MEpedia - User contributions [en]

Eliana Lacerda

2018-06-22T15:30:52Z

CureME:Expansion of bio

'''Eliana Lacerda''' MD PhD MSc is a Clinical Assistant Professor and part of the [[Cure ME]] team at the [[London School of Hygiene and Tropical Medicine]], London, UK. She oversees the UK ME/CFS Biobank, from recruitment of participants through to release of samples.<ref>https://www.lshtm.ac.uk/aboutus/people/lacerda.eliana</ref>

She has a medical background, with training in public health and occupational health.<ref>https://www.lshtm.ac.uk/aboutus/people/lacerda.eliana</ref>

==EUROMENE==
Dr. Lacerda is the Vice Chair of [[EUROMENE]], a European Union not-for-profit research organization committed to tackling the cause and treatment for [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]], and was a founder member of the network.<ref>http://www.cost.eu/COST_Actions/ca/CA15111?management</ref>

==Learn more==
*[https://www.lshtm.ac.uk/aboutus/people/lacerda.eliana LSHTM bio]

==Notable studies==
*2018, Functional Status and Well-Being in People with [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]] Compared with People with Multiple Sclerosis and Healthy Controls<ref name="Kingdon, 2018"/> [https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 (Full Text)]
*2017, How have selection bias and disease misclassification undermined the validity of myalgic encephalomyelitis/chronic fatigue syndrome studies?<ref>Nacul, L; Lacerda, EM; Kingdon, CC; Curran, H; Bowman, EW; (2017) How have selection bias and disease misclassification undermined the validity of myalgic encephalomyelitis/chronic fatigue syndrome studies? Journal of health psychology. p. 1359105317695803. ISSN 1359-1053 DOI: https://doi.org/10.1177/1359105317695803</ref> [http://journals.sagepub.com/doi/pdf/10.1177/1359105317695803 (Full Text)]
*2017, The European [[ME/CFS]] [[Biomarker]] Landscape project: an initiative of the European network [[EUROMENE]]<ref name="EUROMENE2017"/> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5530475/ (Full Text)]
*2017, Editorial - ''Using a participatory approach to develop and implement the UK ME/CFS Biobank''<ref name="Lacerda, 2017"/>
*2014, Considerations in establishing a post-mortem brain and tissue bank for the study of [[ME/CFS|myalgic encephalomyelitis/chronic fatigue syndrome]]: A proposed protocol<ref name="Nacul, 2014"/> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4076507/ (Full Text)]
*2011, A Disease Register for ME/CFS: Report of a Pilot Study<ref>Pheby D, Lacerda E, Nacul L, Drachler Mde L, Campion P, Howe A, Poland F, Curran M, Featherstone V, Fayyaz S, Sakellariou D, Leite JC. (2011). A Disease Register for ME/CFS: Report of a Pilot Study. ''BMC Res Notes, 9''4:139. doi: 10.1186/1756-0500-4-139</ref> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3118997/ (Full Text)]
*2011, Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis<ref name="de Carvalho Leite, 2011"/> [https://equityhealthj.biomedcentral.com/articles/10.1186/1475-9276-10-46 (Full Text)]
*2011, Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care<ref>Nacul, L. C., Lacerda, E. M., Pheby, D., Campion, P., Molokhia, M., Fayyaz, S., Leite,JCDC, Poland F, Howe, A and Drachler, M. L. (2011). Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care. BMC Medicine, 9, 91. http://doi.org/10.1186/1741-7015-9-91</ref> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3170215/ (Full Text)]
*2011, The functional status and well being of people with [[ME/CFS|myalgic encephalomyelitis/chronic fatigue syndrome]] and their carers<ref name="Nacul, 2011"/> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3123211/ (Full Text)]
*2010, Exploring the feasibility of establishing a disease-specific post-mortem tissue bank in the UK: a case study in ME/CFS<ref>Lacerda, EM; Nacul, L; Pheby, D; Shepherd, C; Spencer, P; (2010) Exploring the feasibility of establishing a disease-specific post-mortem tissue bank in the UK: a case study in ME/CFS. Journal of clinical pathology. ISSN 0021-9746 DOI: https://doi.org/10.1136/jcp.2010.082032</ref> [http://jcp.bmj.com/content/63/11/1032 (Abstract)]

