MEpedia - User contributions [en]

Merryn Crofts

2018-05-28T17:10:00Z

Christinakalinen 22:

[[File:Merryncrofts.jpg|right|200px]]
[[File:Times article 26 May 2018.jpg|thumb|Merryn Croft's inquest | The Times | 26 May 2018]]
'''Merryn Crofts''' was a young woman with very severe [[myalgic encephalomyelitis]] and also had suspected [[Ehlers-Danlos syndrome]] and [[mast cell activation disorder]] in the later years of her illness. She died on 23rd May 2017, 10 days after her 21st birthday. Her symptoms originally began in August 2011 when she was 15, and by the time of her death in May 2017, she had been completely bed-bound for the previous three years, had hypersensitivities to light, noise, touch, smell and movement, had gastrointestinal hypersensitivities which meant she had to be TPN fed by a Broviac line, was in total pain, amongst many more symptoms.

An inquest into her death was held on Friday 18th May 2018 at Rochdale Coroner’s Court. The coroner, and multiple medical experts, overwhelmingly agreed that her death was due to starvation due to having to be removed from her Broviac line which was ultimately caused by ME. A psychiatrist present stated there was categorically no mental health issues with Merryn and that her illness was ME which is clearly very physical. Other medical professionals present also stated that ME should be her cause of death. The coroner stated that all her gastrointestinal issues were a result of a hypersensitive gut which was caused by ME, so ME is ultimately responsible for her death. Merryn is the second person, and the youngest, in the UK after Sophia Mirza to have ME listed as cause of death. Her family hope the case will show how severe ME can be and that it can help sufferers of ME receive better understanding from the medical profession, and for more UK biomedical research to be conducted. <ref>[https://www.manchestereveningnews.co.uk/news/greater-manchester-news/bed-bound-unimaginable-pain-watching-14474293 Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture]</ref>

Her story was featured in the BBC Newsbeat documentary, [[M.E. and Me]]. Her family also have a Facebook page in her memory where they raise awareness for ME called Merryn's Legacy.

==Learn more==

*[https://www.manchestereveningnews.co.uk/news/greater-manchester-news/bed-bound-unimaginable-pain-watching-14474293 'Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture']
*[https://www.rochdaleonline.co.uk/news-features/2/news-headlines/117790/heartbroken-family-tell-of-how-daughter-slowly-died-after-battling 'Heartbroken family tell of how daughter slowly died after battling ME']
*[http://www.ladbible.com/community/feels-young-girl-dies-from-illness-some-experts-refuse-to-believe-exists-20180402 'Young Girl Dies From Illness Some Experts Refuse To Believe Exists']
*[https://www.mirror.co.uk/news/uk-news/young-woman-dies-after-illness-12288945 'Daughter died aged 21 after illness some experts don't believe is real left her bed-bound and wasting away']
*[https://www.thesun.co.uk/news/5951733/merryn-croft-me-death-inquest-rochdale-illness/ '"ABSOLUTE TORTURE" Heartbroken mum reveals how she watched her daughter waste away in "unimaginable pain" while suffering from ME']
*[https://www.thesun.co.uk/fabulous/6235179/chronic-fatigue-syndrome-me-and-me/ 'Devastating disease Family of girl killed by ME say doctors told her it was all in her head – before it robbed her of everything']
*[http://www.dailymail.co.uk/news/article-5569091/Woman-dies-aged-21-weighing-just-six-stone-wasting-away-ME.html 'Mother releases pictures of daughter who died aged 21 weighing just six stone after wasting away from neurological disease ME that some experts still do not think is real']
*[http://www.itv.com/news/granada/2018-05-11/mother-fights-for-more-awareness-of-m-e-after-her-daughter-died-age-just-21/ 'Mother fights for more awareness of M.E. after daughter's death aged just 21']
*[https://www.facebook.com/MerrynsMagicalFund/ Facebook: 'Merryn's Magical Fund']

Regarding Merryn's inquest:

*[http://www.dailymail.co.uk/news/article-5748563/Drama-student-21-killed-rules-coroner-say-condition-mind.html#comments 'Drama student, 21, was killed by ME rules coroner even though some say condition is all in the mind']
*[https://www.mirror.co.uk/news/uk-news/young-woman-bed-bound-three-12559425 'Mother fights for more awareness of M.E. after daughter's death aged just 21']
*[https://www.manchestereveningnews.co.uk/news/greater-manchester-news/young-woman-who-spent-years-14678759 'Young woman who spent years battling ME died as a result of the "devastating and cruel" illness, inquest hears']
*[http://www.rochdaleonline.co.uk/news-features/2/news-headlines/118949/young-woman-from-norden-cause-of-death-attributed-to-myalgic-encephalomyelitis 'Young woman from Norden cause of death attributed to Myalgic Encephalomyelitis']

==References==
<references />

[[Category:People with ME, CFS, and/or FMS]]
[[Category:Deceased people with ME, CFS, and/or FMS]]

File:Times article 26 May 2018.jpg

2018-05-28T17:06:17Z

Christinakalinen 22:

Times article on Merryn Croft inquest

David Tuller

2018-05-25T16:59:55Z

Christinakalinen 22:/* Writings about ME/CFS */

[[File:David tuller.jpg|right]]
'''David M. Tuller''', DrPh, is a Senior Fellow in Public Health in Journalism at the Center of Global Public Health, School of Public Health, University of California, Berkeley, California.<ref>http://www.microbe.tv/twiv/twivs-tuller4/</ref> Previously to this appointment in July 2017, he was of academic coordinator of the University of California, Berkeley's joint masters program in public health and journalism. He's worked as a reporter and editor for ten years at the ''San Francisco Chronicle'', served as health editor at ''Salon.com'' and frequently writes about health for ''The New York Times''.<ref>[https://journalism.berkeley.edu/faculty/david_tuller/ University of California, Berkeley - Berkeley Journalism - David Tuller Bio]</ref>

He's an experienced public health activist with a background as an [https://en.wikipedia.org/wiki/ACT_UP#ACT_UP_New_York_actions ACT UP/NY] activist which included an arrest at the Wall Street demonstration in 1987.<ref>http://mpetrelis.blogspot.com/2013/05/jay-blotchers-act-up-friends-reunion-in.html</ref>

David Tuller covered the [[PACE trial]] results for ''The New York Times'' as health editor in February 2011. <ref>http://www.nytimes.com/2011/02/18/health/research/18fatigue.html </ref> However he became concerned about the trial and wrote a further article regarding case definitions which resulted in an immediate response from the PACE trial authors which resulted in him investigating the trial and its authors further after contact with others in the patient community. <ref>http://www.nytimes.com/2011/03/08/health/research/08fatigue.html </ref> <ref>http://www.nytimes.com/2011/03/15/health/15letters-STUDYINGAFAT_LETTERS.html </ref>

Tuller is sympathetic toward the cause of the [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] ([[ME/CFS]]) patient community. In an article in 2015 he wrote:

<blockquote>"In the course of my reporting, I’d realized that the disease was both devastating and widely misunderstood. People were really, really sick—some were homebound for months and years at a stretch. Yet their condition had been saddled with one of the most condescending names ever given a major illness."<ref>[http://alumni.berkeley.edu/california-magazine/just-in/2015-11-18/reporter-excoriates-chronic-fatigue-syndrome-study-i-stopped "Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped at 14,000 Words-Enough Was Enough"]</ref></blockquote>

In the spring of 2017, Tuller successfully raised money through Crowdrise, an online fundraising platform,<ref>https://www.crowdrise.com/</ref> in order to continue investigating and blogging about the [[PACE]] trial and and others issues related to [[ME/CFS]]. The funds raised went to the Center for Scientific Integrity who transferred them to the School of Public Health at University of California, Berkeley, which in turn created a position for Tuller to continue his investigative work.<ref>https://www.crowdrise.com/virology-blogs-trial-by-error-more-reporting-on-pace-mecfs-and-related-issues1</ref><ref>https://www.facebook.com/thisweekinvirology/posts/1422844667771846</ref>

In 2018, Tuller is renewing his crowdfunding campaign in order to continue his work on writing and speaking to raise awareness about [[ME/CFS]] and the error-ridden [[PACE trial]].

==Education==

*Doctor of Public Health
*2005, Masters in Public Health from University of California, Berkeley<ref>https://journalism.berkeley.edu/person/david_tuller/</ref>

==Awards==

*2016, [[IACFS/ME]] Special Service Award - for outstanding personal effort and contribution to the CFS/ME community
*2016, [[Tymes Trust]] Award for Scientific Journalism<ref>https://www.facebook.com/tymestrust/photos/pb.1482582732026864.-2207520000.1477637753./1823344051284062/?type=3&theater</ref>

==Talks and interviews==

*Apr 16, 2018 - [https://www.6pr.com.au/podcast/u-s-journalist-raising-awareness-for-chronic-fatigue/ U.S. Journalist raising awareness for Chronic Fatigue] interviewed on ''Perth Tonight with Chris Ilsley'']

*Apr 15, 2018 - [http://radioadelaide.org.au/2018/04/15/me-cfs-debunking-medical-myths/ ME/CFS – Debunking Medical Myths], A Conversation between Sue Gilbey, Dr David Tuller, Penelope McMillan & Tania Emms, highlighting the challenges of living with ME/CFS on Radio Adelaide

*Mar 2018 - [https://www.facebook.com/EmergeAustraliaInc/videos/10156242916534111/?fref=mentions&pnref=story Talk] with [[Emerge Australia]]

*Dec 26, 2017, [http://anilvanderzee.com/david-tuller-and-the-space-cake-eaters/ David Tuller and the (s)PACE cake eaters] interviewed by Anil van der Zee

*Oct 14, 2017, [http://www.microbe.tv/twiv/twivs-tuller4/ TWiV Special: Tear it up with David Tuller], interviewed by [[Vincent Racaniello]]

*June 1, 2017, Pre-Conference Dinner Speaker at the 12th [[Invest in ME International ME Conference]] on "#TearItUp" on his analysis of the [[Pace trial]]<ref>http://www.investinme.eu/IIMEC12-news-Pre-ConferenceDinner.shtml</ref>

:*[https://www.youtube.com/watch?v=6zWnVB_2lUU&feature=youtu.be Video of pre-conference dinner presentation]

*May 2017 - [https://www.youtube.com/watch?v=xbikuCqoD98 Interview with David Tuller PhD, Dublin, May 2017]

*May 31, 2017 - [[Virology blog]] Podcast: [http://www.microbe.tv/twiv/twivs-tuller3/ TWiV Special: Trial by Error, Continued] David Tuller returns to discuss the continuing saga of the UK’s [[PACE trial]] for [[chronic fatigue syndrome]], including the accusation that he is engaging in libelous blogging.

*Feb 20, 2017 - [[Chronic Fatigue: Missing Millions (Carte Blanche DSTV)]]

*Oct 29, 2016 - Undark Podcast [http://undark.org/2016/10/31/undark-podcast-chronic-fatigue/ #8: Worse Than the Disease] Dr. Tuller discusses [[Graded Exercise Therapy]] (GET) "a therapy commonly prescribed for chronic fatigue syndrome — one for which supporting research is now unraveling."

*Aug 21, 2016 - Virology blog Podcast: [http://www.microbe.tv/twiv/twiv-403/ TWiV 403: It’s not easy being vaccine] Discussion with David Tuller regarding PACE trial at 00.17.38- 00.23.57.

*Jul 10, 2016 - Virology blog Podcast: [http://www.microbe.tv/twiv/twiv-397/ TWiV 397: Trial by Error] Dr. Tuller speaks at length and in detail about the [[PACE trial]] (calling the PACE Trial preposterous and a pack of nonsense, and a piece of crap) and [[FINE trial]], ''[[The Lancet]]'', ''[[British Medical Journal]]'' (BMJ) and ''[[PLOS ONE]]'', patients being ill yet deconstructing the PACE Trial, how [[ME/CFS]] is a disease being treated inappropriately with [[Exercise]], [[GET]] and [[CBT]], touches on the [[Institute of Medicine report]] and [[SEID]], [[Valerie Eliot Smith]] and [[Karina Hansen]], and more.<ref>[http://www.microbe.tv/twiv/twiv-397/ TWiV 397: Trial by Error]</ref>

*Feb 28, 2016 - [https://www.youtube.com/watch?v=1fS6Gzc52VI Speech on PACE Trial with Q&As] in Amsterdam.

*Feb 27, 2016 - [https://www.youtube.com/watch?v=UN1bYhkDHA4&feature=youtu.be Discussed the flaws of the Pace trial] with [[Frank Twisk]] while in Amsterdam at The [[Forgotten Plague]] Conference.

*Feb 6, 2011 - Virology blog podcast: [http://www.twiv.tv/2011/02/06/twiv-119-science-and-journalism-with-david-tuller/ TWiV 119: Science and journalism with David Tuller]. Dr. Tuller appeared as a guest on [[Vincent Racaniello]]'s podcast.

