MEpedia - User contributions [en]

Australia

2019-03-25T04:54:52Z

ME Australia:/* Patient groups */

[[File:Australia_flag.svg.png|320px|right|thumb|'''Australia''']]



There are an estimated 92,000 to 598,000 people in '''Australia''' with [[chronic fatigue syndrome]] (CFS), [[myalgic encephalomyelitis]] (ME), or [[CFS/ME]] ([[ME/CFS]]) based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria" /> depending on which definition of the condition is used.

Using the [[International Consensus Criteria]] (ICC) for [[Myalgic encephalomyelitis|ME]] (0.4-1%) and Australian Bureau of Statistics population figures, there are between 100,000 and 250,000 Australians with ME.

Australian patients use the terms chronic fatigue syndrome, ME/CFS, ME, or [[immune dysfunction illness]] depending on the criteria they meet. The Australian [[Chronic fatigue syndrome|CFS]] guidelines state it is a '[[fatigue]] spectrum' rather than a distinct disease.<ref>{{Cite web|url=https://nhmrc.gov.au/myalgic-encephalomyelitis-and-chronic-fatigue-syndrome|title=Myalgic Encephalomyelitis and Chronic Fatigue Syndrome {{!}} NHMRC|website=nhmrc.gov.au|language=en|access-date=2019-03-02}}</ref>

==Medical guidelines==

The 2002 Australian CFS guidelines are widely criticized<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_mar_7.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (March 7, 2002)|website=sacfs.asn.au|access-date=2018-12-05}}</ref> <ref>{{Cite web|url=http://www.ahmf.org/guidelines.html|title=Alison Hunter Memorial Foundation: Supporting Biomedical Research Into Myalgic Encephalomyelitis/ Chronic Fatigue Sydnrome ME/CFS - Guidelines|website=www.ahmf.org|access-date=2018-12-05}}</ref> <ref>{{Cite web|url=https://meaustralia.net/2018/11/30/difference-between-australian-chronic-fatigue-syndrome-guidelines-and-me/|title=Difference between Australian chronic fatigue syndrome guidelines and ME|date=2018-11-30|website=ME Australia|language=en|access-date=2018-12-05}}</ref> and there are vast differences between Australian CFS guidelines and the [[International Consensus Criteria|ICC]] of ME.

The 2002 Australian guidelines were written by by [[National Health and Medical Research Council]] (NHRMC) fellowship recipient Prof [[Andrew Lloyd]], who sits on the review committees for [[NHMRC]] grant applications.<ref name="#MEACTION20160120ahd" />

The NHMRC website lists resources for clinicians, including the, [[Canadian Consensus Criteria]] (CCC) and [[Institute of Medicine report]]'s [[Systemic Exertion Intolerance Disease|SEID]] criteria , but also including recommendations for [[exercise]], [[cognitive behavioral therapy]] (CBT) and [[Antidepressant|antidepressants]].<ref>{{Cite news|url=https://meaustralia.net/2018/09/26/australian-government-committee-on-me-and-chronic-fatigue-syndrome/|title=Australian committee on ME and chronic fatigue syndrome nearly finished report|date=2018-09-26|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

A government-appointed advisory committee is in the process of recommending whether new clinical guidelines should be developed to replace the outdated Australian guidelines.<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref> Their draft report came out in December 2018.

Some Australians are lobbying for the ICC to be adopted<ref>{{Cite news|url=https://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/|title=Australia: Ask the medical research council to fund studies - #MEAction|date=2016-03-14|work=#MEAction|access-date=2018-10-02|language=en-US}}</ref>. Some suggested letter templates have been offered for use [http://www.meaction.net/2016/03/10/australia-write-your-own-letter-to-a-politician/ here] and [http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/ here].

===Patient groups===

The ICC is listed by all organizations, except Western Australia's ME/CFS/Lyme Association, which lists the [[Canadian Consensus Criteria|CCC]].<ref>{{Cite web|url=https://www.mycause.com.au/charity/18043/mecfsandlymeassociationofwa|title=Donate to ME/CFS and Lyme Association of WA|website=Mycause|language=en|access-date=2019-03-02}}</ref>

One of the NSW websites lists the ICC, [[ME/CFS: A Primer For Clinical Practitioners | IACFS/ME Clinical]], the [http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01 2006 Paediatric Criteria]<ref name="JasonL2006paed" />, and the [[South Australian ME/CFS Guidelines]]<ref name="SthAustGuidelines" /> but is not clear on which one it endorses.{{Citation needed}}

Some state organizations, [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED) and some patients are lobbying<ref name="#MEACTION20160314amrc" /> for the 2002 RACP Australian guidelines<ref name="RACP2002" /> to be replaced with the ICC.{{Citation needed}}

===Australian medical associations===
*The [[Royal Australasian College of Physicians]] (RACP) published guidelines in 2002, in the Australian Medical Journal.<ref name="RACP2002" />
*The [[Royal Australasian College of General Practitioners]] (RACGP) published a guideline in 2015 which recommends [[Graded Exercise Therapy]] (GET).<ref name="RACGP2015guide" /> Their magazine ''Australian Family Practitioner'' (AFP) has published articles about ME/CFS,<ref name="AFPlist" /> including a 2013 article that recommends GET and CBT.<ref name="AFP201304" />
*The Australian Medical Association (AMA) website recommends GET.<ref name="AMA20040503" />

===National health department===
* [http://health.gov.au Australian Government Department of Health]<ref>{{Cite web|url=http://health.gov.au/|title=Chronic fatigue syndrome|last=|first=|authorlink=|last2=|first2=|authorlink2=|date=|website=Health Direct|publisher=Australian Government Department of Health|archive-url=|archive-date=|dead-url=|access-date=}}</ref>
* [http://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs Direct information page on CFS from Department of Health]

===National Health and Medical Research Council===
The [http://nhmrc.gov.au NHMRC] funds health and medical research, and develops health advice & guidelines. It is part of the [[Australian Government Department of Health]].

In 2018 the NHMRC appointed an ME and CFS advisory committee<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>, including Andrew Lloyd, [[Suzanne Broadbent,]] [[Sonya Marshall-Gradisnik]], and [[Kathy Rowe]].

The committee is advising the government on current research, gaps in research and whether the 2002 clinical guidelines for doctors should be revised.The NHMRC did not put out a call for applications for positions on the advisory committee, unlike the [[United States|US]] [[U.S. Department of Health and Human Services|Department of Health and Human Services]] (HHS) does for it’s former [[Chronic Fatigue Syndrome Advisory Committee]] (CFSAC). Nor did it follow the UK example and hold [https://www.nice.org.uk/news/article/nice-announces-next-steps-in-updating-its-guideline-on-me-cfs workshops with stakeholders] before recruiting a guideline committee.

==== Draft report ====
Feb 18, 2019, [https://consultations.nhmrc.gov.au/public_consultations/mecfs-2019a Consultation on the Myalgic encephalomyelitis and Chronic fatigue syndrome Advisory Committee Report to the NHMRC Chief Executive Officer]<ref name=":0">{{Cite web|url=https://consultations.nhmrc.gov.au/public_consultations/mecfs-2019a|title=Consultation on the Myalgic encephalomyelitis and Chronic fatigue syndrome Advisory Committee Report to the NHMRC Chief Executive Officer {{!}} NHMRC Public Consultations|last=|first=|authorlink=|last2=|first2=|authorlink2=|date=Feb 18, 2019|website=consultations.nhmrc.gov.au|archive-url=|archive-date=|dead-url=|access-date=2019-03-02}}</ref><blockquote>The National Health and Medical Research Council (NHMRC) Myalgic encephalomyelitis and Chronic fatigue syndrome (ME/CFS) Advisory Committee (the Committee) is releasing the draft ''ME/CFS Advisory Committee Report to the NHMRC Chief Executive Officer ''(the draft Report)'' ''for public consultation. The Committee invites the Australian community to provide comments on its draft Report (Attachment A) before finalising and providing it to NHMRC’s CEO. The Committee’s report to the CEO will help to inform decisions about what NHMRC can do given its dual role in supporting health and medical research and developing evidence based health advice for the Australian community.<ref name=":0" /></blockquote>

===State and territory health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] - information for the public
* ACT
* NSW
* South Australia
* Northern Territory
* Queensland
* Tasmania
* Western Australia

==Health insurance==

===Government health insurance===
The Australian government subsidises most medical appointments, some hospital services, and some medications.
*[https://www.humanservices.gov.au/customer/dhs/medicare Medicare]
*[https://www.humanservices.gov.au/customer/services/medicare/medicare-safety-net Medicare Safety Net]
*[http://www.pbs.gov.au/info/about-the-pbs Pharmaceutical Benefits Scheme]

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.
*[https://www.ndis.gov.au/index.html National Disability Insurance Scheme]

==Access to care==
((How many hospitals & doctors, which diagnose and treat ME (estimate):))
((Rehabilitation offers for ME sufferers: ))

==Patient groups==
*[[Emerge Australia]] (formerly ME/CFS Victoria, Tasmania & Northern Territory) which has 3 paid staff (population 6.5 million)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society] which has 1 paid staff (population 0.4 million)
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]
*[https://www.hfme.org/ Hummingbirds' Foundation for ME] established by [[Jodi Bassett]]
*[https://meaustralia.net/ ME Australia] a collective network across Australia
*[[Change for ME Australia]], an online collective

==Research==

===Notable studies===
*2016, [https://www.dovepress.com/articles.php?article_id=26236 Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome]<ref>{{Cite web|url=https://www.dovepress.com/natural-killer-cells-and-single-nucleotide-polymorphisms-of-specific-i-peer-reviewed-article-TACG|title=Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome|last=Staines|first=Donald|last2=Smith|first2=Pete|date=2016-03-31|website=The Application of Clinical Genetics|language=English|access-date=2019-03-02|last3=Johnston|first3=Samantha|last4=Chacko|first4=Anu|last5=Huth|first5=Teilah|last6=Marshall-Gradisnik|first6=Sonya}}</ref>
*2016, [https://link.springer.com/chapter/10.1007/978-3-319-32240-7_11 Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy]<ref>{{Cite journal|last=Ankeny|first=Rachel A.|last2=Mackenzie|first2=Fiona J.|date=2016|editor-last=Dodds|editor-first=Susan|editor2-last=Ankeny|editor2-first=Rachel A.|title=Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy|url=https://doi.org/10.1007/978-3-319-32240-7_11|series=The International Library of Ethics, Law and Technology|language=en|location=Cham|publisher=Springer International Publishing|pages=227–243|doi=10.1007/978-3-319-32240-7_11|isbn=9783319322407}}</ref>

===Research results===
* 2015: [http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/ Australian Research into ME/CFS in Adolescents]<ref name="#MEACTION20150819arma" />
* 2016: [http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/ Australian Breakthrough on Diagnostic Blood Test]<ref name="#MEACTION20160303test" />

*2018: [https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/ How much can people with ME stand?]<ref>{{Cite news|url=https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/|title=How much can people with ME stand?|date=2018-08-06|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

===Research funding===
* 2015: [http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/ Australian Senator Questions Government on Lack of Action on ME]<ref name="#MEACTION20151116asqg" />
* 2016: [http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/ The Australian Health Department Answers Questions on ME]<ref name="#MEACTION20160120ahd" />
* 2016: [http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Dept Pins its Hopes on NIH Research]<ref name="#MEACTION20160212ahd" />
* 2017: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's Health Minister refuses to stop funding trial of 'incredibly bad' treatment]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

*2018: [https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/ Friends in Australia's Parliament for people with ME and chronic fatigue syndrome]<ref>{{Cite news|url=https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/|title=Friends in Australia’s parliament for people with ME and chronic fatigue syndrome|date=2018-08-07|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2018: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's medical research council questioned on ME and CFS committee]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://meaustralia.net/2018/12/05/new-australian-research-network-holding-scientific-workshop-on-me/ ME/CFS Discovery Research Network]
*[https://app.secure.griffith.edu.au/news/2018/11/27/generous-2m-donation-to-bolster-efforts-of-griffith-cfs-researchers/ Consortium Health International for Myalgic Encephalomyelitis (CHIME)]
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[https://www.vu.edu.au/ Victoria University]
*[http://www.bio21.unimelb.edu.au/ Bio21 Institute, Melbourne University]

===Researchers===
*[[Christopher Armstrong]]
*[[Dorothy Bruck]]
*[[Henry Butt]]
*[[Elaine DeFreitas]]
*[[Paul R Gooley|Paul Gooley]]
*[[Melinda Jackson]]
*[[Donald Lewis]]
*[[Brett Lidbury]]
*[[Andrew Lloyd]]
*[[Neil McGregor]]
*[[Michael Maes]]
*[[Sarah Knight]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
*[[Amy Wallis]]

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW), [[Mark Donohoe]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*[[Alastair Lynch]]
*[[Alem Matthees]]
*[https://meaustralia.net/2016/12/01/remembering-alison-hunter-1976-1996/ Alison Hunter], died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name in 1998, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), in 2014, and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite" />
*[[James McDonald]]
*[[Jodi Bassett]]
*[[Johanna Griggs]]
*[[Laura Dundovic]]
*[[Leigh Hatcher]]
*[[Linley Frame]]
*[[Nadine Neumann ]]
*[[Matthew Nicholson]]
*[[Rhyce Shaw]]
*[[Shelley Taylor-Smith]]
*[[Simon Del Favero]]

==Learn more==
*2016, [https://www.thesaturdaypaper.com.au/2016/08/06/rethinking-chronic-fatigue-syndrome/14704056003560 Rethinking chronic fatigue syndrome]
*2018, [https://www.theguardian.com/commentisfree/2018/may/12/to-the-millionsmissing-with-mecfs-something-remarkable-is-happening To the #MillionsMissing, something remarkable is happening]
*[https://meaustralia.net/ ME Australia]

==See also==
*[[1949-53 Adelaide outbreak]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>
<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = Bruce Carruthers
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| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny de Meirleir
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| last5 = Broderick | first5 = G | authorlink5 = Gordon Broderick
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| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C Peter Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= Barbara Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David Bell
| last14 = Carlo-Stella | first14= N | authorlink14= Nicoletta Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= Austin Darragh
| last17 = Jo | first17= D | authorlink17= Daehyun Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= Ismael Mena
| last22 = Mikovits | first22= J A | authorlink22= Judy Mikovits
| last23 = Miwa | first23= K | authorlink23= Kunihisa Miwa
| last24 = Murovska | first24= M | authorlink24= Modra Murovska
| last25 = Pall | first25= M L | authorlink25= Martin Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci Stevens
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}}</ref>
<ref name="JasonL2006paed">{{citation
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}}</ref>
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}}</ref>
<ref name="#MEACTION20151116asqg">{{citation
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<ref name="#MEACTION20160212ahd">{{citation
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}}</ref>
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}}</ref>
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| author = Megan Arroll, Bruce Arroll
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}}</ref>
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}}</ref>
</references>

[[Category:Countries]]
[[Category:Oceania]]
[[Category:Australia]]

Australia

2019-03-02T08:11:56Z

ME Australia:updating details on release of NHMRC recently & added link to article on Australian CFS guidelines

[[File:Australia_flag.svg.png|320px|right|thumb|'''Australia''']]



There are an estimated 92,000 to 598,000 people in Australia with chronic fatigue syndrome, ME or CFS/ME or ME/CFS (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria" /> depending on which definition of the condition is used).

Using the International Consensus Criteria for ME (0.4-1%) and Australian Bureau of Statistics population figures, there are between 100,000 and 250,000 Australians with ME.

Australian patients use the terms [[Chronic Fatigue Syndrome]], [[ME/CFS]], ME or [[Myalgic Encephalomyelitis]] or immune dysfunction illness, depending on the criteria they meet. The Australian chronic fatigue syndrome guidelines state it is a 'fatigue spectrum' rather than a distinct disease.[https://nhmrc.gov.au/myalgic-encephalomyelitis-and-chronic-fatigue-syndrome]

==Medical guidelines==

The 2002 Australian chronic fatigue syndrome guidelines are widely criticised<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_mar_7.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (March 7, 2002)|website=sacfs.asn.au|access-date=2018-12-05}}</ref> <ref>{{Cite web|url=http://www.ahmf.org/guidelines.html|title=Alison Hunter Memorial Foundation: Supporting Biomedical Research Into Myalgic Encephalomyelitis/ Chronic Fatigue Sydnrome ME/CFS - Guidelines|website=www.ahmf.org|access-date=2018-12-05}}</ref> <ref>{{Cite web|url=https://meaustralia.net/2018/11/30/difference-between-australian-chronic-fatigue-syndrome-guidelines-and-me/|title=Difference between Australian chronic fatigue syndrome guidelines and ME|date=2018-11-30|website=ME Australia|language=en|access-date=2018-12-05}}</ref> and there are vast differences between Australian CFS guidelines and the ICC Primer on ME.

The 2002 Australian guidelines were written by by National Health and Medical Research Council (NHRMC) fellowship recipient Prof Andrew Lloyd, who sits on the review committees for NHMRC grant applications.<ref name="#MEACTION20160120ahd" />

The NHMRC website lists resources for clinicians, including the IOM, CCC and IOM criteria, but also including recommendations for exercise, cognitive behavioural therapy and antidepressants.<ref>{{Cite news|url=https://meaustralia.net/2018/09/26/australian-government-committee-on-me-and-chronic-fatigue-syndrome/|title=Australian committee on ME and chronic fatigue syndrome nearly finished report|date=2018-09-26|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

A government-appointed advisory committee is in the process of recommending whether new clinical guidelines should be developed to replace the outdated Australian guidelines.<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref> Their draft report came out in December 2018.

Some Australians are lobbying for the [[International Consensus Criteria]] to be adopted<ref>{{Cite news|url=https://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/|title=Australia: Ask the medical research council to fund studies - #MEAction|date=2016-03-14|work=#MEAction|access-date=2018-10-02|language=en-US}}</ref>. Some suggested letter templates have been offered for use [http://www.meaction.net/2016/03/10/australia-write-your-own-letter-to-a-politician/ here] and [http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/ here].

===Patient groups===

The [[International Consensus Criteria | International Consensus Primer]] is listed by all organisations, except Western Australia's ME/CFS/Lyme Association, which lists the [[Canadian Consensus Criteria]].

One of the NSW websites lists the [[International Consensus Criteria | International Consensus Primer]], [[ME/CFS: A Primer For Clinical Practitioners | IACFS/ME Clinical]], the [http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01 2006 Paediatric Criteria]<ref name="JasonL2006paed" />, and the [[South Australian ME/CFS Guidelines]]<ref name="SthAustGuidelines" /> but is not clear on which one it endorses.

Some state organisations, [[NCNED]] and some patients are lobbying<ref name="#MEACTION20160314amrc" /> for the 2002 RACP Australian guidelines<ref name="RACP2002" /> to be replaced with the [[International Consensus Criteria]].

===Australian medical associations===
*The Royal Australasian College of Physicians (RACP) published guidelines in 2002, in the Australian Medical Journal.<ref name="RACP2002" />
*The Royal Australasian College of General Practitioners (RACGP) published a guideline in 2015 which recommends [[Graded Exercise Therapy]].<ref name="RACGP2015guide" /> Their magazine Australian Family Practitioner (AFP) has published articles about [[ME/CFS]],<ref name="AFPlist" /> including a 2013 article that recommends [[Graded exercise therapy]] and [[Cognitive behavioral therapy]].<ref name="AFP201304" />
*The Australian Medical Association (AMA) website recommends [[Graded Exercise Therapy]].<ref name="AMA20040503" />

===National health department===
* [http://health.gov.au Department of Health]
* [http://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs Direct information page on CFS from Department of Health]

===National Health and Medical Research Council===
The [http://nhmrc.gov.au NHMRC] funds health and medical research, and develops health advice & guidelines. It is part of the Australian Department of Health.

In 2018 the NHMRC appoointed an ME and CFS advisory committee<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>, including [[Andrew Lloyd]], [[Suzanne Broadbent,]] [[Sonya Marshall-Gradisnik]] and [[Kathy Rowe]].

The committee is advising the government on current research, gaps in research and whether the 2002 clinical guidelines for doctors should be revised.The NHMRC did not put out a call for applications for positions on the advisory committee, unlike the USA’s Department of Health and Human services does for it’s [https://www.hhs.gov/ash/advisory-committees/cfsac/notices/index.html Chronic Fatigue Syndrome Advisory Committee]. Nor did it follow the UK example and hold [https://www.nice.org.uk/news/article/nice-announces-next-steps-in-updating-its-guideline-on-me-cfs workshops with stakeholders] before recruiting a guideline committee. Their report is due to be open for public consultation by the end of 2018.

===State and territory health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] - information for the public
* ACT
* NSW
* South Australia
* Northern Territory
* Queensland
* Tasmania
* Western Australia

==Health insurance==

===Government health insurance===
The Australian government subsidises most medical appointments, some hospital services, and some medications.
*[https://www.humanservices.gov.au/customer/dhs/medicare Medicare]
*[https://www.humanservices.gov.au/customer/services/medicare/medicare-safety-net Medicare Safety Net]
*[http://www.pbs.gov.au/info/about-the-pbs Pharmaceutical Benefits Scheme]

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.
*[https://www.ndis.gov.au/index.html National Disability Insurance Scheme]

==Access to care==
((How many hospitals & doctors, which diagnose and treat ME (estimate):))
((Rehabilitation offers for ME sufferers: ))

==Patient groups==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (formerly ME/CFS Victoria, Tasmania & Northern Territory) which has 3 paid staff (population 6.5 million)
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society] which has 1 paid staff (population 0.4 million)
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]
*[https://www.hfme.org/ Hummingbirds' Foundation for ME] established by [[Jodi Bassett]]
*[https://meaustralia.net/ ME Australia] a collective network across Australia
*[[Change for ME Australia]], an online collective

==Research==

===Notable studies===
*[https://www.dovepress.com/articles.php?article_id=26236 Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome (2016)]
*2016, [https://link.springer.com/chapter/10.1007/978-3-319-32240-7_11 Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy]

===Research results===
*2018: [https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/ How much can people with ME stand?]<ref>{{Cite news|url=https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/|title=How much can people with ME stand?|date=2018-08-06|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2016: [http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/ Australian Breakthrough on Diagnostic Blood Test]<ref name="#MEACTION20160303test" />
*2015: [http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/ Australian Research into ME/CFS in Adolescents]<ref name="#MEACTION20150819arma" />

===Research funding===
*2018: [https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/ Friends in Australia's Parliament for people with ME and chronic fatigue syndrome]<ref>{{Cite news|url=https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/|title=Friends in Australia’s parliament for people with ME and chronic fatigue syndrome|date=2018-08-07|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2018: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's medical research council questioned on ME and CFS committee]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2017: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's Health Minister refuses to stop funding trial of 'incredibly bad' treatment]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2016: [http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Dept Pins its Hopes on NIH Research]<ref name="#MEACTION20160212ahd" />
*2016: [http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/ The Australian Health Department Answers Questions on ME]<ref name="#MEACTION20160120ahd" />
*2015: [http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/ Australian Senator Questions Government on Lack of Action on ME]<ref name="#MEACTION20151116asqg" />

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://meaustralia.net/2018/12/05/new-australian-research-network-holding-scientific-workshop-on-me/ ME/CFS Discovery Research Network]
*[https://app.secure.griffith.edu.au/news/2018/11/27/generous-2m-donation-to-bolster-efforts-of-griffith-cfs-researchers/ Consortium Health International for Myalgic Encephalomyelitis (CHIME)]
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[https://www.vu.edu.au/ Victoria University]
*[http://www.bio21.unimelb.edu.au/ Bio21 Institute, Melbourne University]

===Researchers===
*[[Christopher Armstrong]]
*[[Dorothy Bruck]]
*[[Henry Butt]]
*[[Elaine DeFreitas]]
*[[Paul R Gooley|Paul Gooley]]
*[[Melinda Jackson]]
*[[Donald Lewis]]
*[[Brett Lidbury]]
*[[Andrew Lloyd]]
*[[Neil McGregor]]
*[[Michael Maes]]
*[[Sarah Knight]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
*[[Amy Wallis]]

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW), [[Mark Donohoe]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*[[Alastair Lynch]]
*[[Alem Matthees]]
*[https://meaustralia.net/2016/12/01/remembering-alison-hunter-1976-1996/ Alison Hunter], died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name in 1998, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), in 2014, and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite" />
*[[James McDonald]]
*[[Jodi Bassett]]
*[[Johanna Griggs]]
*[[Laura Dundovic]]
*[[Leigh Hatcher]]
*[[Linley Frame]]
*[[Nadine Neumann ]]
*[[Matthew Nicholson]]
*[[Rhyce Shaw]]
*[[Shelley Taylor-Smith]]
*[[Simon Del Favero]]

==Learn more==
*2016, [https://www.thesaturdaypaper.com.au/2016/08/06/rethinking-chronic-fatigue-syndrome/14704056003560 Rethinking chronic fatigue syndrome]
*2018, [https://www.theguardian.com/commentisfree/2018/may/12/to-the-millionsmissing-with-mecfs-something-remarkable-is-happening To the #MillionsMissing, something remarkable is happening]
*[https://meaustralia.net/ ME Australia]

==See also==
*[[1949-53 Adelaide outbreak]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>
<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = Bruce Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = Marjorie van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny de Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy Klimas
| last5 = Broderick | first5 = G | authorlink5 = Gordon Broderick
| last6 = Mitchell | first6 = T | authorlink6 = Terry Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C Peter Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= Barbara Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David Bell
| last14 = Carlo-Stella | first14= N | authorlink14= Nicoletta Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= Austin Darragh
| last17 = Jo | first17= D | authorlink17= Daehyun Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= Ismael Mena
| last22 = Mikovits | first22= J A | authorlink22= Judy Mikovits
| last23 = Miwa | first23= K | authorlink23= Kunihisa Miwa
| last24 = Murovska | first24= M | authorlink24= Modra Murovska
| last25 = Pall | first25= M L | authorlink25= Martin Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci Stevens
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = 270 | issue = 4 | page = 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>
<ref name="JasonL2006paed">{{citation
| last1 = Jason | first1 = Leonard A | authorlink1 = Leonard Jason
| last2 = Jordan | first2 = Karen | authorlink2 = Karen Jordan
| last3 = Miike | first3 = Teruhisa | authorlink3 = Teruhisa Miike
| last4 = Bell | first4 = David S | authorlink4 = David Bell
| last5 = Lapp | first5 = Charles | authorlink5 = Charles Lapp
| last6 = Torres-Harding | first6 = Susan | authorlink6 = Susan Torres-Harding
| last7 = Rowe | first7 = Kathy | authorlink7 = Katherine Rowe
| last8 = Gurwitt | first8 = Alan | authorlink8 = Alan Gurwitt
| last9 = De Meirleir | first9 = Kenny | authorlink9 = Kenny de Meirleir
| last10 = Van Hoof | first10= Elke LS | authorlink10= Elke Van Hoof
| title = A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
| journal = Journal of Chronic Fatigue Syndrome | volume = 13 | issue = 2-3 | page = 1-44
| date = 2006
| doi = 10.1300/J092v13n02_01
| url = http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01
}}</ref>
<ref name="#MEACTION20150819arma">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Research into ME/CFS in Adolescents
| journal = #MEAction
| date = 19 Aug 2015
| url = http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
}}</ref>
<ref name="#MEACTION20151116asqg">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Senator Questions Government on Lack of Action on ME
| journal = #MEAction
| date = 16 Nov 2015
| url = http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
}}</ref>
<ref name="#MEACTION20160120ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Answers Questions on ME
| journal = #MEAction
| date = 20 Jan 2016
| url = http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
}}</ref>
<ref name="#MEACTION20160212ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Pins its Hopes on NIH Research
| journal = #MEAction
| date = 12 Feb 2016
| url = http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/
}}</ref>
<ref name="#MEACTION20160303test">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Breakthrough on Diagnostic Blood Test
| journal = #MEAction
| date = 3 Mar 2016
| url = http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
}}</ref>
<ref name="#MEACTION20160314amrc">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
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| title = Australians: Ask the Medical Research Council to Fund Studies
| journal = #MEAction
| date = 14 Mar 2016
| url = http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/
}}</ref>
<ref name="SthAustGuidelines">{{citation
| last1 = South Australian Department of Human Services
| last2 = University of Adelaide
| last3 = ME/CFS Society of South Australia
| title = ME/CFS Guidelines: Management Guidelines for General Practitioners
| date = 2004
| ISBN = 0 7308 9334 0
| url = http://sacfs.asn.au/download/guidelines.pdf
}}</ref>
<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>
<ref name="RACP2002">{{citation
| author1 = Victoria Toulkidis
| author2 = Produced by a Working Group convened under the auspices of the Royal Australasian College of Physicians
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| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>
<ref name="RACGP2015guide">{{citation
| author = Royal Australasian College of General Practitioners (RACGP)
| title = Graded exercise therapy: chronic fatigue syndrome
| date = Mar 2015
| url = http://www.racgp.org.au/your-practice/guidelines/handi/interventions/other/graded-exercise-therapy-for-chronic-fatigue-syndrome/
}}</ref>
<ref name="AFPlist">{{citation
| journal = Australian Family Physician
| title = articles about Chronic Fatigue Syndrome
| url = http://www.racgp.org.au/search/
}}</ref>
<ref name="AFP201304">{{citation
| author = Megan Arroll, Bruce Arroll
| title = Chronic fatigue syndrome: A patient centred approach to management
| journal = Australian Family Practitioner
| date = Apr 2013
| url = http://www.racgp.org.au/afp/2013/april/chronic-fatigue-syndrome/
}}</ref>
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}}</ref>
</references>

[[Category:Countries]]
[[Category:Oceania]]
[[Category:Australia]]

Donald Staines

2019-03-02T08:03:06Z

ME Australia:Added link to profile piece

[[File:Donald Staines.png|thumb|Source: investinme.org]]
Professor '''Donald R. Staines''', MBBS, MPH, FAFPHM, FAFOEM, is a Clinical Professor at
Menzies Health Institute Queensland and the co-director (alongside [[Sonya Marshall-Gradisnik]]) of the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED) at Griffith University in Queensland in north-eastern Australia.<ref>https://www.griffith.edu.au/health/national-centre-neuroimmunology-emerging-diseases/our-team</ref> His research team is working towards discovery of diagnostic tools and treatments for [[chronic fatigue syndrome]].<ref>https://www.goldcoastbulletin.com.au/lifestyle/gold-coast-team-getting-closer-to-discovering-test-for-chronic-fatigue-syndrom/news-story/1627b3fcc41c53efac927200a53cc756</ref>

Profile in [https://meaustralia.net/2019/01/24/meet-the-scientists-prof-don-staines/ Meet the Scientists: Prof Don Staines].

==International Consensus Criteria==
Staines is one of the authors of the 2011 case definition, [[International Consensus Criteria]].<ref>{{Cite journal|last=Carruthers|first=Bruce M.|author-link=Bruce Carruthers|last2=van de Sande|first2=Marjorie I.|author-link2=Marjorie van de Sande|last3=De Meirleir|first3=Kenny L.|author-link3=Kenny De Meirleir|last4=Klimas|first4=Nancy G.|author-link4=Nancy Klimas|last5=Broderick|first5=Gordon|author-link5=Gordon Broderick|last6=Mitchell|first6=Terry|author-link6=Terry Mitchell|last7=Staines|first7=Donald|author-link7=Donald Staines|last8=Powles|first8=A. C. Peter|author-link8=A C Peter Powles|last9=Speight|first9=Nigel|author-link9=Nigel Speight|last10=Vallings|first10=Rosamund|author-link10=Rosamund Vallings|last11=Bateman|first11=Lucinda|author-link11=Lucinda Bateman|last12=Baumgarten-Austrheim|first12=Barbara|author-link12=Barbara Baumgarten-Austrheim|last13=Bell|first13=David|author-link13=David Bell|last14=Carlo-Stella|first14=Nicoletta|author-link14=Nicoletta Carlo-Stella|last15=Chia|first15=John|author-link15=John Chia|last16=Darragh|first16=Austin|author-link16=Austin Darragh|last17=Jo|first17=Daehyun|author-link17=Daehyun Jo|last18=Lewis|first18=Donald|author-link18=Donald Lewis|last19=Light|first19=Alan|author-link19=Alan Light|last20=Marshall-Gradisnik|first20=Sonya|author-link20=Sonya Marshall-Gradisnik|last21=Mena|first21=Ismael|author-link21=Ismael Mena|last22=Mikovits|first22=Judy|author-link22=Judy Mikovits|last23=Miwa|first23=Kunihisa|author-link23=Kunihisa Miwa|last24=Murovska|first24=Modra|author-link24=Modra Murovska|last25=Pall|first25=Martin|author-link25=Martin Pall|last26=Stevens|first26=Staci|author-link26=Staci Stevens|date=2011-08-22|title=Myalgic encephalomyelitis: International Consensus Criteria|url=https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1365-2796.2011.02428.x|journal=Journal of Internal Medicine|language=en|volume=270|issue=4|pages=327–338|doi=10.1111/j.1365-2796.2011.02428.x|issn=0954-6820|pmc=3427890|pmid=21777306|via=}}</ref>

==Diagnostic test==
In February 2016 the research team led by Donald Staines and Sonya Marshall-Gradisnik announced it had created a diagnostic test for the disease using [[CD8]] T cells.<ref name="BioABC">[http://www.abc.net.au/pm/content/2016/s4415928.htm Australian scientists make breakthrough in Chronic Fatigue Syndrome testing], ''ABC News (Australia)'', 29 February 2016</ref> They have been awarded a $4-million grant to be administered during the next five years that will enable them to continue research into developing a diagnostic test for [[ME/CFS]].<ref>http://www.goldcoastbulletin.com.au/lifestyle/gold-coast-team-getting-closer-to-discovering-test-for-chronic-fatigue-syndrom/news-story/1627b3fcc41c53efac927200a53cc756</ref>

==Open Letters to ''The Lancet''==
Three [[open letter to the Lancet | open letters to the editor of ''The Lancet'']] urged the editor to commission a fully independent review of the [[PACE trial]], which the journal had published in 2011. In 2016, Dr. Staines, along with 41 colleagues in the ME/CFS field, signed the second letter. In June 2018, Dr. Staines signed the third letter, this time along with approximately 100 colleagues.

