MEpedia - User contributions [en]

https://me-pedia.org/w/api.php?action=feedcontributions&feedformat=atom&user=Canele MEpedia - User contributions [en] 2026-04-07T21:57:22Z User contributions MediaWiki 1.43.8 https://me-pedia.org/w/index.php?title=Legislation&diff=244797 Legislation 2026-02-27T23:27:33Z

<p>Canele:Update lead</p> <hr /> <div>'''Legislation''' and other state actions have been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • Consolidated Appropriations Act, 2021 — included $1.15 billion in RECOVER funding ''(enacted 2020)''<ref>{{Cite web|url=https://www.congress.gov/bill/116th-congress/house-bill/133|title=H.R.133 - Consolidated Appropriations Act, 2021|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • CARE for Long COVID Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1616|title=H.R.1616 - CARE for Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Support Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/2560|title=S.2560 - Long COVID Support Act|website=Congress.gov|archive-date=|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> ===State===<br /> <br /> ==== Colorado ====<br /> <br /> * Statewide initiatives and advocacy efforts; House Bill 22-1401 authorized the Office of Saving People Money on Health Care (OSPMHC) at the Office of Lt. Governor to undertake the work on Long COVID (Nov 2022). <ref>{{Cite news|url=https://cdphe.colorado.gov/covid-19/long-covid#research|title=Long COVID research and policy information}}</ref><br /> * 2/19/26, Colorado: 'Office of the Lieutenant Governor Releases 2026 Annual Report on Long COVID’<ref>{{Cite web|url=https://www.colorado.gov/governor/news/office-lieutenant-governor-releases-2026-annual-report-long-covid|title=Office of the Lieutenant Governor Releases 2026 Annual Report on Long COVID}}</ref><br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<ref>{{Cite web|url=https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0027?ys=2026RS|title=Legislation - HB0027|website=mgaleg.maryland.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== Minnesota ==== <br /> • HF 3206 - A bill for an act<br /> relating to health; requiring the commissioner of health to establish a program to monitor and assess the impact of long COVID; making appropriations for community health workers, pandemic delayed preventative care, and long COVID; proposing coding for new law in Minnesota Statutes, chapter 145. ''(proposed 2023)''<ref>{{Cite web|url=https://www.revisor.mn.gov/bills/93/2023/0/HF/3206/?body=house|title=HF 3206 Status in the House - 93rd Legislature (2023 - 2024)|website=www.revisor.mn.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== New York ====<br /> <br /> * NYC Health Department - Letter to Health Care Providers (Sep 2024)<ref>{{Cite web|url=https://whn.global/nyc_health_department_promotes_covid_precautions/|title=NYC Health Department Promotes COVID Precautions}}</ref><br /> <br /> ==== Virginia ====<br /> <br /> * **Senator Tim Kaine was major sponsor of the Federal Care Bill in 2023.<br /> * Richmond Long Covid Summit - Senator Tim Kane (Jan 2023)<ref>{{Cite web|url=https://www.kaine.senate.gov/press-releases/photos/video-kaine-hhs-conclude-long-covid-summit-in-richmond|title=Kaine, HHS Conclude Long COVID Summit in Richmond}}</ref><br /> <br /> ==== Utah ====<br /> <br /> * Utah Legislature Supports Dedicated Long COVID Care, Education, Research<ref>{{Cite web|url=https://uofuhealth.utah.edu/notes/2023/07/legislature-supports-long-covid-care-education-research|title=Utah Legislature Supports Dedicated Long COVID Care, Education, Research}}</ref> (*cites bill)<br /> * Long Covid in Utah (Oct 2024) - Utah Department of Health & Human Services<ref>{{Cite web|url=https://utahnewsdispatch.com/wp-content/uploads/2024/10/Long-COVID-in-Utah.pdf|title=Long Covid in Utah}}</ref><br /> <br /> ==== States with no Legislation Actions or Related Actions on LC ====<br /> Intended as a point of reference to later allowing grouping by category. Ideally from an advocate who lives in or has high familiarity with a state. <br /> <br /> Suggested format:<br /> <br /> Recent actions (where applicable), wiki update date. Advocates may consider sharing contact info for networking purposes if appropriate.<br /> <br /> ===== Nevada =====<br /> * The Office of Senator Cortez Mastro communicated with one advocate in Nov 2025 - "What Happened When I Spoke with My Senator’s Office About Long COVID" by Lesa Schultz.<ref>{{Cite web|url=https://lesaschultz.substack.com/p/what-happened-when-i-spoke-with-my|title=What Happened When I Spoke with My Senator’s Office About Long COVID}}</ref><br /> * State health agencies and political committees considered INACTIVE - Feb 2026.<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244599 Legislation 2026-02-24T23:21:26Z

<p>Canele:/* Minnesota */ Formatting</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • Consolidated Appropriations Act, 2021 — included $1.15 billion in RECOVER funding ''(enacted 2020)''<ref>{{Cite web|url=https://www.congress.gov/bill/116th-congress/house-bill/133|title=H.R.133 - Consolidated Appropriations Act, 2021|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • CARE for Long COVID Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1616|title=H.R.1616 - CARE for Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Support Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/2560|title=S.2560 - Long COVID Support Act|website=Congress.gov|archive-date=|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<ref>{{Cite web|url=https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0027?ys=2026RS|title=Legislation - HB0027|website=mgaleg.maryland.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== Minnesota ==== <br /> • HF 3206 - A bill for an act<br /> relating to health; requiring the commissioner of health to establish a program to monitor and assess the impact of long COVID; making appropriations for community health workers, pandemic delayed preventative care, and long COVID; proposing coding for new law in Minnesota Statutes, chapter 145. ''(proposed 2023)''<ref>{{Cite web|url=https://www.revisor.mn.gov/bills/93/2023/0/HF/3206/?body=house|title=HF 3206 Status in the House - 93rd Legislature (2023 - 2024)|website=www.revisor.mn.gov|access-date=2026-02-24}}</ref><br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244596 Legislation 2026-02-24T07:20:37Z

<p>Canele:/* Minnesota */ ref</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • Consolidated Appropriations Act, 2021 — included $1.15 billion in RECOVER funding ''(enacted 2020)''<ref>{{Cite web|url=https://www.congress.gov/bill/116th-congress/house-bill/133|title=H.R.133 - Consolidated Appropriations Act, 2021|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • CARE for Long COVID Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1616|title=H.R.1616 - CARE for Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Support Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/2560|title=S.2560 - Long COVID Support Act|website=Congress.gov|archive-date=|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<ref>{{Cite web|url=https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0027?ys=2026RS|title=Legislation - HB0027|website=mgaleg.maryland.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== Minnesota ====<br /> • HF 3206 - A bill for an act<br /> relating to health; requiring the commissioner of health to establish a program to monitor and assess the impact of long COVID; making appropriations for community health workers, pandemic delayed preventative care, and long COVID; proposing coding for new law in Minnesota Statutes, chapter 145. ''(proposed 2023)''<ref>{{Cite web|url=https://www.revisor.mn.gov/bills/93/2023/0/HF/3206/?body=house|title=HF 3206 Status in the House - 93rd Legislature (2023 - 2024)|website=www.revisor.mn.gov|access-date=2026-02-24}}</ref><br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244595 Legislation 2026-02-24T07:19:28Z

<p>Canele:/* Minnesota */ add</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • Consolidated Appropriations Act, 2021 — included $1.15 billion in RECOVER funding ''(enacted 2020)''<ref>{{Cite web|url=https://www.congress.gov/bill/116th-congress/house-bill/133|title=H.R.133 - Consolidated Appropriations Act, 2021|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • CARE for Long COVID Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1616|title=H.R.1616 - CARE for Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Support Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/2560|title=S.2560 - Long COVID Support Act|website=Congress.gov|archive-date=|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<ref>{{Cite web|url=https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0027?ys=2026RS|title=Legislation - HB0027|website=mgaleg.maryland.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== Minnesota ====<br /> • HF 3206 - A bill for an act<br /> relating to health; requiring the commissioner of health to establish a program to monitor and assess the impact of long COVID; making appropriations for community health workers, pandemic delayed preventative care, and long COVID; proposing coding for new law in Minnesota Statutes, chapter 145. ''(proposed 2023)''<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244594 Legislation 2026-02-24T07:02:13Z

<p>Canele:/* Federal */ ref</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • Consolidated Appropriations Act, 2021 — included $1.15 billion in RECOVER funding ''(enacted 2020)''<ref>{{Cite web|url=https://www.congress.gov/bill/116th-congress/house-bill/133|title=H.R.133 - Consolidated Appropriations Act, 2021|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • CARE for Long COVID Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1616|title=H.R.1616 - CARE for Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Support Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/2560|title=S.2560 - Long COVID Support Act|website=Congress.gov|archive-date=|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<ref>{{Cite web|url=https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0027?ys=2026RS|title=Legislation - HB0027|website=mgaleg.maryland.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244593 Legislation 2026-02-24T07:00:54Z

<p>Canele:/* Federal */ add</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • Consolidated Appropriations Act, 2021 — included $1.15 billion in RECOVER funding ''(enacted 2020)''<br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • CARE for Long COVID Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1616|title=H.R.1616 - CARE for Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Support Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/2560|title=S.2560 - Long COVID Support Act|website=Congress.gov|archive-date=|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<ref>{{Cite web|url=https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0027?ys=2026RS|title=Legislation - HB0027|website=mgaleg.maryland.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244592 Legislation 2026-02-24T06:57:43Z

<p>Canele:/* Federal */ correct date</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • RECOVER funding ''(enacted 2020)''<br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • CARE for Long COVID Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1616|title=H.R.1616 - CARE for Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Support Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/2560|title=S.2560 - Long COVID Support Act|website=Congress.gov|archive-date=|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<ref>{{Cite web|url=https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0027?ys=2026RS|title=Legislation - HB0027|website=mgaleg.maryland.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244591 Legislation 2026-02-24T06:26:54Z

<p>Canele:/* Federal */ dates</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • RECOVER funding ''(enacted 2021)''<br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • CARE for Long COVID Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1616|title=H.R.1616 - CARE for Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Support Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/2560|title=S.2560 - Long COVID Support Act|website=Congress.gov|archive-date=|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<ref>{{Cite web|url=https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0027?ys=2026RS|title=Legislation - HB0027|website=mgaleg.maryland.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244590 Legislation 2026-02-24T06:23:35Z

<p>Canele:/* Federal */ add</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • RECOVER funding ''(enacted 2021)''<br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov}}</ref><br /> <br /> • CARE for Long COVID Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1616|title=H.R.1616 - CARE for Long COVID Act|website=Congress.gov|access-date=February 24, 2026}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID Support Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/2560|title=S.2560 - Long COVID Support Act|website=Congress.gov|archive-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<ref>{{Cite web|url=https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0027?ys=2026RS|title=Legislation - HB0027|website=mgaleg.maryland.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244589 Legislation 2026-02-24T06:19:38Z

<p>Canele:/* Federal */ add</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • RECOVER funding ''(enacted 2021)''<br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID Support Act (proposed 2023)<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/2560|title=S.2560 - Long COVID Support Act|website=Congress.gov|archive-date=February 24, 2026}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<ref>{{Cite web|url=https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0027?ys=2026RS|title=Legislation - HB0027|website=mgaleg.maryland.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244588 Legislation 2026-02-24T06:16:21Z

<p>Canele:/* Maryland */ ref</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • RECOVER funding ''(enacted 2021)''<br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<ref>{{Cite web|url=https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0027?ys=2026RS|title=Legislation - HB0027|website=mgaleg.maryland.gov|access-date=2026-02-24}}</ref><br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244586 Legislation 2026-02-24T06:10:17Z

<p>Canele:/* Maryland */ copy edit</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • RECOVER funding ''(enacted 2021)''<br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program ''(proposed 2026)''<br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244585 Legislation 2026-02-24T06:09:06Z

<p>Canele:/* Federal */ ce</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • RECOVER funding ''(enacted 2021)''<br /> <br /> • TREAT Long COVID Act ''(proposed 2022)''<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act ''(proposed 2023)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID Research Moonshot Act ''(proposed 2024)''<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program (HB 0027 / SB 0392)<br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244584 Legislation 2026-02-24T06:08:02Z

<p>Canele:/* Federal */ add, formatting</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • RECOVER funding (''enacted 2021'')<br /> <br /> • TREAT Long COVID Act (''proposed 2022'')<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act (''proposed 2023'')<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID Research Moonshot Act (''proposed 2024'')<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program (HB 0027 / SB 0392)<br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244583 Legislation 2026-02-24T06:05:49Z

<p>Canele:/* Federal */ ref, order</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • TREAT Long COVID Act (2022)<ref>{{Cite web|url=https://www.congress.gov/bill/117th-congress/house-bill/7482|title=H.R.7482 - TREAT Long COVID Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act (2023)<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID Research Moonshot Act (2024)<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program (HB 0027 / SB 0392)<br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244582 Legislation 2026-02-24T06:04:03Z

<p>Canele:/* Federal */ add</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • TREAT Long COVID Act (2022)<br /> <br /> • Long COVID Research Moonshot Act (2024)<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act (2023)<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program (HB 0027 / SB 0392)<br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244581 Legislation 2026-02-24T05:58:58Z

<p>Canele:/* Federal */ dates</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • Long COVID Research Moonshot Act (2024)<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act (2023)<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program (HB 0027 / SB 0392)<br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244580 Legislation 2026-02-24T05:57:33Z

<p>Canele:/* Federal */ refs</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • Long COVID Research Moonshot Act<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/senate-bill/4964|title=S.4964 - Long COVID Research Moonshot Act|website=Congress.gov}}</ref><br /> <br /> • Long COVID RECOVERY NOW Act<ref>{{Cite web|url=https://www.congress.gov/bill/118th-congress/house-bill/1114|title=H.R.1114 - Long COVID RECOVERY NOW Act|website=Congress.gov}}</ref><br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program (HB 0027 / SB 0392)<br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244579 Legislation 2026-02-24T05:54:49Z

<p>Canele:/* Federal */ add</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • Long COVID Research Moonshot Act<br /> • Long COVID RECOVERY NOW Act<br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program (HB 0027 / SB 0392)<br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244578 Legislation 2026-02-24T05:52:00Z

<p>Canele:Add states</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • Long COVID Research Moonshot Act<br /> <br /> ===State===<br /> <br /> ==== Maine ====<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program (HB 0027 / SB 0392)<br /> <br /> ==== Minnesota ====<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244577 Legislation 2026-02-24T05:49:15Z