==References==
<references>
<ref name="de Carvalho Leite, 2011">
{{Citation
| last1 = de Carvalho Leite | first1 = JC | authorlink1 =
| last2 = de L Drachler | first2 = M | authorlink2 =
| last3 = Killett | first3 = A | authorlink3 =
| last4 = Kale | first4 = S | authorlink4 =
| last5 = Nacul | first5 = L | authorlink5 = Luis Nacul
| last6 = McArthur | first6 = M | authorlink6 =
| last7 = Hong | first7 = CS | authorlink7 =
| last8 = O'Driscoll | first8 = L | authorlink8 =
| last9 = Pheby | first9 = D | authorlink9 = Derek Pheby
| last10 = Campion | first10 = P | authorlink10 =
| last11 = Lacerda | first11 = E | authorlink11 = Eliana Lacerda
| last12 = Poland | first12 = F | authorlink12 =
| title = Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis
| journal = International Journal for Equity in Health | volume = 2 | issue = 10 | page = 46
| date = 2011
| pmid =
| doi = 10.1186/1475-9276-10-46
}}
</ref>
<ref name="EUROMENE2017">
{{citation
| last1 = Scheibenbogen | first1 = Carmen | authorlink1 = Carmen Scheibenbogen
| last2 = Freitag | first2 = Helma | authorlink2 = Helma Freitag
| last3 = Blanco | first3 = Julià | authorlink3 = Julià Blanco
| last4 = Capelli | first4 = Enrica | authorlink4 = Enrica Capelli
| last5 = Lacerda | first5 = Eliana | authorlink5 = Eliana Lacerda
| last6 = Authier | first6 = Jerome | authorlink6 = Jerome Authier
| last7 = Meeus | first7 = Mira | authorlink7 = Mira Meeus
| last8 = Castro Marrero | first8 = Jesus | authorlink8 = Jesus Castro-Marrero
| last9 = Nora-Krukle | first9 = Zaiga | authorlink9 = Zaiga Nora-Krukle
| last10 = Oltra | first10 = Elisa | authorlink10 = Elisa Oltra
| last11 = Bolle Strand | first11 = Elin | authorlink11 = Elin Bolle Strand
| last12 = Shikova | first12 = Evelina | authorlink12 = Evelina Shikova
| last13 = Sekulic | first13 = Slobodan | authorlink13 = Slobodan Sekulic
| last14 = Murovska | first14 = Modra | authorlink14 = Modra Murovska
| title = The European ME/CFS Biomarker Landscape project: an initiative of the European network EUROMENE
| journal = Journal of Translational Medicine | volume = 15 | page = 162
| date = 2017
| doi = 10.1186/s12967-017-1263-z
}}
</ref>

<ref name="Kingdon, 2018">
{{Citation
| last1 = Kingdon | first1 = CC | authorlink1 =
| last2 = Bowman | first2 = EW | authorlink2 =
| last3 = Curran | first3 = H | authorlink3 =
| last4 = Nacul | first4 = L | authorlink4 = Luis Nacul
| last5 = Lacerda | first5 = EM | authorlink5 = Eliana Lacerda
| title = Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls
| journal = PharmacoEconomics - Open | volume = | issue = | page =
| date = 2018
| pmid = 29536371
| doi = 10.1007/s41669-018-0071-6
}}
</ref>
<ref name="Lacerda, 2017">
{{Citation
| last1 = Lacerda | first1 = Eliana M. | authorlink1 = Eliana Lacerda
| last2 = Kingdon | first2 = Caroline C. | authorlink2 =
| last3 = Bowman | first3 = Erinna W. | authorlink3 =
| last4 = Nacul | first4 = Luis | authorlink4 = Luis Nacul
| title = Using a participatory approach to develop and implement the UK ME/CFS Biobank
| journal = Fatigue: Biomedicine, Health & Behavior | volume = | issue = | page =
| date = 2017
| pmid =
| doi = 10.1080/21641846.2018.1396021
}}
</ref>
<ref name="Nacul, 2011">
{{Citation
| last1 = Nacul | first1 = LC | authorlink1 = Luis Nacul
| last2 = Lacerda | first2 = EM | authorlink2 = Eliana Lacerda
| last3 = Campion | first3 = P | authorlink3 =
| last4 = Pheby | first4 = D | authorlink4 = Derek Pheby
| last5 = Drachler | first5 = M de L | authorlink5 =
| last6 = Leite | first6 = JC | authorlink6 =
| last7 = Poland | first7 = F | authorlink7 =
| last8 = Howe | first8 = A | authorlink8 =
| last9 = Fayyaz | first9 = S | authorlink9 =
| last10 = Molokhia | first10 = M | authorlink10 =
| title = The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers
| journal = BMC Public Health | volume = 11 | issue = 402 | page =
| date = 2011
| pmid =
| doi = 10.1186/1471-2458-11-402
}}</ref>
<ref name="Nacul, 2014">
{{Citation
| last1 = Nacul | first1 = L | authorlink1 = Luis Nacul
| last2 = O'Donovan | first2 = DG | authorlink2 =
| last3 = Lacerda | first3 = EM | authorlink3 = Eliana Lacerda
| last4 = Gveric | first4 = D | authorlink4 =
| last5 = Goldring | first5 = K | authorlink5 =
| last6 = Hall | first6 = A | authorlink6 =
| last7 = Bowman | first7 = E | authorlink7 =
| last8 = Pheby | first8 = D | authorlink8 = Derek Pheby
| title = Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol
| journal = BMC Research Notes | volume = 18 | issue = 10 | page = 370
| date = 2014
| pmid =
| doi = 10.1186/1756-0500-7-370
}}
</ref>

</references>

[[Category:Researchers]]
[[Category:UK researchers]]
[[Category:PACE trial critics]]

Luis Nacul

2018-06-22T15:22:01Z

CureME:syntax change to first sentence

Dr [http://www.lshtm.ac.uk/aboutus/people/nacul.luis Luis Nacul] is a Clinical Associate Professor and researcher at the [[London School of Hygiene and Tropical Medicine]] in London, United Kingdom. He leads the [[Cure ME]] team and the UK ME/CFS Biobank. He serves as a Member Substitute for [[EUROMENE]], an international not-for-profit organization for [[ME/CFS]] research.