*10 February 2016, [http://www.virology.ws/2016/02/10/open-letter-lancet-again/ An open letter to The Lancet, again - Virology blog]
*19 June 2018, [http://www.virology.ws/2018/06/19/trial-by-error-an-open-letter-to-the-lancet-two-years-on/ Trial By Error: An Open Letter to The Lancet, Two Years On - Virology blog]

==Notable studies==

*2011, Immunological abnormalities as potential [[biomarker]]s in [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]]<ref name="Brenu, 2011" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3120691/ (Full Text)]
*2012, The Effects of Influenza Vaccination on Immune Function in Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis<ref name="Brenu, Ekua, 2012" /> [https://file.scirp.org/pdf/IJCM20120600017_29918208.pdf (Full Text)]
*2014, Characterization of [[Natural killer cell|Natural Killer Cell]] Phenotypes in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis<ref name="Huth, 2014" /> [https://www.omicsonline.org/open-access/characterization-of-natural-killer-cell-phenotypes-in-chronic-fatigue-syndrome-2155-9899.1000223.pdf (Full Text)]
*2014, The Role of Adaptive and Innate Immune Cells in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis<ref name="BrenuEW2014" /> [https://www.researchgate.net/publication/259350347_The_Role_of_Adaptive_and_Innate_Immune_Cells_in_Chronic_Fatigue_Syndrome_Myalgic_Encephalomyelitis (Full Text)]
*2014, The role of clinical guidelines for chronic fatigue syndrome/myalgic encephalomyelitis in research settings<ref name="Johnston, 2014" />
*2014, Analysis of the Relationship between Immune Dysfunction and Symptom Severity in Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis ([[CFS/ME]])<ref name="Hardcastle, 2014" /> [https://www.omicsonline.org/open-access/analysis-relationship-immune-dysfunction-symptom-severity-patients-chronic-fatigue-2155-9899.1000190.php?aid=22894 (Full Text)]
*2015, A Comparison of [[Cytokine]] Profiles of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and [[Multiple Sclerosis]] Patients<ref name="Wong, 2015" />
*2015, [[Metabolic]] profiling reveals anomalous [[Portal:Energy metabolism|energy metabolism]] and [[Neuroinflammation|oxidative stress]] pathways in chronic fatigue syndrome patients<ref name="Armstrong, 2015" /> [https://link.springer.com/article/10.1007%2Fs11306-015-0816-5 (Abstract)]
*2015, Serum Immune Proteins in Moderate and Severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Patients<ref name="Hardcastle, 09052015" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4615236/ (Full Text)]
*2015, Examination of Single Nucleotide Polymorphisms (SNPs) in Transient Receptor Potential (TRP) Ion Channels in Chronic Fatigue Syndrome Patients<ref name="Marshall-Gradisnik, 2015" /> [http://journals.sagepub.com/doi/full/10.4137/III.S25147 (Full Text)]
*2015, Characterisation of cell functions and receptors in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)<ref name="Hardcastle, 2015" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4450981/ (Full Text)]
*2015, Longitudinal analysis of immune abnormalities in varying severities of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients<ref name="Hardcastle, 092015" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4568602/ (Full Text)]
*2015, Cytokines in the Cerebrospinal Fluids of Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis<ref name="Peterson, 2015" />
*2016, Killer Cell Immunoglobulin-like Receptor Genotype and Haplotype Investigation of Natural Killer Cells from an Australian Population of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Patients<ref name="Huth,TK, 2016" /> [http://www.la-press.com/redirect_fi...enotype-and-Haplotype-Invest.pdf&fileType=pdf (Full Text)]
*2016, A Systematic Review of Drug Therapies for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis<ref name="Collatz, 2016" /> [https://www.ncbi.nlm.nih.gov/pubmed/27229907 (Abstract)]
*2016, Progressive [[brain]] changes in patients with chronic fatigue syndrome: A longitudinal MRI study<ref name="Shan, 2016" /> [https://www.scienceopen.com/document/read?vid=ac2948b6-48d1-4ebd-8f96-3a3c5a57f770 (Full Text)]
*2016, [[Regulatory T cell|Regulatory T]], [[Natural killer T cell|natural killer T]] and γδ T cells in multiple sclerosis and chronic fatigue syndrome/myalgic encephalomyelitis: a comparison.<ref name="Ramos, 2016" /> [http://apjai-journal.org/wp-content/uploads/2016/12/8RegulatoryTnaturalkillerAPJAIVol34No4December2016P300.pdf (Full Text)]
*2016, ERK1/2, MEK1/2 and p38 downstream signalling molecules impaired in CD56dimCD16+ and CD56brightCD16dim/− natural killer cells in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients<ref name="Huth, 2016" /> [http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z (Full Text)]
*2016, [[Natural killer cell]]s and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome<ref name="Marshall-Gradisnik,SM 2016" /> [https://www.dovepress.com/natural-killer-cells-and-single-nucleotide-polymorphisms-of-specific-i-peer-reviewed-fulltext-article-TACG (Full Text)]
*2017, Dietary and nutrition interventions for the therapeutic treatment of chronic fatigue syndrome/myalgic encephalomyelitis: a systematic review<ref>{{Cite journal|last=Campagnolo|first=N.|last2=Johnston|first2=S.|last3=Collatz|first3=A.|last4=Staines|first4=D.|author-link4=Donald Staines|last5=Marshall-Gradisnik|first5=S.|author-link5=Sonya Marshall-Gradisnik|date=22 Jan 2017|title=Dietary and nutrition interventions for the therapeutic treatment of chronic fatigue syndrome/myalgic encephalomyelitis: a systematic review|url=http://doi.wiley.com/10.1111/jhn.12435|journal=Journal of Human Nutrition and Dietetics|language=en|volume=30|issue=3|pages=247–259|doi=10.1111/jhn.12435|issn=0952-3871|pmc=|pmid=28111818|via=}}</ref> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5434800/ (Full Text)]
*2017, Impaired [[calcium]] mobilization in natural killer cells from chronic fatigue syndrome/myalgic encephalomyelitis patients is associated with transient receptor potential melastatin 3 ion channels<ref name="Nguyen, 2017" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5217865/ (Full Text)]
*2017, Novel characterisation of mast cell phenotypes from peripheral blood mononuclear cells in chronic fatigue syndrome/myalgic encephalomyelitis patients<ref name="Nguyen, et al, 2017" /> [http://apjai-journal.org/wp-content/uploads/2017/07/75-81-AP0771.pdf (Full Text)]
*2018, Decreased Expression of TRPM3 and mAChRM3 in the Small Intestine in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis<ref>{{Cite journal|last=Marshall-Gradisnik|first=Sonya|author-link=Sonya Marshall-Gradisnik|last2=Fretel|first2=Marshall|last3=Eaton|first3=Natalie|last4=Cabanas|first4=Helene|last5=Balinas|first5=Cassandra|last6=Gopalan|first6=Vinod|last7=Petersen|first7=Daniel|author-link7=Daniel Peterson|last8=Passmore|first8=Rachel|last9=Tang|first9=Kevin|last10= Haque|first10=Mazhar|author-link10=|last11=Lam|first11=Alfred |author-link11=|last12=Staines|first12=Donald|author-link12=Donald Staines|date=2018-05-31|title=Decreased Expression of TRPM3 and mAChRM3 in the Small Intestine in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis|url=http://www.scirp.org/journal/PaperInformation.aspx?PaperID=85005&#abstract|journal=International Journal of Clinical Medicine|language=en|volume=09|issue=05|pages=467|doi=10.4236/ijcm.2018.95040|via=}}</ref> [http://file.scirp.org/Html/11-2101759_85005.htm (Full text)]
*2018, Brain function characteristics of chronic fatigue syndrome: A task [[Functional magnetic resonance imaging|fMRI]] study<ref name="Shan, 2018" /> [https://www.sciencedirect.com/science/article/pii/S2213158218301347 (Full Text)]
*2018, A Systematic Review of [[Probiotic]] Interventions for Gastrointestinal Symptoms and [[Irritable Bowel Syndrome]] in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME).<ref name="Corbitt, 2018" /> [https://www.ncbi.nlm.nih.gov/pubmed/29464501 (Abstract)]
*2018, A systematic review of enteric dysbiosis in chronic fatigue syndrome/myalgic encephalomyelitis<ref>{{Cite journal|last=Du Preez|first=S.|author-link=|last2=Corbitt|first2=M.|author-link2=|last3=Cabanas|first3=H.|author-link3=|last4=Eaton|first4=N.|author-link4=|last5=Staines|first5=D.|author-link5=Donald Staines|last6=Marshall-Gradisnik|first6=S.|author-link6=Sonya Marshall-Gradisnik|date=2018-12-20|title=A systematic review of enteric dysbiosis in chronic fatigue syndrome/myalgic encephalomyelitis|url=https://doi.org/10.1186/s13643-018-0909-0|journal=Systematic Reviews|volume=7|issue=1|pages=241|doi=10.1186/s13643-018-0909-0|issn=2046-4053|pmc=|pmid=30572962|quote=|via=}}</ref> [https://systematicreviewsjournal.biomedcentral.com/articles/10.1186/s13643-018-0909-0 (Full text)]
*2018, [[Rituximab]] impedes natural killer cell function in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients: A pilot in vitro investigation<ref name="Eaton, 2018" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5870391/ (Full Text)]
*2018, Reduced glycolytic reserve in isolated natural killer cells from Myalgic encephalomyelitis/chronic fatigue syndrome patients: A preliminary investigation<ref name="Nguyen, 2018" /> [https://www.ncbi.nlm.nih.gov/pubmed/29981562 (Abstract)]
*2018, Hyperintense sensorimotor T1 spin echo [[MRI]] is associated with brainstem abnormality in chronic fatigue syndrome<ref>{{Cite journal|last=Barnden|first=Leighton R.|last2=Shan|first2=Zack Y.|last3=Staines|first3=Donald R.|author-link3=Donald Staines|last4=Marshall-Gradisnik|first4=Sonya|author-link4=Sonya Marshall-Gradisnik|last5=Finegan|first5=Kevin|last6=Ireland|first6=Timothy|last7=Bhuta|first7=Sandeep|date=2018|title=Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in chronic fatigue syndrome|url=https://www.sciencedirect.com/science/article/pii/S2213158218302237|journal=NeuroImage: Clinical|volume=20|pages=102-109|doi=10.1016/j.nicl.2018.07.011|via=}}</ref> [https://www.sciencedirect.com/science/article/pii/S2213158218302237 (Full Text)]
*2018, Loss of Transient Receptor Potential Melastatin 3 ion channel function in natural killer cells from Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients<ref>{{Cite journal|last=Cabanas|first=Hélène|last2=Muraki|first2=Katsuhiko|last3=Eaton|first3=Natalie|last4=Balinas|first4=Cassandra|last5=Staines|first5=Donald|author-link5=Donald Staines|last6=Marshall-Gradisnik|first6=Sonya|author-link6=Sonya Marshall-Gradisnik|date=2018-08-14|title=Loss of Transient Receptor Potential Melastatin 3 ion channel function in natural killer cells from Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients|url=https://molmed.biomedcentral.com/articles/10.1186/s10020-018-0046-1|journal=Molecular Medicine|language=En|volume=24|issue=1|pages=|doi=10.1186/s10020-018-0046-1|issn=1076-1551|via=}}</ref> [https://molmed.biomedcentral.com/articles/10.1186/s10020-018-0046-1 (Full Text)]

==Talks and interviews==

*2015, [http://blogs.abc.net.au/queensland/2015/08/who-are-you-professor-don-staines-mecfs-research-griffith-university-gold-coast.html Who Are You? Professor Don Staines, ME/CFS research, Griffith University Gold Coast] (31 August 2015)
*2016, Speaker at the 11th Invest in ME International ME Conference on "Update from NCNED: Receptor identification and intracellular signalling"<ref>http://www.investinme.eu/IIMEC11.shtml#agenda</ref> [http://www.investinme.eu/IIMEC11.shtml#dvd DVD available]
*2017, Speaker at the 12th [[Invest in ME International ME Conference]] on "Dysregulation of Transient Receptor Potential (TRP) ion channels and calcium in natural killer cells in CFS/ME patients"<ref>http://www.investinme.eu/iimec12.shtml</ref> - [http://www.investinme.eu/iimec12.shtml DVD available]
*2018, [https://meaustralia.net/2019/01/24/meet-the-scientists-prof-don-staines/ Meet the Scientists: Prof Don Staines] on ME Australia

==Learn more==

*[https://www.griffith.edu.au/health/national-centre-neuroimmunology-emerging-diseases/our-team Donald Staines Griffith University - Donald Staines]
*2014, [http://www.goldcoastbulletin.com.au/news/gold-coast/gold-coasts-griffith-university-to-lead-way-in-the-battle-against-chronic-fatigue/story-fnj94idh-1227006405488 Gold Coast’s Griffith University to lead way in the battle against chronic fatigue] (Gold Coast Bulletin, July 30 2014)
*2016, [http://www.abc.net.au/pm/content/2016/s4415928.htm Australian scientists make breakthrough in Chronic Fatigue Syndrome testing]

==Online presence==

*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Staines%20D%5BAuthor%5D&cauthor=true&cauthor_uid=26381393 PubMed - Donald Staines]
*[https://www.researchgate.net/profile/Donald_Staines ResearchGate]

==See also==

*[[Sonya Marshall-Gradisnik]]
*[[Invest in ME International ME Conference]]
*[[National Centre for Neuroimmunology and Emerging Diseases]]

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| title = Serum Immune Proteins in Moderate and Severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Patients
| journal = International Journal of Medical Sciences | volume = 12 | issue = 10 | page = 764-772
| date = 2015
| doi = 10.7150/ijms.12399
}}
</ref>
<ref name="Huth, 2014">{{Citation
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| last5 = Johnston | first5 = Samantha | authorlink5 =
| last6 = Ramos | first6 = Sandra | authorlink6 = Sandra Ramos
| last7 = Staines | first7 = Donald R. | authorlink7 = Donald Staines
| last8 = Marshall-Gradisnik | first8 = Sonya M. | authorlink8 = Sonya Marshall-Gradisnik
| title = Characterization of Natural Killer Cell Phenotypes in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
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| last3 = Marshall-Gradisnik | first3 = Sonya | authorlink3 = Sonya Marshall-Gradisnik
| title = ERK1/2, MEK1/2 and p38 downstream signalling molecules impaired in CD56dimCD16+ and CD56brightCD16dim/− natural killer cells in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients
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| title = Killer Cell Immunoglobulin-like Receptor Genotype and Haplotype Investigation of Natural Killer Cells from an Australian Population of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Patients
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<ref name="Johnston, 2014">{{Citation
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<ref name="Nguyen, 2017">{{Citation
| last1 = Nguyen | first1 = T. | authorlink1 =
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| title = Impaired calcium mobilization in natural killer cells from chronic fatigue syndrome/myalgic encephalomyelitis patients is associated with transient receptor potential melastatin 3 ion channels
| journal = Clinical and Experimental Immunology | volume = 187 | issue = 2 | page = 284–293
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<ref name="Nguyen, et al, 2017">{{Citation
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| title = Novel characterisation of mast cell phenotypes from peripheral blood mononuclear cells in chronic fatigue syndrome/myalgic encephalomyelitis patients
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| title = Reduced glycolytic reserve in isolated natural killer cells from Myalgic encephalomyelitis/chronic fatigue syndrome patients: A preliminary investigation
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<ref name="Peterson, 2015">{{Citation
| last1 = Peterson | first1 = D | authorlink1 = Daniel Peterson
| last2 = Brenu | first2 = EW | authorlink2 = Ekua Brenu
| last3 = Gottschalk | first3 = G | authorlink3 = Gunnar Gottschalk
| last4 = Ramos | first4 = Sandra B | authorlink4 = Sandra Ramos
| last5 = Nguyen | first5 = T | authorlink5 =
| last6 = Staines | first6 = D | authorlink6 = Donald Staines
| last7 = Marshall-Gradisnik | first7 = S | authorlink7 = Sonya Marshall-Gradisnik
| title = Cytokines in the Cerebrospinal Fluids of Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
| journal = Mediators of Inflammation | volume = 2015 | issue = | page =
| date = 2015
| doi = 10.1155/2015/929720
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<ref name="Ramos, 2016">{{Citation
| last1 = Ramos | first1 = S | authorlink1 = Sandra Ramos
| last2 = Brenu | first2 = E | authorlink2 = Ekua Brenu
| last3 = Broadley | first3 = S | authorlink3 =
| last4 = Kwiatek | first4 = R | authorlink4 = Richard Kwiatek
| last5 = Ng | first5 = J | authorlink5 =
| last6 = Nguyen | first6 = T | authorlink6 =
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| last8 = Staines | first8 = D | authorlink8 = Donald Staines
| last9 = Marshall-Gradisnik | first9 = S | authorlink9 = Sonya Marshall-Gradisnik
| title = Regulatory T, natural killer T and γδ T cells in multiple sclerosis and chronic fatigue syndrome/myalgic encephalomyelitis: a comparison
| journal = Asian Pac J Allergy Immunol | volume = | issue = | page =
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<ref name="Shan, 2016">{{Citation
| last1 = Shan | first1 = Zack Y. | authorlink1 =Zack Shan
| last2 = Kwiatek | first2 = Richard | authorlink2 = Richard Kwiatek
| last3 = Burnet | first3 = Richard | authorlink3 =Richard Burnet
| last4 = Del Fante | first4 = Peter | authorlink4 =Peter Del Fante
| last5 = Staines | first5 = Donald R. | authorlink5 = Donald Staines
| last6 = Marshall‐Gradisnik | first6 = Sonya | authorlink6 = Sonya Marshall-Gradisnik
| last7 = Barnden | first7 = Leighton R. | authorlink7 =Leighton Barnden
| title = Progressive brain changes in patients with chronic fatigue syndrome: A longitudinal MRI study
| journal = Journal of Magnetic Resonance Imaging | volume = 44 | issue = | page = 1301–1311
| date = 2016
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<ref name="Shan, 2018">{{Citation
| last1 = Shan | first1 = Zack Y. | authorlink1 =
| last2 = Finegan | first2 = Kevin | authorlink2 =
| last3 = Bhuta | first3 = Sandeep | authorlink3 =
| last4 = Ireland | first4 = Timothy | authorlink4 =
| last5 = Staines | first5 = Donald R. | authorlink5 = Donald Staines
| last6 = Marshall‐Gradisnik | first6 = Sonya | authorlink6 = Sonya Marshall-Gradisnik
| last7 = Barnden | first7 = Leighton R. | authorlink7 =
| title = Brain function characteristics of [[chronic fatigue syndrome]]: A task fMRI study
| journal = NeuroImage: Clinical | volume = 19 | issue = | page = 279-286
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<ref name="Wong, 2015">{{Citation
| last1 = Wong | first1 = Naomi | authorlink1 =
| last2 = Nguyen | first2 = Thao | authorlink2 =
| last3 = Brenu | first3 = Ekua Weba | authorlink3 = Ekua Brenu
| last4 = Broadley | first4 = Simon | authorlink4 =
| last5 = Staines | first5 = Donald | authorlink5 = Donald Staines
| last6 = Marshall-Gradisnik | first6 = Sonya | authorlink6 = Sonya Marshall-Gradisnik
| title = A Comparison of Cytokine Profiles of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and Multiple Sclerosis Patients
| journal = International Journal of Clinical Medicine | volume = 6 | issue = 10 | page = 769-783
| date = 2015
| pmid =
| doi = 10.4236/ijcm.2015.610103
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</references>

[[Category:Researchers]]
[[Category:Australia researchers]]
[[Category:Psychological paradigm critics]]
[[Category:PACE trial critics]]

Christopher Armstrong

2019-03-02T07:58:47Z

ME Australia:Added link to profile piece

[[File:Christopher Armstrong.png|200px|thumb|right|Source:SMCI]]
'''Christopher William Armstrong''', PhD, performs research in the Department of Biochemistry and Molecular Biology and the Bio21 Molecular Science & Biotechnology Institute at the University of Melbourne, Melbourne, Australia with an interest in the dysfunction of energy metabolism of people with [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] (ME/CFS).

Dr. Armstrong is a member of the Working Group which offers their expertise and resources to the [[ME/CFS Collaborative Research Center at Stanford University]].<ref>https://bos.etapestry.com/prod/viewEmailAsPage.do?erRef=773.0.423082047&databaseId=OMF&mailingId=34274682&jobRef=773.0.506425459&key=b6b9237b3ebd1e462a5d11dbc5c4dae&personaRef=773.0.423082048&memberId=1348639685</ref>

ME Australia interviewed Dr Armstrong and wrote a profile on him [https://meaustralia.net/2019/02/20/meet-the-scientists-dr-christopher-armstrong/ 'Meet the Scientists: Dr Christopher Armstrong'].

In 2018, Dr Armstrong was part of delegation briefing Australia's Chief Medical Officer, Prof Brendan Murphy, on research into ME.<ref>{{Cite news|url=https://meaustralia.net/2018/04/22/scientists-and-dr-tuller-brief-australias-chief-medical-officer/|title=Scientists and Dr Tuller brief Australia’s Chief Medical Officer|date=2018-04-22|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

==Awards==
*2016 Ramsay Award Program grant recipient, sponsored by the [[Solve ME/CFS Initiative]]. This grant, shared with [[Geraldine Cambridge]], University College London, and [[Fane Mensah]], University College London, will focus on the [http://solvecfs.org/metabolic-analysis-of-b-cell-maturation-in-myalgic-encephalomyelitischronic-fatigue-syndrome/ metabolic analysis of B-Cell maturation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]<ref>http://solvecfs.org/2016-ramsay-award-program-results/</ref>

==Books==
*2014, [http://www.academia.edu/11578244/CHAPTER_FIVE_Metabolism_in_Chronic_Fatigue_Syndrome Chapter Five in ''Advances in Clinical Chemistry, Vol. 66,'' published by Elsevier; "Metabolism in Chronic Fatigue Syndrome," by Christopher W. Armstrong,] [[Neil McGregor | Neil R. McGregor]], [[Henry Butt|Henry L. Butt]], and [[Paul Gooley |Paul R. Gooley]]<ref>Christopher W. Armstrong, Neil R. McGregor, Henry L. Butt, and Paul R. Gooley. (2014) Metabolism in Chronic Fatigue Syndrome In Gregory S. Makowski (Editor), ''Advances in Clinical Chemistry, Vol. 66'', (pp 121-172). Burlington: Academic Press, Elsevier Inc. Retrieved from http://www.academia.edu/11578244/CHAPTER_FIVE_Metabolism_in_Chronic_Fatigue_Syndrome</ref>

==Notable studies==
*2012, NMR metabolic profiling of serum identifies amino acid disturbances in chronic fatigue syndrome<ref name="Armstrong, 2012" /> [https://www.ncbi.nlm.nih.gov/pubmed/22728138 (Abstract)]
*2014, Metabolism in chronic fatigue syndrome.<ref>{{Cite journal|last=Armstrong|first=Christopher W.|author-link=Christopher Armstrong|last2=McGregor|first2=Neil R.|author-link2=Neil McGregor|last3=Butt|first3=Henry L.|author-link3=Henry Butt|last4=Gooley|first4=Paul R.|author-link4=Paul Gooley|date=2014|title=Metabolism in chronic fatigue syndrome|url=https://www.ncbi.nlm.nih.gov/pubmed/25344988|journal=Advances in Clinical Chemistry|volume=66|pages=121–172|issn=0065-2423|pmid=25344988|via=}}</ref> [[pubmed:25344988|(Abstract)]]
*2015, Metabolic profiling reveals anomalous energy metabolism and oxidative stress pathways in chronic fatigue syndrome patients<ref name="Armstrong, 2015" /> [http://link.springer.com/article/10.1007%2Fs11306-015-0816-5 (Abstract)]
*2016, Widespread pain and altered renal function in [[ME/CFS]] patients<ref>{{Cite journal|last=McGregor|first=Neil R.|author-link=Neil McGregor|last2=Armstrong|first2=Christopher W.|author-link2=Christopher Armstrong|last3=Lewis|first3=Donald P.|author-link3=Donald Lewis|last4=Butt|first4=Henry L.|author-link4=Henry Butt|last5=Gooley|first5=Paul R.|author-link5=Paul Gooley|date=Jul 2016|title=Metabolic profiling reveals anomalous energy metabolism and oxidative stress pathways in chronic fatigue syndrome patients|url=https://www.tandfonline.com/doi/abs/10.1080/21641846.2016.1207400?journalCode=rftg20|journal=Fatigue: Biomedicine, Health & Behavior|volume=4|issue=3|pages=132-145|doi=10.1080/21641846.2016.1207400|quote=|via=}}</ref> [http://www.tandfonline.com/doi/abs/10.1080/21641846.2016.1207400?journalCode=rftg20 (Abstract)]
*2017, The association of fecal microbiota and fecal, blood serum and urine metabolites in myalgic encephalomyelitis/chronic fatigue syndrome<ref name="Armstrong, 2017" /> [https://www.ncbi.nlm.nih.gov/pubmed/22728138 (Abstract)]
*2018, [[CD24]] Expression and [[B cell|B Cell]] Maturation Shows a Novel Link With [[Metabolic|Energy Metabolism]]: Potential Implications for Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome<ref>{{Cite journal|title=CD24 Expression and B Cell Maturation Shows a Novel Link With Energy Metabolism: Potential Implications for Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome|url=https://www.frontiersin.org/articles/10.3389/fimmu.2018.02421/full|journal=Frontiers in Immunology|date=2018|issn=1664-3224|volume=9|doi=10.3389/fimmu.2018.02421|language=English|first=Fane F. K.|last=Mensah|first2=Christopher W.|last2=Armstrong|first3=Venkat|last3=Reddy|first4=Amolak S.|last4=Bansal|first5=Saul|last5=Berkovitz|first6=Maria J.|last6=Leandro|first7=Geraldine|last7=Cambridge|pages=|via=|author-link=Fane Mensah|author-link2=Christopher Armstrong|author-link7=Geraldine Cambridge|author-link3=Venkat Reddy|author-link4=Amolak Bansal|author-link5=Saul Berkovitz|author-link6=Maria Leandro}}</ref> [https://www.frontiersin.org/articles/10.3389/fimmu.2018.02421/full (Full Text)]

==Talks and interviews==
*15-16 June 2016, [https://www.omicsonline.org/abstract/the-impact-of-the-gut-microbiome-on-host-fatigue-in-me-cfs-patients/ Speaker at the International Conference on Fibromyalgia and Chronic Pain. Speech title: "The impact of the gut microbiome on host fatigue in ME/CFS patients"]
*20 Oct 2016, [https://www.youtube.com/watch?v=mlhz7GRAqsg][[Solve ME/CFS Initiative]] Webinar with Christopher Armstrong, on recent metabolomics studies
*23 Nov 2016, [https://soundcloud.com/user-92250603/out-of-the-fog-comes-progress-on-chronic-fatigue-23-november-2016?utm_source=soundcloud&utm_campaign=share&utm_medium=email ''Inside Story Podcast'' - "In Melbourne, progress on Chronic Fatigue Syndrome"]
*12 Aug 2017, [[Community Symposium on the Molecular Basis of ME/CFS - 2017]]: [https://www.youtube.com/watch?v=aRl5XnDagZU&index=4&list=PLl4AfLZNZEQOQG8vr4Rn_YY1E1cbFIu45&t=238s Speech title - ''ME, metabolism and I''] ([https://www.youtube.com/watch?v=2BeCjggssc4 in English with Spanish subtitles])
*20 February 2019, [https://meaustralia.net/2019/02/20/meet-the-scientists-dr-christopher-armstrong/ Meet the Scientists: Dr Christopher Armstrong] on ME Australia

==Online presence==
*[https://scholar.google.com.au/citations?user=W_NY0IcAAAAJ&hl=en Scholar Google]
*[https://www.researchgate.net/search/publications?q=Christopher%2BAmstrong ResearchGate]

==Learn more==
*3 Feb 2017, [http://www.huffingtonpost.com.au/2017/02/02/how-gut-bacteria-is-helping-to-unpack-chronic-fatigue-syndrome/ "How Gut Bacteria Is Helping To Unpack Chronic Fatigue Syndrome: Can improving a person's gut health help?" by Emma Brancatisano in ''The Huffington Post'']
*[http://www.bio21.unimelb.edu.au/gutted-bad-gut-bugs Bio21 Molecular Science & Biotechnology Institute webpage on Armstrong's work - "Gutted by bad gut bugs" by Florienne Loder]
*2016: [https://meaustralia.net/2016/07/06/australian-metabolomics-study-of-young-women/ Australian metabolomics study of women with ME/CFS (CCC)]

==See also==
*[[Diagnostic biomarker]]
*[[Donald Staines]]
*[[Henry Butt]]
*[[Neil McGregor]]
*[[Paul Gooley]]

==References==
<references>
<ref name="Armstrong, 2012">{{Citation
| last1 = Armstrong | first1 = Christopher W. | authorlink1= Christopher Armstrong
| last2 = McGregor | first2 = Neil R. | authorlink2 = Neil McGregor
| last3 = Sheedy | first3 = John R. | authorlink3 =
| last4 = Buttfield | first4 = Ian | authorlink4 =
| last5 = Butt | first5 = Henry L. | authorlink5 = Henry Butt
| last6 = Gooley | first6 = Paul R. | authorlink6 = Paul Gooley
| title = NMR metabolic profiling of serum identifies amino acid disturbances in chronic fatigue syndrome
| journal = Clinica Chimica Acta | volume = 413 | issue = 19–20 | page = 1525–1531
| date = 2012
| doi = 10.1016/j.cca.2012.06.022
}}
</ref>
<ref name="Armstrong, 2015">{{Citation
| last1 = Armstrong | first1 = Christopher W. | authorlink1 = Christopher Armstrong
| last2 = McGregor | first2 = Neil R. | authorlink2 = Neil McGregor
| last3 = Lewis | first3 = Donald P. | authorlink3 = Donald Lewis
| last4 = Butt | first4 = Henry L. | authorlink4 = Henry Butt
| last5 = Gooley | first5 = Paul R. | authorlink5 = Paul Gooley
| title = Metabolic profiling reveals anomalous energy metabolism and oxidative stress pathways in chronic fatigue syndrome patients
| journal = Metabolomics | volume = 11 | issue = 6 | page = 1626–1639
| date = 2015
| doi = 10.1007/s11306-015-0816-5
}}
</ref>
<ref name="Armstrong, 2017">{{Citation
| last1 = Armstrong | first1 = Christopher W. | authorlink1 = Christopher Armstrong
| last2 = McGregor | first2 = Neil R. | authorlink2 = Neil McGregor
| last3 = Lewis | first3 = Donald P. | authorlink3 = Donald Lewis
| last4 = Butt | first4 = Henry L. | authorlink4 = Henry Butt
| last5 = Gooley | first5 = Paul R. | authorlink5 = Paul Gooley
| title = The association of fecal microbiota and fecal, blood serum and urine metabolites in myalgic encephalomyelitis/chronic fatigue syndrome
| journal = Metabolomics | volume = 13 | issue = 1 | page =
| date = 2017
| doi = 10.1007/s11306-016-1145-z
}}
</ref>
</references>

[[Category:Researchers]]
[[Category:Australia researchers]]

ME Australia

2019-03-02T07:54:51Z

ME Australia:deleted typo

'''ME Australia''' is a news site, reporting on mostly [[Australia]] medical research (both good and bad), funding, treatment and profiling scientists.

ME Australia is also a collaborative network of people across all Australian states working to increase funding for biomedical research into ME and improve treatment.<ref>{{Cite web|url=https://meaustralia.net/2018/12/01/australias-health-minister-listening-to-people-with-me/|title=Australia’s Health Minister listening to people with ME|date=2018-12-01|website=ME Australia|language=en|access-date=2018-12-06}}</ref>

It was established in 2016 by Sasha Nimmo.

== Online presence ==
* [https://meaustralia.net/ ME Australia website]

== References ==
<references />
[[Category:Patient groups]]
[[Category:Australian patient groups]]

Emerge Australia

2018-12-06T22:18:08Z

ME Australia:/* History */

'''Emerge Australia''' efforts include peer support groups, Health Promotion activities, awareness and fundraising activities, advocacy, seminars and a dedicated Member information service. They produce a quarterly ''Emerge Journal''.

"We are determined to strengthen the national response to [[ME/CFS]] and welcome and encourage all State and Territory organisations, communities and individuals to join with us as we move forward with hope, vigour and a commitment to lead."<ref>[http://emerge.org.au/about-us/ Emerge Australia - About Us]</ref>

The current CEO of Emerge Australia is Dr Heidi Nicholl, who has a PhD and background in medical ethics.

==Aims==
From [https://emerge.org.au/mission-vision/#.WEb9xIXwMmQ Emerge Australian website]:
<blockquote>Mission - To support, provide information and advocacy for people associated with Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS).
Vision - Universal awareness and acknowledgement of ME/CFS as a medical condition.

Values - To serve the best interests of people affected by ME/CFS with integrity, compassion and empathy.</blockquote>

==Funding==
In July 2018, Emerge Australia received $370,000 in Federal Department of Health funding to support its work.<ref>{{Cite news|url=https://www.miragenews.com/emerge-australia-welcomes-370-000-in-federal-funding/|title=Emerge Australia welcomes $370,000 in Federal funding|date=2018-07-17|work=Mirage News|access-date=2018-08-03|language=en-US}}</ref>

==History==
The 'ME Society' was formed in 1980 in Victoria, and included patients from Tasmania, South [[Australia]] and Western Australia. The New South Wales and ACT societies formed independently, at the same time. The society's quarterly information brochure, 'Emerge', began in 1980.<ref>[http://emerge.org.au/mission-vision/history/#.Vtp8nJx97tQ Emerge Australia - History]</ref> In 2014, the society was renamed from 'ME/CFS Australia (Victoria)' to 'Emerge Australia'.