<p>Canele:Add</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> • Long COVID Research Moonshot Act<br /> <br /> ===State===<br /> <br /> ==== Maryland ====<br /> • Maryland TEDCO Long COVID Innovation Grant and Loan Program (HB 0027 / SB 0392)<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244576 Legislation 2026-02-24T05:44:00Z

<p>Canele:Copy edit</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal===<br /> <br /> ===State===<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Legislation&diff=244575 Legislation 2026-02-24T05:43:12Z

<p>Canele:Creating page for legislation</p> <hr /> <div>'''Legislation''' has been proposed or enacted on the subject of ME/CFS or related conditions like Long Covid.<br /> <br /> ==United States==<br /> <br /> ===Federal legislation===<br /> <br /> ===State legislation===<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=The_Sick_Times&diff=244351 The Sick Times 2025-09-26T22:39:38Z

<p>Canele:Reorder</p> <hr /> <div>'''''The Sick Times''''' is news website reporting on Long Covid and related diseases. It was founded by reporters [[Miles Griffis]] and [[Betsy Ladyszhets]], who are the site’s executive and managing editors respectively.<ref name=":0"> {{Cite web|url=https://thesicktimes.org/about/|title=About The Sick Times - The Sick Times|website=thesicktimes.org|access-date=2025-09-26}}</ref><br /> <br /> ==Description==<br /> <br /> According to its website:<br /> <br /> :"''The Sick Times'' is a journalist-founded website chronicling the Long COVID crisis.<br /> <br /> :"We report on the common, life-changing disease following SARS-CoV-2 infection that affects over 400 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing COVID-19 pandemic. No denial, minimizing, or gaslighting here."<ref name=":0" /><br /> <br /> ==Staff==<br /> * [[Miles Griffis]], cofounder and executive editor <br /> * [[Betsy Ladyzhets]], cofounder and managing editor<br /> * [[Heather Hogan]], engagement editor<br /> <br /> ==Advisory Board==<br /> * [[Monica Verduzco-Gutierrez]], MD<br /> * [[Ed Yong]]<br /> * [[Julie Rehmeyer]]<br /> * [[Julia Moore-Vogel]], PhD<br /> <br /> ==Web presence==<br /> <br /> *[https://thesicktimes.org Official site]<br /> *[https://bsky.app/profile/did:plc:age5xvis2s2vy5qiz2tjxoc6 Bluesky account]<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=The_Sick_Times&diff=244350 The Sick Times 2025-09-26T22:38:54Z

<p>Canele:/* Advisory Board */ add credentials</p> <hr /> <div>'''''The Sick Times''''' is news website reporting on Long Covid and related diseases. It was founded by reporters [[Miles Griffis]] and [[Betsy Ladyszhets]], who are the site’s executive and managing editors respectively.<ref name=":0"> {{Cite web|url=https://thesicktimes.org/about/|title=About The Sick Times - The Sick Times|website=thesicktimes.org|access-date=2025-09-26}}</ref><br /> <br /> ==Description==<br /> <br /> According to its website:<br /> <br /> :"''The Sick Times'' is a journalist-founded website chronicling the Long COVID crisis.<br /> <br /> :"We report on the common, life-changing disease following SARS-CoV-2 infection that affects over 400 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing COVID-19 pandemic. No denial, minimizing, or gaslighting here."<ref name=":0" /><br /> <br /> ==Web presence==<br /> <br /> *[https://thesicktimes.org Official site]<br /> *[https://bsky.app/profile/did:plc:age5xvis2s2vy5qiz2tjxoc6 Bluesky account]<br /> <br /> ==Staff==<br /> * [[Miles Griffis]], cofounder and executive editor <br /> * [[Betsy Ladyzhets]], cofounder and managing editor<br /> * [[Heather Hogan]], engagement editor<br /> <br /> ===Advisory Board===<br /> * [[Monica Verduzco-Gutierrez]], MD<br /> * [[Ed Yong]]<br /> * [[Julie Rehmeyer]]<br /> * [[Julia Moore-Vogel]], PhD<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=The_Sick_Times&diff=244349 The Sick Times 2025-09-26T22:38:07Z

<p>Canele:/* Advisory Board */ spelling</p> <hr /> <div>'''''The Sick Times''''' is news website reporting on Long Covid and related diseases. It was founded by reporters [[Miles Griffis]] and [[Betsy Ladyszhets]], who are the site’s executive and managing editors respectively.<ref name=":0"> {{Cite web|url=https://thesicktimes.org/about/|title=About The Sick Times - The Sick Times|website=thesicktimes.org|access-date=2025-09-26}}</ref><br /> <br /> ==Description==<br /> <br /> According to its website:<br /> <br /> :"''The Sick Times'' is a journalist-founded website chronicling the Long COVID crisis.<br /> <br /> :"We report on the common, life-changing disease following SARS-CoV-2 infection that affects over 400 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing COVID-19 pandemic. No denial, minimizing, or gaslighting here."<ref name=":0" /><br /> <br /> ==Web presence==<br /> <br /> *[https://thesicktimes.org Official site]<br /> *[https://bsky.app/profile/did:plc:age5xvis2s2vy5qiz2tjxoc6 Bluesky account]<br /> <br /> ==Staff==<br /> * [[Miles Griffis]], cofounder and executive editor <br /> * [[Betsy Ladyzhets]], cofounder and managing editor<br /> * [[Heather Hogan]], engagement editor<br /> <br /> ===Advisory Board===<br /> * [[Monica Verduzco-Gutierrez]]<br /> * [[Ed Yong]]<br /> * [[Julie Rehmeyer]]<br /> * [[Julia Moore-Vogel]]<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=The_Sick_Times&diff=244348 The Sick Times 2025-09-26T22:37:32Z

<p>Canele:/* Staff */ more</p> <hr /> <div>'''''The Sick Times''''' is news website reporting on Long Covid and related diseases. It was founded by reporters [[Miles Griffis]] and [[Betsy Ladyszhets]], who are the site’s executive and managing editors respectively.<ref name=":0"> {{Cite web|url=https://thesicktimes.org/about/|title=About The Sick Times - The Sick Times|website=thesicktimes.org|access-date=2025-09-26}}</ref><br /> <br /> ==Description==<br /> <br /> According to its website:<br /> <br /> :"''The Sick Times'' is a journalist-founded website chronicling the Long COVID crisis.<br /> <br /> :"We report on the common, life-changing disease following SARS-CoV-2 infection that affects over 400 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing COVID-19 pandemic. No denial, minimizing, or gaslighting here."<ref name=":0" /><br /> <br /> ==Web presence==<br /> <br /> *[https://thesicktimes.org Official site]<br /> *[https://bsky.app/profile/did:plc:age5xvis2s2vy5qiz2tjxoc6 Bluesky account]<br /> <br /> ==Staff==<br /> * [[Miles Griffis]], cofounder and executive editor <br /> * [[Betsy Ladyzhets]], cofounder and managing editor<br /> * [[Heather Hogan]], engagement editor<br /> <br /> ===Advisory Board===<br /> * [[Monica Verduzco-Guttierez]]<br /> * [[Ed Yong]]<br /> * [[Julie Rehmeyer]]<br /> * [[Julia Moore-Vogel]]<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=The_Sick_Times&diff=244347 The Sick Times 2025-09-26T22:33:41Z

<p>Canele:Start staff section</p> <hr /> <div>'''''The Sick Times''''' is news website reporting on Long Covid and related diseases. It was founded by reporters [[Miles Griffis]] and [[Betsy Ladyszhets]], who are the site’s executive and managing editors respectively.<ref name=":0"> {{Cite web|url=https://thesicktimes.org/about/|title=About The Sick Times - The Sick Times|website=thesicktimes.org|access-date=2025-09-26}}</ref><br /> <br /> ==Description==<br /> <br /> According to its website:<br /> <br /> :"''The Sick Times'' is a journalist-founded website chronicling the Long COVID crisis.<br /> <br /> :"We report on the common, life-changing disease following SARS-CoV-2 infection that affects over 400 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing COVID-19 pandemic. No denial, minimizing, or gaslighting here."<ref name=":0" /><br /> <br /> ==Web presence==<br /> <br /> *[https://thesicktimes.org Official site]<br /> *[https://bsky.app/profile/did:plc:age5xvis2s2vy5qiz2tjxoc6 Bluesky account]<br /> <br /> ==Staff==<br /> * [[Miles Griffis]], cofounder and executive editor <br /> * [[Betsy Ladyzhets]], cofounder and managing editor<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=The_Sick_Times&diff=244346 The Sick Times 2025-09-26T22:32:00Z

<p>Canele:/* Web presence */ formatting</p> <hr /> <div>'''''The Sick Times''''' is news website reporting on Long Covid and related diseases. It was founded by reporters Miles Griffis and Betsy Ladyszhets, who are the site’s executive and managing editors respectively.<ref name=":0"> {{Cite web|url=https://thesicktimes.org/about/|title=About The Sick Times - The Sick Times|website=thesicktimes.org|access-date=2025-09-26}}</ref><br /> <br /> ==Description==<br /> <br /> According to its website:<br /> <br /> :"''The Sick Times'' is a journalist-founded website chronicling the Long COVID crisis.<br /> <br /> :"We report on the common, life-changing disease following SARS-CoV-2 infection that affects over 400 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing COVID-19 pandemic. No denial, minimizing, or gaslighting here."<ref name=":0" /><br /> <br /> ==Web presence==<br /> <br /> *[https://thesicktimes.org Official site]<br /> *[https://bsky.app/profile/did:plc:age5xvis2s2vy5qiz2tjxoc6 Bluesky account]<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=The_Sick_Times&diff=244345 The Sick Times 2025-09-26T22:31:29Z

<p>Canele:Web links</p> <hr /> <div>'''''The Sick Times''''' is news website reporting on Long Covid and related diseases. It was founded by reporters Miles Griffis and Betsy Ladyszhets, who are the site’s executive and managing editors respectively.<ref name=":0"> {{Cite web|url=https://thesicktimes.org/about/|title=About The Sick Times - The Sick Times|website=thesicktimes.org|access-date=2025-09-26}}</ref><br /> <br /> ==Description==<br /> <br /> According to its website:<br /> <br /> :"''The Sick Times'' is a journalist-founded website chronicling the Long COVID crisis.<br /> <br /> :"We report on the common, life-changing disease following SARS-CoV-2 infection that affects over 400 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing COVID-19 pandemic. No denial, minimizing, or gaslighting here."<ref name=":0" /><br /> <br /> ==Web presence==<br /> <br /> *[thesicktimes.org Official site]<br /> *[https://bsky.app/profile/did:plc:age5xvis2s2vy5qiz2tjxoc6 Bluesky account]<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=The_Sick_Times&diff=244344 The Sick Times 2025-09-26T22:28:34Z

<p>Canele:Convert ref</p> <hr /> <div>'''''The Sick Times''''' is news website reporting on Long Covid and related diseases. It was founded by reporters Miles Griffis and Betsy Ladyszhets, who are the site’s executive and managing editors respectively.<ref name=":0"> {{Cite web|url=https://thesicktimes.org/about/|title=About The Sick Times - The Sick Times|website=thesicktimes.org|access-date=2025-09-26}}</ref><br /> <br /> ==Description==<br /> <br /> According to its website:<br /> <br /> :"''The Sick Times'' is a journalist-founded website chronicling the Long COVID crisis.<br /> <br /> :"We report on the common, life-changing disease following SARS-CoV-2 infection that affects over 400 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing COVID-19 pandemic. No denial, minimizing, or gaslighting here."<ref name=":0" /><br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=The_Sick_Times&diff=244343 The Sick Times 2025-09-26T22:27:44Z

<p>Canele:Ref</p> <hr /> <div>'''''The Sick Times''''' is news website reporting on Long Covid and related diseases. It was founded by reporters Miles Griffis and Betsy Ladyszhets, who are the site’s executive and managing editors respectively.<ref> https://thesicktimes.org/about/</ref><br /> <br /> ==Description==<br /> <br /> According to its website:<br /> <br /> :"''The Sick Times'' is a journalist-founded website chronicling the Long COVID crisis.<br /> <br /> :"We report on the common, life-changing disease following SARS-CoV-2 infection that affects over 400 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing COVID-19 pandemic. No denial, minimizing, or gaslighting here."<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=The_Sick_Times&diff=244342 The Sick Times 2025-09-26T22:26:41Z

<p>Canele:Start Sick Times page</p> <hr /> <div>'''''The Sick Times''''' is news website reporting on Long Covid and related diseases. It was founded by reporters Miles Griffis and Betsy Ladyszhets, who are the site’s executive and managing editors respectively.<br /> <br /> ==Description==<br /> <br /> According to its website:<br /> <br /> :"''The Sick Times'' is a journalist-founded website chronicling the Long COVID crisis.<br /> <br /> :"We report on the common, life-changing disease following SARS-CoV-2 infection that affects over 400 million people worldwide and can be fatal. Our coverage spans related infection-associated chronic conditions such as myalgic encephalomyelitis, dysautonomia, mast cell activation syndrome, and more. Unlike many outlets, we continue to report on the impact of the ongoing COVID-19 pandemic. No denial, minimizing, or gaslighting here."<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Functional_movement_disorder&diff=244341 Functional movement disorder 2025-09-26T22:21:42Z

