https://me-pedia.org/w/api.php?action=feedcontributions&feedformat=atom&user=Ben.hsuborgerMEpedia - User contributions [en]2026-07-30T21:19:32ZUser contributionsMediaWiki 1.43.9https://me-pedia.org/w/index.php?title=Macrobiotic_diet&diff=242846Macrobiotic diet2024-05-23T20:01:51Z<p>Ben.hsuborger:/* See also */ removed reference to person by their request</p>
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<div>{{stub}}<br />
The '''macrobiotic diet''' is a dietary intervention that may have potential health benefits.<ref name="Inglis2010" /><ref name="Lehman2012">{{Cite journal|last = Lerman | first = Robert H. | authorlink = | date = Dec 2010 | title = The macrobiotic diet in chronic disease|url=https://pubmed.ncbi.nlm.nih.gov/21139126/|journal=Nutrition in Clinical Practice: Official Publication of the American Society for Parenteral and Enteral Nutrition|volume=25|issue=6 | pages = 621–626|doi=10.1177/0884533610385704|issn=1941-2452|pmc=|pmid=21139126|access-date=|quote=|via=}}</ref><br />
<br />
The macrobiotic diet food pyramid was described by Inglis at al. as restricting "fruits, seeds, nuts and fish to once a week or less, while other animal products such as red meat or dairy products are almost completely omitted (117, 118). Processed or refined carbohydrates and sugary foods are also heavily restricted"<ref name="Inglis2010" /><br />
<br />
==Evidence ==<br />
The macrobiotic diet may have potential for cancer-related fatigue, although more research is needed.<ref name="Inglis2010">{{Cite journal|last = Inglis | first = Julia E. | last2 = Lin | first2 = Po-Ju | last3 = Kerns | first3 = Sarah L. | last4 = Kleckner | first4 = Ian R. | last5 = Kleckner | first5 = Amber S. | last6 = Castillo | first6 = Daniel A. | last7 = Mustian | first7 = Karen M. | last8 = Peppone | first8 = Luke J. | date = 2019 | title=Nutritional interventions for treating cancer-related fatigue: a qualitative review | url =https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6456409/|journal=Nutrition and cancer|volume=71|issue=1|pages=21–40|doi=10.1080/01635581.2018.1513046|issn=0163-5581|pmc=6456409|pmid=30688088}}</ref><br />
<br />
==Learn more ==<br />
*[https://pubmed.ncbi.nlm.nih.gov/21139126/ The macrobiotic diet in chronic disease] - Research abstract <br />
<br />
==See also ==<br />
*[[Diet]]<br />
*[[Whole foods plant-based diet]] (wfpb)<br />
*[[Cancer-related fatigue]] (CRF)<br />
<br />
==References ==<br />
{{Reflist}}<br />
<br />
[[Category:Potential treatments]]<br />
[[Category:Diets]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=ME/CFS_Common_Data_Elements_Working_Group&diff=93693ME/CFS Common Data Elements Working Group2021-10-27T17:25:53Z<p>Ben.hsuborger:/* Online presence */ old website link no longer works. Replaced with new url to ME/CFS CDE page.</p>
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<div>[[File:NIND CDE.jpg|200px|thumb|right]]<br />
The '''Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Elements''' (or ME/CFS CDE) project is part of the [[National Institute of Neurological Disorders and Stroke]] (NINDS) Common Data Elements project, which involves research into many neurological diseases.<ref name="cde">{{Cite web|url=https://www.commondataelements.ninds.nih.gov/#page=Default|title=NINDS Common Data Elements|last=National Institute of Neurological Disorders and Stroke|first=|authorlink=National Institute of Neurological Disorders and Stroke|last2=|first2=|authorlink2=|date=|website=www.commondataelements.ninds.nih.gov|archive-url=|archive-date=|url-status=|access-date=2019-02-07}}<br />
</ref><ref name=":0">{{Cite web|url=https://www.commondataelements.ninds.nih.gov/Myalgic%20Encephalomyelitis/Chronic%20Fatigue%20Syndrome#pane-138|title=Myalgic Encephalomyelitis/Chronic Fatigue Syndrome {{!}} NINDS Common Data Elements|website=www.commondataelements.ninds.nih.gov|access-date=2019-10-19}}</ref> <br />
<br />
Common Data Elements or CDEs are standardized terms or concepts used in clinical or research studies thus allowing the data to be compared and combined across studies.<ref>{{Cite web|url=https://clinfowiki.org/wiki/index.php/Common_Data_Element_(CDE)|title=Common Data Element (CDE) - Clinfowiki|website=clinfowiki.org|access-date=2019-10-19}}</ref> <br />
<br />
CDEs may be classified as:<ref>{{Cite web|url=https://www.nlm.nih.gov/cde/glossary.html#cdedefinition|title=Glossary|website=www.nlm.nih.gov|access-date=2019-10-19}}</ref> <br />
* Universal - CDEs used in studies regardless of the specific disease or condition of interest such as demographic information; <br />
<br />
* Domain-specific - CDEs designed and intended for use in studies of a particular topic, disease or condition, body system;<br />
* Required- CDEs that are required or expected, as a matter of institutional policy, to be collected for all subjects;<br />
<br />
* Core - CDEs that are required or expected to be collected in particular classes of studies.<br />
<br />
==CDE working groups ==<br />
There are 11 subgroups focusing on identifying and defining the common data elements in ME/CFS:<ref name=":0" /><br />
<br />
===Baseline/Covariate subgroup ===<br />
<br />
====== Co-chairs: ======<br />
* [[Anthony Komaroff]], ''Harvard University, Boston, MA''<br />
* [[Jose Montoya]], ''Stanford University, Stanford, CA''<br />
<br />
====== Members ======<br />
* [[Alison Bested]], MD, ''Nova Southeastern University, Davie, FL''<br />
* [[Fred Friedberg]], PhD, ''Stony Brook Health Sciences, Stony Brook, NY''<br />
<br />
* [[Leonard Jason]], PhD, ''DePaul University, Chicago, IL''<br />
<br />
* [[Eliana Lacerda|Eliana Mattos Lacerda]], MD, PhD, ''London School of Hygiene, London, UK''<br />
* Denise Lopez-Majano, ''Patient Advocate''<br />
* Anna-Louise Midsem, ''European ME Alliance, Hobro, Denmark''<br />
* [[Zaher Nahle]], PhD, MPA, ''[[Solve ME/CFS Initiative]], Los Angeles, CA''<br />
* [[Lubov Nathanson]], PhD, ''Nova Southeastern University, Ft. Lauderdale, FL''<br />
* Matina Nicholson, ''Patient Advocate''<br />
* [[Elisa Oltra]], PhD, ''Universidad Católica de Valencia San Vicente Mártir, Valencia, Spain''<br />
* Nicole Prestley, ''The University of British Columbia, Vancouver, BC, Canada''<br />
* [[Richard Simpson]], ''[[European ME Alliance]]''<br />
* [[Michael Zeineh]], MD, PhD, ''Stanford University, Stanford, CA''<br />
<br />
=== Fatigue subgroup ===<br />
<br />
====== Chair: ======<br />
* David Cella, PhD, ''Northwestern University, Evanston, IL''<br />
<br />
====== Members: ======<br />
* [[Mary Dimmock]], ''Patient Advocate''<br />
* [[Fred Friedberg]], PhD, ''Stony Brook Health Sciences, Stony Brook, NY''<br />
* [[Jin-Mann Sally Lin]], PhD, ''Centers for Disease Control and Prevention (CDC), Atlanta, GA''<br />
* [[Luis Nacul]], MD, PhD, ''London School of Hygiene, London, UK''<br />
* [[Leorey Saligan]], RN, PhD, ''National Institute of Nursing Research (NINR/NIH), Bethesda, MD''<br />
<br />
=== Post-exertional malaise subgroup ===<br />
<br />
====== Co-chairs: ======<br />
* [[Lily Chu]], MD, MSHS, ''Stanford University, Burlingame, CA''<br />
* [[Mary Dimmock]], ''Patient Advocate''<br />
'''Members:'''<br />
* [[David Cella]], PhD, ''Northwestern University, Evanston, IL''<br />
* [[Dane Cook|Dane B. Cook]], PhD, ''University of Wisconsin, Madison, WI''<br />
* [[Betsy Keller]], PhD, ''Ithaca College, Ithaca, NY''<br />
* Anna-Louise Midsem, ''[[European ME Alliance]]''<br />
* [[David Patrick]], MD, ''The University of British Columbia, Vancouver, BC, Canada''<br />
* [[Richard Simpson]], ''[[European ME Alliance]]''<br />
<br />
=== Sleep subgroup ===<br />
'''Members:'''<br />
* [[Lily Chu]], MD, MSHS, ''Stanford University, Burlingame, CA''<br />
* [[Susan Levine]], MD, ''New York, NY''<br />
* [[Katherine Rowe]], MBBS, MD, ''Royal Childrens Hospital, Melbourne, Australia''<br />
* [[Kimberly Sullivan]], PhD, ''Boston University, Boston, MA''<br />
<br />
=== Pain subgroup ===<br />
'''Members:'''<br />
* [[Lucinda Bateman]], MD, ''Bateman Horne Center, Salt Lake City, UT''<br />
* Emmeline Edwards, PhD, ''Division of Extramural Research, National Center for Complementary and Integrative Health (NCCIH), Bethesda, MD''<br />
* Rachael Korinek, ''Patient Advocate''<br />
* [[Leorey Saligan]], RN, PhD, ''National Institute of Nursing Research (NINR/NIH), Bethesda, MD''<br />
* Yolanda Vallejo, PhD, ''Integrative Biology and Infectious Diseases Branch, National Institute of Dental and Craniofacial Research, [[National Institutes of Health]], Bethesda, MD''<br />
* [[Marcie Zinn]], PhD, ''The Neuro-Cognitive Research Institute (NCRI), Chicago, IL''<br />
<br />
=== Neurologic/Cognitive/CNS imaging subgroup ===<br />
<br />
====== '''Chair (Overall/Cognitive):''' ======<br />
* [[Gudrun Lange]], PhD, ''Mount Sinai School of Medicine, New York, NY''<br />
<br />
====== '''Chair (CNS Imaging):''' ======<br />
* [[Jarred Younger]], PhD, ''The University of Alabama, Birmingham, AL''<br />
<br />
====== '''Co-Chairs (Neurologic):''' ======<br />
* [[Jose Montoya]], MD'', Stanford University, Stanford, CA''<br />
<br />
* [[Kimberly Sullivan]], PhD, ''Boston University, Boston, MA''<br />
'''Members:'''<br />
* [[James Baraniuk]], MD, ''Georgetown University, Washington, DC''<br />
* [[Jonas Bergquist]], MD, PhD, ''EMERG (Uppsala University), Uppsala, Sweden''<br />
* Emmeline Edwards, PhD, ''Division of Extramural Research, National Center for Complementary and Integrative Health (NCCIH), Bethesda, MD''<br />
* [[Neil Harrison]], MB, BS, PhD, MRCP, MRCPsych, ''EMERG (Sussex University), East Sussex, UK''<br />
* [[Eliana Lacerda|Eliana Mattos Lacerda]], MD, PhD, ''London School of Hygiene, London, UK''<br />
* [[Jin-Mann Sally Lin]], PhD, ''Centers for Disease Control and Prevention (CDC), Atlanta, GA''<br />
* Denise Lopez-Majano, ''Patient Advocate''<br />
* Anna-Louise Midsem, ''European ME Alliance''<br />
* [[Zaher Nahle]], PhD, MPA, ''Solve ME/CFS Initiative, Los Angeles, CA''<br />
* [[Benjamin Natelson]], MD, ''Pain and Fatigue Study Center, New York, NY (Ad Hoc)''<br />
* [[Lubov Nathanson]], PhD, ''Nova Southeastern University, Ft. Lauderdale, FL''<br />
* Matina Nicholson, ''Patient Advocate''<br />
* Nicole Prestley, ''The University of British Columbia, Vancouver, BC, Canada''<br />
* [[Richard Simpson]], ''[[European ME Alliance]]''<br />