He is a doctor and general practitioner, with training across medicine, epidemiology and public health.<ref>https://www.lshtm.ac.uk/aboutus/people/nacul.luis</ref>

==Learn more==
*[https://www.lshtm.ac.uk/aboutus/people/nacul.luis LSHTM bio]

==Notable studies and writings related to ME/CFS==
*2018, Functional Status and Well-Being in People with [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]] Compared with People with [[Multiple Sclerosis]] and Healthy Controls<ref name="Kingdon, 2018"/> [https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 (Full Text)]
*2017, Public Review - Draft of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials<ref name="Common Data Elements, 2017"/> [https://www.commondataelements.ninds.nih.gov/Doc/MECFS/03_Fatigue_Subgroup_CDE_Draft_Recommendations.pdf (Full Text)]
*2017, Editorial - ''Using a participatory approach to develop and implement the UK ME/CFS Biobank''<ref name="Lacerda, 2017"/>
*2014, Considerations in establishing a post-mortem brain and tissue bank for the study of [[ME/CFS|myalgic encephalomyelitis/chronic fatigue syndrome]]: A proposed protocol<ref name="Nacul, 2014"/> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4076507/ (Full Text)]
*2011, Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care<ref>Nacul, L. C., Lacerda, E. M., Pheby, D., Campion, P., Molokhia, M., Fayyaz, S., Leite,JCDC, Poland F, Howe, A and Drachler, M. L. (2011). Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care. BMC Medicine, 9, 91. http://doi.org/10.1186/1741-7015-9-91</ref> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3170215/ (Full Text)]
*2011, Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis<ref name="de Carvalho Leite, 2011"/> [https://equityhealthj.biomedcentral.com/articles/10.1186/1475-9276-10-46 (Full Text)]
*2011, The functional status and well being of people with [[ME/CFS|myalgic encephalomyelitis/chronic fatigue syndrome]] and their carers<ref name="Nacul, 2011"/> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3123211/ (Full Text)]
*2007, The Development of an Epidemiological Definition for [[Myalgic Encephalomyelitis]]/[[Chronic Fatigue Syndrome]]<ref name="Osoba, 2007"/> [https://www.tandfonline.com/doi/abs/10.3109/10573320802092112 (Abstract)]

==Talks and Interviews==
*2015, Speaker at the 10th [[Invest in ME International ME Conference]] - [http://www.investinme.eu/IIMEC10.shtml#dvd DVD available] Speech title - ''Incidence and Prevalence of ME''