<p>Canele:/* Learn more */ add further reading</p> <hr /> <div>{{Cleanup/Rewrite|reason=Some parts are factually incorrect. Some sections are direct copy and paste from (inaccurate) Wikipedia info. Content needs to be pared down and verified, and less historical. DSM-5 and ICD need referring to, plus misdiagnosis section needed.}}<br /> <br /> '''Functional movement disorder''' is a type of '''Functional Neurological Symptom Disorder''', which means there are physical symptoms similar to those found in neurological disorders, but it is classed as neuropsychiatric / psychiatric in origin. The symptoms are '''physical''', but also incompatible with any known neurological or medical condition.<ref name="DSM5">{{Cite book | url = https://books.google.co.uk/books?id=-JivBAAAQBAJ&lpg=PT1393&pg=PT573#v=onepage&q&f=false | title = Diagnostic and Statistical Manual of Mental Disorders (DSM-5®) | last = Association | first = American Psychiatric | date = 2013-05-22| publisher = American Psychiatric Pub|isbn=9780890425572|language=en|trans-title=|chapter=Somatic Symptom and Related Disorders|location=|edition=|volume=|chapter-url=| pages=|editor-last = |editor-first = | editor1-link = |editor-last2 = |editor-first2 = | editor2-link = | author-link = | last2 = | first2 = | authorlink2 = | last3 = | first3 = | authorlink3 = | last4 = | first4 = | authorlink4 = | last5 = | first5 = | authorlink5 = | author-link7 = | last8 = | first8 = | author-link8 = | author-link9 = |veditors=|others=|quote=}}</ref> The symptoms can include such symptoms as weakness or paralysis, abnormal movements like tremor or dystonic movements, gait abnormalities, and abnormal limb posturing. There may or may not be a known psychological stressor linked to the symptoms.<ref name="DSM5" /><br /> <br /> === Functional Neurological Symptom Disorder ===<br /> <br /> === Signs and Symptom Types === <br /> {| class="wikitable"<br /> |+<br /> !Symptom type (DSM-5)<br /> !Alternative names<br /> !Similar [[ME/CFS]] Symptoms<br /> |-<br /> |'''weakness or paralysis'''<br /> |Dissociative Motor Disorders, Psychogenic movement disorder, Functional Movement Disorder<br /> |[[paralysis]],[[muscle weakness]], [[paresis]]<br /> |-<br /> |'''abnormal movement''' (e.g., tremor, [[dystonia|dystonie]] movement, [[myoclonus]], gait disorder)<br /> |Dissociative Motor Disorders, Psychogenic movement disorder, Psychogenic [[tremor]]<br /> |[[muscle fasciculations|muscle fasciculations]] (twitching), [[dystonia]], [[myoclonus]] (jerking movements), [[ataxia]] (gait problems), [[dysphasia]], [[vertigo]]<br /> |-<br /> |'''speech symptoms''' (e.g., dysphonia, slurred speech)<br /> |Dissociative Motor Disorders <br /> |facial [[paralysis]], [[word-finding difficulties]], [[brain fog]] / [[cognitive dysfunction]]<br /> |-<br /> |'''swallowing symptoms'''<br /> |Dissociative Motor Disorders (e.g., ataxia), Psychogenic movement disorder, Psychogenic aphonia,<br /> Psychogenic [[dysphonia]]<br /> |[[dysphagia]], partial [[paralysis]] / [[paresis]] - may also include chewing problems<br /> |-<br /> |'''attacks or seizures'''<br /> |Dissociative convulsions, [[Nonepileptic seizure|pseudoseizures]], [[Nonepileptic seizure|psychological non-epileptic seizures]] (PNES), [[Nonepileptic seizure|Non-epileptic attack disorder]] (NEAD), dissociative stupor<br /> |[[seizure|seizure-like symptoms]], [[sleep paralysis]] or [[unconsciousness]] in [[severe and very severe ME|very severe ME]]<br /> |-<br /> |'''anaesthesia or sensory loss'''<br /> |Dissociative Anaesthesia or Sensory Loss, Psychogenic deafness, Psychogenic blindness<br /> |[[numbness]], [[paresthesia]]<br /> |-<br /> |'''special sensory symptoms''' (e.g., visual, olfactory, or hearing disturbance) <br /> |[[Conversion disorder]], [[medically unexplained physical symptoms|Medically unexplained neurological symptom]]s<br /> |[[Visual dysfunction]], [[double vision]], [[blurred vision]], [[nystagmus]], [[photophobia]], [[hyperacusis|hyperacuity]] (hearing sensitivity), [[tinnitus]], [[aural problems]], [[parosmia|altered sense of smell]]<br /> |-<br /> |'''Mixed symptoms'''<br /> |Dissociative disorders of movement and sensation, Mixed dissociative [conversion] disorders, Functional Neurological Symptom Disorder, Functional Neurological Symptom, Conversion Disorder, Dissociative Neurological Symptom Disorder, [[functional neurological disorder|Functional Neurological Disorder]] (FND), Conversion [[Hysteria]] (historical name), [[Medically unexplained physical symptoms|Medically unexplained neurological symptom]]s, [[Medically unexplained physical symptoms|MUPS/MUS]]<br /> |<br /> |}<br /> <ref name="HIScot" /><ref name="ICD10">{{Cite web | url = http://apps.who.int/classifications/icd10/browse/2010/en#/F44 | title = Dissociative Disorders {{!}} ICD-10 Version:2010 | last = World Health Organization | first = | date = 2010 | website = [[World Health Organization]]|language=en|archive-url=|archive-date=|url-status=|access-date=2018-10-12}}</ref><ref>{{Cite web | url = https://icd.who.int/browse11/l-m/en#/http://id.who.int/icd/entity/1069443471 | title = Dissociative Neurological Symptom Disorders {{!}} ICD-11 - Mortality and Morbidity Statistics | last = World Health Organization | first = | date = 2018 | website = icd.who.int|language=en|archive-url=|archive-date=|url-status=|access-date=2018-10-12}}</ref><ref>{{Cite journal | last = Carruthers | first = B.M. | last2 = Sande | first2 = M. I. van de | last3 = De Meirleir | first3 = K.L. | last4 = Klimas | first4 = N.G. | authorlink4 = Nancy Klimas | last5 = Broderick | first5 = G. | last6 = Mitchell | first6 = T. | last7 = Staines | first7 =D. | last8 = Powles | first8 = A.C.P. | last9 = Speight | first9 = N. | author-link9 = Nigel Speight | date = 2011-10-01 | title = Myalgic encephalomyelitis: International Consensus Criteria| url = http://www.investinme.org/Documents/Guidelines/Myalgic%20Encephalomyelitis%20International%20Consensus%20Primer%20-2012-11-26.pdf | journal=Journal of Internal Medicine|language=en|volume=270|issue=4| pages=|doi=10.1111/j.1365-2796.2011.02428.x/full|issn=1365-2796|via=}}</ref><br /> <br /> === Physical Symptoms ===<br /> '''Functional Neurological Symptom Disorder (FNSD or FND)''' is a poorly understood disorder. It is an umbrella term for a variety of symptoms which look similar to those caused by neurological conditions such as Multiple Sclerosis (MS) or Parkinson's disease, including weakness, fatigue and seizures. It is currently believed that [[functional neurological disorder|Functional Neurological Symptom Disorder]] arises from a problem with the patient's [[Central nervous system|Central Nervous System]], which is not sending or receiving signals correctly.<ref name=":0">{{Cite web | title = neurosymptoms.org|url = http://www.neurosymptoms.org/#/causes/4533053418|website = neurosymptoms.org|access-date = 2015-11-24}}</ref> The brain of a patient with Functional Neurological Symptom Disorder is structurally normal, but functions incorrectly.<ref>{{Citation| title = Functional Neurological Symptoms {{!}} Neurology in NHS Greater Glasgow and Clyde|url = http://www.neurology-in-ggc.scot.nhs.uk/functional-neurological-symptoms-glasgow|website = neurology-in-ggc.scot.nhs.uk|access-date = 2015-11-24}}</ref> MRI and CT scans show no abnormalities in patients with FND; however, it has been discovered that there is a difference in blood flow to certain key areas of the brain when scanned using [[Functional magnetic resonance imaging|Functional Magnetic Resonance Imaging]] (fMRI). Although currently there is no way to 'see' whether a patient has FND, their symptoms are "real" (meaning not under voluntary control), and cause physical disability or distress to the individual.<ref name="DSM5" /><ref name="Carson2000">{{Cite journal | last = Carson | first = Alan J. | author-link = Alan Carson | last2 = Ringbauer | first2 = Brigitte | last3 = Stone | first3 = Jon | last4 = McKenzie | first4 = Lesley | last5 = Warlow | first5 = Charles | last6 = Sharpe | first6 = Michael | authorlink6 = Michael Sharpe | date = 2000-02-01 | title = Do medically unexplained symptoms matter? A prospective cohort study of 300 new referrals to neurology outpatient clinics| url = https://jnnp.bmj.com/content/68/2/207|journal=Journal of Neurology, Neurosurgery & Psychiatry|language=en|volume=68|issue=2 | pages = 207–210|doi=10.1136/jnnp.68.2.207|issn=0022-3050|pmid=10644789|via=}}</ref> It is widely accepted that those with FND may be as disabled as those with Multiple Sclerosis or Parkinsons, and often are more distressed.{{citation needed | date = 2022}}<br /> <br /> The term '''Conversion Disorder''' is still used by some clinicians, however refers specifically to those who have a psychological stressor causing their symptoms, such as a traumatic event or mental conflict. It is "a psychoanalytic concept that describes the occurrence of motor or sensory neurological symptoms other than pain and fatigue that cause distress, are not explained by disease, not malingered but are thought to relate to psychological factors"<ref>{{citation | last1 = Stone | first1 = Jon | last2 = Carson | first2 = Alan | last3 = Sharpe | first3 = Michael | title = Functional symptoms and signs in neurology: assessment and diagnosis|journal=Journal of Neurology, Neurosurgery and Psychiatry | date = 2005|volume=76|issue=1}}</ref><br /> <br /> Diagnostic labeling is causing a great amount of confusion amongst patients and doctors alike. One doctor may use the term Functional Neurological Disorder or Functional Movement Disorder, but then another may use Conversion Disorder.<ref>{{Citation |url = http://fndhope.org/resources/functional-terms-defined/ | title = Functional Terms Defined | date = |access-date = Feb 10, 2016|website = |publisher = |last = | first = }}</ref><br /> <br /> == History of FND ==<br /> FND has historically been highly stigmatized, with patients often referred to as ''hysterics'', or ''hysterical'' (based on its original name of Hysteria). The first evidence of FNSD dates back to 1900 BC, where the symptoms were blamed on the uterus moving around within the female body. The treatment was based on placing a mix of unpleasant and pleasant odors around the body in the belief that this would encourage the uterus to return to its proper position.<ref name="Tasca">{{Cite journal | title = Women And Hysteria In The History Of Mental Health|url = http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3480686/|journal = Clinical Practice and Epidemiology in Mental Health : CP & EMH | date = 2012-10-19|issn = 1745-0179|pmc = 3480686|pmid = 23115576| pages = 110–119|volume = 8|doi = 10.2174/1745017901208010110|first = Cecilia|last = Tasca | first2 = Mariangela | last2 = Rapetti | first3 = Mauro Giovanni | last3 = Carta | first4 = Bianca | last4 = Fadda}}</ref> <br /> <br /> In Greek mythology, [[hysteria]], the original name for a group of conditions including FND, was thought to be caused by a lack of orgasms, uterine melancholy and childlessness. Remedies included orgies and marriage.<ref name="Tasca" /> From the 13th Century, women with hysteria were exorcised, as it was believed that if doctors could not find the cause of a disease or illness, it must be caused by the devil. <ref name="Tasca" /> This was in keeping with the belief at the time that mental illness was a spiritual / demonic problem.<br /> <br /> Between the late 16th century and the 18th century the role of the uterus was no longer central to the disorder, with Thomas Willis discovering that the brain and central nervous system were the cause of the symptoms. Thomas Sydenham argued that the symptoms of may have an organic (physical) cause and proved that the uterus was not the cause of symptoms. <ref name="Tasca" /><br /> <br /> From the 18th century, there was a move toward the idea that hysteria was caused by the brain. This led to an understanding that it could affect both sexes. Jean Martin Charcot argued that hysteria was caused by "a hereditary degeneration of the nervous system, namely a neurological disorder".<ref name="Tasca" /><br /> <br /> In the 19th Century, hysteria moved from being considered a neurological disorder to being considered a psychological disorder, when Pierre Janet argued that "dissociation appears autonomously for neurotic reasons, and in such a way as to adversely disturb the individual’s everyday life"<ref name="Tasca" /><br /> <br /> Freud referred to hysteria as '''conversion disorder.''' He believed that those with the condition could not live in a mature relationship, and that those with the condition were unwell in order to achieve a 'secondary gain' in that they are able to manipulate their situation to fit their needs or desires. He also found that both men and women could suffer with the disorder.<ref name="Tasca" /><br /> <br /> In 2013, the Diagnostic and Statistical Manual of Mental Disorders version 5 (DSM-5) kept the name Conversion Disorder, however it included '''Functional Neurological Symptom Disorder''' as an alternative name.