* Terri Wilder, ''Patient Advocate''<br />
* [[Michael Zeineh]], MD, PhD, ''Stanford University, Stanford, CA''<br />
* [[Marcie Zinn]], PhD, ''The Neuro-Cognitive Research Institute (NCRI), Chicago, IL''<br />
<br />
=== Autonomic subgroup ===<br />
<br />
====== Chair: ======<br />
* [[Peter Rowe]], ''Johns Hopkins University, Baltimore, MD''<br />
'''Members:'''<br />
* Italo Biaggioni, MD, ''Vanderbilt University, Nashville, TN''<br />
* [[Mady Hornig]], MD, ''Columbia University, New York, NY''<br />
* [[Ben Katz]], MD, ''Lurie Children's Hospital, Chicago, IL''<br />
* Denise Lopez-Majano, ''Patient Advocate''<br />
* [[Katherine Rowe]], MBBS, MD, ''Royal Childrens Hospital, Melbourne, Australia''<br />
<br />
=== Neuroendocrine subgroup ===<br />
<br />
====== Chair: ======<br />
* [[Nathan Holladay]], ''Salt Lake City, UT''<br />
'''Members:'''<br />
* [[Mary Dimmock]], ''Patient Advocate''<br />
* [[Christopher Mullins]], PhD, ''National Institute of Diabetes and Digestive and Kidney Diseases (NIH/NIDDK), Bethesda, MD''<br />
<br />
=== Immune subgroup ===<br />
<br />
====== Co-Chairs: ======<br />
* [[Mady Hornig]], ''Columbia University, New York, NY''<br />
* [[Nancy Klimas]], ''Nova Southeastern University, Ft. Lauderdale, FL''<br />
'''Members:'''<br />
* [[Simon Carding]], PhD, ''EMERG (Institute of Food Research/University of East Anglia), Norwich, UK''<br />
* [[Mary Dimmock]], ''Patient Advocate''<br />
* [[Mary Ann Fletcher]], PhD, ''Nova Southeastern University, Ft. Lauderdale, FL''<br />
* [[Nathan Holladay]], MD, PhD. ''Salt Lake City, UT''<br />
* [[Andreas Kogelnik]], MD, PhD, ''Open Medicine Institute, Mountain View, CA''<br />
<br />
=== QOL/Functional Status/CPET/Activity subgroup ===<br />
'''Members:'''<br />
* Drew Helmer, MD, MS, ''War Related Illness and Injury Study Center VA- New Jersey Health Care System, East Orange, NJ''<br />
* [[Nathan Holladay]], MD, PhD, ''Salt Lake City, UT''<br />
* [[Betsy Keller]], PhD, ''Ithaca College, Ithaca, NY''<br />
* Rachael Korinek, ''Patient Advocate''<br />
* [[Christopher Snell]], PhD, ''Workwell Foundation, Stockton, CA''<br />
* [[Staci Stevens]], MA, ''Workwell Foundation, Stockton, CA''<br />
* [[Mark VanNess]], PhD, ''University of the Pacific, Stockton, CA''<br />
<br />
=== Biomarkers subgroup ===<br />
<br />
====== Chair: ======<br />
* [[Elisa Oltra]]<br />
'''Members:'''<br />
* [[Jonas Bergquist]], MD, PhD, ''EMERG (Uppsala University), Uppsala, Sweden''<br />
* [[Simon Carding]], PhD, ''EMERG (Institute of Food Research/University of East Anglia), Norwich, UK''<br />
* [[Lily Chu]], MD, MSHS, ''Stanford University, Burlingame, CA''<br />
* [[Ronald Davis]], PhD, ''Stanford University, Stanford, CA''<br />
* [[Maureen Hanson]], PhD, ''Cornell University, Ithaca, NY''<br />
* [[Lubov Nathanson]], PhD, ''Nova Southeastern University, Ft. Lauderdale, FL''<br />
* [[David Patrick]], MD, ''The University of British Columbia, Vancouver, BC, Canada''<br />
<br />
=== NIH/NINDS/CDC ===<br />
'''Members:'''<br />
* [[Elizabeth Unger]], MD, PhD, ''The Centers for Disease Control and Prevention (CDC), Atlanta, GA''<br />
* [[Vicky Whittemore]], PhD, ''National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Bethesda, Maryland''<br />
* M. Carolina Mendoza-Puccini, MD, ''Scientific Program Specialist, National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Bethesda, Maryland''<br />
* Claudia Moy, PhD, ''National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Bethesda, Maryland''<br />
* Andrew Breeden, PhD, ''National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Bethesda, Maryland''<br />
<br />
=== NINDS CDE Team ===<br />
'''Members:'''<br />
* Katelyn Gay, BS, ''The Emmes Corporation''<br />
* Sherita Ala'i, MS, ''The Emmes Corporation''<br />
* Joy Esterlitz, MS, ''The Emmes Corporation''<br />
* Kristen Joseph, MA, ''The Emmes Corporation''<br />
* Muniza Sheikh, MS, MBA, ''The Emmes Corporation''<br />
* Sarah Tanveer, BS, ''The Emmes Corporation''<br />
<br />
==Funding==<br />
<br />
==Online presence==<br />
*Twitter<br />
*Facebook<br />
*[https://www.commondataelements.ninds.nih.gov/Myalgic%20Encephalomyelitis/Chronic%20Fatigue%20Syndrome Website]<br />
*YouTube<br />
<br />
==See also==<br />
* [[National Institute of Neurological Disorders and Stroke]]<br />
==Learn more==<br />
==References==<br />
{{Reflist}}<br />
<br />
[[Category:Research initiatives]]<br />
[[Category:American research initiatives]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=National_Institutes_of_Health_funding&diff=92577National Institutes of Health funding2021-07-12T17:15:39Z<p>Ben.hsuborger:Contributor requested this name change since page content is only about NIH. Innie approved this.</p>
<hr />
<div>{{DISPLAYTITLE:National Institutes of Health funding}}<br />
<br />
[[National Institutes of Health]] (NIH) funding of research and treatment of [[ME/CFS]] has been historically low.<br />
<br />
According to NIH, the budget in the United States for [[chronic fatigue syndrome]] and [[ME/CFS]] for previous years is as follows:<ref>https://report.nih.gov/categorical_spending.aspx</ref><br />
:Fiscal Year 2020 - $15 million<br />
:Fiscal Year 2019 - $15 million<br />
:Fiscal Year 2018 - $14 million<br />
:Fiscal Year 2017 - $15 million<br />
:Fiscal Year 2016 - $ 8 million<br />
:Fiscal Year 2015 - $ 6 million<br />
:Fiscal Year 2014 - $ 5 million<br />
:Fiscal Year 2013 - $ 5 million<br />
:Fiscal Year 2012 - $ 5 million<br />
:Fiscal Year 2011 - $ 6 million<br />
:Fiscal Year 2010 - $ 6 million<br />
:Fiscal Year 2009 - $ 5 million<br />
:Fiscal Year 2008 - $ 4 million<br />
:Fiscal Year 2007 - $ 4 million<ref>{{Cite web|url=https://report.nih.gov/biennialreport0607/research_activities_by_disease_categories/estimates_of_funding.aspx?SID=28|title=Biennial Report of the Director, NIH, FY 2006 & 2007 -NIH Research Portfolio Online Reporting Tools (RePORT)|website=report.nih.gov|access-date=2021-07-07}}</ref><br />
:Fiscal Year 2006 - $ 5 million<ref>{{Cite web|url=https://report.nih.gov/biennialreport0607/research_activities_by_disease_categories/estimates_of_funding.aspx?SID=28|title=Biennial Report of the Director, NIH, FY 2006 & 2007 -NIH Research Portfolio Online Reporting Tools (RePORT)|website=report.nih.gov|access-date=2021-07-07}}</ref> <br />
:<br />
<br />
In November 2016, NIH Director [[Francis Collins]] announced that NIH spending for research for [[CFS]] disease is intended to double to roughly $15 million in 2017, compared to the estimated $7.6 million allotted for research in 2016.<ref>http://www.sciencemag.org/news/2016/11/nih-double-funding-chronic-fatigue-syndrome-patient-distrust-remains</ref><br />
<br />
==NIH Research Funding==<br />
<br />
*[https://www.liebertpub.com/doi/full/10.1089/jwh.2020.8682 Gender Disparity in the Funding of Diseases by the U.S. National Institutes of Health] by Arthur A. Mirin, Ph.D. | Journal of Women’s Health, Published Online: 27 November 2020 <br />
*[https://pubmed.ncbi.nlm.nih.gov/32568148/ Research update: The relation between ME/CFS disease burden and research funding in the USA] by Arthur A Mirin, Mary E Dimmock, Leonard A Jason. Work. 2020;66(2):277-282. <br />
*[https://oatext.com/Estimating-the-disease-burden-of-MECFS-in-the-United-States-and-its-relation-to-research-funding.php Estimating the disease burden of ME/CFS in the United States and its relation to research funding] by Mary. E. Dimmock, Arthur A. Mirin, Leonard A. Jason. J Med Therap, 2016 <br />
*Nov 2015, [https://twitter.com/brianvastag/status/667879507571806208][[Brian Vastag]] posts chart from Science Magazine on ME/CFS spending vs other diseases<br />
*[http://www.meresearch.org.uk/news/mecfs-funding-report/ ME Research UK - ME/CFS funding report]<br />
*[https://twitter.com/TomKindlon/status/782331963835285504 Chart showing relative funding] posted by [[Tom Kindlon]]<br />
*[https://report.nih.gov/categorical_spending.aspx Estimates of Funding for Various Research, Condition, and Disease Categories by the NIH - $5-7million annually]<br />
*[http://www.huffingtonpost.com/rivka-solomon/millionsmissing-a-hidden-_b_12183114.html Rivka Solomon estimates that, based on disease prevalence and burden, NIH funding should be around $250 million]<br />
*[https://www.youtube.com/watch?v=eZkoKObgvfs YouTube: Money and ME, Patient Analysis Video - An illustration of the amount of money invested in research into ME/CFS] By [[MEAnalysis]]<br />
<br />
==References==<br />
{{Reflist}}<br />
[[Category:Core topics]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=United_States_proclamations_and_resolutions&diff=26859United States proclamations and resolutions2017-09-11T16:57:58Z<p>Ben.hsuborger:proclamations AND resolutions</p>
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<div>A list of [[United States]] '''proclamations''' and '''resolutions''', listed by state/province and city.<br />
<br />
==Arizona==<br />
*Phoenix, May 2016 [[Media:2016-05-12_Chronic_Fatigue_Syndrome_Final_Proclamation,_Phoenix_AZ_Mayor_Greg_Stanton.pdf|Proclamation by Mayor Stanton]] (pdf)<br />
<br />
==California==<br />
===State===<br />
*California State Senate, May 18, 2017, adopted bill SCR-40 Myalgic Encephalomyelitis Awareness Month; [[Media:SCR 40.pdf| Bill introduced by Senator Steve Glazer and Assembly Member Catharine B. Baker]]; [https://www.youtube.com/watch?v=Wu4FVCT9YWU Video of bill vote]<br />
<br />
===Cities & Counties===<br />
*Anaheim, May 2015 [[Media:ANAHEIM CA USA PROCLAMATION by Mayor Tait, Council 2015-05-12 & Info.pdf|Proclamation by Mayor Tait & Council]] (pdf)<br />
*Elk Grove, May 2016 [[Media: Elk Grove CA USA Mayor & Council 05-11-16 Proclamation.pdf|Proclamation by Mayor Davis & Council]] (pdf)<br />
*Los Angeles, May 2016 [[Media:2016-05-12 Los Angeles ME-CFS Certificate Mayor Eric Garcetti.jpg|Proclamation by Mayor Garcetti]] (jpg)<br />
*Pleasanton, May 2016 [[Media: 2016-05-12 Pleasanton CA Proclamation.pdf|Proclamation by Mayor Thorne & Council]] (pdf)<br />
*Sacramento, May 2016 [[Media: Sacramento CA USA Recognizing May 12, 2016 as Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Awareness Day Resolution, CRA2016-020.pdf|Proclamation by Mayor Johnson & Council]] (pdf)<br />
*San Ramon, May 2016 [[Media: 2016,_May_12_ME_Proclamation_by_San_Ramon,_CA_USA_Mayor_Bill_Clarkson.pdf|Proclamation by Mayor Bill Clarkson]] (pdf)<br />