==Writings about ME/CFS==

'''[[Trial By Error]] on Virology Blog'''

:'''2018'''

* May 23, 2018 - Trial By Error: More on the CDC; Reader’s Digest; and BBC’s [http://www.virology.ws/2018/05/23/trial-by-error-more-on-the-cdc-readers-digest-and-bbcs-newsbeat/ Newsbeat]

* May 14, 2018 - Trial By Error : Australia’s Online GET/CBT Education [http://www.virology.ws/2018/05/14/trial-by-error-australias-online-get-cbt-education-program/ Program]

* May 11, 2018 - [http://www.virology.ws/2018/05/11/trial-by-error-may-12th-international-me-awareness-day/ Trial By Error: May 12th-International ME Awareness Day]

*May 7, 2018 - [http://www.virology.ws/2018/05/07/trial-by-error-my-visits-with-alem-matthees/ Trial By Error: My Visits with Alem Matthees]
*May 2, 2018 - [http://www.virology.ws/2018/05/02/trial-by-error-a-q-and-a-with-leonard-jason-on-case-definition/ Trial By Error: A Q-and-A with Leonard Jason, on Case Definition]
*Apr 25, 2018 - [http://www.virology.ws/2018/04/25/trial-by-error-goodbye-australia-and-two-updates/ Trial By Error: Goodbye, Australia; and Two Updates]
*Apr 24, 2018 - [http://www.virology.ws/2018/04/24/trial-by-error-andrew-lloyds-past-endorsement-of-pace/ Trial By Error: Andrew Lloyd’s Past Endorsement of PACE]
*Apr 24, 2018 - [http://www.virology.ws/2018/04/24/trial-by-error-the-shopping-bag-study-and-new-york-states-revamped-website/ Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website]
*Apr 18, 2018 - [http://www.virology.ws/2018/04/18/trial-by-error-professor-michael-sharpes-gaffe-on-australian-radio/ Trial By Error: Professor Michael Sharpe’s Gaffe on Australian Radio]
*Apr 16, 2018 - [http://www.virology.ws/2018/04/16/trial-by-error-two-interview-podcasts-and-conflicts-of-interest/ Trial By Error: Two Interview Podcasts, and “Conflicts of Interest”]
*Apr 11, 2018 - [http://www.virology.ws/2018/04/11/trial-by-error-my-australian-tour-continued/ Trial By Error: My Australian Tour, Continued]
*Apr 4, 2018 - [http://www.virology.ws/2018/04/04/trial-by-error-a-terrific-piece-about-me-cfs-on-australian-tv/ Trial By Error: A Terrific Piece about ME/CFS on Australian TV]
*Apr 4, 2018 - [http://www.virology.ws/2018/04/04/trial-by-error-a-post-about-andrew-lloyd/ Trial By Error: A Post About Andrew Lloyd]
*Apr 2, 2018 - [http://www.virology.ws/2018/04/02/trial-by-error-my-berkeley-backed-crowdfunding-campaign/ Trial By Error: My Berkeley-Backed Crowdfunding Campaign]
*Apr 2, 2018 - [http://www.virology.ws/2018/04/02/trial-by-error-our-latest-tango-with-bmj-open/ Trial By Error: Our Latest Tango with BMJ Open…]
*Mar 28, 2018 - [http://www.virology.ws/2018/03/28/trial-by-error-a-q-and-a-with-scottish-mp-carol-monaghan/ Trial By Error: A Q-and-A with Scottish MP Carol Monaghan]
*Mar 27, 2018 - [http://www.virology.ws/2018/03/27/trial-by-error-my-time-in-canberra/ Trial By Error: My Time in Canberra]
*Mar 26, 2018 - [http://www.virology.ws/2018/03/26/trial-by-error-yet-another-go-round-with-bmj-open/ Trial By Error: Yet Another Go-Round with BMJ Open]
*Mar 21, 2018 - [http://www.virology.ws/2018/03/21/trial-by-error-checking-in-from-melbourne-and-canberra/ Trial By Error: Checking in from Melbourne and Canberra…]
*Mar 14, 2018 - [http://www.virology.ws/2018/03/14/trial-by-error-the-australian-situation-and-professor-crawleys-new-position/ Trial By Error: The Australian Situation, and Professor Crawley’s New Position]
*Mar 12, 2018 - [http://www.virology.ws/2018/03/12/trial-by-error-the-dutch-review-my-trip-bristols-silence/ Trial By Error: The Dutch Review; My Trip; Bristol’s Silence]
*Mar 7, 2018 - [http://www.virology.ws/2018/03/07/trial-by-error-yesterdays-news-from-the-cfs-me-research-collaborative/ Trial By Error: Yesterday’s News from the CFS/ME Research Collaborative]
*Mar 7, 2018 - [http://www.virology.ws/2018/03/07/trial-by-error-my-exchange-with-archives-of-disease-in-childhood/ Trial By Error: My Exchange With Archives of Disease in Childhood]
*Mar 5, 2018 - [http://www.virology.ws/2018/03/05/trial-by-error-news-about-my-plans/ Trial By Error: News About My Plans]
*Feb 26, 2018 - [http://www.virology.ws/2018/02/26/trial-by-error-our-exchange-of-views-with-bmj-open/ Trial By Error: Our Exchange of Views with BMJ Open]
*Feb 19, 2018 - [http://www.virology.ws/2018/02/19/trial-by-error-a-letter-to-bmj-open/ Trial By Error: A Letter to BMJ Open]
*Feb 13, 2018 - [http://www.virology.ws/2018/02/13/trial-by-error-qmul-and-foi-nature-and-cochrane-the-pineapple-fund/ Trial By Error: QMUL and FOI; Nature and Cochrane; the Pineapple Fund]
*Feb 5, 2018 - [http://www.virology.ws/2018/02/05/trial-by-error-letter-to-british-journal-of-sports-medicine-from-cpet-experts/ Trial By Error: Letter to British Journal of Sports Medicine from CPET Experts]
*Jan 30, 2018 - [http://www.virology.ws/2018/01/30/trial-by-error-a-letter-to-archives-of-disease-in-childhood/ Trial By Error: A Letter to Archives of Disease in Childhood]
*Jan 17, 2018 - [http://www.virology.ws/2018/01/17/trial-by-error-professor-crawleys-bogus-buzzfeed-claims/ Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims]
*Jan 15, 2018 - [http://www.virology.ws/2018/01/15/trial-by-error-my-six-month-review/ Trial By Error: My Six-Month Review]
*Jan 3, 2018 - [http://www.virology.ws/2018/01/03/trial-by-error-cope-to-bmj-open-more-details-please/ Trial By Error: Cope to BMJ Open: More Details Please]
*Jan 2, 2018 - [http://www.virology.ws/2018/01/02/trial-by-error-the-school-absence-study-revisited/ Trial By Error: The School Absence Study, Revisited]

(Older blog entries can be found on the [[Trial By Error]] page.)

'''The New York Times'''

*Mar 18, 2017 - [https://www.nytimes.com/2017/03/18/opinion/sunday/getting-it-wrong-on-chronic-fatigue-syndrome.html?smid=tw-share&_r=0 Getting It Wrong on Chronic Fatigue Syndrome] (with [[Julie Rehmeyer]]) and Letters of response' [https://mobile.nytimes.com/2017/03/27/opinion/understanding-and-treating-chronic-fatigue.html?em_pos=small&emc=edit_ty_20170327&nl=opinion-today&nl_art=14&nlid=77538787&ref=headline&te=1&referer= Letters - The New York Times]
*Feb 10, 2015 - [http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/ Chronic Fatigue Syndrome Gets a New Name]
*Nov 24, 2014 - [[Brains of People With Chronic Fatigue Syndrome Offer Clues About Disorder - New York Times: Well (2014)]]
*Sep 18, 2012 - [http://well.blogs.nytimes.com/2012/09/18/chronic-fatigue-syndrome-back-to-square-1/ Chronic Fatigue Syndrome Back to Square 1]
*Feb 6, 2012 - [http://www.nytimes.com/2012/02/07/health/fallout-from-fatigue-syndrome-retraction-is-far-and-wide.html?pagewanted=1&_r=1 Fallout From Fatigue Syndrome Retraction Is Wide]
*Dec 26, 2011 - [http://www.nytimes.com/2011/12/27/health/research/scholars-retract-another-study-linking-xmrv-to-chronic-fatigue-syndrome.html Scholars Retract Another Study Linking Virus to Fatigue Syndrome]
*Dec 22, 2011 - [http://www.nytimes.com/2011/12/23/health/research/science-journal-retracts-chronic-fatigue-syndrome-paper.html?ref=research Fatigue Syndrome Study Is Retracted by Journal]
*Sep 22, 2011 - [http://www.nytimes.com/2011/09/23/health/research/23fatigue.html Viral Theory Is Set Back in Chronic Fatigue Syndrome Study]
*Jun 1, 2011 - [http://www.nytimes.com/2011/06/01/health/research/01fatigue.html?_r=1 2 Studies Examine Syndrome of Fatigue]
*Mar 4, 2011 - [http://www.nytimes.com/2011/03/08/health/research/08fatigue.html Defining an Illness Is Fodder for Debate]
*Feb 17, 2011 - [http://www.nytimes.com/2011/02/18/health/research/18fatigue.html Psychotherapy Eases Chronic Fatigue Syndrome, Study Finds]
*Jan 3, 2011 - [http://www.nytimes.com/2011/01/04/health/04fatigue.html Exhausted by Illness, and Doubts]
*Aug 24, 2010 - [http://query.nytimes.com/gst/fullpage.html?res=9C00E4DB1439F937A1575BC0A9669D8B63 Study Links Chronic Fatigue to Virus Class]
*May 30, 2008 - [http://www.nytimes.com/ref/health/healthguide/esn-chronicfatigue-expert.html Learning Firsthand About Chronic Fatigue Syndrome]
*May 30, 2008 - [http://www.nytimes.com/ref/health/healthguide/esn-chronicfatigue-questions.html What to Ask About Chronic Fatigue Syndrome]
*Jul 17, 2007 - [http://www.nytimes.com/2007/07/17/science/17fatigue.html Chronic Fatigue No Longer Seen as 'Yuppie Flu']

'''Other print media'''

*2018, Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT<ref name="Wilshire, 2018" /> [https://www.researchgate.net/publication/322568480_Rethinking_the_treatment_of_chronic_fatigue_syndrome-A_reanalysis_and_evaluation_of_findings_from_a_recent_major_trial_of_graded_exercise_and_CBT (Full Text)]
* Sep 25, 2017 - [https://www.statnews.com/2017/09/25/chronic-fatigue-syndrome-cdc/ Why did it take the CDC so long to reverse course on debunked treatments for chronic fatigue syndrome?] ''StatNews'' by David Tuller and [[Julie Rehmeyer]]
*Jul 26, 2017 - [https://undark.org/2017/07/26/cdc-chronic-fatigue-graded-exercise/ CDC Removes Reference to Disputed ME/CFS Therapies From Website] ''Undark''
*Apr 27, 2017 - [http://journals.sagepub.com/doi/full/10.1177/1359105317703788 Once again, the PACE authors respond to concerns with empty answers] ''Journal of Health Psychology''
*Oct 27, 2016 - [http://undark.org/article/chronic-fatigue-graded-exercise-pace/ Worse Than the Disease] ''Undark''
*Nov 18, 2015 - [http://alumni.berkeley.edu/california-magazine/just-in/2015-11-18/reporter-excoriates-chronic-fatigue-syndrome-study-i-stopped Reporter Excoriates Chronic Fatigue Syndrome Study: "I Stopped at 14,000 Words-Enough Was Enough"] ''California Magazine''
*Jan 27, 2014 - [http://www.buzzfeed.com/davidtuller/chronic-fatigue-syndrome#.tnegBjJ82 How 'Chronic Fatigue Syndrome' Obscures A Serious Illness] ''Buzzfeed''

In June 2017 after writing dozens of articles and organising open letters on the PACE trial, David Tuller sought crowdfunding help from the patient community to continue his work on investigating the PACE trial. MEAction had an exclusive interview about his crowdfunding effort <ref>[http://www.meaction.net/2017/06/08/interview-with-tuller-on-pace-work/?mc_cid=fd937eaa3d&mc_eid=83ddbd3a71 Tuller on PACE Investigation Plans: Not Beholden to anyone] </ref>. He raised it on Crowdrise [https://www.crowdrise.com/virology-blogs-trial-by-error-more-reporting-on-pace-mecfs-and-related-issues1/fundraiser/davidtuller?utm_source=dash-gtwo-cr&utm_platform=twt&utm_device=desktop Virology Blog's Trial By Error: Reporting on PACE, ME/CFS and Related Issues (2017] and succeeded and actually exceeded his goal within four weeks.

==Online presence==

*[http://www.twitter.com/davidtuller1 Twitter]
*[https://www.researchgate.net/profile/David_Tuller ResearchGate]

==Learn more==

*[http://www.berkeleywellness.com/author/davidtullerdrph Berkeley Wellness - David Tuller]

==References==
<references>
<ref name="Wilshire, 2018">{{Citation
| last1 = Wilshire | first1 = C | authorlink1 = Carolyn Wilshire
| last2 = Kindlon | first2 = T | authorlink2 = Tom Kindlon
| last3 = Courtney | first3 = R | authorlink3 = Robert Courtney
| last4 = Matthees | first4 = A | authorlink4 = Alem Matthees
| last5 = Tuller | first5 = D | authorlink5 = David Tuller
| last6 = Geraghty | first6 = K | authorlink6 = Keith Geraghty
| last7 = Levin | first7 = B | authorlink7 = Bruce Levin
| title = Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
| journal = ResearchGate | volume = | issue = | page =
| date = 2018
| doi =
| url = https://www.researchgate.net/publication/322568480_Rethinking_the_treatment_of_chronic_fatigue_syndrome-A_reanalysis_and_evaluation_of_findings_from_a_recent_major_trial_of_graded_exercise_and_CBT
}}
</ref>
</references>

[[Category:Journalists]]
[[Category:Advocates or allies]]
[[Category:Psychological paradigm critics]]
[[Category:PACE trial critics]]

David Tuller

2018-05-25T16:55:19Z

Christinakalinen 22:/* Writings about ME/CFS */

[[File:David tuller.jpg|right]]
'''David M. Tuller''', DrPh, is a Senior Fellow in Public Health in Journalism at the Center of Global Public Health, School of Public Health, University of California, Berkeley, California.<ref>http://www.microbe.tv/twiv/twivs-tuller4/</ref> Previously to this appointment in July 2017, he was of academic coordinator of the University of California, Berkeley's joint masters program in public health and journalism. He's worked as a reporter and editor for ten years at the ''San Francisco Chronicle'', served as health editor at ''Salon.com'' and frequently writes about health for ''The New York Times''.<ref>[https://journalism.berkeley.edu/faculty/david_tuller/ University of California, Berkeley - Berkeley Journalism - David Tuller Bio]</ref>

He's an experienced public health activist with a background as an [https://en.wikipedia.org/wiki/ACT_UP#ACT_UP_New_York_actions ACT UP/NY] activist which included an arrest at the Wall Street demonstration in 1987.<ref>http://mpetrelis.blogspot.com/2013/05/jay-blotchers-act-up-friends-reunion-in.html</ref>

David Tuller covered the [[PACE trial]] results for ''The New York Times'' as health editor in February 2011. <ref>http://www.nytimes.com/2011/02/18/health/research/18fatigue.html </ref> However he became concerned about the trial and wrote a further article regarding case definitions which resulted in an immediate response from the PACE trial authors which resulted in him investigating the trial and its authors further after contact with others in the patient community. <ref>http://www.nytimes.com/2011/03/08/health/research/08fatigue.html </ref> <ref>http://www.nytimes.com/2011/03/15/health/15letters-STUDYINGAFAT_LETTERS.html </ref>

Tuller is sympathetic toward the cause of the [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] ([[ME/CFS]]) patient community. In an article in 2015 he wrote:

<blockquote>"In the course of my reporting, I’d realized that the disease was both devastating and widely misunderstood. People were really, really sick—some were homebound for months and years at a stretch. Yet their condition had been saddled with one of the most condescending names ever given a major illness."<ref>[http://alumni.berkeley.edu/california-magazine/just-in/2015-11-18/reporter-excoriates-chronic-fatigue-syndrome-study-i-stopped "Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped at 14,000 Words-Enough Was Enough"]</ref></blockquote>

In the spring of 2017, Tuller successfully raised money through Crowdrise, an online fundraising platform,<ref>https://www.crowdrise.com/</ref> in order to continue investigating and blogging about the [[PACE]] trial and and others issues related to [[ME/CFS]]. The funds raised went to the Center for Scientific Integrity who transferred them to the School of Public Health at University of California, Berkeley, which in turn created a position for Tuller to continue his investigative work.<ref>https://www.crowdrise.com/virology-blogs-trial-by-error-more-reporting-on-pace-mecfs-and-related-issues1</ref><ref>https://www.facebook.com/thisweekinvirology/posts/1422844667771846</ref>

In 2018, Tuller is renewing his crowdfunding campaign in order to continue his work on writing and speaking to raise awareness about [[ME/CFS]] and the error-ridden [[PACE trial]].