<ref name="DSM5" /> In the 2022 revision of the DSM-5, the DSM-5-TR, the primary name was changed to Functional Neurological Symptom Disorder, however Conversion Disorder was still kept as an alternative name.<ref>{{Cite book | title = Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, Text Revision (DSM-5-TR(tm))|trans-title=|chapter=Somatic Symptom and Related Disorders | date = 2022 | publisher = American Psychiatric Association Publishing|location=|isbn=978-0-89042-576-3|edition=|volume=|language=en | url =https://books.google.com/books/about/Diagnostic_and_Statistical_Manual_of_Men.html?id=PIGizgEACAAJ&redir_esc=y|chapter-url=| pages=|editor-last = |editor-first = | editor1-link = |editor-last2 = |editor-first2 = | editor2-link = | last = Association | first = American Psychiatric | authorlink = | last2 = | first2 = | authorlink2 = | last3 = | first3 = | authorlink3 = | last4 = | first4 = | authorlink4 = | last5 = | first5 = | authorlink5 = | author-link7 = | last8 = | first8 = | author-link8 = | author-link9 = |veditors=|others=|quote=}}</ref><br /> <br /> Today, there is growing evidence that psychological stress is not necessarily the cause of FND.{{Citation needed | date = 2022}} A recent study by the charity FNDHope found that psychological triggers affected only 30% of patients.{{citation needed}} Some doctors still follow Freud's theory about Conversion Disorder, however others are moving on to look at the role of the Central Nervous System in FNSD symptoms.{{Citation needed}}<br /> <br /> == Signs and Symptoms ==<br /> There are a great number of symptoms experienced by those with Functional Neurological Disorder. It is important to note that all the symptoms which are experienced by those with FNsD are real, and often debilitating. These include, but are not limited to<br /> * [[Muscle weakness|Weakness]]<br /> * [[Paralysis]]<br /> * Dizziness<br /> * [[Nausea]]<br /> * [[Visual dysfunction|Changes in vision]]<br /> * [[Nonepileptic seizure|Non-epileptic seizures]] <br /> * [[Blackouts]]<br /> * Tremors <br /> * Fatigue<br /> * Chronic pain<br /> * Sensory abnormalities <br /> * Bladder or bowel changes<br /> <ref name=":0" /><br /> <br /> == Diagnostic Criteria from DSM-5 ==<br /> Functional Neurological Symptom Disorder was added to the DSM-5 to replace the term Conversion Disorder. There are two subcategories of Functional Neurological Symptom Disorder, those with a psychological stressor and those without. Functional Neurological Disorder is the widely accepted term for those without, while Conversion Disorder refers to those with a psychological stressor. However, some doctors are advising the discontinuation of the term 'Conversion Disorder' entirely. <br /> <br /> The diagnostic criteria for Functional Neurological Disorder is:<br /> <br /> A. The patient has ≥1 symptoms of altered voluntary motor or sensory function.<br /> <br /> B. Clinical findings provide evidence of incompatibility between the symptom and recognised neurological or medical conditions.<br /> <br /> C. The symptom or deficit is not better explained by another medical or mental disorder.<br /> <br /> D. The symptom or deficit causes clinically significant distress or impairment in social, occupational, or other important areas of functioning or warrants medical evaluation.<br /> <br /> '''Specify type of symptom or deficit as:'''<br /> * With weakness or paralysis<br /> * With abnormal movement (e.g., tremor, dystonic movement, myoclonus, gait disorder)<br /> * With swallowing symptoms<br /> * With speech symptoms (e.g., dysphonia, slurred speech)<br /> * With attacks or seizures<br /> * With anaesthesia or memory loss<br /> * With special sensory symptom (e.g., visual, olfactory,or hearing disturbance)<br /> * With mixed symptoms.<br /> '''Specify if:'''<br /> * Acute episode: symptoms present for less than 6 months<br /> * Persistent: symptoms present for 6 months or more.<ref>{{Citation | url = http://bestpractice.bmj.com/best-practice/monograph/989/diagnosis/criteria.html | title = Conversion and somatic symptom disorders | date = | access-date = November 25, 2015 | website = | publisher = | last = | first = }}</ref><br /> '''Specify if:'''<br /> * Psychological Stressor<br /> * No Psychological Stressor<br /> <br /> == Treatments ==<br /> <br /> === Treatment Options ===<br /> A multi-disciplinary approach to treating Functional Neurological Disorder is recommended. There is currently no known cure for the condition, however some treatment options have had low-level success rates. For example, [[Cognitive behavioral therapy|Cognitive Behavioural Therapy (CBT)]] has a 13% improvement rate across patients with both FND and CD,<ref>{{Citation| title = Symptoms - FND Hope|url = http://fndhope.org/fnd-guide/symptoms/|website = FND Hope|access-date = 2015-11-25|language = en-US}}</ref> however is effective mainly in those with Conversion Disorder as opposed to Functional Neurological Disorder. For those with Conversion Disorder, or with a psychological trigger to their symptoms, psychological treatments have been found not to be a cure, as "‘ ... psychosocial treatments have not yet been shown to have a lasting and clinically meaningful influence on the physical complaints of polysymptomatic somatisers’ (Allen ''et al'', 2002)."<ref name="Wessely2004">{{Citation| title = There is only one functional somatic syndrome|url = http://bjp.rcpsych.org/content/185/2/95|journal = The British Journal of Psychiatry | date = 2004-08-01|issn = 0007-1250|pmid = 15286058| pages = 95–96|volume = 185|issue = 2|doi = 10.1192/bjp.185.2.95|language = en | first = Simon|last = Wessely | first2 = PeterD. | last2 = White}}</ref><br /> <br /> Treatment options can include:<br /> * Physiotherapy{{Citation needed|reason=Do not use neurosymptoms.org - does not meet science guidelines | date = 2019}}<br /> * Neurological Rehabilitation Centres<br /> * Medication such as sleeping tablets, painkillers, anti-epileptic medications and anti-depressants{{Citation needed|reason= | date = 2019}}<br /> * Psychological support which can help patients to understand their condition or support them when they experience low moods or anxiety{{Citation needed|reason= | date = 2019}}<br /> However for many patients with FNsD, accessing treatment can be difficult as availability is limited. Most medical professionals are unaware of how to treat patients with functional symptoms.<ref name="HIScot">{{Citation| title = Neurological functional symptoms stepped care report | url = http://www.healthcareimprovementscotland.org/our_work/long_term_conditions/neurological_health_services/neurological_symptoms_report.aspx|website = healthcareimprovementscotland.org|access-date = 2015-11-25}}</ref><br /> <br /> Some, but not all patients with FNsD may experience low moods or anxiety due to their condition. However often they will not seek treatment due being worried that a doctor will blame their symptoms on their anxiety or depression.{{Citation needed|reason= | date = 2019}} <br /> <br /> == Prevalence ==<br /> Functional Neurological Disorder is a common problem, with estimates suggesting that up to a third of neurology outpatients having functional symptoms.<ref name="HIScot" /> In Scotland, around 5000 new cases of FND are diagnosed annually.<ref name="HIScot" /> Furthermore, non-epileptic seizures account for 1 in 7 referrals to neurologists after an initial seizure, and functional weakness has a similar prevalence to Multiple Sclerosis.<ref name="HIScot" /><br /> <br /> == Common Myths about Functional Neurological Symptom Disorder ==<br /> Patients are imagining their symptoms<br /> <br /> Patients are feigning their symptoms<ref>{{Cite web | url = https://fndhope.org/fnd-guide/10-myths-about-fnd/ | title = 10 Myths about FND|website=FND Hope International|language=en-US|access-date=2022-05-07}}</ref><br /> <br /> Functional Neurological Disorder is caused by psychological dysfunction or a problem with emotional processing<br /> <br /> [[Cognitive behavioral therapy|Cognitive Behavioural Therapy (CBT)]] will cure Functional Neurological Symptom Disorder<br /> <br /> Functional Neurological Symptom Disorder only affects females<ref name=":1">{{Cite web | url = https://rarediseases.org/rare-diseases/fnd/ | title = Functional Neurological Disorder|website=NORD (National Organization for Rare Disorders)|language=en-US|access-date=2022-05-07}}</ref><br /> <br /> Functional Neurological Symptom Disorder only affects young adults<ref name=":1" /><br /> <br /> Functional Neurological Symptom Disorder is rare<ref name=":1" /><br /> <br /> == Research ==<br /> Currently, little research is being carried out into Functional Neurological Disorder, with most research focusing on symptoms caused by Conversion Disorder. This research focuses on Freudian ideas and the theory that patients attitudes towards their illness directly correlate with the continuation of symptoms.<br /> <br /> Researchers studying Functional Neurological Symptom Disorder without psychological stressors are looking at various possible causes including<br /> * Neurotoxicity<br /> * Central Sensitization Syndrome<br /> <br /> == Debate ==<br /> There is much debate surrounding the FND diagnosis. Some doctors continue to believe that all FND patients have unresolved traumatic events (often of a sexual nature) which are being expressed in a physical way. However, some doctors do not believe this to be the case. Wessely and White state that all somatic illnesses, including Fibromyalgia, Irritable Bowel Syndrome and Chronic Fatigue Syndrome "still fall under the title of ‘unexplained’ since no consensual scientific explanation has been advanced for any of them that meets with universal acceptance. Unexplained means what it says on the tin, and is not a code for psychiatric, still less for ‘all in the mind’."<ref name="Wessely2004" /> They go on to argue that "A somatoform disorder can only be so classified in the absence of an adequate physical explanation (World Health Organization, 1992). Furthermore, a somatoform pain disorder can only ‘... occur in association with emotional conflict or psychosocial problems that are sufficient to allow the conclusion that they are the main causal influences’ (World Health Organization, 1992). How can the clinician be sure that the psychosocial problem actually caused the illness?"<ref name="Wessely2004" /> <br /> <br /> == Alternative Diagnoses ==<br /> Functional Neurological Symptom Disorder can mimic many other conditions. Although doctors state that misdiagnosis rates are very low, with some research suggesting that only 2% of patients were misdiagnoses after 12.5 years.<ref>{{Citation| title = The 12 year prognosis of unilateral functional weakness and sensory disturbance|url = http://jnnp.bmj.com/content/74/5/591|journal = Journal of Neurology, Neurosurgery & Psychiatry | date = 2003-05-01|issn = 1468-330X|pmc = 1738446|pmid = 12700300| pages = 591–596|volume = 74|issue = 5|doi = 10.1136/jnnp.74.5.591|language = en | first = J. | last = Stone | first2 = M. | last2 = Sharpe | first3 = P.M. | last3 = Rothwell|first4 = C.P. | last4 = Warlow}}</ref> Some alternative diagnoses for FNsD can be<br /> * [[Migraine#Hemiplegic_migraine|Hemiplegic migraine]]<br /> * [[Multiple sclerosis]]<br /> * [[Amyotrophic literal sclerosis]] (ALS/Motor Neurone Disease)<br /> * [[Parkinson's disease]]<br /> * [[Autoimmune disease|Autoimmune Disorders]]<br /> * [[Ehlers Danlos Syndrome]]<br /> * Stroke<br /> <br /> == Other Functional Conditions ==<br /> * [[Irritable bowel syndrome|Irritable Bowel Syndrome (IBS)]]<br /> * [[Fibromyalgia]]<br /> * Chronic Pelvic Pain (CPP)<br /> * [[Interstitial cystitis]] (IC)<br /> * [[Temporomandibular joint disorder]] (TMJ)<br /> <ref>{{Citation| title = IBS and Non-GI Functional Disorders - aboutIBS.org|url = http://www.aboutibs.org/site/what-is-ibs/other-disorders/non-gi-functional-disorders|website = aboutibs.org|access-date = 2015-11-25}}</ref><br /> <br /> ==Notable studies==<br /> *2012, [https://www.ncbi.nlm.nih.gov/pubmed/22610460 Functional (psychogenic) movement disorders]<br /> <br /> ==Learn more==<br /> <br /> * [https://thesicktimes.org/2025/09/26/long-covid-is-not-fnd-but-some-patients-are-getting-diagnosed-with-it-heres-what-to-do-if-it-happens-to-you/ “Long Covid is not FND but some patients are getting diagnosed with it. Here’s what to do if it happens to you.”] from ''[[The Sick Times]]''<br /> <br /> * [http://www.neurosymptoms.org neurosymptoms.org]<br /> <br /> * [https://www.who.int/classifications/icd/en/bluebook.pdf | ICD10 blue book, p127]<br /> <br /> * [http://www.fndhope.org FND Hope]<br /> <br /> * [https://books.google.co.uk/books?id=-JivBAAAQBAJ&lpg=PT1393&pg=PT573#v=onepage&q&f=false DSM-5] (Google books preview)<br /> <br /> ==See also==<br /> *[[Nonepileptic seizure]]<br /> *[[Myalgic encephalomyelitis]]<br /> *[[International Consensus Criteria]] for ME/CFS<br /> *[[Cognitive behavioral therapy]]<br /> *[[Medically unexplained symptoms]]<br /> *[[Psychologization]]<br /> <br /> == References ==<br /> {{Reflist}}<br /> <br /> [[Category:Diagnoses]]<br /> [[Category:Neurology]]<br /> [[Category:Mental disorders]]</div>