*West Sacramento, May 2016 [[Media:2016-05-12 West Sacramento ME proclamation, Mayor Cabaldon.pdf|Proclamation by Mayor Cabaldon]] (pdf)<br />
*San Francisco, Sep 27, 2016 [[Media:San Francisco Proclamation.jpg|Proclamation by Mayor Edwin Lee naming May 12, 2017 as SF ME/CFS Awareness Day]] (jpg)<br />
*San Francisco, Sep 27, 2016 [[Media:Certificate of Honor, SF Board of Supervisors.jpg|Board of Supervisors Certificate of Honor honoring #MillionsMissing for advocacy work]] (jpg)<br />
<br />
==Georgia==<br />
*State of Georgia, May 2017 [http://www.legis.ga.gov/Legislation/20172018/164298.pdf Georgia House Resolution] (pdf)<br />
<br />
==Illinois==<br />
*State of Illinois, May 2017 [http://www.ilga.gov/legislation/100/HR/10000HR0021.htm Illinois House Resolution] (htm)<br />
<br />
==Michigan==<br />
*Grand Rapids, May 2012 [[Media: GRAND RAPIDS & West MI USAProclamation, Mayor Hartwell 2012-05.jpg|Proclamation for Grand Rapids, MI]] (jpg)<br />
<br />
==Maryland==<br />
*Montgomery County, Sep 27 2016 [[Media:Maryland proclamation montgomery county.JPG|Proclamation for Montgomery County]] (jpg)<br />
<br />
==Massachusetts== <br />
*State of Massachusetts, May 2017 [https://drive.google.com/file/d/0B3fv5Vz5YsOya0JHT20xUEdIV2M/view Proclamation for Massachusetts] (jpg)<br />
*Northampton, MA, Oct 2016 [https://drive.google.com/file/d/0B3fv5Vz5YsOyTTQ0ZE12SWdXdzQ/view Proclamation for Northampton, MA] (jpg)<br />
*Pittsfield, MA, May 2017 [https://drive.google.com/file/d/0B3fv5Vz5YsOybTR1Q0JhOFFLVEE/view Proclamation for Pittsfield, MA] (pdf)<br />
*Cambridge, MA, May 2017 [http://me-pedia.org/images/4/44/CityofCambridge_MECFS_Proclamation_2017.jpg Proclamation for Cambridge, MA] (jpg)<br />
<br />
==New Jersey==<br />
*State of New Jersey, May 2017 [http://www.njmecfsa.org/wp-content/uploads/2017/04/Proclamation-2017.jpg Proclamation for New Jersey] (jpg)<br />
<br />
==New York==<br />
*State of New York, June 2017 [https://www.nysenate.gov/legislation/resolutions/2017/j2436 New York Senate Resolution] (html)<br />
*New York Department of Health - Health Commissioner, May 2017 [https://drive.google.com/file/d/0B37JHmPXER6JZkZRd0hIalA2bUE/view Newsletter to New York State Physicians] (pdf)<br />
<br />
==North Carolina==<br />
*State of North Carolina, May 2017 [https://drive.google.com/file/d/0B3fv5Vz5YsOyTTVaUzZGUGFwbms/view Proclamation for North Carolina] (jpg)<br />
*Washington, NC May 2017 [https://drive.google.com/file/d/0B3fv5Vz5YsOyMFFMM3lnWGsyYXM/view Proclamation for Washington, NC] (jpg)<br />
<br />
==Ohio==<br />
*Springfield, OH, May 2015 [https://drive.google.com/file/d/0B3fv5Vz5YsOyYm5fSDJTTjB2amc/view Proclamation for Springfield] (jpg)<br />
<br />
==Tennessee==<br />
*Knoxville, TN, May 2017 [[Media:Knoxville_Mayoral_Proclamation_ME_CFS_Awareness_Day_May_12%2C_2017-Proclamation_by_Mayor_Rogero.pdf|Proclamation by Mayor Rogero]] (pdf)<br />
<br />
==Texas==<br />
*Houston, TX, May 2016 [[Media:Proclamation Houston Mayor 2016-05.pdf|Proclamation by Mayor Turner]] (pdf)<br />
<br />
==See also==<br />
*[[Illuminated landmarks]]<br />
*[[:Category:Open letters|Open letters]]<br />
<br />
[[Category:Advocacy and fundraising initiatives]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9347MEpedia:Suggested tasks2016-05-25T03:22:00Z<p>Ben.hsuborger:7</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*copy Tuller articles from PACE Trial to Tuller page (already done by someone)<br />
*Make sure the Glenn Beck page links back to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9346MEpedia:Suggested tasks2016-05-25T03:21:25Z<p>Ben.hsuborger:7</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Make sure the Glenn Beck page links back to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9345MEpedia:Suggested tasks2016-05-25T03:15:03Z<p>Ben.hsuborger:6</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Make sure the Glenn Beck page links back to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Glenn_Beck&diff=9344Glenn Beck2016-05-25T03:14:28Z<p>Ben.hsuborger:6</p>
<hr />
<div>'''Glenn Beck''' is an American radio and television personality. In 2015 he stated he had [[ME/CFS]].<ref>[https://twitter.com/brianvastag/status/729755594119241728 Facebook - Glenn Beck]</ref><br />
<br />
*Make sure the Glenn Beck page links back to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
<br />
==Talks & interviews==<br />
<br />
==Online presence==<br />
*[https://twitter.com/glennbeck Twitter - Glenn Beck]<br />
*[http://www.glennbeck.com/ Website]<br />
*Facebook<br />
*YouTube<br />
<br />
==Learn more==<br />
*[https://en.wikipedia.org/wiki/Glenn_Beck Wikipedia - Glenn Beck]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Patients]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9343MEpedia:Suggested tasks2016-05-25T03:12:02Z<p>Ben.hsuborger:6</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9342MEpedia:Suggested tasks2016-05-25T03:07:57Z<p>Ben.hsuborger:5</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9341MEpedia:Suggested tasks2016-05-25T03:07:30Z<p>Ben.hsuborger:5</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=FINE_trial&diff=9340FINE trial2016-05-25T03:07:09Z<p>Ben.hsuborger:5</p>
<hr />
<div>The '''FINE trial'''<ref>[https://www.ncbi.nlm.nih.gov/pubmed/16603058 Fatigue Intervention by Nurses Evaluation--the FINE Trial. A randomised controlled trial of nurse led self-help treatment for patients in primary care with chronic fatigue syndrome: study protocol]</ref> was a study examining treatments for ME/CFS. It is considered to be the 'sister' to the [[PACE trial]].<br />
<br />
==Funding==<br />
<br />
==Results==<br />
<br />
Sam Carter applied the criteria from a [[PACE trial]] study to the data from the FINE trial and questioned whether the recovery rates in the PACE study had been inflated by as much as six-fold as a result.<ref>[https://www.ncbi.nlm.nih.gov/pubmed/23363640#cm23363640_14248 Exploring changes to PACE trial outcome measures using anonymised data from the FINE trial]</ref><br />
<br />
==Criticism==<br />
*2015, [http://www.virology.ws/2015/11/09/trial-by-error-continued-why-has-the-pace-studys-sister-trial-been-disappeared-and-forgotten/ Trial By Error, Continued: Why has the PACE Study’s “Sister Trial” been “Disappeared” and Forgotten?]<br />
*2010, [http://phoenixrising.me/archives/11854 Not So Fine After All: the FINE Trial Crashes to Earth]<br />
*[http://www.investinme.org/Article-015%20FINE%20Trials.htm FINE Trials Experience]<br />
*[http://www.meassociation.org.uk/2010/05/failure-of-fine-trial-comes-as-no-surprise-mea-responds/ Failure of FINE trial comes as no surprise’ – MEA responds to study results in British Medical Journal]<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
<br />
==Consent Form==<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
<br />
==Investigators==<br />
[[Alison Wearden]], Riste L, Dowrick C, Chew-Graham C, Bentall RP, Richard Morriss, Peters S, Dunn G, Richardson G, Lovell K, Powell P.<br />
<br />
==Learn more==<br />
*[http://www.fine-trial.net/ FINE trial website]<br />
<br />
==See also==<br />
*[[PACE trial]]<br />
<br />
==References==<br />
<references/></div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9339MEpedia:Suggested tasks2016-05-25T03:05:26Z<p>Ben.hsuborger:4</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=FINE_trial&diff=9338FINE trial2016-05-25T03:04:57Z<p>Ben.hsuborger:4</p>
<hr />
<div>The '''FINE trial'''<ref>[https://www.ncbi.nlm.nih.gov/pubmed/16603058 Fatigue Intervention by Nurses Evaluation--the FINE Trial. A randomised controlled trial of nurse led self-help treatment for patients in primary care with chronic fatigue syndrome: study protocol]</ref> was a study examining treatments for ME/CFS. It is considered to be the 'sister' to the [[PACE trial]].<br />
<br />
==Funding==<br />
<br />
==Results==<br />
<br />
Sam Carter applied the criteria from a [[PACE trial]] study to the data from the FINE trial and questioned whether the recovery rates in the PACE study had been inflated by as much as six-fold as a result.<ref>[https://www.ncbi.nlm.nih.gov/pubmed/23363640#cm23363640_14248 Exploring changes to PACE trial outcome measures using anonymised data from the FINE trial]</ref><br />
<br />
==Criticism==<br />
*2015, [http://www.virology.ws/2015/11/09/trial-by-error-continued-why-has-the-pace-studys-sister-trial-been-disappeared-and-forgotten/ Trial By Error, Continued: Why has the PACE Study’s “Sister Trial” been “Disappeared” and Forgotten?]<br />
*2010, [http://phoenixrising.me/archives/11854 Not So Fine After All: the FINE Trial Crashes to Earth]<br />
*[http://www.investinme.org/Article-015%20FINE%20Trials.htm FINE Trials Experience]<br />
*[http://www.meassociation.org.uk/2010/05/failure-of-fine-trial-comes-as-no-surprise-mea-responds/ Failure of FINE trial comes as no surprise’ – MEA responds to study results in British Medical Journal]<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
<br />
==Investigators==<br />
[[Alison Wearden]], Riste L, Dowrick C, Chew-Graham C, Bentall RP, Richard Morriss, Peters S, Dunn G, Richardson G, Lovell K, Powell P.<br />
<br />
==Learn more==<br />
*[http://www.fine-trial.net/ FINE trial website]<br />
<br />
==See also==<br />
*[[PACE trial]]<br />
<br />
==References==<br />
<references/></div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9337MEpedia:Suggested tasks2016-05-25T03:03:52Z<p>Ben.hsuborger:4</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9336MEpedia:Suggested tasks2016-05-25T03:01:54Z<p>Ben.hsuborger:3</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Irritable_bowel_syndrome&diff=9335Irritable bowel syndrome2016-05-25T03:01:16Z<p>Ben.hsuborger:3</p>
<hr />
<div>IBS affects 10 to 15 percent of US adults. Only 5-7 percent of US adults have received a diagnosis of IBS.<ref>[http://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/irritable-bowel-syndrome/Pages/definition-facts.aspx How Common is IBS - NIH Health Topics]</ref><br />
<br />
== What is IBS? ==<br />
"Irritable bowel syndrome (IBS) is a group of symptoms—including pain or discomfort in your abdomen and changes in your bowel movement patterns—that occur together. Doctors call IBS a functional gastrointestinal (GI) disorder. Functional GI disorders happen when your GI tract behaves in an abnormal way without evidence of damage due to a disease."<br />