==Education==

*Doctor of Public Health
*2005, Masters in Public Health from University of California, Berkeley<ref>https://journalism.berkeley.edu/person/david_tuller/</ref>

==Awards==

*2016, [[IACFS/ME]] Special Service Award - for outstanding personal effort and contribution to the CFS/ME community
*2016, [[Tymes Trust]] Award for Scientific Journalism<ref>https://www.facebook.com/tymestrust/photos/pb.1482582732026864.-2207520000.1477637753./1823344051284062/?type=3&theater</ref>

==Talks and interviews==

*Apr 16, 2018 - [https://www.6pr.com.au/podcast/u-s-journalist-raising-awareness-for-chronic-fatigue/ U.S. Journalist raising awareness for Chronic Fatigue] interviewed on ''Perth Tonight with Chris Ilsley'']

*Apr 15, 2018 - [http://radioadelaide.org.au/2018/04/15/me-cfs-debunking-medical-myths/ ME/CFS – Debunking Medical Myths], A Conversation between Sue Gilbey, Dr David Tuller, Penelope McMillan & Tania Emms, highlighting the challenges of living with ME/CFS on Radio Adelaide

*Mar 2018 - [https://www.facebook.com/EmergeAustraliaInc/videos/10156242916534111/?fref=mentions&pnref=story Talk] with [[Emerge Australia]]

*Dec 26, 2017, [http://anilvanderzee.com/david-tuller-and-the-space-cake-eaters/ David Tuller and the (s)PACE cake eaters] interviewed by Anil van der Zee

*Oct 14, 2017, [http://www.microbe.tv/twiv/twivs-tuller4/ TWiV Special: Tear it up with David Tuller], interviewed by [[Vincent Racaniello]]

*June 1, 2017, Pre-Conference Dinner Speaker at the 12th [[Invest in ME International ME Conference]] on "#TearItUp" on his analysis of the [[Pace trial]]<ref>http://www.investinme.eu/IIMEC12-news-Pre-ConferenceDinner.shtml</ref>

:*[https://www.youtube.com/watch?v=6zWnVB_2lUU&feature=youtu.be Video of pre-conference dinner presentation]

*May 2017 - [https://www.youtube.com/watch?v=xbikuCqoD98 Interview with David Tuller PhD, Dublin, May 2017]

*May 31, 2017 - [[Virology blog]] Podcast: [http://www.microbe.tv/twiv/twivs-tuller3/ TWiV Special: Trial by Error, Continued] David Tuller returns to discuss the continuing saga of the UK’s [[PACE trial]] for [[chronic fatigue syndrome]], including the accusation that he is engaging in libelous blogging.

*Feb 20, 2017 - [[Chronic Fatigue: Missing Millions (Carte Blanche DSTV)]]

*Oct 29, 2016 - Undark Podcast [http://undark.org/2016/10/31/undark-podcast-chronic-fatigue/ #8: Worse Than the Disease] Dr. Tuller discusses [[Graded Exercise Therapy]] (GET) "a therapy commonly prescribed for chronic fatigue syndrome — one for which supporting research is now unraveling."

*Aug 21, 2016 - Virology blog Podcast: [http://www.microbe.tv/twiv/twiv-403/ TWiV 403: It’s not easy being vaccine] Discussion with David Tuller regarding PACE trial at 00.17.38- 00.23.57.

*Jul 10, 2016 - Virology blog Podcast: [http://www.microbe.tv/twiv/twiv-397/ TWiV 397: Trial by Error] Dr. Tuller speaks at length and in detail about the [[PACE trial]] (calling the PACE Trial preposterous and a pack of nonsense, and a piece of crap) and [[FINE trial]], ''[[The Lancet]]'', ''[[British Medical Journal]]'' (BMJ) and ''[[PLOS ONE]]'', patients being ill yet deconstructing the PACE Trial, how [[ME/CFS]] is a disease being treated inappropriately with [[Exercise]], [[GET]] and [[CBT]], touches on the [[Institute of Medicine report]] and [[SEID]], [[Valerie Eliot Smith]] and [[Karina Hansen]], and more.<ref>[http://www.microbe.tv/twiv/twiv-397/ TWiV 397: Trial by Error]</ref>

*Feb 28, 2016 - [https://www.youtube.com/watch?v=1fS6Gzc52VI Speech on PACE Trial with Q&As] in Amsterdam.

*Feb 27, 2016 - [https://www.youtube.com/watch?v=UN1bYhkDHA4&feature=youtu.be Discussed the flaws of the Pace trial] with [[Frank Twisk]] while in Amsterdam at The [[Forgotten Plague]] Conference.

*Feb 6, 2011 - Virology blog podcast: [http://www.twiv.tv/2011/02/06/twiv-119-science-and-journalism-with-david-tuller/ TWiV 119: Science and journalism with David Tuller]. Dr. Tuller appeared as a guest on [[Vincent Racaniello]]'s podcast.

==Writings about ME/CFS==

'''[[Trial By Error]] on Virology Blog'''

:'''2018'''

* May 23, 2018 - Trial By Error: More on the CDC; Reader’s Digest; and BBC’s [http://www.virology.ws/2018/05/23/trial-by-error-more-on-the-cdc-readers-digest-and-bbcs-newsbeat/ Newsbeat]

* May 14, 2018 - Trial By Error : Australia’s Online GET/CBT Education [http://www.virology.ws/2018/05/14/trial-by-error-australias-online-get-cbt-education-program/ Program]

* May 11, 2018 - Trial By Error: May 12th-International ME Awareness [http://www.virology.ws/2018/05/11/trial-by-error-may-12th-international-me-awareness-day/ Day]

*May 7, 2018 - [http://www.virology.ws/2018/05/07/trial-by-error-my-visits-with-alem-matthees/ Trial By Error: My Visits with Alem Matthees]
*May 2, 2018 - [http://www.virology.ws/2018/05/02/trial-by-error-a-q-and-a-with-leonard-jason-on-case-definition/ Trial By Error: A Q-and-A with Leonard Jason, on Case Definition]
*Apr 25, 2018 - [http://www.virology.ws/2018/04/25/trial-by-error-goodbye-australia-and-two-updates/ Trial By Error: Goodbye, Australia; and Two Updates]
*Apr 24, 2018 - [http://www.virology.ws/2018/04/24/trial-by-error-andrew-lloyds-past-endorsement-of-pace/ Trial By Error: Andrew Lloyd’s Past Endorsement of PACE]
*Apr 24, 2018 - [http://www.virology.ws/2018/04/24/trial-by-error-the-shopping-bag-study-and-new-york-states-revamped-website/ Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website]
*Apr 18, 2018 - [http://www.virology.ws/2018/04/18/trial-by-error-professor-michael-sharpes-gaffe-on-australian-radio/ Trial By Error: Professor Michael Sharpe’s Gaffe on Australian Radio]
*Apr 16, 2018 - [http://www.virology.ws/2018/04/16/trial-by-error-two-interview-podcasts-and-conflicts-of-interest/ Trial By Error: Two Interview Podcasts, and “Conflicts of Interest”]
*Apr 11, 2018 - [http://www.virology.ws/2018/04/11/trial-by-error-my-australian-tour-continued/ Trial By Error: My Australian Tour, Continued]
*Apr 4, 2018 - [http://www.virology.ws/2018/04/04/trial-by-error-a-terrific-piece-about-me-cfs-on-australian-tv/ Trial By Error: A Terrific Piece about ME/CFS on Australian TV]
*Apr 4, 2018 - [http://www.virology.ws/2018/04/04/trial-by-error-a-post-about-andrew-lloyd/ Trial By Error: A Post About Andrew Lloyd]
*Apr 2, 2018 - [http://www.virology.ws/2018/04/02/trial-by-error-my-berkeley-backed-crowdfunding-campaign/ Trial By Error: My Berkeley-Backed Crowdfunding Campaign]
*Apr 2, 2018 - [http://www.virology.ws/2018/04/02/trial-by-error-our-latest-tango-with-bmj-open/ Trial By Error: Our Latest Tango with BMJ Open…]
*Mar 28, 2018 - [http://www.virology.ws/2018/03/28/trial-by-error-a-q-and-a-with-scottish-mp-carol-monaghan/ Trial By Error: A Q-and-A with Scottish MP Carol Monaghan]
*Mar 27, 2018 - [http://www.virology.ws/2018/03/27/trial-by-error-my-time-in-canberra/ Trial By Error: My Time in Canberra]
*Mar 26, 2018 - [http://www.virology.ws/2018/03/26/trial-by-error-yet-another-go-round-with-bmj-open/ Trial By Error: Yet Another Go-Round with BMJ Open]
*Mar 21, 2018 - [http://www.virology.ws/2018/03/21/trial-by-error-checking-in-from-melbourne-and-canberra/ Trial By Error: Checking in from Melbourne and Canberra…]
*Mar 14, 2018 - [http://www.virology.ws/2018/03/14/trial-by-error-the-australian-situation-and-professor-crawleys-new-position/ Trial By Error: The Australian Situation, and Professor Crawley’s New Position]
*Mar 12, 2018 - [http://www.virology.ws/2018/03/12/trial-by-error-the-dutch-review-my-trip-bristols-silence/ Trial By Error: The Dutch Review; My Trip; Bristol’s Silence]
*Mar 7, 2018 - [http://www.virology.ws/2018/03/07/trial-by-error-yesterdays-news-from-the-cfs-me-research-collaborative/ Trial By Error: Yesterday’s News from the CFS/ME Research Collaborative]
*Mar 7, 2018 - [http://www.virology.ws/2018/03/07/trial-by-error-my-exchange-with-archives-of-disease-in-childhood/ Trial By Error: My Exchange With Archives of Disease in Childhood]
*Mar 5, 2018 - [http://www.virology.ws/2018/03/05/trial-by-error-news-about-my-plans/ Trial By Error: News About My Plans]
*Feb 26, 2018 - [http://www.virology.ws/2018/02/26/trial-by-error-our-exchange-of-views-with-bmj-open/ Trial By Error: Our Exchange of Views with BMJ Open]
*Feb 19, 2018 - [http://www.virology.ws/2018/02/19/trial-by-error-a-letter-to-bmj-open/ Trial By Error: A Letter to BMJ Open]
*Feb 13, 2018 - [http://www.virology.ws/2018/02/13/trial-by-error-qmul-and-foi-nature-and-cochrane-the-pineapple-fund/ Trial By Error: QMUL and FOI; Nature and Cochrane; the Pineapple Fund]
*Feb 5, 2018 - [http://www.virology.ws/2018/02/05/trial-by-error-letter-to-british-journal-of-sports-medicine-from-cpet-experts/ Trial By Error: Letter to British Journal of Sports Medicine from CPET Experts]
*Jan 30, 2018 - [http://www.virology.ws/2018/01/30/trial-by-error-a-letter-to-archives-of-disease-in-childhood/ Trial By Error: A Letter to Archives of Disease in Childhood]
*Jan 17, 2018 - [http://www.virology.ws/2018/01/17/trial-by-error-professor-crawleys-bogus-buzzfeed-claims/ Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims]
*Jan 15, 2018 - [http://www.virology.ws/2018/01/15/trial-by-error-my-six-month-review/ Trial By Error: My Six-Month Review]
*Jan 3, 2018 - [http://www.virology.ws/2018/01/03/trial-by-error-cope-to-bmj-open-more-details-please/ Trial By Error: Cope to BMJ Open: More Details Please]
*Jan 2, 2018 - [http://www.virology.ws/2018/01/02/trial-by-error-the-school-absence-study-revisited/ Trial By Error: The School Absence Study, Revisited]

(Older blog entries can be found on the [[Trial By Error]] page.)