Canele https://me-pedia.org/w/index.php?title=Hannah_Davis&diff=244016 Hannah Davis 2025-05-26T18:07:18Z

<p>Canele:/* Machine learning and art */ rmv broken formatting</p> <hr /> <div><br /> '''Hannah E. Davis''' (born 1988 or 1989<ref name=":2">{{Cite news |last=Mike |first=Mariani |date=February 3, 2022 |title=The great gaslighting: how Covid longhaulers are still fighting for recognition |language=en-GB |work=The Guardian |url=https://www.theguardian.com/society/2022/feb/03/long-covid-fight-recognition-gaslighting-pandemic |access-date=November 9, 2023 |issn=0261-3077}}</ref>) is an American artist, [[Data science|data scientist]] and [[long COVID]] researcher.<ref name="NYT2021" /><ref name="PLRC">{{Cite web | url=https://patientresearchcovid19.com/ | title = Patient Led Research Collaborative – for Long COVID|website=patientresearchcovid19.com|access-date=2022-05-18}}</ref><ref name=":0">{{Cite web |last=Ellis |first=Rachel Reiff |date=2023 |title=WebMD Health Heroes 2023 – Patient-Led Research - Hannah Davis |url=https://www.webmd.com/healthheroes/advocate-hannah-davis |access-date=November 5, 2023 |website=WebMD}}</ref><ref>{{Cite magazine |title=TransProse: A novel approach to composing |language=en-GB |magazine=Wired UK |url=https://www.wired.co.uk/article/readers-note |access-date=November 11, 2023 |issn=1357-0978}}</ref> She was one of the founders of the [[Patient-Led Research Collaborative]] (PLRC), a group of long COVID patients with experience in research or data analysis.<ref name=":0" /> Research early in the [[COVID-19 pandemic]] by the PLRC mapped how a COVID-19 infection could have long-term debilitating effects, even for young and previously healthy people. It was used for the [[Centers for Disease Control and Prevention|CDC]]'s documentation on long COVID.<ref name=":2" /><br /> <br /> == Education ==<br /> Davis studied international relations, and later spent time in [[Ghana]]. For her masters, she studied creative communication technology at [[New York University]].<ref name=":1">{{Cite book |last=Miller |first=A |title=The Artist in the Machine |publisher=MIT Press |year=2019 |isbn=9780262042857 |chapter=Hannah Davis Turns Words into Music}}</ref><br /> <br /> == Machine learning and art ==<br /> Davis's work as a generative artist focused on music, sentiment analysis and [[bias]] in datasets.<ref>{{Cite web |title=Hannah Davis |url=https://tisch.nyu.edu/itp/itp-people/faculty/fellowship-alumni/hannah-davis |access-date=November 11, 2023 |website=tisch.nyu.edu |language=en}}</ref><br /> <br /> A major theme of Davis's work was translating text into music, particularly generating music from the emotional data of the text. One of the projects Davis worked on turned publicly available books into music, generating music based on the emotion of the input text. Initially, her analysis was able to pick up the "rhythm" of books, for instance short sentences for [[Ernest Hemingway]], and more flowery rhythms for work from [[Virginia Woolf]]. She built this work using a resource by Saif Mohammad, who had developed a [[lexicon]] mapping a large set of words onto eight basic emotions. The resulting tool, Transprose, created short musical pieces that mirrored the emotional tone of various novels.<ref name=":1" /><br /> <br /> She used a similar [[algorithm]] to generate melodies based on news articles, which were used to collaborate with composer Mathieu Lamboley to create a [[symphony]] for a 50-person orchestra. This was performed in the [[Louvre]] in Paris, France.<ref>{{Cite news |last=Overly |first=Steven |date=December 5, 2021 |title=This symphony had both human and computer composers |language=en-US |newspaper=Washington Post |url=https://www.washingtonpost.com/news/innovations/wp/2016/09/23/this-symphony-had-both-human-and-computer-composers/ |access-date=November 11, 2023 |issn=0190-8286}}</ref><br /> <br /> She was commissioned by the Italian art collective D20 to produce a piece played on a factory-turned instrument, called "Fabbrica Alta".<ref>{{Cite magazine |last=Sterling |first=Bruce |date=March 18, 2018 |title=Hannah Davis using an Italian factory as an instrument |url=https://www.wired.com/beyond-the-beyond/2018/03/hannah-davis-using-italian-factory-instrument/ |access-date=November 9, 2023 |magazine=WIRED |language=en-US}}</ref> Her piece "Percival", commissioned by SynthBeats Laptop Orchestra, was a piece designed to be played by six performers and also focused on subjective interpretation of text translated into music.<br /> <br /> In 2019, Davis co-created an installation called ''The Laughing Room'' with author [[Jonny Sun]]. They trained an [[Artificial intelligence|AI]] on standup comedy transcripts from women, nonbinary, and BIPOC comedians to learn what was funny; the AI was then placed in a room with chairs and a sofa, and people could talk to it to try evoking a laughing response.<ref>{{Cite web |last=Fleischer |first=Evan |date=November 19, 2018 |title=Can AI laugh? We investigated. |url=https://bigthink.com/thinking/laughing-room-heres-what-happened/ |access-date=November 9, 2023 |website=Big Think |language=en-US}}</ref> This was installed at the 2019 [[TED (conference)|TED Conference]], with additional installations at the [[Cambridge Public Library]] and The New American Festival.<br /> <br /> Davis often presented on [[bias in machine learning]] datasets and about her own work; she regularly spoke at international art-tech festivals including [[Eyeo festival|Eyeo]], Strange Loop, and Kikk Festival.<ref>{{cite web | url=https://www.thestrangeloop.com/2018/generating-music-from-emotion-and-other-experiments.html | title=Generating Music from Emotion (And other experiments) - Strange Loop }}</ref><ref>{{cite web | url=https://2017.kikk.be/en/programme-fr/conferences-fr/hannah-davis | title=KIKK Festival - Hannah Davis at KIKK festival 2017 }}</ref> In 2019, she opened the renowned [[Transmediale]], an annual festival for art and digital culture in Berlin.<ref>{{cite web | url=https://archive.transmediale.de/content/kristoffer-gansing-at-structures-of-feeling-transmediale-2019-opening | title=Kristoffer Gansing at Structures of Feeling – transmediale 2019 Opening &#124; transmediale }}</ref> In September 2019, the [[Library of Congress]] invited her to speak as part of their Machine Learning + Libraries report on the state of the field, where she advocated that "a dataset is a worldview" and that "classification is violence" while urging caution in choosing input data used to train machine learning models.<ref>{{Cite web |date=March 5, 2020 |title=A Dataset is a Worldview |url=https://medium.com/towards-data-science/a-dataset-is-a-worldview-5328216dd44d |publisher=Towards Data Science}}</ref><ref>https://labs.loc.gov/static/labs/work/reports/Cordell-LOC-ML-report.pdf</ref><br /> <br /> == Long COVID research and advocacy ==<br /> Davis got [[COVID-19]] in the first wave, in March 2020.<ref name=":0" /> At this point, the public health narrative was that people either fully recovered from COVID or died.<ref name=":2" /> Davis developed neurological issues that did not pass, including [[Cognitive impairment|cognitive deficits]] (not being able to concentrate) and [[dysautonomia]] (dysfunction of the autonomic nervous system).<ref name=":3">{{Cite web |last=Emily |first=Mullin |date=August 18, 2021 |title=How does COVID-19 affect the brain? A troubling picture emerges. |url=https://www.nationalgeographic.com/science/article/how-does-covid-19-affect-the-brain-a-troubling-picture-emerges |archive-url=https://web.archive.org/web/20210818193830/https://www.nationalgeographic.com/science/article/how-does-covid-19-affect-the-brain-a-troubling-picture-emerges |url-status=dead |archive-date=August 18, 2021 |access-date=November 11, 2023 |website=National Geographic |language=en}}</ref> When she still had severe symptoms after three weeks and her physician attributed her symptoms to [[ADHD]], she started to look for others experiencing the longer-term effects of COVID-19.<ref name=":2" /><br /> <br /> A ''[[New York Times]]'' article by [[Fiona Lowenstein]] detailed a similar experience.<ref name=":2" /> At this point, she joined the Body Politic COVID-19 support group founded by Lowenstein.<ref name=":0" /> In their "data nerds" [[Slack (software)|Slack]] channel, she connected with other people with a science or data background. Together they founded the Patient-Led Research Collaborative (PLRC). In April 2020, the PLRC collected data on people with prolonged [[COVID-19]] symptoms,<ref name=":0" /> and a month later they were the first to publish a report on long COVID.<ref name=":2" /><ref name=":0" /><br /> <br /> The work done by PLRC gained prominence after [[Ed Yong]] wrote a piece on it for ''[[The Atlantic]],'' interviewing Davis and other patient-researchers''.'' The CDC and NIH started contacting the group to share analysis. The early CDC documentation for long COVID was informed by PLRC's analysis, especially around what was happening to young and previously healthy people. PLRC mapped how long COVID symptoms changed over time.<ref name=":2" /><br /> <br /> Davis co-authored the [[World Health Organization]]'s case definition of post COVID-19 condition, published in 2021.<ref>{{Cite journal |last1=Soriano |first1=Joan B |last2=Murthy |first2=Srinivas |last3=Marshall |first3=John C |last4=Relan |first4=Pryanka |last5=Diaz |first5=Janet V |date=2022 |title=A clinical case definition of post-COVID-19 condition by a Delphi consensus |journal=The Lancet Infectious Diseases |volume=22 |issue=4 |pages=e102–e107 |doi=10.1016/s1473-3099(21)00703-9 |pmid=34951953 |issn=1473-3099|doi-access=free |pmc=8691845 }}</ref> She was still only able to work a couple hours per day at that point.<ref name=":3" /> She authored and co-authored various highly cited research papers.<ref name=":4">{{Cite magazine |last=Kaine |first=Tim |author-link=Tim Kaine |date=September 28, 2022 |title=2022 TIME100 Next: Hannah Davis |url=https://time.com/collection/time100-next-2022/6213809/hannah-davis/ |access-date=November 5, 2023 |magazine=Time |language=en}}</ref> In a study published in [[The Lancet]]'s subsidiary journal e''ClinicalMedicine'', she detailed how symptoms changed over time in the first 7 months after infection.<ref>{{Cite journal |last1=Davis |first1=Hannah E. |last2=Assaf |first2=Gina S. |last3=McCorkell |first3=Lisa |last4=Wei |first4=Hannah |last5=Low |first5=Ryan J. |last6=Re'em |first6=Yochai |last7=Redfield |first7=Signe |last8=Austin |first8=Jared P. |last9=Akrami |first9=Athena |date=2021 |title=Characterizing long COVID in an international cohort: 7 months of symptoms and their impact |url=|journal=eClinicalMedicine |volume=38 |pages=101019 |doi=10.1016/j.eclinm.2021.101019 |issn=2589-5370 |pmc=8280690 |pmid=34308300}}</ref> She authored a 2023 review of long COVID in ''[[Nature Reviews Microbiology]]'', co-authored by cardiologist [[Eric Topol]].<ref>{{Cite journal |last1=Davis |first1=Hannah E. |last2=McCorkell |first2=Lisa |last3=Vogel |first3=Julia Moore |last4=Topol |first4=Eric J. |date=2023 |title=Long COVID: major findings, mechanisms and recommendations |journal=Nature Reviews Microbiology |language=en |volume=21 |issue=3 |pages=133–146 |doi=10.1038/s41579-022-00846-2 |pmid=36639608 |pmc=9839201 |issn=1740-1534|doi-access=free }}</ref> In 2024, she co-authored another review of long Covid in Nature Medicine along with [[Eric Topol]], [[Akiko Iwasaki]], and [[Ziyad Al-Aly]].<ref>{{Cite journal |last=Al-Aly |first=Ziyad |last2=Davis |first2=Hannah |last3=McCorkell |first3=Lisa |last4=Soares |first4=Letícia |last5=Wulf-Hanson |first5=Sarah |last6=Iwasaki |first6=Akiko |last7=Topol |first7=Eric J. |date=August 2024 |title=Long COVID science, research and policy |url=https://www.nature.com/articles/s41591-024-03173-6 |journal=Nature Medicine |language=en |volume=30 |issue=8 |pages=2148–2164 |doi=10.1038/s41591-024-03173-6 |issn=1546-170X|doi-access=free }}</ref><br /> <br /> In July 2022, she testified for the COVID-19 select committee in the [[United States House of Representatives|US House of Representatives]].<ref name=":4" /><br /> <br /> == Publications ==<br /> <br /> * {{cite journal |vauthors=Davis HE, Assaf GS, McCorkell L, Wei H, Low RJ, Re'em Y, Redfield S, Austin JP, Akrami A |date=August 2021 |title=Characterizing long COVID in an international cohort: 7 months of symptoms and their impact |url= |journal=eClinicalMedicine |volume=38 |issue= |pages=101019 |doi=10.1016/j.eclinm.2021.101019 |pmc=8280690 |pmid=34308300}}<br /> * {{Cite web |title=A clinical case definition of post COVID-19 condition by a Delphi consensus, 6 October 2021 |url=https://www.who.int/publications-detail-redirect/WHO-2019-nCoV-Post_COVID-19_condition-Clinical_case_definition-2021.1 |url-status=live |archive-url=https://web.archive.org/web/20220423195255/https://www.who.int/publications-detail-redirect/WHO-2019-nCoV-Post_COVID-19_condition-Clinical_case_definition-2021.1 |archive-date=April 23, 2022 |website=World Health Organization |vauthors=Soriano JB, Allan M, Alsokhn C, Alwan NA, Askie L, Davis HE, Diaz JV, Dua T, De Groote W, Jakob R, Lado M, Marshall J, Murthy S, Preller S, Relan P, Schiess N, Seahwag A}}<br /> * {{cite journal |author-link= |vauthors=Davis HE, McCorkell L, Vogel JM, Topol EJ |date=March 2023 |title=Long COVID: major findings, mechanisms and recommendations |journal=Nature Reviews Microbiology |volume=21 |issue=3 |pages=133–146 |doi=10.1038/s41579-022-00846-2 |pmc=9839201 |pmid=36639608}}<br /> * Al-Aly Z, Davis H, McCorkell L, Soares L, Wulf-Hanson S, Iwasaki A, Topol EJ. [https://www.nature.com/articles/s41591-024-03173-6 Long COVID science, research and policy]. ''Nature Medicine.'' volume 30, pages 2148–2164 (2024). https://doi.org/10.1038/s41591-024-03173-6<br /> <br /> *2021, Patient-Led Research Collaborative: embedding patients in the Long COVID narrative - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8112577/ (Full text)]<br /> <br /> ==News articles==<br /> *2021, [https://www.npr.org/2021/03/21/979809515/months-after-contracting-virus-2-women-suffer-crippling-effects-of-long-covid?t=1652828435447 Months After Contracting Virus, They Suffer Crippling Effects Of 'Long COVID'] - NPR interview, also featuring [[Fiona Lowenstein]]<br /> <br /> ==Videos ==<br /> *2021, [https://www.nytimes.com/2021/03/17/opinion/long-covid.html Long Covid Is Not Rare. It’s a Health Crisis]<ref name="NYT2021">{{Cite news | url=https://www.nytimes.com/2020/04/13/opinion/coronavirus-recovery.html | date = 2020-04-13| publisher = New York Times | title = We Need to Talk About What Coronavirus Recoveries Look Like | last = Lowenstein | first = Fiona | authorlink = Fiona Lowenstein | last2 = Davis | first2 = Hannah | authorlink2 = Hannah Davis}}</ref> - New York Times: Opinion - Hannah Davis and [[Fiona Lowenstein]]<br /> <br /> ==Talks and interviews==<br /> <br /> ==Online presence==<br /> *Twitter: http://twitter.com/ahandvanish<br /> *Facebook<br /> *Website/Blog<br /> *Institution: http://patientledresearch.com<br /> *Pubmed<br /> * Researchgate<br /> *YouTube<br /> <br /> ==See also==<br /> *[[Long COVID]]<br /> *[[World Health Organization Long COVID diagnostic criteria]]<br /> *[[Patient-Led Research Collaborative]]<br /> *[[Body Politic]]<br /> <br /> ==Learn more==<br /> *<br /> <br /> ==References==<br /> {{Reflist}}<br /> <br /> [[Category:Researchers]] <br /> [[Category:Long COVID researchers]]</div>

Canele https://me-pedia.org/w/index.php?title=Hannah_Davis&diff=244015 Hannah Davis 2025-05-26T17:53:38Z