==References==
<references>
<ref name="de Carvalho Leite, 2011">
{{Citation
| last1 = de Carvalho Leite | first1 = JC | authorlink1 =
| last2 = de L Drachler | first2 = M | authorlink2 =
| last3 = Killett | first3 = A | authorlink3 =
| last4 = Kale | first4 = S | authorlink4 =
| last5 = Nacul | first5 = L | authorlink5 = Luis Nacul
| last6 = McArthur | first6 = M | authorlink6 =
| last7 = Hong | first7 = CS | authorlink7 =
| last8 = O'Driscoll | first8 = L | authorlink8 =
| last9 = Pheby | first9 = D | authorlink9 = Derek Pheby
| last10 = Campion | first10 = P | authorlink10 =
| last11 = Lacerda | first11 = E | authorlink11 = Eliana Lacerda
| last12 = Poland | first12 = F | authorlink12 =
| title = Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis
| journal = International Journal for Equity in Health | volume = 2 | issue = 10 | page = 46
| date = 2011
| pmid =
| doi = 10.1186/1475-9276-10-46
}}
</ref>
<ref name="Common Data Elements, 2017">
{{Citation
| last1 = Cella | first1 = David | authorlink1 =
| last2 = Dimmock | first2 = Mary | authorlink2 = Mary Dimmock
| last3 = Friedberg | first3 = Fred | authorlink3 = Fred Friedberg
| last4 = Lin | first4 = Jin-Mann Sally | authorlink4 =
| last5 = Nacul | first5 = Luis | authorlink5 = Luis Nacul
| last6 = Saligan | first6 = Leorey | authorlink6 = Leorey Saligan
| title = NINDS/CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials
| date = Dec 2017
| url = https://www.commondataelements.ninds.nih.gov/Doc/MECFS/03_Fatigue_Subgroup_CDE_Draft_Recommendations.pdf
}}
</ref>
<ref name="Kingdon, 2018">
{{Citation
| last1 = Kingdon | first1 = CC | authorlink1 =
| last2 = Bowman | first2 = EW | authorlink2 =
| last3 = Curran | first3 = H | authorlink3 =
| last4 = Nacul | first4 = L | authorlink4 = Luis Nacul
| last5 = Lacerda | first5 = EM | authorlink5 = Eliana Lacerda
| title = Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls
| journal = PharmacoEconomics - Open | volume = | issue = | page =
| date = 2018
| pmid = 29536371
| doi = 10.1007/s41669-018-0071-6
}}
</ref>
<ref name="Lacerda, 2017">
{{Citation
| last1 = Lacerda | first1 = Eliana M. | authorlink1 = Eliana Lacerda
| last2 = Kingdon | first2 = Caroline C. | authorlink2 =
| last3 = Bowman | first3 = Erinna W. | authorlink3 =
| last4 = Nacul | first4 = Luis | authorlink4 = Luis Nacul
| title = Using a participatory approach to develop and implement the UK ME/CFS Biobank
| journal = Fatigue: Biomedicine, Health & Behavior | volume = | issue = | page =
| date = 2017
| pmid =
| doi = 10.1080/21641846.2018.1396021
}}
</ref>
<ref name="Nacul, 2011">
{{Citation
| last1 = Nacul | first1 = LC | authorlink1 = Luis Nacul
| last2 = Lacerda | first2 = EM | authorlink2 = Eliana Lacerda
| last3 = Campion | first3 = P | authorlink3 =
| last4 = Pheby | first4 = D | authorlink4 = Derek Pheby
| last5 = Drachler | first5 = M de L | authorlink5 =
| last6 = Leite | first6 = JC | authorlink6 =
| last7 = Poland | first7 = F | authorlink7 =
| last8 = Howe | first8 = A | authorlink8 =
| last9 = Fayyaz | first9 = S | authorlink9 =
| last10 = Molokhia | first10 = M | authorlink10 =
| title = The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers
| journal = BMC Public Health | volume = 11 | issue = 402 | page =
| date = 2011
| pmid =
| doi = 10.1186/1471-2458-11-402
}}</ref>
<ref name="Nacul, 2014">
{{Citation
| last1 = Nacul | first1 = L | authorlink1 = Luis Nacul
| last2 = O'Donovan | first2 = DG | authorlink2 =
| last3 = Lacerda | first3 = EM | authorlink3 = Eliana Lacerda
| last4 = Gveric | first4 = D | authorlink4 =
| last5 = Goldring | first5 = K | authorlink5 =
| last6 = Hall | first6 = A | authorlink6 =
| last7 = Bowman | first7 = E | authorlink7 =
| last8 = Pheby | first8 = D | authorlink8 = Derek Pheby
| title = Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol
| journal = BMC Research Notes | volume = 18 | issue = 10 | page = 370
| date = 2014
| pmid =
| doi = 10.1186/1756-0500-7-370
}}
</ref>
<ref name="Osoba, 2007">
{{Citation
| last1 = Osoba | first1 = Tolu | authorlink1 =
| last2 = Pheby | first2 = Derek | authorlink2 = Derek Pheby
| last3 = Gray | first3 = Selena | authorlink3 =
| last4 = Nacul | first4 = Luis | authorlink4 = Luis Nacul
| title = The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
| journal = Journal of Chronic Fatigue Syndrome | volume = 14 | issue = 4 | page = 61-84
| date = 2007
| pmid =
| doi = 10.3109/10573320802092112
}}
</ref>
</references>

[[Category:Researchers]]
[[Category:UK researchers]]

Luis Nacul

2018-06-22T15:20:40Z

CureME:Filling in more information

Dr [http://www.lshtm.ac.uk/aboutus/people/nacul.luis Luis Nacul] is a Clinical Associate Professor and researcher at the [[London School of Hygiene and Tropical Medicine]] in London, United Kingdom. He leads the [[Cure ME]] and UK ME/CFS Biobank. He serves as a Member Substitute for [[EUROMENE]], an international not-for-profit organization for [[ME/CFS]] research.