'''The New York Times'''

*Mar 18, 2017 - [https://www.nytimes.com/2017/03/18/opinion/sunday/getting-it-wrong-on-chronic-fatigue-syndrome.html?smid=tw-share&_r=0 Getting It Wrong on Chronic Fatigue Syndrome] (with [[Julie Rehmeyer]]) and Letters of response' [https://mobile.nytimes.com/2017/03/27/opinion/understanding-and-treating-chronic-fatigue.html?em_pos=small&emc=edit_ty_20170327&nl=opinion-today&nl_art=14&nlid=77538787&ref=headline&te=1&referer= Letters - The New York Times]
*Feb 10, 2015 - [http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/ Chronic Fatigue Syndrome Gets a New Name]
*Nov 24, 2014 - [[Brains of People With Chronic Fatigue Syndrome Offer Clues About Disorder - New York Times: Well (2014)]]
*Sep 18, 2012 - [http://well.blogs.nytimes.com/2012/09/18/chronic-fatigue-syndrome-back-to-square-1/ Chronic Fatigue Syndrome Back to Square 1]
*Feb 6, 2012 - [http://www.nytimes.com/2012/02/07/health/fallout-from-fatigue-syndrome-retraction-is-far-and-wide.html?pagewanted=1&_r=1 Fallout From Fatigue Syndrome Retraction Is Wide]
*Dec 26, 2011 - [http://www.nytimes.com/2011/12/27/health/research/scholars-retract-another-study-linking-xmrv-to-chronic-fatigue-syndrome.html Scholars Retract Another Study Linking Virus to Fatigue Syndrome]
*Dec 22, 2011 - [http://www.nytimes.com/2011/12/23/health/research/science-journal-retracts-chronic-fatigue-syndrome-paper.html?ref=research Fatigue Syndrome Study Is Retracted by Journal]
*Sep 22, 2011 - [http://www.nytimes.com/2011/09/23/health/research/23fatigue.html Viral Theory Is Set Back in Chronic Fatigue Syndrome Study]
*Jun 1, 2011 - [http://www.nytimes.com/2011/06/01/health/research/01fatigue.html?_r=1 2 Studies Examine Syndrome of Fatigue]
*Mar 4, 2011 - [http://www.nytimes.com/2011/03/08/health/research/08fatigue.html Defining an Illness Is Fodder for Debate]
*Feb 17, 2011 - [http://www.nytimes.com/2011/02/18/health/research/18fatigue.html Psychotherapy Eases Chronic Fatigue Syndrome, Study Finds]
*Jan 3, 2011 - [http://www.nytimes.com/2011/01/04/health/04fatigue.html Exhausted by Illness, and Doubts]
*Aug 24, 2010 - [http://query.nytimes.com/gst/fullpage.html?res=9C00E4DB1439F937A1575BC0A9669D8B63 Study Links Chronic Fatigue to Virus Class]
*May 30, 2008 - [http://www.nytimes.com/ref/health/healthguide/esn-chronicfatigue-expert.html Learning Firsthand About Chronic Fatigue Syndrome]
*May 30, 2008 - [http://www.nytimes.com/ref/health/healthguide/esn-chronicfatigue-questions.html What to Ask About Chronic Fatigue Syndrome]
*Jul 17, 2007 - [http://www.nytimes.com/2007/07/17/science/17fatigue.html Chronic Fatigue No Longer Seen as 'Yuppie Flu']

'''Other print media'''

*2018, Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT<ref name="Wilshire, 2018" /> [https://www.researchgate.net/publication/322568480_Rethinking_the_treatment_of_chronic_fatigue_syndrome-A_reanalysis_and_evaluation_of_findings_from_a_recent_major_trial_of_graded_exercise_and_CBT (Full Text)]
* Sep 25, 2017 - [https://www.statnews.com/2017/09/25/chronic-fatigue-syndrome-cdc/ Why did it take the CDC so long to reverse course on debunked treatments for chronic fatigue syndrome?] ''StatNews'' by David Tuller and [[Julie Rehmeyer]]
*Jul 26, 2017 - [https://undark.org/2017/07/26/cdc-chronic-fatigue-graded-exercise/ CDC Removes Reference to Disputed ME/CFS Therapies From Website] ''Undark''
*Apr 27, 2017 - [http://journals.sagepub.com/doi/full/10.1177/1359105317703788 Once again, the PACE authors respond to concerns with empty answers] ''Journal of Health Psychology''
*Oct 27, 2016 - [http://undark.org/article/chronic-fatigue-graded-exercise-pace/ Worse Than the Disease] ''Undark''
*Nov 18, 2015 - [http://alumni.berkeley.edu/california-magazine/just-in/2015-11-18/reporter-excoriates-chronic-fatigue-syndrome-study-i-stopped Reporter Excoriates Chronic Fatigue Syndrome Study: "I Stopped at 14,000 Words-Enough Was Enough"] ''California Magazine''
*Jan 27, 2014 - [http://www.buzzfeed.com/davidtuller/chronic-fatigue-syndrome#.tnegBjJ82 How 'Chronic Fatigue Syndrome' Obscures A Serious Illness] ''Buzzfeed''

In June 2017 after writing dozens of articles and organising open letters on the PACE trial, David Tuller sought crowdfunding help from the patient community to continue his work on investigating the PACE trial. MEAction had an exclusive interview about his crowdfunding effort <ref>[http://www.meaction.net/2017/06/08/interview-with-tuller-on-pace-work/?mc_cid=fd937eaa3d&mc_eid=83ddbd3a71 Tuller on PACE Investigation Plans: Not Beholden to anyone] </ref>. He raised it on Crowdrise [https://www.crowdrise.com/virology-blogs-trial-by-error-more-reporting-on-pace-mecfs-and-related-issues1/fundraiser/davidtuller?utm_source=dash-gtwo-cr&utm_platform=twt&utm_device=desktop Virology Blog's Trial By Error: Reporting on PACE, ME/CFS and Related Issues (2017] and succeeded and actually exceeded his goal within four weeks.

==Online presence==

*[http://www.twitter.com/davidtuller1 Twitter]
*[https://www.researchgate.net/profile/David_Tuller ResearchGate]

==Learn more==

*[http://www.berkeleywellness.com/author/davidtullerdrph Berkeley Wellness - David Tuller]

==References==
<references>
<ref name="Wilshire, 2018">{{Citation
| last1 = Wilshire | first1 = C | authorlink1 = Carolyn Wilshire
| last2 = Kindlon | first2 = T | authorlink2 = Tom Kindlon
| last3 = Courtney | first3 = R | authorlink3 = Robert Courtney
| last4 = Matthees | first4 = A | authorlink4 = Alem Matthees
| last5 = Tuller | first5 = D | authorlink5 = David Tuller
| last6 = Geraghty | first6 = K | authorlink6 = Keith Geraghty
| last7 = Levin | first7 = B | authorlink7 = Bruce Levin
| title = Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
| journal = ResearchGate | volume = | issue = | page =
| date = 2018
| doi =
| url = https://www.researchgate.net/publication/322568480_Rethinking_the_treatment_of_chronic_fatigue_syndrome-A_reanalysis_and_evaluation_of_findings_from_a_recent_major_trial_of_graded_exercise_and_CBT
}}
</ref>
</references>

[[Category:Journalists]]
[[Category:Advocates or allies]]
[[Category:Psychological paradigm critics]]
[[Category:PACE trial critics]]

David Tuller

2018-05-25T16:50:45Z

Christinakalinen 22:/* Writings about ME/CFS */

[[File:David tuller.jpg|right]]
'''David M. Tuller''', DrPh, is a Senior Fellow in Public Health in Journalism at the Center of Global Public Health, School of Public Health, University of California, Berkeley, California.<ref>http://www.microbe.tv/twiv/twivs-tuller4/</ref> Previously to this appointment in July 2017, he was of academic coordinator of the University of California, Berkeley's joint masters program in public health and journalism. He's worked as a reporter and editor for ten years at the ''San Francisco Chronicle'', served as health editor at ''Salon.com'' and frequently writes about health for ''The New York Times''.<ref>[https://journalism.berkeley.edu/faculty/david_tuller/ University of California, Berkeley - Berkeley Journalism - David Tuller Bio]</ref>

He's an experienced public health activist with a background as an [https://en.wikipedia.org/wiki/ACT_UP#ACT_UP_New_York_actions ACT UP/NY] activist which included an arrest at the Wall Street demonstration in 1987.<ref>http://mpetrelis.blogspot.com/2013/05/jay-blotchers-act-up-friends-reunion-in.html</ref>

David Tuller covered the [[PACE trial]] results for ''The New York Times'' as health editor in February 2011. <ref>http://www.nytimes.com/2011/02/18/health/research/18fatigue.html </ref> However he became concerned about the trial and wrote a further article regarding case definitions which resulted in an immediate response from the PACE trial authors which resulted in him investigating the trial and its authors further after contact with others in the patient community. <ref>http://www.nytimes.com/2011/03/08/health/research/08fatigue.html </ref> <ref>http://www.nytimes.com/2011/03/15/health/15letters-STUDYINGAFAT_LETTERS.html </ref>

Tuller is sympathetic toward the cause of the [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] ([[ME/CFS]]) patient community. In an article in 2015 he wrote:

<blockquote>"In the course of my reporting, I’d realized that the disease was both devastating and widely misunderstood. People were really, really sick—some were homebound for months and years at a stretch. Yet their condition had been saddled with one of the most condescending names ever given a major illness."<ref>[http://alumni.berkeley.edu/california-magazine/just-in/2015-11-18/reporter-excoriates-chronic-fatigue-syndrome-study-i-stopped "Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped at 14,000 Words-Enough Was Enough"]</ref></blockquote>

In the spring of 2017, Tuller successfully raised money through Crowdrise, an online fundraising platform,<ref>https://www.crowdrise.com/</ref> in order to continue investigating and blogging about the [[PACE]] trial and and others issues related to [[ME/CFS]]. The funds raised went to the Center for Scientific Integrity who transferred them to the School of Public Health at University of California, Berkeley, which in turn created a position for Tuller to continue his investigative work.<ref>https://www.crowdrise.com/virology-blogs-trial-by-error-more-reporting-on-pace-mecfs-and-related-issues1</ref><ref>https://www.facebook.com/thisweekinvirology/posts/1422844667771846</ref>

In 2018, Tuller is renewing his crowdfunding campaign in order to continue his work on writing and speaking to raise awareness about [[ME/CFS]] and the error-ridden [[PACE trial]].

==Education==

*Doctor of Public Health
*2005, Masters in Public Health from University of California, Berkeley<ref>https://journalism.berkeley.edu/person/david_tuller/</ref>

==Awards==

*2016, [[IACFS/ME]] Special Service Award - for outstanding personal effort and contribution to the CFS/ME community
*2016, [[Tymes Trust]] Award for Scientific Journalism<ref>https://www.facebook.com/tymestrust/photos/pb.1482582732026864.-2207520000.1477637753./1823344051284062/?type=3&theater</ref>

==Talks and interviews==

*Apr 16, 2018 - [https://www.6pr.com.au/podcast/u-s-journalist-raising-awareness-for-chronic-fatigue/ U.S. Journalist raising awareness for Chronic Fatigue] interviewed on ''Perth Tonight with Chris Ilsley'']

*Apr 15, 2018 - [http://radioadelaide.org.au/2018/04/15/me-cfs-debunking-medical-myths/ ME/CFS – Debunking Medical Myths], A Conversation between Sue Gilbey, Dr David Tuller, Penelope McMillan & Tania Emms, highlighting the challenges of living with ME/CFS on Radio Adelaide

*Mar 2018 - [https://www.facebook.com/EmergeAustraliaInc/videos/10156242916534111/?fref=mentions&pnref=story Talk] with [[Emerge Australia]]

*Dec 26, 2017, [http://anilvanderzee.com/david-tuller-and-the-space-cake-eaters/ David Tuller and the (s)PACE cake eaters] interviewed by Anil van der Zee

*Oct 14, 2017, [http://www.microbe.tv/twiv/twivs-tuller4/ TWiV Special: Tear it up with David Tuller], interviewed by [[Vincent Racaniello]]

*June 1, 2017, Pre-Conference Dinner Speaker at the 12th [[Invest in ME International ME Conference]] on "#TearItUp" on his analysis of the [[Pace trial]]<ref>http://www.investinme.eu/IIMEC12-news-Pre-ConferenceDinner.shtml</ref>

:*[https://www.youtube.com/watch?v=6zWnVB_2lUU&feature=youtu.be Video of pre-conference dinner presentation]

*May 2017 - [https://www.youtube.com/watch?v=xbikuCqoD98 Interview with David Tuller PhD, Dublin, May 2017]

*May 31, 2017 - [[Virology blog]] Podcast: [http://www.microbe.tv/twiv/twivs-tuller3/ TWiV Special: Trial by Error, Continued] David Tuller returns to discuss the continuing saga of the UK’s [[PACE trial]] for [[chronic fatigue syndrome]], including the accusation that he is engaging in libelous blogging.

*Feb 20, 2017 - [[Chronic Fatigue: Missing Millions (Carte Blanche DSTV)]]

*Oct 29, 2016 - Undark Podcast [http://undark.org/2016/10/31/undark-podcast-chronic-fatigue/ #8: Worse Than the Disease] Dr. Tuller discusses [[Graded Exercise Therapy]] (GET) "a therapy commonly prescribed for chronic fatigue syndrome — one for which supporting research is now unraveling."

*Aug 21, 2016 - Virology blog Podcast: [http://www.microbe.tv/twiv/twiv-403/ TWiV 403: It’s not easy being vaccine] Discussion with David Tuller regarding PACE trial at 00.17.38- 00.23.57.

*Jul 10, 2016 - Virology blog Podcast: [http://www.microbe.tv/twiv/twiv-397/ TWiV 397: Trial by Error] Dr. Tuller speaks at length and in detail about the [[PACE trial]] (calling the PACE Trial preposterous and a pack of nonsense, and a piece of crap) and [[FINE trial]], ''[[The Lancet]]'', ''[[British Medical Journal]]'' (BMJ) and ''[[PLOS ONE]]'', patients being ill yet deconstructing the PACE Trial, how [[ME/CFS]] is a disease being treated inappropriately with [[Exercise]], [[GET]] and [[CBT]], touches on the [[Institute of Medicine report]] and [[SEID]], [[Valerie Eliot Smith]] and [[Karina Hansen]], and more.<ref>[http://www.microbe.tv/twiv/twiv-397/ TWiV 397: Trial by Error]</ref>

*Feb 28, 2016 - [https://www.youtube.com/watch?v=1fS6Gzc52VI Speech on PACE Trial with Q&As] in Amsterdam.

*Feb 27, 2016 - [https://www.youtube.com/watch?v=UN1bYhkDHA4&feature=youtu.be Discussed the flaws of the Pace trial] with [[Frank Twisk]] while in Amsterdam at The [[Forgotten Plague]] Conference.

*Feb 6, 2011 - Virology blog podcast: [http://www.twiv.tv/2011/02/06/twiv-119-science-and-journalism-with-david-tuller/ TWiV 119: Science and journalism with David Tuller]. Dr. Tuller appeared as a guest on [[Vincent Racaniello]]'s podcast.