<p>Canele:/* Notable studies */ trim dups</p> <hr /> <div><br /> '''Hannah E. Davis''' (born 1988 or 1989<ref name=":2">{{Cite news |last=Mike |first=Mariani |date=February 3, 2022 |title=The great gaslighting: how Covid longhaulers are still fighting for recognition |language=en-GB |work=The Guardian |url=https://www.theguardian.com/society/2022/feb/03/long-covid-fight-recognition-gaslighting-pandemic |access-date=November 9, 2023 |issn=0261-3077}}</ref>) is an American artist, [[Data science|data scientist]] and [[long COVID]] researcher.<ref name="NYT2021" /><ref name="PLRC">{{Cite web | url=https://patientresearchcovid19.com/ | title = Patient Led Research Collaborative – for Long COVID|website=patientresearchcovid19.com|access-date=2022-05-18}}</ref><ref name=":0">{{Cite web |last=Ellis |first=Rachel Reiff |date=2023 |title=WebMD Health Heroes 2023 – Patient-Led Research - Hannah Davis |url=https://www.webmd.com/healthheroes/advocate-hannah-davis |access-date=November 5, 2023 |website=WebMD}}</ref><ref>{{Cite magazine |title=TransProse: A novel approach to composing |language=en-GB |magazine=Wired UK |url=https://www.wired.co.uk/article/readers-note |access-date=November 11, 2023 |issn=1357-0978}}</ref> She was one of the founders of the [[Patient-Led Research Collaborative]] (PLRC), a group of long COVID patients with experience in research or data analysis.<ref name=":0" /> Research early in the [[COVID-19 pandemic]] by the PLRC mapped how a COVID-19 infection could have long-term debilitating effects, even for young and previously healthy people. It was used for the [[Centers for Disease Control and Prevention|CDC]]'s documentation on long COVID.<ref name=":2" /><br /> <br /> == Education ==<br /> Davis studied international relations, and later spent time in [[Ghana]]. For her masters, she studied creative communication technology at [[New York University]].<ref name=":1">{{Cite book |last=Miller |first=A |title=The Artist in the Machine |publisher=MIT Press |year=2019 |isbn=9780262042857 |chapter=Hannah Davis Turns Words into Music}}</ref><br /> <br /> == Machine learning and art ==<br /> Davis's work as a generative artist focused on music, sentiment analysis and [[bias]] in datasets.<ref>{{Cite web |title=Hannah Davis |url=https://tisch.nyu.edu/itp/itp-people/faculty/fellowship-alumni/hannah-davis |access-date=November 11, 2023 |website=tisch.nyu.edu |language=en}}</ref><br /> <br /> A major theme of Davis's work was translating text into music, particularly generating music from the emotional data of the text. One of the projects Davis worked on turned publicly available books into music, generating music based on the emotion of the input text. Initially, her analysis was able to pick up the "rhythm" of books, for instance short sentences for [[Ernest Hemingway]], and more flowery rhythms for work from [[Virginia Woolf]]. She built this work using a resource by Saif Mohammad, who had developed a [[lexicon]] mapping a large set of words onto eight basic emotions. The resulting tool, Transprose, created short musical pieces that mirrored the emotional tone of various novels.<ref name=":1" /><br /> <br /> She used a similar [[algorithm]] to generate melodies based on news articles, which were used to collaborate with composer {{ill|Mathieu Lamboley|fr}} to create a [[symphony]] for a 50-person orchestra. This was performed in the [[Louvre]] in Paris, France.<ref>{{Cite news |last=Overly |first=Steven |date=December 5, 2021 |title=This symphony had both human and computer composers |language=en-US |newspaper=Washington Post |url=https://www.washingtonpost.com/news/innovations/wp/2016/09/23/this-symphony-had-both-human-and-computer-composers/ |access-date=November 11, 2023 |issn=0190-8286}}</ref><br /> <br /> She was commissioned by the Italian art collective D20 to produce a piece played on a factory-turned instrument, called "Fabbrica Alta".<ref>{{Cite magazine |last=Sterling |first=Bruce |date=March 18, 2018 |title=Hannah Davis using an Italian factory as an instrument |url=https://www.wired.com/beyond-the-beyond/2018/03/hannah-davis-using-italian-factory-instrument/ |access-date=November 9, 2023 |magazine=WIRED |language=en-US}}</ref> Her piece "Percival", commissioned by SynthBeats Laptop Orchestra, was a piece designed to be played by six performers and also focused on subjective interpretation of text translated into music.<br /> <br /> In 2019, Davis co-created an installation called ''The Laughing Room'' with author [[Jonny Sun]]. They trained an [[Artificial intelligence|AI]] on standup comedy transcripts from women, nonbinary, and BIPOC comedians to learn what was funny; the AI was then placed in a room with chairs and a sofa, and people could talk to it to try evoking a laughing response.<ref>{{Cite web |last=Fleischer |first=Evan |date=November 19, 2018 |title=Can AI laugh? We investigated. |url=https://bigthink.com/thinking/laughing-room-heres-what-happened/ |access-date=November 9, 2023 |website=Big Think |language=en-US}}</ref> This was installed at the 2019 [[TED (conference)|TED Conference]], with additional installations at the [[Cambridge Public Library]] and The New American Festival.<br /> <br /> Davis often presented on [[bias in machine learning]] datasets and about her own work; she regularly spoke at international art-tech festivals including [[Eyeo festival|Eyeo]], Strange Loop, and {{ill|Kikk Festival|fr|KIKK Festival}}.<ref>{{cite web | url=https://www.thestrangeloop.com/2018/generating-music-from-emotion-and-other-experiments.html | title=Generating Music from Emotion (And other experiments) - Strange Loop }}</ref><ref>{{cite web | url=https://2017.kikk.be/en/programme-fr/conferences-fr/hannah-davis | title=KIKK Festival - Hannah Davis at KIKK festival 2017 }}</ref> In 2019, she opened the renowned [[Transmediale]], an annual festival for art and digital culture in Berlin.<ref>{{cite web | url=https://archive.transmediale.de/content/kristoffer-gansing-at-structures-of-feeling-transmediale-2019-opening | title=Kristoffer Gansing at Structures of Feeling – transmediale 2019 Opening &#124; transmediale }}</ref> In September 2019, the [[Library of Congress]] invited her to speak as part of their Machine Learning + Libraries report on the state of the field, where she advocated that "a dataset is a worldview" and that "classification is violence" while urging caution in choosing input data used to train machine learning models.<ref>{{Cite web |date=March 5, 2020 |title=A Dataset is a Worldview |url=https://medium.com/towards-data-science/a-dataset-is-a-worldview-5328216dd44d |publisher=Towards Data Science}}</ref><ref>https://labs.loc.gov/static/labs/work/reports/Cordell-LOC-ML-report.pdf</ref><br /> <br /> == Long COVID research and advocacy ==<br /> Davis got [[COVID-19]] in the first wave, in March 2020.<ref name=":0" /> At this point, the public health narrative was that people either fully recovered from COVID or died.<ref name=":2" /> Davis developed neurological issues that did not pass, including [[Cognitive impairment|cognitive deficits]] (not being able to concentrate) and [[dysautonomia]] (dysfunction of the autonomic nervous system).<ref name=":3">{{Cite web |last=Emily |first=Mullin |date=August 18, 2021 |title=How does COVID-19 affect the brain? A troubling picture emerges. |url=https://www.nationalgeographic.com/science/article/how-does-covid-19-affect-the-brain-a-troubling-picture-emerges |archive-url=https://web.archive.org/web/20210818193830/https://www.nationalgeographic.com/science/article/how-does-covid-19-affect-the-brain-a-troubling-picture-emerges |url-status=dead |archive-date=August 18, 2021 |access-date=November 11, 2023 |website=National Geographic |language=en}}</ref> When she still had severe symptoms after three weeks and her physician attributed her symptoms to [[ADHD]], she started to look for others experiencing the longer-term effects of COVID-19.<ref name=":2" /><br /> <br /> A ''[[New York Times]]'' article by [[Fiona Lowenstein]] detailed a similar experience.<ref name=":2" /> At this point, she joined the Body Politic COVID-19 support group founded by Lowenstein.<ref name=":0" /> In their "data nerds" [[Slack (software)|Slack]] channel, she connected with other people with a science or data background. Together they founded the Patient-Led Research Collaborative (PLRC). In April 2020, the PLRC collected data on people with prolonged [[COVID-19]] symptoms,<ref name=":0" /> and a month later they were the first to publish a report on long COVID.<ref name=":2" /><ref name=":0" /><br /> <br /> The work done by PLRC gained prominence after [[Ed Yong]] wrote a piece on it for ''[[The Atlantic]],'' interviewing Davis and other patient-researchers''.'' The CDC and NIH started contacting the group to share analysis. The early CDC documentation for long COVID was informed by PLRC's analysis, especially around what was happening to young and previously healthy people. PLRC mapped how long COVID symptoms changed over time.<ref name=":2" /><br /> <br /> Davis co-authored the [[World Health Organization]]'s case definition of post COVID-19 condition, published in 2021.<ref>{{Cite journal |last1=Soriano |first1=Joan B |last2=Murthy |first2=Srinivas |last3=Marshall |first3=John C |last4=Relan |first4=Pryanka |last5=Diaz |first5=Janet V |date=2022 |title=A clinical case definition of post-COVID-19 condition by a Delphi consensus |journal=The Lancet Infectious Diseases |volume=22 |issue=4 |pages=e102–e107 |doi=10.1016/s1473-3099(21)00703-9 |pmid=34951953 |issn=1473-3099|doi-access=free |pmc=8691845 }}</ref> She was still only able to work a couple hours per day at that point.<ref name=":3" /> She authored and co-authored various highly cited research papers.<ref name=":4">{{Cite magazine |last=Kaine |first=Tim |author-link=Tim Kaine |date=September 28, 2022 |title=2022 TIME100 Next: Hannah Davis |url=https://time.com/collection/time100-next-2022/6213809/hannah-davis/ |access-date=November 5, 2023 |magazine=Time |language=en}}</ref> In a study published in [[The Lancet]]'s subsidiary journal e''ClinicalMedicine'', she detailed how symptoms changed over time in the first 7 months after infection.<ref>{{Cite journal |last1=Davis |first1=Hannah E. |last2=Assaf |first2=Gina S. |last3=McCorkell |first3=Lisa |last4=Wei |first4=Hannah |last5=Low |first5=Ryan J. |last6=Re'em |first6=Yochai |last7=Redfield |first7=Signe |last8=Austin |first8=Jared P. |last9=Akrami |first9=Athena |date=2021 |title=Characterizing long COVID in an international cohort: 7 months of symptoms and their impact |url=|journal=eClinicalMedicine |volume=38 |pages=101019 |doi=10.1016/j.eclinm.2021.101019 |issn=2589-5370 |pmc=8280690 |pmid=34308300}}</ref> She authored a 2023 review of long COVID in ''[[Nature Reviews Microbiology]]'', co-authored by cardiologist [[Eric Topol]].<ref>{{Cite journal |last1=Davis |first1=Hannah E. |last2=McCorkell |first2=Lisa |last3=Vogel |first3=Julia Moore |last4=Topol |first4=Eric J. |date=2023 |title=Long COVID: major findings, mechanisms and recommendations |journal=Nature Reviews Microbiology |language=en |volume=21 |issue=3 |pages=133–146 |doi=10.1038/s41579-022-00846-2 |pmid=36639608 |pmc=9839201 |issn=1740-1534|doi-access=free }}</ref> In 2024, she co-authored another review of long Covid in Nature Medicine along with [[Eric Topol]], [[Akiko Iwasaki]], and [[Ziyad Al-Aly]].<ref>{{Cite journal |last=Al-Aly |first=Ziyad |last2=Davis |first2=Hannah |last3=McCorkell |first3=Lisa |last4=Soares |first4=Letícia |last5=Wulf-Hanson |first5=Sarah |last6=Iwasaki |first6=Akiko |last7=Topol |first7=Eric J. |date=August 2024 |title=Long COVID science, research and policy |url=https://www.nature.com/articles/s41591-024-03173-6 |journal=Nature Medicine |language=en |volume=30 |issue=8 |pages=2148–2164 |doi=10.1038/s41591-024-03173-6 |issn=1546-170X|doi-access=free }}</ref><br /> <br /> In July 2022, she testified for the COVID-19 select committee in the [[United States House of Representatives|US House of Representatives]].<ref name=":4" /><br /> <br /> == Publications ==<br /> <br /> * {{cite journal |vauthors=Davis HE, Assaf GS, McCorkell L, Wei H, Low RJ, Re'em Y, Redfield S, Austin JP, Akrami A |date=August 2021 |title=Characterizing long COVID in an international cohort: 7 months of symptoms and their impact |url= |journal=eClinicalMedicine |volume=38 |issue= |pages=101019 |doi=10.1016/j.eclinm.2021.101019 |pmc=8280690 |pmid=34308300}}<br /> * {{Cite web |title=A clinical case definition of post COVID-19 condition by a Delphi consensus, 6 October 2021 |url=https://www.who.int/publications-detail-redirect/WHO-2019-nCoV-Post_COVID-19_condition-Clinical_case_definition-2021.1 |url-status=live |archive-url=https://web.archive.org/web/20220423195255/https://www.who.int/publications-detail-redirect/WHO-2019-nCoV-Post_COVID-19_condition-Clinical_case_definition-2021.1 |archive-date=April 23, 2022 |website=World Health Organization |vauthors=Soriano JB, Allan M, Alsokhn C, Alwan NA, Askie L, Davis HE, Diaz JV, Dua T, De Groote W, Jakob R, Lado M, Marshall J, Murthy S, Preller S, Relan P, Schiess N, Seahwag A}}<br /> * {{cite journal |author-link= |vauthors=Davis HE, McCorkell L, Vogel JM, Topol EJ |date=March 2023 |title=Long COVID: major findings, mechanisms and recommendations |journal=Nature Reviews Microbiology |volume=21 |issue=3 |pages=133–146 |doi=10.1038/s41579-022-00846-2 |pmc=9839201 |pmid=36639608}}<br /> * Al-Aly Z, Davis H, McCorkell L, Soares L, Wulf-Hanson S, Iwasaki A, Topol EJ. [https://www.nature.com/articles/s41591-024-03173-6 Long COVID science, research and policy]. ''Nature Medicine.'' volume 30, pages 2148–2164 (2024). https://doi.org/10.1038/s41591-024-03173-6<br /> <br /> *2021, Patient-Led Research Collaborative: embedding patients in the Long COVID narrative - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8112577/ (Full text)]<br /> <br /> ==News articles==<br /> *2021, [https://www.npr.org/2021/03/21/979809515/months-after-contracting-virus-2-women-suffer-crippling-effects-of-long-covid?t=1652828435447 Months After Contracting Virus, They Suffer Crippling Effects Of 'Long COVID'] - NPR interview, also featuring [[Fiona Lowenstein]]<br /> <br /> ==Videos ==<br /> *2021, [https://www.nytimes.com/2021/03/17/opinion/long-covid.html Long Covid Is Not Rare. It’s a Health Crisis]<ref name="NYT2021">{{Cite news | url=https://www.nytimes.com/2020/04/13/opinion/coronavirus-recovery.html | date = 2020-04-13| publisher = New York Times | title = We Need to Talk About What Coronavirus Recoveries Look Like | last = Lowenstein | first = Fiona | authorlink = Fiona Lowenstein | last2 = Davis | first2 = Hannah | authorlink2 = Hannah Davis}}</ref> - New York Times: Opinion - Hannah Davis and [[Fiona Lowenstein]]<br /> <br /> ==Talks and interviews==<br /> <br /> ==Online presence==<br /> *Twitter: http://twitter.com/ahandvanish<br /> *Facebook<br /> *Website/Blog<br /> *Institution: http://patientledresearch.com<br /> *Pubmed<br /> * Researchgate<br /> *YouTube<br /> <br /> ==See also==<br /> *[[Long COVID]]<br /> *[[World Health Organization Long COVID diagnostic criteria]]<br /> *[[Patient-Led Research Collaborative]]<br /> *[[Body Politic]]<br /> <br /> ==Learn more==<br /> *<br /> <br /> ==References==<br /> {{Reflist}}<br /> <br /> [[Category:Researchers]] <br /> [[Category:Long COVID researchers]]</div>

Canele https://me-pedia.org/w/index.php?title=Hannah_Davis&diff=244014 Hannah Davis 2025-05-26T17:50:46Z