He is a doctor and general practitioner, with training across medicine, epidemiology and public health.<ref>https://www.lshtm.ac.uk/aboutus/people/nacul.luis</ref>

==Learn more==
*[https://www.lshtm.ac.uk/aboutus/people/nacul.luis LSHTM bio]

==Notable studies and writings related to ME/CFS==
*2018, Functional Status and Well-Being in People with [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]] Compared with People with [[Multiple Sclerosis]] and Healthy Controls<ref name="Kingdon, 2018"/> [https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 (Full Text)]
*2017, Public Review - Draft of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials<ref name="Common Data Elements, 2017"/> [https://www.commondataelements.ninds.nih.gov/Doc/MECFS/03_Fatigue_Subgroup_CDE_Draft_Recommendations.pdf (Full Text)]
*2017, Editorial - ''Using a participatory approach to develop and implement the UK ME/CFS Biobank''<ref name="Lacerda, 2017"/>
*2014, Considerations in establishing a post-mortem brain and tissue bank for the study of [[ME/CFS|myalgic encephalomyelitis/chronic fatigue syndrome]]: A proposed protocol<ref name="Nacul, 2014"/> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4076507/ (Full Text)]
*2011, Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care<ref>Nacul, L. C., Lacerda, E. M., Pheby, D., Campion, P., Molokhia, M., Fayyaz, S., Leite,JCDC, Poland F, Howe, A and Drachler, M. L. (2011). Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care. BMC Medicine, 9, 91. http://doi.org/10.1186/1741-7015-9-91</ref> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3170215/ (Full Text)]
*2011, Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis<ref name="de Carvalho Leite, 2011"/> [https://equityhealthj.biomedcentral.com/articles/10.1186/1475-9276-10-46 (Full Text)]
*2011, The functional status and well being of people with [[ME/CFS|myalgic encephalomyelitis/chronic fatigue syndrome]] and their carers<ref name="Nacul, 2011"/> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3123211/ (Full Text)]
*2007, The Development of an Epidemiological Definition for [[Myalgic Encephalomyelitis]]/[[Chronic Fatigue Syndrome]]<ref name="Osoba, 2007"/> [https://www.tandfonline.com/doi/abs/10.3109/10573320802092112 (Abstract)]

==Talks and Interviews==
*2015, Speaker at the 10th [[Invest in ME International ME Conference]] - [http://www.investinme.eu/IIMEC10.shtml#dvd DVD available] Speech title - ''Incidence and Prevalence of ME''

==References==
<references>
<ref name="de Carvalho Leite, 2011">
{{Citation
| last1 = de Carvalho Leite | first1 = JC | authorlink1 =
| last2 = de L Drachler | first2 = M | authorlink2 =
| last3 = Killett | first3 = A | authorlink3 =
| last4 = Kale | first4 = S | authorlink4 =
| last5 = Nacul | first5 = L | authorlink5 = Luis Nacul
| last6 = McArthur | first6 = M | authorlink6 =
| last7 = Hong | first7 = CS | authorlink7 =
| last8 = O'Driscoll | first8 = L | authorlink8 =
| last9 = Pheby | first9 = D | authorlink9 = Derek Pheby
| last10 = Campion | first10 = P | authorlink10 =
| last11 = Lacerda | first11 = E | authorlink11 = Eliana Lacerda
| last12 = Poland | first12 = F | authorlink12 =
| title = Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis
| journal = International Journal for Equity in Health | volume = 2 | issue = 10 | page = 46
| date = 2011
| pmid =
| doi = 10.1186/1475-9276-10-46
}}
</ref>
<ref name="Common Data Elements, 2017">
{{Citation
| last1 = Cella | first1 = David | authorlink1 =
| last2 = Dimmock | first2 = Mary | authorlink2 = Mary Dimmock
| last3 = Friedberg | first3 = Fred | authorlink3 = Fred Friedberg
| last4 = Lin | first4 = Jin-Mann Sally | authorlink4 =
| last5 = Nacul | first5 = Luis | authorlink5 = Luis Nacul
| last6 = Saligan | first6 = Leorey | authorlink6 = Leorey Saligan
| title = NINDS/CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials
| date = Dec 2017
| url = https://www.commondataelements.ninds.nih.gov/Doc/MECFS/03_Fatigue_Subgroup_CDE_Draft_Recommendations.pdf
}}
</ref>
<ref name="Kingdon, 2018">
{{Citation
| last1 = Kingdon | first1 = CC | authorlink1 =
| last2 = Bowman | first2 = EW | authorlink2 =
| last3 = Curran | first3 = H | authorlink3 =
| last4 = Nacul | first4 = L | authorlink4 = Luis Nacul
| last5 = Lacerda | first5 = EM | authorlink5 = Eliana Lacerda
| title = Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls
| journal = PharmacoEconomics - Open | volume = | issue = | page =
| date = 2018
| pmid = 29536371
| doi = 10.1007/s41669-018-0071-6
}}
</ref>
<ref name="Lacerda, 2017">
{{Citation
| last1 = Lacerda | first1 = Eliana M. | authorlink1 = Eliana Lacerda
| last2 = Kingdon | first2 = Caroline C. | authorlink2 =
| last3 = Bowman | first3 = Erinna W. | authorlink3 =
| last4 = Nacul | first4 = Luis | authorlink4 = Luis Nacul
| title = Using a participatory approach to develop and implement the UK ME/CFS Biobank
| journal = Fatigue: Biomedicine, Health & Behavior | volume = | issue = | page =
| date = 2017
| pmid =
| doi = 10.1080/21641846.2018.1396021
}}
</ref>
<ref name="Nacul, 2011">
{{Citation
| last1 = Nacul | first1 = LC | authorlink1 = Luis Nacul
| last2 = Lacerda | first2 = EM | authorlink2 = Eliana Lacerda
| last3 = Campion | first3 = P | authorlink3 =
| last4 = Pheby | first4 = D | authorlink4 = Derek Pheby
| last5 = Drachler | first5 = M de L | authorlink5 =
| last6 = Leite | first6 = JC | authorlink6 =
| last7 = Poland | first7 = F | authorlink7 =
| last8 = Howe | first8 = A | authorlink8 =
| last9 = Fayyaz | first9 = S | authorlink9 =
| last10 = Molokhia | first10 = M | authorlink10 =
| title = The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers
| journal = BMC Public Health | volume = 11 | issue = 402 | page =
| date = 2011
| pmid =
| doi = 10.1186/1471-2458-11-402
}}</ref>
<ref name="Nacul, 2014">
{{Citation
| last1 = Nacul | first1 = L | authorlink1 = Luis Nacul
| last2 = O'Donovan | first2 = DG | authorlink2 =
| last3 = Lacerda | first3 = EM | authorlink3 = Eliana Lacerda
| last4 = Gveric | first4 = D | authorlink4 =
| last5 = Goldring | first5 = K | authorlink5 =
| last6 = Hall | first6 = A | authorlink6 =
| last7 = Bowman | first7 = E | authorlink7 =
| last8 = Pheby | first8 = D | authorlink8 = Derek Pheby
| title = Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol
| journal = BMC Research Notes | volume = 18 | issue = 10 | page = 370
| date = 2014
| pmid =
| doi = 10.1186/1756-0500-7-370
}}
</ref>
<ref name="Osoba, 2007">
{{Citation
| last1 = Osoba | first1 = Tolu | authorlink1 =
| last2 = Pheby | first2 = Derek | authorlink2 = Derek Pheby
| last3 = Gray | first3 = Selena | authorlink3 =
| last4 = Nacul | first4 = Luis | authorlink4 = Luis Nacul
| title = The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
| journal = Journal of Chronic Fatigue Syndrome | volume = 14 | issue = 4 | page = 61-84
| date = 2007
| pmid =
| doi = 10.3109/10573320802092112
}}
</ref>
</references>

