to ME/CFS Faster through Collaboration and Openness] (Dec 13)
*[https://www.youtube.com/watch?v=si_JJf-SVnQ Short Story of a Family's Struggle with ME/CFS] (May 21)

'''Linda Tannenbaum'''

'''2016'''
*[https://www.youtube.com/watch?v=L_7XmWcI3fE Episode 79 - Linda Tannenbaum] (May 8)

== Online presence ==
*[https://www.omf.ngo Website]
*[https://www.facebook.com/OpenMedicineFoundation Facebook]
*[https://twitter.com/OpenMedF Twitter]
*[https://www.youtube.com/channel/UC0kN-Gt9WJp7pWZJn2oDUbA YouTube]

== Learn more ==
*[https://www.omf.ngo/what-is-mecfs/ What is ME/CFS?]

==See also==
*[[Ronald Davis]]
*[[Linda Tannenbaum]]
*[[Stuart Murdoch]]

== References ==
<references>
<ref name="ForgottenPlague">{{citation
| author1 = Ryan Prior (Director)
| author2 = Nicole Castillo (Director)
| author3 = Anthony Komaroff
| author4 = Hillary Johnson
| author5 = Ron Davis
| title = Forgotten Plague
| medium = documentary film
| date = 2015
| url = https://www.tugg.com/titles/forgotten-plague
}}</ref>
<ref name="MEACTION20151016fp">{{citation
| author = #ME Action
| title = Forgotten Plague Screening Announcement, Palo Alto, CA, US
| date = Dec 2015
| url = https://www.facebook.com/MEActNet/posts/1661003820848684
}}</ref>
</references>

[[Category:Research initiatives]]
[[Category:American research initiatives]]
[[Category:Organizations]]
[[Category:Non-profit organizations based in the United States]]

Open Medicine Foundation

2019-12-27T20:25:44Z

Marilyn SG:

[[File:OMF.png|right]]
The '''Open Medicine Foundation''' (OMF) is an American non-profit 501(c)(3) organization established in 2012 for the purpose of funding and initiating groundbreaking research into complex chronic diseases. It supports chronic complex disease research with a focus on [[chronic fatigue syndrome]] ([[CFS]]), [[myalgic encephalomyelitis]] ([[ME]]), [[fibromyalgia]] (FMS), and [[chronic lyme disease|Chronic Lyme Disease]].

The OMF's current project is the [[End ME/CFS Project]].

Many of those involved in OMF, including Founder/CEO/President [[Linda Tannenbaum]], either have a [[neuro-immune disease]] or have a family member who has a neuro-immune disease.

OMF's strategy is to include highly recognized and accomplished scientists with expertise in body systems linked to chronic complex diseases. The organization also has an extensive [https://www.omf.ngo/community/ patient network] as developed through email [https://www.omf.ngo/newsletter-sign-up/ newsletter subscriptions].

[[Stuart Murdoch]] is Ambassador promoting the OMF's work "through videos and messaging on their social media and websites, personal appearances, and face-to-face interactions with their communities and fans."<ref>{{Cite news|url=https://www.omf.ngo/omf-ambassador-stuart-murdoch-2/|title=OMF Ambassador - Stuart Murdoch {{!}} Open Medicine Foundation|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}}</ref> [https://www.omf.ngo/people/amy-carlson/ Amy Carlson] is an OMF Ambassador also raising awareness and fundraising. As is celebrated international author [https://www.omf.ngo/people/karin-alvtegen/ Karin Alvtegen] and opera star [https://www.omf.ngo/people/jacqueline-ko/ Jacqueline Ko].

== ME/CFS Scientific Advisory Board ==
The advisory board is made up of world-renowned researchers:<ref>{{Cite news|url=https://www.omf.ngo/scientific-advisory-board/|title=Scientific Advisory Board {{!}} Open Medicine Foundation|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}}</ref>

*Dr. [[Ronald Davis]] (Scientific Advisory Board Director, and father of [[Whitney Dafoe]])
*[[Paul Berg]] (cellular metabolism, Nobel laureate)
*[[Mario Capecchi]] (genetics, Nobel laureate)
*[[Mark Davis]] (immunology)
*[[Craig Heller]] (exercise physiology)
*[[Andreas Kogelnik]] (OMI founder)
*[[Robert Naviaux]] (virology & cell biology, mitochondrial specialist)
*[[Baldomero Olivera]] (neurobiology & pain)
*[[Ronald Tompkins]] (trauma & metabolism)
*[[James Watson]] (genetics, Nobel laureate)
*[[Wenzhong Xiao]] (computational genomics)
*[[David Bell]] (ME/CFS clinician. See [[1985 Lyndonville outbreak|Lyndonville outbreak]])
*[[Maureen Hanson]] (cell and molecular biology)
*[[Øystein Fluge]] (oncology)
*[[Olav Mella]] (oncology)

==Board==
The OMF board comprises:<ref>{{Cite news|url=https://www.omf.ngo/about-us/omf-board/|title=Foundation Board {{!}} Open Medicine Foundation|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}}</ref>

*[[Linda Tannenbaum]] (Executive Director)
*[[Kimberley Hicks]] (Treasurer)
*[[Patti Linsley]] (Secretary)
*[[R.P. Channing]] (MD)
*[[Deborah Rose]] (MD)
*[[H. Kenneth Walker]] (MD)

== Research Projects ==
The [[ME/CFS Severely Ill, Big Data Study]] was announced in May, 2015. The most severely ill [[ME/CFS]] patients are being studied to find a diagnostic bio-marker.