<p>Canele:Copied CC licensed content from https://en.wikipedia.org/w/index.php?title=Hannah_E._Davis&oldid=1255809843</p> <hr /> <div><br /> '''Hannah E. Davis''' (born 1988 or 1989<ref name=":2">{{Cite news |last=Mike |first=Mariani |date=February 3, 2022 |title=The great gaslighting: how Covid longhaulers are still fighting for recognition |language=en-GB |work=The Guardian |url=https://www.theguardian.com/society/2022/feb/03/long-covid-fight-recognition-gaslighting-pandemic |access-date=November 9, 2023 |issn=0261-3077}}</ref>) is an American artist, [[Data science|data scientist]] and [[long COVID]] researcher.<ref name="NYT2021" /><ref name="PLRC">{{Cite web | url=https://patientresearchcovid19.com/ | title = Patient Led Research Collaborative – for Long COVID|website=patientresearchcovid19.com|access-date=2022-05-18}}</ref><ref name=":0">{{Cite web |last=Ellis |first=Rachel Reiff |date=2023 |title=WebMD Health Heroes 2023 – Patient-Led Research - Hannah Davis |url=https://www.webmd.com/healthheroes/advocate-hannah-davis |access-date=November 5, 2023 |website=WebMD}}</ref><ref>{{Cite magazine |title=TransProse: A novel approach to composing |language=en-GB |magazine=Wired UK |url=https://www.wired.co.uk/article/readers-note |access-date=November 11, 2023 |issn=1357-0978}}</ref> She was one of the founders of the [[Patient-Led Research Collaborative]] (PLRC), a group of long COVID patients with experience in research or data analysis.<ref name=":0" /> Research early in the [[COVID-19 pandemic]] by the PLRC mapped how a COVID-19 infection could have long-term debilitating effects, even for young and previously healthy people. It was used for the [[Centers for Disease Control and Prevention|CDC]]'s documentation on long COVID.<ref name=":2" /><br /> <br /> == Education ==<br /> Davis studied international relations, and later spent time in [[Ghana]]. For her masters, she studied creative communication technology at [[New York University]].<ref name=":1">{{Cite book |last=Miller |first=A |title=The Artist in the Machine |publisher=MIT Press |year=2019 |isbn=9780262042857 |chapter=Hannah Davis Turns Words into Music}}</ref><br /> <br /> == Machine learning and art ==<br /> Davis's work as a generative artist focused on music, sentiment analysis and [[bias]] in datasets.<ref>{{Cite web |title=Hannah Davis |url=https://tisch.nyu.edu/itp/itp-people/faculty/fellowship-alumni/hannah-davis |access-date=November 11, 2023 |website=tisch.nyu.edu |language=en}}</ref><br /> <br /> A major theme of Davis's work was translating text into music, particularly generating music from the emotional data of the text. One of the projects Davis worked on turned publicly available books into music, generating music based on the emotion of the input text. Initially, her analysis was able to pick up the "rhythm" of books, for instance short sentences for [[Ernest Hemingway]], and more flowery rhythms for work from [[Virginia Woolf]]. She built this work using a resource by Saif Mohammad, who had developed a [[lexicon]] mapping a large set of words onto eight basic emotions. The resulting tool, Transprose, created short musical pieces that mirrored the emotional tone of various novels.<ref name=":1" /><br /> <br /> She used a similar [[algorithm]] to generate melodies based on news articles, which were used to collaborate with composer {{ill|Mathieu Lamboley|fr}} to create a [[symphony]] for a 50-person orchestra. This was performed in the [[Louvre]] in Paris, France.<ref>{{Cite news |last=Overly |first=Steven |date=December 5, 2021 |title=This symphony had both human and computer composers |language=en-US |newspaper=Washington Post |url=https://www.washingtonpost.com/news/innovations/wp/2016/09/23/this-symphony-had-both-human-and-computer-composers/ |access-date=November 11, 2023 |issn=0190-8286}}</ref><br /> <br /> She was commissioned by the Italian art collective D20 to produce a piece played on a factory-turned instrument, called "Fabbrica Alta".<ref>{{Cite magazine |last=Sterling |first=Bruce |date=March 18, 2018 |title=Hannah Davis using an Italian factory as an instrument |url=https://www.wired.com/beyond-the-beyond/2018/03/hannah-davis-using-italian-factory-instrument/ |access-date=November 9, 2023 |magazine=WIRED |language=en-US}}</ref> Her piece "Percival", commissioned by SynthBeats Laptop Orchestra, was a piece designed to be played by six performers and also focused on subjective interpretation of text translated into music.<br /> <br /> In 2019, Davis co-created an installation called ''The Laughing Room'' with author [[Jonny Sun]]. They trained an [[Artificial intelligence|AI]] on standup comedy transcripts from women, nonbinary, and BIPOC comedians to learn what was funny; the AI was then placed in a room with chairs and a sofa, and people could talk to it to try evoking a laughing response.<ref>{{Cite web |last=Fleischer |first=Evan |date=November 19, 2018 |title=Can AI laugh? We investigated. |url=https://bigthink.com/thinking/laughing-room-heres-what-happened/ |access-date=November 9, 2023 |website=Big Think |language=en-US}}</ref> This was installed at the 2019 [[TED (conference)|TED Conference]], with additional installations at the [[Cambridge Public Library]] and The New American Festival.<br /> <br /> Davis often presented on [[bias in machine learning]] datasets and about her own work; she regularly spoke at international art-tech festivals including [[Eyeo festival|Eyeo]], Strange Loop, and {{ill|Kikk Festival|fr|KIKK Festival}}.<ref>{{cite web | url=https://www.thestrangeloop.com/2018/generating-music-from-emotion-and-other-experiments.html | title=Generating Music from Emotion (And other experiments) - Strange Loop }}</ref><ref>{{cite web | url=https://2017.kikk.be/en/programme-fr/conferences-fr/hannah-davis | title=KIKK Festival - Hannah Davis at KIKK festival 2017 }}</ref> In 2019, she opened the renowned [[Transmediale]], an annual festival for art and digital culture in Berlin.<ref>{{cite web | url=https://archive.transmediale.de/content/kristoffer-gansing-at-structures-of-feeling-transmediale-2019-opening | title=Kristoffer Gansing at Structures of Feeling – transmediale 2019 Opening &#124; transmediale }}</ref> In September 2019, the [[Library of Congress]] invited her to speak as part of their Machine Learning + Libraries report on the state of the field, where she advocated that "a dataset is a worldview" and that "classification is violence" while urging caution in choosing input data used to train machine learning models.<ref>{{Cite web |date=March 5, 2020 |title=A Dataset is a Worldview |url=https://medium.com/towards-data-science/a-dataset-is-a-worldview-5328216dd44d |publisher=Towards Data Science}}</ref><ref>https://labs.loc.gov/static/labs/work/reports/Cordell-LOC-ML-report.pdf</ref><br /> <br /> == Long COVID research and advocacy ==<br /> Davis got [[COVID-19]] in the first wave, in March 2020.<ref name=":0" /> At this point, the public health narrative was that people either fully recovered from COVID or died.<ref name=":2" /> Davis developed neurological issues that did not pass, including [[Cognitive impairment|cognitive deficits]] (not being able to concentrate) and [[dysautonomia]] (dysfunction of the autonomic nervous system).<ref name=":3">{{Cite web |last=Emily |first=Mullin |date=August 18, 2021 |title=How does COVID-19 affect the brain? A troubling picture emerges. |url=https://www.nationalgeographic.com/science/article/how-does-covid-19-affect-the-brain-a-troubling-picture-emerges |archive-url=https://web.archive.org/web/20210818193830/https://www.nationalgeographic.com/science/article/how-does-covid-19-affect-the-brain-a-troubling-picture-emerges |url-status=dead |archive-date=August 18, 2021 |access-date=November 11, 2023 |website=National Geographic |language=en}}</ref> When she still had severe symptoms after three weeks and her physician attributed her symptoms to [[ADHD]], she started to look for others experiencing the longer-term effects of COVID-19.<ref name=":2" /><br /> <br /> A ''[[New York Times]]'' article by [[Fiona Lowenstein]] detailed a similar experience.<ref name=":2" /> At this point, she joined the Body Politic COVID-19 support group founded by Lowenstein.<ref name=":0" /> In their "data nerds" [[Slack (software)|Slack]] channel, she connected with other people with a science or data background. Together they founded the Patient-Led Research Collaborative (PLRC). In April 2020, the PLRC collected data on people with prolonged [[COVID-19]] symptoms,<ref name=":0" /> and a month later they were the first to publish a report on long COVID.<ref name=":2" /><ref name=":0" /><br /> <br /> The work done by PLRC gained prominence after [[Ed Yong]] wrote a piece on it for ''[[The Atlantic]],'' interviewing Davis and other patient-researchers''.'' The CDC and NIH started contacting the group to share analysis. The early CDC documentation for long COVID was informed by PLRC's analysis, especially around what was happening to young and previously healthy people. PLRC mapped how long COVID symptoms changed over time.<ref name=":2" /><br /> <br /> Davis co-authored the [[World Health Organization]]'s case definition of post COVID-19 condition, published in 2021.<ref>{{Cite journal |last1=Soriano |first1=Joan B |last2=Murthy |first2=Srinivas |last3=Marshall |first3=John C |last4=Relan |first4=Pryanka |last5=Diaz |first5=Janet V |date=2022 |title=A clinical case definition of post-COVID-19 condition by a Delphi consensus |journal=The Lancet Infectious Diseases |volume=22 |issue=4 |pages=e102–e107 |doi=10.1016/s1473-3099(21)00703-9 |pmid=34951953 |issn=1473-3099|doi-access=free |pmc=8691845 }}</ref> She was still only able to work a couple hours per day at that point.<ref name=":3" /> She authored and co-authored various highly cited research papers.<ref name=":4">{{Cite magazine |last=Kaine |first=Tim |author-link=Tim Kaine |date=September 28, 2022 |title=2022 TIME100 Next: Hannah Davis |url=https://time.com/collection/time100-next-2022/6213809/hannah-davis/ |access-date=November 5, 2023 |magazine=Time |language=en}}</ref> In a study published in [[The Lancet]]'s subsidiary journal e''ClinicalMedicine'', she detailed how symptoms changed over time in the first 7 months after infection.<ref>{{Cite journal |last1=Davis |first1=Hannah E. |last2=Assaf |first2=Gina S. |last3=McCorkell |first3=Lisa |last4=Wei |first4=Hannah |last5=Low |first5=Ryan J. |last6=Re'em |first6=Yochai |last7=Redfield |first7=Signe |last8=Austin |first8=Jared P. |last9=Akrami |first9=Athena |date=2021 |title=Characterizing long COVID in an international cohort: 7 months of symptoms and their impact |url=|journal=eClinicalMedicine |volume=38 |pages=101019 |doi=10.1016/j.eclinm.2021.101019 |issn=2589-5370 |pmc=8280690 |pmid=34308300}}</ref> She authored a 2023 review of long COVID in ''[[Nature Reviews Microbiology]]'', co-authored by cardiologist [[Eric Topol]].<ref>{{Cite journal |last1=Davis |first1=Hannah E. |last2=McCorkell |first2=Lisa |last3=Vogel |first3=Julia Moore |last4=Topol |first4=Eric J. |date=2023 |title=Long COVID: major findings, mechanisms and recommendations |journal=Nature Reviews Microbiology |language=en |volume=21 |issue=3 |pages=133–146 |doi=10.1038/s41579-022-00846-2 |pmid=36639608 |pmc=9839201 |issn=1740-1534|doi-access=free }}</ref> In 2024, she co-authored another review of long Covid in Nature Medicine along with [[Eric Topol]], [[Akiko Iwasaki]], and [[Ziyad Al-Aly]].<ref>{{Cite journal |last=Al-Aly |first=Ziyad |last2=Davis |first2=Hannah |last3=McCorkell |first3=Lisa |last4=Soares |first4=Letícia |last5=Wulf-Hanson |first5=Sarah |last6=Iwasaki |first6=Akiko |last7=Topol |first7=Eric J. |date=August 2024 |title=Long COVID science, research and policy |url=https://www.nature.com/articles/s41591-024-03173-6 |journal=Nature Medicine |language=en |volume=30 |issue=8 |pages=2148–2164 |doi=10.1038/s41591-024-03173-6 |issn=1546-170X|doi-access=free }}</ref><br /> <br /> In July 2022, she testified for the COVID-19 select committee in the [[United States House of Representatives|US House of Representatives]].<ref name=":4" /><br /> <br /> == Publications ==<br /> <br /> * {{cite journal |vauthors=Davis HE, Assaf GS, McCorkell L, Wei H, Low RJ, Re'em Y, Redfield S, Austin JP, Akrami A |date=August 2021 |title=Characterizing long COVID in an international cohort: 7 months of symptoms and their impact |url= |journal=eClinicalMedicine |volume=38 |issue= |pages=101019 |doi=10.1016/j.eclinm.2021.101019 |pmc=8280690 |pmid=34308300}}<br /> * {{Cite web |title=A clinical case definition of post COVID-19 condition by a Delphi consensus, 6 October 2021 |url=https://www.who.int/publications-detail-redirect/WHO-2019-nCoV-Post_COVID-19_condition-Clinical_case_definition-2021.1 |url-status=live |archive-url=https://web.archive.org/web/20220423195255/https://www.who.int/publications-detail-redirect/WHO-2019-nCoV-Post_COVID-19_condition-Clinical_case_definition-2021.1 |archive-date=April 23, 2022 |website=World Health Organization |vauthors=Soriano JB, Allan M, Alsokhn C, Alwan NA, Askie L, Davis HE, Diaz JV, Dua T, De Groote W, Jakob R, Lado M, Marshall J, Murthy S, Preller S, Relan P, Schiess N, Seahwag A}}<br /> * {{cite journal |author-link= |vauthors=Davis HE, McCorkell L, Vogel JM, Topol EJ |date=March 2023 |title=Long COVID: major findings, mechanisms and recommendations |journal=Nature Reviews Microbiology |volume=21 |issue=3 |pages=133–146 |doi=10.1038/s41579-022-00846-2 |pmc=9839201 |pmid=36639608}}<br /> * Al-Aly Z, Davis H, McCorkell L, Soares L, Wulf-Hanson S, Iwasaki A, Topol EJ. [https://www.nature.com/articles/s41591-024-03173-6 Long COVID science, research and policy]. ''Nature Medicine.'' volume 30, pages 2148–2164 (2024). https://doi.org/10.1038/s41591-024-03173-6<br /> <br /> <br /> ==Notable studies==<br /> *2023, Long COVID: major findings, mechanisms, and recommendations - [https://www.nature.com/articles/s41579-022-00846-2 (Full Text)]<br /> *2021, Patient-Led Research Collaborative: embedding patients in the Long COVID narrative - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8112577/ (Full text)]<br /> *2021, A clinical case definition of post COVID-19 condition by a Delphi consensus<ref name="WHO-longcovid-criteria">{{citation | title = A clinical case definition of post COVID-19 condition by a Delphi consensus<br /> | date =Oct 6, 2021 | publisher = [[World Health Organization]] | others = World Health Organization (WHO) clinical case definition working group on post COVID-19 condition | first1 = Joan B. | last1 = Soriano | first2 = Maya | last2 = Allan | first3 = Carine | last3 = Alsokhn | first4 = Nisreen A. | last4 = Alwan | authorlink4 = Nisreen Alwan | first5 = Lisa | last5 = Askie | first6 = Hannah E. | last6 = Davis | authorlink6 = Hannah Davis | first7 = Janet V. | last7 = Diaz | first8 = Tarun | last8 = Dua | first9 = Wouter | last9 = de Groote | first10 = Robert | last10 = Jakob | first11 = Marta | last11 = Lado | first12 = John | last12 = Marshall | first13 = Srin | last13 = Murthy | first14 = Jacobus | last14 = Preller | first15 = Pryanka | last15 = Relan | first16 = Nicoline | last16 = Schiess | first17 = Archana | last17 = Seahwag | ref = WHO reference number: WHO/2019-nCoV/Post_COVID-19_condition/Clinical_case_definition/2021.1 | url = https://www.who.int/publications-detail-redirect/WHO-2019-nCoV-Post_COVID-19_condition-Clinical_case_definition-2021.1}}</ref> - [https://www.who.int/publications-detail-redirect/WHO-2019-nCoV-Post_COVID-19_condition-Clinical_case_definition-2021.1 (Full text)]<br /> *2020 (pre-print) / Jul 15, 2021, Characterizing long COVID in an international cohort: 7 months of symptoms and their impact<ref name="Davis2021a">{{Cite journal | last = Davis | first = Hannah E. | authorlink = Hannah Davis | last2 = Assaf | first2 = Gina S. | authorlink2 = Gina Assaf | last3 = McCorkell | first3 = Lisa | last4 = Wei | first4 = Hannah | last5 = Low | first5 = Ryan J. | last6 = Re'em | first6 = Yochai | last7 = Redfield | first7 = Signe | last8 = Austin | first8 = Jared P. | last9 = Akrami | first9 = Athena | date = 2021-07-15 | title = Characterizing long COVID in an international cohort: 7 months of symptoms and their impact| url = https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(21)00299-6/abstract|journal=EClinicalMedicine|language=English|volume=38|issue= | pages = 101019|doi=10.1016/j.eclinm.2021.101019|pmc=PMC8280690|pmid=34308300|issn=2589-5370}}</ref> - [https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(21)00299-6/abstract (Abstract)]<br /> <br /> ==News articles==<br /> *2021, [https://www.npr.org/2021/03/21/979809515/months-after-contracting-virus-2-women-suffer-crippling-effects-of-long-covid?t=1652828435447 Months After Contracting Virus, They Suffer Crippling Effects Of 'Long COVID'] - NPR interview, also featuring [[Fiona Lowenstein]]<br /> <br /> ==Videos ==<br /> *2021, [https://www.nytimes.com/2021/03/17/opinion/long-covid.html Long Covid Is Not Rare. It’s a Health Crisis]<ref name="NYT2021">{{Cite news | url=https://www.nytimes.com/2020/04/13/opinion/coronavirus-recovery.html | date = 2020-04-13| publisher = New York Times | title = We Need to Talk About What Coronavirus Recoveries Look Like | last = Lowenstein | first = Fiona | authorlink = Fiona Lowenstein | last2 = Davis | first2 = Hannah | authorlink2 = Hannah Davis}}</ref> - New York Times: Opinion - Hannah Davis and [[Fiona Lowenstein]]<br /> <br /> ==Talks and interviews==<br /> <br /> ==Online presence==<br /> *Twitter: http://twitter.com/ahandvanish<br /> *Facebook<br /> *Website/Blog<br /> *Institution: http://patientledresearch.com<br /> *Pubmed<br /> * Researchgate<br /> *YouTube<br /> <br /> ==See also==<br /> *[[Long COVID]]<br /> *[[World Health Organization Long COVID diagnostic criteria]]<br /> *[[Patient-Led Research Collaborative]]<br /> *[[Body Politic]]<br /> <br /> ==Learn more==<br /> *<br /> <br /> ==References==<br /> {{Reflist}}<br /> <br /> [[Category:Researchers]] <br /> [[Category:Long COVID researchers]]</div>