[[Category:Researchers]]
[[Category:UK researchers]]

CureME

2018-06-22T15:08:01Z

CureME:Added BBC documentary

'''CureME''' is a British research group at the London School of Hygiene and Tropical Medicine (LSHTM), undertaking clinical & biomedical research into [[ME/CFS]]. The team is led by [[Luis Nacul]].<ref>http://cureme.lshtm.ac.uk/</ref>

==Biography==
The group conducts clinical, epidemiological and laboratory research into ME/CFS, and is comprised of a clinical team led by [[Luis Nacul]] and [[Eliana Lacerda]] and a laboratory team led by Hazel Dockrell and Jackie Cliff.<ref>https://cureme.lshtm.ac.uk/about-us/cureme-team/</ref>

The group is midway through an eight-year major study into ME/CFS funded by the [[National Institutes of Health]], which is seeking to create results through integrated desk and laboratory research, over an extended timespan and using a large number of participants.<ref>https://cureme.lshtm.ac.uk/our-studies/</ref>

The team is overseen by a Steering Committee that includes researchers, partner charities and patient/carer representatives.

==The UK ME/CFS Biobank==
In 2011, the team founded a biobank, hosted by the University College London Biobank at the [[Royal Free Hospital]].<ref>https://cureme.lshtm.ac.uk/about-us/history-of-the-biobank/</ref><ref>[https://www.youtube.com/watch?v=a_fPLSKnTCU Action for M.E. AGM 2013 part three]</ref> The Biobank was initially funded with support from [[ME Research UK]], the [[ME Association]] and [[Action for ME]]. Ongoing funding has been provided by the [[ME Association]] and the US [[National Institutes of Health]].<ref>[http://blogs.lshtm.ac.uk/news/2013/06/28/uk-mecfs-biobank-project-awarded-1-million-grant/ UK ME/CFS Biobank project awarded £1 million grant]</ref><ref>[http://www.meassociation.org.uk/research2015/current-research2015/ Current Research 2015]</ref>

The Biobank holds over 30,000 aliquots of blood from people with ME, MS and healthy controls, with accompanying clinical data. In 2016 the Biobank's samples were made available to researchers around the world, and any researcher can apply to use samples and/or clinical data, subject to application approval and ethical clearance.<ref>https://cureme.lshtm.ac.uk/researchers/accessing-the-biobank/</ref>

==Notable people==
*[[Luis Nacul]]
*[[Eliana Lacerda]]
*Hazel Dockrell
*Jackie Cliff
*Caroline Kingdon

==Talks & Interviews==
*[https://www.youtube.com/watch?time_continue=11&v=ZamGjkCFKr4 The UK ME/CFS Biobank introductory video]
*[https://www.youtube.com/watch?v=XLPCuEdqIWY BBC Newsbeat documentary 'M.E. and Me', featuring members of the team]
*[https://www.s4me.info/index.php?threads/uk-me-cfs-biobank-ask-me-anything-thread-thursday-14th-december-2017-2-30-to-3-30pm-gmt-utc.1458/ Q&A with members of the Science for ME patient forum, December 14th, 2017.]