<br />
== Four Types of Irritable Bowel Syndrome (IBS) ==<br />
Stool consistency dictates the four types.<ref>[http://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/irritable-bowel-syndrome/Pages/definition-facts.aspx Definition and Facts for Irritable Bowel Syndrome - IBS - NIH Health Topics]</ref><br />
<br />
*IBS with constipation<br />
*IBS with diarrhea <br />
*Mixed IBS<br />
*Unsubtyped IBS<br />
<br />
== ME/CFS and IBS ==<br />
'''Irritable Bowel Syndrome in Fibromyalgia & Chronic Fatigue Syndrome - Why Do They Go Together?'''<br />
<br />
[[About.com Health FMS/ME/CFS]] By: Adrienne Dellwo<br />
<br />
"Fibromyalgia, chronic fatigue syndrome and irritable bowel syndrome (IBS) frequently go together. No one really knows why, but we do know that all three conditions can include imbalances of serotonin -- although in fibromyalgia (FMS) and chronic fatigue syndrome ([[CFS]] or [[ME/CFS]]) it's an imbalance in the brain, while with IBS it's in the gut."<ref>[http://chronicfatigue.about.com/od/whyfmscfsarelinked/a/IBS.htm Irritable Bowel Syndrome in Fibromyalgia & Chronic Fatigue Syndrome - Why Do They Go Together? - About.com Health FMS/ME/CFS]</ref><br />
<br />
<br />
'''Evidence for the existence of''' [[Myalgic Encephalomyelitis]]/[[Chronic Fatigue Syndrome]] (ME/CFS)'''with and without abdominal discomfort (irritable bowel) syndrome.'''<br />
<br />
''NCBI'' <br />
<br />
"The findings show that ADS is a characteristic of a subset of patients with [[ME/CFS]] and that increased bacterial translocation (leaky gut) is associated with ADS symptoms. This study has defined a pathway phenotype, i.e bacterial translocation, that is related to ME/CFS and ADS/IBS and that may drive systemic inflammatory processes."<ref>[https://www.ncbi.nlm.nih.gov/pubmed/25433843 Evidence for the existence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) with and without abdominal discomfort (irritable bowel) syndrome.- NCBI]</ref><br />
<br />
== See also ==<br />
<br />
*[[Low FODMAP diet|Low FODMAP Diet]] - an effective treatment for IBS<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
<br />
== References ==</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9334MEpedia:Suggested tasks2016-05-25T03:00:46Z<p>Ben.hsuborger:3</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MTHFR&diff=9333MTHFR2016-05-25T02:55:12Z<p>Ben.hsuborger:2</p>
<hr />
<div>'''5,10-methylenetetrahydrofolate reductase (MTHFR)'''<br />
<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
<br />
==See also==<br />
<br />
*[[Methylation cycle]]<br />
*[[Methylation cycle hypothesis]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9332MEpedia:Suggested tasks2016-05-25T02:54:48Z<p>Ben.hsuborger:2</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9331MEpedia:Suggested tasks2016-05-25T02:54:18Z<p>Ben.hsuborger:2</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9330MEpedia:Suggested tasks2016-05-25T02:52:32Z<p>Ben.hsuborger:1</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9329MEpedia:Suggested tasks2016-05-25T02:52:04Z<p>Ben.hsuborger:1</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Rivka_Solomon&diff=9328Rivka Solomon2016-05-25T02:51:39Z<p>Ben.hsuborger:rivka</p>
<hr />
<div>Article by Rivka Solomon<br />
https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9327MEpedia:Suggested tasks2016-05-25T02:49:38Z<p>Ben.hsuborger:tomk</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add to Tom Kindlon page https://www.pinterest.com/tomkindlon/<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=MEpedia:Suggested_tasks&diff=9326MEpedia:Suggested tasks2016-05-25T02:49:00Z<p>Ben.hsuborger:tomk</p>
<hr />
<div>This page lists suggestions for improvements or additions to MEpedia.<br />
<br />
PLEASE if at all possible, create/edit a relevant article yourself (see [[How to contribute]]), as the editors of MEpedia are all sick and working hard to improve the content in particular areas - we need your help! But if you REALLY can't make the improvement yourself, click '''Edit''' below (next to the heading "Suggestions"), add your suggestion to the end, and then click '''Save page'''. <br />
<br />
Please keep your suggestion as brief as possible (usually one line) and be sure to include web links to sources/citations (e.g., the published study, a source for a quote, etc.).<br />
<br />
If you merely wish to keep track of your own goals on site (but for discoverability by others), you can instead add a subpage to your user page (add a "/" and subpage, e.g., [[User:Brettz9/To-dos]]) and then add the code <nowiki>[[Category:User to-dos]]</nowiki> to your subpage article. It will then show up at [[:Category:User to-dos]].<br />
<br />
=Suggestions - Five Minute Tasks=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Add to Rikva Solomon page https://www.statnews.com/2016/05/24/chronic-fatigue-syndrome-myalgic-encephalomyelitis/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html<br />
*Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10535608<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10545311<br />
*Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add https://twitter.com/Firestormmer/status/734650703847784449<br />
*Make sure this study and a copy of the Guardian article are in MEpedia https://twitter.com/JaneCColby/status/734460704607080448<br />
*Add https://afectadasporlosrecortessanitarios.wordpress.com/2016/05/11/risk-of-suicide-due-to-neglect-amongst-pwme/<br />
*Add vitamin B study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297139/<br />
*Add podcast link https://twitter.com/MBVanElzakker/status/734277452009201664<br />
*Add to IBS page https://jcoynester.wordpress.com/2016/05/21/no-irritable-bowel-syndrome-is-not-all-in-your-head/<br />
*Add http://www.occupycfs.com/2016/05/21/cfs-advisory-committee-meeting-outcomes/<br />
*Add https://www.youtube.com/watch?v=wJB95m4FLa0&feature=youtu.be<br />
*Add https://www.youtube.com/watch?v=bCUvygbYdXs<br />
*Add http://www.huffingtonpost.com/maureen-hanson/be-aware-and-beware-chron_b_10057510.html<br />
*Add http://www.freezepage.com/1374761286EFCHIYENBE<br />
*Add http://www.meadvocacy.org/eileen_holderman_cfsac_public_comment_about_nih_study<br />
*Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/<br />
*Add to mitochondria, naviaux and OMF pages http://www.healthrising.org/blog/2016/05/19/mitochondria-man-gets-money-uk-goes-mega-chronic-fatigue-syndrome-research-moves-forward/<br />
*Add http://www.meaction.net/2016/05/19/dr-hornigs-talk-in-sweden-now-available/<br />
*Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27187093<br />
*Add to MTHFR page https://selfhacked.com/2016/05/18/need-know-mthfr-genespolymorphisms-c677t-rs1801133/<br />
*Find source and add https://twitter.com/Firestormmer/status/733001836186238976<br />
*Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15157711<br />
*Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10209352<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189612<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/10189122<br />
*Add http://www.meaction.net/2016/05/17/uk-mecfs-biobank-opens-for-business/<br />
*Add http://www.openmedicinefoundation.org/2016/05/17/new-metabolomics-study-begins/<br />
*Add http://solvecfs.org/spring-chronicle/spring-chronicle-2016.pdf<br />
*Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html<br />
*Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305<br />
*Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/<br />
*Add http://m.chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter<br />
*Add http://stanmed.stanford.edu/2016spring/the-puzzle-solver.html<br />
*Add http://trialsjournal.biomedcentral.com/articles/10.1186/1745-6215-14-415<br />
*Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/<br />
*Source this chart and add to MEpedia https://twitter.com/mjdesignart/status/732061326420250626<br />
*Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9861623<br />
*Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803<br />
*Add ritux update http://www.healthrising.org/forums/threads/rituximab-study-update-researchers-focus-on-rare-gene-variant.4319/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27177188<br />
*Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/<br />
*Add to the quotations page the quote from Nancy Klimas where she said she'd choose HIV over ME/CFS<br />
*Add http://www.sheknows.com/health-and-wellness/articles/1119407/chronic-fatigue-syndrome<br />
*Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/<br />
*Add https://www.youtube.com/watch?v=87zAPTEtxas<br />
*Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/<br />
*Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27165859<br />
*Add http://phoenixrising.me/archives/28077<br />
*Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/<br />
*Add https://www.youtube.com/watch?v=wsUhaGEKXBg<br />
*Make sure the Glenn Beck page links to this post https://www.facebook.com/GlennBeck/posts/10153736242213188<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448<br />
*Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/<br />
*Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/<br />
*Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9771781<br />
*Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/<br />
*Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9745235<br />
*Add https://twitter.com/TomKindlon/status/729039610924371969?s=09<br />
*Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/<br />
*Add quote on quotations, cause of death and Chu pages https://twitter.com/TomKindlon/status/728660598125408257?s=09<br />
*Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence<br />
*http://iacfsme.org/PDFS/2016MayNesletter/Attachment-03-Dr-Lily-Chu-ME-CFS-and-suicide.aspx<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1<br />
*Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/<br />
*Add http://iacfsme.org/PDFS/2016MayNesletter/Attachment-08-Dr-Keith-Geraghty-Doing-CFS-research.aspx<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2170049/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9476743<br />