Chief Executive Officer 2017-2018 - John Jeffries

Chief Executive Officer 2016-2017 - Elizabeth Logan

Chief Executive Officer 2016 - Leisl Jackson (acting)

Chief Executive Officer 2015-2016 Amanda Kelly

==Advocacy actions==
*2016: An open letter is sent to [[Queen Mary University of London]], and the Information Commissioner's Office in the [[UK]], asking for the release of the [[PACE trial]] data.<ref name="openletrEmergeAust" />

==Talks and interviews==
*23 Feb 2016, [http://thewire.org.au/story/chronic-fatigue-syndrome-chronically-underfunded/ ''The Wire Radio'' in Australia covers the dismal research spending into] [[ME]] and interviews patient [[Sasha Nimmo]], former Senator [[Scott Ludlam]] and [[Sally Missing]], President of Emerge Australia]
*27 May 2014, [https://soundcloud.com/emergeaustralia/me-part-1-byron-bay-lighthouse-fm-may-2014 "ME Part 1 Byron Bay Lighthouse FM MAY 2014"]
*27 May 2014, [https://soundcloud.com/emergeaustralia/me-part-2-byron-bay-lighthouse-fm-may-2014 "ME Part 2 Byron Bay Lighthouse FM MAY 2014"]
*20 May 2014, [https://soundcloud.com/emergeaustralia/chronic-fatigue-syndrome-774 "ME/CFS 774 ABC Radio 2014 Richard Stubbs and Nicole Phillips"]
*24 Sept 2013 [https://soundcloud.com/emergeaustralia/me-phillips-radio-interview "ME Phillips Radio Interview 2013"]
* [https://vimeo.com/emergeaustralia Vimeo channel - Emerge seminars]

==Online presence==
* [http://emerge.org.au Website]
* [https://www.facebook.com/EmergeAustraliaInc FaceBook]
* [https://twitter.com/EmergeAus Twitter]
* [https://www.linkedin.com/company/emerge-australia-inc Linked In]
* [https://www.givenow.com.au/cause267 Give Now (donations)]

==See also==
*[[Australia]]

==Learn more==
*[http://emerge.org.au/ Emerge Australia website]

==References==
<references>
<ref name="openletrEmergeAust">{{citation
| author = Emerge Australia | authorlink1 = Emerge Australia
| title = Open Letter to QMUL - Request for the release of PACE trial data
| date = 20 Mar 2016
| url = http://emerge.org.au/pace-trial-letter/?ct=t(April_newsletter07_04_2016)#.VxCS5KR97tS
}}</ref>
</references>

[[Category:Patient groups]]
[[Category:Australian patient groups]]

Emerge Australia

2018-12-06T08:37:53Z

ME Australia:/* Talks and interviews */

'''Emerge Australia''' efforts include peer support groups, Health Promotion activities, awareness and fundraising activities, advocacy, seminars and a dedicated Member information service. They produce a quarterly ''Emerge Journal''.

"We are determined to strengthen the national response to [[ME/CFS]] and welcome and encourage all State and Territory organisations, communities and individuals to join with us as we move forward with hope, vigour and a commitment to lead."<ref>[http://emerge.org.au/about-us/ Emerge Australia - About Us]</ref>

The current CEO of Emerge Australia is Dr Heidi Nicholl, who has a PhD and background in medical ethics.

==Aims==
From [https://emerge.org.au/mission-vision/#.WEb9xIXwMmQ Emerge Australian website]:
<blockquote>Mission - To support, provide information and advocacy for people associated with Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS).
Vision - Universal awareness and acknowledgement of ME/CFS as a medical condition.

Values - To serve the best interests of people affected by ME/CFS with integrity, compassion and empathy.</blockquote>

==Funding==
In July 2018, Emerge Australia received $370,000 in Federal Department of Health funding to support its work.<ref>{{Cite news|url=https://www.miragenews.com/emerge-australia-welcomes-370-000-in-federal-funding/|title=Emerge Australia welcomes $370,000 in Federal funding|date=2018-07-17|work=Mirage News|access-date=2018-08-03|language=en-US}}</ref>

==History==
The 'ME Society' was formed in 1980 in Victoria, and included patients from Tasmania, South [[Australia]] and Western Australia. The New South Wales and ACT societies formed independently, at the same time. The society's quarterly information brochure, 'Emerge', began in 1980.<ref>[http://emerge.org.au/mission-vision/history/#.Vtp8nJx97tQ Emerge Australia - History]</ref> In 2014, the society was renamed from 'ME/CFS Australia (Victoria)' to 'Emerge Australia'.

Chief Executive Officer 2017-2018 - John Jeffries

Chief Executive Officer 2016-2017 - Elizabeth Logan

Chief Executive Officer 2016 - Leisl (acting)

Chief Executive Officer 2015-2016 Amanda Kelly

==Advocacy actions==
*2016: An open letter is sent to [[Queen Mary University of London]], and the Information Commissioner's Office in the [[UK]], asking for the release of the [[PACE trial]] data.<ref name="openletrEmergeAust" />

==Talks and interviews==
*23 Feb 2016, [http://thewire.org.au/story/chronic-fatigue-syndrome-chronically-underfunded/ ''The Wire Radio'' in Australia covers the dismal research spending into] [[ME]] and interviews patient SashaNimmo, former Senator [[Scott Ludlam]] and Sally Missing of Emerge Australia]
*27 May 2014, [https://soundcloud.com/emergeaustralia/me-part-1-byron-bay-lighthouse-fm-may-2014 "ME Part 1 Byron Bay Lighthouse FM MAY 2014"]
*27 May 2014, [https://soundcloud.com/emergeaustralia/me-part-2-byron-bay-lighthouse-fm-may-2014 "ME Part 2 Byron Bay Lighthouse FM MAY 2014"]
*20 May 2014, [https://soundcloud.com/emergeaustralia/chronic-fatigue-syndrome-774 "ME/CFS 774 ABC Radio 2014 Richard Stubbs and Nicole Phillips"]
*24 Sept 2013 [https://soundcloud.com/emergeaustralia/me-phillips-radio-interview "ME Phillips Radio Interview 2013"]
* [https://vimeo.com/emergeaustralia Vimeo channel - Emerge seminars]

==Online presence==
* [http://emerge.org.au Website]
* [https://www.facebook.com/EmergeAustraliaInc FaceBook]
* [https://twitter.com/EmergeAus Twitter]
* [https://www.linkedin.com/company/emerge-australia-inc Linked In]
* [https://www.givenow.com.au/cause267 Give Now (donations)]

==See also==
*[[Australia]]

==Learn more==
*[http://emerge.org.au/ Emerge Australia website]

==References==
<references>
<ref name="openletrEmergeAust">{{citation
| author = Emerge Australia | authorlink1 = Emerge Australia
| title = Open Letter to QMUL - Request for the release of PACE trial data
| date = 20 Mar 2016
| url = http://emerge.org.au/pace-trial-letter/?ct=t(April_newsletter07_04_2016)#.VxCS5KR97tS
}}</ref>
</references>

[[Category:Patient groups]]
[[Category:Australian patient groups]]

ME Australia

2018-12-06T08:29:30Z

ME Australia:added reference

ME Australia is a news site, reporting on mostly Australia medical research (both good and bad),funding, treatment and profiling scientists.

ME is Australia is also a collaborative network of people across all Australian states working to increase funding for biomedical research into ME and improve treatment.<ref>{{Cite web|url=https://meaustralia.net/2018/12/01/australias-health-minister-listening-to-people-with-me/|title=Australia’s Health Minister listening to people with ME|date=2018-12-01|website=ME Australia|language=en|access-date=2018-12-06}}</ref>

It was established in 2016 by Sasha Nimmo.

[[MEAustralia.net]]

Australia

2018-12-06T08:25:15Z

ME Australia:punctuation and updated figures

[[File:Australia_flag.svg.png|320px|right|thumb|'''Australia''']]

There are an estimated 92,000 to 598,000 people in Australia with chronic fatigue syndrome, ME or CFS/ME or ME/CFS (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria" /> depending on which definition of the condition is used).

Using the International Consensus Criteria for ME (0.4-1%), there are between 100,000 and 250,000 Australians with ME.

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis.

Australian patients use the terms [[Chronic Fatigue Syndrome]], [[ME/CFS]], CFS/ME, ME or [[Myalgic Encephalomyelitis]] or immune dysfunction illness.

==Medical guidelines==

The 2002 Australian chronic fatigue syndrome guidelines are widely criticised.<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_mar_7.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (March 7, 2002)|website=sacfs.asn.au|access-date=2018-12-05}}</ref> <ref>{{Cite web|url=http://www.ahmf.org/guidelines.html|title=Alison Hunter Memorial Foundation: Supporting Biomedical Research Into Myalgic Encephalomyelitis/ Chronic Fatigue Sydnrome ME/CFS - Guidelines|website=www.ahmf.org|access-date=2018-12-05}}</ref> <ref>{{Cite web|url=https://meaustralia.net/2018/11/30/difference-between-australian-chronic-fatigue-syndrome-guidelines-and-me/|title=Difference between Australian chronic fatigue syndrome guidelines and ME|date=2018-11-30|website=ME Australia|language=en|access-date=2018-12-05}}</ref>

The 2002 Australian guidelines were written by by National Health and Medical Research Council (NHRMC) fellowship recipient Prof Andrew Lloyd, who sits on the review committees for NHMRC grant applications.<ref name="#MEACTION20160120ahd" />

The NHMRC website lists resources for clinicians, including recommendations for exercise, cognitive behavioural therapy and antidepressants.<ref>{{Cite news|url=https://meaustralia.net/2018/09/26/australian-government-committee-on-me-and-chronic-fatigue-syndrome/|title=Australian committee on ME and chronic fatigue syndrome nearly finished report|date=2018-09-26|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

A government-appointed advisory committee is in the process of recommending whether new clinical guidelines should be developed to replace the outdated Australian guidelines.<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref> Their draft report is due out in December 2018.

Some patients are lobbying for the [[International Consensus Criteria]] to be adopted<ref>{{Cite news|url=https://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/|title=Australia: Ask the medical research council to fund studies - #MEAction|date=2016-03-14|work=#MEAction|access-date=2018-10-02|language=en-US}}</ref>. Some suggested letter templates have been offered for use [http://www.meaction.net/2016/03/10/australia-write-your-own-letter-to-a-politician/ here] and [http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/ here].

===Patient groups===

The [[International Consensus Criteria | International Consensus Primer]] is listed by all organisations, except Western Australia's ME/CFS/Lyme Association, which lists the [[Canadian Consensus Criteria]].

One of the NSW websites lists the [[International Consensus Criteria | International Consensus Primer]], [[ME/CFS: A Primer For Clinical Practitioners | IACFS/ME Clinical]], the [http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01 2006 Paediatric Criteria]<ref name="JasonL2006paed" />, and the [[South Australian ME/CFS Guidelines]]<ref name="SthAustGuidelines" /> but is not clear on which one it endorses.

Some state organisations, [[NCNED]] and some patients are lobbying<ref name="#MEACTION20160314amrc" /> for the 2002 RACP Australian guidelines<ref name="RACP2002" /> to be replaced with the [[International Consensus Criteria]].

===Australian medical associations===
*The Royal Australasian College of Physicians (RACP) published guidelines in 2002, in the Australian Medical Journal.<ref name="RACP2002" />
*The Royal Australasian College of General Practitioners (RACGP) published a guideline in 2015 which recommends [[Graded Exercise Therapy]].<ref name="RACGP2015guide" /> Their magazine Australian Family Practitioner (AFP) has published articles about [[ME/CFS]],<ref name="AFPlist" /> including a 2013 article that recommends [[Graded exercise therapy]] and [[Cognitive behavioral therapy]].<ref name="AFP201304" />
*The Australian Medical Association (AMA) website recommends [[Graded Exercise Therapy]].<ref name="AMA20040503" />

===National health department===
* [http://health.gov.au Department of Health]
* [http://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs Direct information page on CFS from Department of Health]

===National Health and Medical Research Council===
The [http://nhmrc.gov.au NHMRC] funds health and medical research, and develops health advice & guidelines. It is part of the Australian Department of Health.

In 2018 the NHMRC appoointed an ME and CFS advisory committee<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>, including [[Andrew Lloyd]], [[Suzanne Broadbent,]] [[Sonya Marshall-Gradisnik]] and [[Kathy Rowe]].

The committee is advising the government on current research, gaps in research and whether the 2002 clinical guidelines for doctors should be revised.The NHMRC did not put out a call for applications for positions on the advisory committee, unlike the USA’s Department of Health and Human services does for it’s [https://www.hhs.gov/ash/advisory-committees/cfsac/notices/index.html Chronic Fatigue Syndrome Advisory Committee]. Nor did it follow the UK example and hold [https://www.nice.org.uk/news/article/nice-announces-next-steps-in-updating-its-guideline-on-me-cfs workshops with stakeholders] before recruiting a guideline committee. Their report is due to be open for public consultation by the end of 2018.

===State and territory health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] - information for the public
* ACT
* NSW
* South Australia
* Northern Territory
* Queensland
* Tasmania
* Western Australia

==Health insurance==

===Government health insurance===
The Australian government subsidises most medical appointments, some hospital services, and some medications.
*[https://www.humanservices.gov.au/customer/dhs/medicare Medicare]
*[https://www.humanservices.gov.au/customer/services/medicare/medicare-safety-net Medicare Safety Net]
*[http://www.pbs.gov.au/info/about-the-pbs Pharmaceutical Benefits Scheme]

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.
*[https://www.ndis.gov.au/index.html National Disability Insurance Scheme]

==Access to care==
((How many hospitals & doctors, which diagnose and treat ME (estimate):))
((Rehabilitation offers for ME sufferers: ))

==Patient groups==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (formerly ME/CFS Victoria, Tasmania & Northern Territory) which has 10 paid staff.
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society] which has one paid staff member.
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]
*[https://www.hfme.org/ Hummingbirds' Foundation for ME] established by [[Jodi Bassett]]
*[https://meaustralia.net/ ME Australia] a collective network across Australia
*[[Change for ME Australia]], an online collective

==Research==

===Notable studies===
*[https://www.dovepress.com/articles.php?article_id=26236 Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome (2016)]
*2016, [https://link.springer.com/chapter/10.1007/978-3-319-32240-7_11 Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy]

===Research results===
*2018: [https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/ How much can people with ME stand?]<ref>{{Cite news|url=https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/|title=How much can people with ME stand?|date=2018-08-06|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2016: [http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/ Australian Breakthrough on Diagnostic Blood Test]<ref name="#MEACTION20160303test" />
*2015: [http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/ Australian Research into ME/CFS in Adolescents]<ref name="#MEACTION20150819arma" />

===Research funding===
*2018: [https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/ Friends in Australia's Parliament for people with ME and chronic fatigue syndrome]<ref>{{Cite news|url=https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/|title=Friends in Australia’s parliament for people with ME and chronic fatigue syndrome|date=2018-08-07|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2018: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's medical research council questioned on ME and CFS committee]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2017: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's Health Minister refuses to stop funding trial of 'incredibly bad' treatment]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2016: [http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Dept Pins its Hopes on NIH Research]<ref name="#MEACTION20160212ahd" />
*2016: [http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/ The Australian Health Department Answers Questions on ME]<ref name="#MEACTION20160120ahd" />
*2015: [http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/ Australian Senator Questions Government on Lack of Action on ME]<ref name="#MEACTION20151116asqg" />

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://meaustralia.net/2018/12/05/new-australian-research-network-holding-scientific-workshop-on-me/ ME/CFS Discovery Research Network]
*[https://app.secure.griffith.edu.au/news/2018/11/27/generous-2m-donation-to-bolster-efforts-of-griffith-cfs-researchers/ Consortium Health International for Myalgic Encephalomyelitis (CHIME)]
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[https://www.vu.edu.au/ Victoria University]
*[http://www.bio21.unimelb.edu.au/ Bio21 Institute, Melbourne University]

===Researchers===
*[[Christopher Armstrong]]
*[[Dorothy Bruck]]
*[[Henry Butt]]
*[[Elaine DeFreitas]]
*[[Paul R Gooley|Paul Gooley]]
*[[Melinda Jackson]]
*[[Donald Lewis]]
*[[Brett Lidbury]]
*[[Andrew Lloyd]]
*[[Neil McGregor]]
*[[Michael Maes]]
*[[Sarah Knight]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
*[[Amy Wallis]]

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW), [[Mark Donohoe]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*[https://meaustralia.net/2016/12/01/remembering-alison-hunter-1976-1996/ Alison Hunter], died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name in 1998, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), in 2014, and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite" />
*[[Jodi Bassett]]
*[[Laura Dundovic]]
*[[Leigh Hatcher]]
*[[Linley Frame]]
*[[Johanna Griggs]]
*[[Alastair Lynch]]
*[[James McDonald]]
*[[Alem Matthees]]
*[[Nadine Neumann ]]
*[[Matthew Nicholson]]
*[[Rhyce Shaw]]
*[[Shelley Taylor-Smith]]

==Learn more==
*2016, [https://www.thesaturdaypaper.com.au/2016/08/06/rethinking-chronic-fatigue-syndrome/14704056003560 Rethinking chronic fatigue syndrome]
*2018, [https://www.theguardian.com/commentisfree/2018/may/12/to-the-millionsmissing-with-mecfs-something-remarkable-is-happening To the #MillionsMissing, something remarkable is happening]
*[https://meaustralia.net/ ME Australia]

==See also==
*[[1949-53 Adelaide outbreak]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>
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| title = Graded exercise therapy: chronic fatigue syndrome
| date = Mar 2015
| url = http://www.racgp.org.au/your-practice/guidelines/handi/interventions/other/graded-exercise-therapy-for-chronic-fatigue-syndrome/
}}</ref>
<ref name="AFPlist">{{citation
| journal = Australian Family Physician
| title = articles about Chronic Fatigue Syndrome
| url = http://www.racgp.org.au/search/
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<ref name="AFP201304">{{citation
| author = Megan Arroll, Bruce Arroll
| title = Chronic fatigue syndrome: A patient centred approach to management
| journal = Australian Family Practitioner
| date = Apr 2013
| url = http://www.racgp.org.au/afp/2013/april/chronic-fatigue-syndrome/
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</references>

[[Category:Countries]]
[[Category:Oceania]]
[[Category:Australia]]

Sonya Marshall-Gradisnik

2018-12-06T02:31:36Z

ME Australia:added link to a committee Sonya is on & link to a profile interview

[[File:Sonya Marshall-Gradisnik.png|thumb|right|Source: InvestinME]]
'''Sonya M. Marshall-Gradisnik''', BSc (Hons), PhD, is co-director (alongside Professor [[Donald Staines]]) of the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED) at [[Griffith University]] in [[Australia]]. Her expertise is in [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] with particular focus on [[Natural killer cell|Natural Killer Cell]] function and signalling pathways, [[Regulatory T cell|T regulatory]] and [[B cell]] phenotypes and [[cytokine]] production, and transcriptional profiling and gene expression. <ref>https://www.griffith.edu.au/health/school-medical-science/staff/professor-sonya-marshall-gradisnik</ref> In her studies, she compares the changes of the different cells of the [[immune system]] in relation to the severity of [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]]. Prof Marshall-Gradisnik is on the Australian goverment's National Health and Medical Research Council's ME and CFS advisory committee<ref>{{Cite web|url=https://nhmrc.gov.au/myalgic-encephalomyelitis-and-chronic-fatigue-syndrome|title=Myalgic Encephalomyelitis and Chronic Fatigue Syndrome {{!}} NHMRC|website=nhmrc.gov.au|language=en|access-date=2018-12-06}}</ref>.

Read '[https://meaustralia.net/2018/12/05/meet-the-scientists-prof-sonya-marshall-gradisnik/ Meet the Scientists: Professor Sonya Marshall-Gradisnik]' profile in ME Australia, December 2018.

==International Consensus Criteria==
She is one of the authors of the 2011 case definition, [[International Consensus Criteria]].<ref>{{Cite journal|last=Carruthers|first=Bruce M.|author-link=Bruce Carruthers|last2=van de Sande|first2=Marjorie I.|author-link2=Marjorie van de Sande|last3=De Meirleir|first3=Kenny L.|author-link3=Kenny De Meirleir|last4=Klimas|first4=Nancy G.|author-link4=Nancy Klimas|last5=Broderick|first5=Gordon|author-link5=Gordon Broderick|last6=Mitchell|first6=Terry|author-link6=Terry Mitchell|last7=Staines|first7=Donald|author-link7=Donald Staines|last8=Powles|first8=A. C. Peter|author-link8=A C Peter Powles|last9=Speight|first9=Nigel|author-link9=Nigel Speight|last10=Vallings|first10=Rosamund|author-link10=Rosamund Vallings|last11=Bateman|first11=Lucinda|author-link11=Lucinda Bateman|last12=Baumgarten-Austrheim|first12=Barbara|author-link12=Barbara Baumgarten-Austrheim|last13=Bell|first13=David|author-link13=David Bell|last14=Carlo-Stella|first14=Nicoletta|author-link14=Nicoletta Carlo-Stella|last15=Chia|first15=John|author-link15=John Chia|last16=Darragh|first16=Austin|author-link16=Austin Darragh|last17=Jo|first17=Daehyun|author-link17=Daehyun Jo|last18=Lewis|first18=Donald|author-link18=Donald Lewis|last19=Light|first19=Alan|author-link19=Alan Light|last20=Marshall-Gradisnik|first20=Sonya|author-link20=Sonya Marshall-Gradisnik|last21=Mena|first21=Ismael|author-link21=Ismael Mena|last22=Mikovits|first22=Judy|author-link22=Judy Mikovits|last23=Miwa|first23=Kunihisa|author-link23=Kunihisa Miwa|last24=Murovska|first24=Modra|author-link24=Modra Murovska|last25=Pall|first25=Martin|author-link25=Martin Pall|last26=Stevens|first26=Staci|author-link26=Staci Stevens|date=2011-08-22|title=Myalgic encephalomyelitis: International Consensus Criteria|url=https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1365-2796.2011.02428.x|journal=Journal of Internal Medicine|language=en|volume=270|issue=4|pages=327–338|doi=10.1111/j.1365-2796.2011.02428.x|issn=0954-6820|pmc=3427890|pmid=21777306|via=}}</ref>

==International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis ==
Marshall-Gradisnik is on the Board of Directors of the [[International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] (IACFS/ME).

==Biomarker Patent==
In 2016, [[Griffith University]] filed for a patent for a [[Diagnostic biomarker|biological marker]] (Patent Publication number WO2016023077 A1)<ref>https://www.google.co.uk/patents/WO2016023077A1?cl=en&dq=sonya+marshall-gradisnik</ref> for the diagnosis and management of [[ME]] and [[CFS]]. Sonya Marshall-Gradisnik and [[Ekua Brenu]] are listed as the inventors. The application states: "The present invention resides broadly in the use of at least one miRNA as a [[Diagnostic biomarker|biological marker]] for identifying or diagnosing a subject having [[CFS]] and/or [[ME]]."<ref>https://www.google.co.uk/patents/WO2016023077A1?cl=en&dq=sonya+marshall-gradisnik</ref>

==Notable studies==
*2011, Immunological abnormalities as potential [[biomarker]]s in [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]]<ref name="Brenu, 2011" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3120691/ (Full Text)]
*2012, The Effects of Influenza Vaccination on Immune Function in Patients with [[Chronic Fatigue Syndrome]]/[[Myalgic Encephalomyelitis]]<ref name="Brenu, Ekua, 2012" /> [https://file.scirp.org/pdf/IJCM20120600017_29918208.pdf (Full Text)]
*2013, The role of clinical guidelines for [[ME/CFS|chronic fatigue syndrome/myalgic encephalomyelitis]] in research settings<ref name="Johnston, 2013" /> [https://www.tandfonline.com/doi/abs/10.1080/21641846.2013.860779 (Abstract)]
*2014, Characterization of [[Natural killer cell|Natural Killer Cell]] Phenotypes in [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]]<ref name="Huth, 2014" /> [https://www.omicsonline.org/open-access/characterization-of-natural-killer-cell-phenotypes-in-chronic-fatigue-syndrome-2155-9899.1000223.pdf (Full Text)]
*2014, The Role of Adaptive and Innate Immune Cells in [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]]<ref name="BrenuEW2014" /> [https://www.researchgate.net/publication/259350347_The_Role_of_Adaptive_and_Innate_Immune_Cells_in_Chronic_Fatigue_Syndrome_Myalgic_Encephalomyelitis (Full Text)]
*2014, Analysis of the Relationship between Immune Dysfunction and Symptom Severity in Patients with [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)]]<ref name="Hardcastle, 2014" /> [https://www.omicsonline.org/open-access/analysis-relationship-immune-dysfunction-symptom-severity-patients-chronic-fatigue-2155-9899.1000190.php?aid=22894 (Full Text)]
*2015, A Comparison of [[Cytokine]] Profiles of [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] and [[Multiple Sclerosis]] Patients<ref name="Wong, 2015" /> [http://file.scirp.org/Html/10-2101204_60764.htm (Full Text)]
*2015, [[Cytokines]] in the Cerebrospinal Fluids of Patients with [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]]<ref name="Peterson, 2015" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4365360/ (Full Text)]
*2015, Serum Immune Proteins in Moderate and Severe [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] Patients<ref name="Hardcastle, 09052015" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4615236/ (Full Text)]
*2015, Longitudinal analysis of immune abnormalities in varying severities of [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] patients<ref name="Hardcastle, 092015" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4568602/ (Full Text)]
*2015, Characterisation of cell functions and receptors in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)<ref name="Hardcastle, 2015" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4450981/ (Full Text)]
*2015, Examination of Single Nucleotide Polymorphisms (SNPs) in Transient Receptor Potential (TRP) Ion Channels in [[Chronic Fatigue Syndrome]] Patients<ref name="Marshall-Gradisnik, 2015" /> [http://journals.sagepub.com/doi/pdf/10.4137/III.S25147 (Full Text)]
*2016, A Systematic Review of Drug Therapies for [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]]<ref name="Collatz, 2016" /> [https://www.ncbi.nlm.nih.gov/pubmed/27229907 (Abstract)]
*2016, Progressive [[brain]] changes in patients with [[chronic fatigue syndrome]]: A longitudinal MRI study<ref name="Shan, 2016" /> [https://www.scienceopen.com/document/read?vid=ac2948b6-48d1-4ebd-8f96-3a3c5a57f770 (Full Text)]
*2016, [[Regulatory T cell|Regulatory T]], [[Natural killer T cell|natural killer T]] and γδ T cells in [[multiple sclerosis]] and [[ME/CFS|chronic fatigue syndrome/myalgic encephalomyelitis]]: a comparison.<ref name="Ramos, 2016" /> [http://apjai-journal.org/wp-content/uploads/2016/12/8RegulatoryTnaturalkillerAPJAIVol34No4December2016P300.pdf (Full Text)]
*2016, [[Natural killer cell|Killer Cell]] Immunoglobulin-like Receptor Genotype and Haplotype Investigation of [[Natural killer cell|Natural Killer Cell]]s from an Australian Population of [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] Patients<ref name="Huth,TK, 2016" /> [http://www.la-press.com/redirect_fi...enotype-and-Haplotype-Invest.pdf&fileType=pdf (Full Text)]
*2016, ERK1/2, MEK1/2 and p38 downstream signalling molecules impaired in CD56dimCD16+ and CD56brightCD16dim/− [[natural killer cell]]s in [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] patients<ref name="Huth, 2016" /> [http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z (Full Text)]
*2016, [[Natural killer cell]]s and single nucleotide polymorphisms of specific ion channels and receptor genes in [[ME/CFS|myalgic encephalomyelitis/chronic fatigue syndrome]]<ref name="Marshall-Gradisnik,SM 2016" /> [https://www.dovepress.com/natural-killer-cells-and-single-nucleotide-polymorphisms-of-specific-i-peer-reviewed-fulltext-article-TACG (Full Text)]
*2017, Dietary and nutrition interventions for the therapeutic treatment of [[ME/CFS|chronic fatigue syndrome/myalgic encephalomyelitis]]: a systematic review<ref>{{Cite journal|last=Campagnolo|first=N.|last2=Johnston|first2=S.|last3=Collatz|first3=A.|last4=Staines|first4=D.|author-link4=Donald Staines|last5=Marshall-Gradisnik|first5=S.|author-link5=Sonya Marshall-Gradisnik|date=22 Jan 2017|title=Dietary and nutrition interventions for the therapeutic treatment of chronic fatigue syndrome/myalgic encephalomyelitis: a systematic review|url=http://doi.wiley.com/10.1111/jhn.12435|journal=Journal of Human Nutrition and Dietetics|language=en|volume=30|issue=3|pages=247–259|doi=10.1111/jhn.12435|issn=0952-3871|pmc=|pmid=28111818|via=}}</ref> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5434800/ (Full Text)]
*2017, Impaired [[calcium]] mobilization in [[natural killer cell]]s from [[ME/CFS|chronic fatigue syndrome/myalgic encephalomyelitis]] patients is associated with transient receptor potential melastatin 3 ion channels<ref name="Nguyen, 2017" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5217865/ (Full Text)]
*2017, Novel characterisation of mast cell phenotypes from peripheral blood mononuclear cells in [[ME/CFS|chronic fatigue syndrome/myalgic encephalomyelitis]] patients<ref name="Nguyen, et al, 2017" /> [http://apjai-journal.org/wp-content/uploads/2017/07/75-81-AP0771.pdf (Full Text)]
*2018, Decreased Expression of TRPM3 and mAChRM3 in the Small Intestine in [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]]<ref>{{Cite journal|last=Marshall-Gradisnik|first=Sonya|author-link=Sonya Marshall-Gradisnik|last2=Fretel|first2=Marshall|last3=Eaton|first3=Natalie|last4=Cabanas|first4=Helene|last5=Balinas|first5=Cassandra|last6=Gopalan|first6=Vinod|last7=Petersen|first7=Daniel|author-link7=Daniel Peterson|last8=Passmore|first8=Rachel|last9=Tang|first9=Kevin|last10= Haque|first10=Mazhar|author-link10=|last11=Lam|first11=Alfred |author-link11=|last12=Staines|first12=Donald|author-link12=Donald Staines|date=2018-05-31|title=Decreased Expression of TRPM3 and mAChRM3 in the Small Intestine in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis|url=http://www.scirp.org/journal/PaperInformation.aspx?PaperID=85005&#abstract|journal=International Journal of Clinical Medicine|language=en|volume=09|issue=05|pages=467|doi=10.4236/ijcm.2018.95040|via=}}</ref> [http://file.scirp.org/Html/11-2101759_85005.htm (Full text)]
*2018, [[Brain]] function characteristics of [[chronic fatigue syndrome]]: A task fMRI study<ref name="Shan, 2018" /> [https://www.sciencedirect.com/science/article/pii/S2213158218301347 (Full Text)]
*2018, A Systematic Review of [[Probiotic]] Interventions for Gastrointestinal Symptoms and [[Irritable Bowel Syndrome]] in [[ME|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)]].<ref name="Corbitt, 2018" /> [https://www.ncbi.nlm.nih.gov/pubmed/29464501 (Abstract)]
*2018, [[Rituximab]] impedes [[natural killer cell]] function in [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] patients: A pilot in vitro investigation<ref name="Eaton, 2018" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5870391/ (Full Text)]
*2018, Reduced glycolytic reserve in isolated [[natural killer cell]]s from [[ME/CFS|Myalgic encephalomyelitis/chronic fatigue syndrome]] patients: A preliminary investigation<ref name="Nguyen, 2018" /> [https://www.ncbi.nlm.nih.gov/pubmed/29981562 (Abstract)]
*2018, Hyperintense sensorimotor T1 spin echo [[MRI]] is associated with brainstem abnormality in [[chronic fatigue syndrome]]<ref>{{Cite journal|last=Barnden|first=Leighton R.|last2=Shan|first2=Zack Y.|last3=Staines|first3=Donald R.|author-link3=Donald Staines|last4=Marshall-Gradisnik|first4=Sonya|author-link4=Sonya Marshall-Gradisnik|last5=Finegan|first5=Kevin|last6=Ireland|first6=Timothy|last7=Bhuta|first7=Sandeep|date=2018|title=Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in chronic fatigue syndrome|url=https://www.sciencedirect.com/science/article/pii/S2213158218302237|journal=NeuroImage: Clinical|volume=20|pages=102-109|doi=10.1016/j.nicl.2018.07.011|via=}}</ref> [https://www.sciencedirect.com/science/article/pii/S2213158218302237 (Full Text)]
*2018, Loss of Transient Receptor Potential Melastatin 3 ion channel function in [[Natural killer cell|natural killer cells]] from [[ME/CFS|Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] patients<ref>{{Cite journal|last=Cabanas|first=Hélène|last2=Muraki|first2=Katsuhiko|last3=Eaton|first3=Natalie|last4=Balinas|first4=Cassandra|last5=Staines|first5=Donald|author-link5=Donald Staines|last6=Marshall-Gradisnik|first6=Sonya|author-link6=Sonya Marshall-Gradisnik|date=2018-08-14|title=Loss of Transient Receptor Potential Melastatin 3 ion channel function in natural killer cells from Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients|url=https://molmed.biomedcentral.com/articles/10.1186/s10020-018-0046-1|journal=Molecular Medicine|language=En|volume=24|issue=1|pages=|doi=10.1186/s10020-018-0046-1|issn=1076-1551|via=}}</ref> [https://molmed.biomedcentral.com/articles/10.1186/s10020-018-0046-1 (Full Text)]

==Open Letter to ''The Lancet''==
Three [[open letter to the Lancet | open letters to the editor of ''The Lancet'']] urged the editor to commission a fully independent review of the [[PACE trial]], which the journal had published in 2011. In 2016, Dr. Marshall-Gradisnik, along with 41 colleagues in the [[ME/CFS]] field, signed the second letter. In June 2018, Dr. Marshall-Gradisnik signed the third letter, this time along with approximately 100 colleagues.

*10 February 2016, [http://www.virology.ws/2016/02/10/open-letter-lancet-again/ An open letter to The Lancet, again - Virology blog]
*19 June 2018, [http://www.virology.ws/2018/06/19/trial-by-error-an-open-letter-to-the-lancet-two-years-on/ Trial By Error: An Open Letter to The Lancet, Two Years On - Virology blog]

==Clinic location==
[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED) is located at [[Griffith University]] on the Gold Coast, Queensland, [[Australia]].