==Learn more==
*[https://cureme.lshtm.ac.uk/ CureME Website]

==References==
<references>

</references>
[[Category:Research initiatives]]
[[Category:British research initiatives]]
[[Category:Biobanks & patient registries]]

CureME

2018-06-22T15:04:51Z

CureME:Further edits to provide more information about the Biobank

'''CureME''' is a British research group at the London School of Hygiene and Tropical Medicine (LSHTM), undertaking clinical & biomedical research into [[ME/CFS]]. The team is led by [[Luis Nacul]].<ref>http://cureme.lshtm.ac.uk/</ref>

==Biography==
The group conducts clinical, epidemiological and laboratory research into ME/CFS, and is comprised of a clinical team led by [[Luis Nacul]] and [[Eliana Lacerda]] and a laboratory team led by Hazel Dockrell and Jackie Cliff.<ref>https://cureme.lshtm.ac.uk/about-us/cureme-team/</ref>

The group is midway through an eight-year major study into ME/CFS funded by the [[National Institutes of Health]], which is seeking to create results through integrated desk and laboratory research, over an extended timespan and using a large number of participants.<ref>https://cureme.lshtm.ac.uk/our-studies/</ref>

The team is overseen by a Steering Committee that includes researchers, partner charities and patient/carer representatives.

==The UK ME/CFS Biobank==
In 2011, the team founded a biobank, hosted by the University College London Biobank at the [[Royal Free Hospital]].<ref>https://cureme.lshtm.ac.uk/about-us/history-of-the-biobank/</ref><ref>[https://www.youtube.com/watch?v=a_fPLSKnTCU Action for M.E. AGM 2013 part three]</ref> The biobank was initially funded with support from [[ME Research UK]], the [[ME Association]] and [[Action for ME]]. Ongoing funding has been provided by the [[ME Association]] and the US [[National Institutes of Health]].<ref>[http://blogs.lshtm.ac.uk/news/2013/06/28/uk-mecfs-biobank-project-awarded-1-million-grant/ UK ME/CFS Biobank project awarded £1 million grant]</ref><ref>[http://www.meassociation.org.uk/research2015/current-research2015/ Current Research 2015]</ref>

The Biobank holds over 30,000 aliquots of blood from people with ME, MS and healthy controls, with accompanying clinical data. In 2016 the Biobank's samples were made available to researchers around the world, and any researcher can apply to use samples and/or clinical data, subject to application approval and ethical clearance.<ref>https://cureme.lshtm.ac.uk/researchers/accessing-the-biobank/</ref>

==Notable people==
*[[Luis Nacul]]
*[[Eliana Lacerda]]
*Hazel Dockrell
*Jackie Cliff
*Caroline Kingdon

==Talks & Interviews==
*[https://www.youtube.com/watch?time_continue=11&v=ZamGjkCFKr4 The UK ME/CFS Biobank introductory video]
*[https://www.s4me.info/index.php?threads/uk-me-cfs-biobank-ask-me-anything-thread-thursday-14th-december-2017-2-30-to-3-30pm-gmt-utc.1458/ Q&A with members of the Science for ME patient forum, December 14th, 2017.]

==Learn more==
*[https://cureme.lshtm.ac.uk/ CureME Website]

==References==
<references>

</references>
[[Category:Research initiatives]]
[[Category:British research initiatives]]
[[Category:Biobanks & patient registries]]

CureME

2018-06-22T15:00:33Z

CureME:Minor amends

'''CureME''' is a British research group at the London School of Hygiene and Tropical Medicine (LSHTM), undertaking clinical & biomedical research into [[ME/CFS]]. The team is led by [[Luis Nacul]].<ref>http://cureme.lshtm.ac.uk/</ref>

==Biography==
The group conducts clinical, epidemiological and laboratory research into ME/CFS, and is comprised of a clinical team led by [[Luis Nacul]] and [[Eliana Lacerda]] and a laboratory team led by Hazel Dockrell and Jackie Cliff.<ref>https://cureme.lshtm.ac.uk/about-us/cureme-team/</ref>

The group is midway through an eight-year major study into ME/CFS funded by the [[National Institutes of Health]], which is seeking to create results through integrated desk and laboratory research, over an extended timespan and using a large number of participants.<ref>https://cureme.lshtm.ac.uk/our-studies/</ref>