*Update blood donation page with http://www.nhsbt.nhs.uk/news-and-media/news-archive/news_2010_10_07.asp and https://twitter.com/velogubbed/status/727601250473259009 and https://aprescriptionforme.wordpress.com/2015/06/18/can-people-with-m-e-give-blood-and-organs/<br />
*Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm<br />
*Add https://selfhacked.com/2016/05/03/mmp9/<br />
*Add to Wessely page https://dl.dropboxusercontent.com/u/23608059/simon%20on%20eysenck.pdf<br />
*Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234<br />
*Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/<br />
*Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9292244<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/24510231<br />
*Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer<br />
*Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study<br />
*Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/15784798<br />
*Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/<br />
*Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/<br />
*Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9226729<br />
*Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/<br />
*Add https://www.facebook.com/notes/jan-van-roijen/re-dr-avi-nath-me/10154382672523322<br />
*Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27118537<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9018051<br />
*Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598<br />
*Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27114901<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9170115<br />
*Add http://www.jacobspublishers.com/images/Physiology/J_J_Physiology_1_2_007.pdf<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4482824/<br />
*Add quote to IOM report page and patient mental health pages https://twitter.com/ollie72/status/724948447024009217?cn=cmV0d2VldA%3D%3D&refsrc=email<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27116645<br />
*Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/<br />
*Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati<br />
*Add http://www.meaction.net/2016/04/24/transcript-solve-mecfs-interviews-dr-avi-nath/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/19228959<br />
*Add Nath talk https://www.youtube.com/watch?v=g8z-v1F6Ax0<br />
*Add Bateman talk slides http://www.fcclinic.com/SLEEP%20research%20CDC%20talk%20090914%20final.pdf<br />
*Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z<br />
*Add http://www.mdpi.com/2075-4418/6/2/16<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/8809350<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27095328<br />
*Add http://www.healthrising.org/forums/threads/an-eye-on-the-mitochondria-man-robert-naviaux-and-chronic-fatigue-syndrome-me-cfs.4163/<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27091026<br />
*Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/9149090<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8<br />
*Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf<br />
*Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088059<br />
*Add https://www.ncbi.nlm.nih.gov/pubmed/27088131<br />
*Add disease symptom scale, and somehow group all symptom scales (lerner, bell, chalder, de paul, etc) https://twitter.com/TomKindlon/status/721423210919669760?s=09<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add https://batemanhornecenter.org/uncovering-biomarkers-fcg-receptors/<br />
*Add http://link.springer.com/article/10.1007%2Fs11306-015-0816-5<br />
*Make sure this study is on the Exercise page http://www.meresearch.org.uk/our-research/completed-studies/acidosis/<br />
*Make sure this article is linked to on the ME page, maybe elsewhere too https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf<br />
*Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf<br />
*Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf<br />
*Make sure this study is linked to on the Carnitine page https://www.ncbi.nlm.nih.gov/pubmed/8148455<br />
*Make sure this study is linked to from the natural killer cell page https://www.dovepress.com/articles.php?article_id=26236<br />
*Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/<br />
*Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html<br />
*Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102<br />
*Add article to Vitamin D and Microbiome pages https://cfsremission.wordpress.com/2016/04/02/vitamin-d-and-the-microbiome/<br />
*Add this dental ME/CFS guide https://twitter.com/TomKindlon/status/715923546778824705?s=09 (maybe to home page section containing patient guides?)<br />
*Make sure this recent update by IiME on their Rituximab research is included on the Rituximab page under Learn more http://www.ukrituximabtrial.org/Rituximab%20news-Mar16%2001.htm<br />
*Add a picture of Rituximab to the Rituximab page<br />
*Add a photo of Ampligen to the page<br />
*Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity<br />
*Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/<br />
*Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/<br />
*Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0<br />
*Add this Norwegian TV segment about Rituximab (and private availability) to Rituximab page https://www.youtube.com/watch?v=MfqJWRhgVx0&feature=youtu.be<br />
*Add this 2011 Klimas talk to her page https://www.youtube.com/watch?v=UMimz3iDk0s<br />
*Make sure this article is on the list of articles about MECFS http://www.huffingtonpost.com/-stephanie-land/chronic-fatigue-syndrome-_1_b_9513498.html<br />
*Add article to Shirley Conran page http://www.dailymail.co.uk/femail/article-3511666/The-one-lesson-ve-learned-life-Author-Shirley-Conran-surviving-ME.html<br />
*Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216<br />
*Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study<br />
*Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641<br />
*Add to SPECT and MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020<br />
*Add new blog post about Karina Hansen to her page http://valerieeliotsmith.com/2016/04/04/karina-hansen-4-timeline-torture-tragedy/<br />
*Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478<br />
*Add article to Lyme page http://www.perthnow.com.au/news/western-australia/lyme-disease-a-ticking-timebomb-that-health-authorities-say-does-not-exist/story-fnhocxo3-1226886911487<br />
*Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562<br />
*Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238<br />
*Add SPECT study https://www.ncbi.nlm.nih.gov/pubmed/1491843<br />
*Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684<br />
*Add photos (pre-illness and post) to Whitney Dafoe's page http://me-pedia.org/wiki/Whitney_Dafoe<br />
*Add this new Marshall-Gradisnik study to all relevant pages https://www.ncbi.nlm.nih.gov/pubmed/27001659<br />
*Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html<br />
*Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57<br />
*Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09<br />
*Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment<br />
*Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/<br />
*Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/<br />
*Add https://twitter.com/TomKindlon/status/680141293863829505?s=09<br />
*Add https://pubpeer.com/publications/22870204<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831<br />
*Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842<br />
*Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf<br />
*Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract<br />
*Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf<br />
*Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1<br />
*Add http://www.meaction.net/2015/12/21/nih-considering-ampligen-and-rituximab-trials/<br />
*Add https://twitter.com/bengoldacre/status/679228319234195456<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/<br />
*Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm<br />
*Add https://cfsremission.wordpress.com/2015/12/19/exercise-alteration-of-the-cfs-microbiome/<br />
*Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe<br />
*Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf<br />
*Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full<br />
*Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/<br />
*Add https://twitter.com/postersandme/status/677469604348870657/photo/1<br />
*Add https://twitter.com/EUROMEALL<br />
*Add http://www.simonwessely.com/Downloads/Publications/CFS/85.pdf<br />
*Add https://www.youtube.com/watch?v=li7zQgN-PxQ&feature=youtu.be<br />
*Add Ampligen http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/ArthritisAdvisoryCommittee/UCM334430.pdf<br />
*Add https://www.youtube.com/watch?v=xMcZ-UTlRmU&feature=youtu.be<br />
*Add http://www.qmul.ac.uk/media/news/items/smd/81841.html<br />
*Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome<br />
*Add https://twitter.com/TomKindlon/status/677173627532402688<br />
*Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx<br />
*Add to LDN page http://scienmag.com/revamped-ldn-site-launched-biggest-patient-initiated-drug-discovery-program-in-history/<br />
*Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/<br />
*Add to POTS page http://hic.sagepub.com/content/2/1/2324709614527812.full<br />
*Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html<br />
*On the home page click on "Immune exhaustion hypothesis" to create the page, and add this article to it (and for extra points, the studies referenced, you may be able to copy & paste from eg the Hornig page) http://simmaronresearch.com/2016/03/are-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-immune-exhaustion-disorders/<br />
*Add this article on three "biomarkers" for the disease to relevant pages http://www.mecfsnsw.org.au/research/three-new-biomarkers-for-mecfs/<br />
*Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/<br />
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract<br />
*Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf<br />
*Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/<br />
*Add this study to the GET page https://www.ncbi.nlm.nih.gov/pubmed/26995250<br />
*Add this interview with Susan Levine to her page https://www.youtube.com/watch?v=Akc5upzbFxs&feature=youtu.be<br />
*Add this Mary Schweitzer post to the NIH study page http://slightlyalive.blogspot.co.uk/2016/03/open-letter-to-dr-sanjay-gupta-on-in.html<br />