==Writings about ME/CFS==

'''[[Trial By Error]] on Virology Blog'''

:'''2018'''

* May 14, 2018 - Trial By Error : Australia’s Online GET/CBT Education [http://www.virology.ws/2018/05/14/trial-by-error-australias-online-get-cbt-education-program/ Program]

* May 11, 2018 - Trial By Error: May 12th-International ME Awareness [http://www.virology.ws/2018/05/11/trial-by-error-may-12th-international-me-awareness-day/ Day]

*May 7, 2018 - [http://www.virology.ws/2018/05/07/trial-by-error-my-visits-with-alem-matthees/ Trial By Error: My Visits with Alem Matthees]
*May 2, 2018 - [http://www.virology.ws/2018/05/02/trial-by-error-a-q-and-a-with-leonard-jason-on-case-definition/ Trial By Error: A Q-and-A with Leonard Jason, on Case Definition]
*Apr 25, 2018 - [http://www.virology.ws/2018/04/25/trial-by-error-goodbye-australia-and-two-updates/ Trial By Error: Goodbye, Australia; and Two Updates]
*Apr 24, 2018 - [http://www.virology.ws/2018/04/24/trial-by-error-andrew-lloyds-past-endorsement-of-pace/ Trial By Error: Andrew Lloyd’s Past Endorsement of PACE]
*Apr 24, 2018 - [http://www.virology.ws/2018/04/24/trial-by-error-the-shopping-bag-study-and-new-york-states-revamped-website/ Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website]
*Apr 18, 2018 - [http://www.virology.ws/2018/04/18/trial-by-error-professor-michael-sharpes-gaffe-on-australian-radio/ Trial By Error: Professor Michael Sharpe’s Gaffe on Australian Radio]
*Apr 16, 2018 - [http://www.virology.ws/2018/04/16/trial-by-error-two-interview-podcasts-and-conflicts-of-interest/ Trial By Error: Two Interview Podcasts, and “Conflicts of Interest”]
*Apr 11, 2018 - [http://www.virology.ws/2018/04/11/trial-by-error-my-australian-tour-continued/ Trial By Error: My Australian Tour, Continued]
*Apr 4, 2018 - [http://www.virology.ws/2018/04/04/trial-by-error-a-terrific-piece-about-me-cfs-on-australian-tv/ Trial By Error: A Terrific Piece about ME/CFS on Australian TV]
*Apr 4, 2018 - [http://www.virology.ws/2018/04/04/trial-by-error-a-post-about-andrew-lloyd/ Trial By Error: A Post About Andrew Lloyd]
*Apr 2, 2018 - [http://www.virology.ws/2018/04/02/trial-by-error-my-berkeley-backed-crowdfunding-campaign/ Trial By Error: My Berkeley-Backed Crowdfunding Campaign]
*Apr 2, 2018 - [http://www.virology.ws/2018/04/02/trial-by-error-our-latest-tango-with-bmj-open/ Trial By Error: Our Latest Tango with BMJ Open…]
*Mar 28, 2018 - [http://www.virology.ws/2018/03/28/trial-by-error-a-q-and-a-with-scottish-mp-carol-monaghan/ Trial By Error: A Q-and-A with Scottish MP Carol Monaghan]
*Mar 27, 2018 - [http://www.virology.ws/2018/03/27/trial-by-error-my-time-in-canberra/ Trial By Error: My Time in Canberra]
*Mar 26, 2018 - [http://www.virology.ws/2018/03/26/trial-by-error-yet-another-go-round-with-bmj-open/ Trial By Error: Yet Another Go-Round with BMJ Open]
*Mar 21, 2018 - [http://www.virology.ws/2018/03/21/trial-by-error-checking-in-from-melbourne-and-canberra/ Trial By Error: Checking in from Melbourne and Canberra…]
*Mar 14, 2018 - [http://www.virology.ws/2018/03/14/trial-by-error-the-australian-situation-and-professor-crawleys-new-position/ Trial By Error: The Australian Situation, and Professor Crawley’s New Position]
*Mar 12, 2018 - [http://www.virology.ws/2018/03/12/trial-by-error-the-dutch-review-my-trip-bristols-silence/ Trial By Error: The Dutch Review; My Trip; Bristol’s Silence]
*Mar 7, 2018 - [http://www.virology.ws/2018/03/07/trial-by-error-yesterdays-news-from-the-cfs-me-research-collaborative/ Trial By Error: Yesterday’s News from the CFS/ME Research Collaborative]
*Mar 7, 2018 - [http://www.virology.ws/2018/03/07/trial-by-error-my-exchange-with-archives-of-disease-in-childhood/ Trial By Error: My Exchange With Archives of Disease in Childhood]
*Mar 5, 2018 - [http://www.virology.ws/2018/03/05/trial-by-error-news-about-my-plans/ Trial By Error: News About My Plans]
*Feb 26, 2018 - [http://www.virology.ws/2018/02/26/trial-by-error-our-exchange-of-views-with-bmj-open/ Trial By Error: Our Exchange of Views with BMJ Open]
*Feb 19, 2018 - [http://www.virology.ws/2018/02/19/trial-by-error-a-letter-to-bmj-open/ Trial By Error: A Letter to BMJ Open]
*Feb 13, 2018 - [http://www.virology.ws/2018/02/13/trial-by-error-qmul-and-foi-nature-and-cochrane-the-pineapple-fund/ Trial By Error: QMUL and FOI; Nature and Cochrane; the Pineapple Fund]
*Feb 5, 2018 - [http://www.virology.ws/2018/02/05/trial-by-error-letter-to-british-journal-of-sports-medicine-from-cpet-experts/ Trial By Error: Letter to British Journal of Sports Medicine from CPET Experts]
*Jan 30, 2018 - [http://www.virology.ws/2018/01/30/trial-by-error-a-letter-to-archives-of-disease-in-childhood/ Trial By Error: A Letter to Archives of Disease in Childhood]
*Jan 17, 2018 - [http://www.virology.ws/2018/01/17/trial-by-error-professor-crawleys-bogus-buzzfeed-claims/ Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims]
*Jan 15, 2018 - [http://www.virology.ws/2018/01/15/trial-by-error-my-six-month-review/ Trial By Error: My Six-Month Review]
*Jan 3, 2018 - [http://www.virology.ws/2018/01/03/trial-by-error-cope-to-bmj-open-more-details-please/ Trial By Error: Cope to BMJ Open: More Details Please]
*Jan 2, 2018 - [http://www.virology.ws/2018/01/02/trial-by-error-the-school-absence-study-revisited/ Trial By Error: The School Absence Study, Revisited]

(Older blog entries can be found on the [[Trial By Error]] page.)

'''The New York Times'''

*Mar 18, 2017 - [https://www.nytimes.com/2017/03/18/opinion/sunday/getting-it-wrong-on-chronic-fatigue-syndrome.html?smid=tw-share&_r=0 Getting It Wrong on Chronic Fatigue Syndrome] (with [[Julie Rehmeyer]]) and Letters of response' [https://mobile.nytimes.com/2017/03/27/opinion/understanding-and-treating-chronic-fatigue.html?em_pos=small&emc=edit_ty_20170327&nl=opinion-today&nl_art=14&nlid=77538787&ref=headline&te=1&referer= Letters - The New York Times]
*Feb 10, 2015 - [http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/ Chronic Fatigue Syndrome Gets a New Name]
*Nov 24, 2014 - [[Brains of People With Chronic Fatigue Syndrome Offer Clues About Disorder - New York Times: Well (2014)]]
*Sep 18, 2012 - [http://well.blogs.nytimes.com/2012/09/18/chronic-fatigue-syndrome-back-to-square-1/ Chronic Fatigue Syndrome Back to Square 1]
*Feb 6, 2012 - [http://www.nytimes.com/2012/02/07/health/fallout-from-fatigue-syndrome-retraction-is-far-and-wide.html?pagewanted=1&_r=1 Fallout From Fatigue Syndrome Retraction Is Wide]
*Dec 26, 2011 - [http://www.nytimes.com/2011/12/27/health/research/scholars-retract-another-study-linking-xmrv-to-chronic-fatigue-syndrome.html Scholars Retract Another Study Linking Virus to Fatigue Syndrome]
*Dec 22, 2011 - [http://www.nytimes.com/2011/12/23/health/research/science-journal-retracts-chronic-fatigue-syndrome-paper.html?ref=research Fatigue Syndrome Study Is Retracted by Journal]
*Sep 22, 2011 - [http://www.nytimes.com/2011/09/23/health/research/23fatigue.html Viral Theory Is Set Back in Chronic Fatigue Syndrome Study]
*Jun 1, 2011 - [http://www.nytimes.com/2011/06/01/health/research/01fatigue.html?_r=1 2 Studies Examine Syndrome of Fatigue]
*Mar 4, 2011 - [http://www.nytimes.com/2011/03/08/health/research/08fatigue.html Defining an Illness Is Fodder for Debate]
*Feb 17, 2011 - [http://www.nytimes.com/2011/02/18/health/research/18fatigue.html Psychotherapy Eases Chronic Fatigue Syndrome, Study Finds]
*Jan 3, 2011 - [http://www.nytimes.com/2011/01/04/health/04fatigue.html Exhausted by Illness, and Doubts]
*Aug 24, 2010 - [http://query.nytimes.com/gst/fullpage.html?res=9C00E4DB1439F937A1575BC0A9669D8B63 Study Links Chronic Fatigue to Virus Class]
*May 30, 2008 - [http://www.nytimes.com/ref/health/healthguide/esn-chronicfatigue-expert.html Learning Firsthand About Chronic Fatigue Syndrome]
*May 30, 2008 - [http://www.nytimes.com/ref/health/healthguide/esn-chronicfatigue-questions.html What to Ask About Chronic Fatigue Syndrome]
*Jul 17, 2007 - [http://www.nytimes.com/2007/07/17/science/17fatigue.html Chronic Fatigue No Longer Seen as 'Yuppie Flu']

'''Other print media'''

*2018, Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT<ref name="Wilshire, 2018" /> [https://www.researchgate.net/publication/322568480_Rethinking_the_treatment_of_chronic_fatigue_syndrome-A_reanalysis_and_evaluation_of_findings_from_a_recent_major_trial_of_graded_exercise_and_CBT (Full Text)]
* Sep 25, 2017 - [https://www.statnews.com/2017/09/25/chronic-fatigue-syndrome-cdc/ Why did it take the CDC so long to reverse course on debunked treatments for chronic fatigue syndrome?] ''StatNews'' by David Tuller and [[Julie Rehmeyer]]
*Jul 26, 2017 - [https://undark.org/2017/07/26/cdc-chronic-fatigue-graded-exercise/ CDC Removes Reference to Disputed ME/CFS Therapies From Website] ''Undark''
*Apr 27, 2017 - [http://journals.sagepub.com/doi/full/10.1177/1359105317703788 Once again, the PACE authors respond to concerns with empty answers] ''Journal of Health Psychology''
*Oct 27, 2016 - [http://undark.org/article/chronic-fatigue-graded-exercise-pace/ Worse Than the Disease] ''Undark''
*Nov 18, 2015 - [http://alumni.berkeley.edu/california-magazine/just-in/2015-11-18/reporter-excoriates-chronic-fatigue-syndrome-study-i-stopped Reporter Excoriates Chronic Fatigue Syndrome Study: "I Stopped at 14,000 Words-Enough Was Enough"] ''California Magazine''
*Jan 27, 2014 - [http://www.buzzfeed.com/davidtuller/chronic-fatigue-syndrome#.tnegBjJ82 How 'Chronic Fatigue Syndrome' Obscures A Serious Illness] ''Buzzfeed''

In June 2017 after writing dozens of articles and organising open letters on the PACE trial, David Tuller sought crowdfunding help from the patient community to continue his work on investigating the PACE trial. MEAction had an exclusive interview about his crowdfunding effort <ref>[http://www.meaction.net/2017/06/08/interview-with-tuller-on-pace-work/?mc_cid=fd937eaa3d&mc_eid=83ddbd3a71 Tuller on PACE Investigation Plans: Not Beholden to anyone] </ref>. He raised it on Crowdrise [https://www.crowdrise.com/virology-blogs-trial-by-error-more-reporting-on-pace-mecfs-and-related-issues1/fundraiser/davidtuller?utm_source=dash-gtwo-cr&utm_platform=twt&utm_device=desktop Virology Blog's Trial By Error: Reporting on PACE, ME/CFS and Related Issues (2017] and succeeded and actually exceeded his goal within four weeks.