Canele https://me-pedia.org/w/index.php?title=Rob_W%C3%BCst&diff=244008 Rob Wüst 2025-05-22T16:13:20Z

<p>Canele:Paper</p> <hr /> <div>'''Rob Wüst''' is an assistant professor and head of Physiology at the Department of Human Movement Sciences at Vrije Universiteit Amsterdam.<ref name=":0">“dr. Rob Wust.” Vrije Universiteit Amsterdam. https://research.vu.nl/en/persons/rob-wust Retrieved May 22, 2025.</ref> His research focuses on cardiac and skeletal muscle metabolism and mitochondrial function.<ref name=":0" /> <br /> <br /> == Education ==<br /> In 2009, Wüst earned a double-doctorate on muscle physiology from Manchester Metropolitan University and Vrije University Amsterdam, studying exercise intolerance and fatigue in smokers.<ref name=":0" /><br /> <br /> ==Studies ==<br /> <br /> * 2023, [https://www.scienceopen.com/hosted-document?doi=10.14293/PR2199.000467.v1 Physical exertion worsens symptoms in patients with post-COVID condition: Post-exertional malaise in patients with post-COVID condition]<br /> <br /> ==Social media ==<br /> <br /> * [https://x.com/robwust Twitter / X]<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Rob_W%C3%BCst&diff=244007 Rob Wüst 2025-05-22T16:08:29Z

<p>Canele:/* Social media */ formatting</p> <hr /> <div>'''Rob Wüst''' is an assistant professor and head of Physiology at the Department of Human Movement Sciences at Vrije Universiteit Amsterdam.<ref name=":0">“dr. Rob Wust.” Vrije Universiteit Amsterdam. https://research.vu.nl/en/persons/rob-wust Retrieved May 22, 2025.</ref> His research focuses on cardiac and skeletal muscle metabolism and mitochondrial function.<ref name=":0" /><br /> <br /> == Education ==<br /> In 2009, Wüst earned a double-doctorate on muscle physiology from Manchester Metropolitan University and Vrije University Amsterdam, studying exercise intolerance and fatigue in smokers.<ref name=":0" /><br /> <br /> ==Social media ==<br /> <br /> * [https://x.com/robwust Twitter / X]<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Rob_W%C3%BCst&diff=244006 Rob Wüst 2025-05-22T16:08:04Z

<p>Canele:Social</p> <hr /> <div>'''Rob Wüst''' is an assistant professor and head of Physiology at the Department of Human Movement Sciences at Vrije Universiteit Amsterdam.<ref name=":0">“dr. Rob Wust.” Vrije Universiteit Amsterdam. https://research.vu.nl/en/persons/rob-wust Retrieved May 22, 2025.</ref> His research focuses on cardiac and skeletal muscle metabolism and mitochondrial function.<ref name=":0" /><br /> <br /> == Education ==<br /> In 2009, Wüst earned a double-doctorate on muscle physiology from Manchester Metropolitan University and Vrije University Amsterdam, studying exercise intolerance and fatigue in smokers.<ref name=":0" /><br /> <br /> ==Social media ==<br /> <br /> * [[https://x.com/robwust?s=21&t=wU58GVFTLM5E1QJ5h1DRRQ https://x.com/robwust] Twitter / X]<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Rob_W%C3%BCst&diff=244005 Rob Wüst 2025-05-22T16:05:38Z

<p>Canele:Ce</p> <hr /> <div>'''Rob Wüst''' is an assistant professor and head of Physiology at the Department of Human Movement Sciences at Vrije Universiteit Amsterdam.<ref name=":0">“dr. Rob Wust.” Vrije Universiteit Amsterdam. https://research.vu.nl/en/persons/rob-wust Retrieved May 22, 2025.</ref> His research focuses on cardiac and skeletal muscle metabolism and mitochondrial function.<ref name=":0" /><br /> <br /> == Education ==<br /> In 2009, Wüst earned a double-doctorate on muscle physiology from Manchester Metropolitan University and Vrije University Amsterdam, studying exercise intolerance and fatigue in smokers.<ref name=":0" /><br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Rob_W%C3%BCst&diff=244004 Rob Wüst 2025-05-22T16:05:01Z

<p>Canele:Ref details</p> <hr /> <div>'''Rob Wüst''' is an assistant professor and head of Physiology at the Department of Human Movement Sciences at the Vrije Universiteit Amsterdam.<ref name=":0">“dr. Rob Wust.” Vrije Universiteit Amsterdam. https://research.vu.nl/en/persons/rob-wust Retrieved May 22, 2025.</ref> His research focuses on cardiac and skeletal muscle metabolism and mitochondrial function.<ref name=":0" /><br /> <br /> == Education ==<br /> In 2009, Wüst earned a double-doctorate on muscle physiology from the Manchester Metropolitan University and the Vrije University Amsterdam, studying exercise intolerance and fatigue in smokers.<ref name=":0" /><br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Rob_W%C3%BCst&diff=244003 Rob Wüst 2025-05-22T16:02:27Z

<p>Canele:Refs</p> <hr /> <div>'''Rob Wüst''' is an assistant professor and head of Physiology at the Department of Human Movement Sciences at the Vrije Universiteit Amsterdam.<ref name=":0">https://research.vu.nl/en/persons/rob-wust</ref> His research focuses on cardiac and skeletal muscle metabolism and mitochondrial function.<ref name=":0" /><br /> <br /> == Education ==<br /> In 2009, Wüst earned a double-doctorate on muscle physiology from the Manchester Metropolitan University and the Vrije University Amsterdam, studying exercise intolerance and fatigue in smokers.<ref name=":0" /><br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Rob_W%C3%BCst&diff=244002 Rob Wüst 2025-05-22T15:48:05Z

<p>Canele:Add</p> <hr /> <div>'''Rob Wüst''' is an assistant professor and head of Physiology at the Department of Human Movement Sciences at the Vrije Universiteit Amsterdam.<ref>https://research.vu.nl/en/persons/rob-wust</ref> His research focuses on cardiac and skeletal muscle metabolism and mitochondrial function.<br /> <br /> == Education ==<br /> In 2009, Wüst earned a double-doctorate on muscle physiology from the Manchester Metropolitan University and the Vrije University Amsterdam, studying exercise intolerance and fatigue in smokers.<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Rob_W%C3%BCst&diff=244001 Rob Wüst 2025-05-22T15:46:10Z

<p>Canele:Add</p> <hr /> <div>'''Rob Wüst''' is an assistant professor and head of Physiology at the Department of Human Movement Sciences at the Vrije Universiteit Amsterdam.<ref>https://research.vu.nl/en/persons/rob-wust</ref> <br /> <br /> == Education ==<br /> In 2009, Wüst earned a double-doctorate on muscle physiology from the Manchester Metropolitan University and the Vrije University Amsterdam, studying exercise intolerance and fatigue in smokers.<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Rob_W%C3%BCst&diff=244000 Rob Wüst 2025-05-22T15:42:36Z

<p>Canele:Edu</p> <hr /> <div>'''Rob Wüst''' is an assistant professor.<ref>https://research.vu.nl/en/persons/rob-wust</ref><br /> <br /> == Education ==<br /> In 2009, Wüst earned a double-doctorate on muscle physiology from the Manchester Metropolitan University and the Vrije University Amsterdam, studying exercise intolerance and fatigue in smokers.<br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Rob_W%C3%BCst&diff=243999 Rob Wüst 2025-05-22T15:39:56Z

<p>Canele:Start page for researcher</p> <hr /> <div>'''Rob Wüst''' is an assistant professor.<ref>https://research.vu.nl/en/persons/rob-wust</ref><br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Kyle_Fargen&diff=243066 Kyle Fargen 2024-07-18T09:41:09Z

<p>Canele:Leading NIR</p> <hr /> <div>'''Kyle Fargen''' is an associate professor of neurosurgery at the Wake Forest University School of Medicine.<ref>{{Cite web|url=https://school.wakehealth.edu/faculty/f/kyle-m-fargen|title=Kyle M. Fargen, MD, MPH, FAANS|website=Wake Forest University School of Medicine|language=en|access-date=2024-07-18}}</ref><br /> <br /> == References ==<br /> {{Reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Ferdinand_Hui&diff=243065 Ferdinand Hui 2024-07-18T09:38:25Z

<p>Canele:Page for leading NIR</p> <hr /> <div>'''Ferdinand K. Hui''' is a neurointerventional radiologist at Queen’s University, Hawaii.<ref>{{Cite web|url=https://www.queens.org/providers/2225/ferdinand-k-hui/|title=Ferdinand K Hui {{!}} The Queen's Health System|website=www.queens.org|access-date=2024-07-18}}</ref><br /> <br /> ==References==<br /> {{reflist}}</div>

Canele https://me-pedia.org/w/index.php?title=Nicholas_Higgins&diff=243064 Nicholas Higgins 2024-07-18T09:31:00Z

<p>Canele:/* Career */ fix link</p> <hr /> <div>'''J. Nicholas P. Higgins''' is a consultant neuroradiologist and interventional radiologist at Addenbrooke’s Hospital, Cambridge, United Kingdom.<br /> <br /> ==Education==<br /> Higgins attended Oxford University and Guy’s Hospital Medical School.<br /> <br /> ==Career==<br /> <br /> In 1997, Higgins became a consultant neuroradiologist and interventional neuroradiologist at Addenbrooke’s Hospital Cambridge.<br /> <br /> He is a fellow of the Royal College of Physicians of London and the Royal College of Radiologists.<br /> <br /> In 2002 he published the first case of [[idiopathic intracranial hypertension]] (IIH) treated by stenting the transverse venous sinuses. His recent research investigates possible connections between IIH, [[spontaneous intracranial hypotension]], [[Chiari malformation]], [[syringomyelia]], chronic fatigue syndrome and [[fibromyalgia]].<br /> <br /> ==Papers==<br /> * 2021, [https://doi.org/10.1080/21641846.2021.1956223 “A paradigm for chronic fatigue syndrome: caught between idiopathic intracranial hypertension and spontaneous intracranial hypotension; caused by cranial venous outflow obstruction”]<br /> * 2023, [https://doi.org/10.3389/fneur.2023.1127702 “Life changing response to successive surgical interventions on cranial venous outflow: A case report on chronic fatigue syndrome”]</div>

Canele