*Make sure the IOM report page includes a link to their brief summary: http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf<br />
*Make sure the IACFS name change definition is included http://iacfsme.org/ME-CFS-Primer-Education/Pages/ME-CFS-Name-Change.aspx<br />
*Make sure we have a page (however small/simple) on the Canadian Criteria, that links to the criteria document: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf<br />
*Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm<br />
*Add this Lassesen article to the LDS page under Learn More https://cfsremission.wordpress.com/2016/03/19/review-of-low-dose-naltrexone/<br />
*Pick a country page and make sure there is a flag image on it (use one that's about 200 pixels wide to avoid the need for a thumbnail image, which is currently broken).<br />
*Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.<br />
<br />
==PACE Trial & related==<br />
<br />
*Add https://jcoynester.wordpress.com/the-unfolding-story-of-removal-of-data-from-a-plos-one-article/<br />
*Add http://www.jpsychores.com/article/S0022-3999%2816%2930232-X/abstract<br />
*Add http://www.virology.ws/2016/05/23/an-open-letter-to-plos-one/<br />
*Add to FINE page https://forbetterscience.wordpress.com/2016/05/20/plos-correction-removes-previously-available-anonymised-patient-clinical-trial-data/<br />
*Add FINE consent form http://retractionwatch.com/wp-content/uploads/2016/05/11.4.16-Mitchell-Response-consent-form-version3-MREC-2460904.pdf<br />
*Add http://retractionwatch.com/2016/05/20/plos-editors-discussing-authors-decision-to-remove-chronic-fatigue-syndrome-data/<br />
*Add https://valerieeliotsmith.com/2016/05/16/qmul-v-ic-and-matthees-pace-trial-pt-2-documents-open-justice-and-open-data/<br />
*Add http://www.meaction.net/2016/05/14/racianello-pace-obfuscation-will-continue-until-we-are-all-dead/<br />
*Add http://www.occupycfs.com/2016/05/12/pace-gate/<br />
*Add to Chalder Fatigue Scale page http://evaluatingpace.phoenixrising.me/aps3chalder.html<br />
*Source this chart and consider adding to page https://twitter.com/MECFSquestions/status/730358976429314049<br />
*Add https://jcoynester.wordpress.com/2016/05/09/half-year-passes-without-release-of-plos-one-pace-trial-data/<br />
*Add https://spoonseeker.com/2016/05/08/door-to-freedom-revisited/<br />
*Consider adding more content by Hooper, Margaret Williams, Jane Bryant, One Click, Angela Kennedy<br />
*Add https://valerieeliotsmith.files.wordpress.com/2016/04/010-090216-r2-matthees_main_response.pdf<br />
*Add http://f1000research.com/articles/5-781/v1<br />
*Add https://spoonseeker.com/2016/05/01/closing-the-door-on-freedom/<br />
*Make sure this chart is included under the right paper https://twitter.com/TomKindlon/status/726098825518145536?s=09<br />
*Add https://thepsychologist.bps.org.uk/volume-29/may-2016/our-struggle-between-science-and-pseudoscience<br />
*Add https://ico.org.uk/media/action-weve-taken/decision-notices/2016/1623988/fs50600710.pdf<br />
*Add https://valerieeliotsmith.com/2016/04/28/qmul-v-the-information-commissioner-and-matthees-tribunal-hearing-and-open-justice/<br />
*Add recovery song https://www.youtube.com/watch?v=QbKTBMyZfX0 (to section for the recovery paper)<br />
*Add http://porbeagle.blogspot.co.uk/2015/10/statement-regarding-series-of-articles.html<br />
*Make sure this is included http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html<br />
*Add http://www.meactionuk.org.uk/Hooper-to-Horton-15-April-2016.htm<br />
*Make sure this is included http://www.fom.ac.uk/wp-content/uploads/Hidden-Disabilities-Trudie-Chalder.pdf<br />
*Add https://johnthejack.com/2016/04/18/why-the-dispute-about-pace-trial-data-matters-to-everyone/<br />
*Add https://valerieeliotsmith.com/2016/04/14/qmuls-upcoming-appeal-against-the-information-commissioners-decision-on-release-of-pace-trial-data-20-april-2016/<br />
*Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1<br />
*Add article by a QMUL student critical of the failure to release data http://theprintnews.co.uk/2016/01/scientists-demand-transparency-on-pace-trial/<br />
*Add new Coyne piece to data release section https://jcoynester.wordpress.com/2016/04/07/in-the-standoff-over-release-of-the-pace-plos-one-trial-data-has-the-journal-just-blinked/<br />
*Add new article http://psychcentral.com/news/2016/04/05/debate-over-chronic-fatigue-syndrome-therapy/101259.html<br />
*Add Vink paper, and document any new criticisms he makes, extract any poignant quotes http://www.sciforschenonline.org/journals/neurology/JNNB-2-124.php<br />
*Add latest Schneider piece (and to Lancet page) https://forbetterscience.wordpress.com/2016/04/05/does-the-lancet-care-about-patients/<br />
*Make sure this RNase L study is included. https://www.ncbi.nlm.nih.gov/pubmed/8148461<br />
*Add Lucibee article on PACE and Chalder fatigue scale (she was a sub-editor at Lancet). Also find her previous article on PACE and add that. Also add to Chalder page, and possibly also a new page on the Chalder Fatigue Scale itself to explain it. https://lucibee.wordpress.com/2016/04/02/fatigued-by-scales-as-outcome-measures/ Here's a link to the Chalder Fatigue Scale http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf Also study https://www.ncbi.nlm.nih.gov/pubmed/8463991<br />
*Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm<br />
*Not sure where but this oddity (absurd reasoning for stats errors) should be documented at least on Wessely and Chalder pages. https://twitter.com/EricaVerrillo/status/716387401451618304?s=09 <i>[partially done - needs review - see Biopsychosocial model]</i><br />
*Add latest video (with Q&A) to PACE page and Tuller page. On the video Tuller states he was involved in Act Up, please add that fact to his page. https://www.youtube.com/watch?v=1fS6Gzc52VI<br />
*add quotes from recent Coyne and Tuller articles (see 'completed' list)<br />
*copy Coyne articles from PACE Trial and Cochrane page, to Coyne page<br />
*copy Tuller articles from PACE Trial to Tuller page<br />
*Add http://andrewgelman.com/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/<br />
*Add http://andrewgelman.com/2015/12/25/more-on-the-pace-chronic-disease-syndrome-study-scandal/ (AND OTHERS!). Pick out quotes. <br />
*Add https://www.facebook.com/notes/peter-kemp/the-pace-trial-spinning-the-results-to-the-media/1206334246049385<br />
*Add http://steamtraen.blogspot.co.uk/2015/12/my-current-position-on-pace-trial.html?showComment=1450133140176#c141970579755405430<br />
*Add http://evaluatingpace.phoenixrising.me/PACE_Protocol.pdf<br />
*Add http://blogs.bmj.com/bmj/2015/12/16/richard-smith-qmul-and-kings-college-should-release-data-from-the-pace-trial/<br />
*Add http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/<br />
*Add https://valerieeliotsmith.files.wordpress.com/2015/12/foia-request-to-qmul-re-no-of-pace-requests.pdf<br />
*Add http://www.statnews.com/2015/12/23/sharing-data-science/<br />
*Add http://forums.phoenixrising.me/index.php?threads/peter-white-complaining-about-pace-trial-foi-request-and-calling-for-changes-to-foi-laws.42027/<br />
*Add http://niceguidelines.blogspot.co.uk/2015/12/principal-investigators-of-pace-and.html<br />
<br />
=Suggestions - High Priority=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Replace this page with a category and ensure all sub-pages are categorised into a useful structure http://me-pedia.org/wiki/Research_initiatives_Europe<br />
*Replace this page with a category http://me-pedia.org/wiki/Clinical_doctors_worldwide categorise all pages within it<br />
*Replace this page with a category http://me-pedia.org/wiki/Patient_Groups_Worldwide<br />
*Make sure this study on relative quality of life is documented and cited, especially the chart http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421<br />
*Merge the two history pages together: http://me-pedia.org/wiki/History_of_myalgic_encephalomyelitis_and_chronic_fatigue_syndrome and http://me-pedia.org/wiki/Important_events_timeline <br />
*Add the Stats.org editorial & 7,000 word criticism to the PACE page :<br />
**(''COMPLETED'') Make sure both articles are cited<br />
**{''COMPLETED'') Add select quotes from either/both to the Quotations section, eg "The PACE design changed so significantly as to leave many wondering whether there is value in the study itself."<br />
**(''COMPLETED'') They include a list of media articles from 2011 following PACE publication, ALL of these need adding to the media coverage section, as example of the poor quality of the journalism<br />
** Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already<br />
**(''IN PROGRESS'') Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264<br />
*Add Peter White letter to the Wall St Journal. http://www.wsj.com/articles/public-release-of-cfs-data-is-limited-by-privacy-rules-1458846440 (full text here http://forums.phoenixrising.me/index.php?threads/peter-white-writes-to-wall-street-journal.43750/)<br />
* Add categories for all main page entries (in preparation for move to use category listing extension)<br />
** please can someone post an accurate list of the category names --[[User:Suelala|Suelala]] ([[User talk:Suelala|talk]]) 22:53, 12 March 2016 (PST)<br />
<br />
* Add a [[Wikipedia:Portal:Contents/Portals|portal]] on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here<br />
<br />
=Suggestions=<br />
'''When a task is complete move it to the COMPLETED section at the bottom of the page'''<br />
<br />
*Make sure this study is linked to from the HHV6 page https://twitter.com/EricaVerrillo/status/715599637021859840?s=09<br />
<br />
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Possibly a new page listing TV segments, or a page for each segment, linking to all those featured?<br />
*Add this study on endothelial function by Julia Newton https://www.ncbi.nlm.nih.gov/pubmed/22078396<br />
*Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation<br />
*Pick a member of the IOM report committee and ensure we have a page on who they are<br />
*Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.<br />
*Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.<br />
*Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/<br />
<br />
==Implement acronyms as a category==<br />
http://me-pedia.org/wiki/List_of_acronyms<br />
<br />
==Historical articles==<br />