==Online presence==

*[http://www.twitter.com/davidtuller1 Twitter]
*[https://www.researchgate.net/profile/David_Tuller ResearchGate]

==Learn more==

*[http://www.berkeleywellness.com/author/davidtullerdrph Berkeley Wellness - David Tuller]

==References==
<references>
<ref name="Wilshire, 2018">{{Citation
| last1 = Wilshire | first1 = C | authorlink1 = Carolyn Wilshire
| last2 = Kindlon | first2 = T | authorlink2 = Tom Kindlon
| last3 = Courtney | first3 = R | authorlink3 = Robert Courtney
| last4 = Matthees | first4 = A | authorlink4 = Alem Matthees
| last5 = Tuller | first5 = D | authorlink5 = David Tuller
| last6 = Geraghty | first6 = K | authorlink6 = Keith Geraghty
| last7 = Levin | first7 = B | authorlink7 = Bruce Levin
| title = Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
| journal = ResearchGate | volume = | issue = | page =
| date = 2018
| doi =
| url = https://www.researchgate.net/publication/322568480_Rethinking_the_treatment_of_chronic_fatigue_syndrome-A_reanalysis_and_evaluation_of_findings_from_a_recent_major_trial_of_graded_exercise_and_CBT
}}
</ref>
</references>

[[Category:Journalists]]
[[Category:Advocates or allies]]
[[Category:Psychological paradigm critics]]
[[Category:PACE trial critics]]

David Tuller

2018-05-25T16:47:41Z

Christinakalinen 22:/* Writings about ME/CFS */

[[File:David tuller.jpg|right]]
'''David M. Tuller''', DrPh, is a Senior Fellow in Public Health in Journalism at the Center of Global Public Health, School of Public Health, University of California, Berkeley, California.<ref>http://www.microbe.tv/twiv/twivs-tuller4/</ref> Previously to this appointment in July 2017, he was of academic coordinator of the University of California, Berkeley's joint masters program in public health and journalism. He's worked as a reporter and editor for ten years at the ''San Francisco Chronicle'', served as health editor at ''Salon.com'' and frequently writes about health for ''The New York Times''.<ref>[https://journalism.berkeley.edu/faculty/david_tuller/ University of California, Berkeley - Berkeley Journalism - David Tuller Bio]</ref>

He's an experienced public health activist with a background as an [https://en.wikipedia.org/wiki/ACT_UP#ACT_UP_New_York_actions ACT UP/NY] activist which included an arrest at the Wall Street demonstration in 1987.<ref>http://mpetrelis.blogspot.com/2013/05/jay-blotchers-act-up-friends-reunion-in.html</ref>

David Tuller covered the [[PACE trial]] results for ''The New York Times'' as health editor in February 2011. <ref>http://www.nytimes.com/2011/02/18/health/research/18fatigue.html </ref> However he became concerned about the trial and wrote a further article regarding case definitions which resulted in an immediate response from the PACE trial authors which resulted in him investigating the trial and its authors further after contact with others in the patient community. <ref>http://www.nytimes.com/2011/03/08/health/research/08fatigue.html </ref> <ref>http://www.nytimes.com/2011/03/15/health/15letters-STUDYINGAFAT_LETTERS.html </ref>

Tuller is sympathetic toward the cause of the [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] ([[ME/CFS]]) patient community. In an article in 2015 he wrote:

<blockquote>"In the course of my reporting, I’d realized that the disease was both devastating and widely misunderstood. People were really, really sick—some were homebound for months and years at a stretch. Yet their condition had been saddled with one of the most condescending names ever given a major illness."<ref>[http://alumni.berkeley.edu/california-magazine/just-in/2015-11-18/reporter-excoriates-chronic-fatigue-syndrome-study-i-stopped "Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped at 14,000 Words-Enough Was Enough"]</ref></blockquote>

In the spring of 2017, Tuller successfully raised money through Crowdrise, an online fundraising platform,<ref>https://www.crowdrise.com/</ref> in order to continue investigating and blogging about the [[PACE]] trial and and others issues related to [[ME/CFS]]. The funds raised went to the Center for Scientific Integrity who transferred them to the School of Public Health at University of California, Berkeley, which in turn created a position for Tuller to continue his investigative work.<ref>https://www.crowdrise.com/virology-blogs-trial-by-error-more-reporting-on-pace-mecfs-and-related-issues1</ref><ref>https://www.facebook.com/thisweekinvirology/posts/1422844667771846</ref>

In 2018, Tuller is renewing his crowdfunding campaign in order to continue his work on writing and speaking to raise awareness about [[ME/CFS]] and the error-ridden [[PACE trial]].

==Education==

*Doctor of Public Health
*2005, Masters in Public Health from University of California, Berkeley<ref>https://journalism.berkeley.edu/person/david_tuller/</ref>

==Awards==

*2016, [[IACFS/ME]] Special Service Award - for outstanding personal effort and contribution to the CFS/ME community
*2016, [[Tymes Trust]] Award for Scientific Journalism<ref>https://www.facebook.com/tymestrust/photos/pb.1482582732026864.-2207520000.1477637753./1823344051284062/?type=3&theater</ref>

==Talks and interviews==

*Apr 16, 2018 - [https://www.6pr.com.au/podcast/u-s-journalist-raising-awareness-for-chronic-fatigue/ U.S. Journalist raising awareness for Chronic Fatigue] interviewed on ''Perth Tonight with Chris Ilsley'']

*Apr 15, 2018 - [http://radioadelaide.org.au/2018/04/15/me-cfs-debunking-medical-myths/ ME/CFS – Debunking Medical Myths], A Conversation between Sue Gilbey, Dr David Tuller, Penelope McMillan & Tania Emms, highlighting the challenges of living with ME/CFS on Radio Adelaide

*Mar 2018 - [https://www.facebook.com/EmergeAustraliaInc/videos/10156242916534111/?fref=mentions&pnref=story Talk] with [[Emerge Australia]]

*Dec 26, 2017, [http://anilvanderzee.com/david-tuller-and-the-space-cake-eaters/ David Tuller and the (s)PACE cake eaters] interviewed by Anil van der Zee

*Oct 14, 2017, [http://www.microbe.tv/twiv/twivs-tuller4/ TWiV Special: Tear it up with David Tuller], interviewed by [[Vincent Racaniello]]

*June 1, 2017, Pre-Conference Dinner Speaker at the 12th [[Invest in ME International ME Conference]] on "#TearItUp" on his analysis of the [[Pace trial]]<ref>http://www.investinme.eu/IIMEC12-news-Pre-ConferenceDinner.shtml</ref>

:*[https://www.youtube.com/watch?v=6zWnVB_2lUU&feature=youtu.be Video of pre-conference dinner presentation]

*May 2017 - [https://www.youtube.com/watch?v=xbikuCqoD98 Interview with David Tuller PhD, Dublin, May 2017]

*May 31, 2017 - [[Virology blog]] Podcast: [http://www.microbe.tv/twiv/twivs-tuller3/ TWiV Special: Trial by Error, Continued] David Tuller returns to discuss the continuing saga of the UK’s [[PACE trial]] for [[chronic fatigue syndrome]], including the accusation that he is engaging in libelous blogging.

*Feb 20, 2017 - [[Chronic Fatigue: Missing Millions (Carte Blanche DSTV)]]

*Oct 29, 2016 - Undark Podcast [http://undark.org/2016/10/31/undark-podcast-chronic-fatigue/ #8: Worse Than the Disease] Dr. Tuller discusses [[Graded Exercise Therapy]] (GET) "a therapy commonly prescribed for chronic fatigue syndrome — one for which supporting research is now unraveling."

*Aug 21, 2016 - Virology blog Podcast: [http://www.microbe.tv/twiv/twiv-403/ TWiV 403: It’s not easy being vaccine] Discussion with David Tuller regarding PACE trial at 00.17.38- 00.23.57.

*Jul 10, 2016 - Virology blog Podcast: [http://www.microbe.tv/twiv/twiv-397/ TWiV 397: Trial by Error] Dr. Tuller speaks at length and in detail about the [[PACE trial]] (calling the PACE Trial preposterous and a pack of nonsense, and a piece of crap) and [[FINE trial]], ''[[The Lancet]]'', ''[[British Medical Journal]]'' (BMJ) and ''[[PLOS ONE]]'', patients being ill yet deconstructing the PACE Trial, how [[ME/CFS]] is a disease being treated inappropriately with [[Exercise]], [[GET]] and [[CBT]], touches on the [[Institute of Medicine report]] and [[SEID]], [[Valerie Eliot Smith]] and [[Karina Hansen]], and more.<ref>[http://www.microbe.tv/twiv/twiv-397/ TWiV 397: Trial by Error]</ref>

*Feb 28, 2016 - [https://www.youtube.com/watch?v=1fS6Gzc52VI Speech on PACE Trial with Q&As] in Amsterdam.

*Feb 27, 2016 - [https://www.youtube.com/watch?v=UN1bYhkDHA4&feature=youtu.be Discussed the flaws of the Pace trial] with [[Frank Twisk]] while in Amsterdam at The [[Forgotten Plague]] Conference.

*Feb 6, 2011 - Virology blog podcast: [http://www.twiv.tv/2011/02/06/twiv-119-science-and-journalism-with-david-tuller/ TWiV 119: Science and journalism with David Tuller]. Dr. Tuller appeared as a guest on [[Vincent Racaniello]]'s podcast.

==Writings about ME/CFS==

'''[[Trial By Error]] on Virology Blog'''

:'''2018'''

* May 11, 2018 - Trial By Error: May 12th-International ME Awareness [http://www.virology.ws/2018/05/11/trial-by-error-may-12th-international-me-awareness-day/ Day]

*May 7, 2018 - [http://www.virology.ws/2018/05/07/trial-by-error-my-visits-with-alem-matthees/ Trial By Error: My Visits with Alem Matthees]
*May 2, 2018 - [http://www.virology.ws/2018/05/02/trial-by-error-a-q-and-a-with-leonard-jason-on-case-definition/ Trial By Error: A Q-and-A with Leonard Jason, on Case Definition]
*Apr 25, 2018 - [http://www.virology.ws/2018/04/25/trial-by-error-goodbye-australia-and-two-updates/ Trial By Error: Goodbye, Australia; and Two Updates]
*Apr 24, 2018 - [http://www.virology.ws/2018/04/24/trial-by-error-andrew-lloyds-past-endorsement-of-pace/ Trial By Error: Andrew Lloyd’s Past Endorsement of PACE]
*Apr 24, 2018 - [http://www.virology.ws/2018/04/24/trial-by-error-the-shopping-bag-study-and-new-york-states-revamped-website/ Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website]
*Apr 18, 2018 - [http://www.virology.ws/2018/04/18/trial-by-error-professor-michael-sharpes-gaffe-on-australian-radio/ Trial By Error: Professor Michael Sharpe’s Gaffe on Australian Radio]
*Apr 16, 2018 - [http://www.virology.ws/2018/04/16/trial-by-error-two-interview-podcasts-and-conflicts-of-interest/ Trial By Error: Two Interview Podcasts, and “Conflicts of Interest”]
*Apr 11, 2018 - [http://www.virology.ws/2018/04/11/trial-by-error-my-australian-tour-continued/ Trial By Error: My Australian Tour, Continued]
*Apr 4, 2018 - [http://www.virology.ws/2018/04/04/trial-by-error-a-terrific-piece-about-me-cfs-on-australian-tv/ Trial By Error: A Terrific Piece about ME/CFS on Australian TV]
*Apr 4, 2018 - [http://www.virology.ws/2018/04/04/trial-by-error-a-post-about-andrew-lloyd/ Trial By Error: A Post About Andrew Lloyd]
*Apr 2, 2018 - [http://www.virology.ws/2018/04/02/trial-by-error-my-berkeley-backed-crowdfunding-campaign/ Trial By Error: My Berkeley-Backed Crowdfunding Campaign]
*Apr 2, 2018 - [http://www.virology.ws/2018/04/02/trial-by-error-our-latest-tango-with-bmj-open/ Trial By Error: Our Latest Tango with BMJ Open…]
*Mar 28, 2018 - [http://www.virology.ws/2018/03/28/trial-by-error-a-q-and-a-with-scottish-mp-carol-monaghan/ Trial By Error: A Q-and-A with Scottish MP Carol Monaghan]
*Mar 27, 2018 - [http://www.virology.ws/2018/03/27/trial-by-error-my-time-in-canberra/ Trial By Error: My Time in Canberra]
*Mar 26, 2018 - [http://www.virology.ws/2018/03/26/trial-by-error-yet-another-go-round-with-bmj-open/ Trial By Error: Yet Another Go-Round with BMJ Open]
*Mar 21, 2018 - [http://www.virology.ws/2018/03/21/trial-by-error-checking-in-from-melbourne-and-canberra/ Trial By Error: Checking in from Melbourne and Canberra…]
*Mar 14, 2018 - [http://www.virology.ws/2018/03/14/trial-by-error-the-australian-situation-and-professor-crawleys-new-position/ Trial By Error: The Australian Situation, and Professor Crawley’s New Position]
*Mar 12, 2018 - [http://www.virology.ws/2018/03/12/trial-by-error-the-dutch-review-my-trip-bristols-silence/ Trial By Error: The Dutch Review; My Trip; Bristol’s Silence]
*Mar 7, 2018 - [http://www.virology.ws/2018/03/07/trial-by-error-yesterdays-news-from-the-cfs-me-research-collaborative/ Trial By Error: Yesterday’s News from the CFS/ME Research Collaborative]
*Mar 7, 2018 - [http://www.virology.ws/2018/03/07/trial-by-error-my-exchange-with-archives-of-disease-in-childhood/ Trial By Error: My Exchange With Archives of Disease in Childhood]
*Mar 5, 2018 - [http://www.virology.ws/2018/03/05/trial-by-error-news-about-my-plans/ Trial By Error: News About My Plans]
*Feb 26, 2018 - [http://www.virology.ws/2018/02/26/trial-by-error-our-exchange-of-views-with-bmj-open/ Trial By Error: Our Exchange of Views with BMJ Open]
*Feb 19, 2018 - [http://www.virology.ws/2018/02/19/trial-by-error-a-letter-to-bmj-open/ Trial By Error: A Letter to BMJ Open]
*Feb 13, 2018 - [http://www.virology.ws/2018/02/13/trial-by-error-qmul-and-foi-nature-and-cochrane-the-pineapple-fund/ Trial By Error: QMUL and FOI; Nature and Cochrane; the Pineapple Fund]
*Feb 5, 2018 - [http://www.virology.ws/2018/02/05/trial-by-error-letter-to-british-journal-of-sports-medicine-from-cpet-experts/ Trial By Error: Letter to British Journal of Sports Medicine from CPET Experts]
*Jan 30, 2018 - [http://www.virology.ws/2018/01/30/trial-by-error-a-letter-to-archives-of-disease-in-childhood/ Trial By Error: A Letter to Archives of Disease in Childhood]
*Jan 17, 2018 - [http://www.virology.ws/2018/01/17/trial-by-error-professor-crawleys-bogus-buzzfeed-claims/ Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims]
*Jan 15, 2018 - [http://www.virology.ws/2018/01/15/trial-by-error-my-six-month-review/ Trial By Error: My Six-Month Review]
*Jan 3, 2018 - [http://www.virology.ws/2018/01/03/trial-by-error-cope-to-bmj-open-more-details-please/ Trial By Error: Cope to BMJ Open: More Details Please]
*Jan 2, 2018 - [http://www.virology.ws/2018/01/02/trial-by-error-the-school-absence-study-revisited/ Trial By Error: The School Absence Study, Revisited]

(Older blog entries can be found on the [[Trial By Error]] page.)

