MEpedia - User contributions [en]

ME/CFS Research Foundation

2024-06-03T08:43:19Z

Anne B:categories added

[[File:Mecfs-logo mit kleinem Rand.png|thumb]]
ME/CFS Research Foundation is a non-profit organization founded in 2022.

The German volunteering organization is committed to more biomedical [[ME/CFS]] research (incl. [[Post-COVID-19 illness|post-COVID]]) with a focus on diagnostics and therapy research. The foundation's team of patients, relatives and committed supporters also promotes medical awareness and care for patients. A scientific advisory board of international ME/CFS experts supports the work, advises on the funding priorities for ME/CFS research and strengthens the scientific competence of the foundation.

===== Members of the scientific advisory board =====

* Dr. Jeroen den Dunnen (Amsterdam UMC, The Netherlands - [https://www.amsterdamumc.org/en/research/researchers/jeroen-den-dunnen.htm Center for Experimental and Molecular Medicine (CEMM)] / Immunologist and Principal Investigator)
* Dr. [[Øystein Fluge]] (University of Bergen, Norway - Haukeland University Hospital / Senior Consultant at Dept. of Oncology and Medical Physics)
* [[Eliana Lacerda|Prof. Eliana Lacerda]] (London School of Hygiene & Tropical Medicine, UK - Clinical Research Department / Clinical Assistant Professor, [[CureME|CureME Research Group]] – Research Leader)
* Prof. [[Olav Mella]] (University of Bergen, Norway - Haukeland University Hospital / ME/CFS research group at the Department of Oncology and Medical Physics)
* Prof. [[Nuno Sepúlveda]] (Warsaw University of Technology, Poland - Faculty of Mathematics and Information Science / Visiting Professor, Head of Immune-Stats Group)
* Prof. Karl Johan Tronstad (University of Bergen, Norway - Department of Biomedicine, Tronstad Lab / Professor)
* Dr. Francisco Westermeier (FH Joanneum University of Applied Sciences, Graz, Austria - Institute of Biomedical Science, Department of Health Studies / Senior Lecturer)
* Prof. Pawel Zalewski (Nicolaus Copernicus University Toruń, Poland - Faculty of Health Sciences / Department of Exercise Physiology and Functional Anatomy / Associate Professor)

=== Research Support ===
The ME/CFS Research Foundation promotes biomedical research with a focus on basic and clinical research at universities in Germany (funding for other EU countries will follow later). The foundations activities include:

* '''Promotion of networking and exchange''', e.g. in the form of the [https://mecfs-research.org/en/conference2023/ international ME/CFS conference] (Berlin, 2023). Further events are in preparation.
* '''Making research transparent''', e.g. with the ME/CFS Research Register (for experts and interested parties), the [https://mecfs-research.org/en/researchupdate/ ME/CFS Research Update] (for patients, relatives and the public) or the [https://mecfs-research.org/en/symposium2023/ ME/CFS Symposium] (Berlin, 2023).
* '''Promotion of research projects''': support of individual researchers, the establishment of basic ME/CFS research structures at universities, or doctoral scholarships (see the [https://mecfs-research.org/en/fundingstrategy/ research funding strategy] for more details). Example projects:
** '''''cell morphology, cell deformability and microclots in ME/CFS'' at the Institute of Medical Immunology at the Charité – University Medicine Berlin'''<ref>{{Cite web|url=https://cfc.charite.de/en/other_research/cell_deformability_and_microclots/|title=Projekt cell Morphology, Deformability and Microclots in ME/CFS: Charité Fatigue Centrum - Charité – Universitätsmedizin Berlin|website=cfc.charite.de|access-date=2024-05-29}}</ref>
** '''''Post-COVID Kids Bavaria 2.0'' at the Klinikum rechts der Isar of the Technical University of Munich (MRI TUM)'''<ref>{{Cite web|url=https://mecfs-research.org/en/researchfunding-munich/|title=ME/CFS Research Register|website=mrr.mecfsresearch.org|access-date=2024-05-29}}</ref>

=== Projects ===
[https://mrr.mecfsresearch.org/ ME/CFS Research Register]: This register provides an overview of medical research on ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome). It contains lists and detailed descriptions of research projects, working groups, publications, and scientific events. The register also links to people (researchers and clinicians), organisations, and research networks connected to ME/CFS research. Additionally, research areas and research types of past and ongoing research are linked to research projects, people and other elements of the register.