==Talks & interviews==
*2012, Speaker at the 7th Invest in ME International ME Conference [http://www.investinme.eu/IIMEC7.shtml#dvd DVD available](no speech title given)]
*2012, [https://vimeo.com/108545941 Keynote address by Prof Sonya Marshall-Gradisnik at Emerge Australia (formerly ME/CFS Australia (Victoria)) Awareness Week]
*2014, [https://soundcloud.com/search?q=chronic%20fatigue%20syndrome "Professor Sonya Marshall-Gradisnik, Australia's foremost expert on chronic fatigue syndrome" interviewed on ABC Gold Coast]
*2014, Speaker at the 9th Invest in ME International ME Conference [http://www.investinme.eu/IIMEC9.shtml#dvd DVD available](no speech title given)]
*2015, Speaker at the 10th Invest in ME International ME Conference [http://www.investinme.eu/IIMEC910.shtml#dvd DVD available](no speech title given)]
*2016, [http://www.abc.net.au/pm/content/2016/s4415928.htm Australian scientists make breakthrough in Chronic Fatigue Syndrome testing]

==Online presence==
*[https://www.ncbi.nlm.nih.gov/pubmed/?term=Marshall-Gradisnik%20S%5BAuthor%5D&cauthor=true&cauthor_uid=26881265 PubMed - Sonya Marshall-Gradisnik]
*[https://www.griffith.edu.au/health/school-medical-science/staff/professor-sonya-marshall-gradisnik Griffith University - Sonya Marshall-Gradisnik]
*[https://www.griffith.edu.au/health/national-centre-neuroimmunology-emerging-diseases National Centre for Neuroimmunology and Emerging Diseases]

==Learn more==
*2014, [http://www.goldcoastbulletin.com.au/news/gold-coast/gold-coasts-griffith-university-to-lead-way-in-the-battle-against-chronic-fatigue/news-story/44ace31ee2ffac6277efa72bc4024142 "Gold Coast’s Griffith University to lead way in the battle against chronic fatigue"]
*2016, [https://www.scimex.org/newsfeed/closer-to-a-full-understanding-of-chronic-fatigue-syndrome News Article - "Closer to a Full Understanding of chronic fatigue syndrome"]

==See also==
*[[Donald Staines]]
*[[National Centre for Neuroimmunology and Emerging Diseases]]
*[[Diagnostic biomarker]]
*[[Ekua Brenu]]

==References==
<references>
<ref name="Brenu, 2011">{{Citation
| last1 = Brenu | first1 = EW | authorlink1 = Ekua Brenu
| last2 = van Driel | first2 = ML | authorlink2 =
| last3 = Staines | first3 = DR | authorlink3 = Donald Staines
| last4 = Ashton | first4 = KJ | authorlink4 =
| last5 = Ramos | first5 = SB | authorlink5 = Sandra Ramos
| last6 = Keane | first6 = J | authorlink6 =
| last7 = Klimas | first7 = NG | authorlink7 = Nancy Klimas
| last8 = Marshall-Gradisnik | first8 = SM | authorlink8 = Sonya Marshall-Gradisnik
| title = Immunological abnormalities as potential biomarkers in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
| journal = Journal of Translational Medicine | volume = 9 | issue = 81 | page =
| date = 2011
| doi = 10.1186/1479-5876-9-81
}}
</ref>
<ref name="Brenu, Ekua, 2012">{{citation
| last1 = Brenu | first1 = Ekua W | authorlink1 = Ekua Brenu
| last2 = van Driel | first2 = Mieke L | authorlink2 =
| last3 = Staines | first3 = Donald R | authorlink3 = Donald Staines
| last4 = Kreijkamp-Kaspers | first4 = Sanne | authorlink4 =
| last5 = Hardcastle | first5 = Sharni L | authorlink5 = Sharni Hardcastle
| last6 = Marshall-Gradisnik | first6 = Sonya M | authorlink6 = Sonya Marshall-Gradisnik
| title = The Effects of Influenza Vaccination on Immune Function in Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
| journal = International Journal of Clinical Medicine | volume = 3| issue = 6| page = 544-551
| date = 2012
| doi = 10.4236/ijcm.2012.36098
| url = https://file.scirp.org/pdf/IJCM20120600017_29918208.pdf
}}</ref>
<ref name="BrenuEW2014">{{citation
| last1 = Brenu | first1 = EW | authorlink1 = Ekua Brenu
| last2 = Huth | first2 = TK | authorlink2 = Teilah Huth
| last3 = Hardcastle | first3 = SL | authorlink3 = Sharni Hardcastle
| last4 = Fuller | first4 = K | authorlink4 =
| last5 = Kaur | first5 = M | authorlink5 =
| last6 = Johnston | first6 = S | authorlink6 =
| last7 = Ramos | first7 = S | authorlink7 = Sandra Ramos
| last8 = Staines | first8 = D | authorlink8 = Donald Staines
| last9 = Marshall-Gradisnik | first9 = S | authorlink9 = Sonya Marshall-Gradisnik
| title = The Role of adaptive and innate immune cells in chronic fatigue syndrome/myalgic encephalomyelitis
| journal = International Immunology | year = 2014 | volume = 26 | issue = 4 | page = 233-42
| pmid = 24343819 | doi = 10.1093/intimm/dxt068
}}</ref>
<ref name="Corbitt, 2018">{{Citation
| last1 = Corbitt | first1 = M | authorlink1 =
| last2 = Campagnolo | first2 = N | authorlink2 =
| last3 = Staines | first3 = D | authorlink3 = Donald Staines
| last4 = Marshall-Gradisnik | first4 = S | authorlink4 = Sonya Marshall-Gradisnik
| title = A Systematic Review of Probiotic Interventions for Gastrointestinal Symptoms and Irritable Bowel Syndrome in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)
| journal = Probiotics Antimicrob Proteins | volume = | issue = | page =
| date = 2018
| pmid =
| doi = 10.1007/s12602-018-9397-8
}}</ref>
<ref name="Collatz, 2016">{{Citation
| last1 = Collatz | first1 = Ansel | authorlink1 =
| last2 = Johnston | first2 = Samantha C. | authorlink2 =
| last3 = Staines | first3 = Donald R. | authorlink3 = Donald Staines
| last4 = Marshall-Gradisnik | first4 = Sonya M. | authorlink4 = Sonya Marshall-Gradisnik
| title = A Systematic Review of Drug Therapies for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
| journal = Clinical Therapeutics | volume =38 | issue = 6 | page = 1263-1271.e9
| date = 2016
| pmid = 27229907
| doi = 10.1016/j.clinthera.2016.04.038
}}
</ref>
<ref name="Eaton, 2018">{{citation
| last1 = Eaton | first1 = Natalie | authorlink1 =
| last2 = Cabanas | first2 = Hélène | authorlink2 =
| last3 = Balinas | first3 = Cassandra | authorlink3 =
| last4 = Klein | first4 = Anne | authorlink4 =
| last5 = Staines | first5 = Donald R. | authorlink5 = Donald Staines
| last6 = Marshall-Gradisnik | first6 = Sonya | authorlink6 = Sonya Marshall-Gradisnik
| title = Rituximab impedes natural killer cell function in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients: A pilot in vitro investigation
| journal = BMC Pharmacology & Toxicology | year = 2018 | volume = 19 | issue = 12 | page =
| pmid = 29587879 | doi = 10.1186/s40360-018-0203-8
}}</ref>
<ref name="Hardcastle, 2014">{{Citation
| last1 = Hardcastle | first1 = Sharni L. | authorlink1 = Sharni Hardcastle
| last2 = Brenu | first2 = Ekua W. | authorlink2 = Ekua Brenu
| last3 = Johnston | first3 = Samantha | authorlink3 =
| last4 = Nguyen | first4 = Thao | authorlink4 =
| last5 = Huth | first5 = Teilah K. | authorlink5 = Teilah Huth
| last6 = Kaur | first6 = Manprit | authorlink6 =
| last7 = Ramos | first7 = Sandra | authorlink7 = Sandra Ramos
| last8 = Salajegheh | first8 = Ali | authorlink8 =
| last9 = Staines | first9 = Donald R. | authorlink9 = Donald Staines
| last10 = Marshall-Gradisnik | first10 = Sonya | authorlink10 = Sonya Marshall-Gradisnik
| title = Analysis of the Relationship between Immune Dysfunction and Symptom Severity in Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)
| journal = Journal of Clinical & Cellular Immunology | volume = 5 | issue = 190 | page =
| date = 2014
| pmid =
| doi = 10.4172/2155-9899.1000190
}}
</ref>
<ref name="Hardcastle, 2015">{{Citation
| last1 = Hardcastle | first1 = SL | authorlink1 = Sharni Hardcastle
| last2 = Brenu | first2 = EW | authorlink2 = Ekua Brenu
| last3 = Johnston | first3 = S | authorlink3 =
| last4 = Nguyen | first4 = T | authorlink4 =
| last5 = Huth | first5 = T | authorlink5 = Teilah Huth
| last6 = Wong | first6 = N | authorlink6 =
| last7 = Ramos | first7 = S | authorlink7 = Sandra Ramos
| last8 = Staines | first8 = DR | authorlink8 = Donald Staines
| last9 = Marshall-Gradisnik | first9 = SM | authorlink9 = Sonya Marshall-Gradisnik
| title = Characterisation of cell functions and receptors in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)
| journal = BMC Immunology | volume = 16 | issue = 35 | page =
| date = 2015
| doi = 10.1186/s12865-015-0101-4
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[[Category:Researchers]]
[[Category:Australia researchers]]
[[Category:Clinicians]]
[[Category:Australian clinicians]]
[[Category:Psychological paradigm critics]]
[[Category:PACE trial critics]]

Australia

2018-12-06T02:25:33Z

ME Australia:added in new research collaborations

[[File:Australia_flag.svg.png|320px|right|thumb|'''Australia''']]

There are an estimated 92,000 to 598,000 people in Australia with chronic fatigue syndrome, ME or CFS/ME or ME/CFS (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria" /> depending on which definition of the condition is used).

Using the International Consensus Criteria for ME (0.4-1%), there are between 100,000 and 250,000 Australians with ME.

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis.

Australian patients use the terms [[Chronic Fatigue Syndrome]], [[ME/CFS]], CFS/ME, ME or [[Myalgic Encephalomyelitis]] or immune dysfunction illness.

==Medical guidelines==

The 2002 Australian chronic fatigue syndrome guidelines are widely criticised<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_mar_7.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (March 7, 2002)|website=sacfs.asn.au|access-date=2018-12-05}}</ref> <ref>{{Cite web|url=http://www.ahmf.org/guidelines.html|title=Alison Hunter Memorial Foundation: Supporting Biomedical Research Into Myalgic Encephalomyelitis/ Chronic Fatigue Sydnrome ME/CFS - Guidelines|website=www.ahmf.org|access-date=2018-12-05}}</ref> <ref>{{Cite web|url=https://meaustralia.net/2018/11/30/difference-between-australian-chronic-fatigue-syndrome-guidelines-and-me/|title=Difference between Australian chronic fatigue syndrome guidelines and ME|date=2018-11-30|website=ME Australia|language=en|access-date=2018-12-05}}</ref>

The 2002 Australian guidelines were written by by National Health and Medical Research Council (NHRMC) fellowship recipient Prof Andrew Lloyd, who sits on the review committees for NHMRC grant applications.<ref name="#MEACTION20160120ahd" />

The NHMRC website lists resources for clinicians, including recommendations for exercise, cognitive behavioural therapy and antidepressants.<ref>{{Cite news|url=https://meaustralia.net/2018/09/26/australian-government-committee-on-me-and-chronic-fatigue-syndrome/|title=Australian committee on ME and chronic fatigue syndrome nearly finished report|date=2018-09-26|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

A government-appointed advisory committee is in the process of recommending whether new clinical guidelines should be developed to replace the outdated Australian guidelines.<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref> Their draft report is due out in December 2018.

Some patients are lobbying for the [[International Consensus Criteria]] to be adopted<ref>{{Cite news|url=https://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/|title=Australia: Ask the medical research council to fund studies - #MEAction|date=2016-03-14|work=#MEAction|access-date=2018-10-02|language=en-US}}</ref>. Some suggested letter templates have been offered for use [http://www.meaction.net/2016/03/10/australia-write-your-own-letter-to-a-politician/ here] and [http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/ here].

===Patient groups===

The [[International Consensus Criteria | International Consensus Primer]] is listed by all organisations, except Western Australia's ME/CFS/Lyme Association, which lists the [[Canadian Consensus Criteria]].

One of the NSW websites lists the [[International Consensus Criteria | International Consensus Primer]], [[ME/CFS: A Primer For Clinical Practitioners | IACFS/ME Clinical]], the [http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01 2006 Paediatric Criteria]<ref name="JasonL2006paed" />, and the [[South Australian ME/CFS Guidelines]]<ref name="SthAustGuidelines" /> but is not clear on which one it endorses.

Some state organisations, [[NCNED]] and some patients are lobbying<ref name="#MEACTION20160314amrc" /> for the 2002 RACP Australian guidelines<ref name="RACP2002" /> to be replaced with the [[International Consensus Criteria]].

===Australian medical associations===
*The Royal Australasian College of Physicians (RACP) published guidelines in 2002, in the Australian Medical Journal.<ref name="RACP2002" />
*The Royal Australasian College of General Practitioners (RACGP) published a guideline in 2015 which recommends [[Graded Exercise Therapy]].<ref name="RACGP2015guide" /> Their magazine Australian Family Practitioner (AFP) has published articles about [[ME/CFS]],<ref name="AFPlist" /> including a 2013 article that recommends [[Graded exercise therapy]] and [[Cognitive behavioral therapy]].<ref name="AFP201304" />
*The Australian Medical Association (AMA) website recommends [[Graded Exercise Therapy]].<ref name="AMA20040503" />

===National health department===
* [http://health.gov.au Department of Health]
* [http://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs Direct information page on CFS from Department of Health]

===National Health and Medical Research Council===
The [http://nhmrc.gov.au NHMRC] funds health and medical research, and develops health advice & guidelines. It is part of the Australian Department of Health.

In 2018 the NHMRC appoointed an ME and CFS advisory committee<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>, including [[Andrew Lloyd]], [[Suzanne Broadbent,]] [[Sonya Marshall-Gradisnik]] and [[Kathy Rowe]].

The committee is advising the government on current research, gaps in research and whether the 2002 clinical guidelines for doctors should be revised.The NHMRC did not put out a call for applications for positions on the advisory committee, unlike the USA’s Department of Health and Human services does for it’s [https://www.hhs.gov/ash/advisory-committees/cfsac/notices/index.html Chronic Fatigue Syndrome Advisory Committee]. Nor did it follow the UK example and hold [https://www.nice.org.uk/news/article/nice-announces-next-steps-in-updating-its-guideline-on-me-cfs workshops with stakeholders] before recruiting a guideline committee. Their report is due to be open for public consultation by the end of 2018.

===State and territory health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] - information for the public
* ACT
* NSW
* South Australia
* Northern Territory
* Queensland
* Tasmania
* Western Australia

==Health insurance==

===Government health insurance===
The Australian government subsidises most medical appointments, some hospital services, and some medications.
*[https://www.humanservices.gov.au/customer/dhs/medicare Medicare]
*[https://www.humanservices.gov.au/customer/services/medicare/medicare-safety-net Medicare Safety Net]
*[http://www.pbs.gov.au/info/about-the-pbs Pharmaceutical Benefits Scheme]

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.
*[https://www.ndis.gov.au/index.html National Disability Insurance Scheme]

==Access to care==
((How many hospitals & doctors, which diagnose and treat ME (estimate):))
((Rehabilitation offers for ME sufferers: ))

==Patient groups==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[[Change for ME Australia]], an online collective
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]
*[https://www.hfme.org/ Hummingbirds' Foundation for ME] established by [[Jodi Bassett]]
*[https://meaustralia.net/ ME Australia] a collective network across Australia

==Research==

===Notable studies===
*[https://www.dovepress.com/articles.php?article_id=26236 Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome (2016)]
*2016, [https://link.springer.com/chapter/10.1007/978-3-319-32240-7_11 Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy]

===Research results===
*2018: [https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/ How much can people with ME stand?]<ref>{{Cite news|url=https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/|title=How much can people with ME stand?|date=2018-08-06|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2016: [http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/ Australian Breakthrough on Diagnostic Blood Test]<ref name="#MEACTION20160303test" />
*2015: [http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/ Australian Research into ME/CFS in Adolescents]<ref name="#MEACTION20150819arma" />

===Research funding===
*2018: [https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/ Friends in Australia's Parliament for people with ME and chronic fatigue syndrome]<ref>{{Cite news|url=https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/|title=Friends in Australia’s parliament for people with ME and chronic fatigue syndrome|date=2018-08-07|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2018: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's medical research council questioned on ME and CFS committee]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2017: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's Health Minister refuses to stop funding trial of 'incredibly bad' treatment]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2016: [http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Dept Pins its Hopes on NIH Research]<ref name="#MEACTION20160212ahd" />
*2016: [http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/ The Australian Health Department Answers Questions on ME]<ref name="#MEACTION20160120ahd" />
*2015: [http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/ Australian Senator Questions Government on Lack of Action on ME]<ref name="#MEACTION20151116asqg" />

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://meaustralia.net/2018/12/05/new-australian-research-network-holding-scientific-workshop-on-me/ ME/CFS Discovery Research Network]
*[https://app.secure.griffith.edu.au/news/2018/11/27/generous-2m-donation-to-bolster-efforts-of-griffith-cfs-researchers/ Consortium Health International for Myalgic Encephalomyelitis (CHIME)]
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[https://www.vu.edu.au/ Victoria University]
*[http://www.bio21.unimelb.edu.au/ Bio21 Institute, Melbourne University]

===Researchers===
*[[Christopher Armstrong]]
*[[Dorothy Bruck]]
*[[Henry Butt]]
*[[Elaine DeFreitas]]
*[[Paul R Gooley|Paul Gooley]]
*[[Melinda Jackson]]
*[[Donald Lewis]]
*[[Brett Lidbury]]
*[[Andrew Lloyd]]
*[[Neil McGregor]]
*[[Michael Maes]]
*[[Sarah Knight]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
*[[Amy Wallis]]

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW), [[Mark Donohoe]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*[https://meaustralia.net/2016/12/01/remembering-alison-hunter-1976-1996/ Alison Hunter], died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name in 1998, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), in 2014, and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite" />
*[[Jodi Bassett]]
*[[Laura Dundovic]]
*[[Leigh Hatcher]]
*[[Linley Frame]]
*[[Johanna Griggs]]
*[[Alastair Lynch]]
*[[James McDonald]]
*[[Alem Matthees]]
*[[Nadine Neumann ]]
*[[Matthew Nicholson]]
*[[Rhyce Shaw]]
*[[Shelley Taylor-Smith]]

==Learn more==
*2016, [https://www.thesaturdaypaper.com.au/2016/08/06/rethinking-chronic-fatigue-syndrome/14704056003560 Rethinking chronic fatigue syndrome]
*2018, [https://www.theguardian.com/commentisfree/2018/may/12/to-the-millionsmissing-with-mecfs-something-remarkable-is-happening To the #MillionsMissing, something remarkable is happening]
*[https://meaustralia.net/ ME Australia]

==See also==
*[[1949-53 Adelaide outbreak]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>
<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = Bruce Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = Marjorie van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny de Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy Klimas
| last5 = Broderick | first5 = G | authorlink5 = Gordon Broderick
| last6 = Mitchell | first6 = T | authorlink6 = Terry Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C Peter Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= Barbara Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David Bell
| last14 = Carlo-Stella | first14= N | authorlink14= Nicoletta Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= Austin Darragh
| last17 = Jo | first17= D | authorlink17= Daehyun Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= Ismael Mena
| last22 = Mikovits | first22= J A | authorlink22= Judy Mikovits
| last23 = Miwa | first23= K | authorlink23= Kunihisa Miwa
| last24 = Murovska | first24= M | authorlink24= Modra Murovska
| last25 = Pall | first25= M L | authorlink25= Martin Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci Stevens
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = 270 | issue = 4 | page = 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>
<ref name="JasonL2006paed">{{citation
| last1 = Jason | first1 = Leonard A | authorlink1 = Leonard Jason
| last2 = Jordan | first2 = Karen | authorlink2 = Karen Jordan
| last3 = Miike | first3 = Teruhisa | authorlink3 = Teruhisa Miike
| last4 = Bell | first4 = David S | authorlink4 = David Bell
| last5 = Lapp | first5 = Charles | authorlink5 = Charles Lapp
| last6 = Torres-Harding | first6 = Susan | authorlink6 = Susan Torres-Harding
| last7 = Rowe | first7 = Kathy | authorlink7 = Katherine Rowe
| last8 = Gurwitt | first8 = Alan | authorlink8 = Alan Gurwitt
| last9 = De Meirleir | first9 = Kenny | authorlink9 = Kenny de Meirleir
| last10 = Van Hoof | first10= Elke LS | authorlink10= Elke Van Hoof
| title = A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
| journal = Journal of Chronic Fatigue Syndrome | volume = 13 | issue = 2-3 | page = 1-44
| date = 2006
| doi = 10.1300/J092v13n02_01
| url = http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01
}}</ref>
<ref name="#MEACTION20150819arma">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Research into ME/CFS in Adolescents
| journal = #MEAction
| date = 19 Aug 2015
| url = http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
}}</ref>
<ref name="#MEACTION20151116asqg">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Senator Questions Government on Lack of Action on ME
| journal = #MEAction
| date = 16 Nov 2015
| url = http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
}}</ref>
<ref name="#MEACTION20160120ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Answers Questions on ME
| journal = #MEAction
| date = 20 Jan 2016
| url = http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
}}</ref>
<ref name="#MEACTION20160212ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Pins its Hopes on NIH Research
| journal = #MEAction
| date = 12 Feb 2016
| url = http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/
}}</ref>
<ref name="#MEACTION20160303test">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Breakthrough on Diagnostic Blood Test
| journal = #MEAction
| date = 3 Mar 2016
| url = http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
}}</ref>
<ref name="#MEACTION20160314amrc">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australians: Ask the Medical Research Council to Fund Studies
| journal = #MEAction
| date = 14 Mar 2016
| url = http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/
}}</ref>
<ref name="SthAustGuidelines">{{citation
| last1 = South Australian Department of Human Services
| last2 = University of Adelaide
| last3 = ME/CFS Society of South Australia
| title = ME/CFS Guidelines: Management Guidelines for General Practitioners
| date = 2004
| ISBN = 0 7308 9334 0
| url = http://sacfs.asn.au/download/guidelines.pdf
}}</ref>
<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>
<ref name="RACP2002">{{citation
| author1 = Victoria Toulkidis
| author2 = Produced by a Working Group convened under the auspices of the Royal Australasian College of Physicians
| display-authors = 1
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>
<ref name="RACGP2015guide">{{citation
| author = Royal Australasian College of General Practitioners (RACGP)
| title = Graded exercise therapy: chronic fatigue syndrome
| date = Mar 2015
| url = http://www.racgp.org.au/your-practice/guidelines/handi/interventions/other/graded-exercise-therapy-for-chronic-fatigue-syndrome/
}}</ref>
<ref name="AFPlist">{{citation
| journal = Australian Family Physician
| title = articles about Chronic Fatigue Syndrome
| url = http://www.racgp.org.au/search/
}}</ref>
<ref name="AFP201304">{{citation
| author = Megan Arroll, Bruce Arroll
| title = Chronic fatigue syndrome: A patient centred approach to management
| journal = Australian Family Practitioner
| date = Apr 2013
| url = http://www.racgp.org.au/afp/2013/april/chronic-fatigue-syndrome/
}}</ref>
<ref name="AMA20040503">{{citation
| author = Australian Medical Association
| title = Chronic fatigue sufferers beat blues with exercise
| date = 3 May 2004
| url = https://ama.com.au/media/chronic-fatigue-sufferers-beat-blues-exercise
}}</ref>
</references>

[[Category:Countries]]
[[Category:Oceania]]
[[Category:Australia]]

Australia

2018-12-06T00:08:57Z

ME Australia:Updated figures and links

[[File:Australia_flag.svg.png|320px|right|thumb|'''Australia''']]

There are an estimated 92,000 to 598,000 people in Australia with chronic fatigue syndrome, ME or CFS/ME or ME/CFS (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria" /> depending on which definition of the condition is used).

Using the International Consensus Criteria for ME (0.4-1%), there are between 100,000 and 250,000 Australians with ME.

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis.

Australian patients use the terms [[Chronic Fatigue Syndrome]], [[ME/CFS]], CFS/ME, ME or [[Myalgic Encephalomyelitis]] or immune dysfunction illness.

==Medical guidelines==

The 2002 Australian chronic fatigue syndrome guidelines are widely criticised<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_mar_7.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (March 7, 2002)|website=sacfs.asn.au|access-date=2018-12-05}}</ref> <ref>{{Cite web|url=http://www.ahmf.org/guidelines.html|title=Alison Hunter Memorial Foundation: Supporting Biomedical Research Into Myalgic Encephalomyelitis/ Chronic Fatigue Sydnrome ME/CFS - Guidelines|website=www.ahmf.org|access-date=2018-12-05}}</ref> <ref>{{Cite web|url=https://meaustralia.net/2018/11/30/difference-between-australian-chronic-fatigue-syndrome-guidelines-and-me/|title=Difference between Australian chronic fatigue syndrome guidelines and ME|date=2018-11-30|website=ME Australia|language=en|access-date=2018-12-05}}</ref>

The 2002 Australian guidelines were written by by National Health and Medical Research Council (NHRMC) fellowship recipient Prof Andrew Lloyd, who sits on the review committees for NHMRC grant applications.<ref name="#MEACTION20160120ahd" />

The NHMRC website lists resources for clinicians, including recommendations for exercise, cognitive behavioural therapy and antidepressants.<ref>{{Cite news|url=https://meaustralia.net/2018/09/26/australian-government-committee-on-me-and-chronic-fatigue-syndrome/|title=Australian committee on ME and chronic fatigue syndrome nearly finished report|date=2018-09-26|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

A government-appointed advisory committee is in the process of recommending whether new clinical guidelines should be developed to replace the outdated Australian guidelines.<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref> Their draft report is due out in December 2018.

Some patients are lobbying for the [[International Consensus Criteria]] to be adopted<ref>{{Cite news|url=https://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/|title=Australia: Ask the medical research council to fund studies - #MEAction|date=2016-03-14|work=#MEAction|access-date=2018-10-02|language=en-US}}</ref>. Some suggested letter templates have been offered for use [http://www.meaction.net/2016/03/10/australia-write-your-own-letter-to-a-politician/ here] and [http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/ here].

===Patient groups===

The [[International Consensus Criteria | International Consensus Primer]] is listed by all organisations, except Western Australia's ME/CFS/Lyme Association, which lists the [[Canadian Consensus Criteria]].

One of the NSW websites lists the [[International Consensus Criteria | International Consensus Primer]], [[ME/CFS: A Primer For Clinical Practitioners | IACFS/ME Clinical]], the [http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01 2006 Paediatric Criteria]<ref name="JasonL2006paed" />, and the [[South Australian ME/CFS Guidelines]]<ref name="SthAustGuidelines" /> but is not clear on which one it endorses.

Some state organisations, [[NCNED]] and some patients are lobbying<ref name="#MEACTION20160314amrc" /> for the 2002 RACP Australian guidelines<ref name="RACP2002" /> to be replaced with the [[International Consensus Criteria]].

===Australian medical associations===
*The Royal Australasian College of Physicians (RACP) published guidelines in 2002, in the Australian Medical Journal.<ref name="RACP2002" />
*The Royal Australasian College of General Practitioners (RACGP) published a guideline in 2015 which recommends [[Graded Exercise Therapy]].<ref name="RACGP2015guide" /> Their magazine Australian Family Practitioner (AFP) has published articles about [[ME/CFS]],<ref name="AFPlist" /> including a 2013 article that recommends [[Graded exercise therapy]] and [[Cognitive behavioral therapy]].<ref name="AFP201304" />
*The Australian Medical Association (AMA) website recommends [[Graded Exercise Therapy]].<ref name="AMA20040503" />

===National health department===
* [http://health.gov.au Department of Health]
* [http://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs Direct information page on CFS from Department of Health]

===National Health and Medical Research Council===
The [http://nhmrc.gov.au NHMRC] funds health and medical research, and develops health advice & guidelines. It is part of the Australian Department of Health.

In 2018 the NHMRC appoointed an ME and CFS advisory committee<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>, including [[Andrew Lloyd]], [[Suzanne Broadbent,]] [[Sonya Marshall-Gradisnik]] and [[Kathy Rowe]].

The committee is advising the government on current research, gaps in research and whether the 2002 clinical guidelines for doctors should be revised.The NHMRC did not put out a call for applications for positions on the advisory committee, unlike the USA’s Department of Health and Human services does for it’s [https://www.hhs.gov/ash/advisory-committees/cfsac/notices/index.html Chronic Fatigue Syndrome Advisory Committee]. Nor did it follow the UK example and hold [https://www.nice.org.uk/news/article/nice-announces-next-steps-in-updating-its-guideline-on-me-cfs workshops with stakeholders] before recruiting a guideline committee. Their report is due to be open for public consultation by the end of 2018.

===State and territory health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] - information for the public
* ACT
* NSW
* South Australia
* Northern Territory
* Queensland
* Tasmania
* Western Australia

==Health insurance==

===Government health insurance===
The Australian government subsidises most medical appointments, some hospital services, and some medications.
*[https://www.humanservices.gov.au/customer/dhs/medicare Medicare]
*[https://www.humanservices.gov.au/customer/services/medicare/medicare-safety-net Medicare Safety Net]
*[http://www.pbs.gov.au/info/about-the-pbs Pharmaceutical Benefits Scheme]

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.
*[https://www.ndis.gov.au/index.html National Disability Insurance Scheme]

==Access to care==
((How many hospitals & doctors, which diagnose and treat ME (estimate):))
((Rehabilitation offers for ME sufferers: ))

==Patient groups==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[[Change for ME Australia]], an online collective
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]
*[https://www.hfme.org/ Hummingbirds' Foundation for ME] established by [[Jodi Bassett]]
*[https://meaustralia.net/ ME Australia] a collective network across Australia

==Research==

===Notable studies===
*[https://www.dovepress.com/articles.php?article_id=26236 Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome (2016)]
*2016, [https://link.springer.com/chapter/10.1007/978-3-319-32240-7_11 Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy]

===Research results===
*2018: [https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/ How much can people with ME stand?]<ref>{{Cite news|url=https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/|title=How much can people with ME stand?|date=2018-08-06|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2016: [http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/ Australian Breakthrough on Diagnostic Blood Test]<ref name="#MEACTION20160303test" />
*2015: [http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/ Australian Research into ME/CFS in Adolescents]<ref name="#MEACTION20150819arma" />

===Research funding===
*2018: [https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/ Friends in Australia's Parliament for people with ME and chronic fatigue syndrome]<ref>{{Cite news|url=https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/|title=Friends in Australia’s parliament for people with ME and chronic fatigue syndrome|date=2018-08-07|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2018: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's medical research council questioned on ME and CFS committee]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2017: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's Health Minister refuses to stop funding trial of 'incredibly bad' treatment]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2016: [http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Dept Pins its Hopes on NIH Research]<ref name="#MEACTION20160212ahd" />
*2016: [http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/ The Australian Health Department Answers Questions on ME]<ref name="#MEACTION20160120ahd" />
*2015: [http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/ Australian Senator Questions Government on Lack of Action on ME]<ref name="#MEACTION20151116asqg" />

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[https://www.vu.edu.au/ Victoria University]
*[http://www.bio21.unimelb.edu.au/ Bio21 Institute, Melbourne University]

===Researchers===
*[[Christopher Armstrong]]
*[[Dorothy Bruck]]
*[[Henry Butt]]
*[[Elaine DeFreitas]]
*[[Paul R Gooley|Paul Gooley]]
*[[Melinda Jackson]]
*[[Donald Lewis]]
*[[Brett Lidbury]]
*[[Andrew Lloyd]]
*[[Neil McGregor]]
*[[Michael Maes]]
*[[Sarah Knight]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
*[[Amy Wallis]]

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW), [[Mark Donohoe]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*[https://meaustralia.net/2016/12/01/remembering-alison-hunter-1976-1996/ Alison Hunter], died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name in 1998, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), in 2014, and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite" />
*[[Jodi Bassett]]
*[[Laura Dundovic]]
*[[Leigh Hatcher]]
*[[Linley Frame]]
*[[Johanna Griggs]]
*[[Alastair Lynch]]
*[[James McDonald]]
*[[Alem Matthees]]
*[[Nadine Neumann ]]
*[[Matthew Nicholson]]
*[[Rhyce Shaw]]
*[[Shelley Taylor-Smith]]

==Learn more==
*2016, [https://www.thesaturdaypaper.com.au/2016/08/06/rethinking-chronic-fatigue-syndrome/14704056003560 Rethinking chronic fatigue syndrome]
*2018, [https://www.theguardian.com/commentisfree/2018/may/12/to-the-millionsmissing-with-mecfs-something-remarkable-is-happening To the #MillionsMissing, something remarkable is happening]
*[https://meaustralia.net/ ME Australia]