Add these articles: <br />
<br />
*http://august-1914.com/articles/christophers.pdf<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf<br />
*http://jama.jamanetwork.com/article.aspx?articleid=311962<br />
*http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/<br />
*https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false<br />
*https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false<br />
*https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false<br />
<br />
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/<br />
<br />
==Stem cell treatments==<br />
<br />
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. [[User:Brettz9|Brettz9]] ([[User talk:Brettz9|talk]]) 11:37, 19 January 2016 (PST)<br />
<br />
==Treatments==<br />
<br />
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the [[List of treatments]] page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 09:24, 11 December 2015 (PST)<br />
<br />
==Basic biochemistry==<br />
<br />
* Add under "Further reading" to all [[Vitamin]] and [[Mineral]] pages the appropriate Linus Pauling Institute page http://lpi.oregonstate.edu/mic/vitamins http://lpi.oregonstate.edu/mic/minerals Also [[choline]] http://lpi.oregonstate.edu/mic/other-nutrients/choline and [[essential fatty acid]]s http://lpi.oregonstate.edu/mic/other-nutrients/essential-fatty-acids Cross reference with CFS research --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 11:47, 10 December 2015 (PST)<br />
<br />
==Infectious disease==<br />
<br />
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the [[Herpesvirus]] page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both [[CFS]] and other diseases, especially those involving [[B cell]]s and the possible infection of nervous tissue. --[[User:JenB|JenB]] ([[User talk:JenB|talk]]) 08:38, 16 March 2016 (PDT)<br />
<br />
=Completed=<br />
'''When a task is complete move it HERE'''<br />
<br />
*Add this article about preliminary findings from Davis work to pages for Davis, Mitochondria, End ME/CFS Project, and Naviaux pages http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/page-2<br />
*Add this article to Learn More section of NIH study page http://www.medpagetoday.com/Neurology/GeneralNeurology/56772<br />
*Add this interview with Jennifer Brea to her page in "Talks & interviews" section https://secure-ec.libsyn.com/p/1/c/3/1c390d4707a99658/WMCLive_Episode159.mp3?d13a76d516d9dec20c3d276ce028ed5089ab1ce3dae902ea1d06cd8f33d6cd5b120e&c_id=11198959<br />
*Make sure the Fukuda/CDC criteria page includes a link to the actual criteria definition: http://www.cfids-me.org/cdcdefine.html<br />
*Make sure Alan Light's gene expression chart that so strikingly shows the effects of exercise on patients is included in MEpedia.(Pace Trial)<br />
*Add educational video on central nervous system https://www.youtube.com/watch?v=q8NtmDrb_qo (Nervous System)<br />
*Add educational video on autonomic nervous system https://www.youtube.com/watch?v=71pCilo8k4M (and POTS & OI pages?)<br />
*Add educational video on parasympathetic nervous system https://www.youtube.com/watch?v=qqU-VjqjczE (Nervous System)<br />
*Add educational video on sympathetic nervous system https://www.youtube.com/watch?v=0IDgBlCHVsA (Nervous System)<br />
*Look over the original study and add new information to [[Epstein-Barr virus]] page http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/<br />
*Add https://batemanhornecenter.org/link-between-gut-microbiome-and-pem/<br />
*Add this article on PEM to the PEM page http://me-cfs.se/blogg/suggestion-to-replace-pem-by-par/<br />
*Add this study to PEM page, Zinn pages, Jason page, maybe others https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761639/#!po=2.51799<br />
*Add this study to page on cognitive symptoms https://www.ncbi.nlm.nih.gov/pubmed/27032787<br />
<br />
==PACE Trial & related==<br />
*Add PACE protocol http://www.meactionuk.org.uk/FULL-Protocol-SEARCHABLE-version.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter1.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter2.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter3.pdf<br />
*Add http://www.wolfson.qmul.ac.uk/images/pdfs/participantsnewsletter4.pdf<br />
*Add http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00114-5/fulltext<br />
*Check this Lancet editorial from 2011 is referred to on the PACE trial page http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60696-X/fulltext<br />
*Add James Coyne's Belfast talk video to his page and the PACE page https://www.youtube.com/watch?v=8jHRNxMOAjA&feature=youtu.be<br />
*Add https://jcoynester.wordpress.com/2016/03/26/we-dont-share-data-why-peter-whites-wall-street-journal-letter-can-be-ignored/ to PACE page on data release<br />
*Add https://jcoynester.wordpress.com/2016/03/20/why-the-cochrane-collaboration-needs-to-clean-up-conflicts-of-interest/ article criticising Cochrane to his page, PACE page & Cochrane page <br />
*Add https://jcoynester.wordpress.com/2016/01/05/undisclosed-conflicts-of-interest-in-a-systematic-review-protocol-of-interventions-for-medically-unexplained-symptoms/<br />
*Add https://jcoynester.wordpress.com/2016/01/02/glimpses-into-the-assault-on-data-sharing/<br />
*Add https://jcoynester.wordpress.com/2015/12/22/recognizing-when-protecting-patient-privacy-is-mere-excuse-for-not-sharing-data/<br />
*Add https://jcoynester.wordpress.com/2015/12/18/kings-college-london-stalls-some-more-reiterating-refusal-to-release-the-pace-trial-data/<br />
*Add http://www.virology.ws/2016/01/04/trial-by-error-continued-questions-for-dr-white-and-his-pace-colleagues/<br />
*Add http://www.virology.ws/2015/12/17/a-request-for-data-from-the-pace-trial/<br />
*Add http://www.virology.ws/2015/12/22/revisiting-the-plos-one-economics-analysis-of-pace/<br />
*Add statements about Aus PACE data demands<br />
**http://sacfs.asn.au/news/2016/04/04_05_letter_from_mecfs_australia_sa_inc_to_the_queen_mary_university_london.htm<br />
**http://forums.phoenixrising.me/index.php?threads/tell-our-charities-qmul-must-release-pace-data.42767/page-8#post-711379<br />
<br />
<br />
[[Category:User to-dos]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Tom_Kindlon&diff=9325Tom Kindlon2016-05-25T02:45:39Z<p>Ben.hsuborger:pinterest</p>
<hr />
<div>Tom Kindlon is an Irish ME/CFS patient known for his extensive analysis, publications and correspondence with ME/CFS researchers, particularly in relation to the [[PACE trial]]. Tom is Assistant Chairperson of the [[Irish ME/CFS Association]]. He was profiled in an Irish publication in 2015.<ref>[http://www.independent.ie/life/health-wellbeing/health-features/no-one-chooses-to-have-me-everything-changed-when-i-became-ill-34153140.html "No one chooses to have ME - everything changed when I became ill"]</ref><br />
<br />
Tom published a paper on the reporting of harms associated with ME/CFS graded-exercise therapy.<ref>[http://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx "Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"]</ref><br />
<br />
Tom's extensive body of work is on [http://www.researchgate.net/profile/Tom_Kindlon2/publications ResearchGate] and [http://www.ncbi.nlm.nih.gov/pubmed/?term=kindlon+t PubMed]. His comments are [http://www.ncbi.nlm.nih.gov/myncbi/tom.kindlon.1/comments/ listed here on PubMed Commons].<br />
<br />
Tom is [https://twitter.com/TomKindlon on Twitter].<br />
<br />
Tom is [https://www.pinterest.com/tomkindlon on Pinterest].<br />
<br />
<br />
==References==<br />
<References/></div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5540Mark Hallett2016-02-22T03:51:25Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
* 2014, [https://vimeo.com/107956781 VIDEO: Free Will: What Can Physiology Explain?]<br />
* [http://bfresp.sfn.org/about-neuroscience/ask-an-expert/articles/2012/transmagnetic-stimulation/ Q&A: What is transcranial magnetic stimulation, and what is it used for?]<br />
* [http://clbb.mgh.harvard.edu/wp-content/uploads/Hallett-FreeWillResponsibility-Chapter-formatted.pdf ARTICLE: What does the brain know and when does it know it]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett%5BAuthor%5B PubMed - Mark Hallet]<br />
*[https://neuroscience.nih.gov/ninds/ClinicalPrograms/ClinicalFellowshipProgram/MovementDisorders.aspx Hallet Lab Page (Movement Disorders)]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5539Mark Hallett2016-02-22T03:50:55Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
* 2014, [https://vimeo.com/107956781 VIDEO: Free Will: What Can Physiology Explain?]<br />
* [http://bfresp.sfn.org/about-neuroscience/ask-an-expert/articles/2012/transmagnetic-stimulation/ Q&A: What is transcranial magnetic stimulation, and what is it used for?]<br />
* [http://clbb.mgh.harvard.edu/wp-content/uploads/Hallett-FreeWillResponsibility-Chapter-formatted.pdf What does the brain know and when does it know it]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett%5BAuthor%5B PubMed - Mark Hallet]<br />
*[https://neuroscience.nih.gov/ninds/ClinicalPrograms/ClinicalFellowshipProgram/MovementDisorders.aspx Hallet Lab Page (Movement Disorders)]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5535Mark Hallett2016-02-22T03:42:42Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
* 2014, [https://vimeo.com/107956781 VIDEO: Free Will: What Can Physiology Explain?]<br />
* [http://bfresp.sfn.org/about-neuroscience/ask-an-expert/articles/2012/transmagnetic-stimulation/ Q&A: What is transcranial magnetic stimulation, and what is it used for?]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett%5BAuthor%5B PubMed - Mark Hallet]<br />
*[https://neuroscience.nih.gov/ninds/ClinicalPrograms/ClinicalFellowshipProgram/MovementDisorders.aspx Hallet Lab Page (Movement Disorders)]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5534Mark Hallett2016-02-22T03:42:00Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
* [https://vimeo.com/107956781 VIDEO: Free Will: What Can Physiology Explain?]<br />
* [http://bfresp.sfn.org/about-neuroscience/ask-an-expert/articles/2012/transmagnetic-stimulation/ Q&A: What is transcranial magnetic stimulation, and what is it used for?]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett%5BAuthor%5B PubMed - Mark Hallet]<br />