==The UK ME/CFS Biobank==
In 2011, the team founded a biobank, hosted by the University College London Biobank at the [[Royal Free Hospital]].<ref>https://cureme.lshtm.ac.uk/about-us/history-of-the-biobank/</ref><ref>[https://www.youtube.com/watch?v=a_fPLSKnTCU Action for M.E. AGM 2013 part three]</ref> The biobank was initially funded with support from [[ME Research UK]], the [[ME Association]] and [[Action for ME]]. Ongoing funding has been provided by the [[ME Association]] and the US [[National Institutes of Health]].<ref>[http://blogs.lshtm.ac.uk/news/2013/06/28/uk-mecfs-biobank-project-awarded-1-million-grant/ UK ME/CFS Biobank project awarded £1 million grant]</ref><ref>[http://www.meassociation.org.uk/research2015/current-research2015/ Current Research 2015]</ref> In 2016 the Biobank's samples were made available to researchers around the world, and any researcher can apply to use samples and/or clinical data, subject to application approval and ethical clearance.<ref>https://cureme.lshtm.ac.uk/researchers/accessing-the-biobank/</ref>

==Notable people==
*[[Luis Nacul]]
*[[Eliana Lacerda]]
*Hazel Dockrell
*Jackie Cliff
*Caroline Kingdon

==Talks & Interviews==
*[https://www.youtube.com/watch?time_continue=11&v=ZamGjkCFKr4 The UK ME/CFS Biobank introductory video]
*[https://www.s4me.info/index.php?threads/uk-me-cfs-biobank-ask-me-anything-thread-thursday-14th-december-2017-2-30-to-3-30pm-gmt-utc.1458/ Q&A with members of the Science for ME patient forum, December 14th, 2017.]

==Learn more==
*[https://cureme.lshtm.ac.uk/ CureME Website]

==References==
<references>

</references>
[[Category:Research initiatives]]
[[Category:British research initiatives]]
[[Category:Biobanks & patient registries]]

CureME

2018-06-22T14:57:11Z

CureME:Filling in fuller information about CureME biography and research. For full disclosure, I am a member of the CureME team.

'''CureME''' is a British research group at the London School of Hygiene and Tropical Medicine (LSHTM), undertaking clinical & biomedical research into [[ME/CFS]]. The team is led by [[Luis Nacul]].<ref>http://cureme.lshtm.ac.uk/</ref>

==Biography==
The group conducts clinical, epidemiological and laboratory research into ME/CFS, and is comprised of a clinical team led by [[Luis Nacul]] and [[Eliana Lacerda]] and a laboratory team led by Hazel Dockrell and Jackie Cliff.<ref>https://cureme.lshtm.ac.uk/about-us/cureme-team/</ref>

The group is midway through an eight-year major study into ME/CFS funded by the [[National Institutes of Health]], which is seeking to create results through integrated desk and laboratory research, over an extended timespan and using a large number of participants.<ref>https://cureme.lshtm.ac.uk/our-studies/</ref>

==The UK ME/CFS Biobank==
In 2011, the team founded a biobank, hosted by the University College London Biobank at the [[Royal Free Hospital]].<ref>https://cureme.lshtm.ac.uk/about-us/history-of-the-biobank/</ref><ref>[https://www.youtube.com/watch?v=a_fPLSKnTCU Action for M.E. AGM 2013 part three]</ref> The biobank was initially funded with support from [[ME Research UK]], the [[ME Association]] and [[Action for ME]]. Ongoing funding has been provided by the [[ME Association]] and the US [[National Institutes of Health]].<ref>[http://blogs.lshtm.ac.uk/news/2013/06/28/uk-mecfs-biobank-project-awarded-1-million-grant/ UK ME/CFS Biobank project awarded £1 million grant]</ref><ref>[http://www.meassociation.org.uk/research2015/current-research2015/ Current Research 2015]</ref> In 2016 the Biobank's samples were made available to researchers around the world, and any researcher can apply to use samples and/or clinical data, subject to application approval and ethical clearance.<ref>https://cureme.lshtm.ac.uk/researchers/accessing-the-biobank/</ref>

==Notable people==
*[[Luis Nacul]]
*[[Eliana Lacerda]]
*Hazel Dockrell
*Jackie Cliff
*Caroline Kingdon

==Talks & Interviews==
*[https://www.youtube.com/watch?time_continue=11&v=ZamGjkCFKr4 The UK ME/CFS Biobank introductory video]
*Q&A with members of the [[Science for ME]] patient forum, December 14th, 2017.<ref>https://www.s4me.info/index.php?threads/uk-me-cfs-biobank-ask-me-anything-thread-thursday-14th-december-2017-2-30-to-3-30pm-gmt-utc.1458/</ref>

==Learn more==
*[https://cureme.lshtm.ac.uk/ Cure ME Website]

==References==
<references>

</references>
[[Category:Research initiatives]]
[[Category:British research initiatives]]
[[Category:Biobanks & patient registries]]