In 2016, [http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/ "Mitochondria Man Gets Money UK Goes Mega Chronic Fatigue Syndrome Research Moves Forward"]

== Notable research ==
* 2016, [[Metabolic features of chronic fatigue syndrome]]

== Funding ==
OMF have fund-raised primarily from ME sufferers and community for the research. The [[National Institutes of Health]] have not provided funding.

In January 2018 Pineapple fund, a philanthropic project by an early bitcoin investor<ref>{{Cite web|url=https://pineapplefund.org/|title=Pineapple Fund|last=|first=|authorlink=|last2=|first2=|authorlink2=|date=|website=|archive-url=|archive-date=|dead-url=|access-date=June 23, 2019}}</ref>, donated $1 million to OMF.<ref name=":0" /> The anonymous donor was so touched by the outpouring of appreciation from the worldwide ME community that they increased the donation to $5 million.<ref name=":0">{{Cite news|url=https://www.omf.ngo/2018/02/02/pineapple-fund/|title=Pineapple Fund increases donation to $5 million {{!}} Open Medicine Foundation|date=2018-02-02|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}} </ref>

In May 2018, OMF received a new $1 million anonymous pledge to escalate Dr. [[Ronald Davis]]’s systems biology approach with [[Robert Phair]].<ref>{{Cite news|url=https://www.omf.ngo/2018/05/24/new-1-million-donation-for-me-cfs-research/|title=New $1 million donation for ME/CFS research! {{!}} Open Medicine Foundation|date=2018-05-24|work=Open Medicine Foundation|access-date=2018-10-09|language=en-US}} </ref>

== Advocacy ==
The OMF and the Davis-Dafoe Family held two screenings of [[Forgotten Plague|''Forgotten Plague'']]. Dr. Davis spoke about ME/CFS and research after the screening.<ref name="ForgottenPlague" /><ref name="MEACTION20151016fp" />

Dr. Davis, along with colleagues, have written and signed [[List of open letters from researchers|open letters]] in reference to research funds and the [[PACE trial]].

==Talks and interviews==

'''Ronald Davis'''

'''2017'''
*[https://www.youtube.com/watch?v=jXL2xzxCXBw Q&A on ME/CFS Research with Dr. Ron Davis] (Mar 7)
*[https://www.youtube.com/watch?v=sGBXXlQO49g An Update on ME/CFS Research with Dr. Ronald W. Davis] (Feb 21)
*[https://www.youtube.com/watch?v=-bs6_5Ldat4 Scientist Ron Davis Tells How We Are "Fast-Tracking" ME/CFS Research] (Feb 3)

'''2016'''
*[https://www.youtube.com/watch?v=wz5we-QZ2Q4 Getting Answers to ME/CFS Faster through Collaboration and Openness] (Dec 13)
*[https://www.youtube.com/watch?v=si_JJf-SVnQ Short Story of a Family's Struggle with ME/CFS] (May 21)

'''Linda Tannenbaum'''

'''2016'''
*[https://www.youtube.com/watch?v=L_7XmWcI3fE Episode 79 - Linda Tannenbaum] (May 8)

== Online presence ==
*[https://www.omf.ngo Website]
*[https://www.facebook.com/OpenMedicineFoundation Facebook]
*[https://twitter.com/OpenMedF Twitter]
*[https://www.youtube.com/channel/UC0kN-Gt9WJp7pWZJn2oDUbA YouTube]

== Learn more ==
*[https://www.omf.ngo/what-is-mecfs/ What is ME/CFS?]

==See also==
*[[Ronald Davis]]
*[[Linda Tannenbaum]]
*[[Stuart Murdoch]]

== References ==
<references>
<ref name="ForgottenPlague">{{citation
| author1 = Ryan Prior (Director)
| author2 = Nicole Castillo (Director)
| author3 = Anthony Komaroff
| author4 = Hillary Johnson
| author5 = Ron Davis
| title = Forgotten Plague
| medium = documentary film
| date = 2015
| url = https://www.tugg.com/titles/forgotten-plague
}}</ref>
<ref name="MEACTION20151016fp">{{citation
| author = #ME Action
| title = Forgotten Plague Screening Announcement, Palo Alto, CA, US
| date = Dec 2015
| url = https://www.facebook.com/MEActNet/posts/1661003820848684
}}</ref>
</references>

[[Category:Research initiatives]]
[[Category:American research initiatives]]
[[Category:Organizations]]
[[Category:Non-profit organizations based in the United States]]