==See also==
*[[1949-53 Adelaide outbreak]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>
<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = Bruce Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = Marjorie van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny de Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy Klimas
| last5 = Broderick | first5 = G | authorlink5 = Gordon Broderick
| last6 = Mitchell | first6 = T | authorlink6 = Terry Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C Peter Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= Barbara Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David Bell
| last14 = Carlo-Stella | first14= N | authorlink14= Nicoletta Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= Austin Darragh
| last17 = Jo | first17= D | authorlink17= Daehyun Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= Ismael Mena
| last22 = Mikovits | first22= J A | authorlink22= Judy Mikovits
| last23 = Miwa | first23= K | authorlink23= Kunihisa Miwa
| last24 = Murovska | first24= M | authorlink24= Modra Murovska
| last25 = Pall | first25= M L | authorlink25= Martin Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci Stevens
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = 270 | issue = 4 | page = 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>
<ref name="JasonL2006paed">{{citation
| last1 = Jason | first1 = Leonard A | authorlink1 = Leonard Jason
| last2 = Jordan | first2 = Karen | authorlink2 = Karen Jordan
| last3 = Miike | first3 = Teruhisa | authorlink3 = Teruhisa Miike
| last4 = Bell | first4 = David S | authorlink4 = David Bell
| last5 = Lapp | first5 = Charles | authorlink5 = Charles Lapp
| last6 = Torres-Harding | first6 = Susan | authorlink6 = Susan Torres-Harding
| last7 = Rowe | first7 = Kathy | authorlink7 = Katherine Rowe
| last8 = Gurwitt | first8 = Alan | authorlink8 = Alan Gurwitt
| last9 = De Meirleir | first9 = Kenny | authorlink9 = Kenny de Meirleir
| last10 = Van Hoof | first10= Elke LS | authorlink10= Elke Van Hoof
| title = A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
| journal = Journal of Chronic Fatigue Syndrome | volume = 13 | issue = 2-3 | page = 1-44
| date = 2006
| doi = 10.1300/J092v13n02_01
| url = http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01
}}</ref>
<ref name="#MEACTION20150819arma">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Research into ME/CFS in Adolescents
| journal = #MEAction
| date = 19 Aug 2015
| url = http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
}}</ref>
<ref name="#MEACTION20151116asqg">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Senator Questions Government on Lack of Action on ME
| journal = #MEAction
| date = 16 Nov 2015
| url = http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
}}</ref>
<ref name="#MEACTION20160120ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Answers Questions on ME
| journal = #MEAction
| date = 20 Jan 2016
| url = http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
}}</ref>
<ref name="#MEACTION20160212ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Pins its Hopes on NIH Research
| journal = #MEAction
| date = 12 Feb 2016
| url = http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/
}}</ref>
<ref name="#MEACTION20160303test">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Breakthrough on Diagnostic Blood Test
| journal = #MEAction
| date = 3 Mar 2016
| url = http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
}}</ref>
<ref name="#MEACTION20160314amrc">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australians: Ask the Medical Research Council to Fund Studies
| journal = #MEAction
| date = 14 Mar 2016
| url = http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/
}}</ref>
<ref name="SthAustGuidelines">{{citation
| last1 = South Australian Department of Human Services
| last2 = University of Adelaide
| last3 = ME/CFS Society of South Australia
| title = ME/CFS Guidelines: Management Guidelines for General Practitioners
| date = 2004
| ISBN = 0 7308 9334 0
| url = http://sacfs.asn.au/download/guidelines.pdf
}}</ref>
<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>
<ref name="RACP2002">{{citation
| author1 = Victoria Toulkidis
| author2 = Produced by a Working Group convened under the auspices of the Royal Australasian College of Physicians
| display-authors = 1
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>
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| author = Royal Australasian College of General Practitioners (RACGP)
| title = Graded exercise therapy: chronic fatigue syndrome
| date = Mar 2015
| url = http://www.racgp.org.au/your-practice/guidelines/handi/interventions/other/graded-exercise-therapy-for-chronic-fatigue-syndrome/
}}</ref>
<ref name="AFPlist">{{citation
| journal = Australian Family Physician
| title = articles about Chronic Fatigue Syndrome
| url = http://www.racgp.org.au/search/
}}</ref>
<ref name="AFP201304">{{citation
| author = Megan Arroll, Bruce Arroll
| title = Chronic fatigue syndrome: A patient centred approach to management
| journal = Australian Family Practitioner
| date = Apr 2013
| url = http://www.racgp.org.au/afp/2013/april/chronic-fatigue-syndrome/
}}</ref>
<ref name="AMA20040503">{{citation
| author = Australian Medical Association
| title = Chronic fatigue sufferers beat blues with exercise
| date = 3 May 2004
| url = https://ama.com.au/media/chronic-fatigue-sufferers-beat-blues-exercise
}}</ref>
</references>

[[Category:Countries]]
[[Category:Oceania]]
[[Category:Australia]]

ME Australia

2018-12-05T23:35:36Z

ME Australia:added a sentence about the aims

ME Australia

2018-12-05T23:20:12Z

ME Australia:new page

ME Australia is news site and a collaborative network of people across all Australian states. It was established in 2016 by Sasha Nimmo.

https://meaustralia.net[MEAustralia.net]

Andrew Lloyd

2018-10-02T03:50:42Z

ME Australia:grammar

[[File:Andrew Lloyd.png|200px|thumb|right|Source:UNSW Sydney]]
'''Andrew R. Lloyd''', MB BS Syd, MD UNSW, FRACP, is an infectious disease physician, and an epidemiology, virology and immunology researcher. He is a professor at the School of Medical Sciences, University of New South Wales, Sydney, [[Australia]].<ref>https://medicalsciences.med.unsw.edu.au/people/professor-andrew-lloyd</ref>

He is one of the authors of the 2002 Australian chronic fatigue sydrome guidelines, which were immediately criticised by ME/CFS Australia<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_mar_7.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (March 7, 2002)|website=sacfs.asn.au|access-date=2018-10-02}}</ref> who stated the guidelines:
* do not describe accurately and fully the symptoms and characteristics of the illness;

* misrepresent the illness and people with CFS;
* do not provide an accurate, balanced and objective consideration of the research evidence;
* demonstrate a consistent bias towards a psychiatric-psychological approach to the illness;
* dismiss, downplay or ignore biological evidence;
* make illness management suggestions that are potentially harmful for many with CFS; and
* do not mention other ways of effectively managing the illness.<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_mar_7.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (March 7, 2002)|website=sacfs.asn.au|access-date=2018-10-02}}</ref>
In a following letter to the Medical Journal of Australia, ME/CFS Australia stated:

"Following an extensive review of the literature, it is considered that the evidence is not good enough for the ''Guidelines'' to be called ‘evidence-based,’ the assessment and presentation of the evidence has not been objective, the Working Group was not truly representative and so the end product is unreliable. The document provides potentially harmful management suggestions with insufficient supporting evidence."<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_apr_24.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (April 24, 2002)|website=sacfs.asn.au|access-date=2018-10-02}}</ref>

More than 700 people signed a petition<ref>{{Cite news|url=https://my.meaction.net/petitions/stop-graded-exercise-therapy-trial-at-university-of-nsw|title=Stop graded exercise therapy trial at University of NSW|work=#MEAction|access-date=2018-10-02|language=en}}</ref> asking him to stop the roll out of training medical professionals to use [[Cognitive behavioral therapy|CBT]] and [[Graded exercise therapy|GET]] on people diagnosed with chronic fatigue syndrome. The university responded, stating the people who are protesting harbour ‘resentment against the notion that CFS may have psychological causes’<ref>{{Cite news|url=https://meaustralia.net/2017/03/30/unsw-school-of-medicine-responds-cbtget-training-trial-for-chronic-fatigue-syndrome/|title=Lloyd’s university responds: CBT/GET training trial for chronic fatigue syndrome|date=2017-03-30|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>, while there is no evidence for their argument'''.'''

Lloyd is on the Australian government's ME and CFS advisory committee<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>.

Lloyd described the [[PACE trial]] has having "reasonably solid data".<ref>{{Cite news|url=https://meaustralia.net/2016/03/31/how-the-unsw-chronic-fatigue-syndrome-studies-use-potentially-harmful-guidelines/|title=How the UNSW chronic fatigue syndrome studies use ‘potentially harmful’ guidelines|date=2016-03-31|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

==Awards==

*Member, Order of Australia (A.M): “For service to medicine and the community, particularly through provision of hepatitis services in prisons, and research in infectious diseases”<ref>https://medicalsciences.med.unsw.edu.au/people/professor-andrew-lloyd</ref>

==Clinic==

*[http://www.fatiguecentre.com.au/ The Fatigue Centre], Newtown, New South Wales, [[Australia]], was created and is supervised by Dr. Andrew Lloyd to serve patients with [[CFS]] and post-cancer fatigue.
*David Tuller met with patients of the clinic, who 'reported that their experience included some positive and some very negative aspects'.<ref>{{Cite web|url=http://www.virology.ws/2018/04/04/trial-by-error-a-post-about-andrew-lloyd/|title=Trial By Error: A Post About Andrew Lloyd|website=www.virology.ws|language=en-US|access-date=2018-10-02}}</ref>

==Book Chapters==

*1999, "Chronic fatigue syndrome: current concepts of pathogenesis and treatment," in ''Current Clinical Topics in Infectious Diseases'', edn. Original<ref>Current Clinical Topics in Infectious Diseases, edn. Original, Blackwell Science Asia, Carlton, Victoria, pp. 138 - 159</ref>
*2005, "Fatigue states following infection," in ''Infectious Diseases A clinical approach'', edn. 2<ref>Yung A; McDonald M; Spelman D; Street A; Johnson P; Sorrell T; McCormack J (ed.), Infectious Diseases A clinical approach, edn. 2, IP Communications, East Hawthorn, Victoria, Australia, pp. 195 - 204</ref>

==Notable studies==

*2016, [https://meaustralia.net/2016/05/09/university-of-nsw-tests-graded-activity-program-on-mild-cfs-patients/ University of NSW tests graded activity program on mild chronic fatigue syndrome patients]<ref>{{Cite news|url=https://meaustralia.net/2016/05/09/university-of-nsw-tests-graded-activity-program-on-mild-cfs-patients/|title=University of NSW tests graded activity program on mild chronic fatigue syndrome patients|date=2016-05-09|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*1990, A double-blind, placebo-controlled trial of intravenous immunoglobulin therapy in patients with chronic fatigue syndrome<ref name="lloyd1990" />
*1997, [[Intravenous immunoglobulin]] is ineffective in the treatment of patients with [[chronic fatigue syndrome]]<ref>{{Cite journal|last=Vollmer-Conna|first=U|author-link=Uté Vollmer-Conna|last2=Hickie|first2=I|last3=Hadzi-Pavlovic|first3=D|last4=Tymms|first4=K|last5=Wakefield|first5=D|last6=Dwyer|first6=J|last7=Lloyd|first7=A|author-link7=Andrew Lloyd|date=1997|title=Intravenous immunoglobulin is ineffective in the treatment of patients with chronic fatigue syndrome|url=http://dx.doi.org/10.1016/S0002-9343(97)90045-0|journal=American Journal of Medicine|volume=103|pages=38 - 43|doi=10.1016/S0002-9343(97)90045-0|via=}}</ref>
*1998, [[Chronic fatigue syndrome]]: An immunological perspective<ref>Vollmer-Conna U;Lloyd A;Hickie I;Wakefield D, 1998, 'Chronic fatigue syndrome: An immunological perspective', Australian and New Zealand Journal of Psychiatry, vol. 32, pp. 523 - 527</ref>
*2003, Identification of ambiguities in the [[Fukuda criteria|1994 chronic fatigue syndrome research case definition]] and recommendations for resolution<ref name="Reeves,2003" /> [https://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-3-25 (Full Text)]
*2006, Post-infective and [[chronic fatigue syndrome]]s precipitated by viral and non-viral pathogens: Prospective cohort study<ref name="Hickie, 2006" /> [https://www.researchgate.net/publication/6838807_Post-infective_and_chronic_fatigue_syndromes_precipitated_by_viral_and_non-viral_pathogens_Prospective_cohort_study (Abstract)]
*2006, Preliminary evidence of [[Mitochondria|mitochondrial]] dysfunction associated with post-infective fatigue after acute infection with [[Epstein-Barr virus|Epstein Barr Virus]]<ref name="Vernon, 2006" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1373655/ (Full Text)]
*2006, Prolonged Illness after Infectious [[Mononucleosis]] Is Associated with Altered Immunity but Not with Increased Viral Load [https://academic.oup.com/jid/article/193/5/664/877191/Prolonged-Illness-after-Infectious-Mononucleosis (Full Text)]<ref name="Cameron,2006" />
*2007, Postinfective fatigue syndrome is not associated with altered [[cytokine]] production<ref>Vollmer-Conna U; Cameron B; Hadzi-Pavlovic D; Singletary K; Davenport T; Vernon S; Reeves WC; Hickie I; Wakefield D; Lloyd AR, 2007, 'Postinfective fatigue syndrome is not associated with altered cytokine production', Clinical Infectious Diseases, vol. 45, pp. 732 - 735, http://dx.doi.org/10.1086/520990</ref>
*2007, Fatigue: case definition and guidelines for collection, analysis, and presentation of immunization safety data<ref>{{Cite journal|last=Jones|first=James F.|last2=Kohl|first2=Katrin S.|last3=Ahmadipour|first3=Nooshin|last4=Bleijenberg|first4=Gijs|last5=Buchwald|first5=Dedra|author-link5=Dedra Buchwald|last6=Evengard|first6=Birgitta|last7=Jason|first7=Leonard A.|author-link7=Leonard Jason|last8=Klimas|first8=Nancy G.|author-link8=Nancy Klimas|last9=Lloyd|first9=Andrew|author-link9=Andrew Lloyd|date=Aug 2007|title=Fatigue: Case definition and guidelines for collection, analysis, and presentation of immunization safety data|url=http://linkinghub.elsevier.com/retrieve/pii/S0264410X07002654|journal=Vaccine|volume=25|issue=31|pages=5685–5696|doi=10.1016/j.vaccine.2007.02.065|issn=0264-410X|via=}}</ref> [https://www.sciencedirect.com/science/article/pii/S0264410X07002654?via%3Dihub (Preview)]
*2010, Serum [[Cytokine]] Levels in Postinfective Fatigue Syndrome [https://academic.oup.com/cid/article-lookup/doi/10.1086/649546 (Full Text)]<ref>Barbara Cameron, David L. Hirschberg, Yael Rosenberg-Hassan, Dharam Ablashi, Andrew R. Lloyd. (2010). Serum Cytokine Levels in Postinfective Fatigue Syndrome. Clinical Infectious Diseases, 50 (2): 278-280. doi:10.1086/649546</ref>
*2010, Autonomic hyper-vigilance in post-infective fatigue syndrome<ref>Kadota Y;Cooper G;Burton AR; Lemon J; Schall U; Lloyd A; Vollmer-Conna U, 2010, 'Autonomic hyper-vigilance in post-infective fatigue syndrome', Biological Psychology, vol. 85, pp. 97 - 103, http://dx.doi.org/10.1016/j.biopsycho.2010.05.009</ref>
*2010, Reduced heart rate variability predicts poor sleep quality in a case-control study of chronic fatigue syndrome<ref>Burton AR; Rahman K; Kadota Y; Lloyd A; Vollmer-Conna U, 2010, 'Reduced heart rate variability predicts poor sleep quality in a case-control study of chronic fatigue syndrome', Experimental Brain Research, vol. 204, pp. 71 - 78, http://dx.doi.org/10.1007/s00221-010-2296-1</ref>
*2011, Sleep-wake behavior in chronic fatigue syndrome<ref>Rahman K;Burton A;Galbraith S;Lloyd A;Vollmer-Conna U, 2011, 'Sleep-wake behavior in chronic fatigue syndrome', Sleep, vol. 34, pp. 671 - 678</ref>
*2012, Reduced Cardiac Vagal Modulation Impacts on Cognitive Performance in [[Chronic Fatigue Syndrome]]<ref>Beaumont A;Burton AR;Lemon J;Bennett BK;Lloyd A;Vollmer-Conna U, 2012, 'Reduced Cardiac Vagal Modulation Impacts on Cognitive Performance in Chronic Fatigue Syndrome', PLoS ONE, vol. 7, http://dx.doi.org/10.1371/journal.pone.0049518</ref>
*2015, Capturing the post-exertional exacerbation of fatigue following physical and cognitive challenge in patients with chronic fatigue syndrome<ref>Keech A;Sandler C;Vollmer-Conna U;Lloyd A;Barry B, 2015, 'Capturing the post-exertional exacerbation of fatigue following physical and cognitive challenge in patients with chronic fatigue syndrome.', in Physiotherapy, Elsevier, Singapore, Vol. 101, pp. e121 - e122, presented at World Congress of Physical Therapy, Singapore, 01 - 04 May 2015, http://dx.doi.org/10.1016/j.physio.2015.03.262</ref>
*2016, Fatigue Exacerbation by Interval or Continuous [[Exercise]] in [[Chronic Fatigue Syndrome]]<ref>Sandler CX, Lloyd AR, Barry BK. (2016). Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome. ''Medicine and Science in Sports Exercise'' 2016 Oct;48(10):1875-85. doi: 10.1249/MSS.0000000000000983</ref>
*2016, Outcomes and predictors of response from an optimised, multidisciplinary intervention for chronic fatigue states<ref>Sandler CX;Hamilton BA;Horsfield SL;Bennett BK;Vollmer-Conna U;Tzarimas C;Lloyd AR, 2016, 'Outcomes and predictors of response from an optimised, multidisciplinary intervention for chronic fatigue states', Internal Medicine Journal, vol. 46, pp. 1421 - 1429, http://dx.doi.org/10.1111/imj.13251</ref>
*2016, Gene Expression in Response to [[Exercise]] in Patients with [[Chronic Fatigue Syndrome]]: A Pilot Study [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5031769/ (Full Text)]<ref>Keech, A., Vollmer-Conna, U., Barry, B. K., & Lloyd, A. R. (2016). Gene Expression in Response to Exercise in Patients with Chronic Fatigue Syndrome: A Pilot Study. Frontiers in Physiology, 7, 421. http://doi.org/10.3389/fphys.2016.00421</ref>
*2016, Neurocognitive improvements after best-practice intervention for [[chronic fatigue syndrome]]: Preliminary evidence of divergence between objective indices and subjective perceptions<ref>Cvejic E;Lloyd AR;Vollmer-Conna U, 2016, 'Neurocognitive improvements after best-practice intervention for chronic fatigue syndrome: Preliminary evidence of divergence between objective indices and subjective perceptions', Comprehensive Psychiatry, vol. 66, pp. 166 - 175, http://dx.doi.org/10.1016/j.comppsych.2016.02.002</ref>
*2017, [[Cytokine]] signature in [[chronic fatigue syndrome]]<ref>Roerink ME, Buckland M, Lloyd AR, van der Meer JWM. (2017) Cytokine signature in chronic fatigue syndrome. Proc Natl Acad Sci U S A. 2017 Nov 7;114(45):E9435. doi: 10.1073/pnas.1714011114.</ref>
*2018, Personalised relaxation practice to improve sleep and functioning in patients with [[chronic fatigue syndrome]] and [[depression]]: study protocol for a randomised controlled trial<ref>{{Cite journal|last=Macnamara|first=Claire L.|last2=Cvejic|first2=Erin|last3=Parker|first3=Gordon B.|last4=Lloyd|first4=Andrew R.|author-link4=Andrew Lloyd|last5=Lee|first5=Gina|last6=Beilharz|first6=Jessica E.|last7=Vollmer-Conna|first7=Ute|author-link7=Uté Vollmer-Conna|date=2018|title=Personalised relaxation practice to improve sleep and functioning in patients with chronic fatigue syndrome and depression: study protocol for a randomised controlled trial|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6042263/|journal=Trials|volume=19|pages=371|doi=10.1186/s13063-018-2763-8|via=}}</ref> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6042263/ (Full Text)]

==Talks & interviews==

*1-2 September 2014, [[UK CFS/ME Research Collaborative]] Conference - Talk title: "Acute infection & post-infective fatigue as a model for CFS"<ref>https://www.actionforme.org.uk/uploads/pdfs/cmrc-2014-conference-report-final.pdf</ref>
*22 April 2014, [https://www.youtube.com/watch?v=BgWgX5F5WUM Talk to Coogee Owls ME/CFS Support Group at Randwick, Sydney]

==Online presence==

*[https://medicalsciences.med.unsw.edu.au/people/professor-andrew-lloyd UNSW bio page]

==See also==

*[[Australia]]

==Learn more==

*2018, [http://www.virology.ws/2018/04/04/trial-by-error-a-post-about-andrew-lloyd/ Trial By Error: A Post About Andrew Lloyd]
*2015, [https://www.healthrising.org/blog/2015/05/16/the-decline-and-fall-of-an-mecfs-researcher-the-case-of-andrew-lloyd/ "The Decline and Fall of an ME/CFS Researcher? the Case of Andrew Lloyd"] by [[Cort Johnson]] for [[Health Rising]]
*2012, [http://phoenixrising.me/research-2/the-dubbo-studies-a-model-of-post-infective-fatigue-emerging/model-of-post-infective-fatigue-forming-the-dubbo-studies "Model of Post Infective Fatigue Forming: the Dubbo Studies"] in [[Phoenix Rising]]

==References==
<references>
<ref name="Cameron,2006">{{Citation
| last1 = Cameron | first1 = Barbara | authorlink1 =
| last2 = Bharadwaj | first2 = Mandvi | authorlink2 =
| last3 = Burrows | first3 = Jacqueline | authorlink3 =
| last4 = Fazou | first4 = Chrysa | authorlink4 =
| last5 = Wakefield | first5 = Denis | authorlink5 =
| last6 = Hickie | first6 = Ian | authorlink6 =
| last7 = Ffrench | first7 = Rosemary | authorlink7 =
| last8 = Khanna | first8 = Rajiv | authorlink8 =
| last9 = Lloyd | first9 = Andrew | authorlink9 = Andrew Lloyd
| title = Prolonged Illness after Infectious Mononucleosis Is Associated with Altered Immunity but Not with Increased Viral Load
| journal = Journal Infectious Disease | volume = 193 | issue = 5 | page = 664-671
| date = 2006
| pmid =
| doi = 10.1086/500248
}}
</ref>
<ref name="Hickie, 2006">{{Citation
| last1 = Hickie | first1 = Ian | authorlink1 =
| last2 = Davenport | first2 = Tracey | authorlink2 =
| last3 = Wakefield | first3 = Denis | authorlink3 =
| last4 = Vollmer-Conna | first4 = Ute | authorlink4 = Ute Vollmer-Conna
| last5 = Cameron | first5 = Barbara | authorlink5 =
| last6 = Vernon | first6 = Suzanne D. | authorlink6 = Suzanne Vernon
| last7 = Reeves | first7 = William C. | authorlink7 = William Reeves
| last8 = Lloyd | first8 = Andrew | authorlink8 = Andrew Lloyd
| title = Post-infective and chronic fatigue syndromes precipitated by viral and non-viral pathogens: Prospective cohort study
| journal = BMJ | volume = 333 | issue = 7568 | page = 575
| date = 2006
| pmid =
| doi = 10.1136/bmj.38933.585764.AE
}}
</ref>
<ref name="lloyd1990">{{Citation| issn = 0002-9343| volume = 89| issue = 5| pages = 561–568| last1 = Lloyd| first1 = A.| last2 = Hickie| first2 = I.| last3 = Wakefield| first3 = D.| last4 = Boughton| first4 = C.| last5 = Dwyer| first5 = J.| title = A double-blind, placebo-controlled trial of intravenous immunoglobulin therapy in patients with chronic fatigue syndrome| journal = The American Journal of Medicine| date = November 1990| pmid = 2146875}}</ref>
<ref name="Reeves,2003">{{Citation
| last1 = Reeves | first1 = W. C. | authorlink1 = William Reeves
| last2 = Lloyd | first2 = A. | authorlink2 = Andrew Lloyd
| last3 = Vernon | first3 = S. D. | authorlink3 = Suzanne Vernon
| last4 = Klimas | first4 = N. | authorlink4 = Nancy Klimas
| last5 = Jason | first5 = L. A. | authorlink5 = Leonard Jason
| last6 = Bleijenberg | first6 = G. | authorlink6 =
| last7 = Evengard | first7 = B. | authorlink7 =
| last8 = White | first8 = P. D. | authorlink8 = Peter White
| last9 = Nisenbaum | first9 = R. | authorlink9 =
| last10 = Unger | first10 = E. | authorlink10 = Elizabeth Unger
| title = Identification of ambiguities in the 1994 chronic fatigue syndrome research case definition and recommendations for resolution
| journal = BMC Health Services Research | volume = 3 | issue = 25
| date = 2003
| doi = 10.1186/1472-6963-3-25
}}
</ref>
<ref name="Vernon, 2006">{{Citation
| last1 = Vernon | first1 = SD | authorlink1 = Suzanne Vernon
| last2 = Whistler | first2 = T | authorlink2 =
| last3 = Cameron | first3 = B | authorlink3 =
| last4 = Hickie | first4 = IB | authorlink4 =
| last5 = Reeves | first5 = WC | authorlink5 = William Reeves
| last6 = Lloyd | first6 = A | authorlink6 = Andrew Lloyd
| title = Preliminary evidence of mitochondrial dysfunction associated with post-infective fatigue after acute infection with Epstein Barr Virus
| journal = BMC Infectious Diseases | volume = 6 | issue = 15 | page =
| date = 2006
| pmid = 16448567
| doi = 10.1186/1471-2334-6-15
}}
</ref>
</references>

[[Category:Researchers]]
[[Category:Australia researchers]]

Andrew Lloyd

2018-10-02T03:49:42Z

ME Australia:

[[File:Andrew Lloyd.png|200px|thumb|right|Source:UNSW Sydney]]
'''Andrew R. Lloyd''', MB BS Syd, MD UNSW, FRACP, is an infectious disease physician, and an epidemiology, virology and immunology researcher. He is a professor at the School of Medical Sciences, University of New South Wales, Sydney, [[Australia]].<ref>https://medicalsciences.med.unsw.edu.au/people/professor-andrew-lloyd</ref>

He is one of the authors of the 2002 Australian chronic fatigue sydrome guidelines, which were immediately criticised by ME/CFS Australia<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_mar_7.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (March 7, 2002)|website=sacfs.asn.au|access-date=2018-10-02}}</ref>
* do not describe accurately and fully the symptoms and characteristics of the illness;

* misrepresent the illness and people with CFS;
* do not provide an accurate, balanced and objective consideration of the research evidence;
* demonstrate a consistent bias towards a psychiatric-psychological approach to the illness;
* dismiss, downplay or ignore biological evidence;
* make illness management suggestions that are potentially harmful for many with CFS; and
* do not mention other ways of effectively managing the illness.<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_mar_7.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (March 7, 2002)|website=sacfs.asn.au|access-date=2018-10-02}}</ref>
In a following letter to the Medical Journal of Australia, ME/CFS Australia stated:

"Following an extensive review of the literature, it is considered that the evidence is not good enough for the ''Guidelines'' to be called ‘evidence-based,’ the assessment and presentation of the evidence has not been objective, the Working Group was not truly representative and so the end product is unreliable. The document provides potentially harmful management suggestions with insufficient supporting evidence."<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_apr_24.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (April 24, 2002)|website=sacfs.asn.au|access-date=2018-10-02}}</ref>

More than 700 people signed a petition<ref>{{Cite news|url=https://my.meaction.net/petitions/stop-graded-exercise-therapy-trial-at-university-of-nsw|title=Stop graded exercise therapy trial at University of NSW|work=#MEAction|access-date=2018-10-02|language=en}}</ref> asking him to stop the roll out of training medical professionals to use [[Cognitive behavioral therapy|CBT]] and [[Graded exercise therapy|GET]] on people diagnosed with chronic fatigue syndrome. The university responded, stating the people who are protesting harbour ‘resentment against the notion that CFS may have psychological causes’<ref>{{Cite news|url=https://meaustralia.net/2017/03/30/unsw-school-of-medicine-responds-cbtget-training-trial-for-chronic-fatigue-syndrome/|title=Lloyd’s university responds: CBT/GET training trial for chronic fatigue syndrome|date=2017-03-30|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>, while there is no evidence for their argument'''.'''

Lloyd is on the Australian government's ME and CFS advisory committee<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>.

Lloyd described the [[PACE trial]] has having "reasonably solid data".<ref>{{Cite news|url=https://meaustralia.net/2016/03/31/how-the-unsw-chronic-fatigue-syndrome-studies-use-potentially-harmful-guidelines/|title=How the UNSW chronic fatigue syndrome studies use ‘potentially harmful’ guidelines|date=2016-03-31|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

==Awards==

*Member, Order of Australia (A.M): “For service to medicine and the community, particularly through provision of hepatitis services in prisons, and research in infectious diseases”<ref>https://medicalsciences.med.unsw.edu.au/people/professor-andrew-lloyd</ref>

==Clinic==

*[http://www.fatiguecentre.com.au/ The Fatigue Centre], Newtown, New South Wales, [[Australia]], was created and is supervised by Dr. Andrew Lloyd to serve patients with [[CFS]] and post-cancer fatigue.
*David Tuller met with patients of the clinic, who 'reported that their experience included some positive and some very negative aspects'.<ref>{{Cite web|url=http://www.virology.ws/2018/04/04/trial-by-error-a-post-about-andrew-lloyd/|title=Trial By Error: A Post About Andrew Lloyd|website=www.virology.ws|language=en-US|access-date=2018-10-02}}</ref>

==Book Chapters==

*1999, "Chronic fatigue syndrome: current concepts of pathogenesis and treatment," in ''Current Clinical Topics in Infectious Diseases'', edn. Original<ref>Current Clinical Topics in Infectious Diseases, edn. Original, Blackwell Science Asia, Carlton, Victoria, pp. 138 - 159</ref>
*2005, "Fatigue states following infection," in ''Infectious Diseases A clinical approach'', edn. 2<ref>Yung A; McDonald M; Spelman D; Street A; Johnson P; Sorrell T; McCormack J (ed.), Infectious Diseases A clinical approach, edn. 2, IP Communications, East Hawthorn, Victoria, Australia, pp. 195 - 204</ref>

==Notable studies==

*2016, [https://meaustralia.net/2016/05/09/university-of-nsw-tests-graded-activity-program-on-mild-cfs-patients/ University of NSW tests graded activity program on mild chronic fatigue syndrome patients]<ref>{{Cite news|url=https://meaustralia.net/2016/05/09/university-of-nsw-tests-graded-activity-program-on-mild-cfs-patients/|title=University of NSW tests graded activity program on mild chronic fatigue syndrome patients|date=2016-05-09|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*1990, A double-blind, placebo-controlled trial of intravenous immunoglobulin therapy in patients with chronic fatigue syndrome<ref name="lloyd1990" />
*1997, [[Intravenous immunoglobulin]] is ineffective in the treatment of patients with [[chronic fatigue syndrome]]<ref>{{Cite journal|last=Vollmer-Conna|first=U|author-link=Uté Vollmer-Conna|last2=Hickie|first2=I|last3=Hadzi-Pavlovic|first3=D|last4=Tymms|first4=K|last5=Wakefield|first5=D|last6=Dwyer|first6=J|last7=Lloyd|first7=A|author-link7=Andrew Lloyd|date=1997|title=Intravenous immunoglobulin is ineffective in the treatment of patients with chronic fatigue syndrome|url=http://dx.doi.org/10.1016/S0002-9343(97)90045-0|journal=American Journal of Medicine|volume=103|pages=38 - 43|doi=10.1016/S0002-9343(97)90045-0|via=}}</ref>
*1998, [[Chronic fatigue syndrome]]: An immunological perspective<ref>Vollmer-Conna U;Lloyd A;Hickie I;Wakefield D, 1998, 'Chronic fatigue syndrome: An immunological perspective', Australian and New Zealand Journal of Psychiatry, vol. 32, pp. 523 - 527</ref>
*2003, Identification of ambiguities in the [[Fukuda criteria|1994 chronic fatigue syndrome research case definition]] and recommendations for resolution<ref name="Reeves,2003" /> [https://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-3-25 (Full Text)]
*2006, Post-infective and [[chronic fatigue syndrome]]s precipitated by viral and non-viral pathogens: Prospective cohort study<ref name="Hickie, 2006" /> [https://www.researchgate.net/publication/6838807_Post-infective_and_chronic_fatigue_syndromes_precipitated_by_viral_and_non-viral_pathogens_Prospective_cohort_study (Abstract)]
*2006, Preliminary evidence of [[Mitochondria|mitochondrial]] dysfunction associated with post-infective fatigue after acute infection with [[Epstein-Barr virus|Epstein Barr Virus]]<ref name="Vernon, 2006" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1373655/ (Full Text)]
*2006, Prolonged Illness after Infectious [[Mononucleosis]] Is Associated with Altered Immunity but Not with Increased Viral Load [https://academic.oup.com/jid/article/193/5/664/877191/Prolonged-Illness-after-Infectious-Mononucleosis (Full Text)]<ref name="Cameron,2006" />
*2007, Postinfective fatigue syndrome is not associated with altered [[cytokine]] production<ref>Vollmer-Conna U; Cameron B; Hadzi-Pavlovic D; Singletary K; Davenport T; Vernon S; Reeves WC; Hickie I; Wakefield D; Lloyd AR, 2007, 'Postinfective fatigue syndrome is not associated with altered cytokine production', Clinical Infectious Diseases, vol. 45, pp. 732 - 735, http://dx.doi.org/10.1086/520990</ref>
*2007, Fatigue: case definition and guidelines for collection, analysis, and presentation of immunization safety data<ref>{{Cite journal|last=Jones|first=James F.|last2=Kohl|first2=Katrin S.|last3=Ahmadipour|first3=Nooshin|last4=Bleijenberg|first4=Gijs|last5=Buchwald|first5=Dedra|author-link5=Dedra Buchwald|last6=Evengard|first6=Birgitta|last7=Jason|first7=Leonard A.|author-link7=Leonard Jason|last8=Klimas|first8=Nancy G.|author-link8=Nancy Klimas|last9=Lloyd|first9=Andrew|author-link9=Andrew Lloyd|date=Aug 2007|title=Fatigue: Case definition and guidelines for collection, analysis, and presentation of immunization safety data|url=http://linkinghub.elsevier.com/retrieve/pii/S0264410X07002654|journal=Vaccine|volume=25|issue=31|pages=5685–5696|doi=10.1016/j.vaccine.2007.02.065|issn=0264-410X|via=}}</ref> [https://www.sciencedirect.com/science/article/pii/S0264410X07002654?via%3Dihub (Preview)]
*2010, Serum [[Cytokine]] Levels in Postinfective Fatigue Syndrome [https://academic.oup.com/cid/article-lookup/doi/10.1086/649546 (Full Text)]<ref>Barbara Cameron, David L. Hirschberg, Yael Rosenberg-Hassan, Dharam Ablashi, Andrew R. Lloyd. (2010). Serum Cytokine Levels in Postinfective Fatigue Syndrome. Clinical Infectious Diseases, 50 (2): 278-280. doi:10.1086/649546</ref>
*2010, Autonomic hyper-vigilance in post-infective fatigue syndrome<ref>Kadota Y;Cooper G;Burton AR; Lemon J; Schall U; Lloyd A; Vollmer-Conna U, 2010, 'Autonomic hyper-vigilance in post-infective fatigue syndrome', Biological Psychology, vol. 85, pp. 97 - 103, http://dx.doi.org/10.1016/j.biopsycho.2010.05.009</ref>
*2010, Reduced heart rate variability predicts poor sleep quality in a case-control study of chronic fatigue syndrome<ref>Burton AR; Rahman K; Kadota Y; Lloyd A; Vollmer-Conna U, 2010, 'Reduced heart rate variability predicts poor sleep quality in a case-control study of chronic fatigue syndrome', Experimental Brain Research, vol. 204, pp. 71 - 78, http://dx.doi.org/10.1007/s00221-010-2296-1</ref>
*2011, Sleep-wake behavior in chronic fatigue syndrome<ref>Rahman K;Burton A;Galbraith S;Lloyd A;Vollmer-Conna U, 2011, 'Sleep-wake behavior in chronic fatigue syndrome', Sleep, vol. 34, pp. 671 - 678</ref>
*2012, Reduced Cardiac Vagal Modulation Impacts on Cognitive Performance in [[Chronic Fatigue Syndrome]]<ref>Beaumont A;Burton AR;Lemon J;Bennett BK;Lloyd A;Vollmer-Conna U, 2012, 'Reduced Cardiac Vagal Modulation Impacts on Cognitive Performance in Chronic Fatigue Syndrome', PLoS ONE, vol. 7, http://dx.doi.org/10.1371/journal.pone.0049518</ref>
*2015, Capturing the post-exertional exacerbation of fatigue following physical and cognitive challenge in patients with chronic fatigue syndrome<ref>Keech A;Sandler C;Vollmer-Conna U;Lloyd A;Barry B, 2015, 'Capturing the post-exertional exacerbation of fatigue following physical and cognitive challenge in patients with chronic fatigue syndrome.', in Physiotherapy, Elsevier, Singapore, Vol. 101, pp. e121 - e122, presented at World Congress of Physical Therapy, Singapore, 01 - 04 May 2015, http://dx.doi.org/10.1016/j.physio.2015.03.262</ref>
*2016, Fatigue Exacerbation by Interval or Continuous [[Exercise]] in [[Chronic Fatigue Syndrome]]<ref>Sandler CX, Lloyd AR, Barry BK. (2016). Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome. ''Medicine and Science in Sports Exercise'' 2016 Oct;48(10):1875-85. doi: 10.1249/MSS.0000000000000983</ref>
*2016, Outcomes and predictors of response from an optimised, multidisciplinary intervention for chronic fatigue states<ref>Sandler CX;Hamilton BA;Horsfield SL;Bennett BK;Vollmer-Conna U;Tzarimas C;Lloyd AR, 2016, 'Outcomes and predictors of response from an optimised, multidisciplinary intervention for chronic fatigue states', Internal Medicine Journal, vol. 46, pp. 1421 - 1429, http://dx.doi.org/10.1111/imj.13251</ref>
*2016, Gene Expression in Response to [[Exercise]] in Patients with [[Chronic Fatigue Syndrome]]: A Pilot Study [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5031769/ (Full Text)]<ref>Keech, A., Vollmer-Conna, U., Barry, B. K., & Lloyd, A. R. (2016). Gene Expression in Response to Exercise in Patients with Chronic Fatigue Syndrome: A Pilot Study. Frontiers in Physiology, 7, 421. http://doi.org/10.3389/fphys.2016.00421</ref>
*2016, Neurocognitive improvements after best-practice intervention for [[chronic fatigue syndrome]]: Preliminary evidence of divergence between objective indices and subjective perceptions<ref>Cvejic E;Lloyd AR;Vollmer-Conna U, 2016, 'Neurocognitive improvements after best-practice intervention for chronic fatigue syndrome: Preliminary evidence of divergence between objective indices and subjective perceptions', Comprehensive Psychiatry, vol. 66, pp. 166 - 175, http://dx.doi.org/10.1016/j.comppsych.2016.02.002</ref>
*2017, [[Cytokine]] signature in [[chronic fatigue syndrome]]<ref>Roerink ME, Buckland M, Lloyd AR, van der Meer JWM. (2017) Cytokine signature in chronic fatigue syndrome. Proc Natl Acad Sci U S A. 2017 Nov 7;114(45):E9435. doi: 10.1073/pnas.1714011114.</ref>
*2018, Personalised relaxation practice to improve sleep and functioning in patients with [[chronic fatigue syndrome]] and [[depression]]: study protocol for a randomised controlled trial<ref>{{Cite journal|last=Macnamara|first=Claire L.|last2=Cvejic|first2=Erin|last3=Parker|first3=Gordon B.|last4=Lloyd|first4=Andrew R.|author-link4=Andrew Lloyd|last5=Lee|first5=Gina|last6=Beilharz|first6=Jessica E.|last7=Vollmer-Conna|first7=Ute|author-link7=Uté Vollmer-Conna|date=2018|title=Personalised relaxation practice to improve sleep and functioning in patients with chronic fatigue syndrome and depression: study protocol for a randomised controlled trial|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6042263/|journal=Trials|volume=19|pages=371|doi=10.1186/s13063-018-2763-8|via=}}</ref> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6042263/ (Full Text)]