'''The New York Times'''

*Mar 18, 2017 - [https://www.nytimes.com/2017/03/18/opinion/sunday/getting-it-wrong-on-chronic-fatigue-syndrome.html?smid=tw-share&_r=0 Getting It Wrong on Chronic Fatigue Syndrome] (with [[Julie Rehmeyer]]) and Letters of response' [https://mobile.nytimes.com/2017/03/27/opinion/understanding-and-treating-chronic-fatigue.html?em_pos=small&emc=edit_ty_20170327&nl=opinion-today&nl_art=14&nlid=77538787&ref=headline&te=1&referer= Letters - The New York Times]
*Feb 10, 2015 - [http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/ Chronic Fatigue Syndrome Gets a New Name]
*Nov 24, 2014 - [[Brains of People With Chronic Fatigue Syndrome Offer Clues About Disorder - New York Times: Well (2014)]]
*Sep 18, 2012 - [http://well.blogs.nytimes.com/2012/09/18/chronic-fatigue-syndrome-back-to-square-1/ Chronic Fatigue Syndrome Back to Square 1]
*Feb 6, 2012 - [http://www.nytimes.com/2012/02/07/health/fallout-from-fatigue-syndrome-retraction-is-far-and-wide.html?pagewanted=1&_r=1 Fallout From Fatigue Syndrome Retraction Is Wide]
*Dec 26, 2011 - [http://www.nytimes.com/2011/12/27/health/research/scholars-retract-another-study-linking-xmrv-to-chronic-fatigue-syndrome.html Scholars Retract Another Study Linking Virus to Fatigue Syndrome]
*Dec 22, 2011 - [http://www.nytimes.com/2011/12/23/health/research/science-journal-retracts-chronic-fatigue-syndrome-paper.html?ref=research Fatigue Syndrome Study Is Retracted by Journal]
*Sep 22, 2011 - [http://www.nytimes.com/2011/09/23/health/research/23fatigue.html Viral Theory Is Set Back in Chronic Fatigue Syndrome Study]
*Jun 1, 2011 - [http://www.nytimes.com/2011/06/01/health/research/01fatigue.html?_r=1 2 Studies Examine Syndrome of Fatigue]
*Mar 4, 2011 - [http://www.nytimes.com/2011/03/08/health/research/08fatigue.html Defining an Illness Is Fodder for Debate]
*Feb 17, 2011 - [http://www.nytimes.com/2011/02/18/health/research/18fatigue.html Psychotherapy Eases Chronic Fatigue Syndrome, Study Finds]
*Jan 3, 2011 - [http://www.nytimes.com/2011/01/04/health/04fatigue.html Exhausted by Illness, and Doubts]
*Aug 24, 2010 - [http://query.nytimes.com/gst/fullpage.html?res=9C00E4DB1439F937A1575BC0A9669D8B63 Study Links Chronic Fatigue to Virus Class]
*May 30, 2008 - [http://www.nytimes.com/ref/health/healthguide/esn-chronicfatigue-expert.html Learning Firsthand About Chronic Fatigue Syndrome]
*May 30, 2008 - [http://www.nytimes.com/ref/health/healthguide/esn-chronicfatigue-questions.html What to Ask About Chronic Fatigue Syndrome]
*Jul 17, 2007 - [http://www.nytimes.com/2007/07/17/science/17fatigue.html Chronic Fatigue No Longer Seen as 'Yuppie Flu']

'''Other print media'''

*2018, Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT<ref name="Wilshire, 2018" /> [https://www.researchgate.net/publication/322568480_Rethinking_the_treatment_of_chronic_fatigue_syndrome-A_reanalysis_and_evaluation_of_findings_from_a_recent_major_trial_of_graded_exercise_and_CBT (Full Text)]
* Sep 25, 2017 - [https://www.statnews.com/2017/09/25/chronic-fatigue-syndrome-cdc/ Why did it take the CDC so long to reverse course on debunked treatments for chronic fatigue syndrome?] ''StatNews'' by David Tuller and [[Julie Rehmeyer]]
*Jul 26, 2017 - [https://undark.org/2017/07/26/cdc-chronic-fatigue-graded-exercise/ CDC Removes Reference to Disputed ME/CFS Therapies From Website] ''Undark''
*Apr 27, 2017 - [http://journals.sagepub.com/doi/full/10.1177/1359105317703788 Once again, the PACE authors respond to concerns with empty answers] ''Journal of Health Psychology''
*Oct 27, 2016 - [http://undark.org/article/chronic-fatigue-graded-exercise-pace/ Worse Than the Disease] ''Undark''
*Nov 18, 2015 - [http://alumni.berkeley.edu/california-magazine/just-in/2015-11-18/reporter-excoriates-chronic-fatigue-syndrome-study-i-stopped Reporter Excoriates Chronic Fatigue Syndrome Study: "I Stopped at 14,000 Words-Enough Was Enough"] ''California Magazine''
*Jan 27, 2014 - [http://www.buzzfeed.com/davidtuller/chronic-fatigue-syndrome#.tnegBjJ82 How 'Chronic Fatigue Syndrome' Obscures A Serious Illness] ''Buzzfeed''

In June 2017 after writing dozens of articles and organising open letters on the PACE trial, David Tuller sought crowdfunding help from the patient community to continue his work on investigating the PACE trial. MEAction had an exclusive interview about his crowdfunding effort <ref>[http://www.meaction.net/2017/06/08/interview-with-tuller-on-pace-work/?mc_cid=fd937eaa3d&mc_eid=83ddbd3a71 Tuller on PACE Investigation Plans: Not Beholden to anyone] </ref>. He raised it on Crowdrise [https://www.crowdrise.com/virology-blogs-trial-by-error-more-reporting-on-pace-mecfs-and-related-issues1/fundraiser/davidtuller?utm_source=dash-gtwo-cr&utm_platform=twt&utm_device=desktop Virology Blog's Trial By Error: Reporting on PACE, ME/CFS and Related Issues (2017] and succeeded and actually exceeded his goal within four weeks.

==Online presence==

*[http://www.twitter.com/davidtuller1 Twitter]
*[https://www.researchgate.net/profile/David_Tuller ResearchGate]

==Learn more==

*[http://www.berkeleywellness.com/author/davidtullerdrph Berkeley Wellness - David Tuller]

==References==
<references>
<ref name="Wilshire, 2018">{{Citation
| last1 = Wilshire | first1 = C | authorlink1 = Carolyn Wilshire
| last2 = Kindlon | first2 = T | authorlink2 = Tom Kindlon
| last3 = Courtney | first3 = R | authorlink3 = Robert Courtney
| last4 = Matthees | first4 = A | authorlink4 = Alem Matthees
| last5 = Tuller | first5 = D | authorlink5 = David Tuller
| last6 = Geraghty | first6 = K | authorlink6 = Keith Geraghty
| last7 = Levin | first7 = B | authorlink7 = Bruce Levin
| title = Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
| journal = ResearchGate | volume = | issue = | page =
| date = 2018
| doi =
| url = https://www.researchgate.net/publication/322568480_Rethinking_the_treatment_of_chronic_fatigue_syndrome-A_reanalysis_and_evaluation_of_findings_from_a_recent_major_trial_of_graded_exercise_and_CBT
}}
</ref>
</references>

[[Category:Journalists]]
[[Category:Advocates or allies]]
[[Category:Psychological paradigm critics]]
[[Category:PACE trial critics]]

David Tuller

2018-05-25T16:35:16Z

Christinakalinen 22:/* Writings about ME/CFS */

[[File:David tuller.jpg|right]]
'''David M. Tuller''', DrPh, is a Senior Fellow in Public Health in Journalism at the Center of Global Public Health, School of Public Health, University of California, Berkeley, California.<ref>http://www.microbe.tv/twiv/twivs-tuller4/</ref> Previously to this appointment in July 2017, he was of academic coordinator of the University of California, Berkeley's joint masters program in public health and journalism. He's worked as a reporter and editor for ten years at the ''San Francisco Chronicle'', served as health editor at ''Salon.com'' and frequently writes about health for ''The New York Times''.<ref>[https://journalism.berkeley.edu/faculty/david_tuller/ University of California, Berkeley - Berkeley Journalism - David Tuller Bio]</ref>

He's an experienced public health activist with a background as an [https://en.wikipedia.org/wiki/ACT_UP#ACT_UP_New_York_actions ACT UP/NY] activist which included an arrest at the Wall Street demonstration in 1987.<ref>http://mpetrelis.blogspot.com/2013/05/jay-blotchers-act-up-friends-reunion-in.html</ref>

David Tuller covered the [[PACE trial]] results for ''The New York Times'' as health editor in February 2011. <ref>http://www.nytimes.com/2011/02/18/health/research/18fatigue.html </ref> However he became concerned about the trial and wrote a further article regarding case definitions which resulted in an immediate response from the PACE trial authors which resulted in him investigating the trial and its authors further after contact with others in the patient community. <ref>http://www.nytimes.com/2011/03/08/health/research/08fatigue.html </ref> <ref>http://www.nytimes.com/2011/03/15/health/15letters-STUDYINGAFAT_LETTERS.html </ref>

Tuller is sympathetic toward the cause of the [[myalgic encephalomyelitis]]/[[chronic fatigue syndrome]] ([[ME/CFS]]) patient community. In an article in 2015 he wrote:

<blockquote>"In the course of my reporting, I’d realized that the disease was both devastating and widely misunderstood. People were really, really sick—some were homebound for months and years at a stretch. Yet their condition had been saddled with one of the most condescending names ever given a major illness."<ref>[http://alumni.berkeley.edu/california-magazine/just-in/2015-11-18/reporter-excoriates-chronic-fatigue-syndrome-study-i-stopped "Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped at 14,000 Words-Enough Was Enough"]</ref></blockquote>

In the spring of 2017, Tuller successfully raised money through Crowdrise, an online fundraising platform,<ref>https://www.crowdrise.com/</ref> in order to continue investigating and blogging about the [[PACE]] trial and and others issues related to [[ME/CFS]]. The funds raised went to the Center for Scientific Integrity who transferred them to the School of Public Health at University of California, Berkeley, which in turn created a position for Tuller to continue his investigative work.<ref>https://www.crowdrise.com/virology-blogs-trial-by-error-more-reporting-on-pace-mecfs-and-related-issues1</ref><ref>https://www.facebook.com/thisweekinvirology/posts/1422844667771846</ref>

In 2018, Tuller is renewing his crowdfunding campaign in order to continue his work on writing and speaking to raise awareness about [[ME/CFS]] and the error-ridden [[PACE trial]].

==Education==

*Doctor of Public Health
*2005, Masters in Public Health from University of California, Berkeley<ref>https://journalism.berkeley.edu/person/david_tuller/</ref>

==Awards==

*2016, [[IACFS/ME]] Special Service Award - for outstanding personal effort and contribution to the CFS/ME community
*2016, [[Tymes Trust]] Award for Scientific Journalism<ref>https://www.facebook.com/tymestrust/photos/pb.1482582732026864.-2207520000.1477637753./1823344051284062/?type=3&theater</ref>

==Talks and interviews==

*Apr 16, 2018 - [https://www.6pr.com.au/podcast/u-s-journalist-raising-awareness-for-chronic-fatigue/ U.S. Journalist raising awareness for Chronic Fatigue] interviewed on ''Perth Tonight with Chris Ilsley'']

*Apr 15, 2018 - [http://radioadelaide.org.au/2018/04/15/me-cfs-debunking-medical-myths/ ME/CFS – Debunking Medical Myths], A Conversation between Sue Gilbey, Dr David Tuller, Penelope McMillan & Tania Emms, highlighting the challenges of living with ME/CFS on Radio Adelaide

*Mar 2018 - [https://www.facebook.com/EmergeAustraliaInc/videos/10156242916534111/?fref=mentions&pnref=story Talk] with [[Emerge Australia]]

*Dec 26, 2017, [http://anilvanderzee.com/david-tuller-and-the-space-cake-eaters/ David Tuller and the (s)PACE cake eaters] interviewed by Anil van der Zee

*Oct 14, 2017, [http://www.microbe.tv/twiv/twivs-tuller4/ TWiV Special: Tear it up with David Tuller], interviewed by [[Vincent Racaniello]]

*June 1, 2017, Pre-Conference Dinner Speaker at the 12th [[Invest in ME International ME Conference]] on "#TearItUp" on his analysis of the [[Pace trial]]<ref>http://www.investinme.eu/IIMEC12-news-Pre-ConferenceDinner.shtml</ref>

:*[https://www.youtube.com/watch?v=6zWnVB_2lUU&feature=youtu.be Video of pre-conference dinner presentation]

*May 2017 - [https://www.youtube.com/watch?v=xbikuCqoD98 Interview with David Tuller PhD, Dublin, May 2017]

*May 31, 2017 - [[Virology blog]] Podcast: [http://www.microbe.tv/twiv/twivs-tuller3/ TWiV Special: Trial by Error, Continued] David Tuller returns to discuss the continuing saga of the UK’s [[PACE trial]] for [[chronic fatigue syndrome]], including the accusation that he is engaging in libelous blogging.

*Feb 20, 2017 - [[Chronic Fatigue: Missing Millions (Carte Blanche DSTV)]]

*Oct 29, 2016 - Undark Podcast [http://undark.org/2016/10/31/undark-podcast-chronic-fatigue/ #8: Worse Than the Disease] Dr. Tuller discusses [[Graded Exercise Therapy]] (GET) "a therapy commonly prescribed for chronic fatigue syndrome — one for which supporting research is now unraveling."

*Aug 21, 2016 - Virology blog Podcast: [http://www.microbe.tv/twiv/twiv-403/ TWiV 403: It’s not easy being vaccine] Discussion with David Tuller regarding PACE trial at 00.17.38- 00.23.57.

*Jul 10, 2016 - Virology blog Podcast: [http://www.microbe.tv/twiv/twiv-397/ TWiV 397: Trial by Error] Dr. Tuller speaks at length and in detail about the [[PACE trial]] (calling the PACE Trial preposterous and a pack of nonsense, and a piece of crap) and [[FINE trial]], ''[[The Lancet]]'', ''[[British Medical Journal]]'' (BMJ) and ''[[PLOS ONE]]'', patients being ill yet deconstructing the PACE Trial, how [[ME/CFS]] is a disease being treated inappropriately with [[Exercise]], [[GET]] and [[CBT]], touches on the [[Institute of Medicine report]] and [[SEID]], [[Valerie Eliot Smith]] and [[Karina Hansen]], and more.<ref>[http://www.microbe.tv/twiv/twiv-397/ TWiV 397: Trial by Error]</ref>

*Feb 28, 2016 - [https://www.youtube.com/watch?v=1fS6Gzc52VI Speech on PACE Trial with Q&As] in Amsterdam.