The scope of the ME/CFS Research Register (beta) currently includes research conducted in Germany and Austria. All content is provided in English. More countries will be added in the future, depending on our resources.

=== Online presence ===

* [https://mecfs-research.org/en/ Website]
* [https://www.facebook.com/photo?fbid=248008518293675&set=a.104260536001808 Facebook]
* [https://x.com/MECFSResearch/status/1730185687733878834?s=20 X/Twitter]
* [https://www.instagram.com/p/C0RLRUeo1EL/?utm_source=ig_web_copy_link&igshid=MzRlODBiNWFlZA%3D%3D&img_index=1 Instagram]
* [https://www.linkedin.com/feed/update/urn:li:activity:7135951430829363201 LinkedIn]

=== References ===
<references />
[[Category:Patient groups]]
[[Category:German patient groups]]

ME/CFS Research Foundation

2024-06-03T08:31:32Z

Anne B:englischsprachige Referenzen eingefügt + Logo geändert

File:Mecfs-logo mit kleinem Rand.png

2024-06-03T08:22:19Z

Anne B:

neues Logo

Category:German patient groups

2024-05-29T10:30:35Z

Anne B:removed ME/CFS Research Foundation

This category is for [[Germany|German]] patient groups for ME/CFS.

==Please create pages for==
<div style="column-count:1">

*
</div>
(remove any blue links from this section)

==Please expand these stub pages==
{{StubPagesInCategory|{{PAGENAME}}|mode=inline}}

[[Category:Patient groups by country]]
[[Category:Germany]]

ME/CFS Research Foundation

2024-05-29T10:22:15Z

Anne B:logo added

[[File:Mecfs-logo.png|thumb]]
ME/CFS Research Foundation is a non-profit organization founded in 2022.

The German volunteering organization is committed to more biomedical [[ME/CFS]] research (incl. [[Post-COVID-19 illness|post-COVID]]) with a focus on diagnostics and therapy research. The foundation's team of patients, relatives and committed supporters also promotes medical awareness and care for patients. A scientific advisory board of international ME/CFS experts supports the work, advises on the funding priorities for ME/CFS research and strengthens the scientific competence of the foundation.

===== Members of the scientific advisory board =====

* Dr. Jeroen den Dunnen (Amsterdam UMC, The Netherlands - [https://www.amsterdamumc.org/en/research/researchers/jeroen-den-dunnen.htm Center for Experimental and Molecular Medicine (CEMM)] / Immunologist and Principal Investigator)
* Dr. [[Øystein Fluge]] (University of Bergen, Norway - Haukeland University Hospital / Senior Consultant at Dept. of Oncology and Medical Physics)
* [[Eliana Lacerda|Prof. Eliana Lacerda]] (London School of Hygiene & Tropical Medicine, UK - Clinical Research Department / Clinical Assistant Professor, [[CureME|CureME Research Group]] – Research Leader)
* Prof. [[Olav Mella]] (University of Bergen, Norway - Haukeland University Hospital / ME/CFS research group at the Department of Oncology and Medical Physics)
* Prof. [[Nuno Sepúlveda]] (Warsaw University of Technology, Poland - Faculty of Mathematics and Information Science / Visiting Professor, Head of Immune-Stats Group)
* Prof. Karl Johan Tronstad (University of Bergen, Norway - Department of Biomedicine, Tronstad Lab / Professor)
* Dr. Francisco Westermeier (FH Joanneum University of Applied Sciences, Graz, Austria - Institute of Biomedical Science, Department of Health Studies / Senior Lecturer)
* Prof. Pawel Zalewski (Nicolaus Copernicus University Toruń, Poland - Faculty of Health Sciences / Department of Exercise Physiology and Functional Anatomy / Associate Professor)

=== Research Support ===
The ME/CFS Research Foundation promotes biomedical research with a focus on basic and clinical research at universities in Germany (funding for other EU countries will follow later). The foundations activities include:

* '''Promotion of networking and exchange''', e.g. in the form of the [https://mecfs-research.org/en/conference2023/ international ME/CFS conference] (Berlin, 2023). Further events are in preparation.
* '''Making research transparent''', e.g. with the ME/CFS Research Register (for experts and interested parties), the [https://mecfs-research.org/en/researchupdate/ ME/CFS Research Update] (for patients, relatives and the public) or the [https://mecfs-research.org/en/symposium2023/ ME/CFS Symposium] (Berlin, 2023).
* '''Promotion of research projects''': support of individual researchers, the establishment of basic ME/CFS research structures at universities, or doctoral scholarships (see the [https://mecfs-research.org/en/fundingstrategy/ research funding strategy] for more details). Example projects:
** '''''cell morphology, cell deformability and microclots in ME/CFS'' at the Institute of Medical Immunology at the Charité – University Medicine Berlin'''<ref>{{Cite web|url=https://cfc.charite.de/weitere_forschung/zellverformbarkeit_und_mikrogerinnsel/|title=Zellverformbarkeit und Mikrogerinnsel: Charité Fatigue Centrum - Charité – Universitätsmedizin Berlin|website=cfc.charite.de|access-date=2024-05-29}}</ref>
** '''''Post-COVID Kids Bavaria 2.0'' at the Klinikum rechts der Isar of the Technical University of Munich (MRI TUM)'''<ref>{{Cite web|url=https://mrr.mecfsresearch.org/en/projects/Y042vwIlQNm1YDoPLKm-Fg|title=ME/CFS Research Register|website=mrr.mecfsresearch.org|access-date=2024-05-29}}</ref>

=== Projects ===
[https://mrr.mecfsresearch.org/ ME/CFS Research Register]: This register provides an overview of medical research on ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome). It contains lists and detailed descriptions of research projects, working groups, publications, and scientific events. The register also links to people (researchers and clinicians), organisations, and research networks connected to ME/CFS research. Additionally, research areas and research types of past and ongoing research are linked to research projects, people and other elements of the register.

The scope of the ME/CFS Research Register (beta) currently includes research conducted in Germany and Austria. All content is provided in English. More countries will be added in the future, depending on our resources.

=== Online presence ===

* [https://mecfs-research.org/en/ Website]
* [https://www.facebook.com/photo?fbid=248008518293675&set=a.104260536001808 Facebook]
* [https://x.com/MECFSResearch/status/1730185687733878834?s=20 X/Twitter]
* [https://www.instagram.com/p/C0RLRUeo1EL/?utm_source=ig_web_copy_link&igshid=MzRlODBiNWFlZA%3D%3D&img_index=1 Instagram]
* [https://www.linkedin.com/feed/update/urn:li:activity:7135951430829363201 LinkedIn]

=== References ===
<references />

File:Mecfs-logo.png

2024-05-29T10:21:52Z

Anne B:

Logo

ME/CFS Research Foundation

2024-05-29T10:17:46Z

Anne B:text added

ME/CFS Research Foundation is a non-profit organization founded in 2022.

The German volunteering organization is committed to more biomedical [[ME/CFS]] research (incl. [[Post-COVID-19 illness|post-COVID]]) with a focus on diagnostics and therapy research. The foundation's team of patients, relatives and committed supporters also promotes medical awareness and care for patients. A scientific advisory board of international ME/CFS experts supports the work, advises on the funding priorities for ME/CFS research and strengthens the scientific competence of the foundation.

===== Members of the scientific advisory board =====

* Dr. Jeroen den Dunnen (Amsterdam UMC, The Netherlands - [https://www.amsterdamumc.org/en/research/researchers/jeroen-den-dunnen.htm Center for Experimental and Molecular Medicine (CEMM)] / Immunologist and Principal Investigator)
* Dr. [[Øystein Fluge]] (University of Bergen, Norway - Haukeland University Hospital / Senior Consultant at Dept. of Oncology and Medical Physics)
* [[Eliana Lacerda|Prof. Eliana Lacerda]] (London School of Hygiene & Tropical Medicine, UK - Clinical Research Department / Clinical Assistant Professor, [[CureME|CureME Research Group]] – Research Leader)
* Prof. [[Olav Mella]] (University of Bergen, Norway - Haukeland University Hospital / ME/CFS research group at the Department of Oncology and Medical Physics)
* Prof. [[Nuno Sepúlveda]] (Warsaw University of Technology, Poland - Faculty of Mathematics and Information Science / Visiting Professor, Head of Immune-Stats Group)
* Prof. Karl Johan Tronstad (University of Bergen, Norway - Department of Biomedicine, Tronstad Lab / Professor)
* Dr. Francisco Westermeier (FH Joanneum University of Applied Sciences, Graz, Austria - Institute of Biomedical Science, Department of Health Studies / Senior Lecturer)
* Prof. Pawel Zalewski (Nicolaus Copernicus University Toruń, Poland - Faculty of Health Sciences / Department of Exercise Physiology and Functional Anatomy / Associate Professor)