==Talks & interviews==

*1-2 September 2014, [[UK CFS/ME Research Collaborative]] Conference - Talk title: "Acute infection & post-infective fatigue as a model for CFS"<ref>https://www.actionforme.org.uk/uploads/pdfs/cmrc-2014-conference-report-final.pdf</ref>
*22 April 2014, [https://www.youtube.com/watch?v=BgWgX5F5WUM Talk to Coogee Owls ME/CFS Support Group at Randwick, Sydney]

==Online presence==

*[https://medicalsciences.med.unsw.edu.au/people/professor-andrew-lloyd UNSW bio page]

==See also==

*[[Australia]]

==Learn more==

*2018, [http://www.virology.ws/2018/04/04/trial-by-error-a-post-about-andrew-lloyd/ Trial By Error: A Post About Andrew Lloyd]
*2015, [https://www.healthrising.org/blog/2015/05/16/the-decline-and-fall-of-an-mecfs-researcher-the-case-of-andrew-lloyd/ "The Decline and Fall of an ME/CFS Researcher? the Case of Andrew Lloyd"] by [[Cort Johnson]] for [[Health Rising]]
*2012, [http://phoenixrising.me/research-2/the-dubbo-studies-a-model-of-post-infective-fatigue-emerging/model-of-post-infective-fatigue-forming-the-dubbo-studies "Model of Post Infective Fatigue Forming: the Dubbo Studies"] in [[Phoenix Rising]]

==References==
<references>
<ref name="Cameron,2006">{{Citation
| last1 = Cameron | first1 = Barbara | authorlink1 =
| last2 = Bharadwaj | first2 = Mandvi | authorlink2 =
| last3 = Burrows | first3 = Jacqueline | authorlink3 =
| last4 = Fazou | first4 = Chrysa | authorlink4 =
| last5 = Wakefield | first5 = Denis | authorlink5 =
| last6 = Hickie | first6 = Ian | authorlink6 =
| last7 = Ffrench | first7 = Rosemary | authorlink7 =
| last8 = Khanna | first8 = Rajiv | authorlink8 =
| last9 = Lloyd | first9 = Andrew | authorlink9 = Andrew Lloyd
| title = Prolonged Illness after Infectious Mononucleosis Is Associated with Altered Immunity but Not with Increased Viral Load
| journal = Journal Infectious Disease | volume = 193 | issue = 5 | page = 664-671
| date = 2006
| pmid =
| doi = 10.1086/500248
}}
</ref>
<ref name="Hickie, 2006">{{Citation
| last1 = Hickie | first1 = Ian | authorlink1 =
| last2 = Davenport | first2 = Tracey | authorlink2 =
| last3 = Wakefield | first3 = Denis | authorlink3 =
| last4 = Vollmer-Conna | first4 = Ute | authorlink4 = Ute Vollmer-Conna
| last5 = Cameron | first5 = Barbara | authorlink5 =
| last6 = Vernon | first6 = Suzanne D. | authorlink6 = Suzanne Vernon
| last7 = Reeves | first7 = William C. | authorlink7 = William Reeves
| last8 = Lloyd | first8 = Andrew | authorlink8 = Andrew Lloyd
| title = Post-infective and chronic fatigue syndromes precipitated by viral and non-viral pathogens: Prospective cohort study
| journal = BMJ | volume = 333 | issue = 7568 | page = 575
| date = 2006
| pmid =
| doi = 10.1136/bmj.38933.585764.AE
}}
</ref>
<ref name="lloyd1990">{{Citation| issn = 0002-9343| volume = 89| issue = 5| pages = 561–568| last1 = Lloyd| first1 = A.| last2 = Hickie| first2 = I.| last3 = Wakefield| first3 = D.| last4 = Boughton| first4 = C.| last5 = Dwyer| first5 = J.| title = A double-blind, placebo-controlled trial of intravenous immunoglobulin therapy in patients with chronic fatigue syndrome| journal = The American Journal of Medicine| date = November 1990| pmid = 2146875}}</ref>
<ref name="Reeves,2003">{{Citation
| last1 = Reeves | first1 = W. C. | authorlink1 = William Reeves
| last2 = Lloyd | first2 = A. | authorlink2 = Andrew Lloyd
| last3 = Vernon | first3 = S. D. | authorlink3 = Suzanne Vernon
| last4 = Klimas | first4 = N. | authorlink4 = Nancy Klimas
| last5 = Jason | first5 = L. A. | authorlink5 = Leonard Jason
| last6 = Bleijenberg | first6 = G. | authorlink6 =
| last7 = Evengard | first7 = B. | authorlink7 =
| last8 = White | first8 = P. D. | authorlink8 = Peter White
| last9 = Nisenbaum | first9 = R. | authorlink9 =
| last10 = Unger | first10 = E. | authorlink10 = Elizabeth Unger
| title = Identification of ambiguities in the 1994 chronic fatigue syndrome research case definition and recommendations for resolution
| journal = BMC Health Services Research | volume = 3 | issue = 25
| date = 2003
| doi = 10.1186/1472-6963-3-25
}}
</ref>
<ref name="Vernon, 2006">{{Citation
| last1 = Vernon | first1 = SD | authorlink1 = Suzanne Vernon
| last2 = Whistler | first2 = T | authorlink2 =
| last3 = Cameron | first3 = B | authorlink3 =
| last4 = Hickie | first4 = IB | authorlink4 =
| last5 = Reeves | first5 = WC | authorlink5 = William Reeves
| last6 = Lloyd | first6 = A | authorlink6 = Andrew Lloyd
| title = Preliminary evidence of mitochondrial dysfunction associated with post-infective fatigue after acute infection with Epstein Barr Virus
| journal = BMC Infectious Diseases | volume = 6 | issue = 15 | page =
| date = 2006
| pmid = 16448567
| doi = 10.1186/1471-2334-6-15
}}
</ref>
</references>

[[Category:Researchers]]
[[Category:Australia researchers]]

Andrew Lloyd

2018-10-02T03:34:39Z

ME Australia:added in portions of the MECFS Australia letter to the Medical Journal of Australia with criticisms of the Australian CFS guidelines, which Llloyd wrote

[[File:Andrew Lloyd.png|200px|thumb|right|Source:UNSW Sydney]]
'''Andrew R. Lloyd''', MB BS Syd, MD UNSW, FRACP, is an infectious disease physician, and an epidemiology, virology and immunology researcher. He is a professor at the School of Medical Sciences, University of New South Wales, Sydney, [[Australia]].<ref>https://medicalsciences.med.unsw.edu.au/people/professor-andrew-lloyd</ref>

He is one of the authors of the 2002 Australian chronic fatigue sydrome guidelines, which were immediately criticised by ME/CFS Australia<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_mar_7.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (March 7, 2002)|website=sacfs.asn.au|access-date=2018-10-02}}</ref>
* do not describe accurately and fully the symptoms and characteristics of the illness;

* misrepresent the illness and people with CFS;
* do not provide an accurate, balanced and objective consideration of the research evidence;
* demonstrate a consistent bias towards a psychiatric-psychological approach to the illness;
* dismiss, downplay or ignore biological evidence;
* make illness management suggestions that are potentially harmful for many with CFS; and
* do not mention other ways of effectively managing the illness.<ref>{{Cite web|url=http://sacfs.asn.au/about/guidelines/letter_mar_7.htm|title=ME/CFS Australia (SA) Inc: Letter to eMJA (March 7, 2002)|website=sacfs.asn.au|access-date=2018-10-02}}</ref>

More than 700 people signed a petition<ref>{{Cite news|url=https://my.meaction.net/petitions/stop-graded-exercise-therapy-trial-at-university-of-nsw|title=Stop graded exercise therapy trial at University of NSW|work=#MEAction|access-date=2018-10-02|language=en}}</ref> asking him to stop the roll out of training medical professionals to use [[Cognitive behavioral therapy|CBT]] and [[Graded exercise therapy|GET]] on people diagnosed with chronic fatigue syndrome. The university responded, stating the people who are protesting harbour ‘resentment against the notion that CFS may have psychological causes’<ref>{{Cite news|url=https://meaustralia.net/2017/03/30/unsw-school-of-medicine-responds-cbtget-training-trial-for-chronic-fatigue-syndrome/|title=Lloyd’s university responds: CBT/GET training trial for chronic fatigue syndrome|date=2017-03-30|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>, while there is no evidence for their argument'''.'''

==Awards==

*Member, Order of Australia (A.M): “For service to medicine and the community, particularly through provision of hepatitis services in prisons, and research in infectious diseases”<ref>https://medicalsciences.med.unsw.edu.au/people/professor-andrew-lloyd</ref>

==Clinic==

*[http://www.fatiguecentre.com.au/ The Fatigue Centre], Newtown, New South Wales, [[Australia]], was created and is supervised by Dr. Andrew Lloyd to serve patients with [[CFS]] and post-cancer fatigue.

==Book Chapters==

*1999, "Chronic fatigue syndrome: current concepts of pathogenesis and treatment," in ''Current Clinical Topics in Infectious Diseases'', edn. Original<ref>Current Clinical Topics in Infectious Diseases, edn. Original, Blackwell Science Asia, Carlton, Victoria, pp. 138 - 159</ref>
*2005, "Fatigue states following infection," in ''Infectious Diseases A clinical approach'', edn. 2<ref>Yung A; McDonald M; Spelman D; Street A; Johnson P; Sorrell T; McCormack J (ed.), Infectious Diseases A clinical approach, edn. 2, IP Communications, East Hawthorn, Victoria, Australia, pp. 195 - 204</ref>

==Notable studies==

*1990, A double-blind, placebo-controlled trial of intravenous immunoglobulin therapy in patients with chronic fatigue syndrome<ref name="lloyd1990" />
*1997, [[Intravenous immunoglobulin]] is ineffective in the treatment of patients with [[chronic fatigue syndrome]]<ref>{{Cite journal|last=Vollmer-Conna|first=U|author-link=Uté Vollmer-Conna|last2=Hickie|first2=I|last3=Hadzi-Pavlovic|first3=D|last4=Tymms|first4=K|last5=Wakefield|first5=D|last6=Dwyer|first6=J|last7=Lloyd|first7=A|author-link7=Andrew Lloyd|date=1997|title=Intravenous immunoglobulin is ineffective in the treatment of patients with chronic fatigue syndrome|url=http://dx.doi.org/10.1016/S0002-9343(97)90045-0|journal=American Journal of Medicine|volume=103|pages=38 - 43|doi=10.1016/S0002-9343(97)90045-0|via=}}</ref>
*1998, [[Chronic fatigue syndrome]]: An immunological perspective<ref>Vollmer-Conna U;Lloyd A;Hickie I;Wakefield D, 1998, 'Chronic fatigue syndrome: An immunological perspective', Australian and New Zealand Journal of Psychiatry, vol. 32, pp. 523 - 527</ref>
*2003, Identification of ambiguities in the [[Fukuda criteria|1994 chronic fatigue syndrome research case definition]] and recommendations for resolution<ref name="Reeves,2003" /> [https://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-3-25 (Full Text)]
*2006, Post-infective and [[chronic fatigue syndrome]]s precipitated by viral and non-viral pathogens: Prospective cohort study<ref name="Hickie, 2006" /> [https://www.researchgate.net/publication/6838807_Post-infective_and_chronic_fatigue_syndromes_precipitated_by_viral_and_non-viral_pathogens_Prospective_cohort_study (Abstract)]
*2006, Preliminary evidence of [[Mitochondria|mitochondrial]] dysfunction associated with post-infective fatigue after acute infection with [[Epstein-Barr virus|Epstein Barr Virus]]<ref name="Vernon, 2006" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1373655/ (Full Text)]
*2006, Prolonged Illness after Infectious [[Mononucleosis]] Is Associated with Altered Immunity but Not with Increased Viral Load [https://academic.oup.com/jid/article/193/5/664/877191/Prolonged-Illness-after-Infectious-Mononucleosis (Full Text)]<ref name="Cameron,2006" />
*2007, Postinfective fatigue syndrome is not associated with altered [[cytokine]] production<ref>Vollmer-Conna U; Cameron B; Hadzi-Pavlovic D; Singletary K; Davenport T; Vernon S; Reeves WC; Hickie I; Wakefield D; Lloyd AR, 2007, 'Postinfective fatigue syndrome is not associated with altered cytokine production', Clinical Infectious Diseases, vol. 45, pp. 732 - 735, http://dx.doi.org/10.1086/520990</ref>
*2007, Fatigue: case definition and guidelines for collection, analysis, and presentation of immunization safety data<ref>{{Cite journal|last=Jones|first=James F.|last2=Kohl|first2=Katrin S.|last3=Ahmadipour|first3=Nooshin|last4=Bleijenberg|first4=Gijs|last5=Buchwald|first5=Dedra|author-link5=Dedra Buchwald|last6=Evengard|first6=Birgitta|last7=Jason|first7=Leonard A.|author-link7=Leonard Jason|last8=Klimas|first8=Nancy G.|author-link8=Nancy Klimas|last9=Lloyd|first9=Andrew|author-link9=Andrew Lloyd|date=Aug 2007|title=Fatigue: Case definition and guidelines for collection, analysis, and presentation of immunization safety data|url=http://linkinghub.elsevier.com/retrieve/pii/S0264410X07002654|journal=Vaccine|volume=25|issue=31|pages=5685–5696|doi=10.1016/j.vaccine.2007.02.065|issn=0264-410X|via=}}</ref> [https://www.sciencedirect.com/science/article/pii/S0264410X07002654?via%3Dihub (Preview)]
*2010, Serum [[Cytokine]] Levels in Postinfective Fatigue Syndrome [https://academic.oup.com/cid/article-lookup/doi/10.1086/649546 (Full Text)]<ref>Barbara Cameron, David L. Hirschberg, Yael Rosenberg-Hassan, Dharam Ablashi, Andrew R. Lloyd. (2010). Serum Cytokine Levels in Postinfective Fatigue Syndrome. Clinical Infectious Diseases, 50 (2): 278-280. doi:10.1086/649546</ref>
*2010, Autonomic hyper-vigilance in post-infective fatigue syndrome<ref>Kadota Y;Cooper G;Burton AR; Lemon J; Schall U; Lloyd A; Vollmer-Conna U, 2010, 'Autonomic hyper-vigilance in post-infective fatigue syndrome', Biological Psychology, vol. 85, pp. 97 - 103, http://dx.doi.org/10.1016/j.biopsycho.2010.05.009</ref>
*2010, Reduced heart rate variability predicts poor sleep quality in a case-control study of chronic fatigue syndrome<ref>Burton AR; Rahman K; Kadota Y; Lloyd A; Vollmer-Conna U, 2010, 'Reduced heart rate variability predicts poor sleep quality in a case-control study of chronic fatigue syndrome', Experimental Brain Research, vol. 204, pp. 71 - 78, http://dx.doi.org/10.1007/s00221-010-2296-1</ref>
*2011, Sleep-wake behavior in chronic fatigue syndrome<ref>Rahman K;Burton A;Galbraith S;Lloyd A;Vollmer-Conna U, 2011, 'Sleep-wake behavior in chronic fatigue syndrome', Sleep, vol. 34, pp. 671 - 678</ref>
*2012, Reduced Cardiac Vagal Modulation Impacts on Cognitive Performance in [[Chronic Fatigue Syndrome]]<ref>Beaumont A;Burton AR;Lemon J;Bennett BK;Lloyd A;Vollmer-Conna U, 2012, 'Reduced Cardiac Vagal Modulation Impacts on Cognitive Performance in Chronic Fatigue Syndrome', PLoS ONE, vol. 7, http://dx.doi.org/10.1371/journal.pone.0049518</ref>
*2015, Capturing the post-exertional exacerbation of fatigue following physical and cognitive challenge in patients with chronic fatigue syndrome<ref>Keech A;Sandler C;Vollmer-Conna U;Lloyd A;Barry B, 2015, 'Capturing the post-exertional exacerbation of fatigue following physical and cognitive challenge in patients with chronic fatigue syndrome.', in Physiotherapy, Elsevier, Singapore, Vol. 101, pp. e121 - e122, presented at World Congress of Physical Therapy, Singapore, 01 - 04 May 2015, http://dx.doi.org/10.1016/j.physio.2015.03.262</ref>
*2016, Fatigue Exacerbation by Interval or Continuous [[Exercise]] in [[Chronic Fatigue Syndrome]]<ref>Sandler CX, Lloyd AR, Barry BK. (2016). Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome. ''Medicine and Science in Sports Exercise'' 2016 Oct;48(10):1875-85. doi: 10.1249/MSS.0000000000000983</ref>
*2016, Outcomes and predictors of response from an optimised, multidisciplinary intervention for chronic fatigue states<ref>Sandler CX;Hamilton BA;Horsfield SL;Bennett BK;Vollmer-Conna U;Tzarimas C;Lloyd AR, 2016, 'Outcomes and predictors of response from an optimised, multidisciplinary intervention for chronic fatigue states', Internal Medicine Journal, vol. 46, pp. 1421 - 1429, http://dx.doi.org/10.1111/imj.13251</ref>
*2016, Gene Expression in Response to [[Exercise]] in Patients with [[Chronic Fatigue Syndrome]]: A Pilot Study [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5031769/ (Full Text)]<ref>Keech, A., Vollmer-Conna, U., Barry, B. K., & Lloyd, A. R. (2016). Gene Expression in Response to Exercise in Patients with Chronic Fatigue Syndrome: A Pilot Study. Frontiers in Physiology, 7, 421. http://doi.org/10.3389/fphys.2016.00421</ref>
*2016, Neurocognitive improvements after best-practice intervention for [[chronic fatigue syndrome]]: Preliminary evidence of divergence between objective indices and subjective perceptions<ref>Cvejic E;Lloyd AR;Vollmer-Conna U, 2016, 'Neurocognitive improvements after best-practice intervention for chronic fatigue syndrome: Preliminary evidence of divergence between objective indices and subjective perceptions', Comprehensive Psychiatry, vol. 66, pp. 166 - 175, http://dx.doi.org/10.1016/j.comppsych.2016.02.002</ref>
*2017, [[Cytokine]] signature in [[chronic fatigue syndrome]]<ref>Roerink ME, Buckland M, Lloyd AR, van der Meer JWM. (2017) Cytokine signature in chronic fatigue syndrome. Proc Natl Acad Sci U S A. 2017 Nov 7;114(45):E9435. doi: 10.1073/pnas.1714011114.</ref>
*2018, Personalised relaxation practice to improve sleep and functioning in patients with [[chronic fatigue syndrome]] and [[depression]]: study protocol for a randomised controlled trial<ref>{{Cite journal|last=Macnamara|first=Claire L.|last2=Cvejic|first2=Erin|last3=Parker|first3=Gordon B.|last4=Lloyd|first4=Andrew R.|author-link4=Andrew Lloyd|last5=Lee|first5=Gina|last6=Beilharz|first6=Jessica E.|last7=Vollmer-Conna|first7=Ute|author-link7=Uté Vollmer-Conna|date=2018|title=Personalised relaxation practice to improve sleep and functioning in patients with chronic fatigue syndrome and depression: study protocol for a randomised controlled trial|url=https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6042263/|journal=Trials|volume=19|pages=371|doi=10.1186/s13063-018-2763-8|via=}}</ref> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6042263/ (Full Text)]

==Talks & interviews==

*1-2 September 2014, [[UK CFS/ME Research Collaborative]] Conference - Talk title: "Acute infection & post-infective fatigue as a model for CFS"<ref>https://www.actionforme.org.uk/uploads/pdfs/cmrc-2014-conference-report-final.pdf</ref>
*22 April 2014, [https://www.youtube.com/watch?v=BgWgX5F5WUM Talk to Coogee Owls ME/CFS Support Group at Randwick, Sydney]

==Online presence==

*[https://medicalsciences.med.unsw.edu.au/people/professor-andrew-lloyd UNSW bio page]

==See also==

*[[Australia]]

==Learn more==

*2015, [https://www.healthrising.org/blog/2015/05/16/the-decline-and-fall-of-an-mecfs-researcher-the-case-of-andrew-lloyd/ "The Decline and Fall of an ME/CFS Researcher? the Case of Andrew Lloyd"] by [[Cort Johnson]] for [[Health Rising]]
*2012, [http://phoenixrising.me/research-2/the-dubbo-studies-a-model-of-post-infective-fatigue-emerging/model-of-post-infective-fatigue-forming-the-dubbo-studies "Model of Post Infective Fatigue Forming: the Dubbo Studies"] in [[Phoenix Rising]]

==References==
<references>
<ref name="Cameron,2006">{{Citation
| last1 = Cameron | first1 = Barbara | authorlink1 =
| last2 = Bharadwaj | first2 = Mandvi | authorlink2 =
| last3 = Burrows | first3 = Jacqueline | authorlink3 =
| last4 = Fazou | first4 = Chrysa | authorlink4 =
| last5 = Wakefield | first5 = Denis | authorlink5 =
| last6 = Hickie | first6 = Ian | authorlink6 =
| last7 = Ffrench | first7 = Rosemary | authorlink7 =
| last8 = Khanna | first8 = Rajiv | authorlink8 =
| last9 = Lloyd | first9 = Andrew | authorlink9 = Andrew Lloyd
| title = Prolonged Illness after Infectious Mononucleosis Is Associated with Altered Immunity but Not with Increased Viral Load
| journal = Journal Infectious Disease | volume = 193 | issue = 5 | page = 664-671
| date = 2006
| pmid =
| doi = 10.1086/500248
}}
</ref>
<ref name="Hickie, 2006">{{Citation
| last1 = Hickie | first1 = Ian | authorlink1 =
| last2 = Davenport | first2 = Tracey | authorlink2 =
| last3 = Wakefield | first3 = Denis | authorlink3 =
| last4 = Vollmer-Conna | first4 = Ute | authorlink4 = Ute Vollmer-Conna
| last5 = Cameron | first5 = Barbara | authorlink5 =
| last6 = Vernon | first6 = Suzanne D. | authorlink6 = Suzanne Vernon
| last7 = Reeves | first7 = William C. | authorlink7 = William Reeves
| last8 = Lloyd | first8 = Andrew | authorlink8 = Andrew Lloyd
| title = Post-infective and chronic fatigue syndromes precipitated by viral and non-viral pathogens: Prospective cohort study
| journal = BMJ | volume = 333 | issue = 7568 | page = 575
| date = 2006
| pmid =
| doi = 10.1136/bmj.38933.585764.AE
}}
</ref>
<ref name="lloyd1990">{{Citation| issn = 0002-9343| volume = 89| issue = 5| pages = 561–568| last1 = Lloyd| first1 = A.| last2 = Hickie| first2 = I.| last3 = Wakefield| first3 = D.| last4 = Boughton| first4 = C.| last5 = Dwyer| first5 = J.| title = A double-blind, placebo-controlled trial of intravenous immunoglobulin therapy in patients with chronic fatigue syndrome| journal = The American Journal of Medicine| date = November 1990| pmid = 2146875}}</ref>
<ref name="Reeves,2003">{{Citation
| last1 = Reeves | first1 = W. C. | authorlink1 = William Reeves
| last2 = Lloyd | first2 = A. | authorlink2 = Andrew Lloyd
| last3 = Vernon | first3 = S. D. | authorlink3 = Suzanne Vernon
| last4 = Klimas | first4 = N. | authorlink4 = Nancy Klimas
| last5 = Jason | first5 = L. A. | authorlink5 = Leonard Jason
| last6 = Bleijenberg | first6 = G. | authorlink6 =
| last7 = Evengard | first7 = B. | authorlink7 =
| last8 = White | first8 = P. D. | authorlink8 = Peter White
| last9 = Nisenbaum | first9 = R. | authorlink9 =
| last10 = Unger | first10 = E. | authorlink10 = Elizabeth Unger
| title = Identification of ambiguities in the 1994 chronic fatigue syndrome research case definition and recommendations for resolution
| journal = BMC Health Services Research | volume = 3 | issue = 25
| date = 2003
| doi = 10.1186/1472-6963-3-25
}}
</ref>
<ref name="Vernon, 2006">{{Citation
| last1 = Vernon | first1 = SD | authorlink1 = Suzanne Vernon
| last2 = Whistler | first2 = T | authorlink2 =
| last3 = Cameron | first3 = B | authorlink3 =
| last4 = Hickie | first4 = IB | authorlink4 =
| last5 = Reeves | first5 = WC | authorlink5 = William Reeves
| last6 = Lloyd | first6 = A | authorlink6 = Andrew Lloyd
| title = Preliminary evidence of mitochondrial dysfunction associated with post-infective fatigue after acute infection with Epstein Barr Virus
| journal = BMC Infectious Diseases | volume = 6 | issue = 15 | page =
| date = 2006
| pmid = 16448567
| doi = 10.1186/1471-2334-6-15
}}
</ref>
</references>

[[Category:Researchers]]
[[Category:Australia researchers]]

Australia

2018-10-02T03:18:14Z

ME Australia:

[[File:Australia_flag.svg.png|320px|right|thumb|'''Australia''']]

There are an estimated 92,000 to 598,000 people in Australia with chronic fatigue syndrome, ME or CFS/ME or ME/CFS (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria" /> depending on which definition of the condition is used). Using the International Consensus Criteria (0.4-1%), there are between 94,000 and 242,000 Australians with ME.

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis.

Australian patients use the terms [[Chronic Fatigue Syndrome]], [[ME/CFS]], CFS/ME, [[Myalgic Encephalomyelitis]] or immune dysfunction illness.

==Medical guidelines==

The NHMRC website lists resources for clinicians, including recommendations for exercise, cognitive behavioural therapy and antidepressants.<ref>{{Cite news|url=https://meaustralia.net/2018/09/26/australian-government-committee-on-me-and-chronic-fatigue-syndrome/|title=Australian committee on ME and chronic fatigue syndrome nearly finished report|date=2018-09-26|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

The 2002 Australian guidelines are used by National Health and Medical Research Council (NHRMC) fellowship recipient Prof Andrew Lloyd, who sits on the review committees for NHMRC grant applications.<ref name="#MEACTION20160120ahd" />

A government-appointed advisory committee is in the process of recommending whether new clinical guidelines should be developed to replace the outdated Australian guidelines.<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

Some patients are lobbying for the [[International Consensus Criteria]] to be adopted<ref>{{Cite news|url=https://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/|title=Australia: Ask the medical research council to fund studies - #MEAction|date=2016-03-14|work=#MEAction|access-date=2018-10-02|language=en-US}}</ref>. Some suggested letter templates have been offered for use [http://www.meaction.net/2016/03/10/australia-write-your-own-letter-to-a-politician/ here] and [http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/ here].

===Patient groups===

The [[International Consensus Criteria | International Consensus Primer]] is listed by all organisations, except Western Australia's ME/CFS/Lyme Association, which lists the [[Canadian Consensus Criteria]].

One of the NSW websites lists the [[International Consensus Criteria | International Consensus Primer]], [[ME/CFS: A Primer For Clinical Practitioners | IACFS/ME Clinical]], the [http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01 2006 Paediatric Criteria]<ref name="JasonL2006paed" />, and the [[South Australian ME/CFS Guidelines]]<ref name="SthAustGuidelines" /> but is not clear on which one it endorses.

Some state organisations, [[NCNED]] and some patients are lobbying<ref name="#MEACTION20160314amrc" /> for the 2002 RACP Australian guidelines<ref name="RACP2002" /> to be replaced with the [[International Consensus Criteria]].

===Australian medical associations===
*The Royal Australasian College of Physicians (RACP) published guidelines in 2002, in the Australian Medical Journal.<ref name="RACP2002" />
*The Royal Australasian College of General Practitioners (RACGP) published a guideline in 2015 which recommends [[Graded Exercise Therapy]].<ref name="RACGP2015guide" /> Their magazine Australian Family Practitioner (AFP) has published articles about [[ME/CFS]],<ref name="AFPlist" /> including a 2013 article that recommends [[Graded exercise therapy]] and [[Cognitive behavioral therapy]].<ref name="AFP201304" />
*The Australian Medical Association (AMA) website recommends [[Graded Exercise Therapy]].<ref name="AMA20040503" />

===National health department===
* [http://health.gov.au Department of Health]
* [http://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs Direct information page on CFS from Department of Health]

===National Health and Medical Research Council===
The [http://nhmrc.gov.au NHMRC] funds health and medical research, and develops health advice & guidelines. It is part of the Australian Department of Health.

In 2018 the NHMRC appoointed an ME and CFS advisory committee<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>, including [[Andrew Lloyd]], [[Suzanne Broadbent,]] [[Sonya Marshall-Gradisnik]] and [[Kathy Rowe]].

The committee is advising the government on current research, gaps in research and whether the 2002 clinical guidelines for doctors should be revised.The NHMRC did not put out a call for applications for positions on the advisory committee, unlike the USA’s Department of Health and Human services does for it’s [https://www.hhs.gov/ash/advisory-committees/cfsac/notices/index.html Chronic Fatigue Syndrome Advisory Committee]. Nor did it follow the UK example and hold [https://www.nice.org.uk/news/article/nice-announces-next-steps-in-updating-its-guideline-on-me-cfs workshops with stakeholders] before recruiting a guideline committee. Their report is due to be open for public consultation by the end of 2018.