*[https://neuroscience.nih.gov/ninds/ClinicalPrograms/ClinicalFellowshipProgram/MovementDisorders.aspx Hallet Lab Page (Movement Disorders)]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5528Mark Hallett2016-02-22T03:20:15Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
* [http://bfresp.sfn.org/about-neuroscience/ask-an-expert/articles/2012/transmagnetic-stimulation/ Q&A: What is transcranial magnetic stimulation, and what is it used for?]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett%5BAuthor%5B PubMed - Mark Hallet]<br />
*[https://neuroscience.nih.gov/ninds/ClinicalPrograms/ClinicalFellowshipProgram/MovementDisorders.aspx Hallet Lab Page (Movement Disorders)]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5525Mark Hallett2016-02-22T03:19:31Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
* [http://bfresp.sfn.org/about-neuroscience/ask-an-expert/articles/2012/transmagnetic-stimulation/ What is transcranial magnetic stimulation, and what is it used for?]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett%5BAuthor%5B PubMed - Mark Hallet]<br />
*[https://neuroscience.nih.gov/ninds/ClinicalPrograms/ClinicalFellowshipProgram/MovementDisorders.aspx Hallet Lab Page (Movement Disorders)]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5522Mark Hallett2016-02-22T03:09:57Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett%5BAuthor%5B PubMed - Mark Hallet]<br />
*[https://neuroscience.nih.gov/ninds/ClinicalPrograms/ClinicalFellowshipProgram/MovementDisorders.aspx Hallet Lab Page (Movement Disorders)]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5521Mark Hallett2016-02-22T03:08:45Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett%5BAuthor%5B PubMed - Mark Hallet]<br />
*[https://neuroscience.nih.gov/ninds/ClinicalPrograms/ClinicalFellowshipProgram/MovementDisorders.aspx Hallet Lab Page]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5520Mark Hallett2016-02-22T03:07:24Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett[Author] PubMed - Mark Hallet]<br />
*[https://neuroscience.nih.gov/ninds/ClinicalPrograms/ClinicalFellowshipProgram/MovementDisorders.aspx Hallet Lab Page]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5519Mark Hallett2016-02-22T03:06:55Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett[Author] PubMed - Mark Hallet]<br />
*[https://neuroscience.nih.gov/ninds/ClinicalPrograms/ClinicalFellowshipProgram/MovementDisorders.aspx - Hallet Lab Page]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5518Mark Hallett2016-02-22T03:00:57Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett[Author] PubMed - Mark Hallet]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5517Mark Hallett2016-02-22T03:00:10Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett[Author] PubMed - Mark Hallet<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5516Mark Hallett2016-02-22T02:58:41Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Mark+Hallett[Author] PubMed - Mark Hallet]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5515Mark Hallett2016-02-22T02:56:00Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Hallett%20M[Author]&cauthor=true&cauthor_uid=26525918 PubMed - Mark Hallet]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5514Mark Hallett2016-02-22T02:55:34Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*[(http://www.ncbi.nlm.nih.gov/pubmed/?term=Hallett%20M[Author]&cauthor=true&cauthor_uid=26525918) PubMed - Mark Hallet]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5513Mark Hallett2016-02-22T02:53:43Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*['http://www.ncbi.nlm.nih.gov/pubmed/?term=Hallett%20M[Author]&cauthor=true&cauthor_uid=26525918' PubMed - Mark Hallet]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5512Mark Hallett2016-02-22T02:49:32Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*[http://www.ncbi.nlm.nih.gov/pubmed/?term=Hallett%20M[Author]&cauthor=true&cauthor_uid=26525918 PubMed - Mark Hallet]<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Mark_Hallett&diff=5508Mark Hallett2016-02-22T02:41:03Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor '''Mark Hallett''' is a researcher at the [[National Institutes of Health]] in the United States.<br />
<br />
==Notable studies==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
==Talks & interviews==<br />
* 2015, [https://www.ninds.nih.gov/jobs_and_training/summer/2015_speakers/hallett_bio.htm VIDEO: Pursuing What the Brain Does]<br />
<br />
==Online presence==<br />
*PubMed<br />
*Twitter<br />
*Facebook<br />
*Website<br />
*YouTube<br />
<br />
==Learn more==<br />
*Wikipedia<br />
*[https://neuroscience.nih.gov/ninds/Faculty/Profile/mark-hallett.aspx NIH: Neuroscience - Mark Hallett]<br />
*[http://irp.nih.gov/pi/mark-hallett NIH: Intramural Research Program - Mark Hallett]<br />
<br />
==See also==<br />
<br />
==References==<br />
<references/><br />
<br />
[[Category:Researchers]]</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Ana_Acevedo&diff=5361Ana Acevedo2016-02-21T03:12:19Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor Ana T. Acevedo is a senior staff physiatrist in [http://http://clinicalcenter.nih.gov/rmd/pmr/index.html Rehabilitation Medicine] at the NIH Clinical Center, and is a Diplomate of the American Board of Physical Medicine and Rehabilitation.<ref>[http://clinicalcenter.nih.gov/rmd/pmr/physmedstaff.html Physical Medicine and Rehabilitation Staff]</ref> <br />
<br />
== Notable studies ==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
== Talks & interviews ==<br />
*2010, [http://videocast.nih.gov/summary.asp?Live=9468&bhcp=1 VIDEO: Update on Myofascial Pain Syndrome: Translating the Evidence to Improve Outcomes through Physical Medicine and Rehabilitation], Jay Shah, M.D. & Ana T. Acevedo, M.D., Clinical Center, NIH<br />
<br />
== Online presence ==<br />
<br />
<br />
== Learn more ==<br />
<br />
<br />
== See also ==<br />
<br />
<br />
== References ==<br />
<references/></div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Ana_Acevedo&diff=5360Ana Acevedo2016-02-21T03:11:32Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor Ana T. Acevedo is a senior staff physiatrist in [http://http://clinicalcenter.nih.gov/rmd/pmr/index.html Rehabilitation Medicine] at the NIH Clinical Center, and is a Diplomate of the American Board of Physical Medicine and Rehabilitation.<ref>[http://clinicalcenter.nih.gov/rmd/pmr/physmedstaff.html Physical Medicine and Rehabilitation Staff]</ref> <br />
<br />
== Notable studies ==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
== Talks & interviews ==<br />
*2010, [http://videocast.nih.gov/summary.asp?Live=9468&bhcp=1 VIDEO: Update on Myofascial Pain Syndrome: Translating the Evidence to Improve Outcomes through Physical Medicine and Rehabilitation], Jay Shah, M.D. & Ana T. Acevedo, M.D., Clinical Center, NIH<br />
<br />
== Online presence ==<br />
<br />
<br />
== Learn more ==<br />
<br />
<br />
== See also ==<br />
<br />
<br />
== References ==</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Ana_Acevedo&diff=5359Ana Acevedo2016-02-21T03:11:04Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor Ana T. Acevedo is a senior staff physiatrist in [http://http://clinicalcenter.nih.gov/rmd/pmr/index.html Rehabilitation Medicine] at the NIH Clinical Center, and is a Diplomate of the American Board of Physical Medicine and Rehabilitation.<ref>[http://clinicalcenter.nih.gov/rmd/pmr/physmedstaff.html Physical Medicine and Rehabilitation Staff]</ref> <br />
<br />
== Notable studies ==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
== Talks & interviews ==<br />
*2010, [http://videocast.nih.gov/summary.asp?Live=9468&bhcp=1 VIDEO: Update on Myofascial Pain Syndrome: Translating the Evidence to Improve Outcomes through Physical Medicine and Rehabilitation], Jay Shah, M.D. & Ana T. Acevedo, M.D., Clinical Center, NIH<br />
<br />
== Online presence ==<br />
<br />
<br />
== Learn more ==<br />
<br />
<br />
== See also ==<br />
<br />
<br />
== References ==<br />
http://clinicalcenter.nih.gov/rmd/pmr/physmedstaff.html</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Ana_Acevedo&diff=5358Ana Acevedo2016-02-21T03:03:31Z<p>Ben.hsuborger:</p>
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<div>Doctor Ana T. Acevedo is a senior staff physiatrist in [http://http://clinicalcenter.nih.gov/rmd/pmr/index.html Rehabilitation Medicine] at the NIH Clinical Center, and is a Diplomate of the American Board of Physical Medicine and Rehabilitation. <br />
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== Notable studies ==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
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== Talks & interviews ==<br />
*2010, [http://videocast.nih.gov/summary.asp?Live=9468&bhcp=1 VIDEO: Update on Myofascial Pain Syndrome: Translating the Evidence to Improve Outcomes through Physical Medicine and Rehabilitation], Jay Shah, M.D. & Ana T. Acevedo, M.D., Clinical Center, NIH<br />
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== Online presence ==<br />
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== Learn more ==<br />
<br />
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== See also ==<br />
<br />
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== References ==<br />
http://clinicalcenter.nih.gov/rmd/pmr/physmedstaff.html</div>Ben.hsuborgerhttps://me-pedia.org/w/index.php?title=Ana_Acevedo&diff=5357Ana Acevedo2016-02-21T03:00:32Z<p>Ben.hsuborger:</p>
<hr />
<div>Doctor Ana T. Acevedo is a senior staff physiatrist in [http://http://clinicalcenter.nih.gov/rmd/pmr/index.html Rehabilitation Medicine] at the NIH Clinical Center, and is a Diplomate of the American Board of Physical Medicine and Rehabilitation. <br />
<br />
== Notable studies ==<br />
*[[NIH Post-Infectious ME/CFS Study]]<br />
<br />
== Talks & interviews ==<br />
*[http://videocast.nih.gov/summary.asp?Live=9468&bhcp=1 Update on Myofascial Pain Syndrome: Translating the Evidence to Improve Outcomes through Physical Medicine and Rehabilitation], Jay Shah, M.D. & Ana T. Acevedo, M.D., Clinical Center, NIH<br />
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== Online presence ==<br />
<br />
<br />
== Learn more ==<br />
<br />
<br />
== See also ==<br />
<br />
<br />
== References ==<br />
http://clinicalcenter.nih.gov/rmd/pmr/physmedstaff.html</div>Ben.hsuborger