=== Research Support ===
The ME/CFS Research Foundation promotes biomedical research with a focus on basic and clinical research at universities in Germany (funding for other EU countries will follow later). The foundations activities include:

* '''Promotion of networking and exchange''', e.g. in the form of the [https://mecfs-research.org/en/conference2023/ international ME/CFS conference] (Berlin, 2023). Further events are in preparation.
* '''Making research transparent''', e.g. with the ME/CFS Research Register (for experts and interested parties), the [https://mecfs-research.org/en/researchupdate/ ME/CFS Research Update] (for patients, relatives and the public) or the [https://mecfs-research.org/en/symposium2023/ ME/CFS Symposium] (Berlin, 2023).
* '''Promotion of research projects''': support of individual researchers, the establishment of basic ME/CFS research structures at universities, or doctoral scholarships (see the [https://mecfs-research.org/en/fundingstrategy/ research funding strategy] for more details). Example projects:
** '''''cell morphology, cell deformability and microclots in ME/CFS'' at the Institute of Medical Immunology at the Charité – University Medicine Berlin'''<ref>{{Cite web|url=https://cfc.charite.de/weitere_forschung/zellverformbarkeit_und_mikrogerinnsel/|title=Zellverformbarkeit und Mikrogerinnsel: Charité Fatigue Centrum - Charité – Universitätsmedizin Berlin|website=cfc.charite.de|access-date=2024-05-29}}</ref>
** '''''Post-COVID Kids Bavaria 2.0'' at the Klinikum rechts der Isar of the Technical University of Munich (MRI TUM)'''<ref>{{Cite web|url=https://mrr.mecfsresearch.org/en/projects/Y042vwIlQNm1YDoPLKm-Fg|title=ME/CFS Research Register|website=mrr.mecfsresearch.org|access-date=2024-05-29}}</ref>

=== Projects ===
[https://mrr.mecfsresearch.org/ ME/CFS Research Register]: This register provides an overview of medical research on ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome). It contains lists and detailed descriptions of research projects, working groups, publications, and scientific events. The register also links to people (researchers and clinicians), organisations, and research networks connected to ME/CFS research. Additionally, research areas and research types of past and ongoing research are linked to research projects, people and other elements of the register.

The scope of the ME/CFS Research Register (beta) currently includes research conducted in Germany and Austria. All content is provided in English. More countries will be added in the future, depending on our resources.

=== Online presence ===

* [https://mecfs-research.org/en/ Website]
* [https://www.facebook.com/photo?fbid=248008518293675&set=a.104260536001808 Facebook]
* [https://x.com/MECFSResearch/status/1730185687733878834?s=20 X/Twitter]
* [https://www.instagram.com/p/C0RLRUeo1EL/?utm_source=ig_web_copy_link&igshid=MzRlODBiNWFlZA%3D%3D&img_index=1 Instagram]
* [https://www.linkedin.com/feed/update/urn:li:activity:7135951430829363201 LinkedIn]

=== References ===
<references />

ME/CFS Research Foundation

2024-05-29T09:41:07Z

Anne B:first entry

ME/CFS Research Foundation is a non profit organization founded in 2022.
The German volunteering organization is committed to more biomedical ME/CFS research (incl. post-COVID) with a focus on diagnostics and therapy research. The foundation's team of patients, relatives and committed supporters also promotes medical awareness and care for patients. A scientific advisory board of international ME/CFS experts supports the work, advises on the funding priorities for ME/CFS research and strengthens the scientific competence of the foundation.

Category:German patient groups

2024-05-29T09:33:31Z

Anne B:/* Please create pages for */ ME/CFS Research Foundation

This category is for [[Germany|German]] patient groups for ME/CFS.

==Please create pages for==
<div style="column-count:1">
''ME/CFS Research Foundation''
*
</div>
(remove any blue links from this section)

==Please expand these stub pages==
{{StubPagesInCategory|{{PAGENAME}}|mode=inline}}

[[Category:Patient groups by country]]
[[Category:Germany]]