===State and territory health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] - information for the public
* ACT
* NSW
* South Australia
* Northern Territory
* Queensland
* Tasmania
* Western Australia

==Health insurance==

===Government health insurance===
The Australian government subsidises most medical appointments, some hospital services, and some medications.
*[https://www.humanservices.gov.au/customer/dhs/medicare Medicare]
*[https://www.humanservices.gov.au/customer/services/medicare/medicare-safety-net Medicare Safety Net]
*[http://www.pbs.gov.au/info/about-the-pbs Pharmaceutical Benefits Scheme]

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.
*[https://www.ndis.gov.au/index.html National Disability Insurance Scheme]

==Access to care==
((How many hospitals & doctors, which diagnose and treat ME (estimate):))
((Rehabilitation offers for ME sufferers: ))

==Patient groups==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[[Change for ME Australia]], an online collective
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]
*Hummingbirds' Foundation for [https://www.hfme.org/ ME]

==Research==

===Notable studies===
*[https://www.dovepress.com/articles.php?article_id=26236 Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome (2016)]
*2016, [https://link.springer.com/chapter/10.1007/978-3-319-32240-7_11 Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy]

===Research results===
*2018: [https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/ How much can people with ME stand?]<ref>{{Cite news|url=https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/|title=How much can people with ME stand?|date=2018-08-06|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2016: [http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/ Australian Breakthrough on Diagnostic Blood Test]<ref name="#MEACTION20160303test" />
*2015: [http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/ Australian Research into ME/CFS in Adolescents]<ref name="#MEACTION20150819arma" />

===Research funding===
*2018: [https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/ Friends in Australia's Parliament for people with ME and chronic fatigue syndrome]<ref>{{Cite news|url=https://meaustralia.net/2018/08/07/friends-in-australias-parliament-for-people-with-me-and-chronic-fatigue-syndrome/|title=Friends in Australia’s parliament for people with ME and chronic fatigue syndrome|date=2018-08-07|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2018: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's medical research council questioned on ME and CFS committee]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2017: [https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/ Australia's Health Minister refuses to stop funding trial of 'incredibly bad' treatment]<ref>{{Cite news|url=https://meaustralia.net/2018/06/15/australias-medical-research-council-questioned-on-me-and-cfs-committee/|title=Australia’s medical research council questioned on ME and CFS committee|date=2018-06-15|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>
*2016: [http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Dept Pins its Hopes on NIH Research]<ref name="#MEACTION20160212ahd" />
*2016: [http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/ The Australian Health Department Answers Questions on ME]<ref name="#MEACTION20160120ahd" />
*2015: [http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/ Australian Senator Questions Government on Lack of Action on ME]<ref name="#MEACTION20151116asqg" />

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[https://www.vu.edu.au/ Victoria University]
*[http://www.bio21.unimelb.edu.au/ Bio21 Institute, Melbourne University]

===Researchers===
*[[Christopher Armstrong]]
*[[Dorothy Bruck]]
*[[Henry Butt]]
*[[Elaine DeFreitas]]
*[[Paul R Gooley|Paul Gooley]]
*[[Melinda Jackson]]
*[[Donald Lewis]]
*[[Brett Lidbury]]
*[[Andrew Lloyd]]
*[[Neil McGregor]]
*[[Michael Maes]]
*[[Sarah Knight]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
*[[Amy Wallis]]

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW), [[Mark Donohoe]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*[https://meaustralia.net/2016/12/01/remembering-alison-hunter-1976-1996/ Alison Hunter], died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name in 1998, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), in 2014, and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite" />
*[[Jodi Bassett]]
*[[Laura Dundovic]]
*[[Leigh Hatcher]]
*[[Linley Frame]]
*[[Johanna Griggs]]
*[[Alastair Lynch]]
*[[James McDonald]]
*[[Alem Matthees]]
*[[Nadine Neumann ]]
*[[Matthew Nicholson]]
*[[Rhyce Shaw]]
*[[Shelley Taylor-Smith]]

==Learn more==
*2016, [https://www.thesaturdaypaper.com.au/2016/08/06/rethinking-chronic-fatigue-syndrome/14704056003560 Rethinking chronic fatigue syndrome]
*2018, [https://www.theguardian.com/commentisfree/2018/may/12/to-the-millionsmissing-with-mecfs-something-remarkable-is-happening To the #MillionsMissing, something remarkable is happening]
*[https://meaustralia.net/ MEAustralia.net]

==See also==
*[[1949-53 Adelaide outbreak]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
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| url = http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01
}}</ref>
<ref name="#MEACTION20150819arma">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Research into ME/CFS in Adolescents
| journal = #MEAction
| date = 19 Aug 2015
| url = http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
}}</ref>
<ref name="#MEACTION20151116asqg">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Senator Questions Government on Lack of Action on ME
| journal = #MEAction
| date = 16 Nov 2015
| url = http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
}}</ref>
<ref name="#MEACTION20160120ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Answers Questions on ME
| journal = #MEAction
| date = 20 Jan 2016
| url = http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
}}</ref>
<ref name="#MEACTION20160212ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Pins its Hopes on NIH Research
| journal = #MEAction
| date = 12 Feb 2016
| url = http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/
}}</ref>
<ref name="#MEACTION20160303test">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Breakthrough on Diagnostic Blood Test
| journal = #MEAction
| date = 3 Mar 2016
| url = http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
}}</ref>
<ref name="#MEACTION20160314amrc">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australians: Ask the Medical Research Council to Fund Studies
| journal = #MEAction
| date = 14 Mar 2016
| url = http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/
}}</ref>
<ref name="SthAustGuidelines">{{citation
| last1 = South Australian Department of Human Services
| last2 = University of Adelaide
| last3 = ME/CFS Society of South Australia
| title = ME/CFS Guidelines: Management Guidelines for General Practitioners
| date = 2004
| ISBN = 0 7308 9334 0
| url = http://sacfs.asn.au/download/guidelines.pdf
}}</ref>
<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>
<ref name="RACP2002">{{citation
| author1 = Victoria Toulkidis
| author2 = Produced by a Working Group convened under the auspices of the Royal Australasian College of Physicians
| display-authors = 1
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>
<ref name="RACGP2015guide">{{citation
| author = Royal Australasian College of General Practitioners (RACGP)
| title = Graded exercise therapy: chronic fatigue syndrome
| date = Mar 2015
| url = http://www.racgp.org.au/your-practice/guidelines/handi/interventions/other/graded-exercise-therapy-for-chronic-fatigue-syndrome/
}}</ref>
<ref name="AFPlist">{{citation
| journal = Australian Family Physician
| title = articles about Chronic Fatigue Syndrome
| url = http://www.racgp.org.au/search/
}}</ref>
<ref name="AFP201304">{{citation
| author = Megan Arroll, Bruce Arroll
| title = Chronic fatigue syndrome: A patient centred approach to management
| journal = Australian Family Practitioner
| date = Apr 2013
| url = http://www.racgp.org.au/afp/2013/april/chronic-fatigue-syndrome/
}}</ref>
<ref name="AMA20040503">{{citation
| author = Australian Medical Association
| title = Chronic fatigue sufferers beat blues with exercise
| date = 3 May 2004
| url = https://ama.com.au/media/chronic-fatigue-sufferers-beat-blues-exercise
}}</ref>
</references>

[[Category:Countries]]
[[Category:Oceania]]
[[Category:Australia]]

Brett Lidbury

2018-10-02T03:09:17Z

ME Australia:added link to article about his work

[[File:Brett Lidbury.png|200px|thumb|right]]
'''Brett A. Lidbury''', B.Sc, B.Sc (Hons) (Newcastle), PhD (ANU), FFSc (RCPA), is an Associate Professor with the National Centre for Epidemiology and Population Health (Research School of Population Health), College of Health and Medicine at the Australian National University. His areas of expertise are medical virology, innate immunity, and biostatistics. Research interests include improving the efficacy of diagnostic pathology and biomarker pattern discovery, particularly in relation to [[ME/CFS]] and infectious diseases. Earlier research activity was interested in [[Ross River virus]] (RRV) pathogenesis, which as an Australian viral suspect in long-term fatigue, lead to current endeavors for [[ME/CFS| chronic fatigue syndrome/myalgic encephalomyelitis]]. Our work is entirely focused on human biology and pathology, without the requirement to develop an animal model.<ref>https://researchers.anu.edu.au/researchers/lidbury-ba</ref>

==ME/CFS research==
Dr Lidbury and his colleagues are conducting [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]] (ME/CFS) studies that are ongoing with research participants recruited and assessed by CFS Discovery in Melbourne (Donvale, VIC 3111), in collaboration with the Hudson Research Institute, Paranta Biosciences, Bio21 Institute (University of Melbourne), La Trobe University and Universidad del Rosario, Bogota (School of Medicine and Health Sciences). Via these collaborations we are gathering data on potential immune serum markers (see [[Activin B]]), mitochondrial function and [[metabolomics]], as well as genetics, with the ANU group applying computational methods, for example machine learning, to interrogate these results as a systems biology investigation. A strength at the ANU is also the assessment of pathology and clinical data to increase diagnostic prediction, while developing rules to simplify decision-making for patient assessment.

The [[ME/CFS]] project for the validation of Activin markers is funded by the Judith Jane Mason & Harold Stannett Williams Memorial Foundation, and projects concerning genetic analyses are funded by [[ME Research UK]].<ref>http://www.meresearch.org.uk/</ref>

==Awards==
* Nominee for 2016 ACT Scientist of the Year<ref>https://meaustralia.net/2016/07/11/me-microbiome-scientist-nominated-as-act-scientist-of-the-year/comment-page-1/</ref>
* Fellowship to the Faculty of Science, The Royal College of Pathologists of Australasia.

==Notable studies==
*2014, Comorbidity of [[postural orthostatic tachycardia syndrome]] and [[chronic fatigue syndrome]] in an Australian cohort<ref name="Reynolds, 2014" />
*2017, [[Activin B]] is a novel [[Diagnostic biomarker|biomarker]] for [[ME/CFS|chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME)]] diagnosis: a cross sectional study<ref name="Lidbury, 2017" />
*2018, Weighting of [[orthostatic intolerance]] time measurements with standing difficulty score stratifies [[ME/CFS]] symptom severity and analyte detection<ref name="Richardson, 2018" />

==Talks & interviews==

==Online presence==
*[https://www.ncbi.nlm.nih.gov/pubmed/?term=Lidbury%20BA%5BAuthor%5D&cauthor=true&cauthor_uid=29650052 PubMed]
*[http://rsph.anu.edu.au/people/academics/associate-professor-brett-lidbury Australian National University faculty bio]

==See also==
*[[Activin B]]
*[[Australia]]
*[[Diagnostic biomarker]]

==Learn more==
*2018, [https://meaustralia.net/2018/08/06/how-much-can-people-with-me-stand/ How much can people with ME stand?]
*2016, [http://www.meaction.net/2016/04/05/meet-the-scientists-dr-brett-lidbury/ Meet the scientists - Dr Brett Lidbury]

==References==
<references>
<ref name="Reynolds, 2014">{{Citation
| last1 = Reynolds | first1 = GK | authorlink1 =
| last2 = Lewis | first2 = Donald P | authorlink2 = Donald Lewis
| last3 = Richardson | first3 = Alice M | authorlink3 =
| last4 = Lidbury | first4 = Brett A | authorlink4 = Brett Lidbury
| title = Comorbidity of postural orthostatic tachycardia syndrome and chronic fatigue syndrome in an Australian cohort.
| journal = Journal of Internal Medicine | volume = 275 | issue = 4 | page = 409-17
| date = 2014
| doi = 10.1111/joim.12161
}}
</ref>
<ref name="Lidbury, 2017">{{Citation
| last1 = Lidbury | first1 = Brett | authorlink1 = Brett Lidbury
| last2 = Badia | first2 = Kita | authorlink2 =
| last3 = Lewis | first3 = Donald | authorlink3 =
| last4 = Hayward | first4 = Susan | authorlink4 =
| last5 = Ludlow | first5 = Helen | authorlink5 =
| last6 = Hedger | first6 = Mark | authorlink6 =
| last7 = de Kretser | first7 = David | authorlink7 =
| title = Activin B is a novel biomarker for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) diagnosis: a cross sectional study
| journal = Journal of Translational Medicine | volume = | issue = | page =
| date = 2017
| pmid =
| doi = 10.1186/s12967-017-1161-4
}}
</ref>
<ref name="Richardson, 2018">{{Citation
| last1 = Richardson | first1 = Alice | authorlink1 =
| last2 = Lewis | first2 = Donald | authorlink2 = Donald Lewis
| last3 = Kita | first3 = Badia | authorlink3 =
| last4 = Ludlow | first4 = Helen | authorlink4 =
| last5 = Groome | first5 = Nigel | authorlink5 =
| last6 = Hedger | first6 = Mark | authorlink6 =
| last7 = de Kretser | first7 = David | authorlink7 =
| last8 = Lidbury | first8 = Brett | authorlink8 = Brett Lidbury
| title = Weighting of orthostatic intolerance time measurements with standing difficulty score stratifies ME/CFS symptom severity and analyte detection
| journal = Journal of Translational Medicine | volume = 16 | issue = | page = 97
| date = 2018
| pmid =
| doi = 10.1186/s12967-018-1473-z
}}
</ref>
</references>

[[Category:Researchers]]
[[Category:Australia researchers]]

Fane Mensah

2018-10-02T03:06:25Z

ME Australia:added up to date info and links to profiles

[[File:Fane Mensah.png |right|200px|Source:Twitter]]
'''Fane Mensah''' is a PhD student studying the immunology of [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] (ME/CFS) at University College London, a public research university in London, England.

==Awards==
*2016 Ramsay Award Program grant recipient, sponsored by the [[Solve ME/CFS Initiative]]. This grant, shared with [[Geraldine Cambridge]], University College London, and [[Christopher Armstrong]], University of Melbourne, will focus on the [http://solvecfs.org/metabolic-analysis-of-b-cell-maturation-in-myalgic-encephalomyelitischronic-fatigue-syndrome/ metabolic analysis of B-Cell maturation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]<ref>http://solvecfs.org/2016-ramsay-award-program-results/</ref>

==Notable studies==
*2016, Extended [[B cell]] phenotype in patients with [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]]: A cross-sectional study<ref name="Mensah, 2016" /> [https://onlinelibrary.wiley.com/doi/full/10.1111/cei.12749 (Full Text)]
*2017, Review - [[Chronic fatigue syndrome]] and the [[immune system]]: Where are we now?<ref name="Mensah, 2017" /> [https://www.ncbi.nlm.nih.gov/pubmed/28410877 (Abstract)]

==Talks & interviews==
*2017, Speaker at the 12th [[Invest in ME International ME Conference]] on "Immunoregulation in patients with ME"<ref>http://www.investinme.eu/iimec12.shtml</ref> - [http://www.investinme.eu/iimec12.shtml DVD available]
*2018, Briefed Australia's Chief Medical Officer, Prof Brendan Murphy, on international ME research.<ref>{{Cite news|url=https://meaustralia.net/2018/04/22/scientists-and-dr-tuller-brief-australias-chief-medical-officer/|title=Scientists and Dr Tuller brief Australia’s Chief Medical Officer|date=2018-04-22|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

==Online presence==
*[https://www.ncbi.nlm.nih.gov/pubmed/?term=Mensah+F%5BAuthor%5D+cfs PubMed - Fane Mensah CFS]
*[https://twitter.com/Fane_Mensah Twitter]
*[https://www.facebook.com/fane.mensah Facebook]
*[https://iris.ucl.ac.uk/iris/browse/profile?upi=FMENS39 UCL - Fane Mensah]

==Learn more==
*2018: [https://meaustralia.net/2018/05/17/meet-the-scientists-fane-mensah/ 'Meet the Scientist - Fane Mensah']
*2014: [http://www.ukrituximabtrial.org/Rituximab%20news-Jan15%2001.htm - " ME/CFS – Through The Eyes of a Young Researcher"]
*[https://medium.com/sparrho/young-researchers-present-on-the-global-stage-part-16-56d3dd5df12 Young researchers present on the global stage]

==See also==
*[[Invest in ME]]
*[[Jonathan Edwards]]
*[[Geraldine Cambridge]]
*[[Rituximab]]
*[[B cell]]
*[[Autoimmune hypothesis]]

==References==
<references>
<ref name="Mensah, 2016">{{Citation
| last1 = Mensah | first1 = Fane | authorlink1 = Fane Mensah
| last2 = Bansal | first2 = Amolak | authorlink2 = Amolak Bansal
| last3 = Berkovitz | first3 = Saul | authorlink3 =
| last4 = Sharma | first4 = Arti | authorlink4 =
| last5 = Reddy | first5 = Venkat | authorlink5 =
| last6 = Leandro | first6 = Maria | authorlink6 =
| last7 = Cambridge | first7 = Geraldine | authorlink7 = Geraldine Cambridge
| title = Extended B cell phenotype in patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A cross-sectional study
| journal = Clinical and Experimental Immunology | volume = 184 | issue = 2 | page = 237-247
| date = 2016
| pmid =
| doi = 10.1111/cei.12749
}}
</ref>
<ref name="Mensah, 2017">{{Citation
| last1 = Mensah | first1 = Fane | authorlink1 = Fane Mensah
| last2 = Bansal | first2 = Amolak | authorlink2 = Amolak Bansal
| last3 = Ford | first3 = Brian | authorlink3 =
| last4 = Cambridge | first4 = Geraldine | authorlink4 = Geraldine Cambridge
| title = Chronic fatigue syndrome and the immune system: Where are we now?
| journal = Neurophysiologie Clinique | volume = 47 | issue = 2 | page = 131-138
| date = 2017
| pmid =
| doi = 10.1016/j.neucli.2017.02.002
}}
</ref>
</references>
[[Category:Researchers]]
[[Category:UK researchers]]

Christopher Armstrong

2018-10-02T02:58:32Z

ME Australia:

[[File:Christopher Armstrong.png|200px|thumb|right|Source:SMCI]]
'''Dr Christopher William Armstrong''' is in the Department of Biochemistry and Molecular Biology and a Bio21 Molecular Science & Biotechnology Institute researcher at the University of Melbourne, Melbourne, Australia with an interest in the dysfunction of energy metabolism of people with [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] (ME/CFS).

Dr. Armstrong is a member of the Working Group which offers their expertise and resources to the [[ME/CFS Collaborative Research Center at Stanford University]].<ref>https://bos.etapestry.com/prod/viewEmailAsPage.do?erRef=773.0.423082047&databaseId=OMF&mailingId=34274682&jobRef=773.0.506425459&key=b6b9237b3ebd1e462a5d11dbc5c4dae&personaRef=773.0.423082048&memberId=1348639685</ref>

In 2018, Dr Armstrong was part of delegation briefing Australia's Chief Medical Officer, Prof Brendan Murphy, on research into ME.<ref>{{Cite news|url=https://meaustralia.net/2018/04/22/scientists-and-dr-tuller-brief-australias-chief-medical-officer/|title=Scientists and Dr Tuller brief Australia’s Chief Medical Officer|date=2018-04-22|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

==Awards==
*2016 Ramsay Award Program grant recipient, sponsored by the [[Solve ME/CFS Initiative]]. This grant, shared with [[Geraldine Cambridge]], University College London, and [[Fane Mensah]], University College London, will focus on the [http://solvecfs.org/metabolic-analysis-of-b-cell-maturation-in-myalgic-encephalomyelitischronic-fatigue-syndrome/ metabolic analysis of B-Cell maturation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]<ref>http://solvecfs.org/2016-ramsay-award-program-results/</ref>

==Books==
*2014, [http://www.academia.edu/11578244/CHAPTER_FIVE_Metabolism_in_Chronic_Fatigue_Syndrome Chapter Five in ''Advances in Clinical Chemistry, Vol. 66,'' published by Elsevier; "Metabolism in Chronic Fatigue Syndrome," by Christopher W. Armstrong,] [[Neil McGregor | Neil R. McGregor]], [[Henry Butt|Henry L. Butt]], and [[Paul Gooley |Paul R. Gooley]]<ref>Christopher W. Armstrong, Neil R. McGregor, Henry L. Butt, and Paul R. Gooley. (2014) Metabolism in Chronic Fatigue Syndrome In Gregory S. Makowski (Editor), ''Advances in Clinical Chemistry, Vol. 66'', (pp 121-172). Burlington: Academic Press, Elsevier Inc. Retrieved from http://www.academia.edu/11578244/CHAPTER_FIVE_Metabolism_in_Chronic_Fatigue_Syndrome</ref>

==Notable studies==
*2012, NMR metabolic profiling of serum identifies amino acid disturbances in [[chronic fatigue syndrome]]<ref name="Armstrong, 2012" /> [https://www.ncbi.nlm.nih.gov/pubmed/22728138 (Abstract)]
*2014, Metabolism in chronic fatigue syndrome.<ref>{{Cite journal|last=Armstrong|first=Christopher W.|author-link=Christopher Armstrong|last2=McGregor|first2=Neil R.|author-link2=Neil McGregor|last3=Butt|first3=Henry L.|author-link3=Henry Butt|last4=Gooley|first4=Paul R.|author-link4=Paul Gooley|date=2014|title=Metabolism in chronic fatigue syndrome|url=https://www.ncbi.nlm.nih.gov/pubmed/25344988|journal=Advances in Clinical Chemistry|volume=66|pages=121–172|issn=0065-2423|pmid=25344988|via=}}</ref> [[pubmed:25344988|(Abstract)]]
*2015, Metabolic profiling reveals anomalous energy metabolism and oxidative stress pathways in [[chronic fatigue syndrome]] patients<ref name="Armstrong, 2015" /> [http://link.springer.com/article/10.1007%2Fs11306-015-0816-5 (Abstract)]
*2016, Widespread pain and altered renal function in [[ME/CFS]] patients<ref name="McGregor, 2016" /> [http://www.tandfonline.com/doi/abs/10.1080/21641846.2016.1207400?journalCode=rftg20 (Abstract)]
*2017, The association of fecal microbiota and fecal, blood serum and urine metabolites in [[ME/CFS|myalgic encephalomyelitis/chronic fatigue syndrome]]<ref name="Armstrong, 2017" /> [https://www.ncbi.nlm.nih.gov/pubmed/22728138 (Abstract)]

==Talks and interviews==
*15-16 June 2016, [https://www.omicsonline.org/abstract/the-impact-of-the-gut-microbiome-on-host-fatigue-in-me-cfs-patients/ Speaker at the International Conference on Fibromyalgia and Chronic Pain. Speech title: "The impact of the gut microbiome on host fatigue in ME/CFS patients"]
*20 Oct 2016, [https://www.youtube.com/watch?v=mlhz7GRAqsg][[Solve ME/CFS Initiative]] Webinar with Christopher Armstrong, on recent metabolomics studies
*23 Nov 2016, [https://soundcloud.com/user-92250603/out-of-the-fog-comes-progress-on-chronic-fatigue-23-november-2016?utm_source=soundcloud&utm_campaign=share&utm_medium=email ''Inside Story Podcast'' - "In Melbourne, progress on Chronic Fatigue Syndrome"]
*12 Aug 2017, [[Community Symposium on the Molecular Basis of ME/CFS - 2017]]: [https://www.youtube.com/watch?v=aRl5XnDagZU&index=4&list=PLl4AfLZNZEQOQG8vr4Rn_YY1E1cbFIu45&t=238s Speech title - ''ME, metabolism and I''] ([https://www.youtube.com/watch?v=2BeCjggssc4 in English with Spanish subtitles])

==Online presence==
*[https://scholar.google.com.au/citations?user=W_NY0IcAAAAJ&hl=en Scholar Google]
*[https://www.researchgate.net/search/publications?q=Christopher%2BAmstrong ResearchGate]

==Learn more==
*3 Feb 2017, [http://www.huffingtonpost.com.au/2017/02/02/how-gut-bacteria-is-helping-to-unpack-chronic-fatigue-syndrome/ "How Gut Bacteria Is Helping To Unpack Chronic Fatigue Syndrome: Can improving a person's gut health help?" by Emma Brancatisano in ''The Huffington Post'']
*[http://www.bio21.unimelb.edu.au/gutted-bad-gut-bugs Bio21 Molecular Science & Biotechnology Institute webpage on Armstrong's work - "Gutted by bad gut bugs" by Florienne Loder]
*2016: [https://meaustralia.net/2016/07/06/australian-metabolomics-study-of-young-women/ Australian metabolomics study of women with ME/CFS (CCC)]

==See also==
*[[Diagnostic biomarker]]
*[[Donald Staines]]
*[[Henry Butt]]
*[[Neil McGregor]]
*[[Paul Gooley]]

==References==
<references>
<ref name="Armstrong, 2012">{{Citation
| last1 = Armstrong | first1 = Christopher W. | authorlink1= Christopher Armstrong
| last2 = McGregor | first2 = Neil R. | authorlink2 = Neil McGregor
| last3 = Sheedy | first3 = John R. | authorlink3 =
| last4 = Buttfield | first4 = Ian | authorlink4 =
| last5 = Butt | first5 = Henry L. | authorlink5 = Henry Butt
| last6 = Gooley | first6 = Paul R. | authorlink6 = Paul Gooley
| title = NMR metabolic profiling of serum identifies amino acid disturbances in chronic fatigue syndrome
| journal = Clinica Chimica Acta | volume = 413 | issue = 19–20 | page = 1525–1531
| date = 2012
| doi = 10.1016/j.cca.2012.06.022
}}
</ref>
<ref name="Armstrong, 2015">{{Citation
| last1 = Armstrong | first1 = Christopher W. | authorlink1 = Christopher Armstrong
| last2 = McGregor | first2 = Neil R. | authorlink2 = Neil McGregor
| last3 = Lewis | first3 = Donald P. | authorlink3 = Donald Lewis
| last4 = Butt | first4 = Henry L. | authorlink4 = Henry Butt
| last5 = Gooley | first5 = Paul R. | authorlink5 = Paul Gooley
| title = Metabolic profiling reveals anomalous energy metabolism and oxidative stress pathways in chronic fatigue syndrome patients
| journal = Metabolomics | volume = 11 | issue = 6 | page = 1626–1639
| date = 2015
| doi = 10.1007/s11306-015-0816-5
}}
</ref>
<ref name="Armstrong, 2017">{{Citation
| last1 = Armstrong | first1 = Christopher W. | authorlink1 = Christopher Armstrong
| last2 = McGregor | first2 = Neil R. | authorlink2 = Neil McGregor
| last3 = Lewis | first3 = Donald P. | authorlink3 = Donald Lewis
| last4 = Butt | first4 = Henry L. | authorlink4 = Henry Butt
| last5 = Gooley | first5 = Paul R. | authorlink5 = Paul Gooley
| title = The association of fecal microbiota and fecal, blood serum and urine metabolites in myalgic encephalomyelitis/chronic fatigue syndrome
| journal = Metabolomics | volume = 13 | issue = 1 | page =
| date = 2017
| doi = 10.1007/s11306-016-1145-z
}}
</ref>
<ref name="McGregor, 2016">{{Citation
| last1 = McGregor | first1 = Neil R. | authorlink1 = Neil McGregor
| last2 = Armstrong | first2 = Christopher W. | authorlink2 = Christopher Armstrong
| last3 = Lewis | first3 = Donald P. | authorlink3 = Donald Lewis
| last4 = Butt | first4 = Henry L. | authorlink4 = Henry Butt
| last5 = Gooley | first5 = Paul R. | authorlink5 = Paul Gooley
| title = Widespread pain and altered renal function in ME/CFS patients
| journal = Fatigue: Biomedicine, Health & Behavior | volume = 4 | issue = 3 | page = 132-145
| date = 2016
| doi = 10.1080/21641846.2016.1207400
}}
</ref>
</references>

[[Category:Researchers]]
[[Category:Australia researchers]]

Australia

2018-10-02T02:43:53Z

ME Australia:

[[File:Australia_flag.svg.png|320px|right|thumb|'''Australia''']]

There are an estimated 92,000 to 598,000 people in Australia with chronic fatigue syndrome, ME or CFS/ME or ME/CFS (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria" /> depending on which definition of the condition is used). Using the International Consensus Criteria (0.4-1%), there are between 94,000 and 242,000 Australians with ME.

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis.

Australian patients use the terms [[Chronic Fatigue Syndrome]], [[ME/CFS]], CFS/ME, [[Myalgic Encephalomyelitis]] or immune dysfunction illness.

==Medical guidelines==

The NHMRC website lists resources for clinicians, including recommendations for exercise, cognitive behavioural therapy and antidepressants.<ref>{{Cite news|url=https://meaustralia.net/2018/09/26/australian-government-committee-on-me-and-chronic-fatigue-syndrome/|title=Australian committee on ME and chronic fatigue syndrome nearly finished report|date=2018-09-26|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

The 2002 Australian guidelines are used by National Health and Medical Research Council (NHRMC) fellowship recipient Prof Andrew Lloyd, who sits on the review committees for NHMRC grant applications.<ref name="#MEACTION20160120ahd" />

A government-appointed advisory committee is in the process of recommending whether new clinical guidelines should be developed to replace the outdated Australian guidelines.<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

Some patients are lobbying for the [[International Consensus Criteria]] to be adopted<ref>{{Cite news|url=https://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/|title=Australia: Ask the medical research council to fund studies - #MEAction|date=2016-03-14|work=#MEAction|access-date=2018-10-02|language=en-US}}</ref>. Some suggested letter templates have been offered for use [http://www.meaction.net/2016/03/10/australia-write-your-own-letter-to-a-politician/ here] and [http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/ here].

===Patient groups===

The [[International Consensus Criteria | International Consensus Primer]] is listed by all organisations, except Western Australia's ME/CFS/Lyme Association, which lists the [[Canadian Consensus Criteria]].

One of the NSW websites lists the [[International Consensus Criteria | International Consensus Primer]], [[ME/CFS: A Primer For Clinical Practitioners | IACFS/ME Clinical]], the [http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01 2006 Paediatric Criteria]<ref name="JasonL2006paed" />, and the [[South Australian ME/CFS Guidelines]]<ref name="SthAustGuidelines" /> but is not clear on which one it endorses.

Some state organisations, [[NCNED]] and some patients are lobbying<ref name="#MEACTION20160314amrc" /> for the 2002 RACP Australian guidelines<ref name="RACP2002" /> to be replaced with the [[International Consensus Criteria]].

===Australian medical associations===
*The Royal Australasian College of Physicians (RACP) published guidelines in 2002, in the Australian Medical Journal.<ref name="RACP2002" />
*The Royal Australasian College of General Practitioners (RACGP) published a guideline in 2015 which recommends [[Graded Exercise Therapy]].<ref name="RACGP2015guide" /> Their magazine Australian Family Practitioner (AFP) has published articles about [[ME/CFS]],<ref name="AFPlist" /> including a 2013 article that recommends [[Graded exercise therapy]] and [[Cognitive behavioral therapy]].<ref name="AFP201304" />
*The Australian Medical Association (AMA) website recommends [[Graded Exercise Therapy]].<ref name="AMA20040503" />

===National health department===
* [http://health.gov.au Department of Health]
* [http://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs Direct information page on CFS from Department of Health]

===National Health and Medical Research Council===
The [http://nhmrc.gov.au NHMRC] funds health and medical research, and develops health advice & guidelines. It is part of the Australian Department of Health.