*Feb 27, 2016 - [https://www.youtube.com/watch?v=UN1bYhkDHA4&feature=youtu.be Discussed the flaws of the Pace trial] with [[Frank Twisk]] while in Amsterdam at The [[Forgotten Plague]] Conference.

*Feb 6, 2011 - Virology blog podcast: [http://www.twiv.tv/2011/02/06/twiv-119-science-and-journalism-with-david-tuller/ TWiV 119: Science and journalism with David Tuller]. Dr. Tuller appeared as a guest on [[Vincent Racaniello]]'s podcast.

==Writings about ME/CFS==

'''[[Trial By Error]] on Virology Blog'''

:'''2018'''

* May 23, 2018 - Trial By Error: More on the CDC; Reader’s Digest; and BBC’s Newsbeat [http://www.virology.ws/2018/05/23/trial-by-error-more-on-the-cdc-readers-digest-and-bbcs-newsbeat/]

*May 7, 2018 - [http://www.virology.ws/2018/05/07/trial-by-error-my-visits-with-alem-matthees/ Trial By Error: My Visits with Alem Matthees]
*May 2, 2018 - [http://www.virology.ws/2018/05/02/trial-by-error-a-q-and-a-with-leonard-jason-on-case-definition/ Trial By Error: A Q-and-A with Leonard Jason, on Case Definition]
*Apr 25, 2018 - [http://www.virology.ws/2018/04/25/trial-by-error-goodbye-australia-and-two-updates/ Trial By Error: Goodbye, Australia; and Two Updates]
*Apr 24, 2018 - [http://www.virology.ws/2018/04/24/trial-by-error-andrew-lloyds-past-endorsement-of-pace/ Trial By Error: Andrew Lloyd’s Past Endorsement of PACE]
*Apr 24, 2018 - [http://www.virology.ws/2018/04/24/trial-by-error-the-shopping-bag-study-and-new-york-states-revamped-website/ Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website]
*Apr 18, 2018 - [http://www.virology.ws/2018/04/18/trial-by-error-professor-michael-sharpes-gaffe-on-australian-radio/ Trial By Error: Professor Michael Sharpe’s Gaffe on Australian Radio]
*Apr 16, 2018 - [http://www.virology.ws/2018/04/16/trial-by-error-two-interview-podcasts-and-conflicts-of-interest/ Trial By Error: Two Interview Podcasts, and “Conflicts of Interest”]
*Apr 11, 2018 - [http://www.virology.ws/2018/04/11/trial-by-error-my-australian-tour-continued/ Trial By Error: My Australian Tour, Continued]
*Apr 4, 2018 - [http://www.virology.ws/2018/04/04/trial-by-error-a-terrific-piece-about-me-cfs-on-australian-tv/ Trial By Error: A Terrific Piece about ME/CFS on Australian TV]
*Apr 4, 2018 - [http://www.virology.ws/2018/04/04/trial-by-error-a-post-about-andrew-lloyd/ Trial By Error: A Post About Andrew Lloyd]
*Apr 2, 2018 - [http://www.virology.ws/2018/04/02/trial-by-error-my-berkeley-backed-crowdfunding-campaign/ Trial By Error: My Berkeley-Backed Crowdfunding Campaign]
*Apr 2, 2018 - [http://www.virology.ws/2018/04/02/trial-by-error-our-latest-tango-with-bmj-open/ Trial By Error: Our Latest Tango with BMJ Open…]
*Mar 28, 2018 - [http://www.virology.ws/2018/03/28/trial-by-error-a-q-and-a-with-scottish-mp-carol-monaghan/ Trial By Error: A Q-and-A with Scottish MP Carol Monaghan]
*Mar 27, 2018 - [http://www.virology.ws/2018/03/27/trial-by-error-my-time-in-canberra/ Trial By Error: My Time in Canberra]
*Mar 26, 2018 - [http://www.virology.ws/2018/03/26/trial-by-error-yet-another-go-round-with-bmj-open/ Trial By Error: Yet Another Go-Round with BMJ Open]
*Mar 21, 2018 - [http://www.virology.ws/2018/03/21/trial-by-error-checking-in-from-melbourne-and-canberra/ Trial By Error: Checking in from Melbourne and Canberra…]
*Mar 14, 2018 - [http://www.virology.ws/2018/03/14/trial-by-error-the-australian-situation-and-professor-crawleys-new-position/ Trial By Error: The Australian Situation, and Professor Crawley’s New Position]
*Mar 12, 2018 - [http://www.virology.ws/2018/03/12/trial-by-error-the-dutch-review-my-trip-bristols-silence/ Trial By Error: The Dutch Review; My Trip; Bristol’s Silence]
*Mar 7, 2018 - [http://www.virology.ws/2018/03/07/trial-by-error-yesterdays-news-from-the-cfs-me-research-collaborative/ Trial By Error: Yesterday’s News from the CFS/ME Research Collaborative]
*Mar 7, 2018 - [http://www.virology.ws/2018/03/07/trial-by-error-my-exchange-with-archives-of-disease-in-childhood/ Trial By Error: My Exchange With Archives of Disease in Childhood]
*Mar 5, 2018 - [http://www.virology.ws/2018/03/05/trial-by-error-news-about-my-plans/ Trial By Error: News About My Plans]
*Feb 26, 2018 - [http://www.virology.ws/2018/02/26/trial-by-error-our-exchange-of-views-with-bmj-open/ Trial By Error: Our Exchange of Views with BMJ Open]
*Feb 19, 2018 - [http://www.virology.ws/2018/02/19/trial-by-error-a-letter-to-bmj-open/ Trial By Error: A Letter to BMJ Open]
*Feb 13, 2018 - [http://www.virology.ws/2018/02/13/trial-by-error-qmul-and-foi-nature-and-cochrane-the-pineapple-fund/ Trial By Error: QMUL and FOI; Nature and Cochrane; the Pineapple Fund]
*Feb 5, 2018 - [http://www.virology.ws/2018/02/05/trial-by-error-letter-to-british-journal-of-sports-medicine-from-cpet-experts/ Trial By Error: Letter to British Journal of Sports Medicine from CPET Experts]
*Jan 30, 2018 - [http://www.virology.ws/2018/01/30/trial-by-error-a-letter-to-archives-of-disease-in-childhood/ Trial By Error: A Letter to Archives of Disease in Childhood]
*Jan 17, 2018 - [http://www.virology.ws/2018/01/17/trial-by-error-professor-crawleys-bogus-buzzfeed-claims/ Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims]
*Jan 15, 2018 - [http://www.virology.ws/2018/01/15/trial-by-error-my-six-month-review/ Trial By Error: My Six-Month Review]
*Jan 3, 2018 - [http://www.virology.ws/2018/01/03/trial-by-error-cope-to-bmj-open-more-details-please/ Trial By Error: Cope to BMJ Open: More Details Please]
*Jan 2, 2018 - [http://www.virology.ws/2018/01/02/trial-by-error-the-school-absence-study-revisited/ Trial By Error: The School Absence Study, Revisited]

(Older blog entries can be found on the [[Trial By Error]] page.)

'''The New York Times'''

*Mar 18, 2017 - [https://www.nytimes.com/2017/03/18/opinion/sunday/getting-it-wrong-on-chronic-fatigue-syndrome.html?smid=tw-share&_r=0 Getting It Wrong on Chronic Fatigue Syndrome] (with [[Julie Rehmeyer]]) and Letters of response' [https://mobile.nytimes.com/2017/03/27/opinion/understanding-and-treating-chronic-fatigue.html?em_pos=small&emc=edit_ty_20170327&nl=opinion-today&nl_art=14&nlid=77538787&ref=headline&te=1&referer= Letters - The New York Times]
*Feb 10, 2015 - [http://well.blogs.nytimes.com/2015/02/10/chronic-fatigue-syndrome-gets-a-new-name/ Chronic Fatigue Syndrome Gets a New Name]
*Nov 24, 2014 - [[Brains of People With Chronic Fatigue Syndrome Offer Clues About Disorder - New York Times: Well (2014)]]
*Sep 18, 2012 - [http://well.blogs.nytimes.com/2012/09/18/chronic-fatigue-syndrome-back-to-square-1/ Chronic Fatigue Syndrome Back to Square 1]
*Feb 6, 2012 - [http://www.nytimes.com/2012/02/07/health/fallout-from-fatigue-syndrome-retraction-is-far-and-wide.html?pagewanted=1&_r=1 Fallout From Fatigue Syndrome Retraction Is Wide]
*Dec 26, 2011 - [http://www.nytimes.com/2011/12/27/health/research/scholars-retract-another-study-linking-xmrv-to-chronic-fatigue-syndrome.html Scholars Retract Another Study Linking Virus to Fatigue Syndrome]
*Dec 22, 2011 - [http://www.nytimes.com/2011/12/23/health/research/science-journal-retracts-chronic-fatigue-syndrome-paper.html?ref=research Fatigue Syndrome Study Is Retracted by Journal]
*Sep 22, 2011 - [http://www.nytimes.com/2011/09/23/health/research/23fatigue.html Viral Theory Is Set Back in Chronic Fatigue Syndrome Study]
*Jun 1, 2011 - [http://www.nytimes.com/2011/06/01/health/research/01fatigue.html?_r=1 2 Studies Examine Syndrome of Fatigue]
*Mar 4, 2011 - [http://www.nytimes.com/2011/03/08/health/research/08fatigue.html Defining an Illness Is Fodder for Debate]
*Feb 17, 2011 - [http://www.nytimes.com/2011/02/18/health/research/18fatigue.html Psychotherapy Eases Chronic Fatigue Syndrome, Study Finds]
*Jan 3, 2011 - [http://www.nytimes.com/2011/01/04/health/04fatigue.html Exhausted by Illness, and Doubts]
*Aug 24, 2010 - [http://query.nytimes.com/gst/fullpage.html?res=9C00E4DB1439F937A1575BC0A9669D8B63 Study Links Chronic Fatigue to Virus Class]
*May 30, 2008 - [http://www.nytimes.com/ref/health/healthguide/esn-chronicfatigue-expert.html Learning Firsthand About Chronic Fatigue Syndrome]
*May 30, 2008 - [http://www.nytimes.com/ref/health/healthguide/esn-chronicfatigue-questions.html What to Ask About Chronic Fatigue Syndrome]
*Jul 17, 2007 - [http://www.nytimes.com/2007/07/17/science/17fatigue.html Chronic Fatigue No Longer Seen as 'Yuppie Flu']

'''Other print media'''

*2018, Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT<ref name="Wilshire, 2018" /> [https://www.researchgate.net/publication/322568480_Rethinking_the_treatment_of_chronic_fatigue_syndrome-A_reanalysis_and_evaluation_of_findings_from_a_recent_major_trial_of_graded_exercise_and_CBT (Full Text)]
* Sep 25, 2017 - [https://www.statnews.com/2017/09/25/chronic-fatigue-syndrome-cdc/ Why did it take the CDC so long to reverse course on debunked treatments for chronic fatigue syndrome?] ''StatNews'' by David Tuller and [[Julie Rehmeyer]]
*Jul 26, 2017 - [https://undark.org/2017/07/26/cdc-chronic-fatigue-graded-exercise/ CDC Removes Reference to Disputed ME/CFS Therapies From Website] ''Undark''
*Apr 27, 2017 - [http://journals.sagepub.com/doi/full/10.1177/1359105317703788 Once again, the PACE authors respond to concerns with empty answers] ''Journal of Health Psychology''
*Oct 27, 2016 - [http://undark.org/article/chronic-fatigue-graded-exercise-pace/ Worse Than the Disease] ''Undark''
*Nov 18, 2015 - [http://alumni.berkeley.edu/california-magazine/just-in/2015-11-18/reporter-excoriates-chronic-fatigue-syndrome-study-i-stopped Reporter Excoriates Chronic Fatigue Syndrome Study: "I Stopped at 14,000 Words-Enough Was Enough"] ''California Magazine''
*Jan 27, 2014 - [http://www.buzzfeed.com/davidtuller/chronic-fatigue-syndrome#.tnegBjJ82 How 'Chronic Fatigue Syndrome' Obscures A Serious Illness] ''Buzzfeed''

In June 2017 after writing dozens of articles and organising open letters on the PACE trial, David Tuller sought crowdfunding help from the patient community to continue his work on investigating the PACE trial. MEAction had an exclusive interview about his crowdfunding effort <ref>[http://www.meaction.net/2017/06/08/interview-with-tuller-on-pace-work/?mc_cid=fd937eaa3d&mc_eid=83ddbd3a71 Tuller on PACE Investigation Plans: Not Beholden to anyone] </ref>. He raised it on Crowdrise [https://www.crowdrise.com/virology-blogs-trial-by-error-more-reporting-on-pace-mecfs-and-related-issues1/fundraiser/davidtuller?utm_source=dash-gtwo-cr&utm_platform=twt&utm_device=desktop Virology Blog's Trial By Error: Reporting on PACE, ME/CFS and Related Issues (2017] and succeeded and actually exceeded his goal within four weeks.

==Online presence==

*[http://www.twitter.com/davidtuller1 Twitter]
*[https://www.researchgate.net/profile/David_Tuller ResearchGate]

==Learn more==

*[http://www.berkeleywellness.com/author/davidtullerdrph Berkeley Wellness - David Tuller]

==References==
<references>
<ref name="Wilshire, 2018">{{Citation
| last1 = Wilshire | first1 = C | authorlink1 = Carolyn Wilshire
| last2 = Kindlon | first2 = T | authorlink2 = Tom Kindlon
| last3 = Courtney | first3 = R | authorlink3 = Robert Courtney
| last4 = Matthees | first4 = A | authorlink4 = Alem Matthees
| last5 = Tuller | first5 = D | authorlink5 = David Tuller
| last6 = Geraghty | first6 = K | authorlink6 = Keith Geraghty
| last7 = Levin | first7 = B | authorlink7 = Bruce Levin
| title = Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
| journal = ResearchGate | volume = | issue = | page =
| date = 2018
| doi =
| url = https://www.researchgate.net/publication/322568480_Rethinking_the_treatment_of_chronic_fatigue_syndrome-A_reanalysis_and_evaluation_of_findings_from_a_recent_major_trial_of_graded_exercise_and_CBT
}}
</ref>
</references>

[[Category:Journalists]]
[[Category:Advocates or allies]]
[[Category:Psychological paradigm critics]]
[[Category:PACE trial critics]]