===State and territory health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] - information for the public
* ACT
* NSW
* South Australia
* Northern Territory
* Queensland
* Tasmania
* Western Australia

==Health insurance==

===Government health insurance===
The Australian government subsidises most medical appointments, some hospital services, and some medications.
*[https://www.humanservices.gov.au/customer/dhs/medicare Medicare]
*[https://www.humanservices.gov.au/customer/services/medicare/medicare-safety-net Medicare Safety Net]
*[http://www.pbs.gov.au/info/about-the-pbs Pharmaceutical Benefits Scheme]

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
((How many hospitals & doctors, which diagnose and treat ME (estimate):))
((Rehabilitation offers for ME sufferers: ))

==Patient groups==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[[Change for ME Australia]], an online collective
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]
*Hummingbirds' Foundation for [https://www.hfme.org/ ME]

==Research==

===Notable studies===
*[https://www.dovepress.com/articles.php?article_id=26236 Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome (2016)]
*2016, [https://link.springer.com/chapter/10.1007/978-3-319-32240-7_11 Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy]

===Research results===
*2016: [http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/ Australian Breakthrough on Diagnostic Blood Test]<ref name="#MEACTION20160303test" />
*2015: [http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/ Australian Research into ME/CFS in Adolescents]<ref name="#MEACTION20150819arma" />

===Research funding===
*2016: [http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Dept Pins its Hopes on NIH Research]<ref name="#MEACTION20160212ahd" />
*2016: [http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/ The Australian Health Department Answers Questions on ME]<ref name="#MEACTION20160120ahd" />
*2015: [http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/ Australian Senator Questions Government on Lack of Action on ME]<ref name="#MEACTION20151116asqg" />

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[https://www.vu.edu.au/ Victoria University]
*[http://www.bio21.unimelb.edu.au/ Bio21 Institute, Melbourne University]

===Researchers===
*[[Christopher Armstrong]]
*[[Dorothy Bruck]]
*[[Henry Butt]]
*[[Elaine DeFreitas]]
*[[Paul R Gooley|Paul Gooley]]
*[[Melinda Jackson]]
*[[Donald Lewis]]
*[[Brett Lidbury]]
*[[Andrew Lloyd]]
*[[Neil McGregor]]
*[[Michael Maes]]
*[[Sarah Knight]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
*[[Amy Wallis]]

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW), [[Mark Donohoe]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*[https://meaustralia.net/2016/12/01/remembering-alison-hunter-1976-1996/ Alison Hunter], died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name in 1998, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), in 2014, and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite" />
*[[Jodi Bassett]]
*[[Laura Dundovic]]
*[[Leigh Hatcher]]
*[[Linley Frame]]
*[[Johanna Griggs]]
*[[Alastair Lynch]]
*[[James McDonald]]
*[[Alem Matthees]]
*[[Nadine Neumann ]]
*[[Matthew Nicholson]]
*[[Rhyce Shaw]]
*[[Shelley Taylor-Smith]]

==Learn more==
*2016, [https://www.thesaturdaypaper.com.au/2016/08/06/rethinking-chronic-fatigue-syndrome/14704056003560 Rethinking chronic fatigue syndrome]
*2018, [https://www.theguardian.com/commentisfree/2018/may/12/to-the-millionsmissing-with-mecfs-something-remarkable-is-happening To the #MillionsMissing, something remarkable is happening]
*[https://meaustralia.net/ MEAustralia.net]

==See also==
*[[1949-53 Adelaide outbreak]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>
<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = Bruce Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = Marjorie van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny de Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy Klimas
| last5 = Broderick | first5 = G | authorlink5 = Gordon Broderick
| last6 = Mitchell | first6 = T | authorlink6 = Terry Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C Peter Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= Barbara Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David Bell
| last14 = Carlo-Stella | first14= N | authorlink14= Nicoletta Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= Austin Darragh
| last17 = Jo | first17= D | authorlink17= Daehyun Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= Ismael Mena
| last22 = Mikovits | first22= J A | authorlink22= Judy Mikovits
| last23 = Miwa | first23= K | authorlink23= Kunihisa Miwa
| last24 = Murovska | first24= M | authorlink24= Modra Murovska
| last25 = Pall | first25= M L | authorlink25= Martin Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci Stevens
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = 270 | issue = 4 | page = 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>
<ref name="JasonL2006paed">{{citation
| last1 = Jason | first1 = Leonard A | authorlink1 = Leonard Jason
| last2 = Jordan | first2 = Karen | authorlink2 = Karen Jordan
| last3 = Miike | first3 = Teruhisa | authorlink3 = Teruhisa Miike
| last4 = Bell | first4 = David S | authorlink4 = David Bell
| last5 = Lapp | first5 = Charles | authorlink5 = Charles Lapp
| last6 = Torres-Harding | first6 = Susan | authorlink6 = Susan Torres-Harding
| last7 = Rowe | first7 = Kathy | authorlink7 = Katherine Rowe
| last8 = Gurwitt | first8 = Alan | authorlink8 = Alan Gurwitt
| last9 = De Meirleir | first9 = Kenny | authorlink9 = Kenny de Meirleir
| last10 = Van Hoof | first10= Elke LS | authorlink10= Elke Van Hoof
| title = A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
| journal = Journal of Chronic Fatigue Syndrome | volume = 13 | issue = 2-3 | page = 1-44
| date = 2006
| doi = 10.1300/J092v13n02_01
| url = http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01
}}</ref>
<ref name="#MEACTION20150819arma">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Research into ME/CFS in Adolescents
| journal = #MEAction
| date = 19 Aug 2015
| url = http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
}}</ref>
<ref name="#MEACTION20151116asqg">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Senator Questions Government on Lack of Action on ME
| journal = #MEAction
| date = 16 Nov 2015
| url = http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
}}</ref>
<ref name="#MEACTION20160120ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Answers Questions on ME
| journal = #MEAction
| date = 20 Jan 2016
| url = http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
}}</ref>
<ref name="#MEACTION20160212ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Pins its Hopes on NIH Research
| journal = #MEAction
| date = 12 Feb 2016
| url = http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/
}}</ref>
<ref name="#MEACTION20160303test">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Breakthrough on Diagnostic Blood Test
| journal = #MEAction
| date = 3 Mar 2016
| url = http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
}}</ref>
<ref name="#MEACTION20160314amrc">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australians: Ask the Medical Research Council to Fund Studies
| journal = #MEAction
| date = 14 Mar 2016
| url = http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/
}}</ref>
<ref name="SthAustGuidelines">{{citation
| last1 = South Australian Department of Human Services
| last2 = University of Adelaide
| last3 = ME/CFS Society of South Australia
| title = ME/CFS Guidelines: Management Guidelines for General Practitioners
| date = 2004
| ISBN = 0 7308 9334 0
| url = http://sacfs.asn.au/download/guidelines.pdf
}}</ref>
<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>
<ref name="RACP2002">{{citation
| author1 = Victoria Toulkidis
| author2 = Produced by a Working Group convened under the auspices of the Royal Australasian College of Physicians
| display-authors = 1
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>
<ref name="RACGP2015guide">{{citation
| author = Royal Australasian College of General Practitioners (RACGP)
| title = Graded exercise therapy: chronic fatigue syndrome
| date = Mar 2015
| url = http://www.racgp.org.au/your-practice/guidelines/handi/interventions/other/graded-exercise-therapy-for-chronic-fatigue-syndrome/
}}</ref>
<ref name="AFPlist">{{citation
| journal = Australian Family Physician
| title = articles about Chronic Fatigue Syndrome
| url = http://www.racgp.org.au/search/
}}</ref>
<ref name="AFP201304">{{citation
| author = Megan Arroll, Bruce Arroll
| title = Chronic fatigue syndrome: A patient centred approach to management
| journal = Australian Family Practitioner
| date = Apr 2013
| url = http://www.racgp.org.au/afp/2013/april/chronic-fatigue-syndrome/
}}</ref>
<ref name="AMA20040503">{{citation
| author = Australian Medical Association
| title = Chronic fatigue sufferers beat blues with exercise
| date = 3 May 2004
| url = https://ama.com.au/media/chronic-fatigue-sufferers-beat-blues-exercise
}}</ref>
</references>

[[Category:Countries]]
[[Category:Oceania]]
[[Category:Australia]]

Scott Ludlam

2018-10-02T02:19:50Z

ME Australia:/* Learn more */

[[File:Scott Ludlam.png|right|Source: itnews.com.au ]]
'''Scott Ludlam''' was a Senator of [https://en.wikipedia.org/wiki/Australian_Greens Australian Greens] political party.

== Senate hearings ==
At the [https://en.wikipedia.org/wiki/Australian_Senate_committees Australian Senate Community Affairs Legislation Committee] hearings, Senator Ludlam's direction asked questions about the little funds and poor medical health support for Australia's myalgic encephalomyelitis patients and GPs trying to treat them. He mentioned the good job [[Emerge Australia]] does on little funds. A 9 minute video of theone of the hearings was uploaded on February 10th, 2016 (FB time stamp 5:51PM) .<ref>[https://www.facebook.com/SenatorLudlam/videos/10153980238139470/ The Senate Community Affairs Legislation Committee - Senator Scott Ludlam FB Page - Video Feb. 10, 2016 5:51PM]</ref>

In 2015 Ludlam told the hearing “I am struggling to think of a cohort of people in our community that large for whom there is so little”. [https://meaustralia.net/2016/03/03/aust-senator-questions-government-on-lack-of-action-on-me/ 'Australian senator questions government on lack of action on ME]'.

In 2016 Ludlam asked the NHMRC “outside NHMRC grants, is there any Commonwealth support for people with this condition that you are aware of?" [https://meaustralia.net/2016/03/03/australian-health-dept-answers-questions-on-me/ Australian Health Department answers questions on ME].

Later in 2016, he asked the NHRMC "about two-thirds of the funding appears to be going to into research that, however worthy, actually has nothing at all to do with ME/CFS.Can you correct either the record or point out how this research is directly relevant to the questions that I asked?” [https://meaustralia.net/2016/03/03/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Department pins its hopes on overseas research instead of funding our own].

Read Sasha Nimmo's article for more http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/

== Interviews and opinion pieces ==
On May 12 2018, Scott Ludlam wrote [https://www.theguardian.com/commentisfree/2018/may/12/to-the-millionsmissing-with-mecfs-something-remarkable-is-happening To the #MillionsMissingwith ME/CFS, something remarkable is happening] in The Guardian Australia.

[https://radio.adelaide.edu.au/program/the-wire/ The Wire Radio] interview included Senator Ludlam at 2:56 speaking on research which was "counterproductive and actually dangerous" in reference to exercise ([[GET]]) and [[Cognitive behavioral therapy]]. At 4:54 he speaks of the need for the Commonwealth to swing behind [https://en.wikipedia.org/wiki/Griffith_University Griffiths University] in Queensland.<ref>[http://www.thewire.org.au/audio/CFS%20FINAL%20WEB%20230216.mp3 Senator Ludlam speaks at 2:56 and 4:54 The Wire Radio]</ref>

A ''Junkee.com'' piece written by Naomi Chainey used his quote for the title '"Getting By With “Bugger All”: The Invisible Suffering Of Australians With Chronic Fatigue Syndrome"'.<ref>[http://junkee.com/the-invisible-suffering-of-australians-living-with-chronic-fatigue-syndrome/73998 "Getting By With “Bugger All”: The Invisible Suffering Of Australians With Chronic Fatigue Syndrome" Junkee.com - By: Naomi Chainey]</ref> Senator Ludlam posted the article on his FB page and as of February 28th, 9:13 AM EST there were 1.2K Likes and 425 shares as well as a long thread of discussion and much appreciation for his efforts.<ref>[https://www.facebook.com/SenatorLudlam/posts/10154017808144470?comment_id=10154021072774470&notif_t=like Scott Ludlam Face Book Page - "Getting By With “Bugger All”: The Invisible Suffering Of Australians With Chronic Fatigue Syndrome"]</ref>

== Online presence ==
*[https://www.facebook.com/SenatorLudlam/?fref=photo Facebook]
*[https://twitter.com/senatorludlam Twitter]
*[https://www.youtube.com/results?search_query=senator+scott+ludlam+playlist YouTube]
*[http://scott-ludlam.greensmps.org.au/contact Website]
*[http://fieldnotes.org.au/ Field Notes Blog]
*[https://nl.linkedin.com/in/scott-ludlam-5143796b LinkedIn]

==Learn more==
*[https://en.wikipedia.org/wiki/Scott_Ludlam Wikipedia - Scott Ludlam]

==See also==

== References ==
<references />
[[Category:Advocates or allies]]
[[Category:Australian advocates or allies]]

[[Category:Politicians]]
[[Category:Australia politicians]]
[[Category:Australia Senators]]

Australia

2018-10-02T01:53:33Z

ME Australia:/* Patient groups */

[[File:Australia_flag.svg.png|320px|right|thumb|'''Australia''']]

There are an estimated 92,000 to 598,000 people in Australia with chronic fatigue syndrome, ME or CFS/ME or ME/CFS (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria" /> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis.

Australian patients use the terms [[Chronic Fatigue Syndrome]], [[ME/CFS]], CFS/ME, [[Myalgic Encephalomyelitis]] or immune dysfunction illness.

==Medical guidelines==

The NHMRC website lists resources for clinicians, including recommendations for exercise, cognitive behavioural therapy and antidepressants.<ref>{{Cite news|url=https://meaustralia.net/2018/09/26/australian-government-committee-on-me-and-chronic-fatigue-syndrome/|title=Australian committee on ME and chronic fatigue syndrome nearly finished report|date=2018-09-26|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

The 2002 Australian guidelines are used by National Health and Medical Research Council (NHRMC) fellowship recipient Prof Andrew Lloyd, who sits on the review committees for NHMRC grant applications.<ref name="#MEACTION20160120ahd" />

A government-appointed advisory committee is in the process of recommending whether new clinical guidelines should be developed to replace the outdated Australian guidelines.<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

Some patients are lobbying for the [[International Consensus Criteria]] to be adopted<ref>{{Cite news|url=https://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/|title=Australia: Ask the medical research council to fund studies - #MEAction|date=2016-03-14|work=#MEAction|access-date=2018-10-02|language=en-US}}</ref>. Some suggested letter templates have been offered for use [http://www.meaction.net/2016/03/10/australia-write-your-own-letter-to-a-politician/ here] and [http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/ here].

===Patient groups===

The [[International Consensus Criteria | International Consensus Primer]] is listed by all organisations, except Western Australia's ME/CFS/Lyme Association, which lists the [[Canadian Consensus Criteria]].

One of the NSW websites lists the [[International Consensus Criteria | International Consensus Primer]], [[ME/CFS: A Primer For Clinical Practitioners | IACFS/ME Clinical]], the [http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01 2006 Paediatric Criteria]<ref name="JasonL2006paed" />, and the [[South Australian ME/CFS Guidelines]]<ref name="SthAustGuidelines" /> but is not clear on which one it endorses.

Some state organisations, [[NCNED]] and some patients are lobbying<ref name="#MEACTION20160314amrc" /> for the 2002 RACP Australian guidelines<ref name="RACP2002" /> to be replaced with the [[International Consensus Criteria]].

===Australian medical associations===
*The Royal Australasian College of Physicians (RACP) published guidelines in 2002, in the Australian Medical Journal.<ref name="RACP2002" />
*The Royal Australasian College of General Practitioners (RACGP) published a guideline in 2015 which recommends [[Graded Exercise Therapy]].<ref name="RACGP2015guide" /> Their magazine Australian Family Practitioner (AFP) has published articles about [[ME/CFS]],<ref name="AFPlist" /> including a 2013 article that recommends [[Graded exercise therapy]] and [[Cognitive behavioral therapy]].<ref name="AFP201304" />
*The Australian Medical Association (AMA) website recommends [[Graded Exercise Therapy]].<ref name="AMA20040503" />

===National health department===
* [http://health.gov.au Department of Health]
* [http://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs Direct information page on CFS from Department of Health]

===National Health and Medical Research Council===
The [http://nhmrc.gov.au NHMRC] funds health and medical research, and develops health advice & guidelines. It is part of the Australian Department of Health.

===State and territory health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] - information for the public
* ACT
* NSW
* South Australia
* Northern Territory
* Queensland
* Tasmania
* Western Australia

==Health insurance==

===Government health insurance===
The Australian government subsidises most medical appointments, some hospital services, and some medications.
*[https://www.humanservices.gov.au/customer/dhs/medicare Medicare]
*[https://www.humanservices.gov.au/customer/services/medicare/medicare-safety-net Medicare Safety Net]
*[http://www.pbs.gov.au/info/about-the-pbs Pharmaceutical Benefits Scheme]

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
((How many hospitals & doctors, which diagnose and treat ME (estimate):))
((Rehabilitation offers for ME sufferers: ))

==Patient groups==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[[Change for ME Australia]], an online collective
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]
*Hummingbirds' Foundation for [https://www.hfme.org/ ME]

==Research==

===Notable studies===
*[https://www.dovepress.com/articles.php?article_id=26236 Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome (2016)]
*2016, [https://link.springer.com/chapter/10.1007/978-3-319-32240-7_11 Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy]

===Research results===
*2016: [http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/ Australian Breakthrough on Diagnostic Blood Test]<ref name="#MEACTION20160303test" />
*2015: [http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/ Australian Research into ME/CFS in Adolescents]<ref name="#MEACTION20150819arma" />

===Research funding===
*2016: [http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Dept Pins its Hopes on NIH Research]<ref name="#MEACTION20160212ahd" />
*2016: [http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/ The Australian Health Department Answers Questions on ME]<ref name="#MEACTION20160120ahd" />
*2015: [http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/ Australian Senator Questions Government on Lack of Action on ME]<ref name="#MEACTION20151116asqg" />

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[https://www.vu.edu.au/ Victoria University]
*[http://www.bio21.unimelb.edu.au/ Bio21 Institute, Melbourne University]

===Researchers===
*[[Christopher Armstrong]]
*[[Dorothy Bruck]]
*[[Henry Butt]]
*[[Elaine DeFreitas]]
*[[Paul R Gooley|Paul Gooley]]
*[[Melinda Jackson]]
*[[Donald Lewis]]
*[[Brett Lidbury]]
*[[Andrew Lloyd]]
*[[Neil McGregor]]
*[[Michael Maes]]
*[[Sarah Knight]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
*[[Amy Wallis]]

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW), [[Mark Donohoe]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*[https://meaustralia.net/2016/12/01/remembering-alison-hunter-1976-1996/ Alison Hunter], died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name in 1998, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), in 2014, and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite" />
*[[Jodi Bassett]]
*[[Laura Dundovic]]
*[[Leigh Hatcher]]
*[[Linley Frame]]
*[[Johanna Griggs]]
*[[Alastair Lynch]]
*[[James McDonald]]
*[[Alem Matthees]]
*[[Nadine Neumann ]]
*[[Matthew Nicholson]]
*[[Rhyce Shaw]]
*[[Shelley Taylor-Smith]]

==Learn more==
*2016, [https://www.thesaturdaypaper.com.au/2016/08/06/rethinking-chronic-fatigue-syndrome/14704056003560 Rethinking chronic fatigue syndrome]

==See also==
*[[1949-53 Adelaide outbreak]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>
<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = Bruce Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = Marjorie van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny de Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy Klimas
| last5 = Broderick | first5 = G | authorlink5 = Gordon Broderick
| last6 = Mitchell | first6 = T | authorlink6 = Terry Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C Peter Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= Barbara Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David Bell
| last14 = Carlo-Stella | first14= N | authorlink14= Nicoletta Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= Austin Darragh
| last17 = Jo | first17= D | authorlink17= Daehyun Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= Ismael Mena
| last22 = Mikovits | first22= J A | authorlink22= Judy Mikovits
| last23 = Miwa | first23= K | authorlink23= Kunihisa Miwa
| last24 = Murovska | first24= M | authorlink24= Modra Murovska
| last25 = Pall | first25= M L | authorlink25= Martin Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci Stevens
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = 270 | issue = 4 | page = 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>
<ref name="JasonL2006paed">{{citation
| last1 = Jason | first1 = Leonard A | authorlink1 = Leonard Jason
| last2 = Jordan | first2 = Karen | authorlink2 = Karen Jordan
| last3 = Miike | first3 = Teruhisa | authorlink3 = Teruhisa Miike
| last4 = Bell | first4 = David S | authorlink4 = David Bell
| last5 = Lapp | first5 = Charles | authorlink5 = Charles Lapp
| last6 = Torres-Harding | first6 = Susan | authorlink6 = Susan Torres-Harding
| last7 = Rowe | first7 = Kathy | authorlink7 = Katherine Rowe
| last8 = Gurwitt | first8 = Alan | authorlink8 = Alan Gurwitt
| last9 = De Meirleir | first9 = Kenny | authorlink9 = Kenny de Meirleir
| last10 = Van Hoof | first10= Elke LS | authorlink10= Elke Van Hoof
| title = A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
| journal = Journal of Chronic Fatigue Syndrome | volume = 13 | issue = 2-3 | page = 1-44
| date = 2006
| doi = 10.1300/J092v13n02_01
| url = http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01
}}</ref>
<ref name="#MEACTION20150819arma">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Research into ME/CFS in Adolescents
| journal = #MEAction
| date = 19 Aug 2015
| url = http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
}}</ref>
<ref name="#MEACTION20151116asqg">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Senator Questions Government on Lack of Action on ME
| journal = #MEAction
| date = 16 Nov 2015
| url = http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
}}</ref>
<ref name="#MEACTION20160120ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Answers Questions on ME
| journal = #MEAction
| date = 20 Jan 2016
| url = http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
}}</ref>
<ref name="#MEACTION20160212ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Pins its Hopes on NIH Research
| journal = #MEAction
| date = 12 Feb 2016
| url = http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/
}}</ref>
<ref name="#MEACTION20160303test">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Breakthrough on Diagnostic Blood Test
| journal = #MEAction
| date = 3 Mar 2016
| url = http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
}}</ref>
<ref name="#MEACTION20160314amrc">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australians: Ask the Medical Research Council to Fund Studies
| journal = #MEAction
| date = 14 Mar 2016
| url = http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/
}}</ref>
<ref name="SthAustGuidelines">{{citation
| last1 = South Australian Department of Human Services
| last2 = University of Adelaide
| last3 = ME/CFS Society of South Australia
| title = ME/CFS Guidelines: Management Guidelines for General Practitioners
| date = 2004
| ISBN = 0 7308 9334 0
| url = http://sacfs.asn.au/download/guidelines.pdf
}}</ref>
<ref name="AHMFwebsite">{{citation
| title = Alison Hunter Memorial Foundation (website)
| url = http://www.ahmf.org
}}</ref>
<ref name="RACP2002">{{citation
| author1 = Victoria Toulkidis
| author2 = Produced by a Working Group convened under the auspices of the Royal Australasian College of Physicians
| display-authors = 1
| title = Supplement: Chronic fatigue syndrome
| journal = Med J Aust 2002 | volume = 176 | issue = 9 | page = 17-55
| date = 2002
| url = https://www.mja.com.au/journal/2002/176/9/chronic-fatigue-syndrome
}}</ref>
<ref name="RACGP2015guide">{{citation
| author = Royal Australasian College of General Practitioners (RACGP)
| title = Graded exercise therapy: chronic fatigue syndrome
| date = Mar 2015
| url = http://www.racgp.org.au/your-practice/guidelines/handi/interventions/other/graded-exercise-therapy-for-chronic-fatigue-syndrome/
}}</ref>
<ref name="AFPlist">{{citation
| journal = Australian Family Physician
| title = articles about Chronic Fatigue Syndrome
| url = http://www.racgp.org.au/search/
}}</ref>
<ref name="AFP201304">{{citation
| author = Megan Arroll, Bruce Arroll
| title = Chronic fatigue syndrome: A patient centred approach to management
| journal = Australian Family Practitioner
| date = Apr 2013
| url = http://www.racgp.org.au/afp/2013/april/chronic-fatigue-syndrome/
}}</ref>
<ref name="AMA20040503">{{citation
| author = Australian Medical Association
| title = Chronic fatigue sufferers beat blues with exercise
| date = 3 May 2004
| url = https://ama.com.au/media/chronic-fatigue-sufferers-beat-blues-exercise
}}</ref>
</references>

[[Category:Countries]]
[[Category:Oceania]]
[[Category:Australia]]

Australia

2018-10-02T01:37:42Z

ME Australia:/* Medical guidelines */

[[File:Australia_flag.svg.png|320px|right|thumb|'''Australia''']]

There are an estimated 92,000 to 598,000 people in Australia with chronic fatigue syndrome, ME or CFS/ME or ME/CFS (based on prevalence ranges of 0.4-2.4%,<ref name="ICC2011criteria" /> depending on which definition of the condition is used).

In Australia, most doctors use the name [[Chronic Fatigue Syndrome]] for diagnosis.

Australian patients use the terms [[Chronic Fatigue Syndrome]], [[ME/CFS]], CFS/ME, [[Myalgic Encephalomyelitis]] or immune dysfunction illness.

==Medical guidelines==

The NHMRC website lists resources for clinicians, including recommendations for exercise, cognitive behavioural therapy and antidepressants.<ref>{{Cite news|url=https://meaustralia.net/2018/09/26/australian-government-committee-on-me-and-chronic-fatigue-syndrome/|title=Australian committee on ME and chronic fatigue syndrome nearly finished report|date=2018-09-26|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

The 2002 Australian guidelines are used by National Health and Medical Research Council (NHRMC) fellowship recipient Prof Andrew Lloyd, who sits on the review committees for NHMRC grant applications.<ref name="#MEACTION20160120ahd" />

A government-appointed advisory committee is in the process of recommending whether new clinical guidelines should be developed to replace the outdated Australian guidelines.<ref>{{Cite news|url=https://meaustralia.net/2018/04/23/australian-governments-me-and-cfs-advisory-committee/|title=Australian government’s ME and CFS advisory committee|date=2018-04-23|work=ME Australia|access-date=2018-10-02|language=en-US}}</ref>

Some patients are lobbying for the [[International Consensus Criteria]] to be adopted<ref>{{Cite news|url=https://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/|title=Australia: Ask the medical research council to fund studies - #MEAction|date=2016-03-14|work=#MEAction|access-date=2018-10-02|language=en-US}}</ref>. Some suggested letter templates have been offered for use [http://www.meaction.net/2016/03/10/australia-write-your-own-letter-to-a-politician/ here] and [http://www.meaction.net/2016/03/14/aust-ask-the-medical-research-council-to-fund-studies/ here].

===Patient groups===

The [[International Consensus Criteria | International Consensus Primer]] is listed by all organisations, except Western Australia's ME/CFS/Lyme Association, which lists the [[Canadian Consensus Criteria]].

One of the NSW websites lists the [[International Consensus Criteria | International Consensus Primer]], [[ME/CFS: A Primer For Clinical Practitioners | IACFS/ME Clinical]], the [http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01 2006 Paediatric Criteria]<ref name="JasonL2006paed" />, and the [[South Australian ME/CFS Guidelines]]<ref name="SthAustGuidelines" /> but is not clear on which one it endorses.

Some state organisations, [[NCNED]] and some patients are lobbying<ref name="#MEACTION20160314amrc" /> for the 2002 RACP Australian guidelines<ref name="RACP2002" /> to be replaced with the [[International Consensus Criteria]].

===Australian medical associations===
*The Royal Australasian College of Physicians (RACP) published guidelines in 2002, in the Australian Medical Journal.<ref name="RACP2002" />
*The Royal Australasian College of General Practitioners (RACGP) published a guideline in 2015 which recommends [[Graded Exercise Therapy]].<ref name="RACGP2015guide" /> Their magazine Australian Family Practitioner (AFP) has published articles about [[ME/CFS]],<ref name="AFPlist" /> including a 2013 article that recommends [[Graded exercise therapy]] and [[Cognitive behavioral therapy]].<ref name="AFP201304" />
*The Australian Medical Association (AMA) website recommends [[Graded Exercise Therapy]].<ref name="AMA20040503" />

===National health department===
* [http://health.gov.au Department of Health]
* [http://www.healthdirect.gov.au/chronic-fatigue-syndrome-cfs Direct information page on CFS from Department of Health]

===National Health and Medical Research Council===
The [http://nhmrc.gov.au NHMRC] funds health and medical research, and develops health advice & guidelines. It is part of the Australian Department of Health.

===State and territory health departments===
* Victoria - [https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/chronic-fatigue-syndrome-cfs Better Health - Chronic Fatigue Syndrome] - information for the public
* ACT
* NSW
* South Australia
* Northern Territory
* Queensland
* Tasmania
* Western Australia

==Health insurance==

===Government health insurance===
The Australian government subsidises most medical appointments, some hospital services, and some medications.
*[https://www.humanservices.gov.au/customer/dhs/medicare Medicare]
*[https://www.humanservices.gov.au/customer/services/medicare/medicare-safety-net Medicare Safety Net]
*[http://www.pbs.gov.au/info/about-the-pbs Pharmaceutical Benefits Scheme]

===Private health insurance===

==Social security and disability benefits==
*A [https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension Disability Support Pension] is available through Centrelink for people meeting strict criteria of dysfunction.

==Access to care==
((How many hospitals & doctors, which diagnose and treat ME (estimate):))
((Rehabilitation offers for ME sufferers: ))

==Patient groups==
There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

*[[Emerge Australia]] (incl Victoria, Tasmania & Northern Territory but has members from all over Australia)
*[[Change for ME Australia]], an online collective
*[http://www.mecfscanberra.org.au ACT ME/Chronic Fatigue Syndrome Society]
*[http://sacfs.asn.au ME/CFS Australia (SA) Inc]
*[http://www.mecfsfmq.org.au/home/ ME/CFS/FM Support Association, Queensland]
*[http://www.mecfswa.org.au ME/CFS and Lyme Society of WA]
*[http://www.mecfsnsw.org.au/ The ME/CFS & FM Association, NSW]

==Research==

===Notable studies===
*[https://www.dovepress.com/articles.php?article_id=26236 Natural killer cells and single nucleotide polymorphisms of specific ion channels and receptor genes in myalgic encephalomyelitis/chronic fatigue syndrome (2016)]
*2016, [https://link.springer.com/chapter/10.1007/978-3-319-32240-7_11 Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy]

===Research results===
*2016: [http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/ Australian Breakthrough on Diagnostic Blood Test]<ref name="#MEACTION20160303test" />
*2015: [http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/ Australian Research into ME/CFS in Adolescents]<ref name="#MEACTION20150819arma" />

===Research funding===
*2016: [http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/ Australian Health Dept Pins its Hopes on NIH Research]<ref name="#MEACTION20160212ahd" />
*2016: [http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/ The Australian Health Department Answers Questions on ME]<ref name="#MEACTION20160120ahd" />
*2015: [http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/ Australian Senator Questions Government on Lack of Action on ME]<ref name="#MEACTION20151116asqg" />

===Research groups===
*[[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED)
*[https://www.mcri.edu.au Murdoch Childrens Research Institute]
*[https://www.vu.edu.au/ Victoria University]
*[http://www.bio21.unimelb.edu.au/ Bio21 Institute, Melbourne University]

===Researchers===
*[[Christopher Armstrong]]
*[[Dorothy Bruck]]
*[[Henry Butt]]
*[[Elaine DeFreitas]]
*[[Paul R Gooley|Paul Gooley]]
*[[Melinda Jackson]]
*[[Donald Lewis]]
*[[Brett Lidbury]]
*[[Andrew Lloyd]]
*[[Neil McGregor]]
*[[Michael Maes]]
*[[Sarah Knight]]
*[[Sonya Marshall-Gradisnik]]
*[[Donald Staines]]
*[[Amy Wallis]]

==Clinicians==
*Biomedical clinicians: [[Donald P Lewis]] (VIC), [[Rashmi Cabena]] (VIC), [[Richard Schloeffel]] (NSW), [[Mark Donohoe]] (NSW)
*[[GET]]/[[CBT]] clinicians: [[Michael Oldmeadow]] (VIC), [[Andrew Lloyd]] (NSW)

==Notable patients==
*[[Alison Hunter]], died 1996, aged 19, from complications related to ME/CFS. The [[Alison Hunter Memorial Foundation]] was established in her name in 1998, to raise much needed funding for research into ME/CFS, as well as raising awareness and advocating for the needs of people with ME/CFS. The Alison Hunter Foundation established a partnership with the [[National Centre for Neuroimmunology and Emerging Diseases]] (NCNED), at Griffith University (Queensland), in 2014, and has since ceased operating as an independent charity, instead focussing on supporting the research being undertaken at NCNED.<ref name="AHMFwebsite" />
*[[Jodi Bassett]]
*[[Laura Dundovic]]
*[[Leigh Hatcher]]
*[[Linley Frame]]
*[[Johanna Griggs]]
*[[Alastair Lynch]]
*[[James McDonald]]
*[[Alem Matthees]]
*[[Nadine Neumann ]]
*[[Matthew Nicholson]]
*[[Rhyce Shaw]]
*[[Shelley Taylor-Smith]]

==Learn more==
*2016, [https://www.thesaturdaypaper.com.au/2016/08/06/rethinking-chronic-fatigue-syndrome/14704056003560 Rethinking chronic fatigue syndrome]

==See also==
*[[1949-53 Adelaide outbreak]]
*[[Outbreaks]]
*[[Scott Ludlam]]

==References==
<references>
<ref name="ICC2011criteria">{{citation
| last1 = Carruthers | first1 = B M | authorlink1 = Bruce Carruthers
| last2 = van de Sande | first2 = M I | authorlink2 = Marjorie van de Sande
| last3 = De Meirleir | first3 = Kenny L | authorlink3 = Kenny de Meirleir
| last4 = Klimas | first4 = Nancy G | authorlink4 = Nancy Klimas
| last5 = Broderick | first5 = G | authorlink5 = Gordon Broderick
| last6 = Mitchell | first6 = T | authorlink6 = Terry Mitchell
| last7 = Staines | first7 = Donald | authorlink7 = Donald Staines
| last8 = Powles | first8 = A C P | authorlink8 = A C Peter Powles
| last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight
| last10 = Vallings | first10= Rosamund | authorlink10= Rosamund Vallings
| last11 = Bateman | first11= Lucinda | authorlink11= Lucinda Bateman
| last12 = Baumgarten-Austrheim | first12= B | authorlink12= Barbara Baumgarten-Austrheim
| last13 = Bell | first13= David S | authorlink13= David Bell
| last14 = Carlo-Stella | first14= N | authorlink14= Nicoletta Carlo-Stella
| last15 = Chia | first15= John | authorlink15= John Chia
| last16 = Darragh | first16= A | authorlink16= Austin Darragh
| last17 = Jo | first17= D | authorlink17= Daehyun Jo
| last18 = Lewis | first18= Donald P | authorlink18= Donald Lewis
| last19 = Light | first19= Alan R | authorlink19= Alan Light
| last20 = Marshall-Gradisnik | first20= Sonya | authorlink20= Sonya Marshall-Gradisnik
| last21 = Mena | first21= I | authorlink21= Ismael Mena
| last22 = Mikovits | first22= J A | authorlink22= Judy Mikovits
| last23 = Miwa | first23= K | authorlink23= Kunihisa Miwa
| last24 = Murovska | first24= M | authorlink24= Modra Murovska
| last25 = Pall | first25= M L | authorlink25= Martin Pall
| last26 = Stevens | first26= Staci R | authorlink26= Staci Stevens
| title = Myalgic encephalomyelitis: International Consensus Criteria
| journal = Journal of Internal Medicine | volume = 270 | issue = 4 | page = 327–338
| date = 22 August 2011
| pmid = 21777306 | doi = 10.1111/j.1365-2796.2011.02428.x
| url = http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/full
}}</ref>
<ref name="JasonL2006paed">{{citation
| last1 = Jason | first1 = Leonard A | authorlink1 = Leonard Jason
| last2 = Jordan | first2 = Karen | authorlink2 = Karen Jordan
| last3 = Miike | first3 = Teruhisa | authorlink3 = Teruhisa Miike
| last4 = Bell | first4 = David S | authorlink4 = David Bell
| last5 = Lapp | first5 = Charles | authorlink5 = Charles Lapp
| last6 = Torres-Harding | first6 = Susan | authorlink6 = Susan Torres-Harding
| last7 = Rowe | first7 = Kathy | authorlink7 = Katherine Rowe
| last8 = Gurwitt | first8 = Alan | authorlink8 = Alan Gurwitt
| last9 = De Meirleir | first9 = Kenny | authorlink9 = Kenny de Meirleir
| last10 = Van Hoof | first10= Elke LS | authorlink10= Elke Van Hoof
| title = A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
| journal = Journal of Chronic Fatigue Syndrome | volume = 13 | issue = 2-3 | page = 1-44
| date = 2006
| doi = 10.1300/J092v13n02_01
| url = http://www.tandfonline.com/doi/abs/10.1300/J092v13n02_01
}}</ref>
<ref name="#MEACTION20150819arma">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Research into ME/CFS in Adolescents
| journal = #MEAction
| date = 19 Aug 2015
| url = http://www.meaction.net/2015/08/19/australian-research-into-mecfs-in-adolescents/
}}</ref>
<ref name="#MEACTION20151116asqg">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Senator Questions Government on Lack of Action on ME
| journal = #MEAction
| date = 16 Nov 2015
| url = http://www.meaction.net/2015/11/16/aust-senator-questions-government-on-lack-of-action-on-me/
}}</ref>
<ref name="#MEACTION20160120ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Answers Questions on ME
| journal = #MEAction
| date = 20 Jan 2016
| url = http://www.meaction.net/2016/01/20/australian-health-dept-answers-questions-on-me/
}}</ref>
<ref name="#MEACTION20160212ahd">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Health Dept Pins its Hopes on NIH Research
| journal = #MEAction
| date = 12 Feb 2016
| url = http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/
}}</ref>
<ref name="#MEACTION20160303test">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australian Breakthrough on Diagnostic Blood Test
| journal = #MEAction
| date = 3 Mar 2016
| url = http://www.meaction.net/2016/03/03/news-report-breakthrough-on-diagnostic-blood-test/
}}</ref>
<ref name="#MEACTION20160314amrc">{{citation
| last1 = #MEAction | authorlink1 = #MEAction
| last2 = Nimmo | first2 = Sasha | authorlink2 = Sasha Nimmo
| title = Australians: Ask the Medical Research Council to Fund Studies
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</references>

[[Category:Countries]]
[[Category:Oceania]]
[[Category:Australia]]